access to information
Summary: Individual's rights to obtain and use information collected or generated by others.
Publications270 found, 100 shown here
- Empirical study of data sharing by authors publishing in PLoS journalsCaroline J Savage
Department of Epidemiology and Biostatistics, Memorial Sloan Kettering Cancer Center, New York, New York, USA
PLoS ONE 4:e7078. 2009..These policies are explicit, but remain largely untested. We sought to determine how well authors comply with such policies by requesting data from authors who had published in one of two journals with clear data sharing policies...
- Challenges and opportunities of open data in ecologyO J Reichman
National Center for Ecological Analysis and Synthesis, University of California, Santa Barbara, 735 State Street, Suite 300, Santa Barbara, CA 93101, USA
Science 331:703-5. 2011..The establishment of well-curated, federated data repositories will provide a means to preserve data while promoting attribution and acknowledgement of its use...
- Genomic databases access agreements: legal validity and possible sanctionsYann Joly
Deptartment of Human Genetics, Faculty of Medicine, Centre of Genomics and Policy, McGill University, 740 Dr Penfield Avenue, Suite 5101, Montreal, QC H3A 1A4, Canada
Hum Genet 130:441-9. 2011..This suggests the importance for researchers to undertake additional empirical studies on the clarity and accessibility of existing database access agreements and related policies in the near future...
- Patient race/ethnicity and shared medical record use among diabetes patientsCourtney R Lyles
Center for Vulnerable Populations, University of California, San Francisco, CA, USA
Med Care 50:434-40. 2012..Less is known about whether these are driven by patient-level preferences and/or barriers versus broader provider or system factors...
- Internet-based information-seeking behaviour amongst doctors and nurses: a short review of the literaturePaula Younger
North Somerset Healthcare Library, Ground Floor, Weston Area Health Trust, Weston Super Mare, BS23 4TQ, UK
Health Info Libr J 27:2-10. 2010..as is original research into their online searching behaviour. This review collates some of the existing evidence, from 1995 to 2009...
- The International Stroke Trial databasePeter A G Sandercock
Department of Clinical Neurosciences, University of Edinburgh, Department of Clinical Neurosciences, Western General Hospital, Edinburgh EH4 2XU, UK
Trials 12:101. 2011....
- Open access, readership, citations: a randomized controlled trial of scientific journal publishingPhilip M Davis
Department of Communication, Cornell University, Ithaca, NY 14853, USA
FASEB J 25:2129-34. 2011..The real beneficiaries of open access publishing may not be the research community but communities of practice that consume, but rarely contribute to, the corpus of literature...
- Data sharing: not as simple as it seemsNeil Pearce
Faculty of Epidemiology and Population Health, London School of Hygiene and Tropical Medicine, UK
Environ Health 10:107. 2011..Thus, the undoubted benefits of data sharing does not remove the obligations and responsibilities that the original investigators hold for the people they invited to participate in the study...
- The development of open access journal publishing from 1993 to 2009Mikael Laakso
HANKEN School of Economics, Helsinki, Finland
PLoS ONE 6:e20961. 2011..Based on the sampling results and qualitative data a division into three distinct periods is suggested: The Pioneering years (1993-1999), the Innovation years (2000-2004), and the Consolidation years (2005-2009)...
- Improving diabetes management with a patient portal: a qualitative study of diabetes self-management portalSara Urowitz
ELLICSR Health, Wellness and Cancer Survivorship Centre, University Health Network, Toronto, ON, Canada
J Med Internet Res 14:e158. 2012..With increasing access and use of the Internet, online chronic disease management is being explored as a means of providing patients with support and the necessary tools to monitor and manage their disease...
- An open access database of genome-wide association resultsAndrew D Johnson
National Heart, Lung, and Blood Institute s Framingham Heart Study, Framingham, MA, USA
BMC Med Genet 10:6. 2009..However, no database or centralized resource currently exists that contains anywhere near the full scope of GWAS results...
- Improving access to information and support for patients with less common cancers: hematologic cancer patients' views about Web-based approachesChristine Louise Paul
Health Behaviour Research Group, Priority Research Centre for Health Behaviour, Hunter Medical Research Institute, School of Medicine and Public Health, University of Newcastle, Callaghan, Australia
J Med Internet Res 13:e112. 2011..Internet-based approaches offer an opportunity to better meet patients' information and support needs by overcoming the barrier of geographic isolation...
- Open by default: a proposed copyright license and waiver agreement for open access research and data in peer-reviewed journalsIain Hrynaszkiewicz
BioMed Central Ltd, London, UK
BMC Res Notes 5:494. 2012..We further believe this model could be adopted across multiple publishers, and invite comment on this article from all stakeholders in scientific research...
- Consumers' experiences of back pain in rural Western Australia: access to information and services, and self-management behavioursAndrew M Briggs
Curtin Health Innovation Research Institute, Curtin University, GPO Box U1987, Perth, Western Australia 6845, Australia
BMC Health Serv Res 12:357. 2012..The objective of this qualitative study was to explore barriers experienced by consumers in rural settings in Western Australia (WA) to accessing information and services and implementing effective self-management behaviours for CLBP...
- Public availability of published research data in high-impact journalsAlawi A Alsheikh-Ali
Institute of Cardiac Sciences, Sheikh Khalifa Medical City, Abu Dhabi, United Arab Emirates
PLoS ONE 6:e24357. 2011..There is increasing interest to make primary data from published research publicly available. We aimed to assess the current status of making research data available in highly-cited journals across the scientific literature...
- The Health Information National Trends Survey (HINTS): development, design, and disseminationDavid E Nelson
National Cancer Institute, Bethesda, Maryland 20892 7365, USA
J Health Commun 9:443-60; discussion 81-4. 2004....
- Access to information sources and treatment considerations among men with local stage prostate cancerScott D Ramsey
Public Health Sciences Division, Fred Hutchinson Cancer Research Center, Seattle, WA 98109 1024, USA
Urology 74:509-15. 2009..Diagnosed men have access to a large number of information sources about therapy, including print and broadcast media, the Internet, books, and friends with the disease...
- Reducing disparities in the access and use of Internet health information. a discussion paperJean A Gilmour
Massey University, Private Box 756, Wellington, New Zealand
Int J Nurs Stud 44:1270-8. 2007..The challenge for nurses and other health professionals is directing that knowledge to the groups most disadvantaged in the current health care systems, with an agenda of reducing inequalities in access to health information...
- Patients' attitudes towards sharing their health informationRichard Whiddett
Department of Information Systems, Massey University, Palmerston North, New Zealand
Int J Med Inform 75:530-41. 2006..This research investigated (1) the attitudes of patients toward sharing their medical information and (2) whether patients considered themselves to be well-informed about the uses that are made of their information...
- Pharmaceutical knowledge governance: a human rights perspectiveTrudo Lemmens
University of Toronto
J Law Med Ethics 41:163-84. 2013..This type of finding should inform needed reforms of drug regulation. The paper ends with a recommendation for a comprehensive global response to the problem of pharmaceutical knowledge governance...
- Giving patients access to their medical records via the internet: the PCASSO experienceDaniel Masys
Biomedical Informatics, School of Medicine, University of California, San Diego, La Jolla, California 92093 0602, USA
J Am Med Inform Assoc 9:181-91. 2002..The Patient-Centered Access to Secure Systems Online (PCASSO) project is designed to apply state-of-the-art-security to the communication of clinical information over the Internet...
- Repository on maternal child health: health portal to improve access to information on maternal child health in IndiaRajesh Khanna
Saving Newborn Lives, Save the Children, New Delhi, India
BMC Public Health 13:2. 2013..This article describes a health portal developed in India aimed at providing one-stop access to efficiently search, organize and share maternal child health information relevant from public health perspective in the country...
- Attitudes to the public release of comparative information on the quality of general practice care: qualitative studyMartin N Marshall
National Primary Care Research and Development Centre, University of Manchester, Manchester M13 9PL, UK
BMJ 325:1278. 2002....
- No short-cut in assessing trial quality: a case studyKarim F Hirji
Department of Epidemiology and Biostatistics, Muhimbili University of Health and Allied Sciences, P O Box 65015, Dar es Salaam, Tanzania
Trials 10:1. 2009..Using a trial of antibiotic treatment for acute otitis media, Burke et al., BMJ, 1991, as the case study, this paper illustrates some limitations of the check-list approach to trial quality assessment...
- Donor-conceived individuals and access to information about their genetic origins: the relevance and role of rightsJohn Tobin
Melbourne Law School, University of Melbourne, Carlton, VIC 3010, Australia
J Law Med 19:742-57. 2012The discourse of rights has increasingly been used to frame debates about access to information for donor-conceived individuals. This article seeks to clarify the moral and legal basis upon which human rights are relevant to this issue...
- The effect of public deposit of scientific articles on readershipPhilip M Davis
Physiologist 55:161, 163-5. 2012....
- Developing countries must invest in access to information for health improvementsAkintola B Odutola
J Med Internet Res 5:e5. 2003
- Science, institutional archives and open access: an overview and a pilot survey on the Italian cancer research institutionsElisabetta Poltronieri
Publishing Unit, Istituto Superiore di Sanita, Rome, Italy
J Exp Clin Cancer Res 29:168. 2010....
- A knowledge infrastructure for occupational safety and healthFrank J H van Dijk
Department Coronel Institute of Occupational Health, Academic Medical Center, University of Amsterdam, Amsterdam The Netherlands
J Occup Environ Med 52:1262-8. 2010..New initiatives show that occupational health can profit from intensified international collaboration to establish a good functioning knowledge infrastructure...
- Preparing raw clinical data for publication: guidance for journal editors, authors, and peer reviewersIain Hrynaszkiewicz
BioMed Central, 236 Gray s Inn Road, London WC1X 8HL, UK
Trials 11:9. 2010..Basic advice on file preparation is provided along with procedural guidance on prospective and retrospective publication of raw data, with an emphasis on randomised controlled trials...
- Toward a national framework for the secondary use of health data: an American Medical Informatics Association White PaperCharles Safran
American Medical Informatics Association, 4915 St Elmo Avenue, Suite 401, Bethesda, MD 20814, USA
J Am Med Inform Assoc 14:1-9. 2007..Such a framework can guide and facilitate widespread collection, storage, aggregation, linkage, and transmission of health data. The framework will provide appropriate protections for legitimate secondary use...
- A taxpayer-funded clinical trials registry and results databaseErick H Turner
PLoS Med 1:e60. 2004
- The Gene Wiki: community intelligence applied to human gene annotationJon W Huss
Genomics Institute of the Novartis Research Foundation, San Diego, CA 92121, USA
Nucleic Acids Res 38:D633-9. 2010..Gene Wiki articles are freely accessible within the Wikipedia web site, and additional links and information are available at http://en.wikipedia.org/wiki/Portal:Gene_Wiki...
- Do knowledge infrastructure facilities support evidence-based practice in occupational health? An exploratory study across countries among occupational physicians enrolled on Evidence-Based Medicine coursesNathalie I R Hugenholtz
Academic Medical Center, University of Amsterdam, Department Coronel Institute of Occupational Health, Amsterdam, The Netherlands
BMC Health Serv Res 9:18. 2009..This study explores the facilities in the knowledge infrastructure being used by OPs in different countries, and their perceived importance for EBM practice...
- Status of open access in the biomedical field in 2005Mamiko Matsubayashi
Graduate School of Library, Information and Media Studies, University of Tsukuba, 1 2 Kasuga, Tsukuba City, Ibaraki, Japan
J Med Libr Assoc 97:4-11. 2009..This study was designed to document the state of open access (OA) in the biomedical field in 2005...
- Confidentiality laws and secrecy in medical research: improving public access to data on drug safetyAaron S Kesselheim
Division of Pharmacoepidemiology and Pharmacoeconomics, Brigham and Women s Hospital, Boston, Massachusetts, USA
Health Aff (Millwood) 26:483-91. 2007..We suggest regulatory and legislative policy changes regarding how the FDA handles confidential information that can improve understanding of the risks of prescription drugs...
- Data-sharing and data-withholding in genetics and the life sciences: results of a national survey of technology transfer officersEric G Campbell
Harvard Medical School, Boston, MA, USA
J Health Care Law Policy 6:241-55. 2003
- Open access publishing, article downloads, and citations: randomised controlled trialPhilip M Davis
Department of Communication, Cornell University, Ithaca, NY 14853, USA
BMJ 337:a568. 2008..To measure the effect of free access to the scientific literature on article downloads and citations...
- Naturopaths practice behaviour: provision and access to information on complementary and alternative medicinesCaroline Smith
School of Health Sciences, University of South Australia, North Terrace, Adelaide, South Australia, Australia
BMC Complement Altern Med 5:15. 2005..The aim of this study was to examine the practice behaviours of naturopaths in relation to both the provision of and access to information on complementary and alternative medicines (CAM).
- Public good, personal privacy: a citizens' deliberation about using medical information for pharmacoepidemiological researchLianne Parkin
Department of Preventive and Social Medicine, University of Otago, Dunedin, New Zealand
J Epidemiol Community Health 65:150-6. 2011..How the public weighs up these public interest and privacy arguments is unclear...
- Post-publication sharing of data and toolsPaul N Schofield
Department of Physiology, Development and Neuroscience, University of Cambridge, Cambridge, CB2 3EG, UK
Nature 461:171-3. 2009..Despite existing guidelines on access to data and bioresources, good practice is not widespread. A meeting of mouse researchers in Rome proposes ways to promote a culture of sharing...
- Evidence-based medicine in primary care: qualitative study of family physiciansC Shawn Tracy
Primary Care Research Unit, Sunnybrook and Women s College Health Sciences Centre, Toronto, ON M4N 3M5 Canada
BMC Fam Pract 4:6. 2003....
- Worried and wired: effects of health anxiety on information-seeking and health care utilization behaviorsMatthew S Eastin
School of Communication, Ohio State University, Columbus, Ohio 43210, USA
Cyberpsychol Behav 9:494-8. 2006..Results suggest that an individual's level of health anxiety moderates the relationship between online health information seeking and health care utilization decisions...
- Unavailability of online supplementary scientific information from articles published in major journalsEvangelos Evangelou
Department of Hygiene and Epidemiology, University of Ioannina School of Medicine, Ioannina 45110, Greece
FASEB J 19:1943-4. 2005..Here we show that in 4.7% and 9.6% of articles with online supplementary material, some of the supplements became unavailable within 2 and 5 years of their publication, respectively...
- Chemistry in bioinformaticsPeter Murray-Rust
Unilever Centre for Molecular Science Informatics, Department of Chemistry, University of Cambridge, Lensfield Road, Cambridge CB2 1EW, UK
BMC Bioinformatics 6:141. 2005..We argue that the technology is already available; we require a collective agreement to enhance publication protocols...
- Ensembl's 10th yearPaul Flicek
European Bioinformatics Institute, Wellcome Trust Genome Campus, Hinxton, Cambridge CB10 1SD, UK
Nucleic Acids Res 38:D557-62. 2010....
- 10 years experience with pioneering open access publishing in health informatics: the Journal of Medical Internet Research (JMIR)Gunther Eysenbach
Centre for Global eHealth Innovation, University Health Network, Toronto, Canada
Stud Health Technol Inform 160:1329-33. 2010....
- Data withholding in genetics and the other life sciences: prevalences and predictorsDavid Blumenthal
Institute for Health Policy, Massachusetts General Hospital Partners HealthCare System, 50 Staniford St, Boston, MA 02114, USA
Acad Med 81:137-45. 2006..To better understand the variety and prevalence of data withholding in genetics and the other life sciences and to explore factors associated with these behaviors...
- Evaluation of internet-based technology for supporting self-care: problems encountered by patients and caregivers when using self-care applicationsNicol Nijland
Department of Psychology and Communication of Health and Risk, University of Twente, Faculty of Behavioural Sciences, PO Box 217, 7500 AE Enschede, The Netherlands
J Med Internet Res 10:e13. 2008..As a result, innovative eHealth services are evolving rapidly, including self-assessment tools and secure patient-caregiver email communication. It is interesting to explore how these technologies can be used for supporting self-care...
- Negative pressure wound therapy: potential publication bias caused by lack of access to unpublished study results dataFrank Peinemann
Institute for Quality and Efficiency in Health Care IQWiG, Dillenburger Str, 27, 51105 Cologne, Germany
BMC Med Res Methodol 8:4. 2008..The main objective of this study was to identify unpublished randomised controlled trials (RCTs) on NPWT within the framework of a systematic review...
- Open access to the scientific journal literaturePeter Suber
Department of Philosophy, Earlham College, Richmond, Indiana 47374, USA
J Biol 1:3. 2002..Objections that open access to scientific journal literature requires the sacrifice of peer-review, revenue, copyright protection, or other strengths of traditional journals, are based on misunderstandings...
- Racial disparities in health information access: resilience of the Digital DivideDaniel P Lorence
Department of Health Policy and Administration, School of Information Science and Technology, Pennsylvania State University, 114 Henderson HHD, University Park, PA 16802, USA
J Med Syst 30:241-9. 2006..For healthcare consumers, access to information is an essential part of the consumer-centric framework outlined in the recently proposed national health ..
- Can we achieve health information for all by 2015?Fiona Godlee
BMJKnowledge, BMAHouse, Tavistock Square, London WC1H 9JR, UK
Lancet 364:295-300. 2004Universal access to information for health professionals is a prerequisite for meeting the Millennium Development Goals and achieving Health for All...
- Health disparities, communication inequalities, and eHealthK Viswanath
Harvard School of Public Health, Cambridge, Massachusetts, USA
Am J Prev Med 32:S131-3. 2007
- Open access and global participation in scienceJames A Evans
Department of Sociology, University of Chicago, Chicago, IL 60637, USA
Science 323:1025. 2009..This effect reverses for poor countries where free-access articles are much more likely to be cited. Together, findings suggest that free Internet access widens the circle of those who read and make use of scientists' investigations...
- Evidence-based patient choice and consumer health informatics in the Internet ageG Eysenbach
Research Unit for Cybermedicine and eHealth Department of Clinical Social Medicine, University of Heidelberg, Heidelberg, 69115, Germany
J Med Internet Res 3:E19. 2001....
- What's mine is yours-open source as a new paradigm for sustainable healthcare educationRachel Ellaway
Northern Ontario School of Medicine, Canada
Med Teach 30:175-9. 2008Free and open access to information, and increasingly digital content and tools, is one of the defining characteristics of the Internet and as such it presents a challenge to traditional models of development and provision of educational ..
- Scholarly publishing. Harvard faculty votes to make open access its default modeAndrew Lawler
Science 319:1025. 2008
- Public access to NIH-funded researchRobert Steinbrook
N Engl J Med 352:1739-41. 2005
- PR's 'pit bull' takes on open accessJim Giles
Nature 445:347. 2007
- The use of an Internet-based Ask the Doctor Service involving family physicians: evaluation by a web surveyGöran Umefjord
Department of Public Health and Clinical Medicine, Family Medicine, Umea University, Sweden
Fam Pract 23:159-66. 2006..However, little is known about the advantages, disadvantages or other differences compared with regular health care when using this kind of service...
- Access to information supporting availability of medicines for patients suffering from rare diseases looking for possible treatments: the EuOrphan ServiceDonatas Stakisaitis
Mykolas Romeris University, Ateities 20, Vilnius, Lithuania
Medicina (Kaunas) 43:441-6. 2007..In this perspective, EuOrphan could become a very valuable tool for globalizing the information about the availability of treatment (authorized or under development) of orphan patients...
- Continuity of information in general practice. Patient views on confidentialityHenk Schers
Department of General Practice, University Medical Centre St Radboud Nijmegen, The Netherlands
Scand J Prim Health Care 21:21-6. 2003..To relate patient views to patient and practice characteristics...
- Open access to the scientific journal literature: situation 2009Bo Christer Björk
HANKEN School of Economics, Helsinki, Finland
PLoS ONE 5:e11273. 2010..So far there have been few systematic studies showing how big the extent of OA is, in particular studies covering all fields of science...
- When science rides the MTAAlan Dove
J Clin Invest 110:425-7. 2002
- Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative studyM R Robling
Department of General Practice, University of Wales College of Medicine, Llanedeyrn Health Centre, Maelfa, Llanedeyrn, Cardiff, CF23 9PN
J Med Ethics 30:104-9. 2004..The authors sought to explore attitudes of the public, and their lay representatives, towards the use of primary care medical record data for research when patient consent was not being sought...
- Open access to industry's clinically relevant dataAndrew Herxheimer
BMJ 329:64-5. 2004
- How the rich get richerMike Rossner
J Cell Biol 177:951. 2007
- BMC Bioinformatics comes of ageMatthew J Cockerill
BioMed Central Ltd, Middlesex House, 34 42 Cleveland Street, London, W1T 4LB, UK
BMC Bioinformatics 6:140. 2005
- Accessibility of web sites containing colorectal cancer information to adults with limited literacy (United States)Kimberly A Kaphingst
Center for Community Based Research, Dana Farber Cancer Institute, 44 Binney St, Boston, MA, 02115, USA
Cancer Causes Control 17:147-51. 2006..Little research, however, has systematically examined factors other than writing style related to the reading difficulty of cancer information on the Internet. In the present study we assessed the reading difficulty of 19 CRC Web sites...
- Privacy architecture and e-consent. What the future holdsKathleen Connor
FOX Systems, Inc, Olympia, WA, USA
J AHIMA 78:64-5, 70. 2007
- Mobile device use, reuse, and disposalLaurie Southerton
J AHIMA 78:68-70. 2007
- Audit functionality and the EHR. The importance of sound reports and clear policiesSheila Green-Shook
Evergreen Hospital, Kirkland, WA, USA
J AHIMA 78:62-3. 2007
- EHR trends and challenges. MRI's survey finds workflow and record access among top IT-manager concernsJeff Blair
Medical Records Institute, Newton, Mass, USA
Healthc Inform 20:56-8. 2003
- Applying legal holds to electronic recordsSandra Nunn
Presbyterian Healthcare Services, Albuquerque, NM, USA
J AHIMA 79:72-3, 80. 2008
- e-Consent: The design and implementation of consumer consent mechanisms in an electronic environmentEnrico Coiera
The Centre for Health Informatics, The University of New South Wales, NSW, 2055, Australia
J Am Med Inform Assoc 11:129-40. 2004....
- Privacy and security for electronic health recordsVirginia A Sharpe
Veterans Health Administrations, National Center for Ethics, USA
Hastings Cent Rep 35:49. 2005
- Securing electronic health records without impeding the flow of informationRakesh Agrawal
Microsoft Search Labs, 1065 La Avenida, Mountain View, CA 94043, United States
Int J Med Inform 76:471-9. 2007....
- Secure communication and management of clinical and genomic data: the use of pseudonymisation as privacy enhancing techniqueBrecht Claerhout
Department of Medical Informatics and Statistics, University Hospital Gent, Belgium
Stud Health Technol Inform 95:170-5. 2003..g. research. Practical approaches based on two pseudonymisation models, for both batch and interactive data collection and exchange, are presented...
- Safeguards for remote accessAviva Halpert
Mount Sinai Medical Center
J AHIMA 78:68-70. 2007
- The threat from within. Implementing secure access controls helps organizations protect sensitive patient information from insider threatEllen Libenson
Symark Software, Agoura Hills, CA, USA
Healthc Inform 24:54. 2007
- Handhelds and HIPAACrissy Knox
University of Louisville Hospital, Kentucky, USA
Nurs Manage 38:38-40. 2007
- EMR confidentiality and information securityGary Kurtz
Geisinger Health System, Danville, PA, USA
J Healthc Inf Manag 17:41-8. 2003..The onus is on healthcare providers to come up with information security solutions that don't hinder patient care while still providing the confidentiality of patient information...
- Comprehensive management of the access to the electronic patient record: towards trans-institutional networksChristian Lovis
Service of Medical Informatics, Department of Radiology and Medical Informatics, University Hospitals of Geneva, 24, Rue Micheli du Crest, 1211 Geneva 4, Switzerland
- A moral approach to electronic patient recordsN B Fairweather
Centre for Computing and Social Responsibility, Faculty of Computing Sciences and Engineering, De Montfort University, Leicester, UK
Med Inform Internet Med 26:219-34. 2001..Suggestions are made about an appropriate balance between the principles. It is suggested that the patient's right to informed consent should be dominant...
- HIPAA strengthens business case for electronic report distribution systemsMark Moody
J Healthc Inf Manag 16:47-51. 2002..HIPAA may finally force healthcare organizations to make long-postponed decisions to increase the use of automation and technology for report distribution. For most, the direct benefits will far outweigh the costs...
- Information governance in NHS's NPfIT: a case for policy specificationMoritz Y Becker
Microsoft Research, Cambridge, CB3 0FB, United Kingdom
Int J Med Inform 76:432-7. 2007..Our main goal is to convince the reader of the strong benefits of employing formal policy specification in nation-wide electronic health record (EHR) projects...
- The need to know the history of the use of digital patient data, in particular the EHRA R Bakker
Addabit B V, Atjehweg 10, 2202 AP Noordwijk, The Netherlands
Int J Med Inform 76:438-41. 2007..It is recommended that the professional associations and the governments, in collaboration with WHO, take a position on the need to be able to reconstruct the contents of the EHR. IMIA could take the lead in that process...
- Technology. IT gets HIPAARichard Haugh
Hosp Health Netw 80:14-5. 2006
- Confidentiality in health care: conflicting legal and ethical issuesMaureen Beech
Somerset Primary Care Trust, Bridgwater, Somerset
Nurs Stand 21:42-6. 2007..The author explains that nurses should be familiar with their professional code of conduct and keep up to date with any changes in the law to understand when it might be justified to override the duty of confidentiality...
- Privacy and policy for genetic researchJudith Wagner DeCew
Department of Philosophy, Clark University, 950 Main Street, Worcester, MA 01610, USA
Ethics Inf Technol 6:5-14. 2004....
- Privacy warning. GAO finds fault with HHS' IT effortsMatthew DoBias
Mod Healthc 37:8-9. 2007
- Policies and procedures for a legal EHRCarol Ann Quinsey
J AHIMA 78:62-3. 2007
- e-novation. For your eyes onlyLyn Whitfield
Health Serv J 113:suppl 9. 2003
- Protecting electronic dataMartin Allen
Pointsec Mobile Technologies
Nurs Times 102:20-1. 2006
- Connectivity, privacy, and liability. What medical professionals must considerAlan S Wernick
Wernick and Associates, Ltd, Chicago, IL, USA
J AHIMA 78:64-5. 2007
- Purposes of health identification cards and role of a secure access platform (Be-Health) in BelgiumFrancis H Roger France
Unité d Informatique Médicale, Health Services Research, Ecole de Santé Publique de l Université Catholique de Louvain, Belgium
Int J Med Inform 76:84-8. 2007....
- Give payers EHR data: report. Privacy, security advocates oppose fraud fighting' planJoseph Conn
Mod Healthc 37:14. 2007
- Data protection rights and preserving confidentialityBridgit Dimond
University of Glamorgan, UK
Br J Nurs 14:936-7. 2005..This article considers the duty of confidentiality and the provisions of the Data Protection Act 1998, which protect the confidentiality of health records...
- 3 keys to securityAlan Joch
Hosp Health Netw 78:40-4, 2. 2004..Leaders have to be actively involved in finding the tools and procedures that protect information from prying eyes and keep patients and the physical campus safe. And just buying the latest technology solution is not sufficient...
- Security requirements in EHR systems and archivesPekka Ruotsalainen
National Research and Development Centre for Welfare and Health STAKES, Centre of Excellence for ICT, Helsinki, Finland
Stud Health Technol Inform 103:453-8. 2004..In addition to this the archiving organisation needs a documented policy for information preserving and a policy for access and distribution of information between other archives...
- National Network of Libraries of Medicine (NN/LM) Region 2 Javier Crespo; Fiscal Year: 2010..professionals with equal access to biomedical information resources;and, 2) improving the public's access to information systems and information resources to enable them to make informed decisions about their health...
- National Network of Libraries of Medicine (NN/LM) Region 2 DENNIS PATTRATH; Fiscal Year: 2010..professionals with equal access to biomedical information resources;and, 2) improving the public's access to information systems and information resources to enable them to make informed decisions about their health...
- National Network of Libraries of Medicine - Region 2JM J TOOEY; Fiscal Year: 2013..professionals with equal access to biomedical information resources;and, 2) improving the public's access to information systems and information resources to enable them to make informed decisions about their health...
- National Network of Libraries of Medicine - Region 2JM J TOOEY; Fiscal Year: 2011
- National Network of Libraries of Medicine - Region 2JM J TOOEY; Fiscal Year: 2012
- National Network of Libraries of Medicine (NN/LM) Region 3Ruth Holst; Fiscal Year: 2010
- National Network of Libraries of Medicine (NN/LM) Region 3Ruth Holst; Fiscal Year: 2009
- National Network of Libraries of Medicine - Region 3Ruth Holst; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 3Ruth Holst; Fiscal Year: 2012
- National Network of Libraries of Medicine - Region 3Ruth Holst; Fiscal Year: 2011
- National Network of Libraries of Medicine (NN/LM) region 4Claire Hamasu; Fiscal Year: 2010
- National Network of Libraries of Medicine (NN/LM) region 4Claire Hamasu; Fiscal Year: 2009
- National Network of Libraries of Medicine (NN/LM) Region 5MICHELLE MALIZIA; Fiscal Year: 2010
- National Network of Libraries of Medicine (NN/LM) Region 6CATHY BURROUGHS; Fiscal Year: 2009
- National Network of Libraries of Medicine (NN/LM) Region 5MICHELLE MALIZIA; Fiscal Year: 2009
- National Network of Libraries of Medicine (NN/LM) Region 7TAMARA COMBS; Fiscal Year: 2010
- National Network of Libraries of Medicine - Region 8Javier Crespo; Fiscal Year: 2012
- National Network of Libraries of Medicine - Region 8Javier Crespo; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 4HAMASU CLAIRE; Fiscal Year: 2011
- National Network of Libraries of Medicine - Region 4HAMASU CLAIRE; Fiscal Year: 2012
- National Network of Libraries of Medicine - Region 4HAMASU CLAIRE; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 8Javier Crespo; Fiscal Year: 2011
- National Network of Libraries of Medicine (NN/LM) Region 1Colleen Cuddy; Fiscal Year: 2010
- National Network of Libraries of Medicine - Region 6CATHY BURROUGHS; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 6CATHY BURROUGHS; Fiscal Year: 2012
- National Network of Libraries of Medicine - Region 5MICHELLE MALIZIA; Fiscal Year: 2011
- National Network of Libraries of Medicine - Region 5MICHELLE MALIZIA; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 6CATHY BURROUGHS; Fiscal Year: 2011
- National Network of Libraries of Medicine - Region 5MICHELLE MALIZIA; Fiscal Year: 2012
- National Network of Libraries of Medicine (NN/LM) Region 1KATE BURR OLIVER; Fiscal Year: 2009
- National Network of Libraries of Medicine - Region 7Julie Kwan; Fiscal Year: 2012
- National Network of Libraries of Medicine - Region 7Julie Kwan; Fiscal Year: 2011
- National Network of Libraries of Medicine - Region 7Julie Kwan; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 1BARBARA EPSTEIN; Fiscal Year: 2012
- National Network of Libraries of Medicine - Region 1BARBARA EPSTEIN; Fiscal Year: 2013
- National Network of Libraries of Medicine - Region 1BARBARA EPSTEIN; Fiscal Year: 2011
- Effectiveness of Screening Colonoscopy in Reducing Deaths from Colorectal CancerCHYKE ABADAMA DOUBENI; Fiscal Year: 2010..continuum of cancer care to their members ranging from screening through end of life care, and provide access to information on CRC screening that can be linked to diagnosis and cause-specific mortality data on large numbers of ..
- Impact of Information Prescriptions on Medication Adherence in ED PatientsNancy K Roderer; Fiscal Year: 2010..4) an IRx that consists of MedlinePlus referral plus customized written information from MedlinePlus plus access to information services provided by a medical librarian, herein referred to as a clinical informationist or ..
- An HPV Health Communication Randomized Controlled Trial InterventionSHERRIE LEE WALLINGTON; Fiscal Year: 2013..gaps and communication inequalities, particularly among minority and underserved populations, in the access to information and the inability of parents to make informed decisions with balanced and accurate information...
- Center for Research and Education on Aging and Technology - CREATEIIISara J Czaja; Fiscal Year: 2013..the impact of access to a home-based technology system that supports social connectivity, memory and access to information and skill building on measures of well-being, quality of life and independence...
- Sensitivity enhancement in solution NMR through dynamic nuclear polarizationA Joshua Wand; Fiscal Year: 2013..Nevertheless, solution NMR offers, in principle, access to information that is very difficult to obtain by other means...
- Computational and experimental modeling of RNA SplicingMichael Q Zhang; Fiscal Year: 2012..between computational and experimental molecular biologists is expected to lead to a better understanding of the mechanism of pre- mRNA splicing regulation, as well as to improved public access to information about alternative splicing.
- Participatory Design of a Text Message System to Support Community Health AdvisorYu Mei M Schoenberger; Fiscal Year: 2011..With the emergence of technology that allows individuals'increased access to information, the development of health promotion programs, e.g...
- ASSURING RADIATION PROTECTIONRUTH EVELYN MCBURNEY; Fiscal Year: 2013..We will also maintain various mechanisms for access to information for the benefit of the States and other interested parties, including: a frequently- updated website for ..
- Contrast Enhancement to Improve Speech Recognition with Hearing DevicesKeith R Kluender; Fiscal Year: 2010..or squeeze, the amplitude and/or frequency range of speech in order to provide listeners with greater access to information, particularly the softer parts and higher frequency parts of speech...
- Lysosomal Disease Network-8th Annual WORLD SymposiumChester B Whitley; Fiscal Year: 2012..This unique feature allows a small, geographically divergent patient population access to information on the latest scientific advances in lysosomal diseases and gives scientists and clinician's ..
- Lysosomal Disease Network-9th Annual WORLD SymposiumChester B Whitley; Fiscal Year: 2012..This unique feature allows a small, geographically divergent patient population access to information on the latest scientific advances in lysosomal diseases and gives scientists and clinician's ..
- Salivary Gland Tumor Cell BiorepositoryAdel K El Naggar; Fiscal Year: 2009..It is anticipated that access to information on biospecimens and associated clinical data will be facilitated through a web-based electronic interface ..
- Salivary Gland Tumor Cell BiorepositoryAdel El-Naggar; Fiscal Year: 2012..It is anticipated that access to information on biospecimens and associated clinical data will be facilitated through a web-based electronic interface ..
- Event-related neuroimaging of human memory formationDaniel L Schacter; Fiscal Year: 2013..our hypothesis that hippocampal involvement in associative or relational encoding, which promotes flexible access to information useful for simulating future events, may also be linked to memory distortion...
- Development, Evaluation, and Testing of the Sesame LIMSZsolt Zolnai; Fiscal Year: 2012..The Sesame system enables collaborators to participate in a research project, with equivalent access to information and the ability to enter results and process data irrespective of location (given Web access)...
- WORLD Symposium 2010 (Lysosomal Disease Network's 6th Annual Research Meeting)Chester B Whitley; Fiscal Year: 2010..This unique feature allows a small, geographically divergent patient population access to information on the latest scientific advances in LD and gives scientists and clinician's unprecedented access to ..
- The Lysosomal Disease Network's 10th Annual WORLD SymposiumChester B Whitley; Fiscal Year: 2013..This unique feature allows a small, geographically-divergent patient population access to information on the latest scientific advances in lysosomal diseases and gives scientists and clinicians unprecedented ..
- Guttmacher Center for Population Research Innovation and DisseminationLawrence B Finer; Fiscal Year: 2013..The Dissemination Core strengthens access to information by facilitating efficient creation of public-use datasets, providing public education o how to interpret ..
- City of Newton Prototype Program for Complying with Nine FDA Program StandardsDORI ZALEZNIK; Fiscal Year: 2013..Education and access to information will assist the public in choosing where to eat and how to prepare foods properly to guard against ..
- Dopamine signaling of expected outcomes within the striatumJOSHUA L JONES; Fiscal Year: 2013..aim to test the hypothesis that cue-evoked dopamine signaling within the ventral and dorsal striatum has access to information about changes in the value of an expected outcome...
- Factors Motivating & Affecting Information Seeking in a Health Information ExchanRobert L Ohsfeldt; Fiscal Year: 2010..Additionally, the lack of access to information stored by other organizations can be a barrier to effective coordination of care between multiple ..
- The University of Colorado Population CenterFred C Pampel; Fiscal Year: 2013..The information Core will broaden access to information for affiliates, increase awareness of center activities, and disseminate research findings...
- ACCESS COMPUTER TECHNOLOGY/INFORMATION OUTREACH NETWORKDonald Spencer; Fiscal Year: 1992The Access Computer Technology/Information Outreach Network (ACTION) will improve end-user access to information resources...
- Seek, Test, Treat and Retain strategies leveraging mobile health technologiesJacqueline Peterson Tulsky; Fiscal Year: 2013..especially individuals with co-occurring substance use disorders, with the ultimate goal of improving access to information and providing tools for self-management of their healthcare...
- Digital Library for Idaho Rural Healthcare ProfessionalsMARCIA FRANCIS; Fiscal Year: 2003..The IHSL will use Web-based visualization tools to organize and provide access to information resources for primary health care providers in southeast Idaho...
- Development of website devoted to legal issues associated with medical researchPATRICIA MILLER TERESKERZ; Fiscal Year: 2012..We propose to use the most up to date technologic methods available as a vehicle to provide access to information to clinical investigators and other professionals involved in clinical trials on legal aspects of clinical ..
- Forebrain Response to Sapid NaCI During Salt AppetiteSamantha Dayawansa; Fiscal Year: 2009..The study of taste and the gustatory system gives us access to information about the reward mechanism as, unlike other complex motivations, its pathways are well documented, and the ..
- Using HIT to Improve Ambulatory Chronic Disease CareDavid Mehr; Fiscal Year: 2009..The HIT implementations will use specific strategies to (1) improve providers'access to information, allowing individual providers to compare and improve their clinical performance against standardized ..
- DYING, DEATH, AND GRIEF--INTERNET PROJECTSara Knight; Fiscal Year: 2002..We propose to use the wide, immediate, and flexible access to information possible through the Internet to provide an innovative outreach program in palliative medicine education...
- Gender, power, and susceptibility to STDs/HIV in IndiaSuneeta Krishnan; Fiscal Year: 2009..within relationships, including decision-making regarding use of barrier methods, by constraining their access to information and health services, and in numerous other ways...
- Guam's Hospital & Nursing Facility Internet ConnectivityMAX PALISSON; Fiscal Year: 2001..of Guam?s geographic isolation, and due to the high costs of telecommunications and transportation, access to information and expertise on Guam is often very limited or unreliable...
- Implementation of a Mammography Reminder System in a Healthcare NetworkRoger Luckmann; Fiscal Year: 2009..to adopt MRCSs because of their connections to primary care (PCP) and mammography providers, and their access to information systems...
- Developing an Evidence-Based Intervention Planning System for Obesity PreventionLaura Brennan; Fiscal Year: 2009..The Obesity EBIPS will provide public access to information, tools, and resources in an interactive web-based format to support planning, implementation, and ..
- Regional Approach for THQIT in Rural Settings - Impleme*FRANCIS RICHARDS; Fiscal Year: 2007..b>Access to information is often cited as a barrier to delivery of quality healthcare...
- INSTITUTE FOR LABORATORY ANIMAL RESEARCHJOANNE ZURLO; Fiscal Year: 2004..programs through dissemination of information including the translation if ILAR reports; by broadening access to information on selection of appropriate biological models through ILAR's home page, databases, and publications; by ..
- Digitizing Delivery of Health Information for NebraskansKAREN MIER; Fiscal Year: 2004..With Ariel, the libraries will be able to provide equal access to information to rural health care professionals, distance education students, and professionals and students practicing ..
- Internet Connection for Rural Primary Care ClinicsMURIEL SHAUL; Fiscal Year: 2001..OHSU is committed to establishing a permanent telecommunications system aimed at providing high quality and easy access to information (voice/video/data) to improve the health of Oregon?s rural residents.
- On- Line Portal for Rural Health Research and EducationREX GANTENBEIN; Fiscal Year: 2003..CRHRE will serve health-care professionals practicing in remote areas of Wyoming who need fast and simple access to information regarding health care...
- CCMC Parting Shots: Extending Access to Health Informat*BURT WALLER; Fiscal Year: 2002..By promptly and efficiently providing access to information that is accurate, current, and appropriate to the patients' literacy, CCMC intends to give its low-income ..
- Improving the Usability of Speech Technology for Speakers with DysarthriaTURNER RENTZ; Fiscal Year: 2006..are unable to use commonly available speech-based tools due to their speech impairment, they are denied access to information, services available to "standard speakers...
- INFORMATION ACCESS FOR RURAL HEALTH CARE PROFESSIONALSJudy Burnham; Fiscal Year: 1993..Training on use of Grateful Med and Loansome Doc will provide them with effective access to information resulting in improved care of their patients...
- COMMUNITY HEALTH LINK: ACCESS TO INFORMATION RESOURCESThomas Lewis; Fiscal Year: 2004..The goals are to: (1) Provide needed infrastructure for access to information resources by equipping each clinic site with dedicated hardware and computer applications, including ..
- Educational Opportunities for Youth in Foster CareWilliam Griffin; Fiscal Year: 2004..Early access to information and resources will serve to raise expectations among foster youths and the adults surrounding them that ..
- Mobile Training of Skilled Support PersonnelCESAR BANDERA; Fiscal Year: 2006..propose to develop a JITT system for SSP who are called to an emergency incident that will provide secure access to information and short (<5 minutes) incident-specific learning modules on their cell phones about the hazardous ..
- Wayfinding for the blind & visually impaired using passive environmental labelsJames Coughlan; Fiscal Year: 2007..We propose a novel and very inexpensive environmental labeling system to provide this population with access to information needed for indoor way finding (where GPS is not available)...
- Social Networks and MigrationBarbara Entwisle; Fiscal Year: 2007..in 2000 among those who were resident in the village in 1994, testing hypotheses about the implications of access to information and other resources, obligations, and relative deprivation. The second focuses on return migration...
- Educational Opportunities for Youth in Foster CareWilliam Griffin; Fiscal Year: 2006..Early access to information and resources will serve to raise expectations among foster youths and adults surrounding them that some ..
- Cherokee Nation Health Systems Internet UpgradeRODNEY SUMNER; Fiscal Year: 2001..speed to the Internet by being able to dedicate ports and connectivity size, thus allowing quicker access to information. The target populations for the proposed project are the six Cherokee Nation Health Service Clinics; with ..
- LATINOS FACING STIGMAJesus Ramirez Valles; Fiscal Year: 2004..stigmas may lead to unsafe sex and HIV infection through their effects on self-esteem, social support, and access to information and resources...