patient participation

Summary

Summary: Patient involvement in the decision-making process in matters pertaining to health.

Top Publications

  1. ncbi Patient self-management of chronic disease in primary care
    Thomas Bodenheimer
    Department of Family and Community Medicine, University of California, San Francisco, USA
    JAMA 288:2469-75. 2002
  2. ncbi Patient-centredness: a conceptual framework and review of the empirical literature
    N Mead
    National Primary Care Research and Development Centre, University of Manchester, UK
    Soc Sci Med 51:1087-110. 2000
  3. ncbi Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals' perceptions
    France Legare
    Research Centre of the Centre Hospitalier Universitaire de Québec, Quebec, Canada
    Patient Educ Couns 73:526-35. 2008
  4. pmc Developing a quality criteria framework for patient decision aids: online international Delphi consensus process
    Glyn Elwyn
    Department of General Practice, Centre for Health Sciences Research, Cardiff University, Cardiff CF14 4YS
    BMJ 333:417. 2006
  5. ncbi Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model
    C Charles
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ont, Canada
    Soc Sci Med 49:651-61. 1999
  6. pmc Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers
    Judith H Hibbard
    Department of Planning, Public Policy, and Management, University of Oregon, Eugene 97403 1209, USA
    Health Serv Res 39:1005-26. 2004
  7. pmc Development and testing of a short form of the patient activation measure
    Judith H Hibbard
    Department of Planning, Publicy, and Management, University of Oregon, Eugene, 97403, USA
    Health Serv Res 40:1918-30. 2005
  8. ncbi The diabetes mellitus medication choice decision aid: a randomized trial
    Rebecca J Mullan
    Knowledge and Encounter Research Unit, Mayo Center for Translational Science Activities, Mayo Clinic, Rochester, MN 55905, USA
    Arch Intern Med 169:1560-8. 2009
  9. ncbi An integrative model of shared decision making in medical encounters
    Gregory Makoul
    Program in Communication and Medicine, Division of General Internal Medicine, Robert H Lurie Comprehensive Cancer Center, Northwestern University Feinberg School of Medicine, 676 North St Clair, Suite 200, Chicago, IL 60611, USA
    Patient Educ Couns 60:301-12. 2006
  10. pmc Absolute cardiovascular disease risk and shared decision making in primary care: a randomized controlled trial
    Tanja Krones
    Department of General Practice Family Medicine, Phillips University Marburg, Marburg, Germany
    Ann Fam Med 6:218-27. 2008

Detail Information

Publications370 found, 100 shown here

  1. ncbi Patient self-management of chronic disease in primary care
    Thomas Bodenheimer
    Department of Family and Community Medicine, University of California, San Francisco, USA
    JAMA 288:2469-75. 2002
    ..Self-management education for chronic illness may soon become an integral part of high-quality primary care...
  2. ncbi Patient-centredness: a conceptual framework and review of the empirical literature
    N Mead
    National Primary Care Research and Development Centre, University of Manchester, UK
    Soc Sci Med 51:1087-110. 2000
    ..Two main approaches to measurement are evaluated: self-report instruments and external observation methods. A number of recommendations concerning the measurement of patient-centredness are made...
  3. ncbi Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals' perceptions
    France Legare
    Research Centre of the Centre Hospitalier Universitaire de Québec, Quebec, Canada
    Patient Educ Couns 73:526-35. 2008
    ..To update a systematic review on the barriers and facilitators to implementing shared decision-making in clinical practice as perceived by health professionals...
  4. pmc Developing a quality criteria framework for patient decision aids: online international Delphi consensus process
    Glyn Elwyn
    Department of General Practice, Centre for Health Sciences Research, Cardiff University, Cardiff CF14 4YS
    BMJ 333:417. 2006
    ..To develop a set of quality criteria for patient decision support technologies (decision aids)...
  5. ncbi Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model
    C Charles
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ont, Canada
    Soc Sci Med 49:651-61. 1999
    ..Rather than advocating a particular approach, we emphasize the importance of flexibility in the way that physicians structure the decision-making process so that individual differences in patient preferences can be respected...
  6. pmc Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers
    Judith H Hibbard
    Department of Planning, Public Policy, and Management, University of Oregon, Eugene 97403 1209, USA
    Health Serv Res 39:1005-26. 2004
    ..Controlling costs and achieving health care quality improvements require the participation of activated and informed consumers and patients...
  7. pmc Development and testing of a short form of the patient activation measure
    Judith H Hibbard
    Department of Planning, Publicy, and Management, University of Oregon, Eugene, 97403, USA
    Health Serv Res 40:1918-30. 2005
    ..The measure was developed using Rasch analyses and is an interval level, unidimensional, Guttman-like measure. The current analysis is aimed at reducing the number of items in the measure while maintaining adequate precision...
  8. ncbi The diabetes mellitus medication choice decision aid: a randomized trial
    Rebecca J Mullan
    Knowledge and Encounter Research Unit, Mayo Center for Translational Science Activities, Mayo Clinic, Rochester, MN 55905, USA
    Arch Intern Med 169:1560-8. 2009
    ..Patient involvement in the choice of antihyperglycemic agents could improve adherence and optimize glycemic control in patients with type 2 diabetes mellitus...
  9. ncbi An integrative model of shared decision making in medical encounters
    Gregory Makoul
    Program in Communication and Medicine, Division of General Internal Medicine, Robert H Lurie Comprehensive Cancer Center, Northwestern University Feinberg School of Medicine, 676 North St Clair, Suite 200, Chicago, IL 60611, USA
    Patient Educ Couns 60:301-12. 2006
    ....
  10. pmc Absolute cardiovascular disease risk and shared decision making in primary care: a randomized controlled trial
    Tanja Krones
    Department of General Practice Family Medicine, Phillips University Marburg, Marburg, Germany
    Ann Fam Med 6:218-27. 2008
    ..We wanted to determine the effect of promoting the effective communication of absolute cardiovascular disease (CVD) risk and shared decision making through disseminating a simple decision aid for use in family practice consultations...
  11. pmc Effectiveness of a web-based self-help intervention for symptoms of depression, anxiety, and stress: randomized controlled trial
    Annemieke van Straten
    FPP, Department of Clinical Psychology, Vrije Universiteit Amsterdam, Van der Boechorststraat 1, 1081 BT Amsterdam, The Netherlands
    J Med Internet Res 10:e7. 2008
    ..We developed a new Web-based self-help intervention based on problem-solving therapy, which may be used for people with different types of comorbid problems: depression, anxiety, and work-related stress...
  12. pmc Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis
    David Samoocha
    Department of Public and Occupational Health, The EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, Netherlands
    J Med Internet Res 12:e23. 2010
    ..Patient empowerment is growing in popularity and application. Due to the increasing possibilities of the Internet and eHealth, many initiatives that are aimed at empowering patients are delivered online...
  13. pmc Rates and determinants of repeated participation in a web-based behavior change program for healthy body weight and healthy lifestyle
    Marieke W Verheijden
    TNO Quality of Life, CE Leiden, The Netherlands
    J Med Internet Res 9:e1. 2007
    ..However, because of the known dose-response relationship between the intensity and frequency of counseling and the behavior change outcomes, selective retention may also be a concern...
  14. pmc Effectiveness of strategies for informing, educating, and involving patients
    Angela Coulter
    Picker Institute Europe, King s Mead House, Oxford OX1 1RX
    BMJ 335:24-7. 2007
  15. ncbi The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks
    Glyn Elwyn
    Primary Care Group, School of Medicine, University of Wales Swansea, Swansea, UK
    Health Expect 8:34-42. 2005
    ..The OPTION instrument assesses to what degree clinicians involve patients in decision making...
  16. pmc Factors influencing the use of a Web-based application for supporting the self-care of patients with type 2 diabetes: a longitudinal study
    Nicol Nijland
    Department of Psychology, Health and Technology Center for eHealth Research and Disease Management, Faculty of Behavioural Sciences, University of Twente, Enschede, Netherlands
    J Med Internet Res 13:e71. 2011
    ..The take-up of eHealth applications in general is still rather low and user attrition is often high. Only limited information is available about the use of eHealth technologies among specific patient groups...
  17. pmc Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi)
    Glyn Elwyn
    Department of Primary Care and Public Health, School of Medicine and the School of Psychology, Cardiff University, Cardiff, United Kingdom
    PLoS ONE 4:e4705. 2009
    ..To describe the development, validation and inter-rater reliability of an instrument to measure the quality of patient decision support technologies (decision aids)...
  18. ncbi Patient involvement in patient safety: what factors influence patient participation and engagement?
    Rachel E Davis
    Clinical Safety Research Unit, Department of Bio Surgery and Surgical Technology, QEQM, St Mary s Hospital, London, UK
    Health Expect 10:259-67. 2007
    ..In order to encourage patient participation in patient safety we first need to assess the full range of factors that may be implicated in such ..
  19. pmc Systematic review of involving patients in the planning and development of health care
    Mike J Crawford
    Primary Care and Population Health Sciences, Imperial College, Charing Cross Campus, London W6 8RP, UK
    BMJ 325:1263. 2002
    ..To examine the effects of involving patients in the planning and development of health care...
  20. ncbi Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients
    J Ende
    Section of General Internal Medicine, Boston University School of Medicine, Massachusetts
    J Gen Intern Med 4:23-30. 1989
    ..The conceptual and clinical implications of these findings are discussed...
  21. ncbi What constitutes evidence-based patient information? Overview of discussed criteria
    Martina Bunge
    University of Hamburg, Unit of Health Sciences and Education, 20146 Hamburg, Germany
    Patient Educ Couns 78:316-28. 2010
    ..To survey quality criteria for evidence-based patient information (EBPI) and to compile the evidence for the identified criteria...
  22. pmc Patients' unvoiced agendas in general practice consultations: qualitative study
    C A Barry
    Department of General Practice and Primary Care, Guy s, King s, and St Thomas s School of Medicine, King s College, London SE11 6SP
    BMJ 320:1246-50. 2000
    ..To investigate patients' agendas before consultation and to assess which aspects of agendas are voiced in the consultation and the effects of unvoiced agendas on outcomes...
  23. pmc Patient participation: current knowledge and applicability to patient safety
    Yves Longtin
    Infection Control Program, University of Geneva Hospitals and Faculty of Medicine, 4 rue Gabrielle Perret Gentil, 1211 Geneva 14, Switzerland
    Mayo Clin Proc 85:53-62. 2010
    b>Patient participation is increasingly recognized as a key component in the redesign of health care processes and is advocated as a means to improve patient safety...
  24. ncbi Measuring numeracy without a math test: development of the Subjective Numeracy Scale
    Angela Fagerlin
    VA Health Services Research and Development Center for Practice Management and Outcomes Research, VA Ann Arbor Healthcare System, Ann Arbor, Michigan, USA
    Med Decis Making 27:672-80. 2007
    ..Basic numeracy skills are necessary before patients can understand the risks of medical treatments. Previous research has used objective measures, similar to mathematics tests, to evaluate numeracy...
  25. pmc Defining participant exposure measures in Web-based health behavior change programs
    Brian G Danaher
    Oregon Research Institute, 1715 Franklin Blvd, Eugene, OR 97403, USA
    J Med Internet Res 8:e15. 2006
    ....
  26. pmc Experience-based design: from redesigning the system around the patient to co-designing services with the patient
    Paul Bate
    Centre for Health Informatics and Multiprofessional Education, Royal Free and University College Medical School, University College London, London, UK
    Qual Saf Health Care 15:307-10. 2006
    ....
  27. pmc A research agenda for personal health records (PHRs)
    David C Kaelber
    Partners HealthCare Information Systems, Boston MA, USA
    J Am Med Inform Assoc 15:729-36. 2008
    ..We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency...
  28. ncbi Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs
    France Legare
    Universite Laval, Quebec City, Quebec, Canada
    Med Decis Making 31:E45-74. 2011
    ..The most frequently cited objective for using PPIPs in developing CPGs was to incorporate patients' values or perspectives in CPG recommendations. Patients and their families and caregivers were the parties most often involved...
  29. ncbi The meaning of patient involvement and participation in health care consultations: a taxonomy
    Andrew G H Thompson
    School of Social and Political Studies, University of Edinburgh, Adam Ferguson Bldg, George Square, EH8 9LL Edinburgh, UK
    Soc Sci Med 64:1297-310. 2007
    ..These levels are seen to provide basic building blocks for a more sophisticated understanding of involvement within and between these contexts for use by professionals, managers, policy-makers and researchers...
  30. pmc Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices
    G Elwyn
    Department of General Practice, University of Wales College of Medicine, USA
    Br J Gen Pract 50:892-9. 2000
    ....
  31. ncbi How does communication heal? Pathways linking clinician-patient communication to health outcomes
    Richard L Street
    Texas A and M University, College Station, TX, United States
    Patient Educ Couns 74:295-301. 2009
    ....
  32. ncbi Evidence Based Medicine and Shared Decision Making: the challenge of getting both evidence and preferences into health care
    Alexandra Barratt
    School of Public Health, University of Sydney, Sydney, NSW 2006, Australia
    Patient Educ Couns 73:407-12. 2008
    ..This paper look at the achievements of EBM and SDM so far, the potential tensions between them, and how things might progress in the future...
  33. pmc Shared decision making: developing the OPTION scale for measuring patient involvement
    G Elwyn
    Department of Primary Care, University of Wales Swansea Clinical School, Swansea SA2 8PP, UK
    Qual Saf Health Care 12:93-9. 2003
    ..that no measures of the extent to which healthcare professionals involve patients in decisions within clinical consultations exist, despite the increasing interest in the benefits or otherwise of patient participation in these decisions.
  34. pmc Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace
    Trisha Greenhalgh
    Healthcare Innovation and Policy Unit, Centre for Health Sciences, Barts and the London School of Medicine and Dentistry, London E1 2AT, UK
    BMJ 341:c5814. 2010
    ....
  35. ncbi The 9-item Shared Decision Making Questionnaire (SDM-Q-9). Development and psychometric properties in a primary care sample
    Levente Kriston
    Department of Medical Psychology, University Medical Center Hamburg Eppendorf, Hamburg, Germany
    Patient Educ Couns 80:94-9. 2010
    ..To develop and psychometrically test a brief patient-report instrument for measuring Shared Decision Making (SDM) in clinical encounters...
  36. ncbi Informed decision making in outpatient practice: time to get back to basics
    C H Braddock
    Department of Medicine, VA Puget Sound Health Care System, Seattle 98108, USA
    JAMA 282:2313-20. 1999
    ..However, little is known about the extent to which physicians foster patient involvement in decision making, particularly in routine office practice...
  37. pmc Assessing the promise of user involvement in health service development: ethnographic study
    Nina Fudge
    Division of Health and Social Care Research, King s College London, London
    BMJ 336:313-7. 2008
    ..To understand how the policy of user involvement is interpreted in health service organisations and to identify factors that influence how user involvement is put into practice...
  38. pmc An intervention to promote patient participation and self-management in long term conditions: development and feasibility testing
    Joanne Protheroe
    National Primary Care Research and Development Centre, University of Manchester, Oxford Road, Manchester M139PL, UK
    BMC Health Serv Res 10:206. 2010
    ..Current health policy places emphasis on self-management and supporting patient participation as ways of improving patient outcomes and reducing costs...
  39. pmc The Norwegian Institute of Public Health twin study of mental health: examining recruitment and attrition bias
    Kristian Tambs
    The Norwegian Institute of Public Health, Division of Mental Health, Oslo, Norway
    Twin Res Hum Genet 12:158-68. 2009
    ..In general the results show a moderate selection towards good mental and somatic health. Attrition from Q2 to the MHS does not appear to affect twin analyses of mental health related variables...
  40. ncbi Deliberation before determination: the definition and evaluation of good decision making
    Glyn Elwyn
    Department of Primary Care and Public Health, School of Medicine, Cardiff University, Cardiff, UK
    Health Expect 13:139-47. 2010
    ....
  41. pmc Shared decision making: a model for clinical practice
    Glyn Elwyn
    Cochrane Institute of Primary Care and Public Health, Neuadd Meirionydd, Cardiff University, Heath Park, Cardiff, UK, CF14 4XN
    J Gen Intern Med 27:1361-7. 2012
    ....
  42. ncbi Development and first validation of the shared decision-making questionnaire (SDM-Q)
    D Simon
    Section of Clinical Epidemiology and Health Services Research, Department of Psychiatry and Psychotherapy, University Hospital of Freiburg, Hauptstr 5, D 79104 Freiburg, Germany
    Patient Educ Couns 63:319-27. 2006
    ..Due to a lack of valid German instruments measuring shared decision-making (SDM), a theory-driven questionnaire (SDM-Q) to measure the process of SDM was developed and validated...
  43. ncbi Measuring shared decision making processes in psychiatry: skills versus patient satisfaction
    Anne Goossensen
    Erasmus University Medical Center, Department of Health Policy and Management, 3000 DR Rotterdam 010 4088712, The Netherlands
    Patient Educ Couns 67:50-6. 2007
    ..To measure to what extent clinicians in a psychiatry department involve patients in decision making about treatment choice and to compare these data with patients' satisfaction rates about clinician communication behaviours...
  44. ncbi The impact of patient participation on adherence and clinical outcome in primary care of depression
    Andreas Loh
    University Hospital of Freiburg, Department of Psychiatry and Psychotherapy, Section Clinical Epidemiology and Health Services Research, D 79104 Freiburg, Germany
    Patient Educ Couns 65:69-78. 2007
    b>Patient participation in shared treatment decision-making is hypothesized to improve depression treatment adherence and clinical outcomes in depressed patients...
  45. ncbi Acceptability of the internet-based Chlamydia screening implementation in the Netherlands and insights into nonresponse
    Katie E Greenland
    Epidemiology and Surveillance Unit, Centre for Infectious Disease Control, National Institute of Public Health and the Environment, Bilthoven, The Netherlands
    Sex Transm Dis 38:467-74. 2011
    ....
  46. ncbi Validation of a decision regret scale
    Jamie C Brehaut
    Clinical Epidemiology Unit, Ottawa Health Research Institute, Ottawa Hospital, Civic Campus, Ottawa, ON, Canada
    Med Decis Making 23:281-92. 2003
    ..As patients become more involved in health care decisions, there may be greater opportunity for decision regret. The authors could not find a validated, reliable tool for measuring regret after health care decisions...
  47. ncbi Interventions for improving the adoption of shared decision making by healthcare professionals
    France Legare
    Centre de recherche du Centre Hospitalier Universitaire de Québec CHUQ, St Francois d Assise Hospital, 10 rue de l Espinay, Local D1 724, Quebec, Quebec, Canada, G1L 3L5
    Cochrane Database Syst Rev . 2010
    ..Despite this potential, SDM has not yet been widely adopted in clinical practice...
  48. ncbi Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery: a randomized trial
    Timothy Whelan
    Department of Medicine, McMaster University, Hamilton Health Sciences, Hamilton, Ontario, Canada
    JAMA 292:435-41. 2004
    ..Consequently, the choice of treatment should be based on a patient's preferences...
  49. ncbi Measurement of shared decision making - a review of instruments
    Isabelle Scholl
    Department of Medical Psychology, University Medical Center Hamburg Eppendorf, Hamburg, Germany
    Z Evid Fortbild Qual Gesundhwes 105:313-24. 2011
    ..Further psychometric testing is needed, as well as the development of a theoretical measurement framework in order to improve consistency of measured constructs across research groups...
  50. ncbi Choice experiments in health: the good, the bad, the ugly and toward a brighter future
    Jordan J Louviere
    Centre for the Study of Choice, University of Technology, Sydney, PO Box 123, Broadway, NSW 2007, Australia
    Health Econ Policy Law 4:527-46. 2009
    ....
  51. ncbi Patients' preference for involvement in medical decision making: a narrative review
    Rebecca Say
    School of Population and Health Sciences, Medical School, University of Newcastle, Framlington Place, Newcastle upon Tyne NE2 4HH, UK
    Patient Educ Couns 60:102-14. 2006
    ..This review aimed to clarify present knowledge about the factors which influence patients' preference for involvement in medical decision making...
  52. pmc Design and implementation of an interactive website to support long-term maintenance of weight loss
    Victor J Stevens
    Kaiser Permanente, Center for Health Research, Portland, OR 97227, USA
    J Med Internet Res 10:e1. 2008
    ..Internet-based weight loss maintenance programs offer considerable potential for meeting this need. Careful design processes are required to maximize adherence and minimize attrition...
  53. ncbi Barriers to patient involvement in health service planning and evaluation: an exploratory study
    Anna R Gagliardi
    Sunnybrook Health Sciences Centre, 2075 Bayview Avenue, Room C8 30, Toronto, Ontario, Canada M4N3M5
    Patient Educ Couns 70:234-41. 2008
    ..This study explored stakeholder beliefs about patient participation in performance indicator selection to better understand hypothesized barriers.
  54. ncbi Patients' participation in medical care: effects on blood sugar control and quality of life in diabetes
    S Greenfield
    Department of Medicine, University of California, Los Angeles
    J Gen Intern Med 3:448-57. 1988
    ..Experimental patients reported significantly fewer function limitations. The authors conclude that the intervention is feasible and that it changes patient behavior, improves blood sugar control, and decreases functional limitations...
  55. ncbi The design of a decision aid about diabetes medications for use during the consultation with patients with type 2 diabetes
    Maggie Breslin
    Department of Medicine, Knowledge and Encounter Research Unit and the SPARC Innovation Program, Mayo Clinic College of Medicine, Rochester 55905, MN, USA
    Patient Educ Couns 73:465-72. 2008
    ..To describe the process used to develop a medication choice decision aid (DA) for patients with type 2 diabetes...
  56. ncbi Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions
    Donald J Kiesler
    Virginia Commonwealth University, Department of Psychology, 808 W Franklin Street, Box 842018, Richmond, VA 23284, USA
    Patient Educ Couns 61:319-41. 2006
    ..A comprehensive review was conducted of the theoretical and empirical work that addresses the preference-match strategy in physician-patient communication...
  57. ncbi European patients' views on the responsiveness of health systems and healthcare providers
    Angela Coulter
    Picker Institute Europe, Oxford, UK
    Eur J Public Health 15:355-60. 2005
    ..Responsiveness to patients is now seen as a key characteristic of effective health systems. This study aimed to learn more about European people's views on the responsiveness of their country's health systems and healthcare providers...
  58. pmc Influence of patients' requests for direct-to-consumer advertised antidepressants: a randomized controlled trial
    Richard L Kravitz
    Center for Health Services Research in Primary Care, University of California, Davis, Sacramento, CA 95817, USA
    JAMA 293:1995-2002. 2005
    ..Critics charge that it leads to overprescribing, while proponents counter that it helps avert underuse of effective treatments, especially for conditions that are poorly recognized or stigmatized...
  59. pmc Training family physicians in shared decision making for the use of antibiotics for acute respiratory infections: a pilot clustered randomized controlled trial
    France Legare
    Research Centre of the Centre Hospitalier Universitaire de Québec, Quebec, QC, Canada
    Health Expect 14:96-110. 2011
    ..Experts estimate that the prevalence of antibiotics use exceeds the prevalence of bacterial acute respiratory infections (ARIs)...
  60. ncbi The United Kingdom Expert Patients Programme: results and implications from a national evaluation
    Anne Rogers
    National Primary Care Research and Development Centre, University of Manchester, Manchester, UK
    Med J Aust 189:S21-4. 2008
    ....
  61. ncbi Understanding surgery choices for breast cancer: how might the Theory of Planned Behaviour and the Common Sense Model contribute to decision support interventions?
    Stephanie Sivell
    Department of Primary Care and Public Health, School of Medicine, Cardiff University, Cardiff, Wales, UK
    Health Expect 14:6-19. 2011
    ....
  62. ncbi Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit
    Elin M Aasen
    Aalesund University College, Aalesund, Norway
    Scand J Caring Sci 26:61-9. 2012
    ..The aim of this study was to explore how elderly patients with end-stage renal disease who are undergoing treatment with haemodialysis for the rest of their lives perceive patient participation in a dialysis unit.
  63. ncbi A literature review of children's and young people's participation in decisions relating to health care
    Lucie Moore
    The School of Nursing, Midwifery and Social Work, The University of Manchester, University Place, Oxford Road, Manchester M13 9PL, UK
    J Clin Nurs 19:2215-25. 2010
    ..To review and critique the research literature on children's and young people's participation in health care decision-making, to highlight gaps in the research and to identify implications for nursing practice...
  64. pmc Keeping participants on board: increasing uptake by automated respondent reminders in an Internet-based chlamydia screening in the Netherlands
    Nynke F B Dokkum
    Cluster of Infectious Diseases, Amsterdam Health Service, Amsterdam, The Netherlands
    BMC Public Health 12:176. 2012
    ....
  65. pmc WikiBuild: a new application to support patient and health care professional involvement in the development of patient support tools
    Patrick Michel Archambault
    Centre de santé et de services sociaux Alphonse Desjardins Centre hospitalier affilié universitaire de Lévis, Levis, QC, Canada
    J Med Internet Res 13:e114. 2011
    ..As such, a wiki would be more than a simple patient support development tool, but could also become a dynamic and interactive repository and delivery tool that would facilitate ongoing and sustainable patient and professional engagement...
  66. pmc The facilitating factors and barriers encountered in the adoption of a humanized birth care approach in a highly specialized university affiliated hospital
    Roxana Behruzi
    McGill University, Faculty of Medicine, Department of Family Medicine, Montreal, Canada
    BMC Womens Health 11:53. 2011
    ....
  67. pmc Barriers and facilitators to shared decision-making among African-Americans with diabetes
    Monica E Peek
    Section of General Internal Medicine, Department of Medicine, University of Chicago, 5841 S Maryland, Chicago, IL 60637, USA
    J Gen Intern Med 24:1135-9. 2009
    ..African-Americans have less SDM than Whites, which may contribute to diabetes racial disparities. To date, there has been little research on SDM among African-Americans...
  68. ncbi Training health professionals in shared decision-making: an international environmental scan
    France Legare
    Centre Hospitalier Universitaire de Québec Research Centre, Hospital St François D Assise, Quebec, Canada
    Patient Educ Couns 88:159-69. 2012
    ..To identify and analyze training programs in shared decision-making (SDM) for health professionals...
  69. ncbi Toward shared decision making: using the OPTION scale to analyze resident-patient consultations in family medicine
    Marc André Pellerin
    Universite Laval, Quebec City, Quebec, Canada
    Acad Med 86:1010-8. 2011
    ....
  70. ncbi Patient decision-making related to antirheumatic drugs in rheumatoid arthritis: the importance of patient trust of physician
    Richard W Martin
    Departments of Medicine and Rheumatology, College of Human Medicine, Michigan State University, Grand Rapids, Michgan 49546, USA
    J Rheumatol 35:618-24. 2008
    ....
  71. ncbi Patient involvement and shared decision-making in mental health care
    Lilisbeth Perestelo-Perez
    Evaluation Unit of the Canary Islands Health Service SESCS, Tenerife, Spain
    Curr Clin Pharmacol 6:83-90. 2011
    ..However, more studies are needed to provide evidence about the impact of SDM on treatment compliance and health care outcomes. In this overview, the authors present the current state and the future perspectives of SDM in mental health...
  72. ncbi Scoping review and approach to appraisal of interventions intended to involve patients in patient safety
    Maggie Peat
    Department of Health Sciences, University of York, Heslington, York, UK
    J Health Serv Res Policy 15:17-25. 2010
    ..To review the literature on the involvement of patients in efforts to promote their own or others' safety while using health care services...
  73. pmc Involving users in developing health services
    Gillian M Craig
    BMJ 336:286-7. 2008
  74. ncbi Engaging patients in health care decisions in the emergency department through shared decision-making: a systematic review
    Darren Flynn
    Institute of Health and Society, Newcastle University, Newcastle upon Tyne, United Kingdom
    Acad Emerg Med 19:959-67. 2012
    ..Many decisions in the emergency department (ED) may benefit from patient involvement, even though this setting has been considered least conducive to shared decision-making (SDM)...
  75. ncbi Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world
    Jonathan Q Tritter
    Public Management and Policy Group, Warwick Business School, University of Warwick, Coventry, UK
    Health Expect 12:275-87. 2009
    ..Despite this attention there is limited conceptual and theoretical work to underpin policy and practice...
  76. ncbi Involving patients in decisions during psychiatric consultations
    Claudia Goss
    Department of Medicine and Public Health, Section of Psychiatry and Clinical Psychology, University of Verona, Policlinico G B Rossi Piazzale L A Scuro 10, 37134 Verona, Italy
    Br J Psychiatry 193:416-21. 2008
    ..Patient involvement in the decision-making process is a key element for good clinical practice. Few data are available on patient involvement in psychiatry...
  77. ncbi Patient health literacy and participation in the health-care process
    Hirono Ishikawa
    Department of Medicine and Culture, Shiga University of Medical Science, Shiga, and Department of Public Health, Teikyo University School of Medicine, Tokyo, Japan
    Health Expect 11:113-22. 2008
    ..We discuss the role of health literacy (HL) in improving patient participation and propose future research in this field.
  78. ncbi Physicians' reactions to uncertainty in the context of shared decision making
    Mary C Politi
    Department of Surgery, Washington University School of Medicine, St Louis, MO 63112 1408, USA
    Patient Educ Couns 80:155-7. 2010
    ..This study aimed to identify variables associated with physician's anxiety from uncertainty and reluctance to disclose uncertainty to patients...
  79. ncbi Confirmatory factor analysis and recommendations for improvement of the Autonomy-Preference-Index (API)
    Daniela Simon
    Section of Clinical Epidemiology and Health Services Research, University Medical Center, Freiburg, Germany
    Health Expect 13:234-43. 2010
    ..Validation of the German version of the Autonomy-Preference-Index (API), a measure of patients' preferences for decision making and information seeking...
  80. ncbi Participation in medical decision-making: attitudes of Italians with multiple sclerosis
    Andrea Giordano
    Neuroepidemiology Unit, Foundation IRCCS Neurological Institute C Besta, Via Celoria 11, 20133 Milan, Italy
    J Neurol Sci 275:86-91. 2008
    ..Patient involvement in decisions regarding their care has been advocated, but preferences have not been adequately canvassed, particularly in people with multiple sclerosis (MS)...
  81. ncbi Cultural influences on the physician-patient encounter: The case of shared treatment decision-making
    Cathy Charles
    Centre for Health Economics and Policy Analysis, Department of Clinical Epidemiology and Biostatistics, FHS, Rm 3H5, McMaster University, 1200 Main St West, Hamilton, Ont L8N3Z5, Canada
    Patient Educ Couns 63:262-7. 2006
    ..We explore two key issues: (1) the meaning of culture and the ways that it can affect treatment decision-making; (2) cultural issues and assumptions underlying the development and use of treatment decision aids...
  82. ncbi The emerging role of cell phone technology in ambulatory care
    Peter Boland
    BeWell Mobile Technology, San Francisco, USA
    J Ambul Care Manage 30:126-33. 2007
    ....
  83. ncbi Engaging patients in health care: an empirical study of the role of engagement on attitudes and action
    Liz Forbat
    Cancer Care Research Centre, University of Stirling, Innovation Park, Stirling, United Kingdom
    Patient Educ Couns 74:84-90. 2009
    ..Identify the role of engaging people affected by cancer in service development in influencing healthcare professionals and service-users' attitudes toward, and enactment of, engagement...
  84. pmc What leads Indians to participate in clinical trials? A meta-analysis of qualitative studies
    Jatin Y Shah
    Graduate Medical School, Duke National University of Singapore, Singapore, Singapore
    PLoS ONE 5:e10730. 2010
    ..This knowledge gap is particularly noticeable among Indian subjects, since despite the large number of participants, little is known regarding what factors affect their willingness to participate in clinical trials...
  85. ncbi Shared decision making models to inform an interprofessional perspective on decision making: a theory analysis
    Dawn Stacey
    Faculty of Health Sciences, School of Nursing, University of Ottawa, Ottawa, Ontario, Canada
    Patient Educ Couns 80:164-72. 2010
    ..To conduct a theory analysis of shared decision making (SDM) conceptual models and determine the extent to which the models are relevant to interprofessional collaboration in clinical practice...
  86. ncbi ASAS/EULAR recommendations for the management of ankylosing spondylitis: the patient version
    U Kiltz
    Rheumazentrum Ruhrgebiet, St Josefs Krankenhaus, Herne 44652, Germany
    Ann Rheum Dis 68:1381-6. 2009
    ....
  87. ncbi Patient participation in nursing care: an interpretation by Swedish registered nurses
    Monika J M Sahlsten
    The Sahlgrenska Academy at Goteborg University, Institute of Health Care Pedagogics, Goteborg, Sweden
    J Clin Nurs 14:35-42. 2005
    The aim of this study was to clarify Registered Nurses' understanding of patient participation in nursing care. Objectives were to investigate ward nurses' interpretation of the elements of patient participation and its implementation.
  88. pmc Evaluation design of a systematic, selective, internet-based, Chlamydia screening implementation in the Netherlands, 2008-2010: implications of first results for the analysis
    Ingrid V F van den Broek
    Epidemiology and Surveillance Unit, Centre for Infectious Disease Control, National Institute of Public Health and the Environment, Bilthoven, The Netherlands
    BMC Infect Dis 10:89. 2010
    ..The evaluation aims to determine the effects of screening on the population prevalence of Chlamydia trachomatis after multiple screening rounds...
  89. pmc Alcohol use and mental distress as predictors of non-response in a general population health survey: the HUNT study
    Fartein Ask Torvik
    Division of Mental Health, Norwegian Institute of Public Health, Nydalen, P O Box 4404, 0403, Oslo, Norway
    Soc Psychiatry Psychiatr Epidemiol 47:805-16. 2012
    ..To investigate to what degree alcohol use and mental distress are associated with non-response in a population-based health study...
  90. ncbi Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm
    Robert M Anderson
    Department of Medical Education, The Michigan Diabetes Research and Training Center, The University of Michigan Medical School, 1500 E Medical Ctr Dr, 0201 Towsley Center, Room G 1111, Ann Arbor, MI 48109 0201, USA
    Patient Educ Couns 57:153-7. 2005
    ..The challenges of fostering the adoption of a new paradigm differ substantially from those associated with the introduction of new technology. Those challenges are discussed in this paper...
  91. ncbi Non-participation in a field survey with respect to psychiatric disorders
    Marianne Haapea
    Department of Psychiatry, University of Oulu and Oulu University Hospital, Oulu, Finland
    Scand J Public Health 36:728-36. 2008
    ..We had a unique opportunity to explore psychiatric morbidity and non-participation in a large epidemiological survey including questionnaires and a clinical examination...
  92. ncbi New directions in eHealth communication: opportunities and challenges
    Gary L Kreps
    George Mason University, Department of Communication, Fairfax, VA, USA
    Patient Educ Couns 78:329-36. 2010
    ..This article reviews key communication issues involved in the design of effective and humane eHealth applications to help guide strategic development and implementation of health information technologies...
  93. ncbi End-of-life preferences in elderly patients admitted for heart failure
    F Formiga
    Geriatric Unit Internal Medicine Service, Hospital Universitari de Bellvitge Princeps d Espanya, L Hospitalet de Llobregat 08907, Barcelona, Spain
    QJM 97:803-8. 2004
    ..Heart failure is increasing in prevalence and incidence, with considerable mortality among the elderly...
  94. pmc Effects of a computerized system to support shared decision making in symptom management of cancer patients: preliminary results
    Cornelia M Ruland
    Rikshospitalet National Hospital, Oslo, Norway
    J Am Med Inform Assoc 10:573-9. 2003
    ....
  95. pmc The relative importance of physician communication, participatory decision making, and patient understanding in diabetes self-management
    Michele Heisler
    Veterans Affairs Center for Practice Management and Outcomes Research, VA Ann Arbor Healthcare System, Mich, USA
    J Gen Intern Med 17:243-52. 2002
    ....
  96. ncbi What influences a patient's desire to participate in the management of their hypertension?
    J Sims
    Division of General Practice and Primary Care, St George s Hospital Medical School, London, UK
    Patient Educ Couns 38:185-94. 1999
    ..Patients needed further information and advice before decisions about future level of participation could be properly considered...
  97. pmc Satisfaction with care among patients with non-metastatic breast cancer: development and first steps of validation of the REPERES-60 questionnaire
    Gautier Defossez
    University Hospital and University Institute of Public Health, Poitiers, France
    BMC Cancer 7:129. 2007
    ..The aim of this work was to obtain a valid instrument measuring satisfaction among patients with breast cancer and exploring their care itinerary overall...
  98. ncbi Assessing patients' participation and quality of decision-making: insights from a study of routine practice in diverse settings
    Vikki A Entwistle
    Health Services Research Unit, University of Aberdeen, Polwarth Building, Foresterhill, Aberdeen AB25 2ZD, Scotland, UK
    Patient Educ Couns 55:105-13. 2004
    ..They are not reliably attributable to health care providers' actions and are thus unsuitable for performance assessment purposes...
  99. ncbi Physician facilitation of patient involvement in care: correspondence between patient and observer reports
    Leslie R Martin
    Department of Psychology, La Sierra University, Riverside, California, USA
    Behav Med 28:159-64. 2003
    ..Open-ended questions, responding to patient questions, and offering fewer alternatives were all associated with the patients' positive reports of physician facilitation...
  100. ncbi Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node-negative breast cancer
    Timothy Whelan
    Cancer Care Ontario CCO, Hamilton Regional Cancer Centre, and Supportive Cancer Care Research Unit, McMaster University, Hamilton, Ontario, Canada
    J Natl Cancer Inst 95:581-7. 2003
    ..We determined whether adding the Decision Board to the medical consultation improved patient knowledge and satisfaction compared with the medical consultation alone...
  101. ncbi An analysis of the concept of patient participation
    Monika J M Sahlsten
    Institute of Health and Care Sciences, The Sahlgrenska Academy at Goteborg University, Goteborg, Sweden
    Nurs Forum 43:2-11. 2008
    The concept of patient participation has an array of interpretations and lacks clarity. The purpose of this article is to explore the concept of patient participation within the context of nursing practice...

Research Grants64

  1. Health Care Partners in Cancer Prevention and Care Among Aged - Competing Renewal
    Eva Kahana; Fiscal Year: 2013
    ..trial (RCT), we will evaluate the efficacy of our social learning theory based intervention that promotes patient participation in order to enhance patient centered medical care...
  2. A Comparison of Provider Versus Health Plan Delivered Care Management in Michigan
    Jodi Summers Holtrop; Fiscal Year: 2010
    ..to health plan-delivered care management (HPDCM);seeking to determine the comparative effectiveness of these two approaches on patient participation in care management, clinically relevant health indicators, and healthcare utilization.
  3. Patient-provider communication for patients with communication disorders
    CAROLYN RAE BAYLOR; Fiscal Year: 2013
    ..of different communication disorders, and the communication strategies that can be used to facilitate patient participation in healthcare...
  4. Decision Aid for Cigarette Smokers Undergoing Surgery
    David O Warner; Fiscal Year: 2012
    ..This has increased interest in decision aids, tools designed to facilitate patient participation in decision making about their care that present true choices, each involving harms and benefits...
  5. HealthCall: Brief Intervention to Reduce Drug Use in HIV Primary Care
    Efrat Aharonovich; Fiscal Year: 2013
    ..literature that could change concepts about the ratio of required clinician time to the duration of patient participation in an intervention...
  6. Treating Older Patients with Major Depression and Severe COPD
    George S Alexopoulos; Fiscal Year: 2012
    ..These problems are compounded by the demanding treatment of COPD that requires active patient participation. The last thing that a depressed, demoralized, cognitively compromised, and physically weak patient wants ..
  7. MAPPING ELOQUENT CORTEX USING RESTING STATE CORTICAL PHYSIOLOGY
    Joshua S Shimony; Fiscal Year: 2012
    ..To do so, current pre-operative and intra- operative brain mapping techniques require active patient participation, which limits their use in a significant number of patients (e.g. children)...
  8. "Ecosystem Focused Therapy" in Post Stroke Depression
    George S Alexopoulos; Fiscal Year: 2013
    ..5) It "coordinates care with specialized therapists" with the goal to increase patient participation in rehabilitation and social activities...
  9. Preparatory Aid to Improve Decision Making about Cancer Clinical Trials
    Neal J Meropol; Fiscal Year: 2013
    ..It is anticipated that improving decision making in this context will translate into increased patient participation in clinical trials...
  10. Patient-Centered Disclosure Intervention for HIV-Infected Children
    RACHEL CHRISTINE VREEMAN; Fiscal Year: 2013
    ..which will last 6 months, focuses on cultural adaptation of the intervention materials through intensive patient participation, including focus groups and cognitive interviewing;selecting narrative components;and training dedicated ..
  11. Surgical and Rehabilitative Management of Facial Nerve Injury
    THERESA A HADLOCK; Fiscal Year: 2013
    ..incorporating data from the precise level of patient function at any given point in recovery, and assuring patient participation via motivational strategies, customized sensorimotor rehabilitation has proven more effective than simple ..
  12. Active Patient Participation in a Disease Registry for Comparative Effectiveness
    Elissa R Weitzman; Fiscal Year: 2013
    ..org). SMART, which provides a common application programming interface enabling HIT platforms to run substitutable apps, allows us to create a pathway for wide diffusion of the software technology produced under this proposal. ..
  13. Improving Patient Safety and Restructuring Medical Liability Using ACEs
    DIANNE DIANNE GARCIA; Fiscal Year: 2010
    ..will include establishing an arbitration or mediation process for alternative dispute resolution, testing patient participation processes through focus groups, adopting an established provider apology process, and pilot testing the ..
  14. EVALUATING ELECTRONIC PATIENT-REPORTED OUTCOME ASSESSMENT METHODS IN CANCER CARE
    Roxanne Jensen; Fiscal Year: 2013
    ..address these gaps in the literature by using an ePRO system with a breast cancer population studying how patient participation and behaviors vary by location...
  15. RCT of Patient, Caregiver and Physician Communication Coaching in Advanced Cancer
    Richard L Kravitz; Fiscal Year: 2013
    ..designed to improve communication about prognosis and treatment choices in advanced cancer and promote patient participation in discussions regarding their care...
  16. Ozark Health Ventures, LLC dba Cancer Research for the Ozarks
    Jay W Carlson; Fiscal Year: 2013
    ..CRO exceeds five percent patient participation with over 200 patients enrolled to treatment and prevention and control trials each of the past five years...
  17. Facilitating Risk-Appropriate Colorectal Cancer Testing
    Celette Sugg Skinner; Fiscal Year: 2010
    ..We will determine extent to which the program facilitates: 1) patient participation in risk-appropriate colorectal cancer testing, documented by electronic medical record (EMR) audit;2) ..
  18. Einstein Center for Excellence for Clinical Trials in Neuroscience
    Shlomo Shinnar; Fiscal Year: 2013
    ..Aim 3: To optimize patient participation and retention through the application of community outreach and a behavioral intervention theoretical ..
  19. The ACTIVE Intervention to Improve Hospice Caregiver Pain Management
    Debra Parker Oliver; Fiscal Year: 2013
    ..This randomized controlled trial will definitively test the effect of caregiver/patient participation in hospice interdisciplinary team meetings on the caregiver's perception of pain and the effect of ..
  20. 2011 International Expert Meeting on Large Congenital Melanocytic Nevi
    Ashfaq Marghoob; Fiscal Year: 2011
    ..The leadership of major U.S. and European advocacy groups will attend the conference, to represent patient participation in those translational research projects for which the groundwork will be laid during the conference...
  21. COST EFFECTIVENESS OF EYE RESEARCH AND CARE
    Jonathan Javitt; Fiscal Year: 1993
    ..The actual impact of new treatments in the population depend heavily on the rate of patient participation. We will analyze data on the bases or varying rates of participation and model the medical and economic ..
  22. Building Modular Pediatric Chronic Disease Registries for QI and CE Research
    John J Hutton; Fiscal Year: 2010
    ..implement enhanced IBD-registry features to enable management of IBD care center populations and increase patient participation in care;(Aim 3) use data from the enhanced registry to compare the effectiveness of alternative treatment ..
  23. Using HIT to Improve Ambulatory Chronic Disease Care
    David Mehr; Fiscal Year: 2009
    ..2) enhance patient-provider connectivity and communication to improve clinical decision-making, patient participation in the care process, and ultimately, patient care outcomes...
  24. Interactive Computer Treatment for Panic Disorder
    NORMAN SCHMIDT; Fiscal Year: 2004
    ..Some of the primary factors that limit patient participation in treatment include cost and treatment availability...
  25. Health Care Decision Making in Older Adults
    KATHRYN FLYNN; Fiscal Year: 2005
    DESCRIPTION (provided by the applicant): Shared decision-making (SDM), defined as active patient participation during health care visits, is widely promoted in the literature and medical school curricula as an ideal model for health care ..
  26. Role of Social-Cognitive Motivational Factors in Achieving Voice Therapy Outcomes
    Eva Van Leer; Fiscal Year: 2009
    ..Thus, voice therapy requires patient participation and motivation for behavior change...
  27. Partnering with Patients to Find Adverse Events
    SAUL WEINGART; Fiscal Year: 2005
    ..This analysis broadens the approach to patient participation in safety by assessing whether organizations that provide patient-centered care also produce fewer ..
  28. Patient-Centeredness in Care of Vulnerable Populations
    Mary Catherine Beach; Fiscal Year: 2007
    ..The specific aims of these research projects are: 1) to evaluate the impact of patient literacy on patient participation in care and patient-physician communication; 2) to test a multidimensional model of vulnerability to poor ..
  29. Racial differences in physician-patient communication
    Thomas Campbell; Fiscal Year: 2003
    ..examine the relationship among these observed differences in nonverbal communication, verbal communication and outcome variables, including patient participation, satisfaction, and disparities in health care services.
  30. The Process of Group Therapy for Cocaine Dependence
    Paul Crits Christoph; Fiscal Year: 2007
    ..Specifically, we propose to examine degree of patient participation, quality of participation, quality of the therapeutic alliance, and frequency of feedback (and positive ..
  31. Improving Diabetes Efforts Across Language and Literacy
    Dean Schillinger; Fiscal Year: 2005
    ..The outcomes of interest for the IDEALL Project will include extent of patient participation, engagement with the interventions, changes in diabetes indices (such as diabetes self-efficacy, glycemic ..
  32. Shared Decision Making: Prostate Cancer Screening
    Michael Wilkes; Fiscal Year: 2007
    ..Ways to improve SDM include (1) "patient activation" interventions to increase patient participation in care and (2) physician interventions to improve the consultation process...
  33. INCREASING COLORECTAL CANCER SCREENING
    Jane Zapka; Fiscal Year: 2000
    ..and little research has been done to explain this limited compliance or to identify methods for increasing patient participation. We propose a randomized trial to measure the efficacy of an educational video in increasing compliance ..
  34. INTERDISCIPLINARY RESEARCH OF IMMUNOLOGIC DISEASES
    John Fahey; Fiscal Year: 1992
    ..outreach, AIDS educational programs for health care professionals (physicians and nurses) and increased patient participation in care of inflammatory bowel disease...
  35. SAN ANTONIO COMMUNITY CLINICAL ONCOLOGY PROGRAM
    Jose Lopez; Fiscal Year: 1992
    ..increasing minority patient participation in cancer treatment research, b...
  36. A COGNITIVE THERAPY CURRICULUM FOR INPATIENT DEPRESSIVES
    Judy Garber; Fiscal Year: 1990
    ..didactic and structured presentations, testing of knowledge acquired in therapy, promotion of strong patient participation, and a flexible curriculum...
  37. MINIATURE ACTUATOR FOR BONE LENGTHENING/TRANSPORT SYSTEM
    NICHOLAS VITALE; Fiscal Year: 2000
    ..success of the implant system, the actuator must be small, self-powered, automatic (actuate without active patient participation), and controllable (provide means for external clinical control and programming)...
  38. THE INFORMED CONSENT PROCESS IN CLINICAL TRIALS
    MARY MUELLER; Fiscal Year: 2004
    ..The study has six specific aims: 1) to uncover the activities of referring providers related to patient participation on clinical trials; 2) to specify the actions of research professionals (physician-investigators, nurse ..
  39. MEDICAL DECISION MAKING ABILITIES IN DEMENTIA
    Jennifer Moye; Fiscal Year: 2002
    ..First, the Patient Self-Determination Act has mandated patient participation in medical decisions...
  40. WOMENS ESTROGEN FOR STROKE TRIAL
    Ralph Horwitz; Fiscal Year: 2000
    ..WEST has enrolled 561 patients and has been remarkably successful in maintaining high protocol adherence, patient participation, and clinical safety...
  41. WWW BASED NORMATIVE PATIENT DECISION SUPPORT
    Leslie Lenert; Fiscal Year: 2000
    ..Therefore, it is especially important to find new ways to increase both the objectivity and the degree of patient participation in treatment decisions...
  42. IMPROVING PRIMARY CARE OF AFRICAN AMERICANS WITH NIDDM
    Lawrence Phillips; Fiscal Year: 2001
    ..assess proteinuria as a specific complication, evaluate potential alterations in provider outlook and patient participation in decision-making, and explore impact on quality of life as well...
  43. Common Daily Practices of Gene Therapy Clinical Research
    GWENIEVERE ANDERSON; Fiscal Year: 2006
    ..The aim is to build public trust, promote patient participation in future research and spotlight exemplary models of collaborative clinical practices...
  44. ADHERENCE TO ANTIRETROVIRAL THERAPY: A CONTROLLED TRIAL
    Carol Golin; Fiscal Year: 2004
    ..b>Patient participation is increasingly advocated for patients with HIV to enhance adherence; however, the effect of participation ..
  45. Socioeconomic Diversity of CAM Integration in Oncology
    June Chan; Fiscal Year: 2002
    ..The underlying hypotheses are that: 1) characterizing patient participation in available CAM programs (what programs are used, and when and why they are used) is feasible and 2) ..
  46. Cancer Center Model For Early Phase Clinical Trials
    Samuel Jacobs; Fiscal Year: 2005
    ..by applicant) This proposal is to develop a community (network) model for conducting and enhancing patient participation in early phase clinical trials...
  47. Cell Collection Device for Colon Cancer Screening
    BRIAN CRAINE; Fiscal Year: 2006
    ..The elimination of this step is believed to be an important step for broad patient participation in screening programs with the great potential of DNA marker screening...
  48. Cancer Trials Data Collection/Reporting Via Internet
    STEPHANIE KARSTEN; Fiscal Year: 2002
    ..and reporting requirements is a disincentive for even the most dedicated health professional to promote patient participation in clinical trials...
  49. CLIN RESEARCH CENTER FOR THE STUDY OF SENILE DEMENTIA
    Jerome Yesavage; Fiscal Year: 2000
    ..a major increase in funded AD research at Stanford, while at the same time minimizing the burden of patient participation in research...
  50. Monitoring of Heart Failure Patients via the Internet
    EDWARD HOOBLER; Fiscal Year: 2004
    ..of heart failure patients to determine the impact on cost of care, stability of heart failure status, and patient participation in their chronic disease management...
  51. Increasing EPCT Accrual Among Hispanics in South Texas
    Amelie Ramirez; Fiscal Year: 2004
    ..intervention trial to overcome barriers encountered by both patients and oncologists when considering patient participation in an early phase clinical trial...
  52. ADULT AIDS CLINICAL TRIAL UNIT
    WILLIAM O BRIEN; Fiscal Year: 2007
    ..investigation to gather all informationon subjects in the studies to maximize e scientific contribution of patient participation in AACTG studies...
  53. Eliciting Patient Treatment Preferences for Osteoporosis
    Liana Fraenkel; Fiscal Year: 2008
    ..abstract_text> ..
  54. Integrated Treatment of Persons with Co-Occurring HCV and Alcohol Use/Abuse
    Andrew Muir; Fiscal Year: 2009
    ..Finally, this study may lead to greatly enhanced understanding of the contextual factors that impact on patient participation as well as other critical outcomes in this at-risk population.
  55. Eastern Cooperative Group Chair's Office
    Robert L Comis; Fiscal Year: 2013
    ..medical leadership for ECOG programs, and the infrastructure to support that leadership;to expedite the development and conduct of ECOG studies;and to improve the opportunity for patient participation in ECOG studies.
  56. INFORMATION INTERPRETATION IN PATIENT DECISION SUPPORT
    Margaret Holmes Rovner; Fiscal Year: 2001
    ..a treatment? 2) Do information types differentially affect participants' interpretation of importance and salience of the information? 3) What new questions or concerns are raised for participants by full information? ..
  57. The Influence of Companions and Socio-Demographic Characteristics on Patients' In
    Susan Eggly; Fiscal Year: 2008
    ..unreadable] [unreadable] [unreadable]..
  58. BARRIERS TO VOLUNTARY ASSENT IN ASTHMA YOUTH RESEARCH
    JANET BRODY; Fiscal Year: 2008
    ..abstract_text> ..
  59. Diabetes and Cardiovascular Risks in Primary Care
    Michael Parchman; Fiscal Year: 2005
    ....
  60. Barriers to Recommending Colorectal Cancer Screening
    Carmen Guerra; Fiscal Year: 2006
    ..Understanding the barriers to CRCS recommendation is an essential step in developing and implementing effective physician CRCS interventions that will significantly reduce CRC incidence, morbidity and mortality. ..
  61. TREATMENT OF AGITATION IN THE NURSING HOME
    Jiska Cohen Mansfield; Fiscal Year: 2010
    ..PHS 398 (Rev. 05/01) Page 2 Principal Investigator/Program Director (Last, first, middle): Cohen-Mansfield, Jiska ..
  62. Parental Role in Pediatric Cancer Pain and Survivorship
    Terrance Albrecht; Fiscal Year: 2005
    ..Finally, psychosocial and health status will be assessed several days after treatment procedure. ..