professional family relations
Summary: The interactions between the professional person and the family.
Publications239 found, 100 shown here
- A personal reflection on sitting at the bedside of a dying loved one: the vigilJan Woodhouse
School of Nursing, Midwifery and Social Care, University College Chester, CH1 4BJ
Int J Palliat Nurs 10:537-41. 2004..This reflection shares the experiences of one family and highlights the importance of communication among family members and also between family and staff. The article suggests a number of lessons for practitioners...
- Living with disability: part 2. The child/family/nurse relationshipHelen Warner
Univ of Kent Cert, Counselling Studies
Paediatr Nurs 18:38-43; quiz 44. 2006....
- Parents' perceptions of staff competency in a neonatal intensive care unitLuisa Cescutti-Butler
Maternity and Neonatal Services, Salisbury NHS Trust and Institute of Health and Community Studies, Bournemouth University, Dorset, UK
J Clin Nurs 12:752-61. 2003..These ideas are supported by the available literature. A number of methodological issues are raised...
- Pediatric residents' responses that discourage discussion of psychosocial problems in primary careLawrence S Wissow
Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA
Pediatrics 115:1569-78. 2005..Studies spanning nearly 4 decades demonstrate that doctors ignore or dismiss many patient bids for discussion of psychosocial topics. We sought to understand characteristics of doctors, patients, and visits in which this occurs...
- The vortex: families' experiences with death in the intensive care unitKarin T Kirchhoff
University of Utah College of Nursing, Salt Lake City, USA
Am J Crit Care 11:200-9. 2002..Lack of communication from healthcare providers contributes to the anxiety and distress reported by patients' families after a patient's death in the intensive care unit...
- Families looking back: one year after discussion of withdrawal or withholding of life-sustaining supportK H Abbott
Program on the Medical Encounter and Palliative Care, Durham VA Medical Center, NC, USA
Crit Care Med 29:197-201. 2001..Families sought comfort in the identification and contact of a "doctor-in-charge." ICU policies such as family conference rooms and lenient visitation accommodate families during end-of-life decision-making...
- Parents' perceptions of health professionals' responses when seeking help for their overweight childrenL D Edmunds
Department of Community Based Medicine, University of Bristol, 24 Tyndall Avenue, Bristol BS8 1TQ, UK
Fam Pract 22:287-92. 2005..Attitudes and practices of primary care personnel have been sought about adult obesity, but rarely about overweight children. Parents' views in this respect have not been explored. This paper addresses that omission...
- Enhancing parent-provider communication in ambulatory pediatric practiceChantelle Nobile Hart
Department of Psychology, Case University Medical School and Rainbow Babies and Children s Hospital, USA
Patient Educ Couns 63:38-46. 2006....
- Genetic counseling and neonatal screening for cystic fibrosis: an assessment of the communication processD J Ciske
Department of Pediatrics, University of Wisconsin, Madison, Wisconsin, USA
Pediatrics 107:699-705. 2001....
- 'They've forgotten that I'm the mum': constructing and practising motherhood in special care nurseriesD Lupton
School of Social Science and Liberal Studies, Charles Sturt University, Australia
Soc Sci Med 53:1011-21. 2001..The nurses' attitude to and treatment of the mothers was integral in the development of the mothers' relationship with their infants in the nurseries, and this influence extended beyond discharge of the infants...
- Patient-centred care: What are the experiences of prostate cancer patients and their partners?Paul Sinfield
Department of Health Sciences, University of Leicester, Princess Road West, Leicester, UK
Patient Educ Couns 73:91-6. 2008..To gain an in depth understanding of the experiences of care of men with prostate cancer and their partners...
- Perceptions of health care providers' communication: relationships between patient-centered communication and satisfactionMelissa Bekelja Wanzer
Department of Communication Studies, Canisius College, Buffalo, NY 14208 1098, USA
Health Commun 16:363-83. 2004..In addition, PCC behaviors were perceived to be used more frequently with children in better health than with children with poorer health status...
- Parents' views of their children's participation in phase I oncology clinical trialsJanet A Deatrick
International Center of Research for Women, Children, and Families, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA
J Pediatr Oncol Nurs 19:114-21. 2002..These themes are contrasted to clinical, parental, and ethical perspectives from the literature to make recommendations for further research emphasizing the concerns of families...
- Withdrawal of mechanical ventilation in anticipation of death in the intensive care unitDeborah Cook
Department of Medicine, McMaster University, Hamilton, Ont, Canada
N Engl J Med 349:1123-32. 2003..The objective of this study was to examine the clinical determinants that were associated with the withdrawal of mechanical ventilation...
- A family-centered, community-based system of services for children and youth with special health care needsJames M Perrin
Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, and Harvard Medical School, Boston, MA 02114, USA
Arch Pediatr Adolesc Med 161:933-6. 2007..Previous work by the Maternal and Child Health Bureau to define CYSHCN has had widespread program effects. This article similarly seeks to provide a definition of a system of services...
- Clinician-parent communication during informed consent for pediatric leukemia trialsVictoria A Miller
Department of Psychology, Case Western Reserve University, 11220 Bellflower Road, Cleveland, Ohio 44106, USA
J Pediatr Psychol 30:219-29. 2005....
- Communicating bad news: a pediatric department's evaluation of a simulated interventionL W Greenberg
Office of Medical Education, Children s National Medical Center, George Washington University School of Medicine and Health Sciences, Washington, DC, USA
Pediatrics 103:1210-7. 1999..To determine if pediatric residents and emergency department (ED) fellows could improve their ability to counsel and inform standardized patients (SPs) about bad news...
- Teaching communication and stress management skills to junior physicians dealing with cancer patients: a Belgian Interuniversity CurriculumIsabelle Bragard
Faculté des Sciences Psychologiques et de l Education, Universite de Liege, Belgium
Support Care Cancer 14:454-61. 2006..Such an intensive course seems to be necessary to facilitate the transfer of learned skills in clinical practice...
- Mothers in the NICU: outsider to partnerJudith A Heermann
The College of Nursing, University of Nebraska Medical Center, Omaha, NE, USA
Pediatr Nurs 31:176-81, 200. 2005..Mothers' development evolved in predictable patterns. The results of this study can be considered in implementation and evaluation plans for NICUs moving to family-focused developmental care...
- Doctor-family-patient relationship: the Chinese paradigm of informed consentYali Cong
Department of Medical Ethics, Peking University Health Science Center, Peking, China
J Med Philos 29:149-78. 2004..The author predicts that the DFPR model will further develop in China but that it will maintain its Chinese character...
- Family-centred care in paediatric and neonatal nursing--a literature reviewL K Irlam
Department of Nursing Education, University of the Witwatersrand
Curationis 25:28-34. 2002..Precursor concepts in family-centred care are described followed by a cursory overview of the reality of family-centred care, its cultural dimensions and matters of family strengths and choices in family-centred care...
- Mothers' experiences of having their newborn child in a neonatal intensive care unitHelena Wigert
Department of Nursing, The Sahlgrenska Academy at Goteborg University, SE 405 30 Goteborg, Sweden
Scand J Caring Sci 20:35-41. 2006..Separation from the child is found to be the most difficult aspect for mothers when their newborn child is hospitalized in a NICU...
- Recalled relationships with parents and perceptions of professional support in mothers of infants treated for cleft lipJonathan Hill
Child and Developmental Psychiatry, University Child Mental Health, Royal Liverpool Children s Hospital, UK
Attach Hum Dev 6:21-30. 2004..Further research is needed to clarify the role of attachment processes in parents' responses to serious medical conditions in their children, and into the implications for the way professionals in paediatric services provide support...
- Commentary: SES, ethnicity and goodness-of-fit in clinician-parent communication during pediatric cancer trialsCelia B Fisher
Center for Ethics Education, Fordham University, Department of Psychology, Dealy Hall, 441 East Fordham Road, Bronx, New York 10458, USA
J Pediatr Psychol 30:231-4. 2005
- How do primary care physicians manage children with possible developmental delays? A national survey with an experimental designLaura Sices
Division of Behavioral Pediatrics and Psychology, Rainbow Babies and Children s Hospital and Case Western Reserve University, Cleveland, Ohio 44106 6038, USA
Pediatrics 113:274-82. 2004....
- Parental consent in paediatric clinical researchH Chappuy
Département d Urgences Pédiatriques, Hôpital Necker Enfants Malades Faculté de Médecine René Descartes, Paris, France
Arch Dis Child 91:112-6. 2006....
- Moral justifications for surrogate decision making in the intensive care unit: implications and limitationsRobert M Arnold
Department of Medicine, University of Pittsburgh Cancer Institute, PA 15213, USA
Crit Care Med 31:S347-53. 2003..We end by offering a number of specific suggestions for improving communication with surrogates...
- Teaching and learning consultation skills for paediatric practiceR J Howells
University of Cambridge, Department of Paediatrics, Addenbrooke s Hospital, Cambridge, UK
Arch Dis Child 91:367-70. 2006..Communication problems among health professionals are common. Fortunately, the skills of effective communication can be taught and learned. This paper highlights evidence based approaches to teaching these skills with minimal resources...
- Parent identification of early emerging child behavior problems: predictors of sharing parental concern with health providersKatherine D Ellingson
School of Epidemiology and Public Health, School of Medicine, Yale University, New Haven, CT 06520 8034, USA
Arch Pediatr Adolesc Med 158:766-72. 2004....
- Nurses' perceptions of parental involvement in hospital careBritt Marie Ygge
Astrid Lindgren Children s Hospital, Stockholm, Sweden
Paediatr Nurs 19:38-40. 2007....
- Studying communication about end-of-life care during the ICU family conference: development of a frameworkJ Randall Curtis
Division of Pulmonary and Critical Care Medicine, Department of Medicine, School of Medicine, University of Washington, Seattle, WA, USA
J Crit Care 17:147-60. 2002..The purpose of this study was to develop an understanding of the way this communication is currently conducted...
- Should parents assess the interpersonal skills of doctors who treat their children? A literature reviewM O'Keefe
Adelaide University, Department of Paediatrics, Women s and Children s Hospital, North Adelaide, SA 5006, Australia
J Paediatr Child Health 37:531-8. 2001..In order to make full use of the information obtained from parents, there is a need for further study to establish the sensitivity of parent evaluations and methods to facilitate the process of obtaining this information...
- An observational study of the level at which parents participate in decisions during their child's hospitalizationInger Hallström
Department of Paediatrics, University Hospital, S 221 85 Lund, Sweden
Nurs Ethics 9:202-14. 2002..Professionals need to communicate more openly with them in order to identify and satisfy their needs because some parents are unwilling or incapable of expressing them...
- A study of parental involvement in pediatric hospital care: implications for clinical practiceBritt Marie Ygge
Astrid Lindgren Children s Hospital, Karolinska Hospital, Stockholm, and Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden
J Pediatr Nurs 19:217-23. 2004..Although it has become common practice for parents to stay with their sick child in hospital, most hospitals lack routines and staff guidelines for involving parents in care processes and decisions...
- Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworksP A Bartolo
Department of Psychology, University of Malta, Msida, Malta
Child Care Health Dev 28:65-71. 2002....
- Pediatric residents' use of jargon during counseling about newborn genetic screening resultsMichael Farrell
Center for Patient Care and Outcomes Research, 8701 Watertown Plank Rd, Milwaukee, WI 53226 0509, USA
Pediatrics 122:243-9. 2008..The goal was to investigate pediatric residents' usage of jargon during discussions about positive newborn screening test results...
- Quality of care of the preterm infant--the parent and nurse perspectiveKarin Jackson
Department of Caring Sciences, Orebro University, Orebro, Sweden
Acta Paediatr 95:29-37. 2006..To study the subjective opinions about what is important in care at neonatal units and child health centres (CHCs) for premature newborns, and to compare these opinions with the care actually given...
- Family interviewing: a review of the literature in primary careThomas L Campbell
Department of Family Medicine, University of Rochester, NY 14620, USA
Fam Med 34:312-8. 2002..Interviewing families is an essential skill for family physicians, but there is little research on the process or outcomes of family interviewing in primary care...
- Current opinion in pediatrics: ethics and law 2001William Meadow
Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
Curr Opin Pediatr 14:170-3. 2002
- Autonomy gone awry: a cross-cultural study of parents' experiences in neonatal intensive care unitsKristina Orfali
MacLean Center for Clinical Medical Ethics, University of Chicago, IL 60637 1470, USA
Theor Med Bioeth 25:329-65. 2004....
- Negotiation of parental roles within family-centred care: a review of the researchJo Corlett
School of Nursing and Midwifery, University of Dundee, Ninewells Hospital, Dundee, UK
J Clin Nurs 15:1308-16. 2006..To review research published in the past 15 years about how children's nurses' negotiate with parents in relation to family-centred care...
- Struggling with the fragility of life: a relational-narrative approach to ethics in palliative nursingTineke A Abma
Institute for Healthcare Ethics and Philosophy, University of Maastricht, Post Box 616, 6200 MD Maastricht, The Netherlands
Nurs Ethics 12:337-48. 2005..In palliative nursing this entails open communication about the fragility of life and approaching death. In relational narratives, answers to these ethical dilemmas are co-authored, contingent and contextual...
- Going on a journey: understanding palliative care nursingAlan Barnard
School of Nursing, Queensland University of Technology, Victoria Park Road, Kelvin Grove, Queensland
Int J Palliat Nurs 12:6-12. 2006..To describe the qualitatively different ways a group of Australian nurses understood their experience of being a palliative care nurse...
- Being invigorated in parenthood: parents' experiences of being supported by professionals when having a disabled childBritt Marie Lindblad
Department of Health Sciences, University of Borås, Sweden
J Pediatr Nurs 20:288-97. 2005..The meaning of experiences of lack of support illuminates the consequences for the entire family's well-being and the struggle parents experience to gain confidence as parents and recognition of the child as valuable...
- Family as a member of the trauma rounds: a strategy for maximized communicationWilliam R Schiller
Southern Illinois Trauma Center, Springfield, USA
J Trauma Nurs 10:93-101. 2003..Communication failure is the root of much dysfunction in health care and improvement would be well received. The Trauma Team chose to include family members in daily work rounds, allowing total access to team deliberations...
- Interactions between family members and staff in intensive care units--an observation and interview studyIng Mari Söderström
Department of Health and Behavioural Sciences, Kalmar University, S 391 82 Kalmar, Sweden
Int J Nurs Stud 43:707-16. 2006..Research about interactions between family members and staff are sparse, although family members' needs and experiences in intensive care units are well researched areas...
- Registered Nurses working together with family members of older peopleKarin Weman
Department of Caring and Public Health Sciences, Malardalen University, Vasteras, Sweden
J Clin Nurs 15:281-9. 2006....
- Mental health professional support in families with a member suffering from severe mental illness: a grounded theory modelHelena Gavois
The Psychiatric Rehabilitation Unit, Psychiatry in Halland, Halmstad, Sweden
Scand J Caring Sci 20:102-9. 2006..For future studies, it is important to study the interaction of the family with SMI and the connection between hope, coping and empowerment...
- The challenges of caring for families of the terminally ill: nurses' lived experiencePathmavathy Namasivayam
School of Nursing and Midwifery, Monash University, Frankston, Victoria
Contemp Nurse 19:169-80. 2005..Moreover, some of the major barriers identified were time constraints and excessive workloads. Finally, some implications of the findings for registered nurses are discussed...
- Parental satisfaction with paediatric intensive careCaroline Haines
Paediatric Intensive High Dependency Care, Bristol Royal Hospital for Children
Paediatr Nurs 17:37-41. 2005..Many of the strategies identified to optimise the service were not dependent upon extensive organisational change or excessive additional resources...
- Stress and coping among families of patients with traumatic brain injury: a review of the literatureSofie Verhaeghe
Nursing Science, Ghent University, Belgium
J Clin Nurs 14:1004-12. 2005..The stress-coping theory and the systems theory provide the theoretical framework for this review...
- The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in FranceFranco A Carnevale
Montreal Children s Hospital, McGill University Health Centre, Montreal, Canada
J Child Health Care 10:69-82. 2006..These findings raise important issues for clinical practice and further research in France...
- Unmet needs of family members in the medical intensive care waiting roomGloria Browning
Department of Nursing, University of Tennessee at Martin, TN 38238, USA
Crit Care Nurs Q 29:86-95. 2006....
- Informational and emotional support received by relatives before and after the cancer patient's deathElina Eriksson
Department of Nursing and Midwifery, Helsinki Polytechnic, P O Box 4030, FIN 00099 City of Helsinki, Finland
Eur J Oncol Nurs 10:48-58. 2006..Some background variables for both patients and relatives correlated with the support received by relatives before and after the patient's death...
- Determining the impact of a surgical liaison nurse role in the paediatric operating roomKathy MacDonald
Children s Perioperative Care Team, IWK Health Centre, Halifax, Nova Scotia
Can Oper Room Nurs J 24:7-8, 10-1, 13-4 passim. 2006..Qualitative findings implied that the surgical liaison nurse facilitated the transfer of necessary information between the perioperative care team and the family thus providing a support mechanism for families under stress...
- How do family caregivers describe their needs for professional help?Michael J Yedidia
Rutgers Center for State Health Policy in New Brunswick, NJ, USA
Am J Nurs 108:35-7. 2008
- Anticipatory mourning in parents with a child who dies while hospitalizedAnnie Rini
Division of Endocrinology, Nemours Children s Clinic, Jacksonville, FL 32207, USA
J Pediatr Nurs 22:272-82. 2007..Offered are recommendations for health care professionals that may assist parents in coping with the death of their child...
- Seizing possibilities for positive family caregiving in nursing homesUrsula Kellett
School of Nursing and Midwifery, Research Centre for Clinical Practice Innovation, Griffith University, Brisbane, Australia
J Clin Nurs 16:1479-87. 2007..This paper explores the ways family members reconstruct meaning through seizing possibilities for positive caregiving in nursing homes...
- The "HUG": an innovative approach to pediatric nursing careJan Tedder
SAS Institute Health Care Center, Cary, NC, USA
MCN Am J Matern Child Nurs 32:210-4. 2007..Nurses' use of the HUG is aimed at helping nurses enhance their relationships with parents, helping parents feel heard and attended to, encouraging parents to share what worries them most, and increasing nurses' job satisfaction...
- Cooperation between parents and school nurses in primary schools: parents' perceptionsTiina Mäenpää
Department of Nursing Science, University of Tampere, Tampere, Finland
Scand J Caring Sci 22:86-92. 2008..Developing frank and trusting relationships contributes to easy and uninhibited cooperation. Cooperation between parents and school nurses has not been widely researched internationally...
- Effective nurse parent communication: a study of parents' perceptions in the NICU environmentLiz Jones
Griffith University, Australia
Patient Educ Couns 69:206-12. 2007..This study examined mothers' and fathers' perceptions of effective and ineffective communication by nurses in the neonatal intensive care unit (NICU) environment, using communication accommodation theory (CAT) as the framework...
- Support for carers of people with dementia during hospital admissionMaggi Douglas-Dunbar
Torbay Hospital, Lawes Bridge Torquay
Nurs Older People 19:27-30. 2007....
- Caring for the caregiversJeanne M Sorrell
School of Nursing, College of Health and Human Services, George Mason University, Fairfax, Virginia 22030, USA
J Psychosoc Nurs Ment Health Serv 45:17-20. 2007..Through listening to caregivers, nurses and other health care professionals can better understand the embedded values, goals, joys, and disappointments that connect their lives with those for whom they care...
- Parents' perceptions of the quality of pediatric and perinatal end-of-life careKimberley Widger
Pediatric Palliative Care Service, IWK Health Centre, NS, Canada
Pediatr Nurs 34:53-8. 2008..The purpose of this study was to describe the quality of care provided before, at the time of, and following the death of an infant, child, or adolescent from the perspective of the parent, using a newly developed survey...
- From hope and expectation to unexpected death after cardiac surgeryBodil Ivarsson
Department of Cardiothoracic Surgery, Lund University Hospital, Sweden
Intensive Crit Care Nurs 24:242-50. 2008..The aim was to interview relatives of patients who have died in connection with cardiac surgery and describe their experiences of information, reception and care...
- Consumer and carer participation in mental health care: the carer's perspective: part 1 - the importance of respect and collaborationVal Goodwin
School of Nursing, The University of Melbourne, Carlton, Victoria, Australia
Issues Ment Health Nurs 28:607-23. 2007..These findings demonstrate the variable experiences of carers in their opportunities to participate and the important role nurses can assume in supporting both carers and consumers through this process...
- Coping processes of Taiwanese families during the postdischarge period for an elderly family member with hip fractureHsiao Juan Li
School of Nursing, Chang Gung University, Taiwan, Republic of China
Nurs Sci Q 20:273-9. 2007..By understanding these coping processes, nurses can assist families to enhance adaptation...
- Close relatives in intensive care from the perspective of critical care nursesAsa Engström
Division of Nursing, Department of Health Science, Lulea University of Technology, Lulea, Sweden
J Clin Nurs 16:1651-9. 2007..The aim was to describe critical care nurses' experiences of close relatives within intensive care...
- The meaning of being supportive for family caregivers as narrated by registered nurses working in palliative homecarePeter Stoltz
School of Health and Society, Malmo University, Malmo, Sweden
Nurs Sci Q 19:163-73. 2006..Twenty nurses from the hospitals in Sweden participated in the study. Two core themes were found: forming a relationship and keeping caregiving at home...
- The psychosocial impact on parents of tube feeding their childRollins Hazel
Luton and Dunstable Hospital
Paediatr Nurs 18:19-22. 2006..The significance parents attach to oral feeding and their information and respite care needs when tube feeding must be recognised and further explored...
- Emotional and informational support for families during their child's illnessA Sarajärvi
Helsinki Polytechnic Stadia, Health and Social Care Services, Helsinki, Finland
Int Nurs Rev 53:205-10. 2006..To describe and compare the support provided by nursing staff to families during their child's illness from the viewpoint of families and nurses...
- Relatives in end-of-life care--part 1: a systematic review of the literature the five last years, January 1999-February 2004Birgitta Andershed
Department of Caring Sciences, Orebro University, Orebro and Ersta Sköndal University College, Stockholm, Sweden
J Clin Nurs 15:1158-69. 2006..To review systematically research conducted during the past five years focusing on the relatives' situation and needs in end-of-life care...
- Parents' experiences of collaboration with community healthcare professionalsE S Jakobsen
Diakonhjemmet University College Rogaland, Naerbø, Norway
J Psychiatr Ment Health Nurs 13:498-505. 2006..Further research on parents' experiences of collaboration is necessary. The value of parents as an important source of support can be enhanced by means of increased collaboration...
- Within the web: the family-practitioner relationship in the context of chronic childhood illnessAnnette R Dickinson
Auckland University of Technology, Auckland, New Zealand
J Child Health Care 10:309-25. 2006..The nature of the relationship is often simple, yet it coexists with complexity...
- A qualitative evaluation of a family nursing interventionFabie Duhamel
Faculty of Nursing, Universite de Montreal, the Centre Hospitalier de l Université de Montreal, Canada
Clin Nurse Spec 21:43-9. 2007..For the CNS, family interventions were considered a privilege since they helped relieve suffering and her own feelings of powerlessness. These results have the potential to improve family nursing interventions and enhance CNS practice...
- Pediatric brain tumor patients: their parents' perceptions of the hospital experienceAlun C Jackson
University of Melbourne School of Social Work, Victoria, Australia
J Pediatr Oncol Nurs 24:95-105. 2007....
- An exploration of best practice in multi-agency working and the experiences of families of children with complex health needs. What works well and what needs to be done to improve practice for the future?Bernie Carter
Department of Nursing, University of Central Lancashire, Preston, UK
J Clin Nurs 16:527-39. 2007....
- Perceived needs of critical care family members: a phenomenological discourseShirley Fry
Department of Nursing, University of Tennessee, Martin, Tennessee 38238, USA
Crit Care Nurs Q 30:181-8. 2007....
- Stroke: coping strategies and depression among Chinese caregivers of survivors during hospitalisationYanru Qiu
Department of Oncology, Renmin Hospital, Wuhan University, Wuhan, China
J Clin Nurs 17:1563-73. 2008..aims and objectives: The main aim of this study was to identify the coping strategies of stroke caregivers, to identify the factors associated with caregivers' depression and to identify predictors of caregivers' depression...
- Identifying family care process themes in caring for their hospitalized eldersHong Li
School of Nursing, University of Rochester, NY 14642, USA
Appl Nurs Res 18:97-101. 2005..Understanding how family caregivers provide care can help nurses to work effectively with family caregivers to improve the outcomes of hospitalized elders...
- Family involvement: the key to opening locked wards and closed mindsMaureen Jubb
Armadale Clinic, Armadale, Western Australia, Australia
Int J Ment Health Nurs 11:47-53. 2002....
- Management of relatives of patients who are dyingJill Main
South Birmingham Primary Care Trust, The Sheldon Unit, Birmingham, UK
J Clin Nurs 11:794-801. 2002..Findings demonstrated that staff often felt ill-equipped for providing support for relatives when a patient is dying. Training is required to help nurses support and care for the relatives of dying patients...
- Family caregiver satisfaction with care at end of life: report from the cultural variations study (CVAS)Etienne J Phipps
Albert Einstein Healthcare Network, Einstein Center for Urban Health Policy and Research, USA
Am J Hosp Palliat Care 21:340-2. 2004....
- A voice for the dyingMary Ann Meeker
University at Buffalo, The State University of New York, USA
Clin Nurs Res 13:326-42. 2004..Advice from experienced surrogates offers nurses both direct guidance to help them meet surrogates' needs and insight to assist them in coaching surrogates in the performance of this critical role...
- Shaping mutuality: nurse-family caregiver interactions in caring for older people with depressionYun Hee Jeon
Health and Ageing Research Unit, University of Technology, Sydney, Australia
Int J Ment Health Nurs 13:126-34. 2004..It is through the process of "shaping mutuality" that a nurse and family caregiver learn to collaborate, and achieve their individual goals and desired outcomes, both for the patient and for themselves...
- Communicating about end-of-life care with patients and families in the intensive care unitJ Randall Curtis
Division of Pulmonary and Critical Care Medicine, University of Washington, Harborview Medical Center, Box 359762, 325 Ninth Avenue, Seattle, WA 98104 2499, USA
Crit Care Clin 20:363-80, viii. 2004....
- Influences on positive family involvement in aged care: an ethnographic viewRuth Marquis
Division of Health Sciences, Curtin University of Technology, Perth, Western Australia
Contemp Nurse 16:178-86. 2004..This study is part of a larger study investigating relational quality in aged care environment...
- Guaranteed returns: investing in conversations with families of patients with cancerFabie Duhamel
Clin J Oncol Nurs 8:68-71. 2004..This article reviews practical suggestions to guide these conversations and provides examples of questions to ask to facilitate communication...
- Needs of family members of patients with severe traumatic brain injury. Implications for evidence-based practiceA Elaine Bond
Brigham Young University College of Nursing, Provo, Utah, USA
Crit Care Nurse 23:63-72. 2003
- Seeking support: caregiver strategies for interacting with health personnelMyrna Heinrich
Capital Health Home Care, Edmonton, Alberta, Canada
Can J Nurs Res 35:38-56. 2003..These findings confirm the importance of mutuality in relationships with health personnel and support the use of partnership and empowerment models of professional practice...
- Parental views about services for children attending schools for the emotionally and behaviourally disturbed (EBD): a qualitative analysisT Crawford
Department of Child and Adolescent Psychiatry, Guy s, King s and St Thomas Medical School and Institute of Psychiatry, King s College London, UK
Child Care Health Dev 29:481-91. 2003..The study aims to gain an understanding of the journey through the educational system taken by these children and to explore their families' experience of services along the way...
- The process of giving information to families of critically ill patients: a field of tensionConcha Zaforteza
Department of Nursing and Physiotherapy, University of Balearic Islands, Spain
Int J Nurs Stud 42:135-45. 2005..We propose that the existing power relationships in intensive care units should be challenged if we expect health care professionals to offer patients' relatives a planned information process...
- Eating disorders: a qualitative analysis of the parents' journeyBarbara Beale
School of Nursing, Family and Community Health, University of Western Sydney, Australia
Contemp Nurse 18:124-32. 2004..The research findings are taken directly from the accounts provided by parents. These parents' stories will be of interest to health professionals working with families in the area of eating disorders...
- [Bone marrow transplantation in children. Constructive evaluation of an intervention for parents]Sylvie Noiseux
Faculte des sciences infirmieres, l Université de Montréal
Perspect Infirm 1:12-24. 2003..The study found that being informed rapidly, meeting other parents and receiving support from the extended family are all needs experienced by parents that help identify appropriate nursing interventions...
- Being in tune with oneself, children, and parents: meanings of being a supporter to families with children who disabilities as narrated by parent-selected professionalsBritt Marie Lindblad
Department of Health Sciences, University of Borås, Boras, Sweden
J Pediatr Nurs 20:214-23. 2005....
- Comparing Norwegian nurses' and physicians' perceptions of the needs of significant others in intensive care unitsChristina Takman
Institute of Nursing and Health Sciences, University of Oslo, Blindern, Oslo, Norway
J Clin Nurs 14:621-31. 2005..To illuminate and compare the perceptions of registered nurses (n = 243) and physicians (n = 29) in medical and surgical ICUs for adults on the needs of significant others...
- Guiding parents through the death of their infantE Workman
Holden Neonatal Intensive Care Unit, University of Michigan Medical Center, Ann Arbor 48103, USA
J Obstet Gynecol Neonatal Nurs 30:569-73. 2001..Interventions for grieving parents are described in this article...
- Relatives' experiences of critical careFelicity Hughes
European Institute of Health and Medical Sciences, University of Surrey, Guildford, UK
Nurs Crit Care 10:23-30. 2005..Further research into the communication processes used within Critical Care Units is required in addition to developing best practice in this area...
- The identification of family members' contribution to patients' care in the intensive care unit: a naturalistic inquiryCaroline M A Williams
Queen Alexandra s Royal Naval Nursing Service, Edgbaston, Birmingham, UK
Nurs Crit Care 10:6-14. 2005....
- [Restorative pedagogic developmental support for the chronically ill child]Barbara Stüben
Kinder und Jugendlichenpsychotherapeutin, Supervisorin DGSv, Klinikum Krefeld, Zentrum für Kinder und Jugendmedizin, Krefeld
Kinderkrankenschwester 22:65-71. 2003
- Lost in translation: dignity dialogues at the end of lifeLaura Hawryluck
Ian Anderson Continuing Education Program in EOL Care, University Health Network, University of Toronto, Toronto, Ontario, Canada
J Palliat Care 20:150-4. 2004..The fundamental issues in discussion with all patients diagnosed with a life-threatening illness are ones of respect for persons, acceptance, caring, and the value of interpersonal relationships...
- Balancing Hope & Truth-Telling for Patients with Ca/COPDJ Curtis; Fiscal Year: 2005..These strategies will be described and translated into interventions targeting nurses, physicians, and teams who provide care for patients with cancer, COPD, and other life-limiting diseases. ..
- Improving Physician Skill at Providing End-of-Life CareJ Curtis; Fiscal Year: 2004..The results will allow investigators and others to develop targeted educational and systemic interventions to improve the quality of this care. ..
- IMPROVING MENTAL HEALTH CARE BY PEDIATRIC GENERALISTSLawrence Wissow; Fiscal Year: 2004..The second will explore how concepts of therapeutic alliance, which have been shown to predict treatment outcome in specialized mental health services, can be applied to mental health care provided by generalists. ..
- Trial of psychosocial training for pediatric generalistsLawrence Wissow; Fiscal Year: 2005..abstract_text> ..
- SLEEP, FATIGUE, AND DEXAMETHOSONE IN CHILDHOOD CANCERPamela Hinds; Fiscal Year: 2003..Our study findings will explicate the relationship between sleep efficiency and fatigue, and between sleep, fatigue, and systemic exposure to dexamethasone. ..
- Involving Parents in Adolescent Drug Abuse TreatmentMichael Robbins; Fiscal Year: 2003..HLM analyses will enable a comparison of differences in the trajectories of therapeutic processes between Dropouts and Completers. ..
- Timely End-of-Life Communication to Parents of Children with Brain TumorsVERNA LEE FERGUSON; Fiscal Year: 2010..This study may help health care providers learn ways to provide timely information in sensitive ways in order for parents to make decisions regarding starting and/or ending treatments, and advanced care planning. ..
- Parental Illness Representations and Asthma ManagementHANNELORE YOOS; Fiscal Year: 2005....
- Improving Asthma Communication in Minority FamiliesArlene Butz; Fiscal Year: 2007..abstract_text> ..
- Parents' Interpretation and Use of Genetic InformationAgatha Gallo; Fiscal Year: 2004..The results will inform professionals working with families, and contribute to the development of expert clinical judgment as a basis for addressing families' questions and concerns about a child's genetic condition. ..
- Cancer Assessments and Reports of End-of-Life TreatmentJoan Teno; Fiscal Year: 2005..Such tools will allow institutions to measure whether cancer care is meeting patient and family members' needs and expectations. ..
- A+ Asthma Rural PartnershipArlene Butz; Fiscal Year: 2004..The findings of this study will be important to clinicians, researchers, and health policy makers. ..
- Multifaceted Interventions to Ameliorate Pain/SymptomsJoan Teno; Fiscal Year: 2005....
- NEBULIZER INTERVENTION IN MINORITY CHILDREN WITH ASTHMAArlene Butz; Fiscal Year: 2004..Study findings will improve clinical care to this vulnerable population of children and will be if significant use to health care providers, researchers, insurers and policy makers. ..
- Research Ethics Training of Integrated Health DeliveryJoal Hill; Fiscal Year: 2006..After appropriate assessment of content and effectiveness, material developed for this program will become available for individuals and programs throughout the country. ..
- Hospital strategies to improve outcome performanceELIZABETH HOWE BRADLEY; Fiscal Year: 2010..We will work on dissemination strategies with CMS, JCAHO, American College of Cardiology (ACC), American Health Association (AHA), the Veteran's Administration (VA), and the VHA. ..
- Promoting Sleep in Mothers of Low Birth Weight Infants: a Pilot StudyShih Yu Lee; Fiscal Year: 2008..unreadable] [unreadable] [unreadable] [unreadable]..
- Feeding Tube Use Among Persons with Advanced DementiaJoan Teno; Fiscal Year: 2008..Knowledge gained will be used to inform public policy and formulate facility interventions to ensure that FT insertion in persons with severe cognitive impairment is ethically appropriate. [unreadable] [unreadable] [unreadable]..
- Patient-Centered Approach to Advance Care PlanningKARIN KIRCHHOFF; Fiscal Year: 2006..abstract_text> ..
- Differential Response to Evidenced-Based TreatmentPhillippe Cunningham; Fiscal Year: 2009..Aim 4: Examine basic science questions regarding treatment related changes in youth emotional reactivity in the context of evidence-based treatment. ..
- Improving Mental Health Outcomes of Child Brain InjuryShari L Wade; Fiscal Year: 2010..Findings will shed light on treatment processes and mechanisms by identifying factors that mediate and moderate treatment response. ..
- PUBLIC ATTITUDES TOWARDS DEATH AND ORGAN PROCUREMENTLaura Siminoff; Fiscal Year: 2001..Finally, a community dialogue will be implemented to interpret and disseminate the findings and provide recommendations to policy makers. ..
- For-Profit Ownership and End-of-Life CareElizabeth Bradley; Fiscal Year: 2009..Relevance in lay language: We will generate knowledge about the influence of for-profit hospice ownership on the experiences of patients with cancer and their families. ..
- Fluoride Varnish Trial in High Caries Pre-SchoolersPhilip Weinstein; Fiscal Year: 2008..The experimental design of this study is a randomized controlled clinical trial with two treatment groups and 250 participants per group. ..
- HOME NURSE INTERVENTION FOR IUDE INFANTS--3 YR FOLLOW UPArlene Butz; Fiscal Year: 2002..Data will be of significant use to researchers, health care providers, insurers and policy makers. ..
- RESIDENT ASSESSMENT OF PAIN MANAGEMENT (RAPM)Joan Teno; Fiscal Year: 2001..abstract_text> ..
- Appraisal Delay and Disparities in Timely Cancer DiagnosisLaura A Siminoff; Fiscal Year: 2010....
- Chronic Critical Illness: Symptoms/Associated OutcomesJudith Nelson; Fiscal Year: 2006..We plan to evaluate such interventions in a future phase of research. ..
- FAMILY CONFLICT AND DECISION MAKING FOR ADVANCED CANCERLaura Siminoff; Fiscal Year: 2004..Cut-off scores will be provided for classifying concordant and discordant families. In addition, rich and detailed descriptive information about the family treatment decision-making process will be provided. ..
- Communication in Late-stage Cancer: Exploring Hospice DecisionDEBORAH PEASE WALDROP; Fiscal Year: 2010..3) Understanding how end-of-life decisions are made is essential for the efficient planning and delivery of comprehensive services for the growing number of adults who will die from cancer. ..
- Understanding Consent to Tissue DonationLaura Siminoff; Fiscal Year: 2005..This study will be the first to comprehensively examine consent to tissue donation. ..
- THERAPEUTIC RESEARCH CONSENT--EMPIRICAL/ETHICAL ANALYSISLaura Siminoff; Fiscal Year: 2001....
- Appropriate Use of Oral Antibiotics in ChildrenHoward Bauchner; Fiscal Year: 2008..unreadable] [unreadable]..
- Interactive Distance Learning Program in Palliative CareLinda Emanuel; Fiscal Year: 2008..Some needed metrics for evaluating palliative care education; and 3. Information on which features of distance learning result in the greatest educational impact. [unreadable] [unreadable] [unreadable]..
- Improving Communication during Pediatric Visits for Acute Respiratory IllnessRita Mangione Smith; Fiscal Year: 2008..unreadable] [unreadable] [unreadable]..
- Fathers Experience with Pediatric End-of-Life CareElizabeth Davies; Fiscal Year: 2009..Findings will offer insight, enhance understanding, and provide meaningful guidance for future family-level investigations and for clinical care in the area of pediatric end-of-life care. ..
- Improving use of peri-operative beta-blockers with a multidimentional QI programAndrew Auerbach; Fiscal Year: 2009..The impact of this set of tools will be substantial as groups such as the NSQIP, SCIP, National Quality Forum, and Leapfrog Group continue to endorse PBB as a key strategy to reduce surgical morbidity and mortality. ..
- Improving Decision-Making about Feeding Options for Dementia PatientsLaura Hanson; Fiscal Year: 2009..If successful, this intervention will demonstrate a methodology with broader application to decision-making in dementia care. ..
- COMPUTER INFO, SUPPORT & PLATFORM IMPACT--BREAST CANCERDavid Gustafson; Fiscal Year: 2001..Implications for systems design will result. ..
- CONSENT CAPACITY OF ADULTS WITH MENTAL RETARDATIONCelia Fisher; Fiscal Year: 2002..A significant other is also chosen by the subjects to aid in them during the three format presentations. ..
- A Vision of Hope: Integration of Palliative Care in Chronic Pediatric DiseasesCynda H Rushton; Fiscal Year: 2010....
- Quality of Communication after Newborn Genetic ScreeningMichael Farrell; Fiscal Year: 2007..Progress in this area will generalize to other areas of communication and help streamline the implementation of new genetic testing technology. ..
- Internet Telehealth for Pediatric Asthma Case ManagementDavid Gustafson; Fiscal Year: 2006..Nursing care management and CHESS have both been shown to have positive outcomes in chronic disease management, however this is the first opportunity to study them in combination. ..
- Moderators and Mediators of Therapy for Conduct DisorderALAN KAZDIN; Fiscal Year: 2006..Also, the design of the study permits evaluation of processes and causal models to help explain the processes of change. ..
- ADDRESSING PATIENTS' MULTIPLE CONCERNS IN PRIMARY CAREJohn Heritage; Fiscal Year: 2003..The knowledge gained from this study will provide the basis for a training intervention which improves the quality of care for patients presenting with multiple concerns. ..
- Maternal Problem-Solving Training in Childhood CancerOLLE JANE SAHLER; Fiscal Year: 2006..Aim 5) To incorporate a maintenance phase into the PSST protocol to promote longer term change. ..
- Mentoring the Responsible Conduct of ResearchCelia Fisher; Fiscal Year: 2006..unreadable] [unreadable]..
- Daily Depressive Affect & Disease Management in DiabetesLawrence Fisher; Fiscal Year: 2005..abstract_text> ..
- Trajectories of Serious Illness: Patients and CaregiversJames Tulsky; Fiscal Year: 2007....
- Services Based Research for Refugee FamiliesStevan Weine; Fiscal Year: 2005....
- End of Life Nursing Education through Graduate ProgramsBetty Ferrell; Fiscal Year: 2006..This proposal includes extensive evaluation planned to monitor individual and institutional dissemination. ..
- TREATMENT OF AGITATION IN THE NURSING HOMEJiska Cohen Mansfield; Fiscal Year: 2010..PHS 398 (Rev. 05/01) Page 2 Principal Investigator/Program Director (Last, first, middle): Cohen-Mansfield, Jiska ..
- UTILIZATION AND COST OF HEALTH SERVICES BY CDUsW Bradford; Fiscal Year: 2003....
- Treatment of Child Physical Abuse: An Effectiveness TrialDavid Kolko; Fiscal Year: 2010..This study will provide initial data on the transportability and adoption of EBTs in community settings serving the child welfare system. ..
- PREVENTING CONDUCT PROBLEMS, PROMOTING SOCIAL COMPETENCECarolyn Webster Stratton; Fiscal Year: 2005..Follow-up assessments will be conducted at the end of kindergarten and each year through grade three. ..
- Values of Families in Guiding End-of-Life CareCharles Gessert; Fiscal Year: 2002..This research will lay the groundwork for two future studies: a survey of values in end-of-life decision-making, and an in depth examination of the role of selected values in decision-making. ..
- A Tailored Internet-based Preparation Program for Perioperative Anxiety and PainZeev N Kain; Fiscal Year: 2010..At the conclusion of this application, we will have preliminary data on which to base a follow-up full-scale evaluation of the efficacy and effectiveness of this program and potential moderators of its treatment effects. ..
- End of Life Decisions: Differences in Patient and Proxy Treatment PreferencesSUSAN PARKS; Fiscal Year: 2008..A better understanding of these factors will ultimately improve the shared decision making done between healthcare providers and families at the end of life for decisionally-incapacitated patients. [unreadable] [unreadable] [unreadable]..
- COMMUNICATION AND SATISFACTION WITH PRIMARY CARE TEAMSJohn Heritage; Fiscal Year: 2003..The knowledge gained from this study will provide a basis for the development of a training intervention which will improve information gathering, information transmission, and patient care in the primary care context. ..
- End of Life Communication Skills for Oncology FellowsAnthony Back; Fiscal Year: 2005..This program will create a formal curriculum for communication skills that could be replicated in many institutions to improve the quality of oncologists-patient communication--and ultimately the quality of cancer care--nationwide. ..
- Challenging Life Events in Older PersonsTIMOTHY DAALEMAN; Fiscal Year: 2005..e. social support, mental health status. Secondary aims include learning how a baseline measure of patient spirituality predicts future death attitudes and discussions of advance care planning. ..
- Efficacy of Massage Therapy at the End of LifeJean Kutner; Fiscal Year: 2005..Analyses will determine the independent influence of the intervention (a series of massage therapy sessions) on the identified outcomes (pain, physical and emotional symptom distress, quality of life). ..
- PECAM-1'S INVOLVEMENT IN ANGIOGENESISHorace Delisser; Fiscal Year: 2002....
- Identification and management of developmental delaysLaura Sices; Fiscal Year: 2008..D. (sponsor), Kurt Stange, M.D., Ph.D., Frances Glascoe, Ph.D., and Kelly Kelleher, M.D., M.P.H. ..
- Primary Care Clinics for Estimating Prevalence & Incidence of Elder MistreatmentTerry Fulmer; Fiscal Year: 2008..We will develop and test effective strategies for screening for elder mistreatment that can be replicated nationally. [unreadable] [unreadable] [unreadable]..
- Oral Chemotherapy Safety in Ambulatory Oncology: A Proactive Risk AssessmentSAUL WEINGART; Fiscal Year: 2007..Lessons about oral chemotherapy safety are applicable to other high-alert medications in ambulatory care. [unreadable] [unreadable] [unreadable]..
- Family-based Stress Management for Childhood CancerLinda Ewing; Fiscal Year: 2006..abstract_text> ..
- PECAM-1 and AlveolizationHorace Delisser; Fiscal Year: 2007..unreadable] [unreadable]..
- Conceptualizing Mental Health InterventionsCarol Whitlatch; Fiscal Year: 2007..S. with the assistance of disease-specific organizations and other targeted national organizations serving practitioners, researchers, and policy makers. ..
- Psychological Influences on Postoperative RecoveryZeev Kain; Fiscal Year: 2007..The broad, longterm objectives of this research are the evaluation, development and implementation of preoperative interventions that will improve the postoperative behavioral and clinical recovery process. ..