Summary: Truthful revealing of information, specifically when the information disclosed is likely to be psychologically painful ("bad news") to the recipient (e.g., revelation to a patient or a patient's family of the patient's diagnosis or prognosis) or embarrassing to the teller (e.g., revelation of medical errors).
Publications263 found, 100 shown here
- Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and womenSeth C Kalichman
Center for AIDS Intervention Research Medical College of Wisconsin, Milwaukee, Wisconsin, USA
J Behav Med 26:315-32. 2003..Disclosure and its association to social support and depression varied for different relationships and these differences have implications for mental health and coping interventions...
- Pilot trial of a disclosure intervention for HIV+ mothers: the TRACK programDebra A Murphy
Health Risk Reduction Projects, Integrated Substance Abuse Programs, Department of Psychiatry, University of California, Los Angeles, Los Angeles, CA 90025 7539, USA
J Consult Clin Psychol 79:203-14. 2011..The Teaching, Raising, And Communicating with Kids (TRACK) program was a longitudinal pilot-trial intervention designed to assist mothers living with HIV (MLHs) to disclose their serostatus to their young children (age 6-12 years)...
- Information needs in terminal illnessJ S Kutner
Division of General Internal Medicine, University of Colorado Health Sciences Center, Denver 80262, USA
Soc Sci Med 48:1341-52. 1999....
- Disclosure of HIV status: experiences and perceptions of persons living with HIV/AIDS and nurses involved in their care in AfricaMinrie Greeff
School of Nursing Science, North West University, Potchefstroom Campus, Potchefstroom, South Africa
Qual Health Res 18:311-24. 2008..This article is limited to a discussion of data related to the theme of disclosure only. The sub-themes of disclosure were experiences before the disclosure, the process of disclosure, and responses during and after disclosure...
- "It is not an easy decision on HIV, especially in Zambia": opting for silence, limited disclosure and implicit understanding to retain a wider identityVirginia Anne Bond
ZAMBART Project, School of Medicine, Ridgeway Campus, Lusaka, Zambia
AIDS Care 22:6-13. 2010..More aggressive promotion of HIV testing needs to both respect and consider how to work within these existing dynamics to facilitate safe disclosure...
- Paediatric HIV/AIDS disclosure: towards a developmental and process-oriented approachA Lesch
Department of Psychology, University of Stellenbosch, Matieland, South Africa
AIDS Care 19:811-6. 2007..There is a clear need for practical interventions to support paediatric HIV disclosure which provide children with age-appropriate information about the disease...
- Efficacy of communication skills training for giving bad news and discussing transitions to palliative careAnthony L Back
Department of Medicine Oncology, University of Washington, 825 Eastlake Ave E, PO Box 19023, Seattle, WA 98109 1023, USA
Arch Intern Med 167:453-60. 2007..This study evaluated the efficacy of Oncotalk in changing observable communication behaviors...
- To tell or not to tell: barriers and facilitators in family communication about genetic riskK Forrest
Department of Public Health, University of Aberdeen, Medical School, Foresterhill, Aberdeen, UK
Clin Genet 64:317-26. 2003..If genetic counsellors understood how these factors operate in individual families they might be able to identify effective strategies to promote considered decisions and prevent unnecessary emotional distress...
- Gender differences regarding barriers and motivators of HIV status disclosure among HIV-positive service usersKebede Deribe
SAHARA J 7:30-9. 2010....
- Narratives of HIV disclosure and masculinity in a South African villageSakhumzi Mfecane
Department of Anthropology and Sociology, University of the Western Cape, Cape Town, South Africa
Cult Health Sex 14:S109-21. 2012..This paper then further analyses the ways in which a 'healthy appearance' facilitates disclosure of HIV status and also disrupts the stigma attached to HIV in the studied community...
- Brain activity during simulated deception: an event-related functional magnetic resonance studyD D Langleben
Department of Psychiatry, Treatment Research Center, University of Pennsylvania, Philadelphia, PA 19104, USA
Neuroimage 15:727-32. 2002....
- Diagnosis disclosure in a Portuguese oncological centreJ Ferraz Gonçalves
Unidade de Cuidados Continuados, Instituto Portugues de Oncologia, Porto, Portugal
Palliat Med 15:35-41. 2001..This subject is a very important topic of research both in Portugal and in other countries, as many published recommendations are not research based...
- Lying in the scanner: covert countermeasures disrupt deception detection by functional magnetic resonance imagingGiorgio Ganis
Department of Radiology, Harvard Medical School, Boston, MA 02115, USA
Neuroimage 55:312-9. 2011..These findings show that fMRI-based deception detection measures can be vulnerable to countermeasures, calling for caution before applying these methods to real-world situations...
- When do HIV-infected women disclose their HIV status to their male partner and why? A study in a PMTCT programme, AbidjanHermann Brou
Laboratoire Population Environnement Développement, Institut de Recherche pour le Developpement, Nogent sur Marne, France
PLoS Med 4:e342. 2007..We investigate, among women tested for HIV within a prevention of mother-to-child transmission of HIV (PMTCT) programme, the key moments for disclosure of their own HIV status to their partner and the impact on partner HIV testing...
- Deconstructing stigma: perceptions of HIV-seropositive mothers and their disclosure to childrenSusan Letteney
Social Work Program, York College of The City University of New York, Jamaica, NY 11454, USA
Soc Work Health Care 38:105-23. 2004..Secrecy and perceptions of devaluation and discrimination related to HIV diagnosis should be seen as barriers to disclosure of serostatus to children...
- Home-based HIV counseling and testing: client experiences and perceptions in Eastern UgandaDavid Kyaddondo
Department of Social Work Child Health and Development Centre, Makerere University, Kampala, Uganda
BMC Public Health 12:966. 2012..This study explored client experiences in relation these ethical issues...
- Teaching medical students and residents skills for delivering bad news: a review of strategiesMarcy E Rosenbaum
University of Iowa College of Medicine, Iowa City, IA 52245, USA
Acad Med 79:107-17. 2004....
- Sex without disclosure of positive HIV serostatus in a US probability sample of persons receiving medical care for HIV infectionDaniel H Ciccarone
Urban Health Study, Department of Family and Community Medicine, University of California San Francisco, 94110, USA
Am J Public Health 93:949-54. 2003..We estimated the proportion of HIV-positive adults who have any sexual contact without disclosure and the proportion of their sexual partnerships that involve unprotected sex without disclosure...
- What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative studyPeter Kirk
Island Medical Program, Universities of Victoria and British Columbia, Victoria, BC, Canada V8N 1V7
BMJ 328:1343. 2004..To obtain feedback from patients receiving palliative care and their relatives from various ethnic backgrounds about their experiences of the disclosure process and their satisfaction with information sharing during the illness...
- Disclosure of an HIV diagnosis to children: history, current research, and future directionsLori Wiener
Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA
J Dev Behav Pediatr 28:155-66. 2007..We apply this literature to clinical practice and suggest avenues and directions for future research...
- Reporting genetic results in research studies: summary and recommendations of an NHLBI working groupEbony B Bookman
Division of Epidemiology and Clinical Applications, National Heart, Lung, and Blood Institute, Bethesda, Maryland 20892 7934, USA
Am J Med Genet A 140:1033-40. 2006..Finally, the Working Group recommended procedures for reporting genetic research results and encouraged increased efforts to create uniform guidelines for this activity...
- Change in sexual activity 12 months after ART initiation among HIV-positive MozambicansCynthia R Pearson
School of Social Work, Indigenous Wellness and Research Institute, University of Washington, Seattle, WA 98195 1525, USA
AIDS Behav 15:778-87. 2011..Ongoing secondary transmission prevention programs addressing sexual activity with multiple partners, disclosure to partners and consistent condom use with serodisconcordant partners must be incorporated throughout HIV care programs...
- SPIKES-A six-step protocol for delivering bad news: application to the patient with cancerW F Baile
The University of Texas MD Anderson Cancer Center, Houston, Texas, USA
Oncologist 5:302-11. 2000..Directions for continuing assessment of the protocol are suggested...
- Oncologists' attitudes toward and practices in giving bad news: an exploratory studyWalter F Baile
University of Texas M D Anderson Cancer Center, Houston, TX 77030, USA
J Clin Oncol 20:2189-96. 2002..To examine the attitudes and practices of oncologists in disclosure of unfavorable medical information to cancer patients...
- Don't ask, don't tell: patterns of HIV disclosure among HIV positive men who have sex with men with recent STI practising high risk behaviour in Los Angeles and SeattleP M Gorbach
Department of Epidemiology, School of Public Health, Box 951772, University of California Los Angeles, Los Angeles, CA 900095 1772, USA
Sex Transm Infect 80:512-7. 2004..Themes as to why MSM attending sexually transmitted infection (STI) clinics in Los Angeles and Seattle do and do not disclose their HIV status are identified...
- Negotiating cross-cultural issues at the end of life: "You got to go where he lives"M Kagawa-Singer
Commuity Health Sciences, University of California, Los Angeles School of Public Health and Asian American Studies, Los Angeles, CA, USA
JAMA 286:2993-3001. 2001..Skilled use of cross-cultural understanding and communication techniques increases the likelihood that both the process and outcomes of care are satisfactory for all involved...
- Disclosure of HIV status to sexual partners: predictors and temporal patternsL M Niccolai
HIV Outpatient Program, Louisiana State University Medical Center, New Orleans 70112, USA
Sex Transm Dis 26:281-5. 1999..Failure to disclose human immunodeficiency virus (HIV) infection to sexual partners interferes with risk reduction...
- Information needs of patients with cancer: results from a large study in UK cancer centresV Jenkins
Department of Oncology, Royal Free and University College London Medical School, 48 Riding House Street, London, W1P 7PL, UK
Br J Cancer 84:48-51. 2001..Failure to disclose such information on the grounds that significant numbers of patients prefer not to know is untenable...
- Undesirable implications of disclosing individual genetic results to research participantsLeslie A Meltzer
Georgetown University Law Center, USA
Am J Bioeth 6:28-30; author reply W10-2. 2006
- Communicating sad, bad, and difficult news in medicineLesley Fallowfield
Cancer Research UK Psychosocial Oncology Group, Brighton and Sussex Medical School, University of Sussex, BN1 9QG, Falmer, UK
Lancet 363:312-9. 2004..We focus mainly on difficulties encountered involving parents in an obstetric or paediatric setting, people in acute trauma situations such as accident and emergency departments, and patients with cancer...
- The action dynamics of overcoming the truthNicholas D Duran
Department of Psychology, University of Memphis, 202 Psychology Building, Memphis, TN 38152 3230, USA
Psychon Bull Rev 17:486-91. 2010..Supplemental figures and a list of the sentence stimuli may be downloaded from http://pbr.psychonomic-journals.org/content/supplemental...
- Cancer patients' desires for communication of prognosis informationStan A Kaplowitz
Department of Sociology, Michigan State University, East Lansing 48824 1111, USA
Health Commun 14:221-41. 2002..Those least likely to want, request, and be given qualitative information were those who combined a bad prognosis with a need to avoid thinking about death...
- Women receiving news of a family BRCA1/2 mutation: messages of fear and empowermentCheryl B Crotser
Division of Nursing, Roberts Wesleyan College, 2301 Westside Drive, Rochester, NY 14624, USA
J Nurs Scholarsh 42:367-78. 2010..THEORETICAL RATIONALE: Individuals are self-interpretive beings influenced by family culture, history, and communication patterns. Humans express meaning through language and stories...
- Breaking bad news: more than just guidelinesWalter F Baile
J Clin Oncol 24:3217; author reply 3217-8. 2006
- Is it possible to improve residents breaking bad news skills? A randomised study assessing the efficacy of a communication skills training programA Lienard
Clinique de Psycho Oncologie et des Soins Supportifs, Institut Jules Bordet, Brussels, Belgium
Br J Cancer 103:171-7. 2010..This study aims to assess the efficacy of a 40-h training programme designed to teach residents the communication skills needed to break the bad news...
- How to improve the validity of sexual behaviour reporting: systematic review of questionnaire delivery modes in developing countriesLisa F Langhaug
Centre for Sexual Health and HIV Research, University College London, UK
Trop Med Int Health 15:362-81. 2010..To systematically review comparative research from developing countries on the effects of questionnaire delivery mode...
- Letting the gene out of the bottle: a comment on returning individual research results to participantsPilar N Ossorio
University of Wisconsin, USA
Am J Bioeth 6:24-5; author reply W10-2. 2006
- Factors that influence cancer patients' and relatives' anxiety following a three-person medical consultation: impact of a communication skills training program for physiciansAurore Lienard
Unité de Recherche en Psychosomatique et Psycho oncologie, Universite Libre de Bruxelles, Bruxelles, Belgium
Psychooncology 17:488-96. 2008....
- Parents' disclosure of their HIV infection to their children in the context of the familyDavid P Kennedy
RAND Corporation, Santa Monica, CA 90407 2138, USA
AIDS Behav 14:1095-105. 2010..Parents should consider negative and positive outcomes, unplanned disclosure and children's capacity to adapt after disclosure when deciding whether to disclose...
- It's all in the details: physician variability in disclosing a dementia diagnosisEmily C Kissel
Department of Psychology, Washington University, St Louis, MO 63130, USA
Aging Ment Health 11:273-80. 2007..Further empirical research is needed to establish best practices that promote psychological adjustment and successful disease management in patients and caregivers who receive a dementia diagnosis...
- We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC)Regina Kenen
Department of Sociology and Anthropology, Social Science Building, The College of New Jersey, PO Box 7718, Ewing, NJ 08628, USA
Psychooncology 13:335-45. 2004....
- Attitudes, beliefs and perceptions regarding truth disclosure of cancer-related information in the Middle East: a reviewRami Bou Khalil
Psychiatric Hospital of the Cross, Jalledib, Lebanon
Palliat Support Care 11:69-78. 2013..beliefs and/or practices of patients, family members, health professionals and/or caregivers regarding truth disclosure about a cancer diagnosis in the Greater Middle East countries...
- Bioethics for clinicians: 23. Disclosure of medical errorP C Hebert
Department of Family and Community Medicine, Sunnybrook and Women s College Health Sciences Centre, Toronto, Ont
CMAJ 164:509-13. 2001..Guidelines for disclosure to patients, and their families if necessary, are proposed...
- Information seeking during "bad news" oncology interactions: Question asking by patients and their companionsSusan Eggly
Karmanos Cancer Institute, Wayne State University, Detroit, MI, USA
Soc Sci Med 63:2974-85. 2006..Future research and physician training in communication would benefit from expanding the focus beyond the patient-physician dyad to the roles and influence of multiple participants in medical interactions...
- Communicating BRCA1/2 genetic test results within the family: a qualitative analysisCaroline Dancyger
Research Department of Clinical, Educational and Health Psychology, University College London, London WC1E7HB, UK
Psychol Health 26:1018-35. 2011..Findings are discussed in relation to extant literature and implications for clinical practice are considered...
- Disclosure of HIV status to medical providers: differences by gender, "race," and immune functionD B Jeffe
Department of Medicine, Washington University School of Medicine, St Louis, Missouri 63108, USA
Public Health Rep 115:38-45. 2000....
- Disclosing medical errors to patients: a challenge for health care professionals and institutionsWendy Levinson
Department of Medicine, University of Toronto, Ontario, Canada
Patient Educ Couns 76:296-9. 2009..This article also includes a description of the changing policy environment in North America that is encouraging and mandating disclosure of errors...
- Barriers to incident reporting in a healthcare systemR Lawton
School of Psychology, University of Leeds, Leeds LS2 9JT, UK
Qual Saf Health Care 11:15-8. 2002..Learning from mistakes is key to maintaining and improving the quality of care in the NHS. This study investigates the willingness of healthcare professionals to report the mistakes of others...
- It's ok to ask about past abuseValerie J Edwards
Emerging Investigations and Analytic Methods Branch, Centers for Disease Control and Prevention, Atlanta, GA 30341, USA
Am Psychol 62:327-8; discussion 330-2. 2007
- Disclosure of parental HIV infection to children: a systematic review of global literatureShan Qiao
Prevention Research Center, Carman and Ann Adams Department of Pediatrics, School of Medicine, Wayne State University, Hutzel Building, Suite W534, 4707 St Antoine, Detroit, MI 48201, USA
AIDS Behav 17:369-89. 2013....
- Communicative competence in the delivery of bad newsCathy Gillotti
Department of Communication, Purdue University, Calumet, USA
Soc Sci Med 54:1011-23. 2002....
- Doctors' responses to medical errorsMichael Rowe
Department of Psychiatry, Yale School of Medicine, 205 Whitney Avenue, New Haven, CT 06511, USA
Crit Rev Oncol Hematol 52:147-63. 2004..This article reviews doctor's responses to error within the context of contemporary medical care and considers themes that emerge from this review...
- Public expectations for return of results from large-cohort genetic researchJuli Murphy
Genetics and Public Policy Center, Berman Institute of Bioethics, Johns Hopkins University, Washington, DC 20036, USA
Am J Bioeth 8:36-43. 2008..Recognizing the wide range of possible research results from a large cohort study, they repeatedly and spontaneously suggested that cohort study participants be given ongoing choices as to which results they received...
- Mothers with HIV/AIDS and their children: disclosure and guardianship issuesJ M Simoni
Ferkauf Graduate School of Psychology, Yeshiva University, Bronx, NY 10461, USA
Women Health 31:39-54. 2000..Implications for future research and provision of services to this group of women are discussed...
- Discussing matters of sexual health with children: what issues relating to disclosure of parental HIV status revealSara Liane Nam
Infectious Diseases Epidemiology Unit, London School of Hygiene and Tropical Medicine, London, UK
AIDS Care 21:389-95. 2009..In developing such support mechanisms, changing family roles in Botswana need to be taken into consideration and the role of other family members in the upbringing of children in Tswana society need to be recognised and utilised...
- Truth disclosure of cancer diagnoses and its influence on bereaved Japanese familiesMichiyo Mizuno
Department of Adult and Elderly Nursing, Ishikawa Prefectural Nursing University, Japan
Cancer Nurs 25:396-403. 2002..Concerning the bereaved families' responses to the manner in which the decisions had been made on truth disclosure, the average degree of satisfaction was expressed as 3.7 cm on a 5.0-cm scale...
- Reasons given for disclosure of maternal HIV status to childrenD J Pilowsky
New York State Psychiatric Institue, USA
J Urban Health 77:723-34. 2000..The reason most frequently considered important for not disclosing was maternal concern about discussing death and dying with children. These findings have significant implications for counseling of HIV-positive parents...
- Psychological differences between HIV-positive mothers who disclose to all, some, or none of their biological childrenRobin Ostrom Delaney
The Ohio State University, Ohio, USA
J Marital Fam Ther 35:175-80. 2009..Results suggest that women who disclose to all, some, or none of their children are not significantly different with regard to emotional well-being. Implications for marriage and family therapists are provided...
- Responsibility and cancer disclosure in JapanTodd S Elwyn
Department of Psychiatry, University of Hawaii, Honolulu, USA
Soc Sci Med 54:281-93. 2002..Physicians, as well as families and patients, display an aversion to taking responsibility for the potential risks of disclosure, and this may perpetuate the status quo...
- Informed consent to breaking bad newsAbraham Rudnick
Department of Behavioral Sciences, School of Medicine, Tel Aviv University, 69978 Tel Aviv, Israel
Nurs Ethics 9:61-6. 2002..Future study should attempt to provide a detailed characterization of procedures for attaining informed consent to breaking or waiving bad news, and to test their success in establishing ethically sound health care...
- Doctors' strategies when breaking bad news to terminally ill patientsMaria J Friedrichsen
Department of Welfare and Care, Linkoping University, Campus Norrköping, 601 74 Norrköping, Sweden
J Palliat Med 6:565-74. 2003..e., letting the patient take an active part). When giving information, the doctors' goal was to make patients understand, but the strategies differed depending on the context...
- Disclosure of prognosis to terminally ill patients: attitudes and practices among French physiciansP Peretti-Watel
Regional Center for Disease Control of South Eastern France, 23 rue Stanislas Torrents, 13006 Marseille, France
J Palliat Med 8:280-90. 2005..Disclosure of the prognosis to terminally ill patients is a strong prerequisite for integrating the physical, psychological, spiritual, and social aspects of end-of-life care...
- Is it ethical to deny genetic research participants individualised results?P Affleck
Leeds Institute of Molecular Medicine, St James s University Hospital, UK
J Med Ethics 35:209-13. 2009..However, where those results are of uncertain clinical value, the picture is less clear. This paper argues that researchers may not be ethically obliged to offer such results to their participants, because of competing ethical demands...
- Correlates of sex without serostatus disclosure among a national probability sample of HIV patientsO Kenrik Duru
Division of General Internal Medicine Health Services Research, University of California, Los Angeles, CA 90024, USA
AIDS Behav 10:495-507. 2006..We found an association between the perceived duty to disclosure to all partners and sex without disclosure, while we found no association in multivariate analyses between outcome expectancies and sex without disclosure...
- Men at risk of being a mutation carrier for hereditary breast/ovarian cancer: an exploration of attitudes and psychological functioning during genetic testingL Lodder
Department of Medical Psychology and Psychotherapy, Erasmus University Rotterdam Netherlands Institute for Health Sciences, Rotterdam, The Netherlands
Eur J Hum Genet 9:492-500. 2001..Future studies may indicate which psychological reactions occur in male mutation carriers when the problem becomes more acute, eg when a daughter is found to carry the mutation and/or is diagnosed with breast or ovarian cancer...
- Women's lives after an HIV-positive diagnosis: disclosure and violenceA C Gielen
Johns Hopkins University, School of Public Health, Department of Health Policy Management, Baltimore, Maryland 21205, USA
Matern Child Health J 4:111-20. 2000..disclosure to others of their HIV-positive status? (2) What are women's concerns and experiences with disclosure? (3) What violence do women living with HIV experience? (4) How is the violence related to their diagnosis and disclosures?..
- Patients' and physicians' attitudes regarding the disclosure of medical errorsThomas H Gallagher
Department of Medicine, University of Washington School of Medicine, 1959 NE Pacific St, Box 356178, Seattle, WA 98195 0001, USA
JAMA 289:1001-7. 2003..Disclosure of errors to patients is desired by patients and recommended by ethicists and professional organizations, but little is known about how patients and physicians think medical errors should be discussed...
- Disclosure of HIV status to sex partners and sexual risk behaviours among HIV-positive men and women, Cape Town, South AfricaL C Simbayi
Human Sciences Research Council, Cape Town, South Africa
Sex Transm Infect 83:29-34. 2007..The HIV epidemic continues to amplify in southern Africa and there is a growing need for HIV prevention interventions among people who have tested HIV positive...
- Managing incidental findings in human subjects research: analysis and recommendationsSusan M Wolf
University of Minnesota, MN, USA
J Law Med Ethics 36:219-48, 211. 2008..We recommend a pathway and categorize IFs into those that must be disclosed to research participants, those that may be disclosed, and those that should not be disclosed...
- Stigma of visible and invisible chronic conditionsG Joachim
School of Nursing, University of British Columbia, Vancouver, British Columbia, Canada
J Adv Nurs 32:243-8. 2000..A framework to facilitate a deeper understanding of the dynamics of chronic illnesses and conditions may prove useful for practice...
- Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physiciansCathleen M Connell
Department of Health Behavior and Health Education, School of Public Health, 1420 Washington Heights, University of Michigan, Ann Arbor, MI 48109 2029, USA
Gerontologist 44:500-7. 2004..This study examined attitudes of caregivers and physicians toward assessing and diagnosing dementia, with an emphasis on how a diagnosis is disclosed...
- Serostatus disclosure, sexual communication and safer sex in HIV-positive menN Crepaz
Centers for Disease Control and Prevention, Atlanta, Georgia 30333, USA
AIDS Care 15:379-87. 2003....
- Discussing bad news in the outpatient oncology clinic: rethinking current communication guidelinesSusan Eggly
Communication and Behavioral Oncology Program, Karmanos Cancer Institute, Wayne State University, Detroit, MI 48201, USA
J Clin Oncol 24:716-9. 2006
- Recent multiple sexual partners and HIV transmission risks among people living with HIV/AIDS in BotswanaSeth C Kalichman
Department of Psychology, University of Connecticut, Storrs, CT 06269, USA
Sex Transm Infect 83:371-5. 2007..HIV prevalence in Botswana is among the highest in the world and sexual networking patterns represent an important dimension to understanding the spread of HIV/AIDS...
- Psychosocial correlates of unprotected sex without disclosure of HIV-positivity among African-American, Latino, and White men who have sex with men and womenMatt G Mutchler
AIDS Project Los Angeles, Los Angeles, CA, USA
Arch Sex Behav 37:736-47. 2008..Addressing norms for condom use and disclosure between male partners is recommended, especially for homosexually identified MSMW...
- Do children know their parent's HIV status? Parental reports of child awareness in a nationally representative sampleRosalie Corona
Department of Pediatrics, School of Medicine, University of California, Los Angeles, USA
Ambul Pediatr 6:138-44. 2006..To determine the rates and predictors of child awareness of parental human immunodeficiency virus (HIV) status and the effect of that knowledge on children...
- To tell or not to tell: South African women's disclosure of HIV status during pregnancyMaretha J Visser
Department of Psychology, University of Pretoria, Pretoria, South Africa
AIDS Care 20:1138-45. 2008..The results can assist healthcare providers in understanding the complexity of pregnant women's decisions to disclose to various members of their social networks and emphasize the need for continued counselling and support...
- Disclosure of HIV serostatus to sex partners: a new approach to measurementLinda M Niccolai
Department of Epidemiology and Public Health, Yale University School of Medicine, New Haven, Connecticut, USA
Sex Transm Dis 33:102-5. 2006..The objective of this study was to assess measurement of full HIV serostatus disclosure (before sex), delayed disclosure (after sex), and no disclosure to both current and recent past (in the last year) sex partners...
- Ignorance, information and autonomyJ Harris
University of Manchester, School of Law, UK
Theor Med Bioeth 22:415-36. 2001....
- To tell or not to tell-comparison of older patients' reaction to their diagnosis of dementia and depressionA Jha
Hertfordshire Partnership NHS Trust, Hertfordshire, UK
Int J Geriatr Psychiatry 16:879-85. 2001..Investigation of the reaction of elderly patients to the disclosure of their diagnosis of dementia compared with depression...
- Factors influencing disclosure of HIV positive status in Mityana district of UgandaIsaac Kadowa
Mityana Hospital, P O Box 52 Mityana, Uganda
Afr Health Sci 9:26-33. 2009..Identifying factors associated with disclosure is a research priority as a high proportion of persons living with HIV/AIDS (PHA) never disclose...
- Disclosing a diagnosis of dementia: a systematic reviewClaire Bamford
Centre for Health Services Research, University of Newcastle upon Tyne, UK
Int J Geriatr Psychiatry 19:151-69. 2004..The issue of diagnostic disclosure in dementia has been debated extensively in professional journals, but empirical data concerning disclosure in dementia has not previously been systematically reviewed...
- Disclosing HIV status: are mothers telling their children?L Armistead
Department of Psychology, Georgia State University Atlanta, Georgia 30303, USA
J Pediatr Psychol 26:11-20. 2001..The purpose of this study is to provide information to HIV-affected families and the professionals working with them as they approach disclosure-related decisions...
- Formation of personal HIV disclosure policies among HIV-positive men who have sex with menScott Edward Rutledge
College of Health Professions and Social Work, Temple University, Philadelphia, Pennsylvania 19122 6091, USA
AIDS Patient Care STDS 23:531-43. 2009..The article concludes with implications for current initiatives for prevention with positives...
- Talking about the unthinkable: perinatal/neonatal communication issues and proceduresSusan Fox
Foundations of Doctoring Curriculum, University of Colorado School of Medicine, 141 Union Boulevard, Suite 300, Lakewood, CO 80228, USA
Clin Perinatol 32:157-70, vii-viii. 2005....
- The efficacy of audiotapes in promoting psychological well-being in cancer patients: a randomised, controlled trialP McHugh
Department of Psychiatry, Charing Cross and Westminster School, London, UK
Br J Cancer 71:388-92. 1995..Patient access to audiotapes of clinical interviews promotes factual retention but does not reliably reduce psychological distress and may be actively unhelpful in some subgroups of patients...
- Recipients' perspective on breaking bad news: how you put it really makes a differenceMarianne Schmid Mast
Department of Psychology, University of Zurich, Social and Health Psychology, Rämistrasse 66, CH 8001 Zurich, Switzerland
Patient Educ Couns 58:244-51. 2005..The goal of this study was to show that physician communication style of breaking bad news affects how the physician is perceived, how satisfied recipients of bad news are with the consultation, and how they feel after the consultation...
- A controlled trial of a short course to improve residents' communication with patients at the end of lifeStewart C Alexander
Durham VA Medical Center, North Carolina, USA
Acad Med 81:1008-12. 2006..The goal was to evaluate the effect of a short course to improve residents' communication skills delivering bad news and eliciting patients' preferences for end-of-life care...
- When the treatment goal is not cure: are patients informed adequately?Martin H N Tattersall
Department of Cancer Medicine, University of Sydney, NSW 2006, Australia
Support Care Cancer 10:314-21. 2002..0005), which persisted over a 2-week time span. Most patients were well informed, but important gaps remain, especially concerning information about prognosis and alternatives to cancer treatment...
- Breaking bad news about cancer: patients' preferences for communicationP A Parker
Department of Behavioral Science, The University of Texas M D Anderson Cancer Center, Houston, TX 77030, USA
J Clin Oncol 19:2049-56. 2001..The goal of this study was to assess patients' preferences regarding the way in which physicians deliver news about their cancer diagnosis and management...
- Hearing the bad news of a cancer diagnosis: the Australian melanoma patient's perspectiveP E Schofield
Medical Psychology Unit, Department of Cancer Medicine, Royal Prince Alfred Hospital, Sydney, Australia
Ann Oncol 12:365-71. 2001..The objective of this work is to investigate patient preferences for communication practices and to identify any disparities between these guidelines, patient preferences and patient recollections of hearing their diagnosis...
- The communication of neurological bad news to parentsMohammed Jan
Department of Neurosciences, King Faisal Specialist Hospital and Research Centre, Jeddah, Kingdom of Saudi Arabia
Can J Neurol Sci 29:78-82. 2002..However, the majority find the attitude of the news giver, combined with the clarity of the message and the news giver's knowledge to answer questions as the most important aspects of giving bad news...
- Women's HIV disclosure to immediate familyJulianne M Serovich
Department of Human Development and Family Science, The Ohio State University, Columbus, Ohio 43210, USA
AIDS Patient Care STDS 21:970-80. 2007..The results of this study are discussed in comparison to previous disclosure research, and clinical implications are provided...
- Disclosing a diagnosis of Alzheimer's disease: patient and family experiencesA P Smith
Department of Sociology, McGill University, Montreal QC, Canada
Can J Neurol Sci 28:S67-71. 2001....
- Do older adults presenting with memory complaints wish to be told if later diagnosed with Alzheimer's disease?Paul Elson
Cardiff and Vale NHS Trust, Cardiff, UK
Int J Geriatr Psychiatry 21:419-25. 2006..Recent studies have shown that patients with diagnosed dementia also favour being told. The present study sought the views of patients prior to diagnosis...
- Patients and families desire a patient to be told the diagnosis of dementia: a survey by questionnaire on a Dutch memory clinicPaul L J Dautzenberg
Department of Geriatrics, Jeroen Bosch Ziekenhuis, s Hertogenbosch, The Netherlands
Int J Geriatr Psychiatry 18:777-9. 2003..Controversy exists as to whether dementia patients should be told their diagnosis...
- Do patients participating in clinical trials want to know study results?Ann H Partridge
J Natl Cancer Inst 95:491-2. 2003
- Parents' disclosure of HIV to their childrenMartha B Lee
AIDS Institute Center for HIV Identification, Prevention, and Treatment Service University of California, Los Angeles 90024, USA
AIDS 16:2201-7. 2002..DESIGN A representative cohort of parents living with HIV (n = 301) and their adolescent children (n = 395) was recruited and assessed repeatedly over 5 years...
- Conflict of interest policies in science and medical journals: editorial practices and author disclosuresS Krimsky
Department of Urban and Environmental Police, Tufts University, Medford, MA 02155 5814, USA
Sci Eng Ethics 7:205-18. 2001....
- Disclosure of Alzheimer's disease. Senior citizens' opinionsMarie Andrée Ouimet
Department of Psychiatry, St Mary s Hospital Center, McGill Univesity, Montreal, Quebec
Can Fam Physician 50:1671-7. 2004....
- Reluctance to disclose difficult diagnoses: a narrative review comparing communication by psychiatrists and oncologistsAlex J Mitchell
Department of Cancer Studies and Molecular Medicine, Leicester Royal Infirmary, Osbourne Building, Leicester LE1 5WW, UK
Support Care Cancer 15:819-28. 2007..National guidance in most medical specialties supports the full and open disclosure of diagnoses to patients...
- Intervention for Developing HIV Disclosure Skills to Family MembersJULIANNE SEROVICH; Fiscal Year: 2008..The efficacy, strength, and utility of the intervention will be assessed at completion and 3 month follow-up. [unreadable] [unreadable] [unreadable]..
- Women's Disclosure of Their HIV StatusJULIANNE SEROVICH; Fiscal Year: 2005....
- End of Life Communication Skills for Oncology FellowsAnthony Back; Fiscal Year: 2005..This program will create a formal curriculum for communication skills that could be replicated in many institutions to improve the quality of oncologists-patient communication--and ultimately the quality of cancer care--nationwide. ..
- Using Team Simulation to Improve Error Disclosure to Patients and Safety CultureThomas Gallagher; Fiscal Year: 2007..Improving team communication and disclosure following harmful errors can enhance transparency and safety culture, increase patient satisfaction, and ultimately promote patient safety. [unreadable] [unreadable] [unreadable] [unreadable]..
- Exploring the Impact of Criminal HIV Disclosure LawCarol Galletly; Fiscal Year: 2006..The findings of this study will be disseminated in academic journals and through conference presentations, and will be summarized in a written report and presentation to policy makers in Michigan. ..
- HIV Treatment Adherence/Risk Reduction IntegratedSeth Kalichman; Fiscal Year: 2009..If shown effective, the intervention model will have implications for community and clinical services for people living with HIV-AIDS. ..
- HIV TREATMENT ADHERENCE FOR PERSONS WITH LOW-LITERACYSeth Kalichman; Fiscal Year: 2002..Results of the proposed research will provide critical information about improving HIV treatment adherence with low-literacy populations that is needed prior to conducting larger and more expensive clinical trials. ..
- Brief HIV Prevention Counseling in South AfricaSeth Kalichman; Fiscal Year: 2009..Results of this research will therefore test a clinic-based HIV prevention intervention model that is urgently needed in South Africa. ..
- Views of Privacy of Genetic InformationRobert Klitzman; Fiscal Year: 2005..The findings of this study can enhance further policy, professional and public education, and future research in this area. ..
- HIV Related Stigma among Service Providers in ChinaLi Li; Fiscal Year: 2005..These data will prepare the team to conduct a randomized controlled trial across different levels of health care providers in China. ..
- Intervention to Close Digital Divide in AIDS CareSeth Kalichman; Fiscal Year: 2004..If successful, the experimental intervention could be readily implemented as a community-based program by AIDS Service Organizations, health centers, and community-based Internet access providers. ..
- Views and Approaches Toward Research Integrity Among IRBsRobert Klitzman; Fiscal Year: 2007..We anticipate that the data from this study will serve as a significant foundation in assisting future research and the improvement of Rl through guidelines, education and other capacity building. [unreadable] [unreadable] [unreadable]..
- Social Reactions, PTSD & Drinking in Sex Assault VictimsSARAH ULLMAN; Fiscal Year: 2005....
- Alcohol and HIV Risk Reduction in South AfricaSeth Kalichman; Fiscal Year: 2006..Results of the proposed research will provide critical information about the role of alcohol in HIV transmission risks and will offer urgently needed strategies for improving HIV prevention interventions in South Africa. ..
- Gender Violence and HIV Risk Reduction in South AfricaLeickness Simbayi; Fiscal Year: 2007..unreadable] [unreadable]..
- TEA for Families & Children: Preparation for a Randomized TrialLi Li; Fiscal Year: 2010..The goal of this study is to develop and pilot an intervention for PLH and their family members in order to improve the long term health, mental health and behavioral adjustment of the children in poor, rural areas in China. ..
- Family-to-Family: Psychoeducation to Improve Children's Outcomes in HIV+ FamiliesLi Li; Fiscal Year: 2009..HIV+ parent's and family caregivers'health mental health, parenting skills, and family bonds are intermediate outcomes. ..
- BRIEF HIV RISK REDUCTION COUNSELINGSeth Kalichman; Fiscal Year: 2002..Results of the proposed study will guide the allocation of HIV prevention resources in establishing brief and effective HIV risk reduction counseling services for populations vulnerable to HIV infection. ..
- The Influence of Companions and Socio-Demographic Characteristics on Patients' InSusan Eggly; Fiscal Year: 2008..unreadable] [unreadable] [unreadable]..
- Partner-Assisted Emotional Disclosure for GI CancerLaura Porter; Fiscal Year: 2006..If successful, it may enlarge our repertoire of methods for effectively increasing social support and enhancing the well being of both cancer patients and their partners. ..
- Ethics and Clinical Trials in Advanced Cancer CareChristopher Daugherty; Fiscal Year: 2009....
- MSMW: Pathways, Motives and BehaviorsKarolynn Siegel; Fiscal Year: 2009..The study's finding will offer novel and important information about a high risk subpopulation of MSMW, and will yield important information that can guide the development of preventive interventions. ..
- Effects of Communicating RPFNA Results on Decisions about Tamoxifen UseIsaac Lipkus; Fiscal Year: 2008..unreadable] [unreadable] [unreadable]..
- Potential for HIV transmission in relationships of drug-using women in RussiaLinda Niccolai; Fiscal Year: 2008..unreadable] [unreadable] [unreadable]..
- Contextual Influences on Sexual Risk among Latino MSMMARIA ZEA; Fiscal Year: 2007..The triangulation of findings will enable us to interpret results and further refine the theoretical model of contextual factors of sexual risk among these three groups of Latino MSM. [unreadable] [unreadable] [unreadable]..
- Maternal HIV: Intervention to Assist Disclosure to ChildrenDebra Murphy; Fiscal Year: 2009..Few interventions, other than for prevention or medication adherence, are available for women living with HIV;this study will evaluate an intervention that will help HIV-positive mothers deal with a serious family issue. ..
- Influence of Uncertainty and Communication on AdjustmentPATRICIA PARKER; Fiscal Year: 2007..The proposed K07 Research Award would allow Dr. Parker to transition into an independent researcher in cancer prevention with a focus on psycho-oncology and physician-patient communication. ..
- Increasing Attention to Smoking Risk MessagesIsaac Lipkus; Fiscal Year: 2008..g., quit attempts, amount smoked, and actual cessation). [unreadable] [unreadable] [unreadable]..
- Providers' Views of the Roles of Medical InterpretersI LING HSIEH; Fiscal Year: 2007..unreadable] [unreadable] [unreadable]..
- RCT to evaluate guidelines for acute rhinosinusitisJane Garbutt; Fiscal Year: 2008..In addition, knowledge gained from this research could be used to decrease the inappropriate use of antibiotics. [unreadable] [unreadable]..
- SMS Turkey: Harnessing the power of TXT messaging to promote smoking cessationMichele Ybarra; Fiscal Year: 2010..The high reach of cell phones allows us to potentially reach smokers who would otherwise not utilize traditional smoking cessation services, representing the possibility of a large public health impact. ..
- SYMPTOMS AND ILLNESS BEHAVIORS OF HIV-INFECTED ADULTSKarolynn Siegel; Fiscal Year: 2002..All of which are important factors in adapting to life with what may become a chronic illness as more people live longer with the infection and do so within the context of a rapidly changing health care system. ..
- Affecting Perceived Risks and Ambivalence About SmokingIsaac Lipkus; Fiscal Year: 2004....
- DISCLOSURE OF HIV STATUS AMONG LATINO GAY MENMARIA ZEA; Fiscal Year: 2002..The investigators will test whether the disclosure intervention promotes psychological well-being, reduces sexual risk behaviors, and promotes adherence to HIVIAIDS care. ..
- MEDICATION ADHERENCE INTERVENTION FOR HIV+ PERSONSDebra Murphy; Fiscal Year: 2002....
- SELF-CARE IN SYMPTOM MANAGEMENT AT THE END OF LIFEKarolynn Siegel; Fiscal Year: 2002..Specifically we will investigate: 1) the symptom appraisal process; 2) coping responses to common symptoms: 3) the kinds of self-care activities employed; 4) emotional responses to common symptoms. ..
- PATIENT PREFERENCES FOR DISCLOSURE: A NATIONAL SURVEYWendy Levinson; Fiscal Year: 2002..abstract_text> ..
- PATIENT-CENTERED CARE AND HEALTH CARE COSTSRonald Epstein; Fiscal Year: 2002..abstract_text> ..
- Emotion, Reactivity, and Memory in Early ChildhoodJodi Quas; Fiscal Year: 2002..This knowledge will benefit educators, clinicians, legal professionals, and others charged with the responsibility of obtaining accurate and complete accounts from children across a variety of contexts. ..
- INFORMED DECISION MAKING IN OLDER PATIENTS AND SURGEONSWendy Levinson; Fiscal Year: 2004..The study also forms the scientific foundation of a major education initiative by the AAOS designed to improve the communication skills of surgeons and ultimately the care of patients. ..
- Communication Between Patients and their ProvidersPATRICIA PARKER; Fiscal Year: 2005....
- HIV-Infected IDU Living with HCV CoinfectionKarolynn Siegel; Fiscal Year: 2005..abstract_text> ..
- Symptom Interpretation & Oral Health among Harlem AdultsKarolynn Siegel; Fiscal Year: 2005..In depth face-to-face, focused interviews will be conducted with 120 adults. As in several of the principal Investigator's previous federally funded investigations, qualitative research methods will be employed. ..
- Improving Palliative Care in Chronic Critical IllnessJudith Nelson; Fiscal Year: 2008..The environment is a renowned center for research in geriatric palliative care and chronic critical illness and for clinical research training; the institution offers enthusiastic support. [unreadable] [unreadable]..
- Depression in OBGYN: Epidemiology/Services InterventionsJennifer Melville; Fiscal Year: 2008..The award will provide crucial support for the applicant's ongoing development as an investigator in the area of depression in women. ..
- Male Circumcision Trial for HIV Prevention, Rakai-UgandaRonald Gray; Fiscal Year: 2006..Control arm men will be offered circumcision as a service in Years 4-5, contingent on DSMB approval. ..
- Evaluating Child Safety Product Dissemination and Educa*Andrea Gielen; Fiscal Year: 2005..abstract not provided ..
- Sexual Revictimization: Affect Regulation as a Mediator (AREA)HOLLY ORCUTT; Fiscal Year: 2006..unreadable] [unreadable] [unreadable]..
- Race,Treatment and Endometrial Cancer SurvivalKatrina Armstrong; Fiscal Year: 2005..In addition, within each category, we will investigate differences related to primary surgery and adjuvant radiation therapy. ..
- Adult Scaffolding of Children's Cognitive Development and Event RecallLIVIA GILSTRAP; Fiscal Year: 2007..unreadable] [unreadable] [unreadable]..
- Health Literacy and Child Prevention InjuryAndrea Gielen; Fiscal Year: 2006..unreadable] [unreadable] [unreadable]..
- A STAGE MATCHED ALCOHOL INTERVENTION FOR MANAGED CARERobert Laforge; Fiscal Year: 2004..This unique recruitment and intervention strategy requires few resources from health care providers and is likely to be highly disseminable to other managed care organizations. ..
- RCT of Russian IDU Peer Network HIV Prevent InterventionCarl Latkin; Fiscal Year: 2007..abstract_text> ..
- Social Integration for Psychiatrically Disabled AdultsNorma Ware; Fiscal Year: 2005..abstract_text> ..
- ALPHA-2 ADRENERGIC CONTROL OF COLONIC FUNCTION IN IBSMichael Camilleri; Fiscal Year: 2007..abstract_text> ..
- COST-EFFECTIVENESS OF HIV PRIMARY PREVENTIONSteven Pinkerton; Fiscal Year: 2001..Upon completion of the analyses we will summarize and widely disseminate the results. ..
- GENOTOXICITY IN CYP1A2 DEFICIENT TRANSGENIC MICEDaniel Nebert; Fiscal Year: 2002..S. population. ..
- A Longitudinal Study of Health Risk Behavior in YouthDONNA REW; Fiscal Year: 2006..abstract_text> ..
- Children's Conceptions of Lying: East-West ComparisonsGAIL HEYMAN; Fiscal Year: 2009..In the legal domain, our findings can assist legal practitioners in developing culturally sensitive procedures to assess child witnesses'competence and credibility in courts of law. ..
- The ethics of consent for the public release of potentially identifiable DNA dataAmy McGuire; Fiscal Year: 2009..Moreover, it will increase our understanding of participants'judgments and attitudes toward data sharing, which will improve the overall conduct of biomedical research, build public trust, and foster research participation. ..
- Efficacy of HIV Posttest Support for ANC in South AfricaSuzanne Maman; Fiscal Year: 2010....
- THE DEVELOPMENT OF ABILITY CONCEPTIONSGAIL HEYMAN; Fiscal Year: 2002..Together, these studies should provide a nuanced picture of the way in which children of different ages reason about ability, the factors affecting their reasoning, and the motivational consequences. ..
- Improving Mental Health Providers' CommunicationKate Sweeny; Fiscal Year: 2007....
- HIV counseling & testing among pregnant women, TanzaniaAmy Medley; Fiscal Year: 2007..Information from this study will help elucidate important barriers to the acceptance of VCT and allow the design of appropriate interventions. ..
- PEER MENTORS FOR ADOLESCENTS IN HIV-AFFECTED FAMILIESStephen Magura; Fiscal Year: 2003..Primary outcomes will continue to be defined as in specific aim #1. ..
- Stigma & Behavioral Health in Urban Employers from China & USPatrick Corrigan; Fiscal Year: 2007..Data from this study will be especially important for the development of future stigma-change programs. ..
- INNOVATIVE JOB PLACEMENT MODEL FOR METHADONE PATIENTSStephen Magura; Fiscal Year: 2004..4) To conduct benefit-cost and cost-effectiveness analyses of the modified IPS vocational rehabilitation program. ..
- Safety of Nicotine Reduction StrategyNeal Benowitz; Fiscal Year: 2009..The proposed research is needed to guide governmental regulators as to how best to regulate nicotine in cigarettes and is an essential first step in examining the feasibility of a national regulation program. ..
- Epilepsy-associated stigma in ZambiaGretchen Birbeck; Fiscal Year: 2005..This contextual framework will facilitate the development of effective, community-based interventions aimed at improving the lives of people with epilepsy in the region. ..
- HIV Stigma in a population of adults age 50 and overCHARLES EMLET; Fiscal Year: 2003..It will also provide valuable qualitative information on how HIV stigma scales may be improved upon to better capture the experiences of older adults. ..
- Quality of Communication after Newborn Genetic ScreeningMichael Farrell; Fiscal Year: 2007..Progress in this area will generalize to other areas of communication and help streamline the implementation of new genetic testing technology. ..