disclosure

Summary

Summary: Revealing of information, by oral or written communication.

Top Publications

  1. pmc Cancer patient disclosure and patient-doctor communication of complementary and alternative medicine use: a systematic review
    Esther L Davis
    Centre for Medical Psychology and Evidence Based Decision Making, University of Sydney, Sydney, New South Wales, Australia
    Oncologist 17:1475-81. 2012
  2. pmc Factors associated with HIV/AIDS diagnostic disclosure to HIV infected children receiving HAART: a multi-center study in Addis Ababa, Ethiopia
    Sibhatu Biadgilign
    Department of Epidemiology and Biostatistics, College of Public Health and Medical Science, Jimma University, Jimma, Ethiopia
    PLoS ONE 6:e17572. 2011
  3. ncbi Rate, pattern and barriers of HIV serostatus disclosure in a resource-limited setting in the Niger delta of Nigeria
    C I Akani
    Department of Obstetrics and Gynecology, University of Port Harcourt Teaching Hospital, P M B 6173 Port Harcourt, Nigeria
    Trop Doct 36:87-9. 2006
  4. pmc Excellent adherence to antiretrovirals in HIV+ Zambian children is compromised by disrupted routine, HIV nondisclosure, and paradoxical income effects
    Jessica E Haberer
    Massachusetts General Hospital Center for Global Health, Boston, Massachusetts, United States of America
    PLoS ONE 6:e18505. 2011
  5. ncbi How often do BRCA mutation carriers tell their young children of the family's risk for cancer? A study of parental disclosure of BRCA mutations to minors and young adults
    Angela R Bradbury
    Department of Medicine, Section of Hematology Oncology, University of Chicago, Chicago, IL, USA
    J Clin Oncol 25:3705-11. 2007
  6. ncbi Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy
    Annelien L Bredenoord
    Department of Medical Ethics, University Medical Center Utrecht, Division Julius Center, Utrecht, The Netherlands
    Hum Mutat 32:861-7. 2011
  7. ncbi Accuracy of conflict-of-interest disclosures reported by physicians
    Kanu Okike
    Department of Orthopedic Surgery, Brigham and Women s Hospital, Boston, MA, USA
    N Engl J Med 361:1466-74. 2009
  8. pmc Challenges of mediated communication, disclosure and patient autonomy in cross-cultural cancer care
    J Kai
    Division of Primary Care, University of Nottingham, Medical School, Queens Medical Centre, Nottingham NG7 2UH, UK
    Br J Cancer 105:918-24. 2011
  9. ncbi European Medical Writers Association (EMWA) guidelines on the role of medical writers in developing peer-reviewed publications
    Adam Jacobs
    Dianthus Medical Limited, London, UK
    Curr Med Res Opin 21:317-22. 2005
  10. ncbi Two decades after legislation on identifiable donors in Sweden: are recipient couples ready to be open about using gamete donation?
    S Isaksson
    Department of Public Health and Caring Sciences, Uppsala University, S 751 22 Uppsala, Sweden
    Hum Reprod 26:853-60. 2011

Research Grants

Detail Information

Publications359 found, 100 shown here

  1. pmc Cancer patient disclosure and patient-doctor communication of complementary and alternative medicine use: a systematic review
    Esther L Davis
    Centre for Medical Psychology and Evidence Based Decision Making, University of Sydney, Sydney, New South Wales, Australia
    Oncologist 17:1475-81. 2012
    ..To explore the nondisclosure of complementary and alternative medicine (CAM) use among cancer patients, including reasons for and outcomes from nondisclosure of CAM use, within the context of patient-doctor communication...
  2. pmc Factors associated with HIV/AIDS diagnostic disclosure to HIV infected children receiving HAART: a multi-center study in Addis Ababa, Ethiopia
    Sibhatu Biadgilign
    Department of Epidemiology and Biostatistics, College of Public Health and Medical Science, Jimma University, Jimma, Ethiopia
    PLoS ONE 6:e17572. 2011
    Diagnostic disclosure of HIV/AIDS to a child is becoming an increasingly common issue in clinical practice. Nevertheless, some parents and health care professionals are reluctant to inform children about their HIV infection status...
  3. ncbi Rate, pattern and barriers of HIV serostatus disclosure in a resource-limited setting in the Niger delta of Nigeria
    C I Akani
    Department of Obstetrics and Gynecology, University of Port Harcourt Teaching Hospital, P M B 6173 Port Harcourt, Nigeria
    Trop Doct 36:87-9. 2006
    The disclosure of HIV serostatus is a difficult emotional task creating opportunity for both support and rejection. In this study, we evaluated the rate, patterns and barriers to HIV serostatus disclosure...
  4. pmc Excellent adherence to antiretrovirals in HIV+ Zambian children is compromised by disrupted routine, HIV nondisclosure, and paradoxical income effects
    Jessica E Haberer
    Massachusetts General Hospital Center for Global Health, Boston, Massachusetts, United States of America
    PLoS ONE 6:e18505. 2011
    ..A better understanding of pediatric antiretroviral therapy (ART) adherence in sub-Saharan Africa is necessary to develop interventions to sustain high levels of adherence...
  5. ncbi How often do BRCA mutation carriers tell their young children of the family's risk for cancer? A study of parental disclosure of BRCA mutations to minors and young adults
    Angela R Bradbury
    Department of Medicine, Section of Hematology Oncology, University of Chicago, Chicago, IL, USA
    J Clin Oncol 25:3705-11. 2007
    ..Yet, many BRCA mutation carriers discuss their results with their children. This study describes the prevalence and experiences of parental communication of BRCA results to children under the age of 25 years old...
  6. ncbi Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy
    Annelien L Bredenoord
    Department of Medical Ethics, University Medical Center Utrecht, Division Julius Center, Utrecht, The Netherlands
    Hum Mutat 32:861-7. 2011
    ..As we conclude that valid reasons exist to adopt a duty to return genetic research results, a qualified disclosure policy is proposed...
  7. ncbi Accuracy of conflict-of-interest disclosures reported by physicians
    Kanu Okike
    Department of Orthopedic Surgery, Brigham and Women s Hospital, Boston, MA, USA
    N Engl J Med 361:1466-74. 2009
    ..The recent public reporting of payments made to physicians by manufacturers of orthopedic devices provides an opportunity to assess the accuracy of physicians' conflict-of-interest disclosures...
  8. pmc Challenges of mediated communication, disclosure and patient autonomy in cross-cultural cancer care
    J Kai
    Division of Primary Care, University of Nottingham, Medical School, Queens Medical Centre, Nottingham NG7 2UH, UK
    Br J Cancer 105:918-24. 2011
    ..Evidence concerning the influence of ethnic diversity on clinical encounters in cancer care is sparse. We explored health providers' experiences in this context...
  9. ncbi European Medical Writers Association (EMWA) guidelines on the role of medical writers in developing peer-reviewed publications
    Adam Jacobs
    Dianthus Medical Limited, London, UK
    Curr Med Res Opin 21:317-22. 2005
    ..Although this practice can improve both the quality and speed of publications, it has attracted controversy as a result of concerns about the inappropriate influence of pharmaceutical companies...
  10. ncbi Two decades after legislation on identifiable donors in Sweden: are recipient couples ready to be open about using gamete donation?
    S Isaksson
    Department of Public Health and Caring Sciences, Uppsala University, S 751 22 Uppsala, Sweden
    Hum Reprod 26:853-60. 2011
    ..The aim of the present study was to investigate recipient couples' attitudes and behaviour regarding disclosure to offspring and others, attitudes towards genetic parenthood and perceptions of information regarding ..
  11. pmc Systematic review of beliefs, behaviours and influencing factors associated with disclosure of a mental health problem in the workplace
    Elaine Brohan
    Department, Institute of Psychiatry, King s College London, UK
    BMC Psychiatry 12:11. 2012
    ..This paper reviews evidence on: 1) employment-related disclosure beliefs and behaviours of people with a mental health problem; 2) factors associated with the disclosure of a ..
  12. pmc Disclosure of incidental findings from next-generation sequencing in pediatric genomic research
    Ruqayyah Abdul-Karim
    Department of Bioethics, Clinical Center, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Pediatrics 131:564-71. 2013
    ..We hope this will be a useful source of guidance for investigators, institutional review boards, and bioethicists that anticipates the complicated ethical issues raised by advances in genomic technology...
  13. pmc Disclosure of HIV status to children in resource-limited settings: a systematic review
    Rachel C Vreeman
    Children s Health Services Research, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA
    J Int AIDS Soc 16:18466. 2013
    Informing children of their own HIV status is an important aspect of long-term disease management, yet there is little evidence of how and when this type of disclosure takes place in resource-limited settings and its impact.
  14. pmc Prevalence of financial conflicts of interest among panel members producing clinical practice guidelines in Canada and United States: cross sectional study
    Jennifer Neuman
    Department of Preventive Medicine, Mount Sinai School of Medicine, One Gustave Levy Place, Box 1057, New York, NY 10029, USA
    BMJ 343:d5621. 2011
    ..To determine the prevalence of financial conflicts of interest among members of panels producing clinical practice guidelines on screening, treatment, or both for hyperlipidaemia or diabetes...
  15. ncbi A comparison of journal instructions regarding institutional review board approval and conflict-of-interest disclosure between 1995 and 2005
    A Rowan-Legg
    Dr Anne Rowan Legg, Department of Pediatrics, IWK Health Centre, 5850 University Avenue, PO Box 9700, Halifax, Canada B3K6R8
    J Med Ethics 35:74-8. 2009
    To compare 2005 and 1995 ethics guidelines from journal editors to authors regarding requirements for institutional review board (IRB) approval and conflict-of-interest (COI) disclosure.
  16. ncbi How the structure of contribution disclosure statements affects validity of authorship: a randomized study in a general medical journal
    Ana Marusic
    Croatian Medical Journal, Zagreb University School of Medicine, Zagreb, Croatia
    Curr Med Res Opin 22:1035-44. 2006
    Many biomedical journals have introduced disclosure of research contribution in journal articles as a way to limit irresponsible authorship...
  17. pmc Quantification of authors' contributions and eligibility for authorship: randomized study in a general medical journal
    Ana Ivanis
    Croatian Medical Journal, Zagreb University School of Medicine, Zagreb, Croatia
    J Gen Intern Med 23:1303-10. 2008
    ..Assessment of authorship contribution is often based on unreliable questionnaires...
  18. pmc Communicating the results of clinical research to participants: attitudes, practices, and future directions
    David I Shalowitz
    Bioethics Program, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
    PLoS Med 5:e91. 2008
  19. ncbi 'What if they ask how I got it?' Dilemmas of disclosing parental HIV status and testing children for HIV in Uganda
    J Rwemisisi
    MRC UVRI Uganda Research Unit on AIDS, Entebbe, Uganda
    Health Policy Plan 23:36-42. 2008
    ..We conducted a qualitative study in 2001 and 2005 to assess parent attitudes and current counselling policy and practice regarding child testing and parental disclosure in Uganda prior to the roll-out of antiretroviral therapy.
  20. pmc Initial outcomes of provider-initiated routine HIV testing and counseling during outpatient care at a rural Ugandan hospital: risky sexual behavior, partner HIV testing, disclosure, and HIV care seeking
    Susan M Kiene
    Departments of Medicine and Community Health, The Warren Alpert Medical School of Brown University, Providence, Rhode Island, USA
    AIDS Patient Care STDS 24:117-26. 2010
    ..routine HIV testing at a rural Ugandan hospital regarding partner HIV testing, sexual risk behavior, disclosure, and HIV care seeking...
  21. ncbi Experimental disclosure and its moderators: a meta-analysis
    Joanne Frattaroli
    Department of Psychology, University of California, Riverside, CA, USA
    Psychol Bull 132:823-65. 2006
    Disclosing information, thoughts, and feelings about personal and meaningful topics (experimental disclosure) is purported to have various health and psychological consequences (e.g., J. W. Pennebaker, 1993)...
  22. ncbi Voluntary HIV testing, disclosure, and stigma among injection drug users in Bali, Indonesia
    Kathleen Ford
    Department of Epidemiology, School of Public Health, University of Michigan, Ann Arbor, 48104 3028, USA
    AIDS Educ Prev 16:487-98. 2004
    ..There were serious concerns about others being ashamed of them and the impact of HIV on relationships with spouses and sexual partners and on employment...
  23. ncbi Disclosure model for pediatric patients living with HIV in Puerto Rico: design, implementation, and evaluation
    Ileana Blasini
    Children s Hospital, University of Puerto Rico Medical Sciences Campus, San Juan, Puerto Rico
    J Dev Behav Pediatr 25:181-9. 2004
    The American Academy of Pediatrics strongly encourages the disclosure of HIV status to school-age children and further recommends that adolescents know their HIV status. Limited information exists on the impact of disclosure...
  24. pmc Association between industry affiliation and position on cardiovascular risk with rosiglitazone: cross sectional systematic review
    Amy T Wang
    Department of Internal Medicine, Mayo Clinic, Rochester, MN, USA
    BMJ 340:c1344. 2010
    ..To explore a possible link between authors' financial conflicts of interest and their position on the association of rosiglitazone with increased risk of myocardial infarction in patients with diabetes...
  25. ncbi Guest authorship and ghostwriting in publications related to rofecoxib: a case study of industry documents from rofecoxib litigation
    Joseph S Ross
    Department of Geriatrics and Adult Development, Mount Sinai School of Medicine, New York, New York 10029, USA
    JAMA 299:1800-12. 2008
    ..Recent litigation related to rofecoxib provided a unique opportunity to examine guest authorship and ghostwriting, practices that have been suspected in biomedical publication but for which there is little documentation...
  26. ncbi Social support and disclosure as predictors of mental health in HIV-positive youth
    Phebe K Lam
    Department of Pediatrics, Wayne State University, Pediatric Prevention Research Center, UHC 6D, 4201 St Antoine, Detroit, MI 48201, USA
    AIDS Patient Care STDS 21:20-9. 2007
    ..mental health symptoms in a sample of 66 HIV-positive youth (ages 16-25) and to evaluate social support, disclosure, and physical status as predictors of symptoms. Data were collected from January 2002 to May 2003...
  27. ncbi The right to remain silent: a qualitative study of the medical and social ramifications of pregnancy disclosure for Gambian women
    E Stokes
    Academic Unit of Obstetrics and Gynaecology, University of Manchester, Manchester, UK
    BJOG 115:1641-7; discussion 1647. 2008
    ..We explored these factors to inform and improve the process by which health workers provide care and treatment to pregnant women...
  28. ncbi Quality of informed consent in cancer clinical trials: a cross-sectional survey
    S Joffe
    Department of Paediatric Oncology, Dana-Farber Cancer Institute, Boston, MA 02115, USA
    Lancet 358:1772-7. 2001
    ..Efforts to educate providers and participants about the underlying goals of clinical trials are needed...
  29. ncbi Conflict of interest guidelines for clinical guidelines
    Michael J Williams
    School of Public Health and Preventive Medicine, Monash University, Melbourne, Vic
    Med J Aust 195:442-5. 2011
    ..Comprehensive disclosure of conflicts is needed to safeguard the integrity of clinical guidelines and the medical profession...
  30. pmc Researcher perspectives on disclosure of incidental findings in genetic research
    Meredith C Meacham
    University of Washington s Institute of Public Health Genetics Master of Public Health program, Seattle, WA 98195 7120, USA
    J Empir Res Hum Res Ethics 5:31-41. 2010
    ..with 44 researchers who were asked to describe how they would respond to a hypothetical vignette regarding the disclosure of findings with unanticipated clinical significance to research study participants...
  31. ncbi Use of the internet for information and support: disclosure among persons with breast and prostate cancer
    Jason E Owen
    Division of Cancer Prevention and Control Research, School of Public Health and Jonsson Comprehensive Cancer Center, University of California, Los Angeles, California 90095 6900, USA
    J Behav Med 27:491-505. 2004
    ..were more likely to submit multiple messages to the list and made greater use of words related to emotional disclosure and cognitive processing compared with prostate cancer patients...
  32. ncbi The vexing problem of guidelines and conflict of interest: a potential solution
    Gordon Guyatt
    McMaster University Health Sciences Centre, Henderson General Hospital, Hamilton, Ontario, Canada
    Ann Intern Med 152:738-41. 2010
    ..These strategies may help to achieve the benefits of expert input without conflicts of interest influencing recommendations...
  33. ncbi Communication of results and disclosure of incidental findings in longitudinal paediatric research
    Velizara Anastasova
    INSERM, UMR1027, Epidemiology and analyses in Public Health, Toulouse, France
    Pediatr Allergy Immunol 24:389-94. 2013
    ..This work analyses existing frameworks for managing such issues and proposes a policy grounded in the experience acquired in the FP7 EU project MeDALL-Mechanisms of the Development of ALLergy...
  34. pmc Disclosing conflicts of interest in German publications concerning health services research
    Nils Schneider
    Department of Epidemiology, Social Medicine and Health System Research, Hannover Medical School, Hannover, Germany
    BMC Health Serv Res 7:78. 2007
    ..The objective of this work is to examine the disclosure practice of financial and non-financial conflicts of interest in German language publications concerning health ..
  35. ncbi Reporting of conflicts of interest in meta-analyses of trials of pharmacological treatments
    Michelle Roseman
    Department of Psychiatry, McGill University, Montreal, Quebec, Canada
    JAMA 305:1008-17. 2011
    b>Disclosure of conflicts of interest (COIs) from pharmaceutical industry study funding and author-industry financial relationships is sometimes recommended for randomized controlled trials (RCTs) published in biomedical journals...
  36. ncbi Level of evidence and conflict of interest disclosure associated with higher citation rates in orthopedics
    Kanu Okike
    Department of Orthopedic Surgery, Brigham and Women s Hospital, Boston, MA, USA
    J Clin Epidemiol 64:331-8. 2011
    ..To identify the scientific and nonscientific factors associated with rates of citation in the orthopedic literature...
  37. pmc Suffering in silence: reasons for not disclosing depression in primary care
    Robert A Bell
    Departments of Communication and Public Health Sciences, University of California, Davis, Davis, California 95616, USA
    Ann Fam Med 9:439-46. 2011
    ..Depression symptoms are underreported by patients. We thus assessed individuals' reasons for not disclosing depression to their primary care physician...
  38. ncbi Improving quality through public disclosure of performance information
    David Lansky
    Foundation for Accountability, Portland, Oregon, USA
    Health Aff (Millwood) 21:52-62. 2002
    ..legislative requirements that any new expenditure of federal funds for health benefits be accompanied by public disclosure of performance information regarding quality, effectiveness, and safety...
  39. ncbi The impact of disclosing financial ties in research and clinical care: a systematic review
    Adam Licurse
    Section of General Internal Medicine, Yale School of Medicine, PO Box 208025, New Haven, CT 06520 8025, USA
    Arch Intern Med 170:675-82. 2010
    Despite increased demand for disclosure of physician and researcher financial ties (FTs) to industry, little is known about patients', research participants', or journal readers' attitudes toward FTs.
  40. ncbi Managing conflicts of interest in the conduct of clinical trials
    Karine Morin
    Council on Ethical and Judicial Affairs, Ethics Standards Group, American Medical Association, 515 N State St, Chicago, IL 60610, USA
    JAMA 287:78-84. 2002
    ..to gain from enrolling their own patients as subjects in clinical trials and examines various instances in which disclosure of information regarding funding and compensation may serve to minimize such conflicts...
  41. ncbi Patterns of diagnosis disclosure and its correlates in HIV-Infected North Indian children
    Malobika Bhattacharya
    Department of Pediatrics, Maulana Azad Medical College and Lok Nayak Hospital, New Delhi, India
    J Trop Pediatr 57:405-11. 2011
    This facility-based cross-sectional study was conducted to determine the patterns of disclosure of HIV positive serostatus among 145 Indian children aged >5 years. Only 60 (41.4%) children were aware of their HIV-positive status...
  42. pmc Partisan perspectives in the medical literature: a study of high frequency editorialists favoring hormone replacement therapy
    Athina Tatsioni
    Clinical Trials and Evidence Based Medicine Unit, Department of Hygiene and Epidemiology, University of Ioannina School of Medicine, Ioannina 45110, Greece
    J Gen Intern Med 25:914-9. 2010
    ..Unfavorable results of major studies have led to a large shrinkage of the market for hormone replacement therapy (HRT) in the last 6 years. Some scientists continue to strongly support the use of HRT...
  43. ncbi Complementary and alternative medicine: use and disclosure in radiation oncology community practice
    Sarah M Rausch
    Integrative Medicine, H Lee Moffitt Cancer Center, Tampa, FL, USA
    Support Care Cancer 19:521-9. 2011
    ..were to evaluate the frequency of complementary and alternative medicine (CAM) use among radiation oncology patients, the coping strategies that influenced this use, and the rates of disclosure of CAM use to their healthcare providers.
  44. pmc Infection disclosure in the injecting dyads of Hungarian and Lithuanian injecting drug users who self-reported being infected with hepatitis C virus or human immunodeficiency virus
    V Anna Gyarmathy
    European Monitoring Centre for Drugs and Drug Addiction, Lisbon, Portugal
    Scand J Infect Dis 43:32-42. 2011
    The aim of this study was to assess the prevalence and correlates of disclosure to network members of being hepatitis C virus (HCV)- or human immunodeficiency virus (HIV)-infected among injecting dyads of infected injection drug users (..
  45. ncbi An investigation of the disclosure process and support needs of BRCA1 and BRCA2 carriers
    Jordana Segal
    Department of Psychiatry, Mount Sinai Hospital, Toronto, Ontario, Canada
    Am J Med Genet A 125:267-72. 2004
    b>Disclosure of the results of a positive genetic mutation to offspring can be challenging. The purpose of this study was to investigate the content and process of disclosure from BRCA1/2 carriers to their offspring...
  46. pmc Disclosure of investigators' recruitment performance in multicenter clinical trials: a further step for research transparency
    Rafael Dal-Ré
    Early Detection Research Program, Alzheimer s Disease, Pasqual Maragall Foundation, Barcelona, Spain
    PLoS Med 8:e1001149. 2011
    ..Rafael Dal-Ré and colleagues argue that the recruitment targets and performance of all site investigators in multi-centre clinical trials should be disclosed in trial registration sites before a trial starts, and when it ends...
  47. pmc The inadvertent disclosure of personal health information through peer-to-peer file sharing programs
    Khaled El Emam
    Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
    J Am Med Inform Assoc 17:148-58. 2010
    There has been a consistent concern about the inadvertent disclosure of personal information through peer-to-peer file sharing applications, such as Limewire and Morpheus...
  48. ncbi Quantifying the variability of financial disclosure information reported by authors presenting at annual spine conferences
    Brian L Ju
    Department of Orthopaedics and Rehabilitation, Yale University School of Medicine, New Haven, CT 06520 8071, USA
    Spine J 11:1-8. 2011
    ..To address this issue, various disclosure policies have been adopted in an attempt to increase the transparency of this process...
  49. ncbi Disclosure of patient safety incidents: a comprehensive review
    Elaine O'Connor
    Head of Safety and Learning, Health Information and Quality Authority, George s Court, George s Lane, Smithfield, Dublin 7, Ireland
    Int J Qual Health Care 22:371-9. 2010
    ..We reviewed the literature on disclosure across individual and international boundaries, including patients', healthcare professionals' and other ..
  50. ncbi Choosing your words carefully: how physicians would disclose harmful medical errors to patients
    Thomas H Gallagher
    Departments of Medicine and Medical History and Ethics, University of Washington School of Medicine, 4311 11th Avenue NW, Seattle, WA 98105, USA
    Arch Intern Med 166:1585-93. 2006
    ..Little is known about how physicians approach disclosure. The objective of the present study was to describe how physicians disclose errors to patients.
  51. pmc Environmental health research and the observer's dilemma
    David B Resnik
    National Institute of Environmental Health Sciences, National Institutes of Health, Department of Health and Human Services, Research Triangle Park, North Carolina 27709, USA
    Environ Health Perspect 117:1191-4. 2009
    ..Environmental health researchers frequently study people in occupational, educational, recreational, or domestic settings who are exposed to hazardous agents...
  52. pmc Conflicts of interest at medical journals: the influence of industry-supported randomised trials on journal impact factors and revenue - cohort study
    Andreas Lundh
    The Nordic Cochrane Centre, Rigshospitalet, Copenhagen, Denmark
    PLoS Med 7:e1000354. 2010
    ..We investigated industry-supported trials' influence on journal impact factors and revenue...
  53. ncbi Disclosure of individual genetic data to research participants: the debate reconsidered
    Annelien L Bredenoord
    University Medical Center Utrecht, Julius Center for Health Sciences and Primary Care, Department of Medical Ethics, Stratenum 6 131, PO Box 85500, 3508 GA Utrecht, The Netherlands
    Trends Genet 27:41-7. 2011
    ..In this debate two positions can be broadly discerned: a restrictive disclosure policy ('no feedback except life-saving data') and an intermediate policy of qualified disclosure ('feedback if ..
  54. ncbi The ADVANTAGE seeding trial: a review of internal documents
    Kevin P Hill
    McLean Hospital, 115 Mill Street, Belmont, MA 02478, USA
    Ann Intern Med 149:251-8. 2008
    ..Seeding trials, clinical studies conducted by pharmaceutical companies that are designed to seem as if they answer a scientific question but primarily fulfill marketing objectives, have not been described in detail...
  55. pmc Herbal and dietary supplement disclosure to health care providers by individuals with chronic conditions
    Darshan H Mehta
    Benson Henry Institute for Mind Body Medicine, Harvard Medical School, Massachusetts General Hospital, Boston, MA 02114, USA
    J Altern Complement Med 14:1263-9. 2008
    Very little is known about herbal and dietary supplement disclosure in adults with chronic medical conditions, especially on a national level.
  56. pmc Consistency of financial interest disclosures in the biomedical literature: the case of coronary stents
    Kevin P Weinfurt
    Duke Clinical Research Institute, Duke Translational Medicine Institute, Duke University School of Medicine, Durham, North Carolina, United States of America
    PLoS ONE 3:e2128. 2008
    b>Disclosure of authors' financial interests has been proposed as a strategy for protecting the integrity of the biomedical literature...
  57. ncbi Mass media, stigma, and disclosure of HIV test results: multilevel analysis in the Eastern Cape, South Africa
    P L Hutchinson
    Department of International Health and Development, School of Public Health and Tropical Medicine, Tulane University, New Orleans, LA 70112, USA
    AIDS Educ Prev 19:489-510. 2007
    ..Cape Province of South Africa are used to measure levels of stigma, interpersonal communication, willingness to disclosure HIV test results and condom use...
  58. ncbi Patients' consent preferences regarding the use of their health information for research purposes: a qualitative study
    Kalpana Nair
    Centre for Evaluation of Medicines, St Joseph s Healthcare, 105 Main Street E, Level P1, Hamilton, Ontario, L8N 1G6, Canada
    J Health Serv Res Policy 9:22-7. 2004
    ..To explore the consent preferences of patients whose health data are currently being used for research purposes...
  59. pmc Reliability of disclosure forms of authors' contributions
    Vesna Ilakovac
    Department of Medical Statistics and Medical Informatics, School of Medicine, Josip Juraj Strossmayer University, Osijek, Croatia
    CMAJ 176:41-6. 2007
    The contribution disclosure forms used by medical journals to assess and confirm authorship are surveys of self-reported behaviour that follow the cognitive rules of psychometric instruments...
  60. ncbi Partner disclosure of HIV status among HIV positive mothers in Northern Nigeria
    A S Sagay
    Jos University Teaching Hospital, Nigeria
    Afr J Med Med Sci 35:119-23. 2006
    ..This study explores the issues concerning disclosure of HIV status to partners of HIV sero-positive mothers in a PMTCT programme in Jos, Northern Nigeria...
  61. ncbi Investigation of within-study selective reporting in clinical research: follow-up of applications submitted to a local research ethics committee
    S Hahn
    Medical and Pharmaceutical Statistics Research Unit, University of Reading, Reading, UK
    J Eval Clin Pract 8:353-9. 2002
    ..Within-study selective reporting is widely believed to exist, although to date there have been no empirical studies to assess the extent of the problem in clinical research. The present study aimed to examine this process...
  62. pmc Reporting of conflicts of interest in guidelines of preventive and therapeutic interventions
    G N Papanikolaou
    Clinical Trials and Evidence Based Medicine Unit, and Social Medicine and Public Health Unit, Department of Hygiene and Epidemiology, University of Ioannina School of Medicine, Ioannina 45110, Greece
    BMC Med Res Methodol 1:3. 2001
    ..We evaluated the reporting of conflicts of interest and the factors that may affect such disclosure in a sample of 191 guidelines on therapeutic and/or preventive measures published in 6 major clinical journals (..
  63. pmc Undisclosed changes in outcomes in randomized controlled trials: an observational study
    Robert Ewart
    Department of Family and Community Medicine, Southern Illinois University School of Medicine, Springfield, Illinois, USA
    Ann Fam Med 7:542-6. 2009
    ..We wanted to investigate the frequency of undisclosed changes in the outcomes of randomized controlled trials (RCTs) between trial registration and publication...
  64. ncbi Factors leading to self-disclosure of a positive HIV diagnosis in Nairobi, Kenya: people living with HIV/AIDS in the Sub-Sahara
    Ann Neville Miller
    Daystar University, Nairobi, Kenya
    Qual Health Res 17:586-98. 2007
    ..Instruments and findings on serostatus disclosure based on U.S...
  65. ncbi The incidental discovery of nonpaternity through genetic carrier screening: an exploration of lay attitudes
    Lyn Turney
    Biotechnology and Society program of the Australian Centre for Emerging Technologies and Society ACETS at Swinburne University of Technology, Australia
    Qual Health Res 15:620-34. 2005
    ..She concludes the article by drawing attention to the potential problems inherent in the intervention of genetic medicine into family relationships...
  66. ncbi Medical error disclosure: the gap between attitude and practice
    Seyedeh Mojgan Ghalandarpoorattar
    Department of Obstetrics and Gynecology, Tehran University of Medical Sciences, Tehran, Iran
    Postgrad Med J 88:130-3. 2012
    This study aims to evaluate the attending surgeons' and residents' attitudes towards error disclosure and factors that can potentially affect these tendencies in major academic hospitals affiliated with Tehran University of Medical ..
  67. ncbi "Should I tell my employer and coworkers I have arthritis?" A longitudinal examination of self-disclosure in the work place
    Monique A M Gignac
    Arthritis Community Research and Evaluation Unit, University of Toronto, Toronto, Ontario, Canada
    Arthritis Rheum 61:1753-61. 2009
    To examine arthritis self-disclosure at work, factors associated with disclosure, and prospective relationships of self-disclosure and work place support with changes to work place interactions, work transitions, and work place stress.
  68. ncbi Conflict of interest policies and disclosure requirements among European Society of Cardiology National Cardiovascular Journals
    Fernando Alfonso
    Chairman Editors Network, Cardiovascular Institute, Clinico San Carlos, Madrid, Spain
    Heart 98:e1-7. 2012
    b>Disclosure of potential conflicts of interest (COI) is used by biomedical journals to guarantee credibility and transparency of the scientific process. COI disclosure, however, is not systematically nor consistently dealt with by journals...
  69. ncbi Disclosure of traumatic experiences, dissociation, and anxiety in group therapy for posttraumatic stress
    Alana Bowen
    Department of Psychology, James Cook University, Townsville, QLD, Australia
    Anxiety Stress Coping 23:449-61. 2010
    ..the relationships among the symptoms of posttraumatic stress disorder (PTSD), anxiety, dissociation with self-disclosure among 72 male military veterans with PTSD who were attending an eight-week group therapy treatment program...
  70. ncbi Conflict of interest policies and disclosure requirements among European Society of Cardiology National Cardiovascular Journals
    Fernando Alfonso
    Interventional Cardiology, Cardiovascular Institute, Clinico San Carlos University Hospital, Plaza de Cristo Rey, Cuidad Universitaria, Madrid, Spain
    Rev Port Cardiol 31:329-36. 2012
    b>Disclosure of potential conflicts of interest (COI) is used by biomedical journals to guarantee credibility and transparency of the scientific process...
  71. pmc Donation after cardiocirculatory death: a call for a moratorium pending full public disclosure and fully informed consent
    Ari R Joffe
    Department of Pediatrics, University of Alberta, Stollery Children s Hospital, Edmonton Clinic Health Academy 11405 87 Avenue, Edmonton, Alberta, T6G 1C9, Canada
    Philos Ethics Humanit Med 6:17. 2011
    ..These are tall orders, and require open public debate. Until this debate occurs, we call for a moratorium on the practice of DCD...
  72. ncbi Experiences of genetic risk: disclosure and the gendering of responsibility
    L d'Agincourt-Canning
    Centre for Applied Ethics, 235 6356 Agricultural Road, Vancouver, B C, Canada V6T 1Z2
    Bioethics 15:231-47. 2001
    ..This article explores issues of responsibility and disclosure of risk information by drawing on an empirical study of women and men who have undergone genetic testing for ..
  73. ncbi US and Canadian physicians' attitudes and experiences regarding disclosing errors to patients
    Thomas H Gallagher
    Departments of Medicine and Medical History and Ethics, University of Washington School of Medicine, 4311 11th Avenue NW, Seattle, WA 98105, USA
    Arch Intern Med 166:1605-11. 2006
    ..Yet, little is known about the malpractice environment's actual effect on physicians' error disclosure attitudes and experiences.
  74. ncbi Disclosure of hydraulic fracturing fluid chemical additives: analysis of regulations
    Alexis L Maule
    Boston University, Boston, MA 02118, USA
    New Solut 23:167-87. 2013
    ..States have begun to regulate hydraulic fracturing fluids by mandating chemical disclosure. These laws have shortcomings including nondisclosure of proprietary or "trade secret" mixtures, insufficient ..
  75. pmc Intellectual property rights and research disclosure in the university environment: preserving the commercialization option and optimizing market interest
    Robert Patino
    School of Medicine, Office of Technology Transfer, Southern Illinois University, Springfield, Illinois, USA
    J Am Assoc Lab Anim Sci 48:138-43. 2009
    ....
  76. ncbi How HIV diagnosis and disclosure affect sexual behavior and relationships in Ugandan fishing communities
    Moriah McArthur
    University of Tennessee, Knoxville, Tennessee, USA
    Qual Health Res 23:1125-37. 2013
    ..how members of fishing communities on the shores of Lake Victoria in Uganda respond to HIV diagnosis in terms of disclosure to sexual partners. We then explore the subsequent changes in sexual behavior and relationships...
  77. ncbi Australian reforms enabling disclosure of genetic information to genetic relatives by health practitioners
    Margaret Otlowski
    Faculty of Law, University of Tasmania, Australia
    J Law Med 21:217-34. 2013
    ..legislative developments in Australia which create a lawful pathway for health practitioners to make disclosure of genetic information to genetic relatives notwithstanding refusal by the patient to consent to such disclosure...
  78. pmc What should be done to tackle ghostwriting in the medical literature?
    Peter C Gøtzsche
    Nordic Cochrane Centre, Copenhagen, Denmark
    PLoS Med 6:e23. 2009
    Ghostwriting occurs when someone makes substantial contributions to a manuscript without attribution or disclosure. It is considered bad publication practice in the medical sciences, and some argue it is scientific misconduct...
  79. ncbi Ethics: Investigators' interests: what should trial participants be told?
    Paul L Romain
    Division of Rheumatology, Beth Israel Deaconess Medical Center, 330 Brookline Avenue, Boston, MA 02215, USA
    Nat Rev Rheumatol 6:70-1. 2010
    ..What should be disclosed and why? How will we know if disclosure matters?
  80. ncbi The impact of information disclosure on quality of care in HMO markets
    Kyoungrae Jung
    Department of Health Policy and Administration, The Pennsylvania State University, University Park, PA 16802, USA
    Int J Qual Health Care 22:461-8. 2010
    To examine the impact of voluntary information disclosure on quality of care in Health Maintenance Organization (HMO) markets in the USA.
  81. ncbi Familial communication of research results: a need to know?
    Lee Black
    Centre of Genomics and Policy at McGill University, Canada
    J Law Med Ethics 39:605-13. 2011
    ..Thus, we have also incorporated the discussion surrounding the disclosure of genetic risk discovered in the clinic (e.g., genetic testing)...
  82. ncbi What prevents incident disclosure, and what can be done to promote it?
    Rick Iedema
    Centre for Health Communication, University of Technology, Sydney, Australia
    Jt Comm J Qual Patient Saf 37:409-17. 2011
    Adverse-event incident disclosure is gaining international attention as being central to incident management, practice improvement, and public engagement, but those charged with its execution are experiencing barriers...
  83. ncbi Mechanisms behind the failure of residents' longitudinal primary care to promote disclosure and discussion of psychosocial issues
    Lawrence S Wissow
    Bloomberg School of Public Health, Johns Hopkins University, 624 N Broadway, 749 Hampton House, Baltimore, MD 21205, USA
    Arch Pediatr Adolesc Med 156:685-92. 2002
    ..over time) and continuity (receipt of most care from a single physician) are believed to enhance patient-physician relationships and facilitate disclosure of emotional distress, but some studies suggest this potential goes unrealized.
  84. ncbi Stigma, disclosure, coping, and medication adherence among people living with HIV/AIDS in Northern Tanzania
    Ramsey A Lyimo
    1 Kilimanjaro Clinical Research Institute Kilimanjaro Christian Medical Center Moshi, Tanzania
    AIDS Patient Care STDS 28:98-105. 2014
    This study examines a proposed theoretical model examining the interrelationships between stigma, disclosure, coping, and medication adherence among 158 HIV-infected patients on antiretroviral therapy (ART) in northern Tanzania...
  85. ncbi Ethical issues arising from the participation of children in genetic research
    Wylie Burke
    Department of Medical History and Ethics, University of Washington, Seattle 98195 7120, USA
    J Pediatr 149:S34-8. 2006
    ..In addition, the potential for disclosure of individual results should be considered as part of the institutional review of genetic studies, taking into ..
  86. doi Disclosure of industry payments to physicians
    Robert Steinbrook
    N Engl J Med 359:559-61. 2008
  87. ncbi Native Hawaiian preferences for informed consent and disclosure of results from genetic research
    Megan Fong
    Imi Hale Native Hawaiian Cancer Awareness, Research, and Training Network, Program of Papa Ola Lokahi, Honolulu, HI 96813, USA
    J Cancer Educ 21:S47-52. 2006
    ..Informed consent is generally waived when using anonymous stored specimens in research because individual harm is minimal; however, group harm may arise if specimens contain ethnic identifiers...
  88. ncbi Adolescents with open-identity sperm donors: reports from 12-17 year olds
    J E Scheib
    Department of Psychology, University of California, Davis, CA 95616, USA
    Hum Reprod 20:239-52. 2005
    ..Donor insemination programs can include 'open-identity' sperm donors, who are willing to release their identities to adult offspring. We report findings from adolescent offspring who have open-identity donors...
  89. ncbi Conflicts of interest and disclosure in the American Psychiatric Association's Clinical Practice Guidelines
    Lisa Cosgrove
    Department of Counseling and School Psychology, University of Massachusetts, Boston, MA 02125 3393, USA
    Psychother Psychosom 78:228-32. 2009
    ..The present study examined the degree and type of financial ties to the pharmaceutical industry held by authors of 3 major CPG...
  90. ncbi Predictive genetic testing for hereditary breast and ovarian cancer: psychological distress and illness representations 1 year following disclosure
    E Claes
    Psychosocial Genetics Unit, Center for Human Genetics, University of Leuven, Belgium
    J Genet Couns 14:349-63. 2005
    ..Our study did not reveal adverse effects of predictive testing when offered in the context of a multidisciplinary approach...
  91. pmc Discovery and disclosure of incidental findings in neuroimaging research
    Judy Illes
    Stanford Center for Biomedical Ethics, Stanford University, Stanford, California 94304 5748, USA
    J Magn Reson Imaging 20:743-7. 2004
    ..To examine different protocols for handling incidental findings on brain research MRIs, and provide a platform for establishing formal discussions of related ethical and policy issues...
  92. ncbi Intricacies and inter-relationships between HIV disclosure and HAART: a qualitative study
    R L Klitzman
    HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute and Columbia University, New York, NY 10032, USA
    AIDS Care 16:628-40. 2004
    ..aimed to understand whether and how highly active antiretroviral treatment (HAART) affects views and patterns of disclosure and how disclosure interacts with treatment decisions...
  93. ncbi Disclosure of competing financial interests and role of sponsors in phase III cancer trials
    Jean Jacques Tuech
    Laboratoire d Ethique Médicale et Médecine Légale, Faculté de médecine de Paris 5, 45 Rue des Saints Peres, 75006 Paris, France
    Eur J Cancer 41:2237-40. 2005
    ..A review of published randomised trials (RCTs) in cancer research was performed to assess adherence to the 1997 disclosure requirements and to document the nature of the disclosed interests...
  94. ncbi Error or "act of God"? A study of patients' and operating room team members' perceptions of error definition, reporting, and disclosure
    Sherry Espin
    Donald R Wilson Centre for Research in Education, University Health Network, Toronto, Ontario, Canada
    Surgery 139:6-14. 2006
    ..In this study, we describe and compare operative team members' and patients' perceptions of error, reporting of error, and disclosure of error.
  95. ncbi Anonymous or identity-registered sperm donors? A study of Dutch recipients' choices
    A Brewaeys
    Department of Gynaecology and Reproductive Medicine, Leiden University Medical Center, Post Box 9600, 2300 RC Leiden, The Netherlands
    Hum Reprod 20:820-4. 2005
    ..between recipients choosing for an anonymous donor (AD choosers) and those choosing for an identifiable donor (ID choosers) with regard to their sexual orientation, demographic characteristics, disclosure issues and infertility distress.
  96. ncbi Is blood really thicker than water? Assisted reproduction and its impact on our thinking about family
    K Daniels
    Department of Social Work, University of Canterbury, Christchurch, New Zealand
    J Psychosom Obstet Gynaecol 26:265-70. 2005
    ..The evolution of professional thinking in this area is reviewed, along with the increasing involvement of governments...
  97. pmc The dilemma of disclosure: patient perspectives on gay and lesbian providers
    Rita S Lee
    Department of Medicine, Division of General Internal Medicine, University of Colorado at Denver and Health Sciences Center, Aurora, CO 80045, USA
    J Gen Intern Med 23:142-7. 2008
    ..Discrimination toward gay and lesbian patients by health care providers has been documented. No study has determined if patient behavior would change when seeing a gay/lesbian provider...
  98. pmc Strategies for disclosure: how parents approach telling their children that they were conceived with donor gametes
    Kirstin Mac Dougall
    Institute for Health and Aging, University of California, San Francisco, San Francisco, California 94118, USA
    Fertil Steril 87:524-33. 2007
    ..To describe how parents envision, plan, and enact disclosing to their children that they were conceived with donor gametes...
  99. ncbi The impact of diagnostic disclosure in dementia: a qualitative case analysis
    Els Derksen
    Centre for Quality of Care Research, Alzheimer Centre Nijmegen, The Netherlands
    Int Psychogeriatr 17:319-26. 2005
    The aim of this study was to give an in-depth description of the impact of disclosure of the diagnosis of dementia on a patient and the patient's partner.
  100. ncbi Protecting raw data and psychological tests from wrongful disclosure: a primer on the law and other persuasive strategies
    Paul M Kaufmann
    Nebraska Department of Health and Human Services, University of Nebraska, Lincoln, NE, USA
    Clin Neuropsychol 23:1130-59. 2009
    ..with some states enacting a psychologist nondisclosure privilege/duty to safeguard test materials from wrongful disclosure. The record management practices of psychologists vary considerably and are vulnerable to legal attack unless ..
  101. pmc Conflict of interest policies for organizations producing a large number of clinical practice guidelines
    Susan L Norris
    Department of Medical Informatics and Clinical Epidemiology, Oregon Health and Science University, Portland, Oregon, United States of America
    PLoS ONE 7:e37413. 2012
    ..The objectives of this study were to describe the COI policies for organizations currently producing a significant number of CPGs, and to determine if these policies meet 2011 Institute of Medicine (IOM) standards...

Research Grants78

  1. AMERICAN SOCIETY OF HUMAN GENETICS PUBLIC HEALTH GENETICS FELLOWSHIP
    Joann A Boughman; Fiscal Year: 2011
    ..Estimated number of people to t>e served as a result of the av/ard of this grant 100000 DISCLOSURE OF LOBBYING ACTIVITIES Complete this form to disclose lobbying activities pursuant to 2...
  2. PTEN TUMOR SUPPRESSOR AND SIGNAL TRANSDUCTION
    RAMON E PARSONS; Fiscal Year: 2012
    ..Cell Line Disclosure Permission Statement Applicable to SBIR/STTR Only. See SBIR/STTR instructions. Yes NO PHS 398 (Rev...
  3. MOLECULAR BIOLOGY OF HUMAN COAGULATION FACTOR V
    Thomas Ortel; Fiscal Year: 2010
    ..Cell Line Disclosure PermissionStatement. Applicable to SBIR/STTROnly. SeeSBIR/STTR instructions. I I Yes I I No PHS 398 (Rev...
  4. GLUTAMATE TRANSPORTERS IN THE CNS
    MICHAEL BYRNE ROBINSON; Fiscal Year: 2011
    ..Cell Line Disclosure Permission Statement. Applicable toSBIR/STTR Only. See SBIR/STTR instructions. 0 Yes O No PHS 398 (Rev...
  5. Ethical and Legal Challenges in Communicating Individual Biomonitoring and Person
    Rachel Morello-Frosch; Fiscal Year: 2013
    ..under federal and state real estate and environmental laws might be triggered by measurements in homes and how disclosure obligations might conflict with participants'privacy;(3) to conduct three focus groups to further examine ..
  6. The Ethics of Fragile X Genetic Screening and Testing Across the Lifespan
    Kruti Acharya; Fiscal Year: 2012
    ..detection across the lifespan, and how the diverse meanings of the diagnosis influence decisions about familial disclosure. The results of the proposed research will be used to develop an R01 application examining the lifetime risks ..
  7. MYC ONCOPROTEIN FUNCTION
    ROBERT NEIL EISENMAN; Fiscal Year: 2013
    ..D. Fred Hutchinson Cancer Research Center Shiio, Yuzuru, M.D., Ph.D. Fred Hutchinson Cancer Research Center Disclosure Permission Statement. Applicable to SBIPJSTTR Only. See instructions. [] Yes [] the format shown below...
  8. Brain Matters 3: Values at the Crossroads of Neurology, Psychiatry, and Psycholog
    PAUL JASON FORD; Fiscal Year: 2012
    ..Ethical challenges facing clinicians and researchers include communication of disclosure, documentation and purposeful mislabeling, return to work requests, driving restrictions, placebo use in ..
  9. Computerized Counseling to Promote Positive Prevention and HIV Health in Kenya
    Ann Elizabeth Kurth; Fiscal Year: 2012
    ..Adapt skill-building videos (e.g., on secondary prevention, HIV disclosure, ART adherence, reproductive health). Conduct software usability testing with n=20 patients and n=8 staff...
  10. MOLECULAR PROBES FOR STEROID RECEPTORS
    John A Katzenellenbogen; Fiscal Year: 2012
    ..University of Illinois Selvin, Paul R. University of Illinois Disclosure Permission Statement. Applicable to SBIR/STTR Only. See instructions. [] Yes [] No PHS 398 (Rev...
  11. Translational approaches to multilevel models of prenatal exposure to cigarettes
    Vanja Dukic; Fiscal Year: 2010
    ..quantifying many other addictive behaviors, often suffers from recall bias, deliberate misreporting and even non-disclosure. This problem is particularly prevalent during pregnancy...
  12. Improving blood safety and HIV testing in Brazil: a randomized controlled trial
    THELMA THEREZINHA GONCALEZ; Fiscal Year: 2013
    ..First, the impact of the intervention will be measured as an increase in persons receiving their test results, disclosure counseling and referrals (Aim 1)...
  13. HIV risk and venues for meeting sex partners
    Christian Grov; Fiscal Year: 2012
    ..g., serostatus disclosure, condom use)...
  14. Patient Awareness and Consumer Education Research Cente*
    Maria E Suarez Almazor; Fiscal Year: 2010
    ..Cell Line Disclosure Permission Statement. Applicable to SBIR/STTR Only. SeeSBIR/STTR instructions. [U Yes |~l No PHS 398 (Rev...
  15. Disclosing Genomic Incidental Findings in a Cancer Biobank: An ELSI Experiment
    Susan M Wolf; Fiscal Year: 2013
    ..by applicant): This empirical and normative bioethics research project will guide policy and practice about the disclosure of genomic incidental findings (GIFD), a much-debated topic...
  16. Interventions to decrease HIV infectiousness in Uganda
    Connie L Celum; Fiscal Year: 2013
    ..3) Measure disclosure to partners and family, HIV testing of partners, condom use, sexual frequency, and number of partners before and ..
  17. Therapeutic Pathways to Improving End of Life Outcomes Among Families in Palliati
    TALIA IRIT ZAIDER; Fiscal Year: 2011
    ..An objective of FFGT is to foster better communication (i.e., disclosure) among family members about cancer-related concerns and anticipated loss...
  18. Rural Primary Health Care Providers Response to Intimate Partner Violence and Sur
    ANNAH BENDER; Fiscal Year: 2013
    ..with their health care provider, their perceptions of the quality of care they received following their disclosure of abuse, and whether they took any actions recommended by the health care provider to resolve their abuse ..
  19. Eating Disorders and Adolescent Body Image Among Boys and Sexual Minorities
    JEREL PASION CALZO; Fiscal Year: 2012
    ..among the sexual minority subgroups, paying particular attention to gender, gender expression, level of identity disclosure (i.e., outness), identity-related distress, and sexual minority community involvement...
  20. Molecular characterization of congenital cataract
    Elena V Semina; Fiscal Year: 2013
    ..Name Organization Role on Project Elena V. Semina, PhD Medical College of Wisconsin PI Disclosure Permission Statement. Applicable to SBIR/STTR Only. See instructions. Yes No PHS 398 (Rev...
  21. HIV Testing and Educating Male Partners to Improve Maternal and Infant Outcomes
    Carey Farquhar; Fiscal Year: 2013
    ..uptake and timing of HIV care and treatment services for HIV-1-infected men post-HPET and compares male partner disclosure of status, initiation of TMP-SMX, and uptake of ART between HPET and standard ANC arms...
  22. Developing an Intervention for Disclosure of Parental HIV to Children in China
    JANE MARIE SIMONI; Fiscal Year: 2013
    ..In this R21 application, prepared in response to RFAHD- 12-205 "Disclosure of HIV-Status to Children in Low- and Middle-Income Country Settings (R21)", we propose to conduct formative ..
  23. PS07-003, Minority HIV/AIDS Research Initiative (MARI)
    Emma J Brown; Fiscal Year: 2011
    ..The short-term study objective is to identify barriers and facilitators associated with HIV testing and disclosure of HIV+ test results-- black males18 - 64 who self- identify as heterosexual--determining whether these differ ..
  24. Black-White Differences in Advanced Cancer Communication, Acceptance, and Care
    Holly Gwen Prigerson; Fiscal Year: 2013
    ..g., oncology provider's prognostic disclosure) vary depending on whether the patient is black or white...
  25. Managing Incidental Findings in the Genomic Era
    JANET K contact WILLIAMS; Fiscal Year: 2010
    ..IF issues and stakeholder preferences and perceptions that has the potential to support decisions regarding disclosure and discovery of IFs in genomic testing and research;and, 4) disseminate the taxonomy to stakeholder groups for ..
  26. Communicating Genetic Test Results by Telephone: A Randomized Trial
    Angela R Bradbury; Fiscal Year: 2013
    ..In Aim 1, we will evaluate the efficacy of our telephone disclosure protocol to provide equal short-term outcomes (knowledge and perceptions of genetic disease, psychological ..
  27. Disclosure of HIV Status to Partners of IDU in Hunan, China
    Kristopher Fennie; Fiscal Year: 2012
    ..A major barrier to practicing safer sex is lack of disclosure of HIV status to partners...
  28. DISCLOSING A DEMENTIA DIAGNOSIS: ANALYSIS OF A TRIADIC HEALTHCARE ENCOUNTER
    Brian D Carpenter; Fiscal Year: 2010
    ..Specific aims. 1) Characterize physician, patient, and companion behaviors during a dementia diagnosis disclosure encounter, using standardized interaction analysis systems...
  29. Disclosing Contents of Drinks: Experimental Test on Natural Consumption Behavior
    James E Lange; Fiscal Year: 2010
    ..Protagonists of health promotion have pleaded for the disclosure of alcohol contents and drink sizes on alcohol beverage containers...
  30. CONSTRUCTION AND ANALYSIS OF RETROVIRUS MUTANTS
    STEPHEN PAINE GOFF; Fiscal Year: 2013
    ..Sci. Grad. Res. Asst. Grad. Res. Asst. MD/Ph.D. Grad. Res. Asst. Disclosure Permission Statement_ A_ormable to SBIPJSTTR On;v...
  31. The Colon Cancer Family Registry: Seattle
    Polly A Newcomb; Fiscal Year: 2011
    ..on: gene hunting;gene-environment interactions;screening efficacy;behavioral changes;issues related to genetic disclosure;and the economics of screening and treatment...
  32. Implementing Comprehensive PMTCT and HIV Prevention for South African Couples
    KARL F PELTZER; Fiscal Year: 2013
    ..It is also clear that factors such as stigma, disclosure and intimate partner violence pose significant barriers to PMTCT uptake and retention in care, suggesting that ..
  33. Expressive Writing Intervention for PTSD Prevention
    Grant Marshall; Fiscal Year: 2013
    ..The intervention, which involves written self-disclosure, is derived from basic social psychological laboratory research, and will be translated for use as an applied ..
  34. Effect of Feeding Buddies on Adherence to WHO PMTCT Guidelines in South Africa
    KIERSTEN ANN ISRAEL-BALLARD; Fiscal Year: 2013
    ..buddy on adherence to infant HIV testing at 6 weeks and (2) to determine the effect of a feeding buddy on disclosure and stigma...
  35. 11th International Congress of Neuroimmunology
    Samia J Khoury; Fiscal Year: 2012
    ..offered at the congress and support will be requested to cover the costs associated with the administration of disclosure information and the overall accreditation process, which will ensure all congress presentations are balanced and ..
  36. Teaching Resourcefulness to Women Caregivers of Elders with Dementia
    Jaclene A Zauszniewski; Fiscal Year: 2010
    ..In RT, the two methods to be tested (expressive writing, EW) and verbal disclosure, VD) are used for practicing / reinforcing resourcefulness skills...
  37. Interpersonal and intrapersonal conflict and their association with substance use
    H Jonathon Rendina; Fiscal Year: 2013
    ..b>Disclosure of HIV status remains difficult for HIV-positive people due to stigma, and this difficulty is especially ..
  38. The Daily Interactions of Couples Coping With Breast Cancer: With Whom, About Wha
    Matthias R Mehl; Fiscal Year: 2010
    ..Based on predictions from disclosure theory and relationship maintenance theory we predict that both aspects of cancer- related and non-cancer ..
  39. Veteran and Staff Perceptions of VHA Large Scale Adverse Event Communications
    ANASHUA RANI ELWY; Fiscal Year: 2013
    DESCRIPTION (provided by applicant): The Department of Veterans Affairs (VA) recognizes three types of disclosure of adverse events: 1) clinical disclosure, 2) institutional disclosure and 3) large scale disclosure...
  40. Shaping the Health of Adolescents in Zimbabwe (SHAZ!)
    MEGAN SUZANNE DUNBAR; Fiscal Year: 2013
    ..social resources;(2) adherence to care and treatment, and subsequent health outcomes;(3) psychosocial morbidity, disclosure, and coping skills;(4) behaviors associated with the secondary transmission of HIV, and (4...
  41. Piloting disclosure of their status to youth living with HIV in Hispaniola
    CONSUELO MARIA BECK-SAGUE; Fiscal Year: 2013
    ..regarding the possibility of exposing youth and their caregivers to discrimination and stigma are relevant to disclosure. Preliminary data suggest that most youth in Hispaniola who receive ART do not know their status...
  42. Incorporation of Genomic Sequencing into Pediatric Cancer Care
    Sharon E Plon; Fiscal Year: 2013
    ..existing data for each variant reported and presented through a graphical display that will facilitate physician disclosure of complex data to parents...
  43. Serosorting Intervention for HIV Negative MSM
    Lisa A Eaton; Fiscal Year: 2013
    ..will include measures of serosorting beliefs, decisional balance, knowledge of acute HIV infection, HIV status disclosure, and biological (incident STI) and behavioral outcomes (sexual behaviors)...
  44. Older adults in vulnerable communities: Health and quality of life over time
    KAREN ILENE FREDRIKSEN-GOLDSEN; Fiscal Year: 2013
    ..g., time of sexual identity disclosure, lifetime victimization) between Baby Boom and Silent Generation LGB older adults account for these cohort ..
  45. Returning Individual Genetic Research Results to Parents and Children
    Ingrid Holm; Fiscal Year: 2010
    ..that uses a messaging system through the CHB personally- controlled health record (PCHR) to facilitate the disclosure of research results back to the participants...
  46. Sharing Restricted Data for Secondary Research: Evolving Tools and Protocols
    James W McNally; Fiscal Year: 2013
    ..eliminate risks presented by direct identifiers, new developments addressing what is commonly called "deductive disclosure" increasingly impact our thinking in what is and is not safe to share...
  47. Effectiveness and Cost-Effectiveness of Peer Mentors in Reducing Hospital Use
    Larry Davidson; Fiscal Year: 2013
    ..own work in this area, these ingredients are hypothesized to be an instillation of hope through positive self-disclosure;role modeling of self-care and exploring new ways of using experiential knowledge;and a trusting relationship ..
  48. Psychosocial Barriers to Engagement in Care in Young South African Women with HIV
    Rushina Cholera; Fiscal Year: 2013
    ..ongoing randomized controlled trial, with the following specific aims: 1) To evaluate the relationship between disclosure of HIV infection status and engagement in care over 1 year following diagnosis;2) To determine the relationship ..
  49. A Workshop to Transform Mindsets
    David B Mayer; Fiscal Year: 2010
    ..One such element that is receiving much attention is the full disclosure of medical errors...
  50. Removing Barriers to Disclosure-and-Offer Models
    KENNETH E F SANDS; Fiscal Year: 2010
    DESCRIPTION (provided by applicant): Disclosure-and-offer (D&O) has attracted wide attention as a potential approach for increasing access to timely medical injury compensation, reducing medical liability costs, and better linking ..
  51. Relationship Experiences among Puerto Rican Heterosexual HIV Serodiscordant Coupl
    SHEILLA LEE RODRIGUEZ; Fiscal Year: 2010
    ..relationship experiences through the following constructs that emerge from our literature review: (1) HIV status disclosure process;(2) couple's communication;(3) sexual intimacy;(4) social support;(5) domestic violence;(6) HIV/..
  52. Community Partnership for Ethical Research
    ELIZABETH B RIPLEY; Fiscal Year: 2010
    ..Research (CBPR) methodology to construct and evaluate an effective community consultation and public disclosure approach in an Exemption From Informed Consent (EFIC) research project conducted in mostly minority, underserved,..
  53. Ethical Issues in Broad Data Sharing for Addiction Research: Best Research Practi
    MARILYN ELIZABETH COORS; Fiscal Year: 2012
    ..Aim 2, stage 2 will develop, pilot and then test enhanced disclosure forms compared to the general disclosure form through a written comprehension test in additional subjects;100 ..
  54. Maybe, maybe not: Deciding to disclose HIV to family
    Julianne M Serovich; Fiscal Year: 2013
    ..While disclosure to family members has been linked to positive outcomes including increased social support, improved physical and ..
  55. Identifying Effective Strategies to Disclose Prognosis in Patients with ARDS
    Douglas B White; Fiscal Year: 2012
    ..Unfortunately, no empirical studies have addressed what disclosure strategies effectively convey news of a poor prognosis to family of critically ill patients...
  56. A Parenting Intervention for HIV+ Moms: The IMAGE program
    Debra A Murphy; Fiscal Year: 2013
    ..family routines, and appropriate parentification), and the self-care skills targeted (social support, disclosure, dealing with perceived stigma); c...
  57. Capacity to Consent to Research on Bipolar Disorder
    Barton W Palmer; Fiscal Year: 2013
    ..also evaluate the degree to which understanding of disclosed information can be improved through an interactive disclosure process...
  58. Theory-based HIV Disclosure Intervention for Parents
    Xiaoming Li; Fiscal Year: 2013
    ..parents living with HIV ("PLH"), disclosing their HIV infection to their seronegative children ("parental HIV disclosure") becomes an increasingly important issue in terms of well-being of parents, children and families...
  59. Electrophysiological Correlates of Vasopressin Secretion
    William Armstrong; Fiscal Year: 2009
    ..D. NIH, NIDDK Collaborator/consultant Disclosure Permission Statement. Applicable to SBIR/STTR Only. Seeinstructions. L~] Yes TTNO PHS 398 (Rev...
  60. Separation of HIV Infected Prison Inmates: Perceptions and Clinical Outcomes
    David A Wohl; Fiscal Year: 2012
    ..Further, separation of HIV+ inmates can potentially lead to inadvertent disclosure of HIV status as inmates sent to these facilities may be marked as HIV+. Lastly, disease outbreaks (e.g...
  61. Rethinking Informed Consent for Pragmatic Comparative Effectiveness Trials
    Danielle Whicher; Fiscal Year: 2011
    ..be viewed as both low risk and low burden for patients, it may be the case that a range of models of consent, disclosure, and authorization may be considered socially and morally acceptable for these types of trials...
  62. Disclosure of High-Risk HPV Infection to Sex Partners of Young Men
    Laura A Koutsky; Fiscal Year: 2010
    ..The goal of the proposed study is to understand the patterns and outcomes of disclosure among young heterosexual men infected with HR HPV...
  63. Community-based Family Planning Intervention to Reduce Partner Violence
    Elizabeth Miller; Fiscal Year: 2009
    ..educators) consists of: 1) Enhanced Screening to increase client awareness of IPV/SA and facilitate IPV/SA disclosure, 2) Harm Reduction Counseling to assist clients in developing harm reduction and safety planning strategies to ..
  64. A PRACTICUM IN CLINICAL RESEARCH ETHICS
    David Strauss; Fiscal Year: 2001
    ..given the greater emphasis on the many dimensions of "vulnerability" and the greater demand for information disclosure. While it remains vitally important to focus awareness among researchers on barriers to informed consent in ..
  65. A PRACTICUM IN CLINICAL RESEARCH ETHICS
    David Strauss; Fiscal Year: 2000
    ..given the greater emphasis on the many dimensions of "vulnerability" and the greater demand for information disclosure. While it remains vitally important to focus awareness among researchers on barriers to informed consent in ..
  66. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2006
    ..It adds to the suffering of those infected and interferes with decisions to seek HIV counseling and testing, disclosure of HIV infection, and seeking treatment for HIV-related problems...
  67. Optimal Micro-Data Switching: An Enhanced Framework and Decision Tool for Confid
    James Kelly; Fiscal Year: 2009
    The objective of this project is the development of an innovative technique to avoid disclosure of confidential data in public use tabular data...
  68. The Seven Pillars: Crossing the Patient Safety-Medical Liability Chasm
    TIMOTHY BRIAN MCDONALD; Fiscal Year: 2010
    ..One such strategy, embedded in a culture of transparency and full disclosure, is being open and honest with patients, colleagues, and institutions when a patient suffers harm...
  69. Communication to Prevent and Respond to Medical Injuries: WA State Collaborative
    THOMAS HENRY GALLAGHER; Fiscal Year: 2010
    ..3. To develop and evaluate a collaborative approach to adverse event analysis, disclosure, and compensation between 5 of these 10 partner healthcare institutions and Physicians Insurance. 4...
  70. Synthesis of HRS-SSA linked data
    LARS VILHUBER; Fiscal Year: 2007
    ..New statistical disclosure limitation methods have been developed that promise to provide much of the information in confidential micro ..
  71. Transparency and Disclosure: A National Standard
    GAYE FORTNER; Fiscal Year: 2003
    ..A conference will be held on Sept 18 & 19, 2003, entitled "Transparency and disclosure: A National Standard". The conference will convene at the Marriott Hotel in Chattanooga, TN...
  72. New York State Medical Liability Reform and Patient Safety Demonstration Project
    JUDY KLUGER; Fiscal Year: 2010
    ..negotiation - and incorporating evidence-based interventions, including a culture of safety and an early disclosure and settlement program...
  73. Presenting Genome Information in Patient Electronic Records: The Informed Cohort
    KENNETH D contact MANDL; Fiscal Year: 2010
    ..companies into the genetic testing process have converged to create a growing expectation that complete disclosure of all interpretations of genome-wide variants is a public good and a means to maximize personal health...
  74. Prostate Cancer Clinical Decision Making by Diagnosed and High Risk Latino Men
    Sally Maliski; Fiscal Year: 2009
    ..purpose of this study is to develop descriptive models of prostate cancer screening, treatment, and diagnosis disclosure decision-making from the perspective of Latino men to form an evidence base for the development of culturally ..
  75. Open Disclosure and Medical Claims Study
    John Buckley; Fiscal Year: 2010
    ..The proposed study titled, Open Disclosure and Medical Claims Study, will promote open communication and identify risk-prone areas, ultimately increasing ..
  76. Synthetic Data Generation for Small Area Estimation
    JOE SAKSHAUG; Fiscal Year: 2009
    ..prevented from releasing small area identifiers in public- use datasets because the data do not satisfy certain disclosure restrictions described in the Public Health Service Act (Section 308(d)), which forbids the disclosure of any ..
  77. RCT of written self-disclosure for youth abdominal pain
    Jan Wallander; Fiscal Year: 2004
    Efficacy research demonstrates that written self-disclosure (WSD) improves physiology, health status, and health care utilization in healthy young people (> age 14) and in adults with one of two chronic diseases...
  78. CONNEXINS AND THEIR ROLE IN EPIDERMAL DIFFERENTIATION
    Gabriele Richard; Fiscal Year: 2004
    ..variabilis (EKV) that recently resulted in the cloning of two novel human connexin genes, GJB3 and GJB5, and the disclosure of mutations in GJB3 as proximal cause of EKV...