patient rights

Summary

Summary: Fundamental claims of patients, as expressed in statutes, declarations, or generally accepted moral principles. (Bioethics Thesaurus) The term is used for discussions of patient rights as a group of many rights, as in a hospital's posting of a list of patient rights.

Top Publications

  1. ncbi A philosophical analysis of informed consent
    Stephen Booth
    Countess of Chester Hospital, Chester
    Nurs Stand 16:43-6. 2002
  2. ncbi Managed care and patients' rights
    Sara Rosenbaum
    JAMA 289:906-7. 2003
  3. ncbi Informed consent in clinical practice
    Nancy M Kettle
    University of South Florida, 4202 E Fowler Avenue, Tampa, Florida 33620, USA
    HEC Forum 15:42-54. 2003
  4. pmc Ethical issues posed by cluster randomized trials in health research
    Charles Weijer
    Rotman Institute of Philosophy, Department of Philosophy, University of Western Ontario, London, ON, N6A 5B8, Canada
    Trials 12:100. 2011
  5. ncbi When the helper humiliates the patient: a qualitative study about unintended intimidations
    Kirsti Malterud
    Research Unit for General Practice, Unifob Health, Bergen, Norway
    Scand J Public Health 36:92-8. 2008
  6. ncbi Violence against women in health-care institutions: an emerging problem
    Ana Flávia Pires Lucas D'Oliveira
    Gender Violence and Health Research Group, Department of Preventive Medicine, Medical School of São Paulo University USP, Sao Paulo, Brazil
    Lancet 359:1681-5. 2002
  7. ncbi Users' perceptions of health care reforms: quality of care and patient rights in four regions in the Russian Federation
    Marianna Fotaki
    Manchester Business School, Booth Street West, Oxford Road, Manchester M15 6PB, UK
    Soc Sci Med 63:1637-47. 2006
  8. ncbi The approach taken by the physicians working at educational hospitals in Izmir towards patient rights
    M Hakan Ozdemir
    Forensic Medicine Department, Dokuz Eylul University School of Medicine, Izmir 35340, Turkey
    Patient Educ Couns 61:87-91. 2006
  9. ncbi Is there a right to donate blood? Patient rights; donor responsibilities
    Ian M Franklin
    Scottish National Blood Transfusion Service, Edinburgh, UK
    Transfus Med 17:161-8. 2007
  10. ncbi For the safety and benefit of current and future patients
    Mats G Hansson
    Centre for Bioethics, Department of Public Health and Caring Sciences, Uppsala Science Park, Uppsala, Sweden
    Pathobiology 74:198-205. 2007

Detail Information

Publications230 found, 100 shown here

  1. ncbi A philosophical analysis of informed consent
    Stephen Booth
    Countess of Chester Hospital, Chester
    Nurs Stand 16:43-6. 2002
    ..In this article, Stephen Booth analyses the concepts of informed consent and competence. He also examines the conditions necessary for consent to be valid...
  2. ncbi Managed care and patients' rights
    Sara Rosenbaum
    JAMA 289:906-7. 2003
  3. ncbi Informed consent in clinical practice
    Nancy M Kettle
    University of South Florida, 4202 E Fowler Avenue, Tampa, Florida 33620, USA
    HEC Forum 15:42-54. 2003
  4. pmc Ethical issues posed by cluster randomized trials in health research
    Charles Weijer
    Rotman Institute of Philosophy, Department of Philosophy, University of Western Ontario, London, ON, N6A 5B8, Canada
    Trials 12:100. 2011
    ..Our hope is that these papers will serve as the basis for the creation of international ethical guidelines for the design and conduct of cluster randomized trials...
  5. ncbi When the helper humiliates the patient: a qualitative study about unintended intimidations
    Kirsti Malterud
    Research Unit for General Practice, Unifob Health, Bergen, Norway
    Scand J Public Health 36:92-8. 2008
    ..To explore experiences of intimidating patients/clients from the perspective of the professional...
  6. ncbi Violence against women in health-care institutions: an emerging problem
    Ana Flávia Pires Lucas D'Oliveira
    Gender Violence and Health Research Group, Department of Preventive Medicine, Medical School of São Paulo University USP, Sao Paulo, Brazil
    Lancet 359:1681-5. 2002
    ..Abuse occurs mainly in situations in which the legitimacy of health services is questionable or can be the result of prejudice against certain population groups. We discuss ways to prevent violent abuse...
  7. ncbi Users' perceptions of health care reforms: quality of care and patient rights in four regions in the Russian Federation
    Marianna Fotaki
    Manchester Business School, Booth Street West, Oxford Road, Manchester M15 6PB, UK
    Soc Sci Med 63:1637-47. 2006
    ..a reliable source of funding but also to improve the quality of care and introduce user entitlements known as patient rights. This paper discusses findings of a survey carried out in 1999-2000 to explore users' perceptions of reforms, ..
  8. ncbi The approach taken by the physicians working at educational hospitals in Izmir towards patient rights
    M Hakan Ozdemir
    Forensic Medicine Department, Dokuz Eylul University School of Medicine, Izmir 35340, Turkey
    Patient Educ Couns 61:87-91. 2006
    Considered as a reflection of human rights in our modern day, patient rights have been gaining increasing importance. This particular subject has been discussed from various perspectives in different countries and legal sanctions imposed...
  9. ncbi Is there a right to donate blood? Patient rights; donor responsibilities
    Ian M Franklin
    Scottish National Blood Transfusion Service, Edinburgh, UK
    Transfus Med 17:161-8. 2007
    ..It is concluded that blood recipients in the EU have a right to receive safe blood, and that this should be viewed as the overriding responsibility of blood services...
  10. ncbi For the safety and benefit of current and future patients
    Mats G Hansson
    Centre for Bioethics, Department of Public Health and Caring Sciences, Uppsala Science Park, Uppsala, Sweden
    Pathobiology 74:198-205. 2007
    ..In this article I argue that a 'safety principle' should have priority and suggest how this could be implemented in clinical practice and in association with biomedical research...
  11. ncbi The views of cancer patients on patient rights in the context of information and autonomy
    S Erer
    Uludag University, Faculty of Medicine, Deontology Department 16059, Bursa, Turkey
    J Med Ethics 34:384-8. 2008
    The aim of this study is to evaluate the views of cancer patients on patient rights in the context of the right to information and autonomy according to articles related to the issue in the "Patient Rights Regulation".
  12. pmc Organ procurement: dead interests, living needs
    John Harris
    J Med Ethics 29:130-4. 2003
  13. ncbi Emerging health sector problems affecting patient rights in Turkey
    Nuket Ornek Buken
    Nüket Ornek Büken, Hacettepe Universitesi Tip Fakultesi, Deontoloji Tip Etigi AD, Sihhiye, 06100, Ankara, Turkiye
    Nurs Ethics 11:610-24. 2004
    ..However, there is a significant difference between health indicators for Turkey, which is a candidate for full membership of the European Union, and European Union countries...
  14. ncbi Patients rights and accountability: can there exist rights without remedies in an American legal and legislative framework?
    Miles J Zaremski
    Kamensky and Rubinstein, 7250 North Cicero Avenue, Lincolnwood, Illinois 60712, USA
    Med Law 22:429-50. 2003
    Considerable attention has been given patient rights within the borders of the United States over the last five to 10 years. This has been driven by the creation of the managed health care organization...
  15. ncbi Promotion and enforcement of patients' rights
    P Blaes
    Belgian Federation Against Cancer
    Med Law 23:289-97. 2004
    ..Numerous measures exist to promote and enforce patients' rights. It is now time for the anti-cancer associations to play an active role in this important event and to try to define a new mission for the benefit of the patients...
  16. ncbi Patients' bill of rights: legislative cure-all or prescription for disaster?
    Matthew J Binette
    North Carol Law Rev 81:653-96. 2003
  17. ncbi Social audit of provincial health services: building the community voice into planning in South Africa
    Neil Andersson
    CIETafrica, Saxonwold, South Africa
    J Interprof Care 18:381-90. 2004
    ..Leadership in the health services turned out to be a fourth area for development. And finally, related to this, is the longer-term challenge of establishing and reinforcing community consultation mechanisms...
  18. ncbi A law for end of life care in France?
    François J P Lemaire
    Service de Réanimation Médical, Hopital Henri Mondor, 51 av M de Lattre de Tassigny, 94010 Creteil Cedex, France
    Intensive Care Med 30:2120. 2004
  19. pmc Informed consent and public health
    Onora O'Neill
    Newnham College, University of Cambridge, Cambridge CB3 9DF, UK
    Philos Trans R Soc Lond B Biol Sci 359:1133-6. 2004
    ..It will therefore gain more from engaging with work in political philosophy than with individualistic work in ethics...
  20. pmc The United States Revised Uniform Anatomical Gift Act (2006): new challenges to balancing patient rights and physician responsibilities
    Joseph L Verheijde
    Department of Physical Medicine and Rehabilitation, Mayo Clinic Hospital, Mayo Clinic Arizona, 5777 East Mayo Boulevard, Phoenix, Arizona 85054, USA
    Philos Ethics Humanit Med 2:19. 2007
    ....
  21. pmc Consent and end of life decisions
    John Harris
    Institute of Medicine, Law and Bioethics, School of Law, University of Manchester, UK
    J Med Ethics 29:10-5. 2003
    ....
  22. ncbi [Patients, physicians and nurses: three different points of view on the same issue. Attitudes to and perceptions of patient rights]
    Joan Guix Oliver
    Departamento de Medicina Preventiva y Salud Publica, Facultad de Medicina y Ciencias de la Salud, Universitat Rovira i Virgili, Reus, Tarragona, Espana
    Gac Sanit 20:465-72. 2006
    To analyze patients', physicians' and nurses' attitudes to and perceptions of patient rights in the public hospitals of the Reus health district in Catalonia (Spain).
  23. pmc Ethical analysis of the new proposed mental health legislation in England and Wales
    Peter Lepping
    North East Wales NHS Trust, Wrexham University of Wales Academic Unit, Wrexham, Wales, UK
    Philos Ethics Humanit Med 2:5. 2007
    ..It gives examples of these changes and explores its their consequences...
  24. pmc Images of war and medical ethics
    Jerome A Singh
    BMJ 326:774-5. 2003
  25. ncbi [Patient autonomy and information and clinical documentation-related rights within the context of Spanish Law 41/2002]
    Cesáreo García Ortega
    Servicio de Admisión y Documentación Clínica, Hospital Punta de Europa, Algeciras, Cadiz
    Rev Esp Salud Publica 78:469-79. 2004
    ..This study is aimed at describing this body of law and at analysing the repercussions thereof on citizen relations, health professionals and the National Health System as regards the matter of clinical documentation and information...
  26. ncbi The medical practice of patient autonomy and cancer treatment refusals: a patients' and physicians' perspective
    Titia van Kleffens
    VU University Medical Center, Department of Philosophy and Medical Ethics, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands
    Soc Sci Med 58:2325-36. 2004
    ..Discussing the respect shift may serve to clarify underlying thoughts and principles in the decision-making process for both physicians and patients...
  27. pmc Treating competent patients by force: the limits and lessons of Israel's Patient's Rights Act
    M L Gross
    Department of Political Science, University of Haifa, Israel
    J Med Ethics 31:29-34. 2005
    ..These concerns reach past Israel and should engage healthcare professionals wary that respect for autonomy may sometimes cause avoidable harm...
  28. ncbi [Hemorrhage and transfusion: the case of Jehovah's witnesses]
    Pierre Guy Chassot
    Service d anesthésiologie CHUV, 1011 Lausanne
    Rev Med Suisse 2:2674-6, 2678-9. 2006
    ..Above all, the entire medical team must respect the personal values of the patient despite any contradiction with their own values. This means that judgements based on values must be avoided in order to allow for the freedom of thought...
  29. ncbi Group decisions in oncology: doctors' perceptions of the legal responsibilities arising from multidisciplinary meetings
    M A Sidhom
    Liverpool Hospital Cancer Therapy Centre, Sydney, New South Wales, Australia
    J Med Imaging Radiat Oncol 52:287-92. 2008
    ..A greater awareness of these responsibilities and improved team dynamics should optimize patient outcomes while limiting exposure of participants to legal liability...
  30. pdf Relational autonomy or undue pressure? Family's role in medical decision-making
    Anita Ho
    Department of Philosophy, College of St Catherine, St Paul, MN, USA
    Scand J Caring Sci 22:128-35. 2008
    ..It argues that, in the absence of abuse and neglect, respect for autonomy and agency requires clinicians to abide by patients' expressed wishes...
  31. pmc Decision-making capacity in an age of control
    Kenneth M Flegel
    CMAJ 178:127, 129. 2008
  32. ncbi Influence of ethical safeguards on research participation: comparison of perspectives of people with schizophrenia and psychiatrists
    Laura W Roberts
    Department of Psychiatry and Behavioral Medicine, Medical College of Wisconsin, 8701 Watertown Plank Rd, Milwaukee, WI 53226, USA
    Am J Psychiatry 161:2309-11. 2004
    ..The authors' goal was to examine these perspectives...
  33. ncbi Normal variants of competence to consent to treatment
    Abraham Rudnick
    Tel Aviv University, School of Medicine, Israel
    HEC Forum 16:129-37. 2004
  34. ncbi Defining the scope of implied consent in the emergency department: shortchanging patients' right to self determination
    Joseph L Verheijde
    Mayo Clinic Hospital, Phoenix, AZ, USA
    Am J Bioeth 7:51-2; discussion W3-4. 2007
  35. ncbi Truth-telling in clinical practice and the arguments for and against: a review of the literature
    Anthony G Tuckett
    Faculty of Health Sciences Nursing, Australian Catholic University, McAuley at Banyo, PO Box 456, Virginia, QLD, Australia 4014
    Nurs Ethics 11:500-13. 2004
    ....
  36. ncbi [Patient autonomy]
    A Ortega Moreno
    Servicio de Neurologia, Centro de Rehabilitacion y Traumatologia, Hospital Universitario Virgen de las Nieves, Granada
    Neurologia 19:30-6. 2004
    ..Finally, the LAP details when the informed consent is advisable by representation, closely linked to the patient's capacity as well as the regulation of previous instructions...
  37. ncbi Terminal care...not terminal career
    Mohammad Zafir al-Shahri
    Department of Oncology, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia
    Am J Hosp Palliat Care 22:12. 2005
  38. ncbi Patient autonomy in the age of consumer-driven health care: informed consent and informed choice
    Marshall B Kapp
    Southern Illinois University School of Law, USA
    J Leg Med 28:91-117. 2007
  39. ncbi The use and disclosure of protected health information for research under the HIPAA privacy rule: unrealized patient autonomy and burdensome government regulation
    Stacey A Tovino
    Health Law and Policy Institute, University of Houston Law Center, USA
    S D Law Rev 49:447-502. 2004
  40. ncbi A defense of unqualified medical confidentiality
    Kenneth Kipnis
    University of Hawaii, Manoa, USA
    Am J Bioeth 6:7-18. 2006
    ..It is shown how the protective purpose to be furthered by reporting is defeated by the practice of reporting. Hence there is no conflict between confidentiality and the professional responsibility to protect endangered third parties...
  41. ncbi Rethinking informed consent: the case for shared medical decision-making
    Jaime Staples King
    Center for Law and Biosciences, Stanford Law School, USA
    Am J Law Med 32:429-501. 2006
  42. ncbi [The origin of informed consent]
    V Mallardi
    Cattedra di Otorinolaringoiatria, Istituto di Odontostomatologia, Universita Politecnica delle Marche, Ancona, Italy
    Acta Otorhinolaryngol Ital 25:312-27. 2005
    ..abstract truncated)..
  43. ncbi Colostomy: getting patient consent to treatment for surgery
    Bridgit Dimond
    University of Glamorgan, UK
    Br J Nurs 15:334-5. 2006
    ..This article explores the law relating to consent to treatment and the duty to inform a patient of the significant risks of serious harm which could arise from the treatment...
  44. ncbi Advance directives, best interests and clinical judgement: shifting sands at the end of life
    Ash Samanta
    University Hospitals of Leicester NHS Trust
    Clin Med 6:274-8. 2006
    ..This paper examines contemporary issues surrounding end-of-life decision-making against the backdrop of the existing and proposed legal framework...
  45. ncbi [Patients human dignity and the health care]
    H Svobodova
    Ustav pro lékarskou etiku a osetrovatelství 3 LF UK, Praha
    Cas Lek Cesk 145:495-7. 2006
    ..It is discussed in the text how we can understand the term from philosophical and practical perspectives and how we can use it for the benefit of our patients...
  46. ncbi [Refusing treatment: patient responsibility and autonomy. About a French National Consultative Ethics Committee statement(no 87, April 2005)]
    Daniel Oppenheim
    Département de pédiatrie et Unité de psycho oncologie, Institut Gustave Roussy, 39, rue Camille Desmoulin, 94805 Villejuif
    Bull Cancer 93:133-7. 2006
    ....
  47. ncbi Helping our children and adolescents become competent to participate in healthcare decisions
    Susan B Dickey
    Temple University, Department of Nursing, USA
    Pa Nurse 62:16-7. 2007
  48. ncbi Pacemaker and defibrillator deactivation in competent hospice patients: an ethical consideration
    Jennifer M Ballentine
    The Iris Project, Denver, Colorado, USA
    Am J Hosp Palliat Care 22:14-9. 2005
    ..Although the specific deliberations of the DCBC are confidential, this article summarizes contributions from the committee's discussion, as well as independent research undertaken by the author...
  49. pmc Autonomy in medical ethics after O'Neill
    G M Stirrat
    Centre for Ethics in Medicine University of Bristol, Bristol, UK
    J Med Ethics 31:127-30. 2005
    ....
  50. ncbi Varied and principled understandings of autonomy in English law: justifiable inconsistency or blinkered moralism?
    John Coggon
    Centre for Social Ethics and Policy, School of Law, University of Manchester, Manchester, UK
    Health Care Anal 15:235-55. 2007
    ..Whatever the cause, I suggest that once this practice is seen to occur, acceptable justification of it in some cases is difficult to find...
  51. ncbi Medical research on patients with dementia--the role of advance directives in European legal instruments
    Salla Lotjonen
    The University of Manchester, United Kingdom
    Eur J Health Law 13:235-61. 2006
    ..This article examines the provisions in these documents and their national applications in Finland and the United Kingdom...
  52. ncbi Informed consent law, ethics, and practice: from infancy to reflective adolescence
    Roberta M Berry
    Georgia Institute of Technology, USA
    HEC Forum 17:64-81. 2005
  53. ncbi Fiduciary disclosure of medical mistakes: the duty to promptly notify patients of adverse health care events
    T A Faunce
    Medical School, The Australian National University
    J Law Med 12:478-82. 2005
    ..The reasons for creating such a presumption, as well as its elements and exceptions, are explained...
  54. ncbi [Treatment based on patient's consent: controversies, doubts, ambiguities]
    Czesław Zaba
    Katedry i Zakładu Medycyny Sadowej, Akademii Medycznej im Karola Marcinkowskiego w Poznaniu
    Arch Med Sadowej Kryminol 57:122-7. 2007
    ..Finally, selected aspects of compulsory procedures were presented, in particular the principles of compulsory examination of a patient in penal proceedings and the use of constraint in the emergency detoxification centers...
  55. ncbi The right to remain in ignorance about genetic information--can such a right be defended in the name of autonomy?
    Phillipa Malpas
    Department of Philosophy, University of Auckland, Auckland, New Zealand
    N Z Med J 118:U1611. 2005
    ..I conclude by claiming that ignorance cannot be justified in the name of autonomy, and furthermore that where genetic information is pertinent to one's future autonomy, one cannot exercise a right not to know...
  56. ncbi Assent for treatment: clinician knowledge, attitudes, and practice
    K Jane Lee
    Departments of Pediatrics, bSurgery, and cAnesthesia, Medical College of Wisconsin, Milwaukee, Wisconsin, USA
    Pediatrics 118:723-30. 2006
    ..Our purpose for this work was to explore clinician knowledge, attitudes, and practice regarding assent for medical treatment and to compare current practice with existing American Academy of Pediatrics guidelines...
  57. ncbi Whose life is it anyway? An exploration of five contemporary ethical issues that pertain to the psychiatric nursing care of the person who is suicidal: part one
    John R Cutcliffe
    David G Braithwaite Department of Nursing, University of Texas, Tyler, USA
    Int J Ment Health Nurs 17:236-45. 2008
    ..Lastly, the authors find that the relevant theoretical and ethical literature in this area suggests, at least for some and under certain conditions, suicide can be the right thing to do...
  58. ncbi General practitioners' perspectives regarding competence and confidentiality in an adolescent with suspected anorexia nervosa: legal and ethical considerations
    Terence P Bartholomew
    School of Psychology, Deakin University, 221 Burwood Highway, Burwood, Victoria
    J Law Med 10:308-24. 2003
    ..This research highlights the need for general practitioners to be exposed to up-to-date and clinically relevant explanations of contemporary legal positions...
  59. ncbi Ethical considerations of genetic testing
    David A Fleming
    Center for Health Ethics, University of Missouri School of Medicine, Columbia, USA
    J Clin Ethics 13:316-23. 2002
  60. ncbi Decision-making preferences towards surgical intervention in a Hong Kong Chinese population
    A Henderson
    Princess Alexandra Hospital, Woolloongabba, 4102 Queensland, Australia
    Int Nurs Rev 50:95-100. 2003
    ..Studies indicate that not all patients wish to take part in decision making about treatment...
  61. ncbi Patients' autonomy in surgical care: a comparison of nurses' perceptions in five European countries
    R Suhonen
    Health Care District of Forssa, Forssa Hospital, Forssa, Finland
    Int Nurs Rev 50:85-94. 2003
    ..This report forms part of the results of an international comparative study funded by the European Commission (1998-2001)...
  62. ncbi In response to "The development and piloting of a capacity and assessment tool"
    Helen M Sharp
    Department of Speech Pathology and Audiology, Program in Biomedical Ethics and Medical Humanities, Department of Preventive and Community Dentistry, University of Iowa, Iowa City, USA
    J Clin Ethics 13:165-7. 2002
  63. ncbi Does a doctor have a duty to provide information and advice about complementary and alternative medicine?
    Elizabeth Brophy
    J Law Med 10:271-84. 2003
    ..In addition, it is important to facilitate access to the best of conventional and complementary treatments to ensure better health outcomes for the patient...
  64. ncbi The new subjective medicine: taking the patient's point of view on health care and health
    Mark Sullivan
    Psychiatry and Behavioral Sciences, Medical History and Ethics, University of Washington, 98195, Seattle, WA, USA
    Soc Sci Med 56:1595-604. 2003
    ..This further incorporation of patient subjectivity should carry us well beyond informed consent and the other protections for patient autonomy bequeathed to us by bioethics...
  65. ncbi The right not to know and coronary angiography: is the common law of Australia consistent with patients' wishes?
    Judy Gutman
    La Trobe Law, La Trobe University, Bundoora, Vic, Australia
    J Law Med 10:168-73. 2002
    ..The study also highlights the desirability of clinical medical practice conforming to the tenets of the common law and vice versa...
  66. ncbi Assessing the Competence Assessment Tool
    Ralph Baergen
    Department of English and Philosophy, Idaho State University, Pocatello, USA
    J Clin Ethics 13:160-4. 2002
  67. ncbi Information is the key to patient empowerment
    Robert John Kane
    Illinois State Medical Society, Southern Illinois University School of Medicine, Springfield, IL, USA
    Ann Health Law 11:25-44, table of contents. 2002
    ..A checklist sets forth questions which a patient should ask of herself and of her provider before entering into health care decisions...
  68. ncbi [Ethics and law in intensive therapy]
    Gabor Elo
    Semmelweis Egyetem, Általános Orvostudományi Kar, Aneszteziológiai és Intenzív Terápiás Klinika, Budapest
    Orv Hetil 143:1991-5. 2002
    ..The patient who was thought to be hopeless yesterday is given a chance to survive. As in other fields of medicine parallel with their development, several ethical and legal problems arise and wait for solutions...
  69. ncbi The case of Chester M. Southam: research ethics and the limits of professional responsibility
    Beth Aviva Preminger
    Cornell University Joan and Sanford I Weill Medical College, USA
    Pharos Alpha Omega Alpha Honor Med Soc 65:4-9. 2002
  70. ncbi The psychological structure of patient autonomy
    Bruce N Waller
    Youngstown State University, Youngstown, Ohio, USA
    Camb Q Healthc Ethics 11:257-65. 2002
  71. ncbi [Medicine based on information technology--effect on autonomy and vulnerability]
    Age Wifstad
    Institutt for samfunnsmedisin Universitetet i Tromsø 9037 Tromsø
    Tidsskr Nor Laegeforen 122:720-2. 2002
  72. ncbi Health decisions and decision support for women
    M L Rothert
    College of Nursing, Michigan State University, East Lansing, MI, USA
    Annu Rev Nurs Res 19:307-24. 2001
    ..with key issues: historical concepts related to patients and providers, consumerism, informed choice/consent, patient rights, shared decision making, patient involvement, as well as an overview of models of patient/provider ..
  73. ncbi Respecting patients' rights in manuscripts: confidentiality, informed consent, and IRB approval
    Linda Ohler
    Linda
    Nurse Author Ed 13:7-9. 2003
    ..Patients' rights for privacy and confidentiality extend to publications. This author describes how authors, reviewers, and editors can ensure patient confidentiality in manuscripts...
  74. ncbi The view of the General Medical Council
    Cyril Chantler
    General Medical Council, London, UK
    J Health Serv Res Policy 8:S1:28-32. 2003
    ..The challenge is not to answer the question whether we need consent but rather how we can best obtain it...
  75. ncbi [Patient participation in clinical training of medical students. Interviews with teachers, patients and students]
    Niels Lynoe
    institutionen för lärande, Informatik, management och etik, Stockholm
    Lakartidningen 105:2568-71. 2008
  76. ncbi Sick autonomy
    Alfred I Tauber
    Center for Philosophy and History of Science, Boston University, MA 02215, USA
    Perspect Biol Med 46:484-95. 2003
    ..This reorientation is crucial for reasserting the ethos of clinical medicine, whose fundamental mandate remains the care of others...
  77. ncbi [Medical ethics and deontology; patient rights. Diagnostic problems, with respect to the person and to death]
    Bertrand Ludes
    Institut de Medecine Legale, 67085 Strasbourg
    Rev Prat 53:1709-14. 2003
  78. ncbi Clinical ethics in the context of language and cognitive impairment: rights and protections
    Lynne C Brady Wagner
    Spaulding Rehabilitation Hospital, Boston, Massachusetts 02114, USA
    Semin Speech Lang 24:275-84. 2003
    ..They also serve to demonstrate ways in which speech-language pathologists can provide the expertise needed to assist patients and medical teams in addressing these particular issues and ensuring patient autonomy...
  79. pmc Should patients be allowed to veto their participation in clinical research?
    H M Evans
    CAHHM, University of Durham, Durham, UK
    J Med Ethics 30:198-203. 2004
    ..By analogy with the paying of income tax, patients should not be allowed to "veto" their social responsibility to take part in clinical research...
  80. ncbi The maelstrom of civil commitment in Ontario: using examinations conducted during periods of unlawful detention to form the basis of subsequent involuntary detention under Ontario's Mental Health Act
    Aaron A Dhir
    Health Law Can 24:9-18. 2003
  81. ncbi Respect for patient autonomy
    K Moodley
    Department of Ethical Issues, University of Stellenbosch
    SADJ 58:323. 2003
    ..Patient autonomy is becoming increasingly important in postmodern medicine and is changing the nature of the doctor--patient relationship...
  82. ncbi Point-counterpoint. HIPAA privacy: what is the dilemma?
    Richard Stubbs
    MultiCare Health System, Tacoma, Wash, USA
    Physician Exec 30:35, 39-40. 2004
  83. ncbi HIV/AIDS care and treatment in three provinces in northern Thailand before the national scale-up of highly-active antiretroviral therapy
    Sombat Thanprasertsuk
    Bureau of AIDS, TB, and STls, Department of Disease Control, Ministry of Public Health, Nonthaburi, Thailand
    Southeast Asian J Trop Med Public Health 37:83-9. 2006
    ..Thailand's current national HAART scale-up is being performed in a setting of well-developed hospital-based services introduced over the course of the epidemic...
  84. ncbi Governing the ethical consumer: identity, choice and the primary care medical encounter
    Ruth McDonald
    National Primary Care Research and Development Centre, University of Manchester, Manchester, UK
    Sociol Health Illn 29:430-56. 2007
    ..These anxieties are exacerbated in a context where citizenship is increasingly being defined in terms of consumer identities, and making good (health) choices might be seen as distinguishing the civilised from the marginalised...
  85. ncbi Informing patients about small risks: A comparative approach
    A J G M Janssen
    Academic Medical Center University of Amsterdam
    Eur J Health Law 13:159-72. 2006
    ..To explore this issue, a comparative study has been carried out. The legal position taken with regard to informing about treatment risks in the Netherlands has been compared to that in the UK and Germany...
  86. ncbi The new HIPAA law on privacy and confidentiality
    Sue Dill Calloway
    Nurs Adm Q 26:40-54. 2002
    ..Implementation will require education to understand the intricacies of the law. The law carries substantial penalties for failure to comply...
  87. ncbi Ethical challenges of pregnancy prevention programs
    Robert Bonebrake
    Department of Obstetrics and Gynecology, Creighton University School of Medicine, Omaha, Nebraska, USA
    Cutis 81:494-500. 2008
    ..All teratogenic agents should be covered by PPPs, which then must be no more burdensome than requirements that have existed for many years for other controlled substances...
  88. ncbi [Conflicts of interest in financing medical research]
    Matti Uusitupa
    Duodecim 119:1405-7. 2003
  89. ncbi A national action plan to support consumer engagement via e-health
    Lygeia Ricciardi
    Office of Consumer eHealth, Office of the National Coordinator for Health Information Technology, Department of Health and Human Services, Washington, D C, USA
    Health Aff (Millwood) 32:376-84. 2013
    ....
  90. ncbi Are religion and religiosity important to end-of-life decisions and patient autonomy in the ICU? The Ethicatt study
    Hans Henrik Bulow
    Intensive Care, Holbaek Hospital, Region Zealand, Smedelundsgade 60, Holbaek, 4300, Denmark
    Intensive Care Med 38:1126-33. 2012
    ..This study explored differences in end-of-life (EOL) decisions and respect for patient autonomy of religious members versus those only affiliated to that particular religion (affiliated is a member without strong religious feelings)...
  91. ncbi Immediate reporting of screening mammography
    Ferris M Hall
    AJR Am J Roentgenol 178:1031-2. 2002
  92. ncbi Patient requested removal of ventilatory support in high-level tetraplegia: guidelines for the health care provider
    D M Lemke
    Department of Neurosurgery, Medical College of Wisconsin, Milwaukee, Wisconsin, USA
    SCI Nurs 18:67-73. 2001
    ..These provide insight into potential problems for all involved and clearly define steps that individuals should take to assure that the decision is made with informed consent rather than emotions...
  93. ncbi The Medicaid managed care grievance process: new protections for beneficiaries
    Timothy S Brady
    Office of Inspector General, U S Department of Health and Human Services, San Francisco, California, USA
    Healthc Financ Manage 56:46-51. 2002
    ..Data from grievances may provide information that can help healthcare providers update medical protocols...
  94. pmc Diagnosing brain death without a neurologist
    Holger Baumgartner
    BMJ 324:1471-2. 2002
  95. ncbi Making people be healthy
    Timothy Martin Wilkinson
    Department of Political Studies, The University of Auckland, PB 92019 Auckland, New Zealand
    J Prim Health Care 1:244-6. 2009
    ..A persistent theme is that thinking sensibly about making people healthier needs subtlety, not broad, ringing declarations...
  96. ncbi [Human dignity: the utmost goal of a chaplain]
    Augusto Vila-Chã
    Servir 52:2-4. 2004
  97. ncbi Patient's right to choose raises points with common grounds
    Barbara Harty-Golder
    MLO Med Lab Obs 35:53. 2003
  98. ncbi Standard nursing care: an asset
    R Danasu
    Adhiparasakthi College of Nursing, Melmaruvathur, Tamil Nadu
    Nurs J India 98:128-30. 2007
  99. ncbi Unanswered questions: bioethics and human relationships
    Eric J Cassell
    McGill University
    Hastings Cent Rep 37:20-3. 2007
  100. ncbi Bringing moral order to the ordinary: outpatient ethics takes shape
    Robert Lyman Potter
    Midwest Bioethics Center, Kansas City, Missouri, USA
    J Clin Ethics 13:274-81. 2002
  101. pmc How should we measure informed choice? The case of cancer screening
    R G Jepson
    Division of Community Health Sciences General Practice, University of Edinburgh, Edinburgh, UK
    J Med Ethics 31:192-6. 2005
    ..Factors important when measuring informed choice in cancer screening include an individual's understanding of the limitations of screening, the ability to make an autonomous choice, and the difference between choice and behaviour...

Research Grants31

  1. Genetic Counseling Processes and Analogue Client Outcome
    Debra Roter; Fiscal Year: 2006
    ..abstract_text> ..
  2. RUPP-PI Project
    Michael Aman; Fiscal Year: 2006
    ..S.U. also plans two pilot studies: (a) a randomized clinical trial in 60 children with PDDs and severe ADHD behavior and (b) a study of ziprasidone in 30 children and adolescents with PDDs and highly irritable behaviors. ..
  3. Mentoring the Responsible Conduct of Research
    Celia Fisher; Fiscal Year: 2006
    ..unreadable] [unreadable]..
  4. End of Life Nursing Education through Graduate Programs
    Betty Ferrell; Fiscal Year: 2006
    ..This proposal includes extensive evaluation planned to monitor individual and institutional dissemination. ..
  5. Participant Perspectives on Drug Use/HIV Research Ethics
    Celia Fisher; Fiscal Year: 2007
    ..unreadable] [unreadable] [unreadable]..
  6. Clinical Versus Experiential Views of Genetic Disability
    CAROL GILL; Fiscal Year: 2005
    ....
  7. Evaluating Striatal Function in a Murine HD Model
    Roger Albin; Fiscal Year: 2007
    ..Validation of these methods will provide new and useful behavioral tools for evaluating murine disease models. [unreadable] [unreadable] [unreadable]..
  8. AUSTRALASIAN COLORECTAL CANCER FAMILY REGISTRY
    John Hopper; Fiscal Year: 2007
    ..i ..
  9. Oncology Nursing Education in End of Life Care
    Betty Ferrell; Fiscal Year: 2007
    ..This proposal includes extensive evaluation planned to monitor individual and institutional dissemination. [unreadable] [unreadable] [unreadable]..
  10. Risks for Opioid Use and Abuse in Contrasting Chronic Pain Populations
    Mark Sullivan; Fiscal Year: 2009
    ....
  11. VALUE MEASUREMENT IN CEA: FAIRNESS TO ELDERLY/DISABLED
    Peter Ubel; Fiscal Year: 2003
    ..The goal is to evaluate whether PTO determinations can be an effective solution to the problems that arise when conventional utility assessment is applied to the evaluation of health care programs for the elderly and disabled. ..
  12. Amelioration of Literacy Deficits in Prenatal Care
    Debra Roter; Fiscal Year: 2009
    ....
  13. Patient-Centeredness in Care of Vulnerable Populations
    Mary Catherine Beach; Fiscal Year: 2007
    ..abstract_text> ..
  14. CONSENT CAPACITY OF ADULTS WITH MENTAL RETARDATION
    Celia Fisher; Fiscal Year: 2002
    ..A significant other is also chosen by the subjects to aid in them during the three format presentations. ..
  15. Psychosocial Intervention in HIV-Affected Children in Haiti
    Joia Mukherjee; Fiscal Year: 2006
    ..Lastly, a group intervention for HIV affected children will be piloted to generate preliminary data for a larger, R01 study designed to prevent poor outcomes in HlV-affected children. ..
  16. Exploring Attitudes About Data Disclosure and Data-Sharing in Genomics Research
    Susanne Haga; Fiscal Year: 2008
    ..The success of large-scale genomics research initiatives will depend on the support and participation of the public and therefore, their views are critically important to obtain. [unreadable] [unreadable] [unreadable]..
  17. PATIENT AND PUBLIC EDUCATION IN CANCER PAIN MANAGEMENT
    Betty Ferrell; Fiscal Year: 2002
    ..This course will impact 120 healthcare settings to improve pain management and quality of life in cancer patients and to establish model pain education programs for national dissemination. ..
  18. Rapid Assessment of Drug Law & Policy in the FSU & CEE
    Zita Lazzarini; Fiscal Year: 2007
    ..abstract_text> ..
  19. Respondent Burden and Retention in Cancer Clinical Trials
    Connie Ulrich; Fiscal Year: 2009
    ..Early identification and pre-emptive interventions prior to encountering retention problems in cancer clinical trials may mitigate respondent burden and lead to completion of important, resource intensive clinical trials. ..
  20. Reducing Barriers to Pain and Fatigue Management
    Betty Ferrell; Fiscal Year: 2009
    ....
  21. Culturally Responsive Person-Centered Care for Psychosis
    Larry Davidson; Fiscal Year: 2008
    ..If successful in the state of Connecticut, the project will offer a model that then can be replicated throughout the country to enhance care for this historically underserved population. [unreadable] [unreadable]..
  22. Global Summit on International Breast Health-Implementation
    Benjamin Anderson; Fiscal Year: 2007
    ..The resulting 2007 Implementation Guidelines will serve as a practical medical tool providing functional real world examples of "how to implement" best practices with limited health care resources. [unreadable] [unreadable] [unreadable]..
  23. Dignity Intervention for Terminally Ill Cancer Patients
    Harvey Chochinov; Fiscal Year: 2007
    ..abstract_text> ..
  24. Fordham Resident Alcohol Prevention Program
    Celia Fisher; Fiscal Year: 2007
    ..unreadable] [unreadable]..
  25. ETHICAL AND POLICY CHALLENGES IN THE STUDY AND USE OF DB
    Dorothy Vawter; Fiscal Year: 2005
    ..In addition, a national conference will conclude the project - diss3eminating the project's ethical and policy findings, tools, and recommendations in a forum intended to influence the regulatory and policy environment (Aim 4). ..
  26. INCREASING TREATMENT ADHERENCE THROUGH SOCIAL ENGAGEMENT
    Larry Davidson; Fiscal Year: 2004
    ....
  27. DISCREPANCIES BETWEEN PATIENT AND PUBLIC UTILITY RATINGS
    Peter Ubel; Fiscal Year: 2004
    ..It is not clear how the quality of life, and comorbidity measures will be used in these models. ..
  28. Cost-Effectiveness--Treatments--Ductal Carcinoma In Situ
    Jennifer Griggs; Fiscal Year: 2004
    ..abstract_text> ..
  29. Toward Consensus on Benefit Sharing in Genetics Research
    Jon Merz; Fiscal Year: 2002
    ..The goal is not to find consensus, but to identify key issues and generate ideas to best satisfy the interests and needs of all involved parties. ..
  30. MURINE MODEL OF CAG REPEAT DISEASES
    Roger Albin; Fiscal Year: 2002
    ..These experiments will establish HPRT-CAG mice as important tools for understanding neurodegeneration in CAG repeat diseases and enable accurate preclinical evaluation of interventions for CAG repeat diseases. ..
  31. Role of Altered CCK Response in Bulimia Nervosa
    Sandra L Hannon Engel; Fiscal Year: 2010
    ....