registries

Summary

Summary: The systems and processes involved in the establishment, support, management, and operation of registers, e.g., disease registers.

Top Publications

  1. ncbi Cancer survival in five continents: a worldwide population-based study (CONCORD)
    Michel P Coleman
    Cancer Research UK Cancer Survival Group, Non communicable Disease Epidemiology Unit, London School of Hygiene and Tropical Medicine, London, UK
    Lancet Oncol 9:730-56. 2008
  2. ncbi Modelling relative survival in the presence of incomplete data: a tutorial
    Ula Nur
    Cancer Research UK Cancer Survival Group, London School of Hygiene and Tropical Medicine, London, UK
    Int J Epidemiol 39:118-28. 2010
  3. pmc External review and validation of the Swedish national inpatient register
    Jonas F Ludvigsson
    Department of Paediatrics, Orebro University Hospital, Sweden
    BMC Public Health 11:450. 2011
  4. ncbi Environmental and heritable factors in the causation of cancer--analyses of cohorts of twins from Sweden, Denmark, and Finland
    P Lichtenstein
    Department of Medical Epidemiology, Karolinska Institute, Stockholm, Sweden
    N Engl J Med 343:78-85. 2000
  5. ncbi Screening and prostate-cancer mortality in a randomized European study
    Fritz H Schroder
    Department of Urology, Erasmus Medical Center, Rotterdam, The Netherlands
    N Engl J Med 360:1320-8. 2009
  6. pmc Cancer survival in Australia, Canada, Denmark, Norway, Sweden, and the UK, 1995-2007 (the International Cancer Benchmarking Partnership): an analysis of population-based cancer registry data
    M P Coleman
    Cancer Research UK Cancer Survival Group, London School of Hygiene and Tropical Medicine, London, UK
    Lancet 377:127-38. 2011
  7. ncbi Diabetes in Ontario: determination of prevalence and incidence using a validated administrative data algorithm
    Janet E Hux
    Institute for Clinical Evaluative Sciences, Toronto, Canada
    Diabetes Care 25:512-6. 2002
  8. pmc The Swedish personal identity number: possibilities and pitfalls in healthcare and medical research
    Jonas F Ludvigsson
    Department of Paediatrics, Orebro University Hospital, Orebro, Sweden
    Eur J Epidemiol 24:659-67. 2009
  9. ncbi The Danish Civil Registration System. A cohort of eight million persons
    Carsten Bøcker Pedersen
    National Centre for Register Based Research, University of Aarhus, Taasingegade 1, 8000 Aarhus C, Denmark
    Dan Med Bull 53:441-9. 2006
  10. pmc Counting the dead and what they died from: an assessment of the global status of cause of death data
    Colin D Mathers
    Evidence and Information for Policy, World Health Organization, Geneva, Switzerland
    Bull World Health Organ 83:171-7. 2005

Detail Information

Publications305 found, 100 shown here

  1. ncbi Cancer survival in five continents: a worldwide population-based study (CONCORD)
    Michel P Coleman
    Cancer Research UK Cancer Survival Group, Non communicable Disease Epidemiology Unit, London School of Hygiene and Tropical Medicine, London, UK
    Lancet Oncol 9:730-56. 2008
    ..during 1990-94 and followed up to 1999, by use of individual tumour records from 101 population-based cancer registries in 31 countries on five continents...
  2. ncbi Modelling relative survival in the presence of incomplete data: a tutorial
    Ula Nur
    Cancer Research UK Cancer Survival Group, London School of Hygiene and Tropical Medicine, London, UK
    Int J Epidemiol 39:118-28. 2010
    ..data frequently create problems in the analysis of population-based data sets, such as those collected by cancer registries. Restriction of analysis to records with complete data may yield inferences that are substantially different ..
  3. pmc External review and validation of the Swedish national inpatient register
    Jonas F Ludvigsson
    Department of Paediatrics, Orebro University Hospital, Sweden
    BMC Public Health 11:450. 2011
    ..A previous validation of the IPR by the National Board of Health and Welfare showed that 85-95% of all diagnoses in the IPR are valid. The current paper describes the history, structure, coverage and quality of the Swedish IPR...
  4. ncbi Environmental and heritable factors in the causation of cancer--analyses of cohorts of twins from Sweden, Denmark, and Finland
    P Lichtenstein
    Department of Medical Epidemiology, Karolinska Institute, Stockholm, Sweden
    N Engl J Med 343:78-85. 2000
    ..The contribution of hereditary factors to the causation of sporadic cancer is unclear. Studies of twins make it possible to estimate the overall contribution of inherited genes to the development of malignant diseases...
  5. ncbi Screening and prostate-cancer mortality in a randomized European study
    Fritz H Schroder
    Department of Urology, Erasmus Medical Center, Rotterdam, The Netherlands
    N Engl J Med 360:1320-8. 2009
    ..The European Randomized Study of Screening for Prostate Cancer was initiated in the early 1990s to evaluate the effect of screening with prostate-specific-antigen (PSA) testing on death rates from prostate cancer...
  6. pmc Cancer survival in Australia, Canada, Denmark, Norway, Sweden, and the UK, 1995-2007 (the International Cancer Benchmarking Partnership): an analysis of population-based cancer registry data
    M P Coleman
    Cancer Research UK Cancer Survival Group, London School of Hygiene and Tropical Medicine, London, UK
    Lancet 377:127-38. 2011
    ..This is the first study in a programme to investigate international survival disparities, with the aim of informing health policy to raise standards and reduce inequalities in survival...
  7. ncbi Diabetes in Ontario: determination of prevalence and incidence using a validated administrative data algorithm
    Janet E Hux
    Institute for Clinical Evaluative Sciences, Toronto, Canada
    Diabetes Care 25:512-6. 2002
    ..We linked physician service claims (PSCs) and hospital discharge abstracts (HDAs) to determine diabetes prevalence and incidence...
  8. pmc The Swedish personal identity number: possibilities and pitfalls in healthcare and medical research
    Jonas F Ludvigsson
    Department of Paediatrics, Orebro University Hospital, Orebro, Sweden
    Eur J Epidemiol 24:659-67. 2009
    ..We suggest that matching of registers through PIN and matching of national health registers without the explicit approval of the individual patient is to the benefit for both the individual patient and for society...
  9. ncbi The Danish Civil Registration System. A cohort of eight million persons
    Carsten Bøcker Pedersen
    National Centre for Register Based Research, University of Aarhus, Taasingegade 1, 8000 Aarhus C, Denmark
    Dan Med Bull 53:441-9. 2006
    ....
  10. pmc Counting the dead and what they died from: an assessment of the global status of cause of death data
    Colin D Mathers
    Evidence and Information for Policy, World Health Organization, Geneva, Switzerland
    Bull World Health Organ 83:171-7. 2005
    ..We sought to assess the current status of global data on death registration and to examine several indicators of data completeness and quality...
  11. ncbi Data quality at the Cancer Registry of Norway: an overview of comparability, completeness, validity and timeliness
    Inger Kristin Larsen
    Department of Clinical and Registry based Research, Cancer Registry of Norway, Institute of Population Based Cancer Research, Fridjof Nansens vei 19, Postbox 5313, Majorstuen, N 0304 Oslo, Norway
    Eur J Cancer 45:1218-31. 2009
    ..To provide a comprehensive evaluation of the quality of the data collected on both solid and non-solid tumours at the Cancer Registry of Norway (CRN)...
  12. ncbi The new Swedish Prescribed Drug Register--opportunities for pharmacoepidemiological research and experience from the first six months
    Björn Wettermark
    Division of Clinical Pharmacology, Karolinska University Hospital, Huddinge, Karolinska Institutet, Stockholm, Sweden
    Pharmacoepidemiol Drug Saf 16:726-35. 2007
    ..To describe the content and potentials of the new Swedish national register on prescribed and dispensed medicines...
  13. ncbi European Prospective Investigation into Cancer and Nutrition (EPIC): study populations and data collection
    E Riboli
    Unit of Nutrition and Cancer, International Agency for Research on Cancer IARC WHO, 150 cours Albert Thomas, 69372 Lyon Cedex 08, France
    Public Health Nutr 5:1113-24. 2002
    ..The present paper provides a description of the EPIC study, with the aim of simplifying reference to it in future papers reporting substantive or methodological studies carried out in the EPIC cohort...
  14. pmc The ClinicalTrials.gov results database--update and key issues
    Deborah A Zarin
    Lister Hill National Center for Biomedical Communications, National Library of Medicine, National Institutes of Health, Bethesda, MD 20894, USA
    N Engl J Med 364:852-60. 2011
    ..We summarize the structure and contents of the results database, provide an update of relevant policies, and show how the data can be used to gain insight into the state of clinical research...
  15. ncbi Recent cancer survival in Europe: a 2000-02 period analysis of EUROCARE-4 data
    Arduino Verdecchia
    National Centre for Epidemiology, Health Surveillance and Promotion, Istituto Superiore di Sanita, Rome, Italy
    Lancet Oncol 8:784-96. 2007
    ..We aimed to apply the period-analysis method to data that were collected by European cancer registries to estimate recent survival by country and cancer site, and to assess survival changes in Europe...
  16. pmc Data resource profile: cardiovascular disease research using linked bespoke studies and electronic health records (CALIBER)
    Spiros C Denaxas
    Department of Epidemiology and Public Health, Clinical Epidemiology, University College London, London, UK
    Int J Epidemiol 41:1625-38. 2012
    ..Current cohort analyses involve a million people in initially healthy populations and disease registries with ∼10(5) patients. (ii) Linkages of bespoke investigator-led cohort studies (e.g...
  17. ncbi Incidence trends for childhood type 1 diabetes in Europe during 1989-2003 and predicted new cases 2005-20: a multicentre prospective registration study
    Christopher C Patterson
    Epidemiology Research Group, Centre for Public Health, Queen s University Belfast, Belfast, UK
    Lancet 373:2027-33. 2009
    ..We aimed to establish 15-year incidence trends for childhood type 1 diabetes in European centres, and thereby predict the future burden of childhood diabetes in Europe...
  18. ncbi The validity of the diagnosis of acute myocardial infarction in routine statistics: a comparison of mortality and hospital discharge data with the Danish MONICA registry
    Mette Madsen
    National Institute of Public Health, Svanemøllevej 25, DK 2100 Copenhagen, Denmark
    J Clin Epidemiol 56:124-30. 2003
    We analyzed the validity of the diagnosis of acute myocardial infarction (MI) in national registries by individual record linkage with the Danish MONICA registry...
  19. pmc Trial publication after registration in ClinicalTrials.Gov: a cross-sectional analysis
    Joseph S Ross
    Department of Geriatrics and Adult Development, Mount Sinai School of Medicine, New York, New York, United States of America
    PLoS Med 6:e1000144. 2009
    ..Our objectives were to examine completeness of registration within ClinicalTrials.gov and to determine the extent and correlates of selective publication...
  20. pmc Use of insulin glargine and cancer incidence in Scotland: a study from the Scottish Diabetes Research Network Epidemiology Group
    H M Colhoun
    Biomedical Research Institute, University of Dundee, Mackenzie Building, Kirsty Semple Way, Dundee, DD2 4BF, Scotland, UK
    Diabetologia 52:1755-65. 2009
    ..The aim of the present study was to examine whether patients with diabetes in Scotland using insulin glargine have a greater cancer risk than patients using other types of insulin...
  21. ncbi Cancer incidence and incidence rates in Japan in 2007: a study of 21 population-based cancer registries for the Monitoring of Cancer Incidence in Japan (MCIJ) project
    Ayako Matsuda
    Surveillance Division, Center for Cancer Control and Information Services, National Cancer Center, 5 1 1 Tsukiji, Chuo Ku, Tokyo, Japan
    Jpn J Clin Oncol 43:328-36. 2013
    ..estimate the cancer incidence in Japan in 2007 based on data collected from 21 out of 33 population-based cancer registries as part of the Monitoring of Cancer Incidence in Japan (MCIJ) project...
  22. ncbi International trends in colorectal cancer incidence rates
    Melissa M Center
    Surveillance and Health Policy Research, American Cancer Society, Atlanta, Georgia 30303 1002, USA
    Cancer Epidemiol Biomarkers Prev 18:1688-94. 2009
    ..However, no study has examined the worldwide pattern using the most recently updated incidence data from the IARC...
  23. pmc Annual report to the nation on the status of cancer, 1975-2006, featuring colorectal cancer trends and impact of interventions (risk factors, screening, and treatment) to reduce future rates
    Brenda K Edwards
    Surveillance Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland 20892 8315, USA
    Cancer 116:544-73. 2010
    ..and Prevention (CDC), the National Cancer Institute (NCI), and the North American Association of Central Cancer Registries (NAACCR) collaborate annually to provide updated information regarding cancer occurrence and trends in the ..
  24. ncbi The China National Stroke Registry for patients with acute cerebrovascular events: design, rationale, and baseline patient characteristics
    Yongjun Wang
    Neurology Department, Beijing Tiantan Hospital, Capital Medical University, Beijing, China
    Int J Stroke 6:355-61. 2011
    ..There are limited data on the pattern of current medical practice and quality of care delivery for stroke patients at the national level...
  25. pmc Life expectancy at birth for people with serious mental illness and other major disorders from a secondary mental health care case register in London
    Chin Kuo Chang
    King s College London Institute of Psychiatry, London, United Kingdom
    PLoS ONE 6:e19590. 2011
    ..The electronic database from a large and comprehensive secondary mental healthcare provider in London was utilized to assess the impact of SMI diagnoses on life expectancy at birth...
  26. ncbi Regression models for relative survival
    Paul W Dickman
    Department of Medical Epidemiology, Karolinska Institutet, Stockholm, Sweden
    Stat Med 23:51-64. 2004
    ....
  27. pmc Outcome reporting among drug trials registered in ClinicalTrials.gov
    Florence T Bourgeois
    Division of Emergency Medicine, Children s Hospital Boston, Boston, Massachusetts 02115, USA
    Ann Intern Med 153:158-66. 2010
    Clinical trial registries are in widespread use to promote transparency around trials and their results.
  28. ncbi Compliance with mandatory reporting of clinical trial results on ClinicalTrials.gov: cross sectional study
    Andrew P Prayle
    University of Nottingham, Division of Child Health, School of Clinical Sciences, Queens Medical Centre, Nottingham NG7 2UH, UK
    BMJ 344:d7373. 2012
    ..gov for studies that fall under the recent Food and Drug Administration Amendments Act (FDAAA) legislation...
  29. ncbi Clinical trial registration: a statement from the International Committee of Medical Journal Editors
    Catherine De Angelis
    N Engl J Med 351:1250-1. 2004
  30. ncbi International Classification of Childhood Cancer, third edition
    Eva Steliarova-Foucher
    International Agency for Research on Cancer, Lyon, France
    Cancer 103:1457-67. 2005
    ..This necessitated a third revision of the 1996 International Classification of Childhood Cancer (ICCC-3)...
  31. ncbi Registration completeness in the Norwegian Arthroplasty Register
    Birgitte Espehaug
    The Norwegian Arthroplasty Register, Department of Orthopedic Surgery, Haukeland University Hospital, Bergen, Norway
    Acta Orthop 77:49-56. 2006
    ..A high degree of registration completeness is necessary in order to obtain unbiased and accurate register-based study results. We investigated the completeness of registration in the national Norwegian Arthroplasty Register (NAR)...
  32. ncbi The Norwegian Arthroplasty Register: 11 years and 73,000 arthroplasties
    L I Havelin
    Department of Orthopaedic Surgery, Haukeland University Hospital, Norway
    Acta Orthop Scand 71:337-53. 2000
    ..Since the practice of using undocumented implants has not changed, the register will continue to survey these implants. We plan to assess the mid- and long-term results of implants that have so far had good short-term results...
  33. pmc Lymphoma incidence patterns by WHO subtype in the United States, 1992-2001
    Lindsay M Morton
    Hormonal and Reproductive Epidemiology Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, NIH, DHHS, 6120 Executive Blvd, EPS 7055, Rockville, MD 20852, USA
    Blood 107:265-76. 2006
    ..114,548 lymphoid neoplasms diagnosed during 1992-2001 in 12 Surveillance, Epidemiology, and End Results (SEER) registries according to the internationally recognized World Health Organization (WHO) lymphoma classification introduced ..
  34. pmc Uncemented and cemented primary total hip arthroplasty in the Swedish Hip Arthroplasty Register
    Nils P Hailer
    Department of Orthopaedics, Institute of Surgical Sciences, Uppsala University Hospital, Uppsala, Sweden
    Acta Orthop 81:34-41. 2010
    ..We therefore analyzed implant survival of cemented and uncemented THA, and whether the modes of failure differ between the two methods of fixation...
  35. pmc Impact of socioeconomic status on cancer incidence and stage at diagnosis: selected findings from the surveillance, epidemiology, and end results: National Longitudinal Mortality Study
    Limin X Clegg
    Office of Healthcare Inspections, Office of Inspector General 54AA, U S Department of Veterans Affairs, 810 Vermont Ave, NW, Washington, DC 20420, USA
    Cancer Causes Control 20:417-35. 2009
    ..Individual-level socioeconomic data are not routinely reported by cancer registries in the United States because they are not available in patient hospital records. The U.S...
  36. ncbi Cancer risk in the Swiss HIV Cohort Study: associations with immunodeficiency, smoking, and highly active antiretroviral therapy
    Gary M Clifford
    International Agency for Research on Cancer, 150 cours Albert Thomas, 69372 Lyon Cedex 08, France
    J Natl Cancer Inst 97:425-32. 2005
    ....
  37. ncbi The validity of the Finnish Hospital Discharge Register and Causes of Death Register data on coronary heart disease
    Pia Pajunen
    National Public Health Institute, Helsinki, Finland
    Eur J Cardiovasc Prev Rehabil 12:132-7. 2005
    ....
  38. ncbi Cancer in patients on dialysis for end-stage renal disease: an international collaborative study
    P Maisonneuve
    Division of Epidemiology and Biostatistics, European Institute of Oncology, Milan, Italy
    Lancet 354:93-9. 1999
    ..The aim of this study was to examine the risk of cancer in a large cohort of patients treated by dialysis but not transplantation...
  39. ncbi The Danish registers of causes of death
    K Juel
    Danish Institute for Clinical Epidemiology, Copenhagen
    Dan Med Bull 46:354-7. 1999
    ..This paper describes the history of the registers, the data sources and access to data, and the research based upon the registers, presenting some examples of research activities...
  40. pmc Proportion of second cancers attributable to radiotherapy treatment in adults: a cohort study in the US SEER cancer registries
    Amy Berrington de Gonzalez
    Radiation Epidemiology Branch, National Cancer Institute, Bethesda, MD 20892, USA
    Lancet Oncol 12:353-60. 2011
    ..We aimed to estimate the proportion of second cancers attributable to radiotherapy in adults with data from the US Surveillance, Epidemiology and End Results (SEER) cancer registries.
  41. ncbi Comparison of registered and published primary outcomes in randomized controlled trials
    Sylvain Mathieu
    INSERM, U738, Assistance Publique des Hopitaux de Paris, Hopital Bichat Claude Bernard, Département d Epidémiologie Biostatistique et Recherche Clinique, Paris, France
    JAMA 302:977-84. 2009
    ..As of 2005, the International Committee of Medical Journal Editors required investigators to register their trials prior to participant enrollment as a precondition for publishing the trial's findings in member journals...
  42. ncbi The Danish National Birth Cohort--its background, structure and aim
    J Olsen
    Danish Epidemiology Science Centre, Statens Serum Institut, Copenhagen, Denmark
    Scand J Public Health 29:300-7. 2001
    ..By August 2000. a total of 60,000 pregnant women had been recruited to the study. It is expected that a large number of gene-environmental hypotheses need to be based on case-control analyses within a cohort like this...
  43. ncbi Cancer recording and mortality in the General Practice Research Database and linked cancer registries
    Rachael Boggon
    Clinical Practice Research Datalink, Medicines and Healthcare products Regulatory Agency, London, UK
    Pharmacoepidemiol Drug Saf 22:168-75. 2013
    Large electronic datasets are increasingly being used to evaluate healthcare delivery. The aim of this study was to compare information held by cancer registries with that of the General Practice Research Database (GPRD).
  44. ncbi Estimation of contribution of changes in classic risk factors to trends in coronary-event rates across the WHO MONICA Project populations
    K Kuulasmaa
    Department of Epidemiology and Health Promotion, National Public Health Institute KTL, Helsinki, Finland
    Lancet 355:675-87. 2000
    ..We assessed the extent to which changes in these risk factors explain the variation in the trends in coronary-event rates across the populations...
  45. ncbi A scandal of invisibility: making everyone count by counting everyone
    Philip W Setel
    Lancet 370:1569-77. 2007
  46. ncbi Cost of stroke in the United Kingdom
    Omer Saka
    King s College London, Division of Health and Social Care Research, London SE1 3QD, UK
    Age Ageing 38:27-32. 2009
    ..this study aims to quantify the annual cost of illness of stroke to the UK economy...
  47. pmc The Myocardial Ischaemia National Audit Project (MINAP)
    Emily Herrett
    Department of Epidemiology and Population Health, Non communicable Disease Epidemiology Unit, London School of Hygiene and Tropical Medicine, London, UK
    Heart 96:1264-7. 2010
    ..AIMS OF MINAP: To audit the quality of care of patients with acute coronary syndrome and provide a resource for academic research...
  48. pmc Completeness and changes in registered data and reporting bias of randomized controlled trials in ICMJE journals after trial registration policy
    Mirjana Huic
    Agency for Quality and Accreditation in Health Care, Zagreb, Croatia
    PLoS ONE 6:e25258. 2011
    ..We assessed the adequacy of randomized controlled trial (RCT) registration, changes to registration data and reporting completeness for articles in ICMJE journals during 2.5 years after registration requirement policy...
  49. ncbi Descriptive analysis of estrogen receptor (ER)-negative, progesterone receptor (PR)-negative, and HER2-negative invasive breast cancer, the so-called triple-negative phenotype: a population-based study from the California cancer Registry
    Katrina R Bauer
    Public Health Institute California Cancer Registry, Sacramento, California 95815 4402, USA
    Cancer 109:1721-8. 2007
    ..The triple-negative phenotype is important because of its relation to the basal-like subtype of breast cancer...
  50. ncbi Prehospital epinephrine use and survival among patients with out-of-hospital cardiac arrest
    Akihito Hagihara
    Kyushu University Graduate School of Medicine, Department of Health Services Management and Policy, 3 1 1 Maidashi, Higashi ku, Fukuoka 812 8582, Japan
    JAMA 307:1161-8. 2012
    ..Epinephrine is widely used in cardiopulmonary resuscitation for out-of-hospital cardiac arrest (OHCA). However, the effectiveness of epinephrine use before hospital arrival has not been established...
  51. ncbi Cardiac arrest and cardiopulmonary resuscitation outcome reports: update and simplification of the Utstein templates for resuscitation registries: a statement for healthcare professionals from a task force of the International Liaison Committee on Resusci
    Ian Jacobs
    Circulation 110:3385-97. 2004
    ..Despite the development of Utstein templates to standardize research reports of cardiac arrest, international registries have yet to be developed...
  52. pmc Exposing misclassified HIV/AIDS deaths in South Africa
    Jeanette Kurian Birnbaum
    Institute for Health Metrics and Evaluation, University of Washington, 2301 5th Avenue Suite 600, Seattle, WA 98121, United States of America
    Bull World Health Organ 89:278-85. 2011
    ..To quantify the deaths from human immunodeficiency virus (HIV) infection or acquired immunodeficiency syndrome (AIDS) that are misattributed to other causes in South Africa's death registration data and to adjust for this bias...
  53. ncbi Rising incidence of hepatocellular carcinoma in the United States
    H B El-Serag
    Veterans Affairs Medical Center and the University of New Mexico, Albuquerque 87108, USA
    N Engl J Med 340:745-50. 1999
    ..S. vital-statistics data base to determine age-adjusted mortality rates from 1981 to 1995, and data from the Department of Veterans Affairs to determine age-adjusted rates of hospitalization for the disease from 1983 to 1997...
  54. pmc Antidiabetic pharmacotherapy and anamnestic hypoglycemia in a large cohort of type 2 diabetic patients--an analysis of the DiaRegis registry
    Diethelm Tschöpe
    Herz und Diabeteszentrum Nordrhein Westfalen in Bad Oeynhausen, Universitätsklinik der Ruhr Universität, Bochum, Germany
    Cardiovasc Diabetol 10:66. 2011
    ..We aimed to identify predictors of anamnestic hypoglycaemia in type-2 diabetic patients on oral mono- or dual oral combination antidiabetic pharmacotherapy...
  55. ncbi Cancer incidence and incidence rates in Japan in 2005: based on data from 12 population-based cancer registries in the Monitoring of Cancer Incidence in Japan (MCIJ) project
    Tomohiro Matsuda
    Cancer Information Services and Surveillance Division, Center for Cancer Control and Information Services, National Cancer Center, Tokyo, Japan
    Jpn J Clin Oncol 41:139-47. 2011
    ..Cancer Incidence in Japan (MCIJ) project, on the basis of data collected from 12 of 30 population-based cancer registries. The total number of incidences in Japan for 2005 was estimated as 646,802 (C00-C96)...
  56. ncbi The prevalence of congenital anomalies in Europe
    Helen Dolk
    EUROCAT Central Registry, Faculty of Life and Health Sciences, University of Ulster, Newtownabbey, UK
    Adv Exp Med Biol 686:349-64. 2010
    ..Primary prevention of congenital anomalies in the population based on controlling environmental risk factors is a crucial policy priority, including preconceptional care and whole population approaches...
  57. pmc Diabetes treatment patterns and goal achievement in primary diabetes care (DiaRegis) - study protocol and patient characteristics at baseline
    Peter Bramlage
    Institute for Cardiovascular Pharmacology and Epidemiology, Mahlow, Germany
    Cardiovasc Diabetol 9:53. 2010
    ..Data from clinical practice with respect to this patient group are however scarce. Therefore we set up a registry in primary care documenting the course and outcomes of this patient group...
  58. ncbi NORDCAN--a Nordic tool for cancer information, planning, quality control and research
    Gerda Engholm
    NORDCAN Secretariat, Department of Cancer Prevention and Documentation, Danish Cancer Society, Strandboulevarden 49, Copenhagen Ø, Denmark
    Acta Oncol 49:725-36. 2010
    ....
  59. ncbi International prevalence, recognition, and treatment of cardiovascular risk factors in outpatients with atherothrombosis
    Deepak L Bhatt
    Department of Cardiovascular Medicine, Cleveland Clinic Foundation, Cleveland, Ohio 44195, USA
    JAMA 295:180-9. 2006
    ..To date, no single international database has characterized the atherosclerosis risk factor profile or treatment intensity of individuals with atherothrombosis...
  60. ncbi The growing burden of tuberculosis: global trends and interactions with the HIV epidemic
    Elizabeth L Corbett
    Department of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London, England, UK
    Arch Intern Med 163:1009-21. 2003
    ..The increasing global burden of tuberculosis (TB) is linked to human immunodeficiency virus (HIV) infection...
  61. ncbi Stage at diagnosis is a key explanation of differences in breast cancer survival across Europe
    Milena Sant
    Epidemiology Unit, Istituto Nazionale per lo Studio e la Cura dei Tumori, Via Venezian 1, I 20133 Milan, Italy
    Int J Cancer 106:416-22. 2003
    ..The cases were representative samples from 17 population-based cancer registries in 6 European countries (Estonia, France, Italy, Netherlands, Spain and UK) that were combined into 9 regional ..
  62. ncbi Incidence of hematologic malignancies in Europe by morphologic subtype: results of the HAEMACARE project
    Milena Sant
    Department of Preventive and Predictive Medicine, Unit of Analytical Epidemiology, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy
    Blood 116:3724-34. 2010
    ..lymphoid malignancies (LMs) and 21,796 myeloid malignancies (MMs) registered in 2000-2002 by 44 European cancer registries, grouped into 5 regions. Age-standardized incidence rates were 24.5 (per 100,000) for LMs and 7.55 for MMs...
  63. ncbi Cancer incidence and incidence rates in Japan in 2006: based on data from 15 population-based cancer registries in the monitoring of cancer incidence in Japan (MCIJ) project
    Tomohiro Matsuda
    Cancer Information Services and Surveillance Division, Center for Cancer Control and Information Services, National Cancer Center, Tokyo, Japan
    Jpn J Clin Oncol 42:139-47. 2012
    ..Cancer Incidence in Japan (MCIJ) project, on the basis of data collected from 15 of 32 population-based cancer registries. The total number of incidences in Japan for 2006 was estimated as 664 398 (C00-C96)...
  64. pmc Trends in incidence and mortality of nasopharyngeal carcinoma over a 20-25 year period (1978/1983-2002) in Sihui and Cangwu counties in southern China
    Wei Hua Jia
    Department of Experimental Research, Cancer Center, Sun Yat Sen University, Guangzhou, State Key Laboratory of Oncology in Southern China, China
    BMC Cancer 6:178. 2006
    ..trends in different Cantonese populations with different socio-economic backgrounds and lifestyles, we report the incidences and mortality rates from two population-based cancer registries in Sihui and Cangwu counties from 1978-2002.
  65. ncbi Genetic and environmental influences on birth weight, birth length, head circumference, and gestational age by use of population-based parent-offspring data
    Astrid Lunde
    Section for Epidemiology and Medical Statistics, Department of Public Health and Primary Health Care, University of Bergen, Bergen, Norway
    Am J Epidemiol 165:734-41. 2007
    ..Relative to the proportion of explained variation, fetal genes were most important for birth length and head circumference...
  66. pmc The Nordic Arthroplasty Register Association: a unique collaboration between 3 national hip arthroplasty registries with 280,201 THRs
    Leif I Havelin
    The Norwegian Arthroplasty Register, Department of Orthopaedic Surgery, Haukeland University Hospital, Bergen, Norway
    Acta Orthop 80:393-401. 2009
    The possibility of comparing results and of pooling the data has been limited for the Nordic arthroplasty registries, because of different registration systems and questionnaires...
  67. ncbi Preventing chronic diseases in China
    Longde Wang
    Ministry of Health of the People s Republic of China, Beijing, China
    Lancet 366:1821-4. 2005
    ..However, the surveillance and intervention mechanisms needed to ameliorate the increasing burden of chronic diseases are developing rapidly, taking account of the lessons learned over the past two decades...
  68. ncbi Breast cancer survival in the US and Europe: a CONCORD high-resolution study
    Claudia Allemani
    Cancer Research UK Cancer Survival Group, Department of Non communicable Disease Epidemiology, London School of Hygiene and Tropical Medicine, London WC1E 7HT, United Kingdom
    Int J Cancer 132:1170-81. 2013
    ..Differences in breast cancer survival between Europe and the US in the late 1990s were mainly explained by lower survival in Eastern Europe, where low healthcare expenditure may have constrained the quality of treatment...
  69. pmc Hepatocellular carcinoma confirmation, treatment, and survival in surveillance, epidemiology, and end results registries, 1992-2008
    Sean F Altekruse
    Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, MD 20852, USA
    Hepatology 55:476-82. 2012
    ..In the Surveillance, Epidemiology, and End Results-13 registries, HCC stage, histological confirmation, and first-course surgery were examined...
  70. ncbi The completeness of the Swedish Cancer Register: a sample survey for year 1998
    Lotti Barlow
    Centre for Epidemiology, The National Board of Health and Welfare, Stockholm, Sweden
    Acta Oncol 48:27-33. 2009
    ..The aim of the study was to estimate the overall coverage of malignant cancer cases in 1998 and to reveal possible reasons behind non-reporting...
  71. pmc Cancer incidence in Nigeria: a report from population-based cancer registries
    Elima Jedy-Agba
    Institute of Human Virology IHVN, Abuja, Nigeria
    Cancer Epidemiol 36:e271-8. 2012
    ..In this paper, we present estimates of cancer incidence in Nigeria based on data from 2 population-based cancer registries (PBCR) that are part of the Nigerian national cancer registry program.
  72. ncbi Cancer incidence and mortality in France over the period 1980-2005
    A Belot
    Service de Biostatistique, Hospices Civils de Lyon, Centre Hospitalier Lyon Sud, Lyon, France
    Rev Epidemiol Sante Publique 56:159-75. 2008
    ..The objective of this study was to provide updated estimates of national trends in cancer incidence and mortality for France for 1980-2005...
  73. ncbi Evaluation of data quality in the cancer registry: principles and methods Part II. Completeness
    D Max Parkin
    Clinical Trials Service Unit and Epidemiological Studies Unit, University of Oxford, Oxford, UK
    Eur J Cancer 45:756-64. 2009
    ..that are semi-quantitative -- in that they give an indication of the degree of completeness relative to other registries or over time, and more quantitative techniques -- those that provide a numerical evaluation of the extent to ..
  74. ncbi Register-based follow-up of social benefits and other transfer payments: accuracy and degree of completeness in a Danish interdepartmental administrative database compared with a population-based survey
    Niels Henrik Hjollund
    Department of Clinical Social Medicine, Institute of Public Health, Aarhus University, Denmark
    Scand J Public Health 35:497-502. 2007
    ..A Danish database, DREAM, allows weekly follow-up of any public transfer payment. This study aimed to evaluate the feasibility of the register for use in public health research...
  75. ncbi Incidence trends and risk factors of carcinoid tumors: a nationwide epidemiologic study from Sweden
    K Hemminki
    Department of Biosciences at Novum, Karolinska Institute, Huddinge, Sweden
    Cancer 92:2204-10. 2001
    ..Carcinoids are rare indolent neuroendocrine tumors, mainly located in bowel, stomach, and lung. Their etiology is virtually unknown although a family history is a minor cause...
  76. pmc The nuts and bolts of PROSPERO: an international prospective register of systematic reviews
    Alison Booth
    Centre for Reviews and Dissemination, University of York, Alcuin B Block, Heslington, York, UK, YO10 5DD
    Syst Rev 1:2. 2012
    ..The objectives were to reduce unplanned duplication of reviews and provide transparency in the review process, with the aim of minimizing reporting bias...
  77. ncbi Demographic variations in the rising incidence of esophageal adenocarcinoma in white males
    E Bollschweiler
    Department of Visceral and Vascular Surgery, University of Cologne, Joseph Stelzmann Strasse 9, 50931 Cologne, Germany
    Cancer 92:549-55. 2001
    ..The purpose of the current investigation was to collect the available data and to analyze them in a unified manner...
  78. pmc The quality of registration of clinical trials
    Roderik F Viergever
    Department of Research Policy and Cooperation RPC, International Clinical Trials Registry Platform ICTRP, World Health Organization WHO, Geneva, Switzerland
    PLoS ONE 6:e14701. 2011
    ..If these studies are accurate, this negates the possible benefits of registration of clinical trials...
  79. ncbi A modification of the injury severity score that both improves accuracy and simplifies scoring
    T Osler
    Department of Surgery, University of Vermont, Burlington 05405, USA
    J Trauma 43:922-5; discussion 925-6. 1997
    ..We present here a simple modification of the ISS called the New Injury Severity Score (NISS), which significantly outperforms the venerable but dated ISS as a predictor of mortality...
  80. pmc Risk of tuberculosis is higher with anti-tumor necrosis factor monoclonal antibody therapy than with soluble tumor necrosis factor receptor therapy: The three-year prospective French Research Axed on Tolerance of Biotherapies registry
    F Tubach
    Universite Paris 7 Denis Diderot, INSERM U738, Assistance Publique Hopitaux de Paris AP HP, Hopital Bichat, Biostatistique et Recherche Clinique, Paris, France
    Arthritis Rheum 60:1884-94. 2009
    ..Our objective was to describe cases of TB associated with anti-TNF mAb therapy, identify risk factors, and estimate the incidence...
  81. pmc Validation of the geographic position of EPER-Spain industries
    Javier Garcia-Perez
    Cancer and Environmental Epidemiology Area, National Centre of Epidemiology, Carlos III Institute of Health, Madrid, Spain
    Int J Health Geogr 7:1. 2008
    ....
  82. ncbi GFR and cardiovascular outcomes after acute myocardial infarction: results from the Korea Acute Myocardial Infarction Registry
    Eun Hui Bae
    Department of Internal Medicine, Chonnam National University Medical School, Gwangju, Korea
    Am J Kidney Dis 59:795-802. 2012
    ..Despite strong evidence linking decreased glomerular filtration rate (GFR) to worse outcomes, the impact of GFR on mortality and morbidity in patients with acute myocardial infarction (AMI) is not well defined...
  83. ncbi Survival for eight major cancers and all cancers combined for European adults diagnosed in 1995-99: results of the EUROCARE-4 study
    Franco Berrino
    Department of Preventive and Predictive Medicine, Fondazione Istituto Nazionale dei Tumori, Milan, Italy
    Lancet Oncol 8:773-83. 2007
    ..This report (EUROCARE-4) presents survival data for eight selected cancer sites and for all cancers combined, diagnosed in adult (aged >/=15 years) Europeans in 1995-99 and followed up until the end of 2003...
  84. ncbi Human papillomavirus-associated cancers in patients with human immunodeficiency virus infection and acquired immunodeficiency syndrome
    M Frisch
    Viral Epidemiology Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, MD, USA
    J Natl Cancer Inst 92:1500-10. 2000
    ..The purpose of our study was to determine if the high frequency of these cancers is due to lifestyle factors associated with both HPV and HIV infections or to immunosuppression following HIV infection...
  85. ncbi Oral insulin secretagogues, insulin, and cancer risk in type 2 diabetes mellitus
    Chia Hsuin Chang
    Institute of Preventive Medicine, College of Public Health, National Taiwan University, Taipei 10055, Taiwan
    J Clin Endocrinol Metab 97:E1170-5. 2012
    ..Hyperinsulinemia might be the mechanism leading to an increased cancer risk in patients with type 2 diabetes. The objective was to evaluate the association between oral insulin secretagogues, insulins, and cancer incidence...
  86. ncbi Survival from malignant digestive endocrine tumors in England and Wales: a population-based study
    Come Lepage
    Registre Bourguignon des Cancers Digestifs INSERM UMR 866 CHU Dijon, Faculte de Medecine, Dijon, France
    Gastroenterology 132:899-904. 2007
    ..Little is known about the prognosis of patients with malignant digestive endocrine tumors (MDETs), primarily because of their rarity...
  87. pmc Establishing a minimum dataset for prospective registration of systematic reviews: an international consultation
    Alison Booth
    Centre for Reviews and Dissemination, University of York, York, United Kingdom
    PLoS ONE 6:e27319. 2011
    ..We therefore undertook a consultation process with experts in the field to identify a minimum dataset for registration...
  88. ncbi The MPS I registry: design, methodology, and early findings of a global disease registry for monitoring patients with Mucopolysaccharidosis Type I
    Gregory M Pastores
    NYU School of Medicine, New York, NY 10016, USA
    Mol Genet Metab 91:37-47. 2007
    ....
  89. ncbi Breast cancer survival in England, Norway and Sweden: a population-based comparison
    Henrik Møller
    King s College London, Division of Cancer Studies, Thames Cancer Registry, London, United Kingdom
    Int J Cancer 127:2630-8. 2010
    ..We extracted cases of breast cancer in women diagnosed 1996-2004 from the national cancer registries of the 3 countries...
  90. pmc Risk factors for revision due to infection after primary total hip arthroplasty. A population-based study of 80,756 primary procedures in the Danish Hip Arthroplasty Registry
    Alma B Pedersen
    Department of Clinical Epidemiology, Aarhus University Hospital, Arhus, Denmark
    Acta Orthop 81:542-7. 2010
    ..We therefore studied patient- and surgery-related risk factors for revision due to infection after primary THA in a population-based setting...
  91. ncbi The evolution of the population-based cancer registry
    Donald M Parkin
    Clinical Trials Service Unit and Epidemiological Studies Unit, University of Oxford, Richard Doll Building, Old Road Campus, Oxford, OX3 7LF, UK
    Nat Rev Cancer 6:603-12. 2006
    ..from the first half of the twentieth century, and there has been a steady growth in the number of such cancer registries since. Originally, they were concerned primarily with describing cancer patterns and trends...
  92. pmc Register based monitoring shows decreasing socioeconomic differences in Finnish perinatal health
    M Gissler
    National Research and Development Centre for Welfare and Health, Finland
    J Epidemiol Community Health 57:433-9. 2003
    ..The aim of this paper was to investigate whether socioeconomic differences in perinatal health in Finland could be regularly monitored using routinely collected data from one single register...
  93. ncbi Cancer survivors in the United States: age, health, and disability
    Maria Hewitt
    National Cancer Policy Board, Institute of Medicine, Washington, District of Columbia 20418, USA
    J Gerontol A Biol Sci Med Sci 58:82-91. 2003
    ..Relatively little is known about the health and disability of adult cancer survivors. As a way to explore these issues, data from the National Health Interview Survey (years 1998-2000) were analyzed...
  94. ncbi Civil registration systems and vital statistics: successes and missed opportunities
    Prasanta Mahapatra
    Institute of Health Systems, Hyderabad, India
    Lancet 370:1653-63. 2007
    ..However, worldwide efforts to improve data have been limited to sporadic and short-term measures. We conclude that countries and developmental partners have not recognised that civil registration systems are a priority...
  95. ncbi Cardiovascular and noncardiovascular mortality among patients starting dialysis
    Dinanda J de Jager
    Department of Clinical Epidemiology, Leiden University Medical Center, C7 104, PO Box 9600, 2300 RC Leiden, The Netherlands
    JAMA 302:1782-9. 2009
    ..Cardiovascular mortality is considered the main cause of death in patients receiving dialysis and is 10 to 20 times higher in such patients than in the general population...
  96. ncbi Validity of stroke diagnoses in a National Register of Patients
    Lars Henrik Krarup
    Department of Neurology, Copenhagen University Hospital Bispebjerg, Copenhagen, Denmark
    Neuroepidemiology 28:150-4. 2007
    ..In epidemiological research assessment of endpoints is often conducted via registers. In the present study we validated stroke and transient ischemic attack (TIA) diagnoses in the Danish National Register of Patients (DNRP)...
  97. ncbi Safety and efficacy of drug-eluting and bare metal stents: comprehensive meta-analysis of randomized trials and observational studies
    Ajay J Kirtane
    The Cardiovascular Research Foundation, Columbia University Medical Center, 111 E 59th Street, New York, NY 10022, USA
    Circulation 119:3198-206. 2009
    ..We sought to perform a meta-analysis of DES studies to estimate the relative impact of DES versus bare metal stents (BMS) on safety and efficacy end points, particularly for non-Food and Drug Administration-labeled indications...
  98. ncbi Hypertensive pregnancy disorders and subsequent cardiovascular morbidity and type 2 diabetes mellitus in the mother
    Jacob A Lykke
    Department of Obstetrics, Rigshospitalet, Copenhagen, Denmark
    Hypertension 53:944-51. 2009
    ..The severity, parity, and recurrence of these hypertensive pregnancy disorders increase the risk of subsequent cardiovascular events...
  99. ncbi Long-term survival expectations of cancer patients in Europe in 2000-2002
    Hermann Brenner
    Division of Clinical Epidemiology and Aging Research, German Cancer Research Center, Heidelberg, Germany
    Eur J Cancer 45:1028-41. 2009
    ..Furthermore, relative survival was also better in female than in male patients and decreased with age for most cancer sites...
  100. ncbi Assisted reproductive technology in Europe, 2004: results generated from European registers by ESHRE
    A Nyboe Andersen
    ESHRE Central Office, Meerstraat 60, B 1852 Grimbergen, Belgium
    Hum Reprod 23:756-71. 2008
    ..European results of assisted reproductive techniques from treatments initiated during 2004 are presented in this eighth report...
  101. ncbi Netherlands Twin Register: from twins to twin families
    Dorret I Boomsma
    Department of Biological Psychology, Vrije Universiteit, Van der Boechorststraat 1, 1081 BT Amsterdam, The Netherlands
    Twin Res Hum Genet 9:849-57. 2006
    ..In this paper we give an update on the YNTR and ANTR phenotyping and on the ongoing ANTR biobank studies...

Research Grants75

  1. Polycyclic aromatic hydrocarbons and birth outcomes in Mexico City
    MARIE SYLVIA O'NEILL; Fiscal Year: 2013
    ..Most published epidemiology studies are based on population birth registries and lack the individual, clinical data and repeated measures needed to elucidate possible biological mechanisms ..
  2. Oklahoma Autoimmunity Center of Excellence
    Judith A James; Fiscal Year: 2013
    ..clinical trial experience, access to geographically distinct patient populations, as well as unique patient registries, repositories and core technologies provide a solid foundation for the Oklahoma Autoimmunity Center of ..
  3. FOLLOW UP OF THE ALPHA-TOCOPHEROL, BETA-CAROTENE CANCER PREVENTION (ATBC) STUDY
    Jarmo Virtamo; Fiscal Year: 2010
    ..We contribute scientific expertise, data and cohort resources, and intramural support to these powerful, high-impact studies. ..
  4. Development of a Pediatric Mylelodysplastic Syndrome Patient Registry
    DAVID A contact WILLIAMS; Fiscal Year: 2010
    ..broad Challenge Area (07) Enhancing Clinical Trials and specific Challenge Topic 07-DK-103: Support for Registries Pediatric myelodysplastic syndrome (pMDS) is a rare hematopoietic disease characterized by a heterogeneous group ..
  5. Comparative Effectiveness Research in Pediatric Rheumatic Diseases: Leveraging CA
    CAROL A contact WALLACE; Fiscal Year: 2010
    ..health related outcomes of children with rheumatic diseases by entering children into treatment protocols and registries which will enable in and of itself improve care, as well as enable the performance of ongoing comparative ..
  6. Statins &Lymphoid Malignancy Risk in a Large Multi-Site Population-Based Cohort
    Marianne Ulcickas Yood; Fiscal Year: 2013
    ..diagnoses of lymphoid malignancies (n~ 18,000) will be identified from population-based health system cancer registries. Five controls will be matched to each case on, age, sex, health system, and duration of membership...
  7. Air Pollution, Inflammation and Preterm Birth: A Mechanistic Study in Mexico City
    MARIE SYLVIA O'NEILL; Fiscal Year: 2012
    ..exposure may be a significant cause of prematurity, but most published studies are based on population birth registries and lack the individual, clinical data needed to elucidate possible biological mechanisms mediating these ..
  8. Biomedical Computing Support of Cancer Control and Surveillance
    DAVID RONEY; Fiscal Year: 2009
    ..a major component of the SRP, collects cancer data on a routine basis from designated population based cancer registries in various areas of the country...
  9. Multi-center Controlled Clinical Trials in Alport Syndrome-A Feasibility Study
    Clifford E Kashtan; Fiscal Year: 2013
    ..centers in the United States, Canada, China, France and Germany to interrogate existing Alport syndrome registries and databases, and monitor accrual of new Alport cases over an 18-month period, in order to quantify subjects in ..
  10. Economic Consequences of Advanced Testing for Subclinical Cardiovascular Disease
    Leslee J Shaw; Fiscal Year: 2010
    ..Recent data from large patient registries and population series report a high degree of prognostic accuracy for CAC, Hs-CRP, and C-IMT;including the ..
  11. Epidemiology of testicular cancer in the Utah population
    Mia Hashibe; Fiscal Year: 2012
    ..by applicant): Abstract The incidence rate for testicular cancer in Utah is the highest of all the cancer registries in the United States (8.3 per 100,000 in 2007)...
  12. Use of Allogenicity to Stimulate Effector Responses Against Multiple Myeloma
    Christina N Johnson; Fiscal Year: 2013
    ..According to the National Program of Cancer Registries United States Cancer Statistics, both incidence and death rates among African-Americans were approximately twice ..
  13. Genome Wide Admixture Scan for Multiple Myeloma in African Americans
    CHRISTOPHER ALAN HAIMAN; Fiscal Year: 2013
    ..recruited and specimens collected by means of a network of collaborations with NCI/SEER population-based cancer registries (California, Detroit, Louisiana and New Jersey) and clinical centers in 6 regions with large African-American ..
  14. Southern Community Cohort Study
    Wei Zheng; Fiscal Year: 2013
    ..for the renewal are (1) to continue passive follow-up of the cohort via linkages with various national and state registries to identify deaths, incident cancers and other health outcomes, (2) to continue active follow-up of the cohort ..
  15. Cervical Dysplasia and Human Papillomavirus Infection in Rheumatoid Arthritis.
    SEOYOUNG CATHERINE KIM; Fiscal Year: 2013
    ..sources including electronic medical records, large administrative databases, patient survey, as well as patient registries. With the advent of the cervical cancer vaccine, identification of women at high risk carries great public ..
  16. Phthalates in Drugs and Male Genital Malformation
    Allen A Mitchell; Fiscal Year: 2012
    ..areas of Boston, Philadelphia, Toronto, San Diego, and selected regions in Iowa, as well as birth defects registries in Massachusetts and New York State...
  17. Plant-based diets and risk of cancer
    Gary E Fraser; Fiscal Year: 2013
    ..Incident cancers are found by matching with state cancer registries, and also from biennial questionnaires as a secondary source. Initial estimates suggest we will miss only 2...
  18. Molecular Markers in Discoid Lupus Erythematous
    BENJAMIN FRANKLIN CHONG; Fiscal Year: 2013
    ..recognized physicians who are experts in microarrays and skin immunology, and have established disease registries, and 2) classroom education and research resources afforded through the NIH Clinical and Translational Science ..
  19. RRSS #1 - Evaluation of Process Efficiency in the Task of Case Consolidation with
    Kevin Ward; Fiscal Year: 2009
    The goal of this study is to evaluate system related process efficiencies in a routine task of central cancer registries, case consolidation...
  20. Pregnancy complications, future cardiovascular disease risk factors and cardiovas
    NISHA INDRAVADAN PARIKH; Fiscal Year: 2013
    ....
  21. PROTEINS OF COAGULATION PATHWAYS
    John H Griffin; Fiscal Year: 2013
    ..CETP activity, or elevated serum amyloid A (SAA) are linked to VTE risk, we will use existing VTE patient registries and determine if these plasma analytes are biomarkers for VTE...
  22. Primary Immune Deficiency Treatment Consortium Annual Scientific Meeting
    Luigi Daniele Notarangelo; Fiscal Year: 2013
    ..disease- and treatment-related variables that may affect outcome after HCT, both careful collection of data in Registries and multicenter collaboration are needed to facilitate analysis of outcome and development of prospective ..
  23. Adding Hispanics to Ongoing GWAS in Colorectal Cancer
    Jane C Figueiredo; Fiscal Year: 2013
    ..We plan to recruit 2,500 Hispanic men and women diagnosed with CRC between 01/2010 to 10/2013 using cancer registries in California...
  24. Psychosis and Autoimmune Diseases in Denmark
    William W Eaton; Fiscal Year: 2010
    ....
  25. Colon Cancer Family Registry Cohort
    NORALANE MOREY LINDOR; Fiscal Year: 2013
    ..cancers diagnosed since baseline;and (iii) verifying all reports of death against regional and national death registries;(iv) continuing and enhancing with state-of-the-art approaches our retention of cohort participants over time...
  26. Autonomic Rare Diseases Clinical Research Consortium
    DAVID HERLIE ROBERTSON; Fiscal Year: 2013
    ..Our strategy is to meet our goals through natural history studies, therapeutic trials, patient registries, and data/specimen banks...
  27. Disparities in Breast Cancer: Development and Survival in Hispanic and NHW Women
    Martha L Slattery; Fiscal Year: 2013
    ..Survival data has been ongoing and will continue to be monitored via local SEER and CDC tumor registries. Genetic and lifestyle data are available from approximately 8039 Hispanic and NHW cases of breast cancer and ..
  28. Prenatal Factors and Risk of Schizophrenia in a Finnish National Birth Cohort
    ALAN STEWART BROWN; Fiscal Year: 2012
    ..5 million. Prenatal serum samples were obtained from each gravida, and the Finnish psychiatric registries contain diagnoses of schizophrenia on virtually all hospitalized and non-hospitalized cases...
  29. Improving Methods for Comparative Effectiveness Research in Cardiovascular Care
    SOKO SETOGUCHI-IWATA; Fiscal Year: 2012
    ..large claims databases from Medicaid, state pharmacy assistance programs, and Medicare with large clinical registries of CAD and HF and 2) develop and evaluate models for 3 analytic techniques A) high dimensional propensity score ..
  30. Exposure to antibiotics during infancy and subsequent risk of Crohn's disease: a
    Michael D Kappelman; Fiscal Year: 2013
    ..Population-based prescription registries, patient registries, pathology databases, and other administrative data maintained by the Danish government will ..
  31. Comparative Effectiveness and Cost Effectiveness of Cancer Chemotherapy
    Xianglin Du; Fiscal Year: 2013
    ..2007 from the new data linkage in early 2011) from the 17 Surveillance, Epidemiology, and End Results (SEER) registries, accounting for over 25% of the U.S. population...
  32. Overcoming Disparities in Growth Evaluations
    Adda Grimberg; Fiscal Year: 2012
    ..Consistent with this, GH registries show marked under-representation of female and racial minority patients, as do children who seek endocrine ..
  33. Meta-Analysis of Interventions to Improve Medication Adherence
    Vicki S Conn; Fiscal Year: 2013
    ..Strategies include searches by computer and journal searches by hand, searches of ancestry lists and registries databases, reviews of graduate projects, examinations of conference/association abstracts, and contacts with ..
  34. Surveillance, Epidemiology and End Results (SEER) - New Mexico
    Charles L Wiggins; Fiscal Year: 2009
    ..SEER currently collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 26 percent of the US population...
  35. Late adverse Impact of Getting Hyperbilrubinemia or photo Therapy (LIGHT) study
    Thomas B Newman; Fiscal Year: 2013
    ..from hospitalizations and outpatient visits, the Kaiser Permanente Northern California Cancer and Diabetes Registries and coded causes of out-of- hospital deaths, controlling for confounding using propensity scores and other ..
  36. Building a Unique National Community Based Twin Repository
    Dedra S Buchwald; Fiscal Year: 2010
    ..In addition, most funding for twin studies comes from U.S. sources but supports international registries. This application proposes to expand the University of Washington Twin Registry to meet the needs of U.S...
  37. Age-specific and age-standardized breast cancer subtype incidence and disparities
    Joan E Cunningham; Fiscal Year: 2010
    ..We will use Surveillance, Epidemiology, and End Results (SEER) data from selected registries to determine the age-specific (5-year age groups) and age-standardized incidence rates for each ER/Grade subtype ..
  38. Frailty and Risk Prediction in Older Adults Considering Kidney Transplantation
    Dorry Segev; Fiscal Year: 2013
    ..We hypothesize that risk metrics specific to older patients, but not captured in national registries or other conventional studies, will significantly improve risk prediction and thus clinical decision-making, ..
  39. Exposure to mobile source air pollution and adverse birth outcomes in the Los Ang
    Jun Wu; Fiscal Year: 2009
    ..will be performed adjusting for known or suspected confounding factors not generally available in birth registries. In utero windows of vulnerability to air pollutants will be examined...
  40. Gene-Environment Interactions in an Autism Birth Cohort
    W Ian Lipkin; Fiscal Year: 2013
    ..Linkage to nationwide health registries enables extensive longitudinal follow-up of the cohort at low cost...
  41. Development of a National Incompatible Kidney Transplant Registry
    Robert A Montgomery; Fiscal Year: 2010
    ..broad Challenge Area (07) Enhancing Clinical Trials and specific Challenge Topic, 07-DK-103: Support for Registries. Live donor kidney transplantation is the best treatment for kidney failure, doubling life expectancy and ..
  42. Oral Contraceptives in the Etiopathogenesis of Crohn's Disease
    Hamed Khalili; Fiscal Year: 2013
    ..short-term career goals are to 1) build large analytic datasets based upon administrative data collected in registries;2) design and interpret genetic data, including application of gene-environment interaction methodology;3) ..
  43. Multi-institutional Consortium for CER in Diabetes Treatment and Prevention
    JOE VANDIVER SELBY; Fiscal Year: 2010
    ..modifiers may be good candidates for routine collection and incorporation into EHR's and/or future diabetes registries. PUBLIC HEALTH RELEVANCE: A network of 32 health services and intervention scientists affiliated with the HMO ..
  44. Enhanced Surveillance for New Vaccine Preventable Diseases
    Rangaraj Selvarangan; Fiscal Year: 2013
    ..Rotavirus vaccination record will be accessed through Kansas and Missouri vaccination registries, CMH electronic medical records or by contacting primary care provider...
  45. CARDIOVASOLOGY
    Andre Terzic; Fiscal Year: 2013
    ..The renewal capitalizes on degree-granting programs;community-based heart failure registries and biobanks;enabling biotechnology platforms;and rolled-out diagnostics/therapeutics pipelines...
  46. A Follow-up Study for Causes of Cancer in Black Women
    Lynn Rosenberg; Fiscal Year: 2013
    ..Cancer diagnoses are validated by pathology data from hospitals and cancer registries. A DNA bio repository was established through collection of cheek cell samples from 26,800 participants...
  47. Tribal Health and Resilience in Vulnerable Environment (Thrive) Study
    VALARIE J JERNIGAN; Fiscal Year: 2013
    ..A telephone survey will be administered to 500 Native American adults (18+) randomly sampled from tribal registries. Clinical measures will be validated for 200 of those surveyed using tribal clinic electronic health records...
  48. Pesticide Use & Breast Cancer Risk in Large Cohort of Female Agriculture Workers
    LAWRENCE STUART ENGEL; Fiscal Year: 2010
    ..with an estimated 805 incident cases of breast cancer identified through 2006 via population-based cancer registries. Relative risks will be estimated using data from both interviews (pre-diagnostic only), via Cox proportional ..
  49. Cancer and tobacco control training and research across the lifespan in Kenya
    Scot C Remick; Fiscal Year: 2013
    ..g., cerebrovascular disease) in population-based registries to inform national health officials and research programs;(2) develop effective tobacco cessation and control ..
  50. Quasi-experimental studies of early risk factors for severe psychopathology
    Paul Lichtenstein; Fiscal Year: 2013
    ..indices of severe criminal, substance use, suicide, and mental health problems from Swedish national registries. Because the dataset also includes information on the biological relatedness of each individual with all of ..
  51. Partnerships Between Medicaid, Tumor Registries &Cancer Control Researchers
    Deborah Schrag; Fiscal Year: 2013
    ..The proposed work is high impact because it will prioritize problems, identify solutions, and create sustainable infrastructure to improve care in NY, CA. This model can be adapted by other states invested in population health. ..
  52. Comparative effectiveness of breast imaging modalities: a natural experiment
    Garth H Rauscher; Fiscal Year: 2013
    ..The Illinois State Cancer Registry (ISCR) is one of the most highly recognized population-based cancer registries in the nation...
  53. Prognostic Markers for HIV-Postive Diffuse Large B-Cell Lymphoma
    Chun R Chao; Fiscal Year: 2011
    ..Kaiser Permanente has long-standing HIV and cancer registries in addition to >80 administrative and clinical databases to perform these studies...
  54. Assisted Reproductive Technology &Risk of Childhood Cancer
    Logan G Spector; Fiscal Year: 2013
    ..Using the resources of the Society for Assisted Reproductive Technology (SART) and the birth and cancer registries in 20 States and New York City, we propose to conduct the largest study to date of ART and childhood cancer risk...
  55. A Multi-State Study of Cancer Treatment and Outcomes Among American Indians
    Scott D Ramsey; Fiscal Year: 2012
    ..To create this resource, we will link patient records from the Indian Health Service, state cancer registries, and Medicaid and Medicare enrollment and claims for AIAN cancer patients in California, Oregon, and Washington ..
  56. CARRA: Accelerating Toward an Evidence Based Culture in Pediatric Rheumatology
    Carol A Wallace; Fiscal Year: 2010
    ..and pain syndromes) and support standardization of treatment protocols, clinical trials, observational disease registries, and comparative effectiveness research, forming the foundation for CARRA studies in the next decade...
  57. The Colon Cancer Family Registry: Hawaii
    Loic Le Marchand; Fiscal Year: 2011
    ..it eminently suitable for epidemiologic research (geographic remoteness, stability, large pedigrees, population registries, good compliance) and our on-going research on diet, genetic variation and CRC in multiethnic populations...
  58. Developing a Community-Based ASD Research Registry
    PETER DOEHRING; Fiscal Year: 2009
    ..Challenge Area 05 (Comparative Effectiveness Research) and Specific Challenge Topic 05-MH-104 (Building ASD Registries for Use in Comparative Effectiveness Research)...
  59. Griffin: Venous Thromboembolism and mass spectrometry-based untargeted metabolomi
    JOHN H contact GRIFFIN; Fiscal Year: 2010
    ..Clinical samples from 522 VTE cases and 522 matched controls are available from two existing registries, permitting an immediate, intense exploration of the potential applicability of untargeted metabolomics for VTE ..
  60. Patterns of Health Care Use, Treatment &Outcomes in Atrial Fibrillation: PATH-AF
    SUSAN HECKBERT; Fiscal Year: 2012
    ..We propose to leverage existing cohorts and registries linked with claims to provide a comprehensive picture of healthcare use, treatment, and outcomes of AF in the U...
  61. Solid-State NMR of Viral Fusion Peptides and Proteins
    David P Weliky; Fiscal Year: 2013
    ..Aim 3 focuses on determining the distribution of antiparallel registries of b sheet FP in several gp41 constructs with very different FP membrane locations and fusogenicities...
  62. Adherence Improvement and Measurement- AIM- System. Challenge Topic 10-MH-101
    James O Kahn; Fiscal Year: 2010
    ..CIS) are a key element in the CCM and have three important roles: reminder systems;feedback mechanisms;and registries. While CIS have focused on the provider as the recipient of data, we believe that a CIS might just as ..
  63. USING CLAIMS DATA FOR CANCER SURVEILLANCE
    Lynne Penberthy; Fiscal Year: 2000
    ..computer readable information that could supplement the cancer surveillance activities of statewide registries. These databases, however, have the limitations of minimal clinical content and association with billing ..
  64. OTHER FUNCTIONS TAS::75 0849::TAS AGRICULTURAL HEALTH STUDY PHASE IV--MOD 3:
    Marsha Dunn; Fiscal Year: 2012
    ..Cancer incidence has been ascertained by annual linkage to the cancer registries in each state and mortality through linkage to the National Death Index since the inception of the study field ..
  65. Improving Data & Enhancing Access - (IDEA)
    VICTORIA ANN WARREN MEARS; Fiscal Year: 2010
    ..and correct racial misclassification of AI/AN;these datasets will include hospital discharge systems, trauma registries, vital statistics, STD/HIV systems, and cancer registries;(2) Provide reliable local-level estimates of disease ..
  66. PROSPECTIVE STUDY OF HEALTH IN RUNNERS AND WALKERS
    Paul Williams; Fiscal Year: 2002
    ..from the National Death Index; fatal and nonfatal cancers will be identified from the SEER and 46 state registries; nonfatal coronary heart disease and injuries will be determined from questionnaires...
  67. Adenovirus & Human Obesity - Longitudinal & Twin Studies
    Richard Atkinson; Fiscal Year: 2001
    ..AB- twins had a higher body mass index (BMI) and percent body fat. This application will evaluate twin registries in 3 sites: New York, NY; Richmond, VA, and Brisbane, Australia...
  68. Implant/Construct Interactions in the Biomechanics of Total Hip Dislocation
    Thomas Brown; Fiscal Year: 2009
    ..To complement the limited capabilities for mechanistic investigation afforded by clinical registries or by laboratory experimental studies, an anatomically and kinetically realistic three-dimensional nonlinear ..
  69. Clinical and Cost-effectiveness of biologics in Rheumatoid Arthritis
    Hyon K Choi; Fiscal Year: 2010
    ..large-scale epidemiology, and cost-effectiveness research in rheumatoid arthritis (RA) using three large RA registries, a systematic literature review, and computerized simulation modeling to study clinical and cost-effectiveness ..
  70. A New Approach to Estimating U.S. Annual Cancer Rates using SEER Data
    STEVEN MARK; Fiscal Year: 2010
    ..American Cancer Society, the Centers for Disease Control, and the North American Association of Central Cancer Registries produce an Annual Report to the Nation on the Status of Cancer in the United States...
  71. RFLP LINKAGE OF BIPOLAR AFFECTIVE DISORDERS
    Nicholas Barden; Fiscal Year: 1991
    ..b>Registries of all acts of baptism and marriage for this population exist from the founding families in the early 1800's up ..
  72. Clinical Research Consortium for Spinocerebellar Ataxias
    Tetsuo Ashizawa; Fiscal Year: 2010
    ..trials for treatment of ataxia, based on extensive natural history data, large cohort of patients from a patient registries, validated rating scales with increased sensitivity to accurately detect small changes of clinically meaningful ..
  73. DESIGN OF A MULTI-USE DIABETES REGISTRY
    BARBARA COHN; Fiscal Year: 1992
    There has been growing recognition of the need for diabetes registries to track the incidence and prevalence of this important cause of premature morbidity and mortality...
  74. Access to distributed de-identified imaging data
    Elliot Menschik; Fiscal Year: 2004
    ..largely been seen as an emerging impediment to oncology research from the creation, management and use of cancer registries to large-scale retrospective studies addressing rarer forms of neoplasia, in fact the digital nature of PACS-..
  75. FERTILITY DRUGS AND OVARIAN CANCER
    Mary Croughan; Fiscal Year: 1999
    ..Linkage with state and local tumor registries will be done to identify incident cases of ovarian cancer...