Summary: Children with mental or physical disabilities that interfere with usual activities of daily living and that may require accommodation or intervention.
Publications320 found, 100 shown here
- Patterns of participation in recreational and leisure activities among children with complex physical disabilitiesMary Law
CanChild Centre for Childhood Disability Research, Hamilton, Ontario, Canada
Dev Med Child Neurol 48:337-42. 2006....
- Low back pain in adult female caregivers of children with physical disabilitiesHenry C Tong
Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI 48108, USA
Arch Pediatr Adolesc Med 157:1128-33. 2003..Low back pain (LBP) in occupational settings has been studied extensively. There are fewer studies on LBP in domestic settings, especially in an informal caregiving setting...
- The health and well-being of caregivers of children with cerebral palsyParminder Raina
Department of Clinical Epidemiology and Biostatistics, McMaster Evidence based Practice Centre, Hamilton, ON, Canada
Pediatrics 115:e626-36. 2005..The primary objective of the current study was to examine, within a single theory-based multidimensional model, the determinants of physical and psychological health of adult caregivers of children with CP...
- Assessing quality of life of children with chronic health conditions and disabilities: a European approachMonika Bullinger
Department of Medical Psychology, University Hamburg, Germany
Int J Rehabil Res 25:197-206. 2002..Assessment and monitoring will allow identification of unmet health care needs and, it is hoped, ultimately, the fostering of the development of effective intervention strategies...
- An exploratory study of parents' approaches to health promotion in families of adolescents with physical disabilitiesB J Antle
Department of Social Work, The Hospital for Sick Children, Toronto, Ontario, Canada
Child Care Health Dev 34:185-93. 2008....
- Outcome at 1 year of neonatal encephalopathy in Kathmandu, NepalM Ellis
Institute of Child Health, Royal Hospital for Children, St Michael s Hill, Bristol, UK
Dev Med Child Neurol 41:689-95. 1999..An upper estimate for the prevalence of major neuroimpairment at 1 year attributable to birth asphyxia is 1 per 1000 live births in this population...
- Study protocol: SPARCLE--a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsyAllan Colver
Northumbria Healthcare NHS Trust, School of Clinical Medical Sciences Child Health, University of Newcastle upon Tyne, Royal Victoria Infirmary, Newcastle upon Tyne NE1 4LP, UK
BMC Public Health 6:105. 2006..Concepts are adopted from the International Classification of Functioning, Disability and Health which bridges the medical and social models of disability...
- Perceived environmental barriers to recreational, community, and school participation for children and youth with physical disabilitiesMary Law
CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada
Arch Phys Med Rehabil 88:1636-42. 2007..To comprehensively describe parent perceptions of environmental barriers to recreational, community, and school participation for children with physical disabilities...
- Stress and well-being among parents of children with rare diseases: a prospective intervention studyLotta Dellve
Assistant Professor, Department of Public Health and Community Medicine, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden
J Adv Nurs 53:392-402. 2006..This paper reports a study to assess stress, well-being and supportive resources experienced by mothers and fathers of children with rare disabilities, and how these variables were affected by an intensive family competence intervention...
- The effects of camp on health-related quality of life in children with chronic illnesses: a review of the literatureIris Epstein
Faculty of nursing at the University of Toronto, Ontario, Canada
J Pediatr Oncol Nurs 22:89-103. 2005..A total of 1270 children, ranging in age from 6 to 25 years, participated in the studies...
- Malocclusions and traumatic injuries in disabled schoolchildren and adolescents in KuwaitM Shyama
Oral Health Services, Ministry of Health, Kuwait
Spec Care Dentist 21:104-8. 2001The present study was carried out to determine the prevalence of malocclusion and traumatic injuries in disabled children and adolescents attending the special-needs schools in Kuwait...
- Parental experiences of children's disabilities and special education in the United States and Japan: implications for school social workMisa Kayama
School of Social Work, University of Illinois at Urbana Champaign, Urbana, IL 61801, USA
Soc Work 55:117-25. 2010..S. and Japanese concepts of disability suggests ways in which services in both countries may be strengthened. The Japanese case suggests ways of strengthening empathy and trust, and the U.S. case provides a positive model of inclusion...
- Living with a child with a severe orofacial handicap: experiences from the perspectives of parentsUlrika Trulsson
Nordic School of Public Health, Goteborg, Sweden
Eur J Oral Sci 111:19-25. 2003..Oral health issues such as dental caries and gingivitis were not mentioned. Five aspects of good professional attitude were recognized: respect, involvement, continuity, knowledge, and availability...
- An outbreak of adenovirus type 7 in a residential facility for severely disabled childrenHammam Ghanaiem
Department of Pediatrics, Hadassah University Hospital, Jerusalem, Israel
Pediatr Infect Dis J 30:948-52. 2011..Only a few of the 55 known serotypes of adenovirus that affect humans can cause outbreaks of respiratory tract infection...
- High-frequency, low-intensity vibrations increase bone mass and muscle strength in upper limbs, improving autonomy in disabled childrenm Loreto Reyes
Endocrine Unit, Pediatrics Department, Faculty of Medicine, Pontificia Universidad Catolica de Chile, Santiago, Chile
J Bone Miner Res 26:1759-66. 2011..double-blind, placebo-controlled clinical trial to assess the efficacy and safety of regional HFLMV in disabled children. Sixty-five children 6 to 9 year of age were randomized into three groups: placebo, 60 Hz, and 90 Hz...
- Development and evaluation of a satisfaction scale for parents of children with special health care needsH T Ireys
Johns Hopkins School of Hygiene and Public Health, Baltimore, Maryland 21205, USA
Pediatrics 104:1182-91. 1999..This article describes the development and evaluation of the Multidimensional Assessment of Parental Satisfaction (MAPS) for Children With Special Needs, a tool for measuring satisfaction with providers at the individual level of care...
- Participation and enjoyment of leisure activities in school-aged children with cerebral palsyAnnette Majnemer
School of Physical and Occupational Therapy, McGill University, Montreal, Canada
Dev Med Child Neurol 50:751-8. 2008....
- Applying the International Classification of Functioning, Disability and Health (ICF) to measure childhood disabilityR J Simeonsson
School of Education and FPG Child Development Institute, CB 8185, UNC, Chapel Hill, NC 27599 8185, USA
Disabil Rehabil 25:602-10. 2003..The development of measures should be framed within a framework of children's rights and application of the biopsychosocial model to document profiles of functioning and disability of children...
- Obesity and secondary conditions in adolescents with disabilities: addressing the needs of an underserved populationJames H Rimmer
Department of Disability and Human Development, University of Illinois at Chicago, Chicago, Illinois 60608 6904, USA
J Adolesc Health 41:224-9. 2007..A range of interventions will be necessary to overcome the many barriers that youth with disabilities experience in achieving and maintaining a healthy weight...
- Dental caries in disabled childrenNatasa Ivancic Jokic
School of Medicine, Department of Clinical Pedodontics, University of Rijeka, Rijeka, Croatia
Coll Antropol 31:321-4. 2007..The values of OHI-S index ranged from 3.8-4.53 in disabled children and 2.73-2.84 in healthy children. In disabled children, the average dft values were 3...
- Using participatory rural appraisal (PRA) in the identification of children with disabilities in rural Kilifi, KenyaJoseph K Gona
KEMRI Wellcome Trust, Kilifi, Kenya
Rural Remote Health 6:553. 2006..Participatory rural appraisal (PRA) provides a cost-effective and efficient method that reflects the local perceptions of disability and involves local people. These factors are important for sustainability in resource-poor countries...
- Creating and being created: the changing panorama of paediatric rehabilitationPaul J M Helders
Utrecht University, Faculty of Medicine, University Medical Centre and Children s Hospital, Department of Paediatric Physiotherapy, Division of Paediatrics, Room KB 02 056 0, P O Box 85090, 3508 AB Utrecht, The Netherlands
Pediatr Rehabil 6:5-12. 2003..It shows that paediatric rehabilitation continues to develop as a dynamic profession, having growth, childhood development and childhood activities as it's core business...
- [A follow up of persons who received basic and/or supplemental benefits in childhood]Tor Bjerkedal
Forsvarets sanitet, Militaermedisinsk epidemiologi, Ulleval universitetssykehus, Oslo mil Akershus, 0015 Oslo
Tidsskr Nor Laegeforen 126:436-9. 2006..Consequences of chronic diseases in childhood with respect to health, educational achievement and participation in the labour force in young adult age are evaluated...
- What evidence, whose evidence?: Physical therapy in New York State's clinical practice guideline and in the lives of mothers of disabled childrenGail H Landsman
University at Albany, SUNY, NY, USA
Soc Sci Med 62:2670-80. 2006..While to some extent authority and power affect the range of knowledge that can be transformed into evidence, the more significant constraints may be the rules of evidence we value and the particular paradigm of our science...
- An evaluation of the responsiveness of a comprehensive set of outcome measures for children and adolescents with traumatic brain injuriesN Thomas-Stonell
Bloorview MacMillan Children s Centre, Toronto, ON, Canada
Pediatr Rehabil 9:14-23. 2006..The Pediatric Evaluation of Disability Inventory and the MultiAttribute Health Status Classification were the least responsive of the nine measures used...
- Orthodontic management of orofacial problems in young people with impairments: review of the literature and case reportsR S Hobson
Department of Child Dental Health, School of Dental Sciences, Newcastle upon Tyne, UK
Int J Paediatr Dent 15:355-63. 2005..The aim of this paper is to present a series of cases illustrating possible options for the management of malocclusions in a group of young people with impairments. Design. The study took the form of a case series...
- Health services research for children with disabilitiesJames M Perrin
Harvard Medical School, USA
Milbank Q 80:303-24. 2002..This article reviews recent research on health services relating to children and adolescents with disabilities and outlines a research agenda in clinical and health services for this population in these study areas...
- Insurance for children with special health care needs: patterns of coverage and burden on families to provide adequate insuranceAmy J Davidoff
Health Policy Center, Urban Institute, 2100 M St NW, Washington, DC 20037, USA
Pediatrics 114:394-403. 2004..To update national estimates of insurance coverage for children with special health care needs (CSHCN) to reflect better the current economic and policy environment and to examine the burden on families and adequacy of coverage...
- Accommodative coping and well-being of midlife parents of children with mental health problems or developmental disabilitiesMarsha Mailick Seltzer
Waisman Center and School of Social Work, University of Wisconsin Madison, Madison, WI 53705, USA
Am J Orthopsychiatry 74:187-95. 2004..This effect was stronger for parents of individuals with a severe mental health problem than for the comparison group...
- Acknowledging the extra care parents give their disabled childrenK Roberts
Social Policy Research Unit, University of York, Heslington, York, UK
Child Care Health Dev 27:307-19. 2001..The aim of this study was to identify patterns of extra care needs among severely disabled children known to the Trust...
- The many layers of social support: capturing the voices of young people with spina bifida and their parentsBeverley J Antle
Faculty of Social Work, University of Toronto, Ontario, Canada
Health Soc Work 34:97-106. 2009..Implications for social work practice with targeted populations and systems are considered...
- Prevalence of childhood disability and the characteristics and circumstances of disabled children in the UK: secondary analysis of the Family Resources SurveyClare M Blackburn
School of Health and Social Studies, University of Warwick, Coventry CV4 7AL, UK
BMC Pediatr 10:21. 2010Robust data on the prevalence of childhood disability and the circumstances and characteristics of disabled children is crucial to understanding the relationship between impairment and social disadvantage...
- Life course impacts of parenting a child with a disabilityM M Seltzer
Waisman Center, University of Wisconsin-Madison, 53705, USA
Am J Ment Retard 106:265-86. 2001..Parents whose child had a serious mental health problem had normative patterns of educational and occupational attainment and marriage, but elevated levels of physical symptoms, depression, and alcohol symptoms at mid-life...
- Reducing burnout in mothers with an intellectually disabled child: an education programmeSonay Bilgin
Ataturk University School of Nursing, Erzurum, Turkey
J Adv Nurs 65:2552-61. 2009..This paper is a report of a study conducted to examine the effect of participating in an education program on burnout for mothers of children with an intellectual disability...
- Child disability screening, nutrition, and early learning in 18 countries with low and middle incomes: data from the third round of UNICEF's Multiple Indicator Cluster Survey (2005-06)Carissa A Gottlieb
Department of Population Health Sciences, University of Wisconsin Madison, Madison, WI 53726, USA
Lancet 374:1831-9. 2009..We examined child disability screening and its association with nutrition and early learning in countries with low and middle incomes...
- Optimizing health care for children with spina bifidaGregory S Liptak
Golisano Pediatrics, Upstate Medical University, Syracuse, New York 13210, USA
Dev Disabil Res Rev 16:66-75. 2010..Research questions related to the process of care and to specific nonsurgical conditions associated with spina bifida are reviewed in this article...
- Mood problems of mothers with disabled children in Saudi Arabia. A preliminary prospective studyMuwafak H Al-Eithan
Department of Psychology, Sultan Bin Abdulaziz Humanitarian City, PO Box 64399, Riyadh 11536, Kingdom of Saudi Arabia
Saudi Med J 31:1161-5. 2010To explore the presence and the degree of mood problems in mothers with disabled children.
- Coping of parents with physically and/or intellectually disabled childrenA Taanila
Academy of Finland, Department of Public Health Science and General Practice, University of Oulu
Child Care Health Dev 28:73-86. 2002The aim was to clarify how families with physically and/or intellectually disabled children cope, what kind of coping strategies they use and how the families with good and poor coping capacities differ.
- Disabled children in special education programs in Taiwan: use of mental health services and unmet needsHsin Yi Liang
Department of Child Psychiatry Chang Gung Children s Hospital, Kweishan, Taoyuan, Taiwan
Psychol Rep 100:915-23. 2007..In the current study, the behavior and emotional problems of 1,042 disabled children in special education programs were evaluated using the Chinese version of the Child Behavior Checklist (CBCL-..
- Rare diseases in disabled children: an epidemiological surveyP Guillem
Register for Disabled Children and the Isère county Perinatal Survey, Grenoble, France
Arch Dis Child 93:115-8. 2008..To estimate the contribution of rare diseases (RD) to severe impairment in 7-year-old children...
- Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core ScalesJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 5:43. 2007..Comparisons were also benchmarked with healthy children data...
- Determinants for oral hygiene and periodontal status among mentally disabled children and adolescentsS Kumar
Department of Preventive and Community Dentistry, Darshan Dental College and Hospital, Udaipur, Rajasthan, India
J Indian Soc Pedod Prev Dent 27:151-7. 2009..To assess the impact of socio-demographic and clinical variables on the oral hygiene and periodontal status in a sample of mentally disabled subjects...
- Fanconi syndrome caused by sodium valproate: report of three severely disabled childrenHideto Yoshikawa
Department of Pediatrics, Niigata City General Hospital, Niigata, Japan
Eur J Paediatr Neurol 6:165-7. 2002We report three severely disabled children with epilepsy, a 4-year-old boy, 8-year-old girl and 14-year-old girl, who were treated with sodium valproate from the age of 2 months, 3 months and 7 years, respectively, and who developed ..
- Oral health status of disabled childrenSultana Gul Nahar
Department of Prosthodontics, Dhaka Dental College, University Dental College
Bangladesh Med Res Counc Bull 36:61-3. 2010..The average number of decayed tooth found 5.6 in deciduous and 6.5 in mixed dentition in disabled children, and the numbers were 3.5 and 4.0 respectively in normal children. Average number of missing tooth was 1...
- Understanding paediatric rehabilitation therapists' lack of use of outcome measuresGillian King
Bloorview Research Institute, 150 Kilgour Rd, Toronto, Ontario, Canada M4G 1R8
Disabil Rehabil 33:2662-71. 2011..Despite widespread educational and promotional efforts, paediatric rehabilitation therapists still do not systematically or routinely use outcome measures...
- Screening for disability in a community: the 'ten questions' screen for children, in Bondo, KenyaEmily Muga
Partnerships Department, Tropical Institute of Community Health and Development in Africa P O Box 2224 Kisumu, Kenya
Afr Health Sci 3:33-9. 2003..Although the need for early identification and interventions of disabilities is evident, the current state of routine screening practice in Kenya needs intensive training of screeners before more rigorous techniques are introduced...
- Perception of human and nonhuman facial age by developmentally disabled childrenThomas F Gross
Department of Psychology, University of Redlands, California 92373 0999, USA
J Autism Dev Disord 32:169-79. 2002..These data are discussed with respect to differences in mechanisms and processes that may underlie facial information processing in autistic and nonautistic children...
- Dental treatment under general anesthesia in healthy and medically compromised developmentally disabled children: a comparative studyJuan Pablo Loyola-Rodriguez
San Luis Potosi University, San Luis Potosi, SLP, Mexico
J Clin Pediatr Dent 34:177-82. 2009To compare the type, number of procedures and working time of dental treatment provided under dental general anesthesia (DGA) in healthy and medically compromised/developmentally disabled children (MCDD children).
- The Health Status Questionnaire: achieving concordance with published disability criteriaH P Jones
Department of Child Health, University of Wales College of Medicine, Cardiff, UK
Arch Dis Child 86:15-20. 2002..To compare the Health Status Questionnaire with established methods of assessing disability in preterm and very low birthweight infants...
- Population-based survey of childhood disability in eastern Jeddah using the ten questions toolW A Milaat
Community Medicine Department, Medical College, King Abdulaziz University Jeddah, Saudi Arabia
Disabil Rehabil 23:199-203. 2001..To identify the prevalence of handicapping disabilities among children up to 15 years of age and their epidemiological pattern in the eastern part of Jeddah...
- Comprehensive dental treatment under general anesthesia in healthy and disabled childrenPei Ying Lee
Department of Pediatric Dentistry, Chang Gung Memorial Hospital at Taipei, Chang Gung University College of Medicine, Taoyuan, Taiwan
Chang Gung Med J 32:636-42. 2009Differences in dental treatment under general anesthesia (GA) in healthy and disabled children are rarely reported...
- Professionals' views of children's everyday life situations and the relation to participationMargareta Adolfsson
School of Education and Communication, Jonkoping University, Jonkoping, Sweden
Disabil Rehabil 34:581-92. 2012..This study was part of a larger work to develop a structured tool with code sets to identify child participation and support children with disabilities to describe what matters most for them in intervention planning...
- Field trial of ICF version for children and youth (ICF-CY) in Sweden: logical coherence, developmental issues and clinical useNina Ibragimova
Department for Education, Culture and Communication, Malardalen University, Vasteras, Sweden
Dev Neurorehabil 12:3-11. 2009..For ICF-CY to be used in clinical practice several issues have to be resolved concerning the logical coherence in the model, developmental and functional issues as well as clinical feasibility...
- Injuries among disabled children: a study from GreeceE Petridou
Department of Hygiene and Epidemiology, Athens University Medical School, Athens, Greece
Inj Prev 9:226-30. 2003To compare the differential implications of sociodemographic and situational factors on the risk of injury among disabled and non-disabled children.
- Injuries among US children with different types of disabilitiesSara A Sinclair
Center for Injury Research and Policy, The Research Institute at Nationwide Children s Hospital, 700 Children s Dr, Columbus, OH 43205, USA
Am J Public Health 98:1510-6. 2008..We sought to determine whether risk of injury differs among children on the basis of the type of disability, and whether the characteristics of injury episodes differ by disability status...
- Poverty transitions among families supporting a child with intellectual disabilityEric Emerson
Centre for Disability Research, Lancaster University, Lancaster, UK
J Intellect Dev Disabil 35:224-34. 2010..Little is known about child disability and dynamic aspects of poverty...
- Injuries to the head among children enrolled in special educationMary Ann P Limbos
Division of General Pediatrics, Childrens Hospital Los Angeles, Los Angeles, Calif, USA
Arch Pediatr Adolesc Med 158:1057-61. 2004..Injuries to the head comprise 20% to 39% of all school-related injuries. Head injuries among special education students have not been adequately described...
- An epidemiological study of childhood disability in Jeddah, Saudi ArabiaSherine Shawky
Department of Community Medicine and Primary Heath Care, College of Medicine and Allied Health Sciences, King Abdulaziz University, Jeddah, Saudi Arabia
Paediatr Perinat Epidemiol 16:61-6. 2002..Similar maternal risk factors, in addition to unemployment, were more observed among mothers of mentally disabled children. A huge effort is required to discourage the potential risk factors in our community that influence child ..
- Participation in childhoodR Forsyth
Child Care Health Dev 28:277-9. 2002
- Parents' reports of barriers to care for children with special health care needs: development and validation of the barriers to care questionnaireMichael Seid
RAND Health, Santa Monica, CA 90407, USA
Ambul Pediatr 4:323-31. 2004..To describe the development and validation of the Barriers to Care Questionnaire (BCQ)...
- A comparison of school injuries between children with and without disabilitiesMarizen Ramirez
University of Iowa Injury Prevention Research Center, Department of Occupational and Environmental Health, College of Public Health, University of Iowa, Iowa City, Iowa 52242 5000, USA
Acad Pediatr 10:317-22. 2010..The aim of this study was to compare rates, nature, and mechanisms of school injuries in children with and without disabilities...
- Current advances in bone health of disabled childrenMargaret Zacharin
Department of Endocrinology and Diabetes, Royal Children s Hospital, Parkville 3052, Victoria, Australia
Curr Opin Pediatr 16:545-51. 2004....
- The journey to accepting support: how parents of profoundly disabled children experience support in their livesJane Brett
Rectory Paddock School, Orpington, Kent
Paediatr Nurs 16:14-8. 2004..Understanding the experience of support from the parent's perspective may lead to a consideration of flexible systems that challenge practice to ensure that supporters listen, learn, develop and deliver support in ways that are helpful...
- Depression: its trajectory and correlates in mothers rearing children with intellectual disabilityL M Glidden
St Mary s College of Maryland, St Mary s City, Maryland 20686, USA
J Intellect Disabil Res 47:250-63. 2003....
- Parental appraisal of the family impact of childhood developmental disability: times of sadness and times of joyBarry Trute
University of Calgary, Canada
J Intellect Dev Disabil 32:1-9. 2007....
- Difficulties experienced by families with disabled childrenEsine Sen
Pediatric Clinic, Mersin University School of Medicine Research and Administration Hospital, Mersin, Turkey
J Spec Pediatr Nurs 12:238-52. 2007This study was designed to determine the difficulties experienced by families with disabled children.
- Health services use and health care expenditures for children with disabilitiesPaul W Newacheck
Maternal and Child Health Policy Research Center, Institute for Health Policy Studies, and Department of Pediatrics, University of California, San Francisco, San Francisco, California, USA
Pediatrics 114:79-85. 2004..To examine health care utilization and expenditure patterns for children with disabilities...
- Key worker services for disabled children: the views of staffVeronica Greco
Social Policy Research Unit, University of York, York, UK
Health Soc Care Community 14:445-52. 2006Provision of 'key workers' for disabled children and their families, working across health, education, and social services, has been recommended in the Children's National Service Framework...
- Predicting impact of childhood disability on families: results from the 1995 National Health Interview Survey Disability SupplementSusan Neely-Barnes
School of Social Work, Box 54900, University of Washington, 4101 15th Ave NE, Seattle, WA 98105, USA
Ment Retard 42:284-93. 2004..Predictors of family impact differed for each racial or ethnic group. Results of this study add to the body of literature suggesting that the meaning of disability and its impact on families is culturally relative...
- Multi-agency working in services for disabled children: what impact does it have on professionals?David Abbott
Norah Fry Research Centre, University of Bristol, UK
Health Soc Care Community 13:155-63. 2005..This paper focuses on multi-agency working for disabled children with complex health-care needs, a group of children who, perhaps even more than most, require the many ..
- Information that informs rather than alienates families with disabled children: developing a model of good practiceWendy Mitchell
Social Policy Research Unit, University of York, York, UK
Health Soc Care Community 10:74-81. 2002The importance to families with disabled children of relevant and accessible information about services has been illustrated in numerous studies and was re-emphasised by the Department of Health's 'quality protects' initiative...
- Hypouricemia in severely disabled children: influence of valproic acid and bed-ridden stateHideto Yoshikawa
Department of Pediatrics, Niigata City General Hospital, 2 6 1 Shichikuyama, Niigata 950 8739, Japan
Brain Dev 25:186-90. 2003..Serum uric acid levels was significantly decreased in non-ambulatory, severely disabled children treated with VPA...
- The benefits of mutual support groups for parents of children with disabilitiesM Solomon
Haringey Healthcare NHS Trust, London, England
Am J Community Psychol 29:113-32. 2001..A central theme of identity change emerged as superordinate to these three categories...
- Association of sociodemographic characteristics of children with intellectual disability in Western AustraliaHelen Leonard
Centre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia, P O Box 855, West Perth, WA 6872, Australia Disability Services Commission, Western Australia, Australia
Soc Sci Med 60:1499-513. 2005..Furthermore, many of the sociodemographic correlates identified in this study, particularly in the mild/moderate category of ID, are potentially modifiable, opening up opportunities for primary prevention...
- Identifying children with special health care needs: development and evaluation of a short screening instrumentChristina D Bethell
The Foundation for Accountability, 1200 NW Naito Parkway, Suite 470, Portland, OR 97209, USA
Ambul Pediatr 2:38-48. 2002..Doing so requires a definition of CSHCN and a precise methodology for operationalizing that definition...
- Quality of life among parents of children with heart diseaseMostafa A Arafa
Epidemiology Department, High Institute of Public Health, Alexandria University, Alexandria, Egypt
Health Qual Life Outcomes 6:91. 2008..Quality of life of parents of chronically ill children has become increasingly important as the mortality rates associated with such illnesses have decreased and survival rates have increased...
- The relationship between caregiver's strain and social support among mothers with intellectually disabled childrenShu Mei Tsai
Department of Nursing, China Medical University Hospital, Taichung, Taiwan
J Clin Nurs 18:539-48. 2009To explore caregiver's strain, the relationship between social support and caregiver's strain and the predictors of caregiver's strain among mothers with school-aged intellectually disabled children in Taiwan.
- Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspectiveCorinna Petersen
Institute of Medical Psychology, University Clinic Hamburg Eppendorf, Germany
Qual Life Res 14:1065-77. 2005..Psychometric analyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication', 'Physical', 'Emotion', 'Independence', 'Social Inclusion', 'Social Exclusion') with acceptable internal consistency...
- State infant/toddler program policies for eligibility and services provision for young children with autismAubyn C Stahmer
Child and Adolescent Services Research Center, Children s Hospital, San Diego, CA 92123, USA
Adm Policy Ment Health 34:29-37. 2007..Results indicate few consistencies among states in policies and practices regarding the identification and care of infants and toddlers with autism. The implications of state variation for policy makers are discussed...
- [The testing and validation of the German version of the impact on family scale in families with children with disabilities]U Ravens-Sieberer
Abteilung für Medizinische Psychologie, Universitatsklinikum Hamburg Eppendorf, Germany
Psychother Psychosom Med Psychol 51:384-93. 2001..The results suggest the applicability of the instrument to assess family impact of chronic disease and disability in children and adolescents...
- Access to health care for children with special health care needsP W Newacheck
Institute for Health Policy Studies, San Francisco, CA 94118, USA
Pediatrics 105:760-6. 2000..To assess the role health insurance plays in influencing access to care and use of services by children with special health care needs...
- Access to the medical home: results of the National Survey of Children with Special Health Care NeedsBonnie Strickland
Maternal and Child Health Bureau Health, Resources and Services Administration, Washington, DC, USA
Pediatrics 113:1485-92. 2004....
- What does the epidemic of childhood obesity mean for children with special health care needs?Paula M Minihan
School of Medicine, Tufts University, MA, USA
J Law Med Ethics 35:61-77. 2007..These efforts are necessary to protect the health of the nation's 9.4 million children with special health care needs now and long-term...
- Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a Double ABCX ModelT Saloviita
Department of Special Education, University of Jyvaskyla, Jyvaskyla, Finland
J Intellect Disabil Res 47:300-12. 2003....
- Parenting stress in families of children with disabilitiesT B Smith
Department of Counseling Psychology and Special Education, Brigham Young University, Provo, Utah
Am J Orthopsychiatry 71:257-61. 2001..Implications for intervention and for future research are discussed...
- Measuring participation of children with disabilities: issues and challengesWendy Coster
Boston University, Sargent College of Health and Rehabilitation Sciences, Boston, MA, USA
Disabil Rehabil 30:639-48. 2008..The aim of this paper is to examine conceptual issues that challenge development of valid and useful measures of children's participation...
- Family adjustment to childhood developmental disability: a measure of parent appraisal of family impactsBarry Trute
School of Social Work, McGill University, Montreal, Quebec, Canada
J Pediatr Psychol 27:271-80. 2002..To develop the Family Impact of Childhood Disability Scale (FICD) to assess subjective interpretation or "primary appraisal" of parents regarding the impact of a child with developmental disabilities on the family...
- The association of child condition severity with family functioning and relationship with health care providers among children and youth with special health care needs in AlabamaBeverly A Mulvihill
Department of Maternal and Child Health, UAB School of Public Health, Birmingham, Alabama 35294 0022, USA
Matern Child Health J 9:S87-97. 2005..The purpose of the present study is to assess how the severity of a child's condition affects family functioning and the relationship with health care providers among children with special health care needs in Alabama...
- Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PACG A King
Thames Valley Children s Centre, London, ON, Canada
Child Care Health Dev 33:28-39. 2007..girls, and children in various age groups. The information substantiates the construct validity of the measures. The clinical and research utility of the measures are discussed...
- The PedsQL: reliability and validity of the short-form generic core scales and Asthma ModuleKitty S Chan
RAND Corporation, Health Program, Santa Monica, California, USA
Med Care 43:256-65. 2005..0 SF15, a shortened version of the 23-item PedsQL 4.0 Generic Core Scales, which is a pediatric health-related quality of life (HRQoL) instrument, and the PedsQL 3.0 SF22 Asthma Module, a short-form of the PedsQL 3.0 Asthma Module...
- Identification and description of environmental factors that influence participation of children with cerebral palsySvetozar I Mihaylov
Centre for Health Services Research, School of Population and Health Sciences, University of Newcastle upon Tyne, Royal Victoria Infirmary, Newcastle upon Tyne, UK
Dev Med Child Neurol 46:299-304. 2004..Defining and measuring potential environmental determinants of participation for children with CP needs further development; and here we propose how this might be done...
- Cultural influences on health care use: differences in perceived unmet needs and expectations of providers by Latino and Euro-American parents of children with special health care needsMary E Gannotti
Global Health Division, Department of Epidemiology and Public Health, Yale University School of Medicine, New Haven, Connecticut, USA
J Dev Behav Pediatr 25:156-65. 2004..Latino cultural values play a role in these differences, creating barriers for effectively communicating with providers and for meeting children's needs...
- Psychosocial burden of beta-thalassaemia major in Antalya, south TurkeyDuran Canatan
Department of Paediatric Haematology, Antalya State Hospital, P O Box 624, 07001 Antalya, Turkey
Soc Sci Med 56:815-9. 2003..The results reflect the need for a national policy for public education and screening of thalassaemia in Turkey in order to offer prenatal diagnosis for all families at risk of homozygous thalassaemia...
- Prevalence and characteristics of children with special health care needsPeter C van Dyck
Maternal and Child Health Bureau, Health Resources and Services Administration NIH, 5600 Fishers Lane, Rockville, MD 20857, USA
Arch Pediatr Adolesc Med 158:884-90. 2004..However, until recently, no national data on their prevalence and health care service needs that use a commonly accepted definition have existed...
- How children with special health care needs affect the employment decisions of low-income parentsPamela Loprest
The Urban Institute, Washington, District of Columbia 20036, USA
Matern Child Health J 8:171-82. 2004..To better understand the impact of having a child with special health care needs (CSHCN), on low-income parents' employment decisions...
- CSHCN in Texas: meeting the need for specialist careM Cherilyn Young
Research and Public Health Assessment Office, Division of Family and Community Health Services, Texas Department of State Health Services, 1100 West 49th Street, Austin, Texas 78756, USA
Matern Child Health J 9:S49-57. 2005..The objective of this study was to describe the factors associated with the need for specialist care and problems associated with obtaining referrals in Texas...
- Disabled children in the UK: a quality assessment of quantitative data sourcesJ Read
School of Health and Social Studies, University of Warwick, Coventry CV4 7AL, UK
Child Care Health Dev 36:130-41. 2010..quantitative data on the prevalence of childhood disability and the characteristics and circumstances of disabled children and their households have been recognized for some time...
- Comparing states on outcomes for children with special health care needsStephen J Blumberg
National Center for Health Statistics, Centers for Disease Control and Prevention, 3311 Toledo Road, Room 2112, Hyattsville, Maryland 20782, USA
Matern Child Health J 9:S121-8. 2005..To develop two alternative methods for comparing and ranking states on the health, health care, and well-being of children with special health care needs (CSHCN)...
- Health-related quality of life in parents of school-age children with Asperger Syndrome or High-Functioning AutismHiie Allik
Karolinska Institutet, Dept of Woman and Child Health, Astrid Lindgren Children s Hospital, SE 171 76 Stockholm, Sweden
Health Qual Life Outcomes 4:1. 2006..The present study aimed to evaluate aspects of HRQL in parents of school-age children with AS/HFA and the correlates with child behaviour characteristics...
- Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families?P Sloper
Social Policy Research Unit, University of York, York, UK
Child Care Health Dev 32:147-57. 2006Research has shown that families of disabled children who have a key worker benefit from this service and recent policy initiatives emphasize the importance of such services...
- Employment, child care, and mental health of mothers caring for children assisted by technologyU Thyen
Klinik für Pädiatrie der Medizinischen Universität zu Lübeck, Kahlhorststr 31 35, 23538 Lubeck, Germany
Pediatrics 103:1235-42. 1999....
- Neural Coding and Perception of Learned VocalizationsSARAH M WOOLLEY; Fiscal Year: 2013..In APD patients and some learning-disabled children, abnormalities in the neural processing of spectrotemporally complex sounds such as those in vocalizations ..
- Risk Factors for Osteoporosis in Children &Adolescents with MyelomeningoceleTishya A L Wren; Fiscal Year: 2013..Since adolescence is a critical period for bone acquisition in non-disabled children, it is hypothesized that bone mass may be maximized in children with MM by maintaining upright mobility (..
- Internet Based System for Managing Obesity in Children with DisabilitiesJAMES HOWARD RIMMER; Fiscal Year: 2013..higher rates of obesity, physical inactivity, poor nutrition and secondary health conditions compared to non-disabled children and children with other types of disabilities. Their ability to participate in health-promoting behaviors (i...
- CHILD MOBILITY: ROLE OF STRENGTH, BODY FAT & ENERGY COSTCRAIG MC DONALD; Fiscal Year: 2000..Obesity, a common problem among disabled children, is a second important factor negatively influencing mobility status in disabled children...
- Mechanical Intervention in Children with Cerebral PalsyTishya Wren; Fiscal Year: 2005..b>Disabled children, such as children with cerebral palsy, are particularly vulnerable to deficits in bone mass accretion due to ..
- "Crippled": A History of Childhood Disability in America, 1860-1980LISA J PRUITT; Fiscal Year: 2012..of Childhood Disability in America, 1860-1980, will be the first book-length historical study of physically disabled children in the United States to expand beyond the story of polio...
- MEASURING THE QUALITY OF CARE FOR HIGH RISK INFANTSJeannette Rogowski; Fiscal Year: 2001..Supplemental Security Income (SSI) Program, which provides income support and health insurance coverage for disabled children. Third, very low birth weight infants are disproportionately born in black, low-income families, with ..
- ASSESSING COORDINATING CARE FOR CHILDREN & YOUTH W/SEDLenore Behar; Fiscal Year: 1993..including case management services as well as other home/community based services, to serious emotionally disabled children who are in out of home placements or at risk of being placed...
- INTERVENTION FOR SIBLINGS, EXPERIENCE ENHANCEMENT (ISEE)Phoebe Williams; Fiscal Year: 2000Research into the amelioration of mental health problems of siblings of chronically ill/disabled children is essential to control future morbidity...
- LONGITUDINAL STABILITY OF NEURODEVELOPMENTAL FINDINGSBetsy Busch; Fiscal Year: 1992..provide us with valuable information about the patterns of developmental growth in normal and learning-disabled children. In addition, we hope to demonstrate the importance of the neurologic-developmental contribution to a child'..
- LANGUAGE AND DEVELOPMENTAL DISABILITIES IN CHILDRENCarl Feinstein; Fiscal Year: 1993..Department are committed to excellence in research, training and clinical service for developmentally disabled children and adolescents. The major objective of this award remains the development of Dr...
- DEVELOPMENTALLY DISABLED ADULTS: BLACK & WHITE FAMILIESRachel Pruchno; Fiscal Year: 2000..examination of the well-being of African-American and White parents and their adult developmentally disabled children. Guided by theories of family stress, three models are proposed: one focusing on parent s psychological well-..
- Development of a Miniaturized EMG Telemetry SystemJohn Standeven; Fiscal Year: 2001..The small size and low weight will benefit disabled children whose balance is already precarious; this will aid gait labs by increasing the reliability of data collected ..
- Auditory lateralization in learning-disabled childrenCatherine Warrier; Fiscal Year: 2005..abstract_text> ..
- Family Influences on Children's Health and HealthcareWhitney Witt; Fiscal Year: 2000..5 million disabled children in the U.S., respectively. Biological mothers of the children were the respondents...
- AUDITORY DISCRIMINATION IN HANDICAPPED LISTENERSLOIS ELLIOTT; Fiscal Year: 1990..are to estimate the prevalence of auditory discrimination problems in large samples of normal and learning-disabled children and to track a sample of 200 normal and learning-disabled children over at least a four year period to gain ..
- Virtual Reality Analgesia for Rehabilitation in ChildrenSam Sharar; Fiscal Year: 2003..investigate the analgesic mechanisms and optimize the clinical use of VR and combined VR/hypnosis in disabled children with pain and/or who require rehabilitation activities...
- Fraction Skills in Math Disabled ChildrenSteven Hecht; Fiscal Year: 2005..Also, the research will provide valuable information with which to promote readiness among children at risk for mathematical failure, and lay the foundation for ongoing programmatic investigations of fraction skills. ..
- CHILD DISABILITY AND THE FAMILYNaomi Breslau; Fiscal Year: 1992..4) identifying a new population of physically disabled children and their families for an investigation of specific mechanisms in the genesis of psychiatric disorder in ..
- PREVENTION OF SUBSTANCE ABUSE IN HIGH RISK ADHD CHILDRENROSS GREENE; Fiscal Year: 2004..Research Plan: The candidate proposes to refine and test an intervention for 8-10 year old socially disabled children with ADHD for the purpose of preventing later substance use and abuse...
- DEVELOPMENT OF OBJECTIVE HANDWRITING MEASUREMENT TOOLSJeffrey Siegel; Fiscal Year: 1990..The toolbox will be tested with normal children and learning disabled children to correlate the objective results of the computer with previous subjective results obtained through visual ..
- DEVELOPMENT OF OBJECTIVE HANDWRITING MEASUREMENT TOOLSJeffrey Siegel; Fiscal Year: 1993..The toolbox will be tested with normal children and learning disabled children to correlate the objective results of the computer with previous subjective results obtained through visual ..
- Mechanisms of Instructed Learning in the Auditory SystemERIC KNUDSEN; Fiscal Year: 2006..This, in turn, may lead to improved methods for teaching both normal and learning disabled children, as well as to improved therapeutic strategies for maximizing the restoration of function to patients ..
- PROMOTING COMMUNICATION IN THE DEVELOPMENTALLY DISABLEDHoward Goldstein; Fiscal Year: 1990..skills contributes to the academic as well as the social skill deficits demonstrated by developmentally disabled children. This communication skill deficiency interferes with the acceptance and the successful integration of ..
- COMPUTER RESEARCH AND INSTRUCTION IN HANDWRITINGMARION MEEKS; Fiscal Year: 1990..and (2) learning disabled children at the Learning Disabilities Center at Northwestern University.
- AUDITORY TRAINING IN LEARNING DISABLED CHILDRENAnn Bradlow; Fiscal Year: 2000..In this manner, we hope to shed light of the underlying sensory-perceptual deficit, as well as make advances towards the development of training procedures of these children. ..
- Cognitive tools assessing normal and disabled childrenTIMOTHY ODEGARD; Fiscal Year: 2004A programmatic line of research investigating the cognitive functioning of normal and learning disabled children will be conducted using memory conjunction errors and illusory conjunctions...
- A Biosocial Study of Childhood DisabilityDAPHNE BUGENTAL; Fiscal Year: 2006DESCRIPTION (investigator's abstract): It has long been observed that disabled children are at risk for maltreatment...
- GENERIC CONTROLLER FOR THE DEVELOPMENTALLY DISABLEDANDREW GIRSON; Fiscal Year: 1991DESCRIPTION: (Adapted from investigator's abstract) Many developmentally disabled children are dependent on assistive devices to help them control their external environments (appliances, tools, etc.)...
- CHILDREN'S COGNITIVE BATTERY--NEW ASSESSMENT APPROACHRUTH BARANES; Fiscal Year: 1993The goal of this research is to publish an assessment battery for normal and disabled children from 2 1/2 to 7 years of age and to make it available to clinicians, educators, and researchers...
- FMRI STUDIES OF IMPULSE CONTROL IN CHILDHOOD DISORDERSBradley Peterson; Fiscal Year: 2002..of motor, attention, and inhibitory neural systems involved in impulse control in normal and developmentally disabled children. Our specific aims are: 1) To use fMRI to study the neural basis of impulse control in 80 normal children ..
- Center for Childhood Neurotoxicology and AssessmentGeorge Lambert; Fiscal Year: 2005..The EAIP will then determine the need for interventions to reduce neurotoxicant exposure among learning disabled children and assess the impact of such interventions...
- COMPUTERIZED TESTING/TRAINING OF PHONOLOGICAL AWARENESSKELLI FOSTER; Fiscal Year: 1992..of the program with both kindergarten children at risk for later reading failure and second grade reading disabled children. This proposal is based on a solid research consensus concerning the importance of phonological awareness in ..
- PARENT-DIRECTED TREATMENT OF LEARNING DISABILITIESMACK HICKS; Fiscal Year: 1990..treatment services and to assess the most effective mix of services for different types of learning disabled children. Treatment approaches have not always been specified in objective and reliable units that can be replicated...
- Computer Adaptive Testing of Functional StatusStephen Haley; Fiscal Year: 2008..abstract_text> ..
- Computer Adaptive Testing of Pediatric Self-care and Social FunctionStephen Haley; Fiscal Year: 2006..Many rehabilitation settings may also find this measure helpful in meeting accreditation and institutional requirements for standardizing outcome monitoring in groups of children. [unreadable] [unreadable] [unreadable]..
- Computer Adaptive Testing of Post-Acute Care FunctioningStephen Haley; Fiscal Year: 2004..abstract_text> ..
- PARTICIPATION OF CHILDREN WITH PHYSICAL DISABILITIESMary Law; Fiscal Year: 2002....
- Children with Chronic Health Conditions: Family ImpactKAREN KUHLTAHU; Fiscal Year: 2002....
- Family-centered functional therapy for cerebral palsyMary Law; Fiscal Year: 2007..We hypothesize that the FCFT approach will significantly improve activity and participation outcomes while leading to no significant decreases in body function and structure outcomes. ..
- Quality of Life in Pediatric Inflammatory Bowel DiseaseJames Perrin; Fiscal Year: 2004..It will help to clarify the life domains that are affected by IBD and will inform interventions to improve QoL for children with IBD. ..
- Disparities in Child & Family Health Care ExpendituresPaul Newacheck; Fiscal Year: 2003..abstract_text> ..
- Child, Family, and Community Influences on Oral HealthPaul Newacheck; Fiscal Year: 2006..Multilevel and survey sampling modeling methods will be used in the empirical analysis. ..
- ELSI Scale-Up: Large Sample Gene Discovery & DisclosureDonald Bailey; Fiscal Year: 2006..abstract_text> ..
- CHILD DISABILITY AND THE FAMILYDennis Hogan; Fiscal Year: 2003..abstract_text> ..
- Identifying Newborns with Fragile X: Planning GrantDonald Bailey; Fiscal Year: 2005..abstract_text> ..
- Effects of Child Health on Family ResourcesNancy Reichman; Fiscal Year: 2007..The results will yield important information about the processes underlying the health component of the intergenerational transmission of poverty. ..
- Antidepressant Use and SuicideSusan Busch; Fiscal Year: 2009..The significance of this project lies in its potential to help clinicians and policymakers assess and manage competing risk and benefit claims. ..
- EEFFECTS OF AEROBIC EXERCISE IN PERSONS WITH STROKEJames Rimmer; Fiscal Year: 2003..Unlike traditional analytic methods, the GEE approach can be used with data characterized by almost any type of statistical distribution (e.g., normal/Gaussian, binomial, Poison). ..
- Mathematical Development in Learning Diasbled ChildrenDAVID GEARY; Fiscal Year: 2003..g., working memory) that underlie MD children's developmental delays and deficits in these competencies. ..
- Children of HIV-Infected AdultsMark Schuster; Fiscal Year: 2003..g., decision-making processes related to disclosure of parental HIV to children and guardianship planning). We will compare the parent and child perspectives on the impact of HIV on families and, in particular, on children. ..
- Georgia Childhood Agriculture Safety and Health ResearchZolinda Stoneman; Fiscal Year: 2009..abstract_text> ..