Summary: The state of being free from intrusion or disturbance in one's private life or affairs. (Random House Unabridged Dictionary, 2d ed, 1993)
Publications226 found, 100 shown here
- Public opinion about the importance of privacy in biobank researchDavid J Kaufman
Genetics and Public Policy Center, Johns Hopkins University, Washington, DC 20036, USA
Am J Hum Genet 85:643-54. 2009Concerns about privacy may deter people from participating in genetic research. Recruitment and retention of biobank participants requires understanding the nature and magnitude of these concerns...
- Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of LahoreAyesha Humayun
Department of Community Health Sciences, FMH College of Medicine and Dentistry, Lahore, Pakistan
BMC Med Ethics 9:14. 2008The principles of informed consent, confidentiality and privacy are often neglected during patient care in developing countries. We assessed the degree to which doctors in Lahore adhere to these principles during outpatient consultations.
- A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registersTim Churches
Centre for Epidemiology and Research, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
BMC Med Res Methodol 3:1. 2003..However, growing concern over the privacy and confidentiality aspects of disease registers may hinder their future operation...
- Privacy, professionalism and Facebook: a dilemma for young doctorsJoanna MacDonald
Department of Psychological Medicine, University of Otago, Wellington School of Medicine and Health Sciences, Wellington 6242, New Zealand
Med Educ 44:805-13. 2010This study aimed to examine the nature and extent of use of the social networking service Facebook by young medical graduates, and their utilisation of privacy options.
- Privacy-preserved behavior analysis and fall detection by an infrared ceiling sensor networkShuai Tao
Division of Computer Science, Hokkaido University, Kita 8 Nishi 5, Kita ku, Sapporo 060 0808, Japan
Sensors (Basel) 12:16920-36. 2012..to be able to be regarded as pixel values of a top-view camera, but more advantageous in the sense of preserving privacy. Using the "pixel values" as features, support vector machine classifiers succeeded in recognizing eight ..
- "Not all my friends need to know": a qualitative study of teenage patients, privacy, and social mediaMaja Van Der Velden
Department of Informatics, University of Oslo, Oslo, Norway
J Am Med Inform Assoc 20:16-24. 2013The literature describes teenagers as active users of social media, who seem to care about privacy, but who also reveal a considerable amount of personal information...
- From Hippocrates to HIPAA: privacy and confidentiality in emergency medicine--Part I: conceptual, moral, and legal foundationsJohn C Moskop
Department of Medical Humanities, The Brody School of Medicine at East Carolina University, Bioethics Center, University Health Systems of Eastern Carolina, Greenville, NC 27834, USA
Ann Emerg Med 45:53-9. 2005Respect for patient privacy and confidentiality is an ancient and a contemporary professional responsibility of physicians...
- Factors predicting patients' perception of privacy and satisfaction for emergency careYen Ko Lin
Department of Emergency Medicine, Kaohsiung Medical University Hospital, Kaohsiung Medical University, Kaohsiung, Taiwan
Emerg Med J 28:604-8. 2011To identify emergency department (ED) predictors of patients' perception of privacy and whether patients' perception of privacy was significantly associated with patient satisfaction, in an urban, university-based hospital ED.
- Unique in the Crowd: The privacy bounds of human mobilityYves Alexandre de Montjoye
Massachusetts Institute of Technology, Media Lab, 20 Ames Street, Cambridge, MA 02139, USA
Sci Rep 3:1376. 2013..These findings represent fundamental constraints to an individual's privacy and have important implications for the design of frameworks and institutions dedicated to protect the privacy of ..
- Emergency Department patient perceptions of privacy and confidentialityJon C Olsen
Department of Emergency Medicine, Lutheran General Hospital, 1775 West Dempster Street, Park Ridge, IL 60088, USA
J Emerg Med 25:329-33. 2003The study objective was to determine if Emergency Department (ED) patients experience breaches of privacy and confidentiality during their ED stay and to determine if the type of room in which the patient is placed affects privacy...
- Driving toward guiding principles: a goal for privacy, confidentiality, and security of health informationS A Buckovich
Mitretek Systems, Health Information Technology Institute, McLean, VA 22102, USA
J Am Med Inform Assoc 6:122-33. 1999..data collection, providing easier access and dissemination of health information, the development of guiding privacy, confidentiality, and security principles is necessary to help balance the protection of patients' privacy ..
- Confidentiality and privacy breaches in a university hospital emergency departmentE J Mlinek
University of Nebraska Medical Center, Department of Surgery, Omaha, NE, USA
Acad Emerg Med 4:1142-6. 1997To determine the frequency of visual and auditory confidentiality and privacy breaches in a university ED.
- Privacy-preserving heterogeneous health data sharingNoman Mohammed
Department of Computer Science and Software Engineering, Concordia University, Montreal, Quebec, Canada
J Am Med Inform Assoc 20:462-9. 2013b>Privacy-preserving data publishing addresses the problem of disclosing sensitive data when mining for useful information...
- Security policies and trust in ubiquitous computingAnupam Joshi
Department of Computer Science and Electrical Engineering, University of Maryland Baltimore County, 1000 Hilltop Circle, Baltimore, MD 21250, USA
Philos Trans A Math Phys Eng Sci 366:3769-80. 2008..peer-to-peer interactions are well suited for not just information interchange, but also managing security and privacy. However, practical solutions for protecting mobile devices, preserving privacy, evaluating trust and determining ..
- The Health Insurance Portability and Accountability Act Privacy Rule: a practical guide for researchersPatrick P Gunn
Cooley Godward LLP, San Francisco, California, USA
Med Care 42:321-7. 2004The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule, intended to address potential threats to patient privacy posed by the computerization and standardization of medical records, provides a new floor level of ..
- Privacy versus public health: the impact of current confidentiality rulesDaniel Wartenberg
Department of Environmental and Occupational Medicine, Robert Wood Johnson Medical School, University of Medicine and Dentistry of New Jersey, Piscatawa, NJ 08854, USA
Am J Public Health 100:407-12. 2010..However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing researchers from using these ..
- Some methods for blindfolded record linkageTim Churches
Centre for Epidemiology and Research, Population Health Division, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
BMC Med Inform Decis Mak 4:9. 2004..This necessarily invades personal privacy and requires complete trust in the intentions of that party and their ability to maintain security and ..
- Patients' experiences of privacy and dignity. Part 1: a literature reviewJuliet Whitehead
University Hospital Birmingham NHS Foundation Trust, Queen Elizabeth Hospital, Birmingham
Br J Nurs 17:381-5. 2008This article reviews the literature on patients' privacy and dignity and concludes that interest in the topic goes back to psychiatric patients in the 1960s, with the 1990s seeing a shift to all hospitals...
- EXpectation Propagation LOgistic REgRession (EXPLORER): distributed privacy-preserving online model learningShuang Wang
Division of Biomedical Informatics, University of California, San Diego, La Jolla, San Diego, CA 92093 0728, USA
J Biomed Inform 46:480-96. 2013We developed an EXpectation Propagation LOgistic REgRession (EXPLORER) model for distributed privacy-preserving online learning...
- From Hippocrates to HIPAA: privacy and confidentiality in emergency medicine--Part II: Challenges in the emergency departmentJohn C Moskop
Department of Medical Humanities, The Brody School of Medicine at East Carolina University, Bioethics Center, University Health Systems of Eastern Carolina, Greenville, NC 27834, USA
Ann Emerg Med 45:60-7. 2005Part I of this article reviewed the concepts of privacy and confidentiality and described the moral and legal foundations and limits of these values in health care...
- Liminality and breastfeeding: women negotiating space and two bodiesPatricia Mahon-Daly
Faculty of Health Studies, Buckinghamshire Chilterns University College, Newland Park Campus, Gorelands Lane, Chalfont St Giles, Buckinghamshire HP8 4AD, UK
Health Place 8:61-76. 2002..The paper demonstrates the value of conducting locally based qualitative research into breastfeeding experiences, and of using theoretical perspectives from post-medical geography to interpret women's experiences...
- Data sharing threatens privacyDeclan Butler
Nature 449:644-5. 2007
- Preserving Institutional Privacy in Distributed binary Logistic RegressionYuan Wu
Division of Biomedical Informatics, Department of Medicine University of California San Diego, La Jolla 92093, USA
AMIA Annu Symp Proc 2012:1450-8. 2012b>Privacy is becoming a major concern when sharing biomedical data across institutions...
- A collaborative framework for Distributed Privacy-Preserving Support Vector Machine learningJialan Que
University of California, La Jolla, CA, USA
AMIA Annu Symp Proc 2012:1350-9. 2012..stored in local repositories or institutions where they were collected, and may not be easily shared due to privacy concerns...
- Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journalsJ R Botkin
Department of Pediatrics, University of Utah, Salt Lake City, USA
JAMA 279:1808-12. 1998..family information to genetics investigators; however, the publication of pedigrees poses a risk to the privacy and confidentiality of individuals depicted in the diagrams...
- Mothers' experiences expressing breast milk for their preterm infants: does NICU design make a difference?Donna A Dowling
Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH 44106, USA
Adv Neonatal Care 12:377-84. 2012..This study examined differences in outcomes of provision of mothers' milk before and after implementation of a single-family room (SFR) neonatal intensive care unit (NICU) and described issues related to long-term milk expression...
- Security and privacy qualities of medical devices: an analysis of FDA postmarket surveillanceDaniel B Kramer
Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, Massachusetts, USA
PLoS ONE 7:e40200. 2012..These computing capabilities introduce security and privacy risks, yet little is known about the prevalence of such risks within the clinical setting.
- Privacy and confidentiality in emergency medicine: obligations and challengesJoel Martin Geiderman
Ruth and Harry Roman Emergency Department, Department of Emergency Medicine, Cedars Sinai Medical Center, Los Angeles, CA 90048, USA
Emerg Med Clin North Am 24:633-56. 2006Respect for privacy and confidentiality have been professional responsibilities of physicians throughout recorded history...
- A methodology for the pseudonymization of medical dataThomas Neubauer
Institute of Software Technology and Interactive Systems, Vienna University of Technology, Favoritenstrasse 9 11, 1040 Vienna, Austria
Int J Med Inform 80:190-204. 2011..e., who the patient discloses her health information to. Therefore, the methodology prevents data disclosure that negatively influences the patient's life (e.g., by being denied health insurance or employment)...
- Privacy: a review of the literatureH Leino-Kilpi
University of Turku, Finland
Int J Nurs Stud 38:663-71. 2001The concept of privacy is used in many disciplines and is recognised as one of the important concepts also in nursing...
- Privacy and security for electronic health recordsVirginia A Sharpe
Veterans Health Administrations, National Center for Ethics, USA
Hastings Cent Rep 35:49. 2005
- Notes on the tension between privacy and surveillance in nursingMartin Johnson
Salford Centre for Nursing, Midwifery, and Collaborative Research
Online J Issues Nurs 10:4. 2005Given their 24 hour responsibility for care in many settings, nurses are the main arbiters of the privacy afforded or denied to patients...
- Privacy-preserving data aggregation protocols for wireless sensor networks: a surveyRabindra Bista
Department of Computer Engineering, Chonbuk National University, Chonju, Chonbuk 561 756, Korea
Sensors (Basel) 10:4577-601. 2010Many wireless sensor network (WSN) applications require privacy-preserving aggregation of sensor data during transmission from the source nodes to the sink node...
- Framework model and principles for trusted information sharing in pervasive healthPekka Ruotsalainen
National Institute for Health and Welfare, Finland
Stud Health Technol Inform 169:497-501. 2011Trustfulness (i.e. health and wellness information is processed ethically, and privacy is guaranteed) is one of the cornerstones for future Personal Health Systems, ubiquitous healthcare and pervasive health...
- Inter-organizational future proof EHR systems. A review of the security and privacy related issuesHelma van der Linden
School for Public Health and Primary Care CAPHRI, University Maastricht, Maastricht, The Netherlands
Int J Med Inform 78:141-60. 2009Identification and analysis of privacy and security related issues that occur when health information is exchanged between health care organizations.
- Protecting patient privacy by quantifiable control of disclosures in disseminated databasesLucila Ohno-Machado
Decision Systems Group, Division of Health Science and Technology, Brigham and Women s Hospital, Harvard MIT, Boston, MA 02115, USA
Int J Med Inform 73:599-606. 2004One of the fundamental rights of patients is to have their privacy protected by health care organizations, so that information that can be used to identify a particular individual is not used to reveal sensitive patient data such as ..
- Security and privacy issues with health care information technologyMarci Meingast
Department of Electrical Engineering and Computer Sciences, University of California, Berkeley, CA 94720, USA
Conf Proc IEEE Eng Med Biol Soc 1:5453-8. 2006..While there are benefits to technologies, associated privacy and security issues need to be analyzed to make these systems socially acceptable...
- Currents in contemporary ethics. The confidentiality and privacy implications of functional magnetic resonance imagingStacey A Tovino
University of Houston Law Center, Health Law and Policy Institute, USA
J Law Med Ethics 33:844-50. 2005
- Are patients' views on seclusion associated with lack of privacy in the ward?Joost J Stolker
Division of Forensic Psychiatry, Altrecht Institute for Mental Health Care, Den Dolder, The Netherlands
Arch Psychiatr Nurs 20:282-7. 2006..lack of single-bed rooms in psychiatric wards may reduce the possibility of patients getting sufficient rest and privacy and may increase their risk of being overstimulated...
- The HIPAA privacy rule: clinical laboratories must complyPhilip H Lebowitz
Pepper Hamilton LLP, 3000 Two Logan Sq, 18th and Arch Sts, Philadelphia, PA 19103, USA
Am Clin Lab 21:35-6. 2002
- Patients' privacy and satisfaction in the emergency department: a descriptive analytical studyNahid Dehghan Nayeri
Tehran Medical Science University Nursing and Midwifery Faculty, Tehran, Iran
Nurs Ethics 17:167-77. 2010Respecting privacy and patients' satisfaction are amongst the main indicators of quality of care and one of the basic goals of health services...
- The limits of privacy: surveillance and the control of diseaseRonald Bayer
Center for the History and Ethics of Public Health, Department of Sociomedical Sciences, Mailman School of Public Health, Columbia University, USA
Health Care Anal 10:19-35. 2002..In placing HIV reporting within a larger context, however, we understand the clash between privacy and public health necessity as a complex issue, both in historical and contemporary practice...
- An 'Honest Broker' mechanism to maintain privacy for patient care and academic medical researchAndrew D Boyd
Department of Psychiatry, University of Michigan Medical Center, Ann Arbor, MI, USA
Int J Med Inform 76:407-11. 2007..Oath to the World Medical Association's Declaration of Geneva, physicians have sworn to protect patients' privacy. However, as systems move to more integrated architectures, protecting this medical data becomes more of a ..
- Perceptions of autonomy, privacy and informed consent in the care of elderly people in five European countries: comparison and implications for the futureHelena Leino-Kilpi
Department of Nursing Science, University of Turku, Finland
Nurs Ethics 10:58-66. 2003This article discusses nurses' and elderly patients' perceptions of the realization of autonomy, privacy and informed consent in five European countries...
- Patient perceptions of privacy infringements in an emergency departmentJonathan Karro
Emergency Medicine, St Vincent s Health, Victoria, Australia
Emerg Med Australas 17:117-23. 2005To identify the nature, severity, impact, frequency and risk factors for patient perceived privacy infringements in the ED of St Vincent's Health Melbourne with 32,000 emergency attendances per annum.
- Comparison of the auditory and visual privacy of emergency department treatment areas with curtains versus those with solid wallsD Barlas
Department of Emergency Medicine, North Shore University Hospital, New York University School of Medicine, 330 Community Drive, Manhasset, NY 11030, USA
Ann Emerg Med 38:135-9. 2001The design and function of emergency departments may allow breaches of privacy that could adversely affect patient satisfaction and medical care...
- Aspects of privacy for electronic health recordsSebastian Haas
University of Freiburg, Freiburg, Germany
Int J Med Inform 80:e26-31. 2011..But they fail in satisfying essential requirements to privacy. We propose a privacy-protecting information system for controlled disclosure of personal data to third parties...
- Factors influencing patient disclosure to physicians in birth control clinics: an application of the communication privacy management theoryCara C Lewis
Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, WA 98195, USA
Health Commun 26:502-11. 2011..The present study used communication privacy management (CPM) as the theoretical lens through which to view the interaction...
- Brain privacy: how can we protect it?Sheri Alpert
Department of Bioethics, Dalhousie University, Novel Tech Ethics, Intellectual Commons, Halifax, Nova Scotia, Canada
Am J Bioeth 7:70-3. 2007
- Improving patients privacy with PseudonymizationThomas Neubauer
Secure Business Austria, Vienna, Austria
Stud Health Technol Inform 136:691-6. 2008..g., for attackers), there is an increasing social and political pressure to guarantee patients privacy. This paper presents the new system PIPE (Pseudonymization of Information for Privacy in e-Health), that differs ..
- Privacy and medical information on the InternetSteven B Nelson
Pulmonary Industrial Testing Associates, Overland Park, Kansas 66213, USA
- Privacy-preserving record linkage using Bloom filtersRainer Schnell
Methodology Research Unit, Department of Social Sciences, University of Duisburg Essen, D 47057 Duisburg, Germany
BMC Med Inform Decis Mak 9:41. 2009..In many applications, identifiers have to be encrypted due to privacy concerns.
- Privacy and ethics in pediatric environmental health research-part I: genetic and prenatal testingCelia B Fisher
Center for Ethics Education, Fordham University, Bronx, New York 10458, USA
Environ Health Perspect 114:1617-21. 2006..In this article I begin with a general discussion of privacy concerns and informed consent within pediatric environmental health research contexts...
- Privacy issues in personalized medicineLaszlo T Vaszar
Stanford University School of Medicine, Division of Pulmonary and Critical Care, 300 Pasteur Drive, MC5236, Stanford, CA 94305 5236, USA
Pharmacogenomics 4:107-12. 2003..In a simple conceptualization, these tests challenge privacy as a result of two factors: how comprehensive is the test and how is the access to samples or digital information ..
- The impact of the privacy rule on cancer research: variations in attitudes and application of regulatory standardsElizabeth Goss
Turner and Goss LLP, Washington, DC, USA
J Clin Oncol 27:4014-20. 2009..project to assess the attitudes of cancer researchers and compliance officials regarding compliance with the US Privacy Rule and to identify potential strategies for eliminating perceived or real barriers to achieving compliance.
- Work group II: Using Geographic Information Systems for enhancing research relevant to policy on diet, physical activity, and weightSTEPHEN A MATTHEWS
Population Research Institute, The Pennsylvania State University, University Park, Pennsylvania 16802 6211, USA
Am J Prev Med 36:S171-6. 2009..and improving empirical representations of place; (3) geospatial data availability, quality, and standards; (4) privacy and confidentiality; and, (5) building capacity in GIS personnel and infrastructure...
- Legal and ethical issues in neuroimaging research: human subjects protection, medical privacy, and the public communication of research resultsJennifer Kulynych
Ropes and Gray, One Franklin Square, 1301 K St, NW, Suite 800 East, Washington, DC 20005 3333, USA
Brain Cogn 50:345-57. 2002..familiar with the requirements of human subjects protection, including evolving standards for the protection of privacy and the disclosure of risk in "non-therapeutic" research...
- Access to medical records for research purposes: varying perceptions across research ethics boardsD J Willison
Centre for Evaluation of Medicines, St Joseph s Healthcare, McMaster University, 105 Main Street East, P1, Hamilton, ON L8N 1G8, Canada
J Med Ethics 34:308-14. 2008Variation across research ethics boards (REBs) in conditions placed on access to medical records for research purposes raises concerns around negative impacts on research quality and on human subject protection, including privacy.
- Privacy concerns in preventing fraudulent publicationAnn Cavoukian
CMAJ 175:61-2. 2006
- Impact of privacy legislation on the number and characteristics of people who are recruited for research: a randomised controlled trialL Trevena
Room 322, Edward Ford Building A27, The University of Sydney, Sydney, NSW 2006, Australia
J Med Ethics 32:473-7. 2006b>Privacy laws have recently created restrictions on how researchers can approach study participants.
- Privacy as an enabler, not an impediment: building trust into health information exchangeDeven McGraw
Center for Democracy and Technology CDT in Washington, DC, USA
Health Aff (Millwood) 28:416-27. 2009Building privacy and security protections into health information technology systems will bolster trust in such systems and promote their adoption...
- Dimensions of privacy in palliative care: views of health professionalsAnnette F Street
Faculty of Health Sciences, La Trobe Austin Health Clinical School of Nursing, La Trobe University, P O Box 5444, Heidelberg West, Victoria 3081, Australia
Soc Sci Med 60:1795-804. 2005This paper explores the dimensions of privacy evident in the views of practice of health professionals in different inpatient palliative care settings...
- Musings on privacy issues in health research involving disaggregate geographic data about individualsMaged N Kamel Boulos
Faculty of Health and Social Work, University of Plymouth, Drake Circus, Plymouth, Devon, PL4 8AA, UK
Int J Health Geogr 8:46. 2009This paper offers a state-of-the-art overview of the intertwined privacy, confidentiality, and security issues that are commonly encountered in health research involving disaggregate geographic data about individuals...
- Attitudes toward genetic research review: results from a survey of human genetics researchersK L Edwards
Department of Epidemiology, University of Washington, Seattle, WA 98115, USA
Public Health Genomics 14:337-45. 2011..However, there have been no studies that document the range and frequency of these concerns among researchers conducting human genetic/genomic studies...
- Sharing clinical research data in the United States under the Health Insurance Portability and Accountability Act and the Privacy RuleJames D Miller
Johns Hopkins Bloomberg School of Public Health, Department of Health Policy and Management, Baltimore, Maryland, USA
Trials 11:112. 2010..In the U.S., however, the Privacy Rule adopted under the Health Insurance Portability and Accountability Act impedes the sharing of final research ..
- HIPAA regulations - a new era of medical-record privacy?George J Annas
Health Law Department, Boston University School of Public Health, USA
N Engl J Med 348:1486-90. 2003
- The effect of the new federal medical-privacy rule on researchJennifer Kulynych
Association of American Medical Colleges, Washington, DC 20037, USA
N Engl J Med 346:201-4. 2002
- Privacy and dignity of cancer patients: a qualitative study of patients privacy in UK National Health Service patient care settingsJay Woogara
University of Surrey, UK
J Cancer Educ 20:119-23. 2005I undertook this research to determine the extent to which privacy and dignity of National Health Service (NHS) patients were respected by health practitioners.
- Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational researchBradley Malin
Department of Biomedical Informatics, Vanderbilt University, Nashville, TN 37203, USA
J Investig Med 58:11-8. 2010..The widespread use of such open databases is contingent on the protection of patient privacy.
- Medical information, confidentiality and a child's right to privacyJoan Loughrey
University of Central Lancashire, UK
Leg Stud (Soc Leg Scholars) 23:510-35. 2003..Finally, the paper will offer an explanation of a basis for disclosure to parents which minimises violations of a minor's autonomy...
- Public good, personal privacy: a citizens' deliberation about using medical information for pharmacoepidemiological researchLianne Parkin
Department of Preventive and Social Medicine, University of Otago, Dunedin, New Zealand
J Epidemiol Community Health 65:150-6. 2011..to undertake research in the public interest, while legislation and ethical guidelines have increasingly focused on protecting the privacy of individuals. How the public weighs up these public interest and privacy arguments is unclear.
- Health data linkage conserves privacy in a research-rich environmentBrooke Trutwein
Ann Epidemiol 16:279-80. 2006
- The next step in health data exchanges: trust and privacy in exchange networksSteve D Gravely
Troutman Sanders LLP, Richmond, VA, USA
J Healthc Inf Manag 23:33-7. 2009..other data exchange platforms for health records creates complex and multifaceted challenges for protecting the privacy and security of health information...
- Community attitudes to the collection and use of identifiable data for health research--is it an invasion of privacy?Caron Molster
Office of Population Health Genomics, Health Policy and Clinical Reform Division, Department of Health, Western Australia
Aust N Z J Public Health 31:313-7. 2007..of identifiable data by the Western Australian Birth Defects Registry and the extent to which the use of such data is perceived to be an invasion of privacy, when balanced against the community benefit of three public health scenarios.
- US plan for routine HIV testing alarms privacy advocatesAlisa Opar
Nat Med 12:866. 2006
- A model-driven privacy compliance decision support for medical data sharing in EuropeH Boussi Rahmouni
Bristol Institute of Technology, University of the West of England, Bristol BS16 1QY, United Kingdom
Methods Inf Med 50:326-36. 2011..Clinical practitioners and medical researchers often have to share health data with other colleagues across Europe. Privacy compliance in this context is very important but challenging...
- Situation-Based Access Control: privacy management via modeling of patient data access scenariosMor Peleg
Department of Management Information Systems, University of Haifa, Israel
J Biomed Inform 41:1028-40. 2008Access control is a central problem in privacy management. A common practice in controlling access to sensitive data, such as electronic health records (EHRs), is Role-Based Access Control (RBAC)...
- Protecting the privacy of family members in survey and pedigree researchJ Botkin
Primary Children s Medical Center, 100 N Medical Dr, Salt Lake City, UT 84113, USA
JAMA 285:207-11. 2001..The analysis suggests that strong protections for the rights and welfare of subjects and their family members can be incorporated into survey and pedigree research protocols without hindering projects with extensive consent requirements...
- Re-identification of home addresses from spatial locations anonymized by Gaussian skewChristopher A Cassa
Children s Hospital Informatics Program, Children s Hospital Boston, Boston, MA, USA
Int J Health Geogr 7:45. 2008..One approach to preserving the privacy of individual-level addresses in a data set is to de-identify the data using a non-deterministic blurring ..
- A voluntary privacy standard for health services and policy research: legal, ethical and social policy issues in the Canadian contextKaren M Weisbaum
Queen s University, Kingston, Ontario, Canada
Health Law Rev 14:42-6. 2005In this review, the authors describe how one group of Canadian researchers has begun to address current privacy protection challenges with the end goal of developing a Canadian national standard for privacy protection specific to health ..
- Patient privacy and confidentialityJim Chalmers
BMJ 326:725-6. 2003
- Influence of the HIPAA Privacy Rule on health researchRoberta B Ness
University of Pittsburgh, Graduate School of Public Health, Pittsburgh, Pennsylvania 15261, USA
JAMA 298:2164-70. 2007Anecdotal reports suggest that the Health Insurance Portability and Accountability Act Privacy Rule (HIPAA Privacy Rule) may be affecting health research in the United States.
- Autonomy, privacy and informed consent 3: elderly care perspectiveP A Scott
Department of Nursing and Midwifery, University of Stirling, Scotland
Br J Nurs 12:158-68. 2003..It explores patient autonomy, privacy and informed consent in the care of elderly people in long-stay care facilities (i.e...
- Perceptions of autonomy, privacy and informed consent in the care of elderly people in five European countries: general overviewHelena Leino-Kilpi
Department of Nursing Science, University of Turku, Finland
Nurs Ethics 10:18-27. 2003..The project explored the issues of autonomy (part I), privacy (part II) and informed consent (part III) in nursing practice...
- Notices of Privacy Practices: a survey of the Health Insurance Portability and Accountability Act of 1996 documents presented to patients at US hospitalsMichael K Paasche-Orlow
Department of Medicine, Boston University School of Medicine, Boston, Massachusetts 02118, USA
Med Care 43:558-64. 2005Federal regulation requires hospitals to present patients with a Notice of Privacy Practices (NPP) that contains all stipulated content items, is readable by patients, and posted on institutional web sites.
- A little privacy, please. Computer scientist latanya sweeney helps to save confidentiality with "anonymizing" programs, "deidentifiers" and other clever algorithms. Whether they are enough, however, is another questionChip Walter
Sci Am 297:92, 94-5. 2007
- The privacy rule that's notRichard Sobel
Havard Medical School, USA
Hastings Cent Rep 37:40-50. 2007HIPAA is often described as a privacy rule. It is not. In fact, HIPAA is a disclosure regulation, and it has effectively dismantled the longstanding moral and legal tradition of patient confidentiality...
- Legal issues concerning electronic health information: privacy, quality, and liabilityJ G Hodge
Georgetown University Law Center, Washington, DC 20013 6305, USA
JAMA 282:1466-71. 1999..However, it also presents new legal challenges in 3 interconnected areas: privacy of identifiable health information, reliability and quality of health data, and tortbased liability...
- Biobank research and the right to privacyLars Oystein Ursin
Philosophy Department and Bioethics Research Group, Norwegian University of Technology and Science, 7491 Trondheim, Norway
Theor Med Bioeth 29:267-85. 2008What is privacy? What does privacy mean in relation to biobanking, in what way do the participants have an interest in privacy, (why) is there a right to privacy, and how should the privacy issue be regulated when it comes to biobank ..
- An unsupervised classification method for inferring original case locations from low-resolution disease mapsJohn S Brownstein
Children s Hospital Informatics Program at the Harvard MIT Division of Health Sciences and Technology, 1 Autumn St, Boston, MA, USA
Int J Health Geogr 5:56. 2006..In this report, a method is presented to evaluate whether patient privacy is being breached in the publication of low-resolution disease maps.
- The security implications of VeriChip cloningJohn Halamka
Beth Israel Deaconess Medical Center, Boston, MA 02120, USA
J Am Med Inform Assoc 13:601-7. 2006..2 Paradoxically, for bearer safety, a VeriChip should be easy to spoof; an attacker then has less incentive to coerce victims or extract VeriChips from victims' bodies...
- Perinatal substance abuse and human subjects research: are privacy protections adequate?Mary Faith Marshall
Kansas University Medical Center, Kansas City, Kansas 66160, USA
Ment Retard Dev Disabil Res Rev 9:54-9. 2003b>Privacy incursions in the clinical care of substance abusing pregnant women have gained lay and professional attention recently as the result of a high-profile Supreme Court finding in Ferguson vs City of Charleston et al...
- Medical privacy and medical research--judging the new federal regulationsGeorge J Annas
N Engl J Med 346:216-20. 2002
- Health information: reconciling personal privacy with the public good of human healthL O Gostin
Georgetown University, 600 New Jersey Avenue NW, Washington, DC 20001, USA
Health Care Anal 9:321-35. 2001..of the health care system depends on the accuracy, correctness and trustworthiness of the information, and the privacy rights of individuals to control the disclosure of personal information...
- Keeping an eye on privacy issues with geospatial dataAndrew Curtis
Nature 441:150. 2006
- Potential impact of the HIPAA privacy rule on data collection in a registry of patients with acute coronary syndromeDavid Armstrong
Division of Cardiovascular Medicine, Department of Internal Medicine, and the Cardiovascular Center of the University of Michigan Health System, and Health Services Research and Development Center of Excellence, Ann Arbor, USA
Arch Intern Med 165:1125-9. 2005Implementation of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule has the potential to affect data collection in outcomes research.
- The perceived impact of location privacy: a web-based survey of public health perspectives and requirements in the UK and CanadaPhilip AbdelMalik
Faculty of Health and Social Work, University of Plymouth, Centre Court, 73 Exeter Street, Drake Circus, Plymouth, Devon PL4 8AA, UK
BMC Public Health 8:156. 2008..is most useful at its most precise, granular scale - which increases identification risks, thereby clashing with privacy issues...
- Privacy or life: how do women find out about screening mammography services?Margaret Brunton
School of Communication Studies, Auckland University of Technology
N Z Med J 115:U168. 2002..This study investigated how women found out about the Waikato pilot breast cancer screening programme and what influenced them to participate...
- Privacy and ethics in pediatric environmental health research-part II: protecting families and communitiesCelia B Fisher
Center for Ethics Education, Fordham University, Bronx, New York 10458, USA
Environ Health Perspect 114:1622-5. 2006..Ethical concerns related to family consent and privacy become paramount as pediatric environmental health research increasingly turns to questions of gene-environment ..
- Handhelds and HIPAACrissy Knox
University of Louisville Hospital, Kentucky, USA
Nurs Manage 38:38-40. 2007
- Part III: meeting the challenge when data sharing is requiredVirginia A de Wolf
IRB 28:10-5. 2006
- Cultural and Ethical Issues in Genetic Family StudiesNedal Arar; Fiscal Year: 2002..2) recruiters' perspective on family enrollment. (3) association of participants' responses with demographic characteristics. (4) ethnic differences in attitudes towards participation in GFS. ..
- Neighborhood Food Environment, Diet and Health: Quasi-experimental StudyStephen Matthews; Fiscal Year: 2006..Findings from the project will be used to prepare a proposal to NIH for a larger mixed-method, multi-site experimental study in a range of community settings (urban, small town, rural) throughout the USA. ..
- A Qualitative Study of Dual-Diagnosed HomelessDeborah Padgett; Fiscal Year: 2007..Our ultimate goal is to translate empirical findings into replicable policies and practices that will enhance outreach and service delivery for this 'hard-to-reach' population. ..
- Participant Perspectives on Drug Use/HIV Research EthicsCelia Fisher; Fiscal Year: 2007..unreadable] [unreadable] [unreadable]..
- Mentoring the Responsible Conduct of ResearchCelia Fisher; Fiscal Year: 2006..unreadable] [unreadable]..
- Fordham Resident Alcohol Prevention ProgramCelia Fisher; Fiscal Year: 2007..unreadable] [unreadable]..
- CONSENT CAPACITY OF ADULTS WITH MENTAL RETARDATIONCelia Fisher; Fiscal Year: 2002..A significant other is also chosen by the subjects to aid in them during the three format presentations. ..
- Normal Impulsivity: A Cognitive Neuroscience AnalysisMartha Farah; Fiscal Year: 2005..abstract_text> ..
- Poverty and the Brain: A Cognitive Neuroscience AnalysisMartha Farah; Fiscal Year: 2007..Neurocognitive systems mediating resilience and successful adolescence will also be sought. ..
- SEMANTIC AND VISUAL COGNITION IN ALZHEIMERS DISEASEMartha Farah; Fiscal Year: 2001..In addition, new predictions of the computational hypotheses have been derived and will form the basis of further empirical tests with human subjects. ..
- A Technology-Enhanced Nursing Intervention for Hospice CaregiversGeorge Demiris; Fiscal Year: 2009....
- Surveillance: The Ethics of Public Health ReportingRonald Bayer; Fiscal Year: 2004The project will address the broad question of how shifting understandings of privacy and confidentiality as reflected in constitutional, ethical, and social norms have affected the understanding and acceptability of public health ..
- Ethical Challenges in Lead Poisoning Prevention ResearchNancy Kass; Fiscal Year: 2005..The investigators hypothesize that our approach can produce models for education of diverse communities and EH scientists. ..
- Parental Role in Pediatric Cancer Pain and SurvivorshipTerrance Albrecht; Fiscal Year: 2005..Finally, psychosocial and health status will be assessed several days after treatment procedure. ..
- Biopsychosocial Processes and Treatment Decision MakingTerrance Albrecht; Fiscal Year: 2005..abstract_text> ..
- NEWBORN GENETIC SCREENING:FOR WHOSE BENEFIT?Lainie Ross; Fiscal Year: 2005..OUTCOMES: The major outcomes will be a series of peer-reviewed articles and a full-length book entitled Newborn Genetic Screening: In whose Interest? For whose Benefit? ..
- Integrating and Expanding Clinical Research NetworksRobert Williams; Fiscal Year: 2004..3. Collaborate with other clinical research networks to facilitate the communication and cooperation of RIOS Net with one or more additional networks. 4. Expand the RIOS Net information technology infrastructure and linkage capability...
- Toward a clinical trial of care integration in NMRobert Williams; Fiscal Year: 2006..unreadable] [unreadable]..
- Adolescents' Exposure to Family and Community ViolenceGayla Margolin; Fiscal Year: 2009..The focus on proximal, modifiable variables ultimately can be used to inform intervention and prevention programs for adolescents exposed to violence. ..
- Ethics and Practice in Stored Tissue Genetic ResearchLeslie Wolf; Fiscal Year: 2006..abstract_text> ..
- A Controlled Terminology for Diagnoses and Findings in General DentistryTitus Schleyer; Fiscal Year: 2008..unreadable] [unreadable] [unreadable]..
- Exploring the mistreatment of Native eldersLori Jervis; Fiscal Year: 2008..unreadable] [unreadable] [unreadable]..
- Exploring Attitudes About Data Disclosure and Data-Sharing in Genomics ResearchSusanne Haga; Fiscal Year: 2008..to online data-sharing through public and private databases, which may heighten participant concerns about privacy and genetic discrimination...
- Methods for Promoting Public Dialogue on the Use of Residual Newborn Screening SaJEFFREY ROBERT BOTKIN; Fiscal Year: 2010..The project also will compare 3 methods of obtaining public input on this important set of issues. The project is directly relevant to policies in public health departments that affect virtually every newborn in the country. ..
- Research Culture of Practice-Based Research NetworksANNE NEALE; Fiscal Year: 2007..A team of investigators from the PBRN Resource Center at Indiana University, and the Wayne State University Division of Practice-based Research will collaborate to ensure the success of the project. [unreadable] [unreadable] [unreadable]..
- Alcohol Use Reduction in Methadone Individuals with HCVAdeline Nyamathi; Fiscal Year: 2007..unreadable] [unreadable] [unreadable]..
- Inflammation and Ovarian CancerClareann Bunker; Fiscal Year: 2008..In particular, NSAID use may prove to be a potentially important chemopreventative for this often-fatal disease. ..
- Opiate-Induced Tolerance & Hyperalgesia in Pain PatientsLawrence Chu; Fiscal Year: 2008..abstract_text> ..
- Community-Based Approach to Designing an AIDS Program for HIV+ Mothers in IndiaAdeline Nyamathi; Fiscal Year: 2008..These findings will lead to future funding to actually develop and test a newly designed program. [unreadable] [unreadable] [unreadable]..
- Response Selection as a Function of AgeRobert Proctor; Fiscal Year: 2002..These guidelines will lead to development of products and environments that allow elderly adults to remain more independent and to engage safely in more activities in their daily lives. ..
- QUALITATIVE STUDY OF COUPLES' COMMUNICATION AND BEHAVIORDavid Seal; Fiscal Year: 2002..Study findings will be disseminated for use in the development of programs promoting relationship health in couples. ..
- Parents' Multimedia Guide to Child Nutrition and HealthRebekah Hersch; Fiscal Year: 2003..In Phase II, the effectiveness of the program will be rigorously field tested with parents. ..
- TB/HIV RISK REDUCTION WITH HOMELESS AND DRUG ADDICTEDAdeline Nyamathi; Fiscal Year: 2002....
- PREVENTING ALCOHOL EXPOSED PREGNANCY AFTER A JAIL TERMPatricia Mullen; Fiscal Year: 2001..The study will use an RCT design (n=270) to test the intervention's effect on alcohol consumption and birth control use 6 months after release. ..
- COMMUNITY BASED HIV PARTNER NOTIFICATION STUDYJudith Levy; Fiscal Year: 2001..Effects of testing and notification on the psychosocial well being, behavioral risk activities and interpersonal relationships among index persons and their partners also will be examined. ..
- Effects of Physician Communication on Patient AccrualTerrance Albrecht; Fiscal Year: 2003....
- Correcting the Literature After Scienctific MisconductANNE NEALE; Fiscal Year: 2003..abstract_text> ..
- Conference:Dental Informatics and Dental ResearchTitus Schleyer; Fiscal Year: 2002....
- Conference--ISEE 16th Annual MeetingDaniel Wartenberg; Fiscal Year: 2004..ISEE provides a variety of forums for discussion, critical reviews, collaborations and education issues for environmental exposures and their human health effects. ..
- ASSESSING THE PERFORMANCE OF ALTERNATIVE RISK ADJUSTERSLisa Iezzoni; Fiscal Year: 2001..abstract_text> ..
- Ethical Issues in Behavioral Health ResearchJames DuBois; Fiscal Year: 2004..The Center for Health Care Ethics at Saint Louis University and the Missouri Institute of Mental Health are committed to sustaining the course beyond year 3. ..
- Web-Based Partners in Care for Primary Care PracticesRebekah Hersch; Fiscal Year: 2004..abstract_text> ..
- Geographic Tools for Surveillance and Study of DiseaseDaniel Wartenberg; Fiscal Year: 2003..We will explore methods for imputing values and adjusting for edge effects using methods including Markov Chain Monte Carlo simulations. ..
- PERSONS WITH DISABILITIES: QUALITY OF CARE/SERVICE USELisa Iezzoni; Fiscal Year: 2001..Given that roughly 49 million Americans have a disabling condition, addressing concerns about their quality of care is essential. ..
- Older Adults, AIDS, and the InternetJudith Levy; Fiscal Year: 2002..Internet programming can reach a global audience, typically needs few staff to maintain, in some instances can be delivered by volunteers, and usually requires little office space or equipment. ..
- How Health Insurance Status Affects Persons with DisabilitiesLisa Iezzoni; Fiscal Year: 2007..This goal addresses the objectives of the Agency for Healthcare Research and Quality, which has identified persons with disabilities as one of its priority populations. [unreadable] [unreadable] [unreadable]..
- Traditional Male Circumcision in Malawi and HIV PreventionJudith Levy; Fiscal Year: 2009....
- Native Elders, Dementia and Family CaregivingLori Jervis; Fiscal Year: 2005....
- GIS Training Program for Population ScientistsStephen Matthews; Fiscal Year: 2005..abstract_text> ..
- Early-Stage Breast Cancer Treatment Decisions by Women with Physical DisabilitiesLisa Iezzoni; Fiscal Year: 2007..Our findings will help begin educating patients and physicians and could perhaps improve breast cancer care for women with physical disabilities. [unreadable] [unreadable] [unreadable]..
- How Access Affects Outcomes of Rehabilitation ServicesLisa Iezzoni; Fiscal Year: 2005..The primary outcome of the proposed study will be an assessment of the association of PT and OT, as routinely practiced nationwide and important outcomes of care. ..
- ISEE 18th Annual Meeting in Conjunction with ISEADaniel Wartenberg; Fiscal Year: 2006..ISEE provides a variety of forums for discussion, critical reviews, collaborations and education issues for environmental exposures and their human health effects. [unreadable] [unreadable] [unreadable] [unreadable]..
- ISEE 19th Annual ConferenceDaniel Wartenberg; Fiscal Year: 2007..ISEE provides a variety of forums for discussion, critical reviews, collaborations and education issues for environmental exposures and their human health effects. [unreadable] [unreadable] [unreadable] [unreadable]..
- Exception from informed consent in pediatricsMarilyn Morris; Fiscal Year: 2007..unreadable] [unreadable]..
- Reducing Barriers to Drug Abuse Treatment ServicesRichard Rapp; Fiscal Year: 2007..The study's parallel qualitative/ethnographic aims will describe how the processes of linkage and engagement occur at the individual level. ..
- Male Circumcision Trial for HIV Prevention, Rakai-UgandaRonald Gray; Fiscal Year: 2006..Control arm men will be offered circumcision as a service in Years 4-5, contingent on DSMB approval. ..
- STDS, FERTILITY, MARRIAGE AND DEMOGRAPHIC PROJECTIONRonald Gray; Fiscal Year: 2002..In collaboration with the U.S. Bureau of Census, data from the proposed study will be used to revise demographic projections of the effects of HIV on population growth, composition and AIDS orphanhood. ..
- DOUCHING, VAGINAL MICROBIOLOGY, AND PIDRoberta Ness; Fiscal Year: 2003..Given the paucity of information regarding the relationship between douching and reproductive outcomes, the proposed study is imperative in order to direct future public health recommendations. ..
- Cancer Care and Outcomes for Disabled Medicare PatientsLisa Iezzoni; Fiscal Year: 2006..These findings may suggest areas where more attention is needed, such as increasing cancer screening among disabled Medicare recipients or rethinking initial treatment strategies. ..