terminally ill

Summary

Summary: Persons with an incurable or irreversible illness at the end stage that will result in death within a short time. (From O'Leary et al., Lexikon: Dictionary of Health Care Terms, Organizations, and Acronyms for the Era of Reform, 1994, p780)

Top Publications

  1. ncbi What influences decisions around the place of care for terminally ill cancer patients?
    Kathryn McCall
    Bedford Hospital, Fort William, Scotland
    Int J Palliat Nurs 11:541-7. 2005
  2. ncbi Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making
    Judith A C Rietjens
    Department of Public Health, University Medical Center Rotterdam, Rotterdam, The Netherlands
    Palliat Med 20:685-92. 2006
  3. pmc A systematic review of physicians' survival predictions in terminally ill cancer patients
    Paul Glare
    Department of Palliative Care, Royal Prince Alfred Hospital, Camperdown, NSW 2050, Australia
    BMJ 327:195-8. 2003
  4. pmc Care of the dying patient: the last hours or days of life
    John Ellershaw
    Marie Curie Centre Liverpool, Speke Road, Liverpool L25 8QA
    BMJ 326:30-4. 2003
  5. pmc Exploring preferences for place of death with terminally ill patients: qualitative study of experiences of general practitioners and community nurses in England
    Daniel Munday
    Health Sciences Research Institute, Warwick Medical School, University of Warwick, Coventry CV4 7AL
    BMJ 339:b2391. 2009
  6. pmc Illness trajectories and palliative care
    Scott A Murray
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 330:1007-11. 2005
  7. pmc Factors influencing death at home in terminally ill patients with cancer: systematic review
    Barbara Gomes
    The Cicely Saunders Foundation Department of Palliative Care, Policy, and Rehabilitation, King s College London, London SE5 9RJ
    BMJ 332:515-21. 2006
  8. pmc Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment
    Alexi A Wright
    Department of Medical Oncology and Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, 550 Shields Warren, 44 Binney St, Boston, MA 02115, USA
    JAMA 300:1665-73. 2008
  9. pmc Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study
    N A Christakis
    Department of Medicine, University of Chicago Medical Center, Chicago, IL 60637, USA
    BMJ 320:469-72. 2000
  10. ncbi Factors considered important at the end of life by patients, family, physicians, and other care providers
    K E Steinhauser
    Veterans Affairs Medical Center 152, 508 Fulton St, Durham, NC 27705, USA
    JAMA 284:2476-82. 2000

Detail Information

Publications333 found, 100 shown here

  1. ncbi What influences decisions around the place of care for terminally ill cancer patients?
    Kathryn McCall
    Bedford Hospital, Fort William, Scotland
    Int J Palliat Nurs 11:541-7. 2005
    To explore what factors influence decisions around the place of care for terminally ill cancer patients in a rural area in West Highland, Scotland.
  2. ncbi Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making
    Judith A C Rietjens
    Department of Public Health, University Medical Center Rotterdam, Rotterdam, The Netherlands
    Palliat Med 20:685-92. 2006
    ..Insight in the relationships of such acceptance, with characteristics considered important for a 'good death', may contribute to the understanding of this liberal attitude...
  3. pmc A systematic review of physicians' survival predictions in terminally ill cancer patients
    Paul Glare
    Department of Palliative Care, Royal Prince Alfred Hospital, Camperdown, NSW 2050, Australia
    BMJ 327:195-8. 2003
    To systematically review the accuracy of physicians' clinical predictions of survival in terminally ill cancer patients.
  4. pmc Care of the dying patient: the last hours or days of life
    John Ellershaw
    Marie Curie Centre Liverpool, Speke Road, Liverpool L25 8QA
    BMJ 326:30-4. 2003
  5. pmc Exploring preferences for place of death with terminally ill patients: qualitative study of experiences of general practitioners and community nurses in England
    Daniel Munday
    Health Sciences Research Institute, Warwick Medical School, University of Warwick, Coventry CV4 7AL
    BMJ 339:b2391. 2009
    To explore the experiences and perceptions of general practitioners and community nurses in discussing preferences for place of death with terminally ill patients.
  6. pmc Illness trajectories and palliative care
    Scott A Murray
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 330:1007-11. 2005
  7. pmc Factors influencing death at home in terminally ill patients with cancer: systematic review
    Barbara Gomes
    The Cicely Saunders Foundation Department of Palliative Care, Policy, and Rehabilitation, King s College London, London SE5 9RJ
    BMJ 332:515-21. 2006
    ..To determine the relative influence of different factors on place of death in patients with cancer...
  8. pmc Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment
    Alexi A Wright
    Department of Medical Oncology and Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, 550 Shields Warren, 44 Binney St, Boston, MA 02115, USA
    JAMA 300:1665-73. 2008
    ..Talking about death can be difficult. Without evidence that end-of-life discussions improve patient outcomes, physicians must balance their desire to honor patient autonomy against a concern of inflicting psychological harm...
  9. pmc Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study
    N A Christakis
    Department of Medicine, University of Chicago Medical Center, Chicago, IL 60637, USA
    BMJ 320:469-72. 2000
    To describe doctors' prognostic accuracy in terminally ill patients and to evaluate the determinants of that accuracy.
  10. ncbi Factors considered important at the end of life by patients, family, physicians, and other care providers
    K E Steinhauser
    Veterans Affairs Medical Center 152, 508 Fulton St, Durham, NC 27705, USA
    JAMA 284:2476-82. 2000
    ..Empirical evidence defining such factors, however, is lacking...
  11. ncbi Initial assessment of a new instrument to measure quality of life at the end of life
    Karen E Steinhauser
    Program on the Medical Encounter and Palliative Care, Center for Health Services Research in Primary Care, Durham VA Medical Center, Durham, North Carolina 27705, USA
    J Palliat Med 5:829-41. 2002
    ..We conducted this study to pilot a new multidimensional instrument to assess the quality of life at the end of life...
  12. pmc Pilot randomized controlled trial of individual meaning-centered psychotherapy for patients with advanced cancer
    William Breitbart
    Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, 641 Lexington Ave, 7th Floor, New York, NY 10022, USA
    J Clin Oncol 30:1304-9. 2012
    ..We developed Individual Meaning-Centered Psychotherapy (IMCP) to address the need for brief interventions targeting spiritual well-being and meaning for patients with advanced cancer...
  13. ncbi Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington
    Linda Ganzini
    Mental Health Division, Oregon Health and Science University, Portland, USA
    J Pain Symptom Manage 24:312-7. 2002
    To understand the factors associated with interest in assisted suicide among terminally ill patients, we surveyed 50 caregivers of decedent amyotrophic lateral sclerosis (ALS) patients from Oregon and Washington regarding perceptions of ..
  14. ncbi Spirituality, religion, and depression in the terminally ill
    Christian J Nelson
    Department of Psychology, Long Island University, Brooklyn, New York, USA
    Psychosomatics 43:213-20. 2002
    This study examined the impact of spirituality and religiosity on depressive symptom severity in a sample of terminally ill patients with cancer and AIDS.
  15. ncbi The challenge of patients' unmet palliative care needs in the final stages of chronic illness
    D Fitzsimons
    Nursing Research and Development, Belfast City Hospital, Belfast, Northern Ireland
    Palliat Med 21:313-22. 2007
    ..There is consensus in the literature that the end of life care for patients with chronic illness is suboptimal, but research on the specific needs of this population is limited...
  16. ncbi Quality end-of-life care: patients' perspectives
    P A Singer
    Toronto Hospital and the Department of Medicine, Joint Centre for Bioethics, University of Toronto, Ontario, Canada
    JAMA 281:163-8. 1999
    ..Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients...
  17. ncbi Treatment of existential distress in life threatening illness: a review of manualized interventions
    Katerine LeMay
    School of Psychology, University of Ottawa, Ottawa, ON, Canada
    Clin Psychol Rev 28:472-93. 2008
    ..In this paper, we review the evidence supporting the importance of existential concerns in terminally ill patients, describe eight manualized interventions explicitly addressing existential themes, and evaluate the ..
  18. ncbi The role of general practitioners in continuity of care at the end of life: a qualitative study of terminally ill patients and their next of kin
    Eva Michiels
    Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    Palliat Med 21:409-15. 2007
    ..Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this...
  19. ncbi Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients
    Colleen S McClain
    Fordham University, Bronx, NY 10458, USA
    Lancet 361:1603-7. 2003
    ..The importance of spirituality in coping with a terminal illness is becoming increasingly recognised. We aimed to assess the relation between spiritual well-being, depression, and end-of-life despair in terminally-ill cancer patients...
  20. ncbi Truth may hurt but deceit hurts more: communication in palliative care
    L J Fallowfield
    Psychosocial Oncology Group Cancer Research UK, School of Biological Sciences, University of Sussex, Brighton, UK
    Palliat Med 16:297-303. 2002
    ..I think the best physician is the one who has the providence to tell to the patients according to his knowledge the present situation, what has happened before, and what is going to happen in the future' (Hippocrates)...
  21. ncbi Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research
    Karen E Steinhauser
    Center for Health Services Research in Primary Care, Durham VA Medical Center, Duke University, NC 27705, USA
    Palliat Med 20:745-54. 2006
    ..The palliative care literature is replete with descriptions of studies unable to meet enrollment goals, and that as a result, do not have adequate power to test hypotheses or draw conclusions...
  22. ncbi A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information
    Sharon M Parker
    National Health and Medical Research Council Clinical Trials Centre, University of Sydney, Camperdown, New South Wales, Australia
    J Pain Symptom Manage 34:81-93. 2007
    ..However, they wanted to negotiate the content and extent of this information...
  23. pmc How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study
    Daniel P Sulmasy
    Department of Ethics, St Vincent s Hospital, New York, New York 10011, USA
    J Am Geriatr Soc 55:1981-8. 2007
    To determine the role terminally ill patients would opt to have their loved ones and physicians play in healthcare decisions should they lose decision-making capacity and how this changes over time.
  24. ncbi Review: the quality of dying and death: a systematic review of measures
    Sarah Hales
    Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Toronto, ON, Canada
    Palliat Med 24:127-44. 2010
    ..Strategies to measure the quality of dying and death are becoming increasingly rigorous. Further research is required to understand the factors influencing the ratings of the quality of dying and death...
  25. pmc Attitudes of cancer patients, family caregivers, oncologists and members of the general public toward critical interventions at the end of life of terminally ill patients
    Young Ho Yun
    Cancer Management Branch, Research Institute, National Cancer Center, Goyang, Korea
    CMAJ 183:E673-9. 2011
    ..We surveyed cancer patients, family caregivers, oncologists and members of the general public to determine their attitudes toward such interventions...
  26. pmc Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: a randomised controlled trial
    Harvey Max Chochinov
    Department of Psychiatry, University of Manitoba, Winnipeg, MB, Canada
    Lancet Oncol 12:753-62. 2011
    ..We investigated whether dignity therapy could mitigate distress or bolster the experience in patients nearing the end of their lives...
  27. ncbi Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: a systematic review
    Peter L Hudson
    Centre for Palliative Care, St Vincent s Hospital and The University of Melbourne, Victoria, Austalia
    Palliat Med 20:693-701. 2006
    ..Not many research studies seem to have specifically targeted why palliative care patients may desire hastened death, and few have focused on clinical guidelines for responding to such requests...
  28. pmc Recognising patients who will die in the near future: a nationwide study via the Dutch Sentinel Network of GPs
    Ebun A Abarshi
    The EMGO Institute for Health and Care Research, Department of Public and Occupational Health, VU University Medical Centre, Amsterdam, The Netherlands
    Br J Gen Pract 61:e371-8. 2011
    ..Recognising patients who will die in the near future is important for adequate planning and provision of end-of-life care. GPs can play a key role in this...
  29. ncbi Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer
    W Breitbart
    Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY 10021, USA
    JAMA 284:2907-11. 2000
    Understanding why some terminally ill patients desire a hastened death has become an important issue in palliative care and the debate regarding legalization of assisted suicide.
  30. ncbi Patterns of functional decline at the end of life
    June R Lunney
    Laboratory of Epidemiology, Demography, and Biometry, National Institute on Aging, National Institutes of Health, Bethesda, MD 20892 9205, USA
    JAMA 289:2387-92. 2003
    ..Clinicians have observed various patterns of functional decline at the end of life, but few empirical data have tested these patterns in large populations...
  31. ncbi Experiences of surviving spouse of terminally ill spouse: a phenomenological study of an altruistic perspective
    Tove Fisker
    Nordic School of Public Health NHV, Gothenburg, Sweden
    Scand J Caring Sci 21:274-81. 2007
    ..of the study was to illuminate the experiences of surviving relatives in connection with their care at home of terminally ill, dying spouses, followed by an outline of the need for palliative assistance by the district nurse...
  32. ncbi Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart, or liver disease. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments
    E Fox
    Center to Improve Care of the Dying, George Washington University School of Medicine and Health Sciences, Department of Veterans Affairs, Washington, DC 20420, USA
    JAMA 282:1638-45. 1999
    ..However, to be eligible, these patients generally must have a prognosis for survival of less than 6 months...
  33. ncbi Assessing quality of care for the dying: the development and initial validation of a postal self-completion questionnaire for bereaved relatives
    Catriona R Mayland
    Marie Curie Palliative Care Institute, University of Liverpool, Liverpool, UK
    Palliat Med 26:897-907. 2012
    ..Currently, within the United Kingdom, there is no validated instrument which specifically examines quality of care in the last days of life or the impact of the Liverpool Care Pathway (LCP) for the Dying Patient...
  34. ncbi The needs of terminally ill patients at home: directing one's life, health and things related to beloved others
    Ireen M Proot
    Centre for Nursing Research, Maastricht University UM and the Institute for Bioethics, UM, Maastricht, The Netherlands
    Palliat Med 18:53-61. 2004
    This article describes the results of a grounded theory study among terminally ill patients (with a life expectancy of less than three months) at home (n = 13, aged 39-83)...
  35. ncbi Existential concerns of terminally ill cancer patients receiving specialized palliative care in Japan
    Tatsuya Morita
    Seirei Hospice, Seirei Mikatabara Hospital 3453 Mikatabara cho, 433 8558 Hamamatsu, Shizuoka, Japan
    Support Care Cancer 12:137-40. 2004
    Although alleviation of existential distress is important for terminally ill cancer patients, the concept of existential distress has not been fully understood...
  36. pmc Palliative care research: trading ethics for an evidence base
    A M Jubb
    J Med Ethics 28:342-6. 2002
    ..practical limitations compromise the quality of evidence that can be obtained from empirical research on terminally ill subjects...
  37. ncbi What is a good death? Terminally ill patients dealing with normative expectations around death and dying
    Minke Goldsteen
    Department of Health Care Ethics and Philosophy, Maastricht University, P O Box 616, 6200 MD Maastricht, The Netherlands
    Patient Educ Couns 64:378-86. 2006
    ..This article aims to offer an insight in the way terminally ill patients talk about death and dying and how they refer to current western normative expectations about a 'good'..
  38. ncbi When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients
    Josephine M Clayton
    Medical Psychology Research Unit, School of Psychology and Faculty of Medicine, University of Sydney, Sydney, New South Wales, Australia
    J Pain Symptom Manage 30:132-44. 2005
    ..to explore by whom, how, and when discussions about prognosis and end-of-life issues should be initiated with terminally ill patients, and the context in which these issues can be optimally discussed...
  39. pmc Defining priorities for improving end-of-life care in Canada
    Daren K Heyland
    Department of Medicine, Kingston General Hospital, Kingston, Ont
    CMAJ 182:E747-52. 2010
    ..The objective of this study was to identify aspects of end-of-life care that are high in priority as targets for improvement using feedback elicited from patients and their families...
  40. ncbi Euthanasia and depression: a prospective cohort study among terminally ill cancer patients
    Marije L van der Lee
    Department of Clinical Psychology, Faculty Social Sciences, Utrecht University, Utrecht, The Netherlands
    J Clin Oncol 23:6607-12. 2005
    To study the association between depression and the incidence of explicit requests for euthanasia in terminally ill cancer patients.
  41. ncbi Physician discussions with terminally ill patients: a cross-national comparison
    Colleen Cartwright
    Aged Services Learning and Research Collaboration, Southern Cross University, Coffs Harbour, NSW, Australia
    Palliat Med 21:295-303. 2007
    A major issue in the care of terminally ill patients is communication and information provision...
  42. pmc Communication between physicians and family caregivers about care at the end of life: when do discussions occur and what is said?
    Emily Cherlin
    Department of Epidemiology and Public Health, Yale School of Medicine, New Haven, Connecticut 06520 8034, USA
    J Palliat Med 8:1176-85. 2005
    ..We examined family caregiver reports of physician communication about incurable illness, life expectancy, and hospice; the timing of these discussions; and subsequent family understanding of these issues...
  43. pmc Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community
    Scott A Murray
    Department of Community Health Sciences, University of Edinburgh, Edinburgh EH8 9DX, UK
    BMJ 325:929. 2002
    ..To compare the illness trajectories, needs, and service use of patients with cancer and those with advanced non-malignant disease...
  44. ncbi Preferences for place of care and place of death among informal caregivers of the terminally ill
    Kevin Brazil
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, ON, Canada
    Palliat Med 19:492-9. 2005
    ..caregivers perceptions about place of care and place of death; and (2) to identify variables associated with a home death among terminally ill individuals who received in-home support services in a publicly funded home care system.
  45. pmc Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC)
    Monica Beccaro
    Unit of Clinical Epidemiology, National Cancer Institute, Largo Rosanna Benzi, 10, 16132, Genoa, Italy
    J Epidemiol Community Health 60:412-6. 2006
    ..To describe actual and preferred place of death of Italian cancer patients and to analyse the preferences met regarding the place of death...
  46. pmc Quality care at the end of life in Africa
    Cecilia Sepulveda
    Programme on Cancer Control, World Health Organization, Avenue Appia 20, CH 1211 Geneva 27, Switzerland
    BMJ 327:209-13. 2003
  47. ncbi Serial interviews for patients with progressive diseases
    Scott A Murray
    Primary Palliative Care Research Group, Division of Community Health Sciences General Practice Section, University of Edinburgh, EH8 9DX, UK
    Lancet 368:901-2. 2006
  48. pmc Dying from cancer in developed and developing countries: lessons from two qualitative interview studies of patients and their carers
    Scott A Murray
    Division of Community Health Sciences, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 326:368. 2003
    ..To describe the experiences of illness and needs and use of services in two groups of patients with incurable cancer, one in a developed country and the other in a developing country...
  49. ncbi Which patients with cancer die at home? A study of six European countries using death certificate data
    Joachim Cohen
    End of Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    J Clin Oncol 28:2267-73. 2010
    ..This study examines the proportion of cancer deaths occurring at home in six European countries in relation to illness and to demographic and health care factors...
  50. ncbi Dying, dignity, and new horizons in palliative end-of-life care
    Harvey Max Chochinov
    DepartmentManitoba Palliative Care Research Unit, Cancer Care Manitoba, Winnipeg, Manitoba, Canada
    CA Cancer J Clin 56:84-103; quiz 104-5. 2006
    ....
  51. ncbi Uric acid as a prognostic factor for survival time: a prospective cohort study of terminally ill cancer patients
    Hyun Sik Shin
    Department of Family Medicine H S S, H R L, D C L, J Y S, Yongdong Severance Hospital, Yonsei University College of Medicine, Seoul, Republic of Korea
    J Pain Symptom Manage 31:493-501. 2006
    ..cohort study was to determine whether serum uric acid level is useful as a predictor of survival in terminally ill cancer patients. One hundred eighteen terminally ill cancer patients, including 63 (53...
  52. ncbi A delay they can ill afford: delays in obtaining Attendance Allowance for older, terminally ill cancer patients, and the role of health and social care professionals in reducing them
    Geraldine Nosowska
    Health Soc Care Community 12:283-7. 2004
    Despite a growing interest in holistic care for the terminally ill, financial needs are often not addressed. This is reflected in the fact that some people with a terminal illness are not accessing disability benefits, despite eligibility...
  53. ncbi Factors influencing death at home in terminally ill cancer patients
    Shunsuke Nakamura
    Department of Home Care Management, Nagoya University Graduate School of Medicine, Nagoya University School of Medicine, Nagoya, Japan
    Geriatr Gerontol Int 10:154-60. 2010
    The purpose of this study is to investigate factors affecting terminally ill cancer patients dying at home.
  54. ncbi Health-related quality of life in significant others of patients dying from lung cancer
    C Persson
    Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Huddinge, Sweden
    Palliat Med 22:239-47. 2008
    ..Thus, living with inoperable lung cancer in the family and then facing the death of a family member affects most of the HRQOL dimensions...
  55. ncbi Changes in quality of life following admission to palliative care units
    S R Cohen
    Division of Palliative Care, Department of Oncology, McGill University, Department of Medicine, McGill University Health Centre, Canada
    Palliat Med 15:363-71. 2001
    ..However, the study results are generalizable only to those few patients admitted who are well enough to complete a questionnaire 1 week after admission...
  56. ncbi Dignity-based approaches in the care of terminally ill patients
    Genevieve N Thompson
    Manitoba Palliative Care Research Unit, Faculty of Nursing, University of Manitoba, Canada
    Curr Opin Support Palliat Care 2:49-53. 2008
    ..This review seeks to clarify what is meant by dignity at the end of life, what threatens dignity, and evidence of the domains that define dignity. A model of dignity is proposed from which interventions can be derived...
  57. ncbi Evaluation of quality-of-life measures for use in palliative care: a systematic review
    Gwenda Albers
    Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
    Palliat Med 24:17-37. 2010
    ..In this literature review we evaluated the feasibility and clinimetric quality of quality-of-life (QoL) measurement instruments suitable for use in palliative care...
  58. ncbi A systematic review of instruments related to family caregivers of palliative care patients
    Peter L Hudson
    St Vincent s and The University of Melbourne, Centre for Palliative Care, Melbourne, Australia
    Palliat Med 24:656-68. 2010
    ..We recommend that others be judicious before developing new instruments for this population...
  59. pmc Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals
    Erika Kleiderman
    Centre of Genomics and Policy, Faculty of Medicine, Dept of Human Genetics, McGill University, 740 Dr, Penfield Avenue, 5th Floor, Suite 5200, Montreal, QC H3A 1A4, Canada
    BMC Med Ethics 13:33. 2012
    Non-therapeutic trials in which terminally ill cancer patients are asked to undergo procedures such as biopsies or venipunctures for research purposes, have become increasingly important to learn more about how cancer cells work and to ..
  60. ncbi Distress in palliative care patients: developing patient-centred approaches to clinical management
    Mari Lloyd-Williams
    Academic Palliative and Supportive Care Studies Group, University of Liverpool, School of Population, Community and Behavioural Sciences, Brownlow Hill, Liverpool, UK
    Eur J Cancer 44:1133-8. 2008
    ....
  61. ncbi Association between clinician factors and a patient's wish to hasten death: terminally ill cancer patients and their doctors
    Brian J Kelly
    Centre for Rural and Remote Mental Health, University of Newcastle, NSW, Australia
    Psychosomatics 45:311-8. 2004
    ..Significant predictors of a high wish to hasten death in terminally ill patients from among treating clinicians included the clinician's perception of the patient's lower optimism ..
  62. ncbi "Are you at peace?": one item to probe spiritual concerns at the end of life
    Karen E Steinhauser
    Centers for Palliative Care, Veterans Affairs Medical Center, and Department of Medicine, Division of Geriatrics, School of Nursing, Center for the Study of Aging and Human Development, Duke University, Durham, NC 27705, USA
    Arch Intern Med 166:101-5. 2006
    ..A practical, evidence-based approach to discussing spiritual concerns in a scope suitable to a physician-patient relationship may improve the quality of the clinical encounter...
  63. ncbi Self-perceived burden in terminally ill cancer patients: a categorization of care strategies based on bereaved family members' perspectives
    Terukazu Akazawa
    Department of Psychiatry and Cognitive Behavioral Medicine, Nagoya City University Graduate School of Medical Sciences, Nagoya, Japan
    J Pain Symptom Manage 40:224-34. 2010
    b>Terminally ill cancer patients often experience a self-perceived burden that affects their quality of life; however, no standard care strategy for coping with this form of suffering has ever been established.
  64. ncbi Letting go of the rope--aggressive treatment, hospice care, and open access
    Alexi A Wright
    Dana Farber Cancer Institute, Boston, USA
    N Engl J Med 357:324-7. 2007
  65. ncbi Evaluation of competence to consent to assisted suicide: views of forensic psychiatrists
    L Ganzini
    Department of Psychiatry, Center for Ethics in Health Care, Oregan Health Sciences University, Portland, OR, 97207, USA
    Am J Psychiatry 157:595-600. 2000
    ..The authors surveyed a national sample of forensic psychiatrists in the United States regarding the process, thresholds, and standards that should be used to determine competence to consent to assisted suicide...
  66. ncbi Depression and explicit requests for euthanasia in end-of-life cancer patients in primary care in the Netherlands: a longitudinal, prospective study
    Cees D M Ruijs
    Primary Care Center De Greev, Utrecht, The Netherlands
    Fam Pract 28:393-9. 2011
    ..However, the relationship between depression and requests for euthanasia has never been prospectively studied directly in primary care...
  67. ncbi Recruiting end-of-life cancer patients in the Netherlands for a study on suffering and euthanasia requests
    C D M Ruijs
    Department of Public and Occupational Health, EMGO Institute for Health and Care Research, Palliative Care Centre of Expertise, VU University Medical Centre, Amsterdam
    Fam Pract 28:689-95. 2011
    ..Our target was to recruit at least 50 patients...
  68. ncbi Staff-assisted home hemodialysis in debilitated or terminally ill patients
    Mahendra Agraharkar
    University of Texas Medical Branch at Galveston, Internal Medicine, 77555 0562, USA
    Int Urol Nephrol 33:139-44. 2002
    ..8 SD and range of 44-87 years. Nine of them were males and 19 females. All of these were considered terminally ill as most of these patients had multi-organ failure...
  69. pmc Factors important to patients' quality of life at the end of life
    Baohui Zhang
    Center for Psychosocial Epidemiology and Outcomes Research and Division of Population Sciences, Department of Medical Oncology, Dana Farber Cancer Institute, Dana 1134, 450 Brookline Ave, Boston, MA, USA
    Arch Intern Med 172:1133-42. 2012
    ..The purpose of this study was to determine the factors that most influence QOL at the EOL, thereby identifying promising targets for interventions to promote QOL at the EOL...
  70. ncbi Effect of complementary and alternative medicine on the survival and health-related quality of life among terminally ill cancer patients: a prospective cohort study
    Y H Yun
    Cancer Research Institute, Seoul National University Hospital and College of Medicine, Seoul, Korea
    Ann Oncol 24:489-94. 2013
    ..We evaluated whether complementary and alternative medicine (CAM) use influenced outcomes [survival and health-related quality of life (HRQOL)] of cancer patients whose condition had just been judged terminal...
  71. ncbi Confronting the prospect of dying. reports of terminally ill patients
    M J Yedidia
    Center for Health and Public Service Research, Wagner Graduate School of Public Service, New York University, New York, NY 10003, USA
    J Pain Symptom Manage 22:807-19. 2001
    ..Health care providers would be well advised to become aware of such motifs so as to better understand patient preferences for care and responses to treatment recommendations...
  72. ncbi Serotonin transporter 5-HTTLPR polymorphism and response to citalopram in terminally ill cancer patients: report of twenty-one cases
    Maria Anna Capozzo
    Section of Pharmacology, Department of Biomedical Sciences, University of Trieste, via L Giorgieri 7, 34127 Trieste, Italy
    Tumori 95:479-83. 2009
    ..effects of the SSRI antidepressant drug citalopram on anxiety, depression and mental adjustment to cancer in terminally ill cancer patients, considering also the 5-HTTLPR genetic polymorphism...
  73. ncbi Terminally ill cancer patients' wish to hasten death
    B Kelly
    Department of Psychiatry, University of Queensland, Woolloongabba, Australia
    Palliat Med 16:339-45. 2002
    This exploratory study investigated factors associated with the wish to hasten death among a sample of terminally ill cancer patients...
  74. ncbi Expressed desire for hastened death in seven patients living with advanced cancer: a phenomenologic inquiry
    Nessa Coyle
    Pain and Palliative Care Service at Memorial Sloan Kettering Cancer Center, New York, NY, USA
    Oncol Nurs Forum 31:699-709. 2004
    ..To explore the meanings and uses of an expressed desire for hastened death in seven patients living with advanced cancer...
  75. ncbi Preparing family caregivers for death and bereavement. Insights from caregivers of terminally ill patients
    Randy S Hebert
    Section of Palliative Care and Medical Ethics, Division of General Internal Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania, USA
    J Pain Symptom Manage 37:3-12. 2009
    ..Focus groups and ethnographic interviews were conducted with 33 family caregivers (bereaved or current) of terminally ill patients. The interviews were audiotaped, transcribed, and analyzed using the constant comparative method...
  76. ncbi [Quality of life in elderly, terminally ill cancer patients]
    Aleksandra Modlinska
    Zakład Medycyny Paliatywnej, Gdańsk Uniwersytet Medyczny
    Przegl Lek 66:479-84. 2009
    In the last few years many researches have emerged in which quality of life of terminally ill patients has been a main focus of attention. Some evaluation methods have been used in elderly population too...
  77. ncbi Discussing prognosis with terminally ill cancer patients and relatives: a survey of physicians' intentions in seven countries
    Jennifer Voorhees
    Department of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands
    Patient Educ Couns 77:430-6. 2009
    ..To determine the extent to which physicians in different countries intend to inform terminal patients and relatives about prognosis, and to identify physician characteristics associated with an active approach to such discussions...
  78. ncbi Preference for place-of-death among terminally ill cancer patients in Denmark
    Mette Asbjoern Neergaard
    Department of Oncology, Aarhus University Hospital, Aarhus, Denmark
    Scand J Caring Sci 25:627-36. 2011
    ..The aim of this study was to describe where terminally ill Danish cancer patients prefer to die and to determine if their preference changed during the palliative period,..
  79. ncbi Efficacy of short-term life-review interviews on the spiritual well-being of terminally ill cancer patients
    Michiyo Ando
    Faculty of Nursing, St Mary s College, Kurume City, Fukuoka, Japan
    J Pain Symptom Manage 39:993-1002. 2010
    There is a little information about effective psychotherapies to enhance the spiritual well-being of terminally ill cancer patients.
  80. ncbi Nurses' communication of prognosis and implications for hospice referral: a study of nurses caring for terminally ill hospitalized patients
    Dena Schulman-Green
    Center for Excellence in Chronic Illness Care, School of Nursing, Yale University, New Haven, CT, USA
    Am J Crit Care 14:64-70. 2005
    ..Although nurses are ideally situated to facilitate communication about prognosis and hospice referral among patients, patients' family members, and hospital staff, nurses do not always assume this task...
  81. ncbi The effect of music therapy on anxiety in patients who are terminally ill
    Anne Horne-Thompson
    Calvary Health Care Bethlehem, Melbourne, Victoria, Australia
    J Palliat Med 11:582-90. 2008
    ..The literature supporting the use of music therapy in palliative care is growing. However, the number of quantitative research studies investigating the use of music therapy in palliative care, and specifically anxiety, is limited...
  82. ncbi The use of bisphosphonates in palliative treatment of bone metastases in a terminally ill, oncological elderly population
    Antonino Santangelo
    Department of Senescence, Urological and Neurological Sciences, University of Catania, Cannizzaro Hospital, Via Messina 829, I 95126 Catania, Italy
    Arch Gerontol Geriatr 43:187-92. 2006
    ..Cancer Pain and Palliative Care Program. Cancer Pain Release, vol. 13], the term terminally ill patient refers to oncological patients whose life expectancy is lower than 90 days, and the index of their ..
  83. ncbi Dying to know: qualitative research with terminally ill persons and their families
    Kristin Wright
    St Louis University, St Louis, Missouri, USA
    Death Stud 26:255-71. 2002
    ..former doctoral candidate and her dissertation chair--describe their ongoing naturalistic inquiry of terminally ill persons and their family members...
  84. ncbi Diagnosing and discussing imminent death in the hospital: a secondary analysis of physician interviews
    Amy M Sullivan
    Division of Psychosocial Oncology and Palliative Care, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    J Palliat Med 10:882-93. 2007
    ..Many reports suggest clinicians are often inadequately prepared to "diagnose dying'' or discuss the likelihood of imminent death with patients and families...
  85. ncbi The prevalence of psychiatric disorder and the wish to hasten death among terminally ill cancer patients
    Brian J Kelly
    Center for Rural and Remote Mental Health, University of Newcastle, Orange, Australia
    Palliat Support Care 2:163-9. 2004
    This study assessed the prevalence of psychiatric disorder among a group of terminally ill cancer patients with or without a wish to hasten death (WTHD).
  86. pmc Hospital versus home death: results from the Mexican Health and Aging Study
    Marylou Cardenas-Turanzas
    Department of Critical Care Medicine, Center for Research on Minority Health, The University of Texas M D Anderson Cancer Center, Houston, Texas 77030 4009, USA
    J Pain Symptom Manage 41:880-92. 2011
    ..Characterizing where people die is needed to inform palliative care programs in Mexico...
  87. ncbi Voices of the terminally ill: uncovering the meaning of desire for euthanasia
    Yvonne Yi Wood Mak
    Bradbury Hospice, A Kung Kok Shan Road, Shatin, New Territories, Hong Kong
    Palliat Med 19:343-50. 2005
    ..Euthanasia requests cannot be taken at face value but require in-depth exploration of their covert meaning, in order to ensure that the patients' needs are being addressed adequately...
  88. pmc Methylphenidate for the treatment of depressive symptoms, including fatigue and apathy, in medically ill older adults and terminally ill adults
    Susan E Hardy
    Division of Geriatric Medicine, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania 15213, USA hardysdom pitt edu
    Am J Geriatr Pharmacother 7:34-59. 2009
    ..Despite the long history of methylphenidate use for the treatment of depressive symptoms, fatigue, and apathy, there is little definitive evidence to support its use...
  89. ncbi The practicalities of terminally ill patients signing their own DNR orders--a study in Taiwan
    C H Huang
    Department of Family Medicine, College of Medicine and Hospital, National Taiwan University, No 7, Chuang Shan South Road, Taipei 100, Taiwan
    J Med Ethics 34:336-40. 2008
    ..To investigate the current situation of completing the informed consent for do-not-resuscitate (DNR) orders among the competent patients with terminal illness and the ethical dilemmas related to it...
  90. ncbi Ten years' activity of the first Italian public hospice for terminally ill patients
    Massimo Monti
    Istituto Geriatrico Pio Albergo Trivulzio, 20146 Milan, Italy
    Support Care Cancer 12:752-7. 2004
    ..at the Geriatric Institute Pio Albergo Trivulzio of Milan, Italy's first public hospice for the admission of terminally ill patients...
  91. ncbi Determinants of the burden and positivity of family caregivers of terminally ill cancer patients in Korea
    Chang Hae Park
    Palliative Care Clinic, Hospital, National Cancer Center, Goyang, Republic of Korea
    Psychooncology 21:282-90. 2012
    ..Caregivers may experience positive or negative feelings about their role. The study investigated the determinants of the burden and positivity of family caregivers of Korean terminal cancer patients...
  92. ncbi The wish to hasten death: a review of clinical studies
    Cristina Monforte-Royo
    Escola Universitària d Infermera Gimbernat, Universitat Autonoma de Barcelona, Barcelona, Spain
    Psychooncology 20:795-804. 2011
    ..Further clinical research is needed to provide a complete understanding of this phenomenon and to foster the development of suitable care plans...
  93. ncbi A qualitative investigation of the palliative care needs of terminally ill people who live alone
    S Aoun
    WA Centre for Cancer and Palliative Care, Curtin University of Technology, Bentley, WA 6028, Australia
    Collegian 15:3-9. 2008
    ..The needs of these individuals are practical, emotional, physical and existential. At the heart of these concerns is a strong need to be independent and maintain a sense of dignity at end of life...
  94. ncbi Fostering hope in terminally ill patients
    Jenny Buckley
    St Wilfrid s Hospice, Chichester, West Sussex
    Nurs Stand 19:33-41. 2004
    To investigate the meaning of hope, identify strategies that terminally ill patients use in maintaining and fostering hope during the final stage of life, explore changes in hope during the dying trajectory and investigate whether the ..
  95. ncbi Can prospect theory explain risk-seeking behavior by terminally ill patients?
    Emma B Rasiel
    Center for Clinical and Genetic Economics, Duke Clinical Research Institute, Duke University Medical Center, Durham, NC 27715, USA
    Med Decis Making 25:609-13. 2005
    ....
  96. ncbi Are terminally ill patients dying in the ICU suitable for non-heart beating organ donation?
    Jean Pierre Revelly
    Surgical Intensive Care Unit, Centre Hospitalier Universitaire Vaudois, 1011, Lausanne, Switzerland
    Intensive Care Med 32:708-12. 2006
    ..To evaluate the feasibility of implementing a program of controlled non-heart beating organ donation, in patients undergoing the withdrawal of intensive care treatment...
  97. ncbi Desire for death and requests to hasten death of Japanese terminally ill cancer patients receiving specialized inpatient palliative care
    Tatsuya Morita
    Seirei Hospice, Seirei Mikatabara Hospital, Shizuoka, Japan
    J Pain Symptom Manage 27:44-52. 2004
    ..incidence and reasons for desiring death and requests to hasten death during the whole course of terminally ill cancer patients receiving specialized palliative care in Japan...
  98. ncbi Documentation of discussions about prognosis with terminally ill patients
    E H Bradley
    Yale School of Medicine, New Haven, Connecticut 06520-8034, USA
    Am J Med 111:218-23. 2001
    ..The purposes of this study were to estimate the proportion of terminally ill inpatients with documented discussions about prognosis, describe the nature and correlates of such discussions,..
  99. pmc Relations between desire for early death, depressive symptoms and antidepressant prescribing in terminally ill patients with cancer
    E Tiernan
    Our Lady s Hospice, Harold s Cross, Dublin 6W, Ireland
    J R Soc Med 95:386-90. 2002
    ..depressive symptoms and desire for early death (natural or by euthanasia or physician-assisted suicide) in 142 terminally ill patients with cancer being cared for by a specialist palliative care team...
  100. pmc The right to information for the terminally ill patient
    E Osuna
    Department of Legal Medicine, School of Medicine, University of Murcia, Spain
    J Med Ethics 24:106-9. 1998
    To analyse the attitudes of medical personnel towards terminally ill patients and their right to be fully informed.
  101. ncbi Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family caregivers in Taiwan
    Siew Tzuh Tang
    National Yang Ming University, School of Nursing, Number 155, Sec 2, Li Nong Street, Taipei, Taiwan, ROC
    Soc Sci Med 61:1560-6. 2005
    ..The purposes of this study were to compare (1) Taiwanese terminally ill cancer patients' and their family caregivers' preferences for the patient's place of death; and (2) important ..

Research Grants65

  1. Chemotherapy Near Death: Modifiable Factors and Outcomes in Ovarian Cancer
    Alexi Wright; Fiscal Year: 2013
    ....
  2. Therapeutic Pathways to Improving End of Life Outcomes Among Families in Palliati
    TALIA IRIT ZAIDER; Fiscal Year: 2011
    ..S. served by hospice in 2007 [103]. Most terminally ill cancer patients and family caregivers prefer that death occur in the home [104]...
  3. Autoimmune biomarker profiling in tauopathy
    Irving E Vega; Fiscal Year: 2013
    ..The reduction in AMPH1 protein level is associated with detection of pathological tau in terminally ill JNPL3 mice and AD...
  4. Black-White Differences in Advanced Cancer Communication, Acceptance, and Care
    Holly Gwen Prigerson; Fiscal Year: 2013
    ..also reveal that black, compared to white, advanced cancer patients are less likely to consider themselves terminally ill, are more likely to prefer life-prolonging treatments, and are less likely to engage in advance care planning...
  5. Individual Meaning-Centered Psychotherapy in Advanced Cancer Patients
    William Breitbart; Fiscal Year: 2013
    ..There have been several recent studies of terminally ill cancer patients, both by our research group and others, demonstrating the central role of spiritual well being,..
  6. The role of a novel tau-associated protein in neurodegeneration
    Irving E Vega; Fiscal Year: 2012
    ..by the principal investigator (PI), were directed toward the identification of tau-associated proteins in terminally ill JNPL3 mice...
  7. Continuity of care and end of the life ICU use
    Gulshan Sharma; Fiscal Year: 2012
    ..His passion is to provide high quality end of life care to terminally ill older adults...
  8. Explaining Variations in End-of-Life Care Intensity
    Nancy L Keating; Fiscal Year: 2013
    ..4. Understand differences in intensity of EOL care across health system (fee-for-service Medicare, Medicare managed care, VA), and assess patient and physician characteristics and beliefs across systems. ..
  9. Providing Hospice Care for Children: An Organizational Study
    Lisa Lindley; Fiscal Year: 2010
    ..This is increasingly important given the trend of terminally ill children returning home to die...
  10. ESRD: Regional Variation in Medicare Spending &Racial Disparities
    BERNADETTE AMBROSE THOMAS; Fiscal Year: 2013
    ..between regional variation in healthcare intensity and racial disparities in end-of-life quality measures for terminally ill patients receiving dialysis...
  11. Determinants, Decision-Making and Outcomes of Antibiotic Use in Advanced Dementia
    Susan L Mitchell; Fiscal Year: 2013
    ..unclear as to whether antimicrobial treatment confers any life-prolonging or symptomatic benefit in these terminally ill individuals, for whom the goal of care is often palliation...
  12. EXERCISE--NURSING INTERVENTION FOR FUNCTIONAL RECOVERY
    Beverly Roberts; Fiscal Year: 2000
    ..Patients who are terminally ill, severely cognitively impaired, unable to follow directions, taking corticosteroids and from a long term care ..
  13. Social Networks and the Spread of Cancer Care Practices
    Bruce E Landon; Fiscal Year: 2013
    ....
  14. Rater and Intensity Psychometrics of the Respiratory Disease Observation Scale
    MARGARET LORENE CAMPBELL; Fiscal Year: 2013
    ..The RDOS performed well when tested with terminally ill patients who were at risk for respiratory distress, most of whom could not self-report dyspnea...
  15. Decision-making capacity and neuropsychological functioning in terminally ill can
    Elissa Kolva; Fiscal Year: 2012
    ..The proposed study aims to aid clinicians by identifying patterns of decisional impairment in terminally ill cancer patients so that they can better assess and enhance patient decision-making capacity...
  16. Trial of Ascertaining Individual Preferences for Loved Ones'Role in End-of-life
    Marie T Nolan; Fiscal Year: 2013
    ..Although most terminally ill patients desire shared family decision making, few family members are prepared for this and many report high ..
  17. FACILITATING OLDER SPOUSES' ADJUSTMENT TO SPOUSAL DEATH
    VICTORIA RAVEIS; Fiscal Year: 1999
    ..The proposed intervention is brief (8 pre- and 8 post-death sessions) and the intervention can be readily implemented in a variety of health care settings. ..
  18. Parenteral Hydration in Advanced Cancer Patients: A Randomized Controlled Trial
    Eduardo Bruera; Fiscal Year: 2009
    ..conducted by our group suggested that parenteral hydration decreased symptoms associated with dehydration in terminally ill cancer patients as compared with placebo...
  19. A PRACTICUM IN CLINICAL RESEARCH ETHICS
    David Strauss; Fiscal Year: 2001
    ..The hospitalized patients' "therapeutic misconception" or the desperate solutions sought by the terminally ill reveal the complexities of the concept of informed and voluntary consent in actual clinical circumstances...
  20. A PRACTICUM IN CLINICAL RESEARCH ETHICS
    David Strauss; Fiscal Year: 2000
    ..The hospitalized patients' "therapeutic misconception" or the desperate solutions sought by the terminally ill reveal the complexities of the concept of informed and voluntary consent in actual clinical circumstances...
  21. AN INVESTIGATION OF THE VIATICAL SETTLEMENTS MARKET
    Dana Goldman; Fiscal Year: 2005
    People near the end of life such as the frail elderly or terminally ill often desire to sell non-liquid assets to finance current consumption...
  22. NURSING HOME CARE AT THE END-OF-LIFE: COST & QUALITY
    Vincent Mor; Fiscal Year: 2000
    ..of patient, organizational and market factors as determinants of cost and quality of care experiences of terminally ill NH residents...
  23. HOPE--HOME CARE OUTREACH FOR PALLIATIVE CARE EDUCATION
    Betty Ferrell; Fiscal Year: 2001
    ..on priority topics in end of life care including pain management, symptom management, communication with terminally ill patients and families, and improving the care surrounding the death event at home; 2) Develop and implement a ..
  24. Psychiatric Disorder in Dying Patients & Their Survivors
    Selby Jacobs; Fiscal Year: 2005
    Little is known about the prevalence and treatment of psychiatric disorders among terminally ill cancer patients and their caregivers, nor about the ways in which mental health may affect the patient's comfort at death, and the impact ..
  25. Access to Medicare Hospice for Nursing Home Residents
    Pedro Gozalo; Fiscal Year: 2001
    ..Gozalo will examine the process by which the Medicare hospice benefit becomes available to terminally ill NH residents, and when available, the process by which the residents select the benefit...
  26. Market and Provider Effects on Hospice in Nursing Homes
    Pedro Gozalo; Fiscal Year: 2004
    ..project we use national data to examine the process by which the Medicare hospice benefit becomes available to terminally ill NH residents...
  27. Understanding and Implementing End of Life Preferences
    ELIZABETH VIG; Fiscal Year: 2006
    ..She has used qualitative and quantitative methods to better understand older adults' and terminally ill adults' views of the end of life...
  28. PROFILING THE NEEDS OF DYING CHILDREN
    JOHN FEUDTNER; Fiscal Year: 2004
    ..several techniques to monitor health utilization data for indicators of the quality of care provided to terminally ill children...
  29. LIVING WILLS: FOR PRIMARY CARE, AIDS AND CANCER PATIENTS
    JOHN STOECKLE; Fiscal Year: 1990
    It has been postulated that ethical decision making regarding medical interventions for the terminally ill would be improved by widespread use of comprehensive living wills...
  30. IMPROVING QUALITY OF LIFE DURING THE END OF LIFE PROCESS
    Ellen Redinbaugh; Fiscal Year: 1999
    ..study will test the efficacy of a dual component psychoeducational intervention with family caregivers of terminally ill cancer patients...
  31. After-hours communication support for hospice family caregivers and patients
    Karen Courtney; Fiscal Year: 2009
    ..We will explore if using a videophone for after-hours phone calls between hospice nurses and family caregivers leads to better caregiver and patient management of pain and higher levels of quality of life for both. ..
  32. POPULATION BASED STUDY OF HOSPICE USE AND CONSEQUENCES
    Nicholas Christakis; Fiscal Year: 2001
    ..Its aim is to evaluate patterns of hospice use in a population-based sample of terminally ill patients that is developed at the time of diagnosis rather than at the time of hospice entry; using Cox ..
  33. BUCCAL DRUG DELIVERY SYSTEM FOR CANCER PAIN MANAGEMENT
    LYNN MALAND; Fiscal Year: 1991
    ..3 million people die of cancer each year and that roughly 70 percent of the terminally ill cancer patients experience pain as a major symptom during the course of their disease...
  34. ETHNOGRAPHY OF DYING IN A LONG TERM CARE FACILITY
    Jeanie Kayser Jones; Fiscal Year: 2002
    ..Findings may suggest interventions that will improve the end-of-life care of terminally-ill nursing home residents. ..
  35. Efficacy of Massage Therapy at the End of Life
    Jean Kutner; Fiscal Year: 2005
    ..However, there is a significant burden of unrelieved symptoms among terminally ill patients...
  36. HOSPICE CARE FOR THE SUBSTANCE ABUSING AIDS PATIENT
    CAROLE COX; Fiscal Year: 1993
    ..These persons pose a particular challenge to these services which have traditionally cared for terminally ill cancer patients...
  37. HOME HEALTH CARE AND ELDERS--INTERNATIONAL PERSPECTIVES
    Charlotte Ikels; Fiscal Year: 1992
    ..of Home Care", "The Significance and Management of Limitations on Mobility", and "The Provision of Care to the Terminally Ill in the Home"...
  38. HOME CARE FOR THE TERMINALLY ILL: A STUDY OF 3 MODELS
    ANN BLUES; Fiscal Year: 1980
    This study is to define and evaluate home care for the terminally ill within three community-based models--the public home health agency, the private home health agency and the hospital-based home health agency...
  39. TELE-CARE FOR CAREGIVERS OF THE TERMINALLY ILL
    Sandra Walsh; Fiscal Year: 2001
    Care for a terminally ill cancer patient presents personal, social, and economic hardships for family members. Logistical factors, such as difficulty arranging transportation, can prevent caregivers from getting help...
  40. COHORT STUDY OF CANCER PATIENT CAREGIVER OUTCOMES
    Jane Ingham; Fiscal Year: 2001
    ..a conceptual framework of the caregiving experience to conduct a longitudinal cohort study of caregivers of terminally ill cancer patients...
  41. DYING AT HOME OF AIDS & CANCER: PREFERENCES & OUTCOMES
    Susan Folkman; Fiscal Year: 2004
    ..This preliminary study will determine the feasibility of: a) identifying terminally ill patients with approximately 3 to 6 months to live, b) recruiting terminally ill patients and their primary ..
  42. Computer Training in End-of-Life Care for Nurses' Aids
    MARY TOBORG; Fiscal Year: 2004
    ..staff will define the perceptions and attitudes of NAs in rural communities to issues related to the terminally ill and care at the end-of-life...
  43. PHYSICAL AND EMOTIONAL HEALTH IN THE BEREAVED
    Susan Nolen Hoeksema; Fiscal Year: 1992
    ..study is designed to investigate the influence of several psychosocial factors on individuals' who have a terminally ill loved one, and who are associated with local hospices...
  44. Good Parent Intervention at End of Life
    Pamela Hinds; Fiscal Year: 2005
    ..Health care professionals assigned to the terminally ill child will receive the communication intervention within hours of the parent interview, and will evaluate its ..
  45. Spirituality, Religioisity, and Immune Functioning
    Colleen McClain Jacobson; Fiscal Year: 2003
    ..and religiosity play a protective role in the elevation of the proinflammatory cytokine, IL-6, among terminally ill cancer patients, and that this is one mechanism through which religiosity and spirituality affect health...
  46. Computer Training in End-of-Life Care for Rural Nurses' Aides
    MARY TOBORG; Fiscal Year: 2006
    ..staff will define the perceptions and attitudes of NAs in rural communities to issues related to the terminally ill and care at the end-of-life...
  47. LONGITUDINAL STUDY OF DEPRESSION IN LUNG CANCER
    Michael Weitzner; Fiscal Year: 2002
    ..teams in identifying, clarifying, and helping to set in motion the completion of life tasks that a terminally ill patient deems important, but which remain undone...
  48. Nursing Assistant EOL Care Computerized Education
    Mary Ersek; Fiscal Year: 2005
    ..A collaboration between Swedish Medical Center and HPNA also will ensure the continuing updating and usefulness of the computer program following the end of the grant funding period. ..
  49. ENHANCING CANCER EDUCATION--MEDICAL AND NURSING STUDENTS
    Susan McMillan; Fiscal Year: 1999
    ..management during cancer treatment; and 4) to teach third year medical students how to manage symptoms in terminally ill cancer patients and how to collaborate with other health professionals by providing didactic and clinical ..
  50. Dignity Intervention for Terminally Ill Cancer Patients
    Harvey Chochinov; Fiscal Year: 2007
    ..empirically derived theoretical model developed from our qualitative and quantitative work on dignity in the terminally ill. This therapeutic approach is unique, in that it is a brief practical bedside intervention, designed ..
  51. Dialectical Behavior Therapy for Stalking Offenders
    Barry Rosenfeld; Fiscal Year: 2008
    ..unreadable] [unreadable] [unreadable]..
  52. Measuring hopelessness at the end of life
    Barry Rosenfeld; Fiscal Year: 2007
    ..adjustment to terminal illness, the need to better understand and measure the construct of hopelessness among terminally ill individuals is clear...
  53. Treatment goals at the end of life
    Terri Fried; Fiscal Year: 2006
    ..The study will involve 226 terminally ill older persons and a family member...
  54. Traetment Goals at the End of Life
    Terri Fried; Fiscal Year: 2008
    ..abstract_text> ..
  55. Use of HIT to Improve Symptom Mgt in Advanced Cancer
    Jean Kutner; Fiscal Year: 2006
    ..Patient-level pharmacologic or non-pharmacologic interventions may ineffective or inadequately studied in the terminally ill population; 2) Care providers (either informal or professional) may not recognize symptom distress, leading to ..
  56. DESIRE FOR DEATH AMONG TERMINALLY ILL PATIENTS WITH AIDS
    William Breitbart; Fiscal Year: 2001
    ..With only one exception, these studies have failed to directly assess/measure desire for death among terminally ill patients,and no research to date has attempted to answer the question of whether treatment for depression has ..
  57. End of Life Communication Skills for Oncology Fellows
    Anthony Back; Fiscal Year: 2005
    ..This program will create a formal curriculum for communication skills that could be replicated in many institutions to improve the quality of oncologists-patient communication--and ultimately the quality of cancer care--nationwide. ..
  58. Meaning-Centered Psychotherapy in Advanced Cancer
    William Breitbart; Fiscal Year: 2002
    ..There have been several recent studies of terminally ill cancer and AIDS patients by our research group demonstrating the central role of spiritual well being, and "..
  59. Patients' and families' home care service priorities
    David Casarett; Fiscal Year: 2007
    ..unreadable] [unreadable] [unreadable]..
  60. DEPRESSION/DESIRE FOR DEATH IN TERMINAL CANCER PATIENTS
    William Breitbart; Fiscal Year: 2003
    ..With one exception, these studies have not directly assessed desire for death among terminally ill patients, and no research has attempted to answer the question of whether treatment for depression has a ..
  61. Preparing Caregivers for the Death of their Loved One
    Randy Hebert; Fiscal Year: 2007
    ..Finally, in order to determine feasibility, the intervention will be pilot tested in a sample of caregivers of terminally ill patients and the HCPs caring for the patients. Dr...
  62. PALLIATIVE CARE FELLOWSHIP
    J Billings; Fiscal Year: 2004
    ....
  63. Depression, Cytokines, and Pancreatic Cancer
    William Breitbart; Fiscal Year: 2006
    ..abstract_text> ..
  64. Oncology Nursing Education in End of Life Care
    Betty Ferrell; Fiscal Year: 2007
    ..This proposal includes extensive evaluation planned to monitor individual and institutional dissemination. [unreadable] [unreadable] [unreadable]..