Summary: Persons who provide care to those who need supervision or assistance in illness or disability. They may provide the care in the home, in a hospital, or in an institution. Although caregivers include trained medical, nursing, and other health personnel, the concept also refers to parents, spouses, or other family members, friends, members of the clergy, teachers, social workers, fellow patients, etc.

Top Publications

  1. ncbi Alzheimer's disease in real life--the dementia carer's survey
    Jean Georges
    Alzheimer Europe, Luxembourg
    Int J Geriatr Psychiatry 23:546-51. 2008
  2. ncbi Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review
    Birgitte Schoenmakers
    Academic Centre of General Practice, Catholic University Leuven, Leuven, Belgium
    Maturitas 66:191-200. 2010
  3. pmc Combined life satisfaction of persons with stroke and their caregivers: associations with caregiver burden and the impact of stroke
    Aileen L Bergström
    Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
    Health Qual Life Outcomes 9:1. 2011
  4. pmc Illness trajectories and palliative care
    Scott A Murray
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 330:1007-11. 2005
  5. ncbi Caregiving as a risk factor for mortality: the Caregiver Health Effects Study
    R Schulz
    Department of Psychiatry and University Center for Social and Urban Research, University of Pittsburgh, PA 15260, USA
    JAMA 282:2215-9. 1999
  6. ncbi Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis
    Francesco Pagnini
    Department of Psychology, Catholic University of Milan, Milan, Italy
    Psychol Health Med 15:685-93. 2010
  7. ncbi Family caregiving and congestive heart failure. Review and analysis
    Gerard J Molloy
    School of Psychology, University of St Andrews, St Andrews KY16 9JU, Scotland
    Eur J Heart Fail 7:592-603. 2005
  8. ncbi Family caregiving of persons with dementia: prevalence, health effects, and support strategies
    Richard Schulz
    University Center for Social and Urban Research, University of Pittsburgh, Pittsburgh, PA 15260, USA
    Am J Geriatr Psychiatry 12:240-9. 2004
  9. ncbi Nonpharmacological therapies in Alzheimer's disease: a systematic review of efficacy
    Javier Olazarán
    Maria Wolff Foundation, Madrid, Spain
    Dement Geriatr Cogn Disord 30:161-78. 2010
  10. pmc Accelerated telomere erosion is associated with a declining immune function of caregivers of Alzheimer's disease patients
    Amanda K Damjanovic
    Laboratory of Immunology, National Institute on Aging, National Institutes of Health, Baltimore, MD 21224, USA
    J Immunol 179:4249-54. 2007

Detail Information

Publications414 found, 100 shown here

  1. ncbi Alzheimer's disease in real life--the dementia carer's survey
    Jean Georges
    Alzheimer Europe, Luxembourg
    Int J Geriatr Psychiatry 23:546-51. 2008
    ..The dementia carer's survey aimed to identify carers' needs, differences between countries with regard to dementia care and the level of satisfaction of carers with utilised services...
  2. ncbi Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review
    Birgitte Schoenmakers
    Academic Centre of General Practice, Catholic University Leuven, Leuven, Belgium
    Maturitas 66:191-200. 2010
    Dementia caregivers suffer a considerable care burden. More than in comparable groups of caregivers or peers, they are confronted with feelings of depression and decreased physical health...
  3. pmc Combined life satisfaction of persons with stroke and their caregivers: associations with caregiver burden and the impact of stroke
    Aileen L Bergström
    Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
    Health Qual Life Outcomes 9:1. 2011
    ..The aim of this study was to describe the dyads combined life satisfaction and to understand this in relationship to the perceived impact of stroke in everyday life and caregiver burden...
  4. pmc Illness trajectories and palliative care
    Scott A Murray
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 330:1007-11. 2005
  5. ncbi Caregiving as a risk factor for mortality: the Caregiver Health Effects Study
    R Schulz
    Department of Psychiatry and University Center for Social and Urban Research, University of Pittsburgh, PA 15260, USA
    JAMA 282:2215-9. 1999
    ..of loss, prolonged distress, the physical demands of caregiving, and biological vulnerabilities of older caregivers may compromise their physiological functioning and increase their risk for physical health problems, leading to ..
  6. ncbi Burden, depression, and anxiety in caregivers of people with amyotrophic lateral sclerosis
    Francesco Pagnini
    Department of Psychology, Catholic University of Milan, Milan, Italy
    Psychol Health Med 15:685-93. 2010
    ..The burden for ALS caregivers is quite high. There are still few studies that have investigated the emotional impact of ALS care...
  7. ncbi Family caregiving and congestive heart failure. Review and analysis
    Gerard J Molloy
    School of Psychology, University of St Andrews, St Andrews KY16 9JU, Scotland
    Eur J Heart Fail 7:592-603. 2005
    ..In this paper, we provide a review and analysis of studies that have explicitly investigated these issues in the informal carers of CHF patients...
  8. ncbi Family caregiving of persons with dementia: prevalence, health effects, and support strategies
    Richard Schulz
    University Center for Social and Urban Research, University of Pittsburgh, Pittsburgh, PA 15260, USA
    Am J Geriatr Psychiatry 12:240-9. 2004
    ..literature and provide recommendations regarding practice guidelines for health professionals working with caregivers. Family caregiving of older persons with disability has become commonplace in the United States because of ..
  9. ncbi Nonpharmacological therapies in Alzheimer's disease: a systematic review of efficacy
    Javier Olazarán
    Maria Wolff Foundation, Madrid, Spain
    Dement Geriatr Cogn Disord 30:161-78. 2010
    ..The objective of this study was to evaluate the best evidence on the effects of NPTs in AD and related disorders (ADRD) by performing a systematic review and meta-analysis of the entire field...
  10. pmc Accelerated telomere erosion is associated with a declining immune function of caregivers of Alzheimer's disease patients
    Amanda K Damjanovic
    Laboratory of Immunology, National Institute on Aging, National Institutes of Health, Baltimore, MD 21224, USA
    J Immunol 179:4249-54. 2007
    b>Caregivers of Alzheimer's disease patients endure chronic stress associated with a decline of immune function...
  11. ncbi Economic valuation of informal care. An overview of methods and applications
    Bernard van den Berg
    Department of Health Policy and Management, Erasmus Medical Center, 3000 DR Rotterdam, The Netherlands
    Eur J Health Econ 5:36-45. 2004
    ..This contribution presents a critical evaluation of the available methods to incorporate informal care in economic evaluations...
  12. pmc Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers' mental health
    Alexi A Wright
    Department of Medical Oncology, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Clin Oncol 28:4457-64. 2010
    To determine whether the place of death for patients with cancer is associated with patients' quality of life (QoL) at the end of life (EOL) and psychiatric disorders in bereaved caregivers.
  13. ncbi Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis
    Martin Pinquart
    Department of Developmental Psychology, Friedrich Schiller University, Jena, Germany
    Psychol Aging 18:250-67. 2003
    ..has been described as a stressful experience that may erode psychological well-being and physical health of caregivers. In this meta-analysis, the authors integrated findings from 84 articles on differences between caregivers and ..
  14. ncbi Effectiveness of an educational intervention on complementary feeding practices and growth in rural China: a cluster randomised controlled trial
    Ling Shi
    College of Nursing and Health Sciences, University of Massachusetts Boston, Boston, MA 02125, USA
    Public Health Nutr 13:556-65. 2010
    ..We developed an educational intervention, delivered by local health-care providers, aimed at improving complementary feeding practices and child nutrition...
  15. ncbi Effectiveness of collaborative care for older adults with Alzheimer disease in primary care: a randomized controlled trial
    Christopher M Callahan
    Indiana University Center for Aging Research, Regenstrief Institute Inc, Indiana University School of Medicine, Indianapolis 46202, USA
    JAMA 295:2148-57. 2006
    ..Most older adults with dementia will be cared for by primary care physicians, but the primary care practice environment presents important challenges to providing quality care...
  16. ncbi The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations
    W B F Brouwer
    Department of Health Policy and Management, Erasmus MC, Rotterdam, The Netherlands
    Qual Life Res 15:1005-21. 2006
    ..and a first test of the CarerQol instrument, aimed at measuring care-related quality of life in informal caregivers. The instrument combines the information density of a burden instrument (encompassing seven important burden ..
  17. pmc Yogic meditation reverses NF-κB and IRF-related transcriptome dynamics in leukocytes of family dementia caregivers in a randomized controlled trial
    David S Black
    Cousins Center for Psychoneuroimmunology, Semel Institute for Neuroscience and Human Behavior, University of California, Los Angeles, CA, USA
    Psychoneuroendocrinology 38:348-55. 2013
    ..The present study examined if a yogic meditation might alter the activity of inflammatory and antiviral transcription control pathways that shape immune cell gene expression...
  18. ncbi Worksite-based internet multimedia program for family caregivers of persons with dementia
    Natasha Beauchamp
    Oregon Center for Applied Science, Eugene, 97403, USA
    Gerontologist 45:793-801. 2005
    Our goal was to evaluate the efficacy of a multimedia support program delivered over the Internet to employed family caregivers of persons with dementia.
  19. ncbi Caregiver burden among dementia patient caregivers: a review of the literature
    Lynn Etters
    Detroit Medical Center Huron Valley Sinai Hospital, Krieger Geriatric Center, Commerce, Twp Michigan, USA
    J Am Acad Nurse Pract 20:423-8. 2008
  20. ncbi Screening for dementia in primary care: a summary of the evidence for the U.S. Preventive Services Task Force
    Malaz Boustani
    Indiana University School of Medicine, Indianapolis, Indiana, USA
    Ann Intern Med 138:927-37. 2003
    ..Dementia is a large and growing problem but is often not diagnosed in its earlier stages. Screening and earlier treatment could reduce the burden of suffering of this syndrome...
  21. pmc Developing a primary care-based stroke model: the prevalence of longer-term problems experienced by patients and carers
    Jenni Murray
    Department of Healthcare for the Elderly, St Luke s Hospital, Bradford Hospitals NHS Trust, Little Horton Lane, Bradford, BD5 ONA
    Br J Gen Pract 53:803-7. 2003
    ..This paper reports a component of a larger project aimed at developing a systematic, primary care-based service for stroke aftercare...
  22. ncbi Factors influencing uptake of HIV care and treatment among children in South Africa - a qualitative study of caregivers and clinic staff
    A D Yeap
    London School of Hygiene and Tropical Medicine, UK
    AIDS Care 22:1101-7. 2010
    ..In-depth interviews were conducted in July 2008 with 21 caregivers of HIV-infected children attending these clinics, 21 clinic staff members and three lead members of staff from ..
  23. ncbi Helping caregivers of persons with dementia: which interventions work and how large are their effects?
    Martin Pinquart
    Department of Developmental Psychology and Center for Applied Developmental Science, Friedrich Schiller University, Jena, Germany
    Int Psychogeriatr 18:577-95. 2006
    In recent years, many different forms of interventions for caregivers of people with dementia have been developed. However, their results have been, in part, inconclusive.
  24. ncbi Repeated treatments with botulinum toxin type a produce sustained decreases in the limitations associated with focal upper-limb poststroke spasticity for caregivers and patients
    Elie P Elovic
    Kessler Medical Rehabilitation Research and Education Center, West Orange, NJ, USA
    Arch Phys Med Rehabil 89:799-806. 2008
    ..and evaluate the effects of repeated treatments with botulinum toxin type A (BTX-A) on functional disability, quality of life (QOL), and muscle tone of patients with upper-limb poststroke spasticity, as well as its effect on caregivers.
  25. ncbi Disclosing a diagnosis of dementia: a systematic review
    Claire Bamford
    Centre for Health Services Research, University of Newcastle upon Tyne, UK
    Int J Geriatr Psychiatry 19:151-69. 2004
    ..The issue of diagnostic disclosure in dementia has been debated extensively in professional journals, but empirical data concerning disclosure in dementia has not previously been systematically reviewed...
  26. ncbi Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda
    Winnie Bikaako-Kajura
    CDC Uganda, Global AIDS Program, Kampala, Uganda
    AIDS Behav 10:S85-93. 2006 interviews of 42 HIV-infected children taking ART and/or cotrimoxazole prophylaxis, and 42 primary caregivers, at a comprehensive HIV/AIDS clinic in Uganda, we evaluated their adherence experiences for purposes of program ..
  27. ncbi The burden of schizophrenia on caregivers: a review
    A George Awad
    Department of Psychiatry and the Institute of Medical Science, University of Toronto, Humber River Regional Hospital, Toronto, Ontario, M6M 3Z4, Canada
    Pharmacoeconomics 26:149-62. 2008
    ..Frequently, burden of care is more defined by its impacts and consequences on caregivers. In addition to the emotional, psychological, physical and economic impact, the concept of 'burden of care' ..
  28. ncbi Fever phobia revisited: have parental misconceptions about fever changed in 20 years?
    M Crocetti
    Department of Pediatrics, Johns Hopkins Bayview Medical Center, Baltimore, MD 21224, USA
    Pediatrics 107:1241-6. 2001
  29. ncbi Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers
    John F Deeken
    Department of Medicine, Georgetown University Medical Center, Washington, DC 20057, USA
    J Pain Symptom Manage 26:922-53. 2003
    Significant demands are being placed on the informal caregivers of chronically ill patients, including those suffering from cancer...
  30. pmc Impact monitoring of the national scale up of zinc treatment for childhood diarrhea in Bangladesh: repeat ecologic surveys
    Charles P Larson
    International Centre for Diarrhoeal Disease Research, Bangladesh ICDDR, B, Dhaka, Bangladesh
    PLoS Med 6:e1000175. 2009
    ..The aim of this study was to monitor the impact of the first national campaign to scale up zinc treatment of childhood diarrhea in Bangladesh...
  31. ncbi A European consensus on outcome measures for psychosocial intervention research in dementia care
    E Moniz-Cook
    Institute of Rehabilitation, University of Hull and Humber Mental Health Teaching NHS Trust, Hull, UK
    Aging Ment Health 12:14-29. 2008
    ..Areas were identified where improved outcome measures for psychosocial intervention research studies are required...
  32. ncbi Mental symptoms in Parkinson's disease are important contributors to caregiver distress
    D Aarsland
    Rogaland Psychiatric Hospital, Stavanger, Norway
    Int J Geriatr Psychiatry 14:866-74. 1999
    To determine the emotional and social distress of caring for a patient with Parkinson's disease and to explore the impact of motor and mental symptoms in subjects with Parkinson's disease on their caregivers' situation.
  33. ncbi The Zarit Burden Interview: a new short version and screening version
    M Bedard
    Department of Research, Lakehead Psychiatric Hospital, Thunder Bay, Ontario, Canada
    Gerontologist 41:652-7. 2001
  34. ncbi Meta-analysis of psychosocial interventions for caregivers of people with dementia
    Henry Brodaty
    School of Psychiatry, University of New South Wales, Sydney, Australia
    J Am Geriatr Soc 51:657-64. 2003
    To review published reports of interventions for caregivers (CGs) of persons with dementia, excluding respite care, and provide recommendations to clinicians.
  35. ncbi Employment status, social ties, and caregivers' mental health
    Carolyn C Cannuscio
    Merck Research Laboratories, Department of Epidemiology, Blue Bell, PA 19422, USA
    Soc Sci Med 58:1247-56. 2004
    ..In this cross-sectional study, employment status did not seem to confer additional mental health risk or benefit to informal caregivers, while access to extensive social ties was associated with more favorable caregiver health outcomes.
  36. ncbi Barriers to and facilitators of adherence to pediatric antiretroviral therapy in a sub-Saharan setting: insights from a qualitative study
    Bradley C Fetzer
    University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, North Carolina, USA
    AIDS Patient Care STDS 25:611-21. 2011
    ..Democratic Republic of the Congo, with 20 sets of HIV disclosed and nondisclosed children along with respective caregivers to better characterize barriers, facilitators, and adherence experiences in children taking ART...
  37. ncbi Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: a meta-analytic comparison
    M Pinquart
    Department of Developmental Psychology, University of Jena, Germany
    Aging Ment Health 8:438-49. 2004
    ..present meta-analytic study gives a systematic review of research on depression and the subjective well-being of caregivers. We integrate results from 60 studies on informal caregivers' subjective well-being (e.g...
  38. pmc Acceptability of rapid diagnostic test-based management of Malaria among caregivers of under-five children in rural Ghana
    Frank Baiden
    Malaria Group, Kintampo Health Research Centre, Kintampo, Ghana
    PLoS ONE 7:e45556. 2012
    ..This implies artemisinin-based combination treatment (ACT) should be restricted to rapid diagnostic test (RDT)-positive cases. This is a departure from what caregivers in rural communities have been used to for many years.
  39. ncbi Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers
    Barbara Gomes
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    Cochrane Database Syst Rev 6:CD007760. 2013
    ..Despite best efforts and policies, one-third or less of all deaths take place at home in many countries of the world...
  40. ncbi How effective are interventions with caregivers? An updated meta-analysis
    Geriatrics and Neuropsychiatry, Department of Psychiatry, University of Rochester Medical Center, NY 14642 8409, USA
    Gerontologist 42:356-72. 2002
    The purpose of this study was to determine the effectiveness of interventions for family caregivers of older adults.
  41. pmc Activity restriction and depression in medical patients and their caregivers: a meta-analysis
    Brent T Mausbach
    Department of Psychiatry, University of California, San Diego, USA
    Clin Psychol Rev 31:900-8. 2011
    ..and meta-analysis of the association between activity restriction and depression in medical patients and their caregivers. A total of 34 studies (N = 8053) documenting the relationship between activity restriction and depression were ..
  42. ncbi The health of caregivers for children with disabilities: caregiver perspectives
    N A Murphy
    Department of Pediatrics, University of Utah, Salt Lake City, UT 84132, USA
    Child Care Health Dev 33:180-7. 2007
    ..needs would allow for the improvement of existing services and the development of new strategies to sustain caregivers in their vital roles...
  43. pmc When the caregiver needs care: the plight of vulnerable caregivers
    Maryam Navaie-Waliser
    Center for Home Care Policy and Research, Visiting Nurse Service of New York, 5 Penn Plaza, 11th Floor, New York, NY 10001, USA
    Am J Public Health 92:409-13. 2002
    This study examined the characteristics, activities, and challenges of high-risk informal caregivers.
  44. ncbi Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families
    E L Struening
    Mailman School of Public Health, Columbia University, New York, NY, USA
    Psychiatr Serv 52:1633-8. 2001
    The extent to which 461 caregivers of persons with serious mental disorders believed that most people devalue consumers and their families was assessed, and the magnitude of the relationships between these beliefs and the diagnostic ..
  45. pmc Community case management of childhood diarrhea in a setting with declining use of oral rehydration therapy: findings from cross-sectional studies among primary household caregivers, Kenya, 2007
    Christine K Olson
    Epidemic Intelligence Service and Division of Foodborne, Waterborne, and Environmental Diseases, Centers for Disease Control and Prevention, Atlanta, Georgia 30329, USA
    Am J Trop Med Hyg 85:1134-40. 2011
    ..We conducted a cross-sectional survey of caregivers of children < 5 years of age with diarrhea in rural Asembo and urban Kibera...
  46. ncbi Caregiver-burden in parkinson's disease is closely associated with psychiatric symptoms, falls, and disability
    Anette Schrag
    Royal Free and University College Medical School, University College London NW3 2PF, London, UK
    Parkinsonism Relat Disord 12:35-41. 2006
    The majority of care of patients with Parkinson's disease (PD) is provided by informal caregivers; their caregiving not only offers physical and emotional support for patients but also plays a large economic role and prevents early ..
  47. pmc Collaborative community based care for people and their families living with schizophrenia in India: protocol for a randomised controlled trial
    Sudipto Chatterjee
    Sangath, Porvorim, Goa, India
    Trials 12:12. 2011
    ..a lay health worker led, Collaborative Community Based Care (CCBC) intervention, combined with usual Facility Based Care (FBC), is superior to FBC alone in improving outcomes for people with schizophrenia and their caregivers in India.
  48. pmc Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia
    Muhammad A Zahid
    Department of Psychiatry, Faculty of Medicine, Kuwait University P, O, Box 24923, Safat 13110, Kuwait
    BMC Psychiatry 10:71. 2010
    ..Questionnaire--IEQ-EU) and caregiver psychic distress on the one hand, and caregiver's/patient's socio-demographics, clinical features and indices of quality of care, on the other hand, compare with the pattern in the literature?..
  49. pmc Pediatric adherence to HIV antiretroviral therapy
    Jessica Haberer
    Massachusetts General Hospital Center for Global Health, Harvard Initiative for Global Health, 3rd Floor, Cambridge, MA 02138, USA
    Curr HIV/AIDS Rep 6:194-200. 2009
    ..This article provides a conceptual framework and evidence-based look at the factors influencing ART adherence in children and aims to identify areas for intervention for this vulnerable population in need...
  50. ncbi Family caregivers' subjective experiences of satisfaction in dementia care: aspects of burden, subjective health and sense of coherence
    Signe Andrén
    Division of Geriatric Medicine, Department of Community Medicine, Lund University, Malmo University Hospital, Malmo, Sweden
    Scand J Caring Sci 19:157-68. 2005
    Family caregivers experience both positive and negative reactions in caregiving situations. There has been considerably less published about the positive aspects, however...
  51. ncbi Patient and caregiver characteristics and nursing home placement in patients with dementia
    Kristine Yaffe
    University of California, San Francisco, Box 111G, 4150 Clement St, San Francisco, CA 94121, USA
    JAMA 287:2090-7. 2002 complex and is based on patient and caregiver characteristics and the sociocultural context of patients and caregivers. Most studies have determined predictors of nursing home placement primarily according to patient or caregiver ..
  52. pmc Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK
    Gill Livingston
    Department of Mental Health Sciences, University College London, London W1W 7EJ
    BMJ 341:c4184. 2010
    ..To identify common difficult decisions made by family carers on behalf of people with dementia, and facilitators of and barriers to such decisions, in order to produce information for family carers about overcoming barriers...
  53. ncbi Paediatric HIV disclosure in South Africa -- caregivers' perspectives on discussing HIV with infected children
    K Moodley
    S Afr Med J 96:201-4. 2006
  54. ncbi Factors considered important at the end of life by patients, family, physicians, and other care providers
    K E Steinhauser
    Veterans Affairs Medical Center 152, 508 Fulton St, Durham, NC 27705, USA
    JAMA 284:2476-82. 2000
    ..Empirical evidence defining such factors, however, is lacking...
  55. ncbi Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia
    Gill Livingston
    Department of Mental Health Sciences, University College London, Holborn Union Building, Archway Campus, Highgate Hill, London, UK, N19 5LW
    Am J Psychiatry 162:1996-2021. 2005
    ..The authors systematically reviewed the literature on psychological approaches to treating the neuropsychiatric symptoms of dementia...
  56. ncbi Preparing patients and caregivers to participate in care delivered across settings: the Care Transitions Intervention
    Eric A Coleman
    Division of Health Care Policy and Research, and Geriatric Medicine, University of Colorado Health Sciences Center, 13611 East Colfax Avenue, Aurora, CO 80011, USA
    J Am Geriatr Soc 52:1817-25. 2004
    To test whether an intervention designed to encourage older patients and their caregivers to assert a more active role during care transitions can reduce rehospitalization rates.
  57. ncbi Social support and well-being in dementia family caregivers: the mediating role of self-efficacy
    Alma Au
    Department of Applied Social Sciences, The Hong Kong Polytechnic University, Hung Hom, Kolwoon Hong Kong, China
    Aging Ment Health 13:761-8. 2009
    The study investigated self-efficacy as a possible mediator of the relationship between the social support and depressive symptoms of primarily informal caregivers, mainly family members, of patients with dementia in Hong Kong.
  58. ncbi The role of psychosocial and family factors in adherence to antiretroviral treatment in human immunodeficiency virus-infected children
    Claude Ann Mellins
    HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute, and Columbia University, College of Physicians and Surgeons, New York, NY, USA
    Pediatr Infect Dis J 23:1035-41. 2004
    ..This study examines child psychosocial and caregiver/family factors influencing adherence to ART in perinatally human immunodeficiency virus (HIV)-infected children...
  59. ncbi Perceived stigma and depression among caregivers of patients with bipolar disorder
    Deborah A Perlick
    Department of Psychiatry, Yale University School of Medicine, New Haven, CT, USA
    Br J Psychiatry 190:535-6. 2007
    This study investigates the associations between perceived stigma, depressive symptoms and coping among caregivers of people with bipolar disorder...
  60. ncbi Is there agreement between Canadian older adults and their primary informal caregivers on behaviour towards institutionalisation?
    Marie France Dubois
    Faculty of Medicine and Health Sciences, Universite de Sherbrooke, Sherbrooke, QC, Canada
    Health Soc Care Community 17:610-8. 2009
    We aimed to compare behaviour towards institutionalisation between frail older adults and their informal caregivers, and identify correlates of differential behaviour...
  61. pmc "You're dealing with an emotionally charged individual...": an industry perspective on the challenges posed by medical tourists' informal caregiver-companions
    Victoria Casey
    Department of Geography, Simon Fraser University, 8888 University Drive, Burnaby, Canada
    Global Health 9:31. 2013
  62. pmc High risk of ART non-adherence and delay of ART initiation among HIV positive double orphans in Kigali, Rwanda
    Kimiyo Kikuchi
    Department of Community and Global Health, Graduate School of Medicine, The University of Tokyo, Tokyo, Japan
    PLoS ONE 7:e41998. 2012
    ..The aims of this study were to assess the ART adherence and identify whether different orphan status was associated with the child's adherence...
  63. pmc Prevalence and predictors of HIV-related stigma among institutional- and community-based caregivers of orphans and vulnerable children living in five less-wealthy countries
    Lynne C Messer
    Center for Health Policy and Inequalities Research, 2812 Erwin Rd, Suite 403, Duke University Campus Box 90392, Durham, NC 27705, USA
    BMC Public Health 10:504. 2010
    ..In light of the paucity of this literature, this paper will describe HIV-related stigma among caregivers of OAC in five less wealthy nations.
  64. ncbi Predictors of adherence to antiretroviral treatment and therapeutic success among children in South Africa
    Alexandra D Muller
    Department of Medical Psychology and Medical Sociology, Georg August University, Goettingen, Germany
    AIDS Care 23:129-38. 2011
    ..Little is known, however, about the influence of socioeconomic as well as caregivers' health beliefs on both adherence and virologic outcome of pediatric antiretroviral treatment in these settings...
  65. ncbi Demographic and contextual factors related to knowledge about Alzheimer's disease
    Brian D Carpenter
    Department of Psychology, Washington University in St Louis, MO 63130, USA
    Am J Alzheimers Dis Other Demen 26:121-6. 2011
    ..Knowledge was highest among professionals working in the dementia field, lower for dementia caregivers and older adults, and lowest for senior center staff and undergraduate students...
  66. pmc How family caregivers' medical and moral assumptions influence decision making for patients in the vegetative state: a qualitative interview study
    Katja Kuehlmeyer
    Institute of Ethics, History and Theory of Medicine, Ludwig Maximilians University Munich, Lessingstr 2, Munich D 80336, Germany
    J Med Ethics 38:332-7. 2012
    ..However, it is unknown whether family members of the patient in the VS actually base their decisions on the patient's wishes...
  67. ncbi The role of the Internet in supporting and informing carers of people with cancer: a literature review
    Nicole A Kinnane
    Peter Mac Callum Cancer Centre, Victoria 8006, Australia
    Support Care Cancer 18:1123-36. 2010
    ..Studies mostly report patient Internet use. Little is known about how carers (families/informal caregivers/friends) use the Internet and what they find useful.
  68. ncbi Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design
    Josep Lluís Conde-Sala
    Department of Developmental Psychology, University of Barcelona, Passeig de la Vall d Hebron, 171, 08035 Barcelona, Spain
    Int J Nurs Stud 47:1262-73. 2010
    Research into burden among spouse and adult-child caregivers of patients with Alzheimer's disease has generated contradictory results as regards the group which suffers the greatest burden and the factors underlying any differences.
  69. pmc Examining the use of oral rehydration salts and other oral rehydration therapy for childhood diarrhea in Kenya
    Lauren S Blum
    Am J Trop Med Hyg 85:1126-33. 2011
    ..Qualitative research involving group discussions with childcare providers and in-depth interviews with 45 caregivers of children < 5 years of age who had experienced diarrhea was conducted in one rural and urban site in Kenya ..
  70. ncbi Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?
    Irene J Higginson
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, King s College London, Weston Education Center, London, United Kingdom
    J Pain Symptom Manage 25:150-68. 2003
    ..Only one study provided full economic cost-benefit evaluation. This is the first study to quantitatively demonstrate benefit from PCHCTs. Such comparisons were limited by the quality of the research...
  71. ncbi Assessment of food, nutrition, and physical activity practices in Oklahoma child-care centers
    Susan B Sisson
    Behavioral Nutrition and Physical Activity Laboratory, Department of NutritionalSciences, University of Oklahoma Health Sciences Center, 1200 N Stonewall Ave, Oklahoma City, OK 73117 1215, USA
    J Acad Nutr Diet 112:1230-40. 2012
    ..Practitioners can use these data to develop benchmarks and interventions, as this was the first study to assess statewide obesogenic practices in child care...
  72. pmc The cost-effectiveness of a behavior intervention with caregivers of patients with Alzheimer's disease
    Linda O Nichols
    Veterans Affairs Medical Center Memphis, Memphis, Tennessee 38104, USA
    J Am Geriatr Soc 56:413-20. 2008
    To examine the cost-effectiveness of a randomized, clinical trial of a home-based intervention for caregivers of people with dementia.
  73. ncbi Dialysis modality preference of patients with CKD and family caregivers: a discrete-choice study
    Rachael L Morton
    Sydney School of Public Health, The University of Sydney, NSW, Australia
    Am J Kidney Dis 60:102-11. 2012
    Dialysis modality preferences of patients with chronic kidney disease (CKD) and family caregivers are important, yet rarely quantified.
  74. pmc Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services
    Daniel Fu Keung Wong
    Applied Social Studies, City University of Hong Kong, Hong Kong SAR
    Health Qual Life Outcomes 10:15. 2012
    The study attempted to explore the quality of life (QoL) of Chinese caregivers with mentally ill relatives...
  75. pmc Caregivers' oral health literacy and their young children's oral health-related quality-of-life
    Kimon Divaris
    Department of Pediatric Dentistry, School of Dentistry, University of North Carolina Chapel Hill, USA
    Acta Odontol Scand 70:390-7. 2012
    To investigate the association of caregivers' oral health literacy (OHL) with their children's oral health related-quality of life (C-OHRQoL) and explore literacy as a modifier in the association between children's oral health status (..
  76. ncbi The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review
    Jane B Hopkinson
    University of Southampton, Southampton, United Kingdom
    J Pain Symptom Manage 43:111-42. 2012
    ..Cancer is widely acknowledged to impact on the whole family. Yet, we do not know if there is benefit (or harm) from patient-family carer interventions in the context of cancer care...
  77. ncbi Screening for cognitive impairment, Alzheimer's disease and other dementias: opinions of European caregivers, payors, physicians and the general public
    J Bond
    Institute of Health and Society and Institute for Ageing and Health, Newcastle University, Newcastle upon Tyne, UK
    J Nutr Health Aging 14:558-62. 2010
    The IMPACT survey queried physicians, caregivers, payors and members of the general public from 5 European countries (France, Germany, Italy, Spain and the United Kingdom) regarding their opinions towards screening for Alzheimer's disease ..
  78. ncbi Dementia case management effectiveness on health care costs and resource utilization: a systematic review of randomized controlled trials
    C Pimouguet
    INSERM, U 897, and Université Victor Segalen Bordeaux 2, 146 rue Leo Saignat, 33 076 Bordeaux Cedex, France
    J Nutr Health Aging 14:669-76. 2010
    ..Many healthcare systems have developed case management programs in order to optimize dementia patients and caregivers care and services delivery...
  79. ncbi Measurement of informal care: an empirical study into the valid measurement of time spent on informal caregiving
    Bernard van den Berg
    Centre for Health Economics Research and Evaluation, Faculty of Business, University of Technology, Sydney, Australia
    Health Econ 15:447-60. 2006
    ..Corrected for joint production, informal caregivers spent almost 5.8 h a day on providing informal care...
  80. ncbi The accuracy of surrogate decision makers: a systematic review
    David I Shalowitz
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    Arch Intern Med 166:493-7. 2006
    ..However, commentators have questioned the accuracy with which surrogates predict patients' treatment preferences...
  81. ncbi A study comparing patients with amyotrophic lateral sclerosis and their caregivers on measures of quality of life, depression, and their attitudes toward treatment options
    Marilyn Trail
    Department of Neurology, Baylor College of Medicine, 6550 Fannin, Suite 1801, Houston, TX 77030, USA
    J Neurol Sci 209:79-85. 2003
    To compare amyotrophic lateral sclerosis (ALS) patients and their caregivers on measures of quality of life (QOL), depression, and their attitudes toward treatment options.
  82. ncbi Low back pain in adult female caregivers of children with physical disabilities
    Henry C Tong
    Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI 48108, USA
    Arch Pediatr Adolesc Med 157:1128-33. 2003
    ..Low back pain (LBP) in occupational settings has been studied extensively. There are fewer studies on LBP in domestic settings, especially in an informal caregiving setting...
  83. ncbi Mental disorder in Polish families: is diagnosis a predictor of caregiver's burden?
    Tomasz Hadryś
    Department of Psychiatry, Wroclaw Medical University, ul Pasteura 10, 50 367, Wroclaw, Poland
    Soc Psychiatry Psychiatr Epidemiol 46:363-72. 2011
    ..To test whether a caregiver's burden is associated with the patient's psychiatric diagnosis and to find other predictors of family burden; to provide Polish data on the issue to international literature...
  84. ncbi Review of the literature on the effects of caring for a patient with cancer
    Una Stenberg
    Center for Shared Decision Making and Nursing Research, Oslo University Hospital, Rikshospitalet, Oslo, Norway
    Psychooncology 19:1013-25. 2010
    To adequately help family caregivers (FCs) of cancer patients, clinicians need to understand the complexity of the problems and responsibilities associated with cancer patients illness that FCs experience.
  85. pmc Caregiver education in Parkinson's disease: formative evaluation of a standardized program in seven European countries
    L E I A'Campo
    Department of Neurology, Leiden University Medical Center LUMC, Leiden, The Netherlands
    Qual Life Res 19:55-64. 2010
    The formative evaluation of a standardized psychosocial education program for patients with Parkinson's disease (PD) and their caregivers. The results of the participation of the caregivers are presented next to the data of the patients.
  86. pmc Cognitive and behavioral challenges in caring for patients with frontotemporal dementia and amyotrophic lateral sclerosis
    Jennifer Merrilees
    University of California, San Francisco, USA
    Amyotroph Lateral Scler 11:298-302. 2010
    ..The association between ALS and FTD creates unique challenges for family caregivers. This paper provides a guide for healthcare providers caring for patients with FTD-ALS exhibiting behavioral, ..
  87. ncbi Quality of life among caregivers of individuals with affective disorders
    Xavier Zendjidjian
    Aix Marseille University, EA 3279 Research Unit, and Department of Psychiatry, La Conception University Hospital, Marseille, France
    J Affect Disord 136:660-5. 2012
    The aims of this study were as follows: 1. to assess the quality of life (QoL) of caregivers of individuals with affective disorders (major depressive disorder and bipolar disorder); 2...
  88. ncbi Neurobehavioral symptoms in ALS are negatively related to caregivers' burden and quality of life
    A Chio
    ALS Center, Department of Neuroscience, University of Torino, San Giovanni Battista Hospital, Torino, Italy
    Eur J Neurol 17:1298-303. 2010
    To evaluate the frequency of neurobehavioral symptoms related to FTLD in a consecutive series of amyotrophic lateral sclerosis (ALS) patients and to assess their influence on patients' and caregivers' mood, burden, and quality of life.
  89. pmc Evaluation of a Medical and Mental Health Unit compared with standard care for older people whose emergency admission to an acute general hospital is complicated by concurrent 'confusion': a controlled clinical trial. Acronym: TEAM: Trial of an Elderly Ac
    Rowan H Harwood
    Division of Rehabilitation and Ageing, University of Nottingham, Nottingham NG7 1RD, UK
    Trials 12:123. 2011
    ..We hypothesise that patients managed on this ward will have better outcomes than those receiving standard care, and that such care will be cost-effective...
  90. ncbi 'We're just not getting it right'--how should we provide care to the older person with multi-morbid chronic conditions?
    Marina Lupari
    University of Ulster, Coleraine, Ulster, UK
    J Clin Nurs 20:1225-35. 2011
    ..This was anticipated to highlight important issues for nursing practice, healthcare policy, service provision and health service research...
  91. ncbi Quality of life of caregivers in Parkinson's disease
    Pablo Martinez-Martin
    National Center for Epidemiology, Carlos III Institute of Public Health, Madrid, Spain
    Qual Life Res 14:463-72. 2005
    To assess the impact of PD on informal caregivers of patients and identify the main factors related to caregiver strain.
  92. ncbi Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study
    Elodie J O'Connor
    School of Psychology, Deakin University, 221 Burwood Highway, Melbourne, Burwood, VIC 3125, Australia
    Qual Life Res 20:703-11. 2011
  93. ncbi Existential well-being and spirituality of individuals with amyotrophic lateral sclerosis is related to psychological well-being of their caregivers
    Francesco Pagnini
    Department of Psychology, Catholic University of Milan, Italy
    Amyotroph Lateral Scler 12:105-8. 2011
    ..No conclusive data among the relation between patient's EWB, their spirituality and caregivers' QoL are available...
  94. ncbi Sexual behavior, fertility desires and unmet need for family planning among home-based care clients and caregivers in Kenya
    Donna McCarraher
    Family Health International, Health Services Research, Durham, USA
    AIDS Care 20:1057-65. 2008
    ..for family planning and attitudes toward pregnancy in the context of HIV among CHBC participants (clients and caregivers), many of whom are HIV-positive or at risk for HIV, of the COPHIA project in Kenya...
  95. pmc Information-seeking at a caregiving website: a qualitative analysis
    Leslie P Kernisan
    Division of Geriatrics, University of California San Francisco, San Francisco, CA 94121, USA
    J Med Internet Res 12:e31. 2010
    The Internet is widely used for health information, yet little is known about the online activity of family caregivers of elders, a rapidly growing group...
  96. pmc Caregiver burden in Alzheimer disease: cross-sectional and longitudinal patient correlates
    Somaia Mohamed
    New England Mental Illness, Research, Education and Clinical Center, West Haven, CT, USA
    Am J Geriatr Psychiatry 18:917-27. 2010
    Alzheimer disease (AD) imposes a severe burden on patients and their caregivers. Although there is substantial evidence of the adverse impact of burden, considerably less is known about its specific correlates and potential causes.
  97. pmc Interventions with family caregivers of cancer patients: meta-analysis of randomized trials
    Laurel L Northouse
    School of Nursing, University of Michigan, Ann Arbor, MI 48109, USA
    CA Cancer J Clin 60:317-39. 2010
    Family caregivers of cancer patients receive little preparation, information, or support to perform their caregiving role...
  98. pmc The influence of the Gilgel-Gibe hydroelectric dam in Ethiopia on caregivers' knowledge, perceptions and health-seeking behaviour towards childhood malaria
    Delenasaw Yewhalaw
    Department of Biology, Jimma University, Jimma, Ethiopia
    Malar J 9:47. 2010
    Malaria remains the most important public health problem in tropical and subtropical areas. Mothers' or caregivers' ability to recognize childhood malaria-related morbidity is crucial as knowledge, attitudes and health seeking behavior of ..
  99. ncbi Quality of life after stroke: the importance of a good recovery
    Francisco Javier Carod-Artal
    Department of Neurology, Sarah Hospital, The Sarah Network of Rehabilitation Hospitals, Brasilia, Brazil
    Cerebrovasc Dis 27:204-14. 2009
    ..Health-related quality of life (HRQoL) is a recognized and important outcome after stroke. An increased survival and the presence of moderate impairment in long-term stroke survivors impact their HRQoL...
  100. ncbi The value of informal care--a further investigation of the feasibility of contingent valuation in informal caregivers
    Claudine de Meijer
    Erasmus MC, Department of Health Policy and Management, Rotterdam, The Netherlands
    Health Econ 19:755-71. 2010
    ..The study sample consisted of 1453 caregivers and 787 care recipients. Of the caregivers, 603 caregivers (41.5%) provided both WTP and WTA values, 983 (67...
  101. pmc A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: the COPE randomized trial
    Laura N Gitlin
    Jefferson Center for Applied Research on Aging and Health, Thomas Jefferson University, 130 S Ninth St, Ste 513, Philadelphia, PA 19130, USA
    JAMA 304:983-91. 2010
    ..Optimal treatment to postpone functional decline in patients with dementia is not established...

Research Grants91

  1. Teaching Resourcefulness to Women Caregivers of Elders with Dementia
    Jaclene A Zauszniewski; Fiscal Year: 2010
    DESCRIPTION (provided by applicant): Teaching Resourcefulness to Women Caregivers of Elders with Dementia The major goal of this R21exploratory research grant is to pilot test and refine an adapted intervention that teaches ..
  2. Preclinical Development of JS-K, a Novel NO-Generating Prodrug for Cancer
    Paul J Shami; Fiscal Year: 2012
    ..This new drug then goes one step further: it will improve the quality of life for cancer patients, their caregivers and families by providing a significantly more effective and less painful therapy than is currently available.
  3. Anti-Bacterial Innate Responses Enhance Paramyxovirus Replication
    Griffith D Parks; Fiscal Year: 2010
    ..hearing and speech impairment that significantly impact the quality of life of both children and their parents/caregivers. Thus, there is a gap in our understanding of interactions between viral and bacterial infections as well as the ..
  4. Durable Visible Light-activated Antivral Coatings for Fabrics Used for Personal P
    JOSEF STEPHAN SCHNEIDER; Fiscal Year: 2011
    ..Influenza enters the body through the nose or throat. As a precaution, to themselves and patients, caregivers wear personal protective equipment (PPE) such as a respirator masks to minimize contact transmission onto facial ..
  5. Identifying underlying mechanisms of intracellular changes in response to caregiv
    MELANIE SARAH FLINT; Fiscal Year: 2013
    ..There are approximately 65.7 million caregivers (29% of the population) currently in the United States...
  6. Development of Montelukast Delivery System for Childhood Asthma
    Je Phil Ryoo; Fiscal Year: 2013
    ..with comparable efficacy and improved tolerability profile, and as a more preferred choice by children and caregivers compared with the existing oral dosage forms, Galaxy Bio developed NAL6336 montelukast ODF that is intended for ..
  7. Daily Experience in Adolescence and Biomarkers of Early Risk for Adult Health
    Andrew J Fuligni; Fiscal Year: 2013
    ..We propose a 3-wave longitudinal study of adolescents and their caregivers from Mexican, Chinese and European backgrounds in order to assess the impact of daily experience on biological ..
  8. Core Center for BioBehavioral Sciences of Communication Disorders
    Mabel L Rice; Fiscal Year: 2013
    ..PARC works collaboratively with the DEEC and ATT cores in developing the data management systems for integrative science. ..
  9. Generating Blood-based Diagnosis for Alzheimer Disease
    Eugenia Wang; Fiscal Year: 2012
    ..diagnostics for AD victims, meeting an urgent need in health care, a huge gain for disease victims, their caregivers, and our society at large...
  10. Growth and Cardiometabolic Risk Among In Utero Drug Exposed Children
    SARAH ELIZABETH MESSIAH; Fiscal Year: 2013
    ..The MPCS has collected 11 prior waves of multi-domain data on over 400 infants and their mothers/alternate caregivers through early adolescence and is now embarking on 2 additional waves of data collection at ages 16 -18 years...
  11. Reducing Care-Resistant Behaviors During Oral Hygiene in Persons with Dementia
    Rita A Jablonski; Fiscal Year: 2013
    ..RELEVANCE: Nursing home residents with dementia may react with fear during mouth care, making it difficult for caregivers to brush teeth or remove dentures...
  12. Small Molecule Probes for TAR DNA Binding Protein 43_TDP-43
    Allen B Reitz; Fiscal Year: 2012
    ..only are these diseases incurable, but their reach and devastation is much greater because of the impact upon caregivers and the health care system as ALS and FTLD both result in the need for constant around the clock care in their ..
  13. Using a Biomarker Panel for Detecting Adolescent Depression
    John A Bilello; Fiscal Year: 2010
    ..Clearly better less subjective tools are needed to increase the caregivers'ability to identify MDD and other mood disorders within populations...
  14. Biological Pathways of Acute and Chronic Stress in Aged Hip Fracture Caregivers
    Lisa Fredman; Fiscal Year: 2012
    ..The sample will include 225 older informal caregivers to elderly hip fracture patients recruited from 8 Baltimore area hospitals (108 new and continuing caregivers to ..
  15. Anti-Aging Mitochondrial Protein Therapy for Alzheimer?s Disease and Sarcopenia
    JAMES PEPPER BENNETT; Fiscal Year: 2010
    ..As a degenerative disease, AD places a significant burden on caregivers and is therefore, one of the most economically costly diseases to society...
    JEFFREY SCOTT BARRETT; Fiscal Year: 2010
    ..The lack of prescribing information and meaningful dosing guidance places an incredible burden on our pediatric caregivers with the end-result often the sub-optimal use of many medicines in children [1]...
  17. CNS Mechanisms of Acute Hypoglycemia-Associate Autonomic Failure
  18. Mapping Etiological Pathways to SV Perpetration from Childhood to Young Adulthood
    Michele Ybarra; Fiscal Year: 2011
    ..the national Harris Poll OnlineSM (HPOL) sample Participants: Eligible respondents for Wave 1 were defined as caregivers who were: a) HPOL Member;b) Caregiver of a 10 to 15 year old child who lives in the household at least 50% of ..
  19. Pioglitazone & Exercise Effects on Older Aldults with MCI and Metabolic Syndrome
    Robert S Schwartz; Fiscal Year: 2010
    ..AD), and other forms of dementia, are devastating disorders with impressive untoward effects on patients, caregivers, our healthcare system and society as a whole...
  20. Impact of Exercise on Body Composition in Premature Infants: New Approaches
    Dan M Cooper; Fiscal Year: 2013
    ..The challenges are substantial and include: measuring body composition;assessing physical activity;engaging caregivers as partners in the intervention;identifying plausible and testable biological mechanisms;and designing ..
  21. Clinical center for the study of neuroprotection from PD
    Joseph Jankovic; Fiscal Year: 2013
    ..To that end, coordinating the discussions among the PI and specialists, family and caregivers on how to get this done is very time sensitive and consuming...
  22. Effects of Non-Exercise Activity on Cognitive Function in the Elderly
    Teresa J Buracchio; Fiscal Year: 2011
    ..Cognitive impairment places significant financial and social burden on both caregivers and the VA health system...
  23. Effects of exercise and life stress on telomere maintenance and CVD risk
    Eli Puterman; Fiscal Year: 2012
    ..Finally, I will conduct a three-month randomized controlled aerobic training intervention in caregivers compared to an age-matched wait list control group with the aims of increasing leukocyte telomerase activity, ..
    CHRISTY LESLIE LUDLOW; Fiscal Year: 2012
    ..Speech pathologists will train patients and their caregivers to use the Passy Muir Swallowing Self Trainer before discharge from rehabilitation or acute care...
  25. Effects of exercise and life stress on telomere maintenance and CVD risk
    Eli Puterman; Fiscal Year: 2013
    ..Finally, I will conduct a three-month randomized controlled aerobic training intervention in caregivers compared to an age-matched wait list control group with the aims of increasing leukocyte telomerase activity, ..
  26. Pregnancy complications, future cardiovascular disease risk factors and cardiovas
    NISHA INDRAVADAN PARIKH; Fiscal Year: 2013
    ..We believe thata pregnancy risk score derived from these candidate pregnancy factors will help medical caregivers determine which specific factors in a woman's pregnancy history are most important as far as predicting ..
    Monica M Bertagnolli; Fiscal Year: 2013
    ..therapies;evaluating the impact of cancer and its treatment on the quality of life of cancer patients and their caregivers;developing new strategies for cancer prevention;and addressing the needs of special populations, particularly ..
  28. Quality of Life in Children with Cleft
    Hillary L Broder; Fiscal Year: 2013
    ..This project will enroll children (ages 8-17) with cleft palate only (CPO) and cleft lip and palate and their caregivers who are evaluated at five renown craniofacial centers (two in the southeast and three in the northeast) in a ..
  29. Hyperglycemia and adverse pregnancy outcome (HAPO)
    Boyd E Metzger; Fiscal Year: 2010
    ..multicultural, ethnically diverse cohort of women in the third trimester of gestation with medical caregivers "blinded" to status of glucose tolerance (except in those instances where fasting and/or two hour OGTT plasma ..
  30. Smart Home-based Health Platform for Behavioral Monitoring Diabetes and Obesity
    ABDELSALAM ALI HELAL; Fiscal Year: 2010
    ..The proposal focus on the management of obesity and diabetes will benefit a large and growing segment of the population, while providing a wider applicable foundation for other healthcare problems and practices. ..
  31. An interactive web-based intervention to achieve healthy weight in young children
    Ellen Wald; Fiscal Year: 2013 developing innovative information and communication technologies to support patients and their informal caregivers facing chronic and fatal disease for 35 years...
  32. Community-Academic Partnership: Building an Infrastructure to Improve Health for
    Beth A Marks; Fiscal Year: 2010
    ..working with people with DD and the limitations related to the translation of knowledge and best practices for caregivers and health professionals often translates into negative attitudes and implementation barriers that compromise ..
  33. Predict Near Future Bed Exit for Effective Intervention to Avoid Nighttime Falls
    THOMAS HENRY WHALEN; Fiscal Year: 2012 as a non-invasive method of reliably forecasting bed exit attempts among the elderly to allow caregivers lead time to intervene promptly and appropriately to prevent falls...
  34. Health decline in aged caregivers: epidemiologic study
    Lisa Fredman; Fiscal Year: 2013
    DESCRIPTION (provided by applicant): The Stress Process Model predicts that caregivers should have higher rates of health decline than non-caregivers because of their higher stress levels...
  35. In Silico Model for Acute Lung Injury Prediction and Clinical Trial Design
    Ognjen Gajic; Fiscal Year: 2010
    ..organ failure carries a grave prognosis with high mortality, and long term morbidity affecting both patients and caregivers. Carefully designed clinical trials have confirmed the relationships between mechanical ventilators and fluid ..
  36. Chronic and Acute Psychosocial Stress and Impaired Cell Aging
    Elissa S Epel; Fiscal Year: 2013
    ..stress is associated with cell aging (PBMC TL shortening and decreases in telomerase activity) in two samples of caregivers, and further, prospective increases in stress are associated with decreases in TL over just one year...
  37. PETS-D: Parent Education Through Simulation-Diabetes
    Susan Sullivan-Bolyai; Fiscal Year: 2013
    ..single parent caregivers moderate the impact of the intervention on child health and parent management outcomes...
  38. HIV and Substance Use Prevention for South African Youth and Families
    Leickness Simbayi; Fiscal Year: 2012
    ..a multi-level, highly promising, HIV and alcohol/drug use prevention program (Project STYLE) for South African caregivers and their teens receiving outpatient mental health services...
  39. Coordinated Telehealth Care Program for Rural Elders with Congestive Heart Failur
    Hongtu Chen; Fiscal Year: 2010
    ..Neither older adults with chronic disease, nor their informal family caregivers, typically have the knowledge or self-management skills necessary to manage these conditions...
  40. PPM-PREP: Peer-Mentored Preparedness for Adults with Developmental Disabilities
    DAVID PAUL EISENMAN; Fiscal Year: 2010 those with disability" and "interventions to assist caregivers of ill and disabled persons to prepare for...disaster situations...
  41. Investigational Safety and Toxicity Studies of Subcutaneous COG1410 for Alzheimer
    MICHAEL PETER VITEK; Fiscal Year: 2013
    ..4 million American patients and their 13 million caregivers. Unlike stroke, heart disease and other diseases whose deaths have been decreasing in recent years, from 2000 to ..
  42. Pediatric Cancer, Family Conflict and Child Adjustment
    Lynn Fainsilber Katz; Fiscal Year: 2013
    ..and that family conflict is associated with higher psychological distress in young cancer patients and their caregivers. Yet, little is known about the nature and course of family conflict post-cancer diagnosis and through the ..
  43. Stress, Cellular Aging and Susceptibility to Infectious Disease
    Sheldon A Cohen; Fiscal Year: 2010
    ..g. the chronically unemployed, caregivers, and those suffering from poverty)...
  44. Novel Methods to Reduce Children's Secondhand Smoke Exposure
    THEODORE LEE WAGENER; Fiscal Year: 2013
    ..Moreover, only 29% of caregivers are interested in quitting smoking in the next three months, while 39% are not interested in quitting at all...
    Electra D Paskett; Fiscal Year: 2013
    ..therapies;evaluating the impact of cancer and its treatment on the quality of life of cancer patients and their caregivers;developing new strategies for cancer prevention;and addressing the needs of special populations, particularly ..
  46. Mothers and Others: Family-based Obesity Prevention for Infants and Toddlers
    Margaret E Bentley; Fiscal Year: 2013
    ..we propose a randomized controlled trial among 468 Non-Hispanic black women, their families, and their child caregivers to test the efficacy of a multi-component, tailored intervention versus an attention control (child safety) in ..
  47. First Step: Home/School Intervention for Preschoolers with Disruptive Behaviors
    HILL M WALKER; Fiscal Year: 2013 possible in their lives and school careers through early, coordinated interventions involving parents and caregivers, teachers and peers. Preschool (e.g...
  48. Oral Health Intervention for Intellectually/Developmentally Disabled Persons
    ..Many of the moderately to profoundly disabled are dependent on their caregivers to maintain oral health but there is evidence that caregiver psychosocial factors serve as barriers to optimal ..
  49. Cognitive and Psychosocial Benefit of Caregiver Training for Ugandan HIV Children
    MICHAEL JOSEPH BOIVIN; Fiscal Year: 2010
    ..Mediational intervention for sensitizing caregivers (MISC) has a structured curriculum and training program to teach HIV mothers/caregivers the skills for enhancing ..
  50. Telephone-based coping skills training for COPD
    James A Blumenthal; Fiscal Year: 2012
    ..Patients and their self-identified caregivers will undergo comprehensive assessments of physical and psychosocial functioning before and after a 16-week ..
  51. A Multimedia Depression Amelioration Program for Family Dementia Caregivers
    John R Seeley; Fiscal Year: 2010 applicant): Caring for an elderly family member with dementia is burdensome and stressful to the majority of caregivers, and contributes to psychiatric morbidity in the form of higher prevalence and incidence of depression...
  52. Caregiver Illness Perception and Childs Early Childhood Caries Status
    Mary Beth Slusar; Fiscal Year: 2013
    ..of this research training fellowship are: (1) A matched case control study design will compare if parent/caregivers of young children (<6 years) who have severe early childhood caries (cases: S-ECC) versus those of parent/..
  53. Genetic Discovery and Application in a Clinical Setting Continuing a Partnership
    Eric B Larson; Fiscal Year: 2013
    ..Methods to use these results in clinical care will be guided by focus groups of patients and caregivers in the patient-centered Group Health system.
  54. Mechanisms and Treatment of Network Dysfunction in Alzheimer's Disease
    KEITH ALAN VOSSEL; Fiscal Year: 2013
    ..have AD, a relentless and fatal condition that devastates the mind and engenders feelings of hopelessness in caregivers. The urgency in finding a cure for AD has never been stronger...
  55. Training to Improve Late-Stage Dementia Care
    JOHN V HOBDAY; Fiscal Year: 2011
    ..Further, late-stage ADRD care is strongly associated with psychosocial costs to caregivers, who must respond directly to residents in the cognitive declines characteristic of late-stage dementia (..
  56. Activity and Exercise Monitoring System (AEMS)
    MARK A FAUCI; Fiscal Year: 2012
    ..In addition to providing significant direct health benefits to the elderly users and their caregivers, this system will also provide researchers and clinicians with an potentially important clinical and research ..
  57. 3/3-Incomplete Response in Late-Life Depression: Getting to Remission
    Benoit H Mulsant; Fiscal Year: 2013
    ..coexisting medical disorders, amplifies disability and cognitive impairment, imposes greater burden on family caregivers, and increases the risk for early mortality, including suicide...
  58. Scaling up services for people with psychosis in Nigeria: a pilot study
    Oyewusi Gureje; Fiscal Year: 2012
    ..activities whose ultimate goal is the development of a package of care for individuals with psychosis and their caregivers in one catchment area of Nigeria...
  59. Understanding Resilience in Adolescent Girls: Parent, Peer, and Emotion Dynamics
    AMANDA S MORRIS; Fiscal Year: 2012
    ..Study Participants will be 80 adolescent female peer dyads (aged 12-15 years) and their primary caregivers (N = 160 total families)...
  60. Health-Related Quality of Life in Huntington?s Disease Research and Practice: De
    Noelle E Carlozzi; Fiscal Year: 2010
    ..Focus groups consisting of individuals with or at-risk for HD ("consumers"), family members and caregivers, and HD professionals will be included to identify the important issues/themes related to quality of life in HD...
  61. 2012 Craniofacial Morphogenesis &Tissue Regeneration GRS &GRC
    Robert E Maxson; Fiscal Year: 2012
    ..non-syndromic, have major consequences over the lifetimes of affected individuals, as well as family members and caregivers. Treatments must often be multi-pronged, involving surgery, dental care, and psychological counseling over many ..
  62. Clinically Meaningful Outcomes for Duchenne Muscular Dystrophy Therapeutic Trials
    Craig M McDonald; Fiscal Year: 2013
    ..and self-care, and cardiopulmonary failure, create tremendous psychological and emotional stress on patients, caregivers, and family;and considerable health, education, and community resources are required for management...
  63. Chemotherapy Near Death: Modifiable Factors and Outcomes in Ovarian Cancer
    Alexi Wright; Fiscal Year: 2013
    ..are associated with worse patient quality of life (QoL) near death, higher costs, and more distress in bereaved caregivers. Recently, the American Society of Clinical Oncology (ASCO) identified EOL chemotherapy first on its "Top Five ..
  64. Raising Literacy and Capacity for Incontinence and Skin Care in Dementia
    Donna Bliss; Fiscal Year: 2009
    ..This study seeks to better understand the unmet needs of informal caregivers from diverse racial and ethnic backgrounds and healthcare providers caring for persons with AD in relation to ..
  65. A+ Asthma Rural Partnership
    Arlene Butz; Fiscal Year: 2004
    ..grades 1-5; Aim 2: quality of life, asthma knowledge, self-efficacy, and asthma management practices of parents/caregivers; and Aim 3: asthma knowledge, self-efficacy, asthma management, and frequency of asthma communications of school ..
  66. Blue-White Light Therapy for Circadian Sleep Disorders in Alzheimer's Disease
    Philip Sloane; Fiscal Year: 2009
    ..leading to significant negative effects on the daytime function of the affected person and on the well-being of caregivers. Sedating drugs, the conventional treatment for disturbed sleep, have limited effectiveness and pose increased ..
  67. Identifying Strategies to Increase Engagement in Clinical Trials in Pediatric SCD
    Lamia P Barakat; Fiscal Year: 2010
    ..1, to delineate factors associated with engagement in clinical trials for pediatric patients with SCD and their caregivers using questionnaires (n = 50) and follow-up interviews (n = 10-15) from 4 groups: (1) pediatric patients with ..
  68. Comparative Effectiveness of Dementia Care Strategies in Underserved Communities
    BARBARA G contact VICKREY; Fiscal Year: 2010
    ..implications for human suffering and economic burdens among more than 5 million people in the US and their caregivers, these implications are magnified in low-income communities...
  69. HealthCare Manager: A Remote Medication and Personal Health Plan Support System
    Daniel K Davies; Fiscal Year: 2010
    ..of seniors with disabilities will be more and more in the hands of the individuals themselves and their family caregivers receiving limited guidance from professional care organizations...
  70. Decision Making in Patients with Advanced Prostate Cancer
    Randy Jones; Fiscal Year: 2009
    DESCRIPTION (provided by applicant): Many patients with advanced prostate cancer and their caregivers struggle with treatment decisions, such as when to terminate cancer-directed treatment...
  71. Mothers as caregivers for survivors of brain tumors
    Janet Deatrick; Fiscal Year: 2009
    ..growth and development, and major organ function as well as to their mothers who are their most typical caregivers. Caregiving for survivors of childhood brain tumors often continues into adulthood, as they typically do not ..
    Peter Vitaliano; Fiscal Year: 2001
    ..We have observed that insulin independently distinguishes spouse caregivers and controls (caregivers greater controls) better than other physiological variables and that caregivers greater ..
  73. A Chronic Grief Intervention for Alzheimer's Cargivers
    Olimpia Paun; Fiscal Year: 2009
    DESCRIPTION (provided by applicant): Research reveals that Alzheimer's disease (AD) family caregivers (CGs), particularly spouses, do not relinquish their role after placing their loved one in a nursing home...
  74. MBSR Intervention to reduce stress in AD caregivers
    Lisa Fredman; Fiscal Year: 2009
    ..b>Caregivers to persons with Alzheimer's Disease (AD) experience high levels of stress, depressive symptoms, and adverse ..
  75. Low Literacy Elder Caregiver Support for Call Centers
    AMELIA J BIRNEY; Fiscal Year: 2010
    ..In order to improve care coordination, call center coaches need materials to help elder caregivers in their roles as adherence facilitators for both the patient and themselves...
  76. Mexican Americans: Family Caregivers Experience
    Jo Nell Wells; Fiscal Year: 2004
    ..descriptive study are to: 1) discover the underlying social-psychological processes and structures of MA female caregivers and the meaning of these when caring for a family member with cancer; 2) develop a culturally relevant ..
  77. Psychiatric Disorder in Dying Patients & Their Survivors
    Selby Jacobs; Fiscal Year: 2005
    ..known about the prevalence and treatment of psychiatric disorders among terminally ill cancer patients and their caregivers, nor about the ways in which mental health may affect the patient's comfort at death, and the impact this may ..
  78. Preparing Caregivers for the Death of their Loved One
    Randy Hebert; Fiscal Year: 2007 intervention that will improve the physical, psychological, and spiritual well-being of bereaved family caregivers. Despite often prolonged care giving, caregivers frequently do not feel prepared, or adequately forewarned, for ..
  79. Pilot of an Intervention for Caregivers of Hospice HF Patients
    Susan C McMillan; Fiscal Year: 2010
    ..Hospice provides comprehensive palliative care for both patients and their family members, but family caregivers often have unmet needs, even when receiving hospice care...
  80. Hospital to Home: Cognitively Impaired Elders/Caregivers
    Mary Naylor; Fiscal Year: 2009
    ..A growing body of science suggests that these patients and their caregivers are particularly vulnerable to systems of care that either do not recognize or ignore their needs...
    Dolores Gallagher Thompson; Fiscal Year: 1991
    This project will study 150 female spouse caregivers. Ages 55-80 whose husbands are suffering from Alzheimer's disease or a related disorder. Following extensive psychological and physical evaluations at TL (incl...
  82. Effects of Ethnicity/Race on Family Caregiving to Those*
    JORDAN KOSBERG; Fiscal Year: 2003
    DESCRIPTION: The aim of our 2-year pilot research project is to increase knowledge on the experiences of family caregivers of dementia patients who live in rural communities...
  83. Interventions and Quality of Life in Cancer and AIDS
    DEBORAH SHERMAN; Fiscal Year: 2002 regarding the changes/patterns in quality of life of patients with advanced cancer or AIDS and their family caregivers from the time of diagnosis with advanced disease, until death, and into the bereavement period for family ..
  84. A Technology-Enhanced Nursing Intervention for Hospice Caregivers
    George Demiris; Fiscal Year: 2009
    DESCRIPTION (provided by applicant): Family members and friends who act as informal caregivers of hospice patients are essential to the provision of palliative care services;however, this role is not without adverse effects on the ..
    Mary Mittelman; Fiscal Year: 2006
    ..A randomized controlled trial of the efficacy of a multifaceted counseling and support intervention for spouse caregivers of Alzheimer's disease (AD) patients began at the NYU Silberstein Aging and Dementia Research Center (NYU-..
  86. Caregiver Coping Skills training for Lung Cancer
    Francis Keefe; Fiscal Year: 2006
    ..such as pain, fatigue, paroxysmal coughing, and dyspnea are major concerns of lung cancer patients and their caregivers. The focus in management of such symptoms traditionally has been on the patient...
    Ellen Redinbaugh; Fiscal Year: 1999
    The proposed study will test the efficacy of a dual component psychoeducational intervention with family caregivers of terminally ill cancer patients...
  88. For Better and For Worse: Late Effects of Cancer and BMT on Spouse-Caregivers
    Michelle Bishop; Fiscal Year: 2007
    unreadable] DESCRIPTION (provided by applicant): Spouse-caregivers are critical to the recovery and well-being of blood and marrow transplant (BMT) cancer survivors, yet few studies have examined the BMT spouse-caregiver experience, ..
    Susan McMillan; Fiscal Year: 2002
    Although hospice family caregivers receive support from the hospice team, research indicates that a greater level of support and education are needed to assist them with the enormous responsibility they bear for physical and emotional ..
  90. After-hours communication support for hospice family caregivers and patients
    Karen Courtney; Fiscal Year: 2009
    ..S. deaths occurred within a hospice program. While informal caregivers are essential to the delivery of hospice home services, they face many challenges and unmet needs in this role...
  91. Tailored Web-based Interventions for Cancer Patients and Their Family Caregivers
    Laurel L Northouse; Fiscal Year: 2010
    ..exist, they are expensive to deliver and do not address communication problems of patients and their family caregivers. To address the needs of the growing number of cancer survivors, given a decreasing pool of health care ..