terminal care

Summary

Summary: Medical and nursing care of patients in the terminal stage of an illness.

Top Publications

  1. ncbi A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information
    Sharon M Parker
    National Health and Medical Research Council Clinical Trials Centre, University of Sydney, Camperdown, New South Wales, Australia
    J Pain Symptom Manage 34:81-93. 2007
  2. ncbi Physician discussions with terminally ill patients: a cross-national comparison
    Colleen Cartwright
    Aged Services Learning and Research Collaboration, Southern Cross University, Coffs Harbour, NSW, Australia
    Palliat Med 21:295-303. 2007
  3. ncbi Transitions between care settings at the end of life in belgium
    Lieve Van den Block
    JAMA 298:1638-9. 2007
  4. ncbi Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College [corrected] of Critical Care Medicine
    Robert D Truog
    Harvard Medical School and Children s Hospital, Boston, MA, USA
    Crit Care Med 36:953-63. 2008
  5. ncbi Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts
    C Walshe
    Department of Health Research, School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK
    Palliat Med 22:736-43. 2008
  6. pmc Factors influencing death at home in terminally ill patients with cancer: systematic review
    Barbara Gomes
    The Cicely Saunders Foundation Department of Palliative Care, Policy, and Rehabilitation, King s College London, London SE5 9RJ
    BMJ 332:515-21. 2006
  7. ncbi Where people die (1974--2030): past trends, future projections and implications for care
    Barbara Gomes
    Cicely Saunders International Department of Palliative Care, Policy and Rehabilitation, King s College London, London, UK
    Palliat Med 22:33-41. 2008
  8. pmc Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment
    Alexi A Wright
    Department of Medical Oncology and Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, 550 Shields Warren, 44 Binney St, Boston, MA 02115, USA
    JAMA 300:1665-73. 2008
  9. ncbi Trends in the aggressiveness of cancer care near the end of life
    Craig C Earle
    MSc, Center for Outcomes and Policy Research, Dana Farber Cancer Center, 44 Binney St, 454 STE 21 24, Boston, MA 02115, USA
    J Clin Oncol 22:315-21. 2004
  10. ncbi Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey
    Bregje D Onwuteaka-Philipsen
    VU University Medical Center, Department of Public and Occupational Health and EMGO Institute for Health and Care Research, VUmc Expertise Center for Palliative Care, Amsterdam, Netherlands
    Lancet 380:908-15. 2012

Detail Information

Publications302 found, 100 shown here

  1. ncbi A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information
    Sharon M Parker
    National Health and Medical Research Council Clinical Trials Centre, University of Sydney, Camperdown, New South Wales, Australia
    J Pain Symptom Manage 34:81-93. 2007
    ..However, they wanted to negotiate the content and extent of this information...
  2. ncbi Physician discussions with terminally ill patients: a cross-national comparison
    Colleen Cartwright
    Aged Services Learning and Research Collaboration, Southern Cross University, Coffs Harbour, NSW, Australia
    Palliat Med 21:295-303. 2007
    ..The majority of physicians appeared to support the principle of patient-centred care to terminally ill patients, consistent with palliative care philosophy and with the law and/or professional guidelines in most of the countries studied...
  3. ncbi Transitions between care settings at the end of life in belgium
    Lieve Van den Block
    JAMA 298:1638-9. 2007
  4. ncbi Recommendations for end-of-life care in the intensive care unit: a consensus statement by the American College [corrected] of Critical Care Medicine
    Robert D Truog
    Harvard Medical School and Children s Hospital, Boston, MA, USA
    Crit Care Med 36:953-63. 2008
    ..S. perspective. They do not use an evidence grading system because most of the recommendations are based on ethical and legal principles that are not derived from empirically based evidence...
  5. ncbi Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts
    C Walshe
    Department of Health Research, School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK
    Palliat Med 22:736-43. 2008
    ..Slow or incomplete adoption was reported. The GSF was recognised as important because it facilitated changes to previously difficult aspects of work between professionals, but few respondents reported direct benefits to patient care...
  6. pmc Factors influencing death at home in terminally ill patients with cancer: systematic review
    Barbara Gomes
    The Cicely Saunders Foundation Department of Palliative Care, Policy, and Rehabilitation, King s College London, London SE5 9RJ
    BMJ 332:515-21. 2006
    ..To determine the relative influence of different factors on place of death in patients with cancer...
  7. ncbi Where people die (1974--2030): past trends, future projections and implications for care
    Barbara Gomes
    Cicely Saunders International Department of Palliative Care, Policy and Rehabilitation, King s College London, London, UK
    Palliat Med 22:33-41. 2008
    ..We analysed past trends in place of death (1974-2003) and projected likely trends to 2030 in England and Wales and from these need for care...
  8. pmc Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment
    Alexi A Wright
    Department of Medical Oncology and Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, 550 Shields Warren, 44 Binney St, Boston, MA 02115, USA
    JAMA 300:1665-73. 2008
    ..Talking about death can be difficult. Without evidence that end-of-life discussions improve patient outcomes, physicians must balance their desire to honor patient autonomy against a concern of inflicting psychological harm...
  9. ncbi Trends in the aggressiveness of cancer care near the end of life
    Craig C Earle
    MSc, Center for Outcomes and Policy Research, Dana Farber Cancer Center, 44 Binney St, 454 STE 21 24, Boston, MA 02115, USA
    J Clin Oncol 22:315-21. 2004
    ..To characterize the aggressiveness of end-of-life cancer treatment for older adults on Medicare, and its relationship to the availability of healthcare resources...
  10. ncbi Trends in end-of-life practices before and after the enactment of the euthanasia law in the Netherlands from 1990 to 2010: a repeated cross-sectional survey
    Bregje D Onwuteaka-Philipsen
    VU University Medical Center, Department of Public and Occupational Health and EMGO Institute for Health and Care Research, VUmc Expertise Center for Palliative Care, Amsterdam, Netherlands
    Lancet 380:908-15. 2012
    ..We assessed frequency and characteristics of euthanasia, physician-assisted suicide, and other end-of-life practices in 2010, and assessed trends since 1990...
  11. ncbi Reversal of the British trends in place of death: time series analysis 2004-2010
    Barbara Gomes
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Palliat Med 26:102-7. 2012
    ..Secular trends towards an institutionalised dying have been reported in Britain and other developed world regions...
  12. ncbi Family perspectives on end-of-life care at the last place of care
    Joan M Teno
    Center for Gerontology and Health Care Research, Brown Medical School, Providence, RI, USA
    JAMA 291:88-93. 2004
    ..Over the past century, nursing homes and hospitals increasingly have become the site of death, yet no national studies have examined the adequacy or quality of end-of-life care in institutional settings compared with deaths at home...
  13. ncbi Interviews on end-of-life care with older people: reflections on six european studies
    Sabine Pleschberger
    University of Klagenfurt, Vienna, Austria
    Qual Health Res 21:1588-600. 2011
    ..We concluded that is it necessary to maintain an ongoing reflexive stance to enhance qualitative research practice in the intersecting fields of aging and end-of-life studies...
  14. ncbi PRISMA: a pan-European co-ordinating action to advance the science in end-of-life cancer care
    Richard Harding
    King s College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine at Guy s King s and St Thomas Hospitals, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ, UK
    Eur J Cancer 46:1493-501. 2010
    ....
  15. pmc Aggressiveness of cancer care near the end of life: is it a quality-of-care issue?
    Craig C Earle
    Division of Population Sciences, Department of Medical Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    J Clin Oncol 26:3860-6. 2008
    ..Whether the concept of overly aggressive treatment represents a quality-of-care issue that is acceptable to all involved stakeholders is an open question...
  16. ncbi The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: too many tools in practice
    Richard Harding
    Department of Palliative Care, Policy and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, UK
    J Pain Symptom Manage 42:493-500. 2011
    ..The measurement of outcomes in advanced disease is complex, and to conduct comparative research and meta-analyses, appropriate tool selection is essential...
  17. pmc Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy
    Natalie Evans
    Barcelona Centre for International Health Research CRESIB, Hospital Clínic Universitat de Barcelona, C Rosselló 132 Sobre ático, 08036 Barcelona, Spain
    BMC Health Serv Res 11:141. 2011
    ..This article aims to review and evaluate literature reviews on minority ethnic groups and EoL care in the UK and assess their suitability as an evidence base for policy...
  18. ncbi Identifying potential indicators of the quality of end-of-life cancer care from administrative data
    Craig C Earle
    Division of Population Sciences Department of Medical Oncology, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Clin Oncol 21:1133-8. 2003
    ..To explore potential indicators of the quality of end-of-life services for cancer patients that could be monitored using existing administrative data...
  19. pmc Can this patient be discharged home? Factors associated with at-home death among patients with cancer
    Alberto Alonso-Babarro
    La Paz University Hospital, Madrid Autonomous University, Madrid, Spain
    J Clin Oncol 29:1159-67. 2011
    ..The purpose of this study was to identify factors associated with at-home death among patients with advanced cancer and create a decision-making model for discharging patients from an acute-care hospital...
  20. ncbi The end of life: a qualitative study of the perceptions of people over the age of 80 on issues surrounding death and dying
    Mari Lloyd-Williams
    Academic Palliative and Supportive Care Studies Group, University of Liverpool, Liverpool, United Kingdom
    J Pain Symptom Manage 34:60-6. 2007
    ..Listening to and understanding the views and experiences of the older age group regarding end-of-life care is needed if adequate person-centered care is to be delivered to this ever-growing population group...
  21. ncbi Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners
    Koen Meeussen
    End of Life Care Research Group, Ghent University and Vrije Universiteit Brussel, Brussels, Belgium
    J Pain Symptom Manage 42:565-77. 2011
    ..Advance care planning (ACP) is an important part of patient-centered palliative care. There have been few nationwide studies of ACP, especially in Europe...
  22. pmc Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups
    Cathy Shipman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, London SE5 9RJ
    BMJ 337:a1720. 2008
    ..To identify major concerns of national and local importance in the provision, commissioning, research, and use of generalist end of life care...
  23. pmc Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study
    N A Christakis
    Department of Medicine, University of Chicago Medical Center, Chicago, IL 60637, USA
    BMJ 320:469-72. 2000
    ..To describe doctors' prognostic accuracy in terminally ill patients and to evaluate the determinants of that accuracy...
  24. ncbi Factors considered important at the end of life by patients, family, physicians, and other care providers
    K E Steinhauser
    Veterans Affairs Medical Center 152, 508 Fulton St, Durham, NC 27705, USA
    JAMA 284:2476-82. 2000
    ..Empirical evidence defining such factors, however, is lacking...
  25. ncbi Older people's views about home as a place of care at the end of life
    Merryn Gott
    Sheffield Institute for Studies on Ageing, University of Sheffield, Sheffield, UK
    Palliat Med 18:460-7. 2004
    ..To explore the attitudes of older people towards home as a place of care when dying...
  26. pmc GPs' awareness of patients' preference for place of death
    Koen Meeussen
    End of Life Care Research Group, Vrije Universiteit Brussel, Laarbeeklaan 103, 1090 Brussels, Belgium
    Br J Gen Pract 59:665-70. 2009
    ..Being able to die in one's place of choice is an indicator of the quality of end-of-life care. GPs may play a key role in exploring and honouring patients' preferences for place of death...
  27. ncbi Discussing end-of-life issues in the last months of life: a nationwide study among general practitioners
    Ebun Abarshi
    The EMGO Institute for Health and Care Research EMGO, Department of Public and Occupational Health, VU University Medical Center, Amsterdam, The Netherlands
    J Palliat Med 14:323-30. 2011
    ..Communication is a necessary tool for ensuring the provision of quality patient-centered care for patients who have life-threatening illnesses, and discussing all relevant end-of-life issues should not be limited to cancer patients...
  28. ncbi Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?
    Irene J Higginson
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, King s College London, Weston Education Center, London, United Kingdom
    J Pain Symptom Manage 25:150-68. 2003
    ..Only one study provided full economic cost-benefit evaluation. This is the first study to quantitatively demonstrate benefit from PCHCTs. Such comparisons were limited by the quality of the research...
  29. pmc Ethnic differences in in-hospital place of death among older adults in California: effects of individual and contextual characteristics and medical resource supply
    Nuha A Lackan
    Department of Health Management and Policy, School of Public Health, University of North Texas Health Science Center at Fort Worth, Fort Worth, Texas, USA
    Med Care 47:138-45. 2009
    ..To date, no study has investigated the role of both individual characteristics and contextual characteristics, including local health care environments, to explain ethnic differentials in end-of-life care...
  30. pmc Physician factors associated with discussions about end-of-life care
    Nancy L Keating
    Division of General Internal Medicine, Department of Medicine, Brigham and Women s Hospital, Boston, MA, USA
    Cancer 116:998-1006. 2010
    ..Guidelines recommend advanced care planning for terminally ill patients with <1 year to live. Few data are available regarding when physicians and their terminally ill patients typically discuss end-of-life issues...
  31. pmc Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    Cancer 115:3302-11. 2009
    ..In this study, the authors sought to develop and validate a measure of therapeutic alliance between patients with advanced cancer and their physicians and to evaluate the effects of therapeutic alliance on EOL experiences and care...
  32. ncbi Palliative care teams in the intensive care unit: a randomised, controlled, feasibility study
    Winston Cheung
    Department of Intensive Care, Concord Repatriation General Hospital, Sydney, NSW
    Crit Care Resusc 12:28-35. 2010
    ..To determine whether palliative care teams can improve patient, family and staff satisfaction for patients receiving end-of-life care in the intensive care unit and reduce surrogate markers of health care costs...
  33. ncbi End-of-life care in hospital: a descriptive study of all inpatient deaths in 1 year
    J Abel
    Weston Area Health Trust, Weston Hospice care, Weston Super Mare, UK
    Palliat Med 23:616-22. 2009
    ..When commissioning end of life care services, it is possible to calculate how many extra patients may need community care packages and the cost that could be redistributed from hospital to community for these services...
  34. pmc The effectiveness of the Liverpool care pathway in improving end of life care for dying cancer patients in hospital. A cluster randomised trial
    Massimo Costantini
    Regional Palliative Care Network, National Cancer Research Institute, Genoa, Italy
    BMC Health Serv Res 11:13. 2011
    ..The results from qualitative and quantitative studies suggest that the LCP Program can improve significantly the quality of end-of-life care delivery in hospitals, but no randomised trial has been conducted till now...
  35. pmc Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia
    Mirjam C van Soest-Poortvliet
    Department of Nursing Home Medicine, EMGO Institute for Health and Care Research, Amsterdam, The Netherlands
    Qual Life Res 21:671-84. 2012
    ..Given the importance of using appropriate instruments to evaluate the quality of care (QOC) and quality of dying (QOD) in LTC, we compared the validity and reliability of ten available instruments commonly used for these purposes...
  36. pmc Pilot randomized controlled trial of individual meaning-centered psychotherapy for patients with advanced cancer
    William Breitbart
    Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, 641 Lexington Ave, 7th Floor, New York, NY 10022, USA
    J Clin Oncol 30:1304-9. 2012
    ..We developed Individual Meaning-Centered Psychotherapy (IMCP) to address the need for brief interventions targeting spiritual well-being and meaning for patients with advanced cancer...
  37. pmc Culture and end of life care: a scoping exercise in seven European countries
    Marjolein Gysels
    Barcelona Centre for International Health Research, Universitat de Barcelona, Barcelona, Spain
    PLoS ONE 7:e34188. 2012
    ..We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries...
  38. ncbi Dying well with dementia: qualitative examination of end-of-life care
    Vanessa Lawrence
    Section of Mental Health and Ageing, Health Service and Population Research Department, Institute of Psychiatry, King s College London UK
    Br J Psychiatry 199:417-22. 2011
    ..People with dementia often die badly, receiving end-of-life care of poorer quality than that given to those who are cognitively intact...
  39. pmc Development of palliative care and legalisation of euthanasia: antagonism or synergy?
    Jan L Bernheim
    End of Life Care Research Group, Department of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, Laarbeeklaan 103, 1090 Brussels, Belgium
    BMJ 336:864-7. 2008
  40. ncbi Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom
    Natalie Evans
    Barcelona Centre for International Health Research CRESIB, Hospital Clínic Universitat de Barcelona, Barcelona, Spain
    J Pain Symptom Manage 43:261-86. 2012
    ..Patients from minority ethnic groups experience lower rates of referrals to end-of-life (EoL) care services, higher levels of dissatisfaction with services, and perceive some services as culturally inappropriate...
  41. ncbi Evaluation of hospital palliative care teams: strengths and weaknesses of the before-after study design and strategies to improve it
    S Simon
    Institute of Palliative Care, Oldenburg, Germany
    Palliat Med 23:23-8. 2009
    ..Special attention is needed to plan and define the design and applied method...
  42. pmc Determinants of medical expenditures in the last 6 months of life
    Amy S Kelley
    Mount Sinai School of Medicine, New York, New York 10029, USA
    Ann Intern Med 154:235-42. 2011
    ..End-of-life medical expenditures exceed costs of care during other years, vary across regions, and are likely to be unsustainable. Identifying determinants of expenditure variation may reveal opportunities for reducing costs...
  43. pmc Care of the dying patient: the last hours or days of life
    John Ellershaw
    Marie Curie Centre Liverpool, Speke Road, Liverpool L25 8QA
    BMJ 326:30-4. 2003
  44. ncbi Truth-telling at the end of life: a pilot study on the perspective of patients and professional caregivers
    Reginald Deschepper
    End of Life Care Research Group, Department of Human Ecology, Vrije Universiteit Brussel, Belgium
    Patient Educ Couns 71:52-6. 2008
    ..To describe the attitudes towards truth-telling of both terminal patients and professional caregivers, and to determine their perceived barriers to full information exchange...
  45. ncbi Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial
    Karen E Steinhauser
    Center for Health Services Research in Primary Care, Durham VA Medical Center, Durham, North Carolina 27705, USA
    J Palliat Med 11:1234-40. 2008
    ..Significant palliative care intervention has focused on physical pain and symptom control; yet less empirical evidence supports efforts to address the psychosocial and spiritual dimensions of experience...
  46. ncbi Place of death of older persons with dementia. A study in five European countries
    Dirk Houttekier
    End of Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    J Am Geriatr Soc 58:751-6. 2010
    ..The provision of appropriate long-term care facilities with appropriate staffing could be the primary policy instrument that could help patients with dementia avoid dying in the hospital and ensure quality of end-of-life care in Europe...
  47. ncbi EfCCNa survey: European intensive care nurses' attitudes and beliefs towards end-of-life care
    Jos M Latour
    Clinical Researcher, Paediatric Intensive Care Unit, Erasmus MC Sophia Children s Hospital, Rotterdam, The Netherlands
    Nurs Crit Care 14:110-21. 2009
    ..Few studies have examined the involvement of European intensive care nurses' involvement in EOL care decisions and the extent to which their nursing practice is based on shared beliefs, experiences and attitudes...
  48. ncbi Costs associated with resource utilization during the palliative phase of care: a Canadian perspective
    Serge Dumont
    School of Social Work, Laval University Laval University Cancer Research Center, Quebec, Quebec, Canada G1V 0A6
    Palliat Med 23:708-17. 2009
    ..This study aimed to evaluate prospectively the resource utilization and related costs during the palliative phase of care in five regions across Canada...
  49. pmc A systematic review of measures of end-of-life care and its outcomes
    Richard A Mularski
    Center for Health Research, Kaiser Permanente Northwest, Oregon Health and Science University, 3800 N Interstate, WIN 1060, Portland, OR 97227, USA
    Health Serv Res 42:1848-70. 2007
    ..To identify psychometrically sound measures of outcomes in end-of-life care and to characterize their use in intervention studies...
  50. ncbi The challenge of patients' unmet palliative care needs in the final stages of chronic illness
    D Fitzsimons
    Nursing Research and Development, Belfast City Hospital, Belfast, Northern Ireland
    Palliat Med 21:313-22. 2007
    ..There is consensus in the literature that the end of life care for patients with chronic illness is suboptimal, but research on the specific needs of this population is limited...
  51. pmc Exploring preferences for place of death with terminally ill patients: qualitative study of experiences of general practitioners and community nurses in England
    Daniel Munday
    Health Sciences Research Institute, Warwick Medical School, University of Warwick, Coventry CV4 7AL
    BMJ 339:b2391. 2009
    ..To explore the experiences and perceptions of general practitioners and community nurses in discussing preferences for place of death with terminally ill patients...
  52. ncbi Review: improving end-of-life care: a critical review of the gold standards framework in primary care
    K L Shaw
    School of Health and Population Sciences, University of Birmingham, UK
    Palliat Med 24:317-29. 2010
    ..Additional evidence about patient and carer outcomes will add to existing insights...
  53. ncbi The accuracy of surrogate decision makers: a systematic review
    David I Shalowitz
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    Arch Intern Med 166:493-7. 2006
    ..However, commentators have questioned the accuracy with which surrogates predict patients' treatment preferences...
  54. pmc End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences
    Jennifer W Mack
    Dana Farber Cancer Institute, Department of Pediatric Oncology, 44 Binney St 454, Boston, MA 02115, USA
    J Clin Oncol 28:1203-8. 2010
    ..Physicians have an ethical obligation to honor patients' values for care, including at the end of life (EOL). We sought to evaluate factors that help patients to receive care consistent with their preferences...
  55. ncbi The terminally ill Muslim: death and dying from the Muslim perspective
    N Sarhill
    Department of Internal Medicine, St. Vincent Charity Hospital, Cleveland, Ohio, USA
    Am J Hosp Palliat Care 18:251-5. 2001
    ..Do not resuscitate (DNR) orders are acceptable. A deceased Muslim must always be buried after being ritually washed and wrapped. There are different Muslim schools of thought, but they are united regarding their views on death and dying...
  56. ncbi Treatment of existential distress in life threatening illness: a review of manualized interventions
    Katerine LeMay
    School of Psychology, University of Ottawa, Ottawa, ON, Canada
    Clin Psychol Rev 28:472-93. 2008
    ..Similarities and differences between each intervention are noted, and clinical and empirical considerations are discussed...
  57. ncbi Scales for evaluation of End-of-Life Care in Dementia
    L Volicer
    Geriatrics Research Education Clinical Center, E.N. Rogers Memorial Veterans Hospital, Bedford, Massachusetts 01730, USA
    Alzheimer Dis Assoc Disord 15:194-200. 2001
    ..The three scales developed and evaluated in this study can be used as outcome measures in studies investigating effectiveness of interventions aimed to improve end-of-life care for individuals with dementia...
  58. ncbi The role of general practitioners in continuity of care at the end of life: a qualitative study of terminally ill patients and their next of kin
    Eva Michiels
    Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    Palliat Med 21:409-15. 2007
    ..Exploring terminal patients' perceptions of GPs' role in delivering continuous end-of-life care and identifying barriers to this...
  59. pmc Health care costs in the last week of life: associations with end-of-life conversations
    Baohui Zhang
    Center for Psycho Oncology and Palliative Care Research, Boston, MA 02115, USA
    Arch Intern Med 169:480-8. 2009
    ..Life-sustaining medical care of patients with advanced cancer at the end of life (EOL) is costly. Patient-physician discussions about EOL wishes are associated with lower rates of intensive interventions...
  60. ncbi Prognostic factors in advanced cancer patients: evidence-based clinical recommendations--a study by the Steering Committee of the European Association for Palliative Care
    Marco Maltoni
    Palliative Care Unit, Department of Medical Oncology, Morgagni Pierantoni Hospital, Via Forlanini, 34, 47100 Forli, Italy
    J Clin Oncol 23:6240-8. 2005
    ..To offer evidence-based clinical recommendations concerning prognosis in advanced cancer patients...
  61. pmc Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life
    Tracy A Balboni
    Harvard Radiation Oncology Program, Dana Farber Cancer Institute, Boston, MA, USA
    J Clin Oncol 25:555-60. 2007
    ..This study examined religiousness and spiritual support in advanced cancer patients of diverse racial/ethnic backgrounds and associations with quality of life (QOL), treatment preferences, and advance care planning...
  62. pmc Continuity of care and intensive care unit use at the end of life
    Gulshan Sharma
    Division of Allergy, Pulmonary, Immunology, Critical Care, and Sleep, The University of Texas Medical Branch, 301 University Blvd, Room JSA 5 112, Galveston, TX 77555 0561, USA
    Arch Intern Med 169:81-6. 2009
    ..There is increasing concern about discontinuity of care across transitions (eg, from home to the hospital) and how it might affect appropriate medical management...
  63. ncbi "At the foot of a very long ladder": discussing the end of life with older people and informal caregivers
    Amanda Clarke
    Centre for Advanced Studies in Nursing, Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK
    J Pain Symptom Manage 40:857-69. 2010
    ..This article reports findings from one approach of engaging older members of the general public and informal caregivers in discussions about end-of-life care...
  64. ncbi Quality end-of-life care: patients' perspectives
    P A Singer
    Toronto Hospital and the Department of Medicine, Joint Centre for Bioethics, University of Toronto, Ontario, Canada
    JAMA 281:163-8. 1999
    ..Quality end-of-life care is increasingly recognized as an ethical obligation of health care providers, both clinicians and organizations. However, this concept has not been examined from the perspective of patients...
  65. pmc Interdisciplinary cooperation of GPs in palliative care at home: a nationwide survey in The Netherlands
    Sander D Borgsteede
    Department of Public and Occupational Health, EMGO Institute, VU University Medical Center, Amsterdam, The Netherlands
    Scand J Prim Health Care 25:226-31. 2007
    ..To investigate the occurrence and predictors of interdisciplinary cooperation of GPs with other caregivers in palliative care at home...
  66. pmc End-of-life transitions among nursing home residents with cognitive issues
    Pedro Gozalo
    Brown University Program in Public Health, Department of Health Services, Policy, and Practice, Brown University, Providence, RI, USA
    N Engl J Med 365:1212-21. 2011
    ..Health care transitions in the last months of life can be burdensome and potentially of limited clinical benefit for patients with advanced cognitive and functional impairment...
  67. ncbi Prevalence and factors of intensive care unit conflicts: the conflicus study
    Elie Azoulay
    AP HP, Hopital Saint Louis, Medical ICU, University Paris 7 Paris Diderot, UFR de Medecine, 1 avenue Claude Vellefaux, 75010 Paris, France
    Am J Respir Crit Care Med 180:853-60. 2009
    ..Many sources of conflict exist in intensive care units (ICUs). Few studies recorded the prevalence, characteristics, and risk factors for conflicts in ICUs...
  68. ncbi A longitudinal study of the effects of age and time to death on hospital costs
    Meena Seshamani
    University of Pennsylvania School of Medicine, Philadelphia, PA, USA
    J Health Econ 23:217-35. 2004
    ..The large tenfold increase in costs from 5 years prior to death to the last year of life overshadows the 30% increase in costs from age 65 to 85. Hence, expenditure projections must consider remaining life expectancy in the populations...
  69. ncbi Providing palliative care for cancer patients: the views and exposure of community general practitioners and district nurses in Japan
    Akemi Yamagishi
    Department of Nursing, Seirei Christopher University, Hamamatsu, Shizuoka, Japan
    J Pain Symptom Manage 43:59-67. 2012
    ..The role of general practitioners (GPs) and district nurses (DNs) is increasingly important to achieve dying at home...
  70. ncbi Trends in medical end-of-life decision making in Flanders, Belgium 1998-2001-2007
    Kenneth Chambaere
    End of Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    Med Decis Making 31:500-10. 2011
    ..Efforts are still needed to encourage shared end-of-life decision making, as some patients would benefit from advance care planning...
  71. pmc Constructing understandings of end-of-life care in Europe: a qualitative study involving cognitive interviewing with implications for cross-national surveys
    Barbara A Daveson
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, United Kingdom
    J Palliat Med 14:343-9. 2011
    ....
  72. pmc Influence of patients' preferences and treatment site on cancer patients' end-of-life care
    Alexi A Wright
    Department of Medical Oncology, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    Cancer 116:4656-63. 2010
    ..The authors examined whether patients' desire for life-extending therapy was associated with their EOL care...
  73. pmc Using death certificate data to study place of death in 9 European countries: opportunities and weaknesses
    Joachim Cohen
    End of Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    BMC Public Health 7:283. 2007
    ..This study illustrates opportunities and weaknesses of death certificate data to provide such information on place of death and associated factors in nine European countries (seven entire countries and five regions)...
  74. pmc Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA
    Cancer 112:2509-17. 2008
    ..The role of emotional acceptance of a terminal illness in end-of-life (EOL) care is not known. The authors developed a measure of peaceful acceptance at the EOL, and evaluated the role of peaceful acceptance in EOL decision-making and care...
  75. ncbi Pediatric end-of-life care for Taiwanese children who died as a result of cancer from 2001 through 2006
    Siew Tzuh Tang
    Chang Gung University, Kwei Shan, Tao Yuan, Taipei, Taiwan
    J Clin Oncol 29:890-4. 2011
    ..The purpose of this population-based study was to examine trends in aggressive pediatric EOL cancer care in Taiwan...
  76. ncbi Desire for hastened death in patients with advanced disease and the evidence base of clinical guidelines: a systematic review
    Peter L Hudson
    Centre for Palliative Care, St Vincent s Hospital and The University of Melbourne, Victoria, Austalia
    Palliat Med 20:693-701. 2006
    ..Not many research studies seem to have specifically targeted why palliative care patients may desire hastened death, and few have focused on clinical guidelines for responding to such requests...
  77. ncbi Where the dying live: a systematic review of determinants of place of end-of-life cancer care
    Mary Ann Murray
    School of Nursing, University of Ottawa, Ottawa, Canada
    Oncol Nurs Forum 36:69-77. 2009
    ..To describe the determinants of place of end-of-life (EOL) care for patients with cancer...
  78. ncbi Cancer specialists' palliative care referral practices and perceptions: results of a national survey
    C E Johnson
    Centre for Health Research and Psycho Oncology CHeRP, The Cancer Council NSW, University of Newcastle and Hunter Medical Research Institute, Newcastle
    Palliat Med 22:51-7. 2008
    ..This study aimed to investigate cancer specialists' referral practices, perceptions of, barriers to and triggers for referral of people with advanced cancer to SPC services...
  79. ncbi "Are you at peace?": one item to probe spiritual concerns at the end of life
    Karen E Steinhauser
    Centers for Palliative Care, Veterans Affairs Medical Center, and Department of Medicine, Division of Geriatrics, School of Nursing, Center for the Study of Aging and Human Development, Duke University, Durham, NC 27705, USA
    Arch Intern Med 166:101-5. 2006
    ..A practical, evidence-based approach to discussing spiritual concerns in a scope suitable to a physician-patient relationship may improve the quality of the clinical encounter...
  80. ncbi Expectations about and impact of the Liverpool Care Pathway for the dying patient in an Italian hospital
    Silvia Di Leo
    Regional Palliative Care Network National Cancer Research Institute, Largo R Benzi 10, 16132 Genoa, Italy
    Palliat Med 25:293-303. 2011
    ..LCP-I implementation may improve both knowledge about physical symptom management and professional awareness of the problems related to emotional and informative support in end-of-life care...
  81. ncbi Beyond substituted judgment: How surrogates navigate end-of-life decision-making
    Elizabeth K Vig
    Division of Gerontology and Geriatric Medicine, University of Washington, Seattle, Washington, USA
    J Am Geriatr Soc 54:1688-93. 2006
    ..To characterize how surrogates plan to make medical decisions for others...
  82. ncbi Achieving the preferred place of care for hospitalized patients at the end of life
    Ruth Gerrard
    CNS in Palliative Care, 2nd Floor Clare House, St George s Healthcare NHS Trust, London, UK
    Palliat Med 25:333-6. 2011
    ..The Department of Health end-of-life strategy contains a number of quality markers which include taking into account patients' wishes for their final place of care. There is a wide variation in how this information is recorded...
  83. ncbi Experiences of hospital care reported by bereaved relatives of patients after a stroke: a retrospective survey using the VOICES questionnaire
    Amanda J Young
    NETSCC, Health Technology Assessment, Science Support Directorate, University of Southampton Science Park, UK
    J Adv Nurs 65:2161-74. 2009
    ....
  84. pmc Who is the key worker in palliative home care?
    Trine Brogaard
    Research Unit for General Practice and Department of Family Medicine, Department of Public Health, University of Aarhus, Bartholins Alle 2, Aarhus, Denmark
    Scand J Prim Health Care 29:150-6. 2011
    ..Furthermore, it aimed to explore the level of agreement on this issue between study participants...
  85. pmc Racial and ethnic differences in end-of-life costs: why do minorities cost more than whites?
    Amresh Hanchate
    Section of General Internal Medicine, Boston University School of Medicine, Boston, Massachusetts, USA
    Arch Intern Med 169:493-501. 2009
    ..Racial and ethnic minorities generally receive fewer medical interventions than whites, but racial and ethnic patterns in Medicare expenditures and interventions may be quite different at life's end...
  86. ncbi Dying at home or in an institution using death certificates to explore the factors associated with place of death
    Joachim Cohen
    End of Life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium
    Health Policy 78:319-29. 2006
    ..The knowledge of determinants of place of death is important for public health policy aimed at improving the quality of end-of-life care...
  87. ncbi Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision
    Irene Tuffrey-Wijne
    Division of Mental Health, St George s University of London, London, UK
    J Adv Nurs 58:80-9. 2007
    ..This paper is a report of a study using the Nominal Group Technique as a method to elicit the views of people with intellectual disabilities on sensitive issues, in this example end-of-life care provision...
  88. ncbi Review: the quality of dying and death: a systematic review of measures
    Sarah Hales
    Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Toronto, ON, Canada
    Palliat Med 24:127-44. 2010
    ..Strategies to measure the quality of dying and death are becoming increasingly rigorous. Further research is required to understand the factors influencing the ratings of the quality of dying and death...
  89. pmc Are regional variations in end-of-life care intensity explained by patient preferences?: A Study of the US Medicare Population
    Amber E Barnato
    Center for Research on Health Care, University of Pittsburgh, Pittsburgh, Pennsylvania 15312, USA
    Med Care 45:386-93. 2007
    ..We sought to test whether variations across regions in end-of-life (EOL) treatment intensity are associated with regional differences in patient preferences for EOL care...
  90. ncbi A new law on advance directives in Germany
    U Wiesing
    Institut für Ethik und Geschichte der Medizin, Universitat Tubingen, Gartenstr 47, D 72076 Tubingen, Germany
    J Med Ethics 36:779-83. 2010
    ..The new German law thus combines more legal certainty with a liberal emphasis on patient autonomy and flexible, adaptable regulations...
  91. ncbi Decisions to hospitalize nursing home residents dying with advanced dementia
    Jennifer L Lamberg
    Hebrew SeniorLife, Research and Training Institute, Boston, Massachusetts 02131, USA
    J Am Geriatr Soc 53:1396-401. 2005
    ..To describe the prevalence of, timing of, and factors associated with decisions not to hospitalize nursing home residents with advanced dementia who were dying...
  92. pmc Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK
    Gill Livingston
    Department of Mental Health Sciences, University College London, London W1W 7EJ
    BMJ 341:c4184. 2010
    ..To identify common difficult decisions made by family carers on behalf of people with dementia, and facilitators of and barriers to such decisions, in order to produce information for family carers about overcoming barriers...
  93. ncbi Factors influencing place of death in Germany
    Luis Carlos Escobar Pinzón
    Institute of Occupational, Social and Environmental Medicine, University Medical Center of Johannes Gutenberg University of Mainz, Mainz, Germany
    J Pain Symptom Manage 41:893-903. 2011
    ..Knowledge about factors influencing the place of death may be very useful for the planning of public health strategies to improve the situation of terminally ill patients...
  94. ncbi Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study
    Elizabeth L Sampson
    Department of Mental Health Sciences, Royal Free and University College Medical School, Rowland Hill Street, London NW3 2PF, UK
    Age Ageing 35:187-9. 2006
  95. ncbi Preferences of the Dutch general public for a good death and associations with attitudes towards end-of-life decision-making
    Judith A C Rietjens
    Department of Public Health, University Medical Center Rotterdam, Rotterdam, The Netherlands
    Palliat Med 20:685-92. 2006
    ..Insight in the relationships of such acceptance, with characteristics considered important for a 'good death', may contribute to the understanding of this liberal attitude...
  96. ncbi Contradictions in end-of-life decisions for self and other, expressed by relatives of chronically ventilated patients
    Sigal Sviri
    Chronic Ventilation Unit, Herzog Hospital, Jerusalem, Israel
    J Crit Care 24:293-301. 2009
    ..This study aims to evaluate attitudes of first-degree relatives of chronically ventilated patients in Israel, toward end-of-life decisions regarding their loved ones, themselves, and unrelated others...
  97. ncbi Delivering research in end-of-life care: problems, pitfalls and future priorities
    Michael I Bennett
    School of Health and Medicine, Lancaster University, Lancaster, UK
    Palliat Med 24:456-61. 2010
    ..Future priorities are discussed that include the pressing need to build research capacity, making better use of existing intelligence, and to progress in incremental steps as part of sustained programmes of research...
  98. ncbi Audit of the care of the dying in a network of hospitals and institutions in Queensland
    J R Hardy
    Mater Health Services, South Brisbane, Queensland, Australia
    Intern Med J 37:315-9. 2007
    ..g. acute hospitals and residential age-care facilities) by defining goals of best care, providing guidelines to provide that care and documenting outcome...
  99. ncbi Dying in an acute hospital setting: the challenges and solutions
    R Al-Qurainy
    Palliative Medicine, Barts and The London NHS Trust, London, UK
    Int J Clin Pract 63:508-15. 2009
    ....
  100. ncbi Hospice partnerships with academic entities: philosophical and historical background and assessment of future needs
    David C Tolley
    Boalt Hall School of Law, University of California at Berkeley, Berkeley, California, USA
    J Pain Symptom Manage 33:90-8. 2007
    ..Members of the National Hospice Work Group see strategic partnerships with academic entities as essential to the goal of advancing research in end-of-life care...
  101. pmc Burden and benefit of psychosocial research at the end of life
    Hayley Pessin
    Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York 10021, USA
    J Palliat Med 11:627-32. 2008
    ..This is particularly true when death and dying are the focus of research. Therefore, it is important to understand the specific ways psychosocial research could potentially harm or be helpful to participants...

Research Grants67

  1. Oncology Nursing Education in End of Life Care
    Betty Ferrell; Fiscal Year: 2007
    ..This proposal includes extensive evaluation planned to monitor individual and institutional dissemination. [unreadable] [unreadable] [unreadable]..
  2. End-of-Life Research Ethics: Concerns, Approaches, and Impact
    Susan Hickman; Fiscal Year: 2009
    ....
  3. Religious Responses to HIV and AIDS: Understanding the Role of Religious Cultures
    Richard G Parker; Fiscal Year: 2010
    ..by applicant): Religious organizations play a key role globally in providing front-line access to primary and terminal care, advocating for health and social welfare resources and influencing national public health and social policies ..
  4. NURSING HOME CARE AT THE END-OF-LIFE: COST & QUALITY
    Vincent Mor; Fiscal Year: 2000
    ..work suggests that hospice care in the NH positively influences pain management, hospitalization rates, and terminal care costs...
  5. PALLIATIVE CARE FELLOWSHIP
    J Billings; Fiscal Year: 2004
    DESCRIPTION: (Applicant's Description) Problems with the quality of terminal care and with how medical education addresses the end of life have been widely recognized in both public and professional forums...
  6. LIVING WILLS: FOR PRIMARY CARE, AIDS AND CANCER PATIENTS
    JOHN STOECKLE; Fiscal Year: 1990
    ..This living will is included as part of a survey designed to assess inclination to discuss terminal care and to give preferences for treatment in specific circumstances, and preferences for who should make which ..
  7. HEALTH OF BLACK AND WHITE NURSING HOME RESIDENTS
    VERONICA ENGLE; Fiscal Year: 2000
    ..known if the MDS can sensitively and specifically address race and gender variations in health status or in terminal care needs...
  8. POPULATION BASED STUDY OF HOSPICE USE AND CONSEQUENCES
    Nicholas Christakis; Fiscal Year: 2001
    ..and methods of the demography of aging, the investigators analyze the use and consequences of hospice terminal care in seriously ill elderly patients and their spouses. The benefits of hospice terminal care are well documented...
  9. HOME CARE FOR THE TERMINALLY ILL: A STUDY OF 3 MODELS
    ANN BLUES; Fiscal Year: 1980
    ..These in turn will be compared with hospital costs for terminal care within the same geographic area...
  10. DYING AT HOME OF AIDS & CANCER: PREFERENCES & OUTCOMES
    Judith Rabkin; Fiscal Year: 2004
    ..Data show that patients? preferences regarding type and site of terminal care often differ from what actually happens...
  11. DYING AT HOME OF AIDS & CANCER: PREFERENCES & OUTCOMES
    Susan Folkman; Fiscal Year: 2004
    ..Data show that patients' preferences regarding type and site of terminal care often differ from what actually happens...
  12. TEXAS REPOSITORY FOR AIDS NEUROPATHOGENESIS RESEARCH
    Benjamin Gelman; Fiscal Year: 2001
    ..social and family service networks that track end-stage AIDS patients and provide continuous services in terminal care settings...
  13. Good Parent Intervention at End of Life
    Pamela Hinds; Fiscal Year: 2005
    ..or not to enroll their child in a Phase I study, to make their child a 'do not resuscitate' status, to begin terminal care, or to withdraw life support...
  14. Mapping Cystic Fibrosis: History, Medicine, Ethics
    Walter Robinson; Fiscal Year: 2002
    ..His previous work has focused on the interaction of technology and terminal care for CF patients, as well as the ethical issue arising out of advances in therapy.
  15. Communication in Late-stage Cancer: Exploring Hospice Decision
    DEBORAH PEASE WALDROP; Fiscal Year: 2010
    ..3) Understanding how end-of-life decisions are made is essential for the efficient planning and delivery of comprehensive services for the growing number of adults who will die from cancer. ..
  16. Balancing Hope & Truth-Telling for Patients with Ca/COPD
    J Curtis; Fiscal Year: 2005
    ..These strategies will be described and translated into interventions targeting nurses, physicians, and teams who provide care for patients with cancer, COPD, and other life-limiting diseases. ..
  17. Improving Physician Skill at Providing End-of-Life Care
    J Curtis; Fiscal Year: 2004
    ..The results will allow investigators and others to develop targeted educational and systemic interventions to improve the quality of this care. ..
  18. Feeding Tube Use Among Persons with Advanced Dementia
    Joan Teno; Fiscal Year: 2008
    ..Knowledge gained will be used to inform public policy and formulate facility interventions to ensure that FT insertion in persons with severe cognitive impairment is ethically appropriate. [unreadable] [unreadable] [unreadable]..
  19. RESIDENT ASSESSMENT OF PAIN MANAGEMENT (RAPM)
    Joan Teno; Fiscal Year: 2001
    ..abstract_text> ..
  20. Cancer Assessments and Reports of End-of-Life Treatment
    Joan Teno; Fiscal Year: 2005
    ..Such tools will allow institutions to measure whether cancer care is meeting patient and family members' needs and expectations. ..
  21. Artificial Nutrition in Terminally Ill Cancer Patients
    Sydney Dy; Fiscal Year: 2007
    ..Dy with the skills she needs to develop into an independent clinical researcher in oncology palliative care decision-making and health services research. ..
  22. Multifaceted Interventions to Ameliorate Pain/Symptoms
    Joan Teno; Fiscal Year: 2005
    ....
  23. Dignity Intervention for Terminally Ill Cancer Patients
    Harvey Chochinov; Fiscal Year: 2007
    ..abstract_text> ..
  24. Patients' and families' home care service priorities
    David Casarett; Fiscal Year: 2007
    ..unreadable] [unreadable] [unreadable]..
  25. Reducing Barriers to Pain and Fatigue Management
    Betty Ferrell; Fiscal Year: 2009
    ....
  26. Palliative Care Curriculum for 3rd-Year Medical Students
    Charles von Gunten; Fiscal Year: 2007
    ..Data will be compared with residents who have not been through the course as well as with residents and faculty participating in another study of education. ..
  27. Patient-Centered Approach to Advance Care Planning
    KARIN KIRCHHOFF; Fiscal Year: 2006
    ..abstract_text> ..
  28. End of Life Nursing Education through Graduate Programs
    Betty Ferrell; Fiscal Year: 2006
    ..This proposal includes extensive evaluation planned to monitor individual and institutional dissemination. ..
  29. PATIENT AND PUBLIC EDUCATION IN CANCER PAIN MANAGEMENT
    Betty Ferrell; Fiscal Year: 2002
    ..This course will impact 120 healthcare settings to improve pain management and quality of life in cancer patients and to establish model pain education programs for national dissemination. ..
  30. End-of-life caring needs for patients with COPD
    LYNN REINKE; Fiscal Year: 2007
    ..The results will identify the important EOL caring needs to be included in interventions designed to improve EOL care for patients with COPD. [unreadable] [unreadable] [unreadable]..
  31. Academic Palliative Care
    Charles von Gunten; Fiscal Year: 2008
    ..All reentered investigators are seeking NCI funding and have the potential to become independent investigators. ..
  32. Intervention to Improve Expression of End of Life Preference for Homeless Persons
    John Song; Fiscal Year: 2009
    ....
  33. Pain & Other Symptoms in Patients with End-Stage Liver Disease at End of Life
    Lissi Hansen; Fiscal Year: 2008
    ..Qualitative description will be the method of analysis for the qualitative data. Descriptive and inferential statistics will be the methods of analysis for the quantitative data. [unreadable] [unreadable] [unreadable]..
  34. Palliative Oxygen for the Relief of Breathlessness
    Amy Abernethy; Fiscal Year: 2007
    ..The results will also advance a long-standing international debate about the role of palliative oxygen for intractable dyspnea and it's funding. [unreadable] [unreadable] [unreadable]..
  35. Hospice Enrollment and LTC Policy (HELP)
    Susan Miller; Fiscal Year: 2007
    ..unreadable] [unreadable] [unreadable]..
  36. Integrating Rehabilitation and Palliation in Cancer Care
    Joshua Hauser; Fiscal Year: 2005
    ..Faculty will include physicians, a nurse, a psychologist and a social worker who work, teach and conduct research in rehabilitation and palliative settings. ..
  37. SLEEP, FATIGUE, AND DEXAMETHOSONE IN CHILDHOOD CANCER
    Pamela Hinds; Fiscal Year: 2003
    ..Our study findings will explicate the relationship between sleep efficiency and fatigue, and between sleep, fatigue, and systemic exposure to dexamethasone. ..
  38. Team Performance and Quality of Care in Nursing Homes
    Helena Temkin Greener; Fiscal Year: 2008
    ..unreadable] [unreadable] [unreadable]..
  39. Creation and demonstration of a palliative care research cooperative group
    Jean S Kutner; Fiscal Year: 2010
    ....
  40. Traetment Goals at the End of Life
    Terri Fried; Fiscal Year: 2008
    ..abstract_text> ..
  41. Enhancing Cultural Congruence in Hospice Care
    Ardith Doorenbos; Fiscal Year: 2009
    ..The results will be instrumental in improving culturally congruent palliative care. ..
  42. Reducing Health Disparities at End of Life
    Ardith Z Doorenbos; Fiscal Year: 2010
    ..This project will evaluate the effect of the web-based training for primary health clinicians on quality of end of life communication as assessed by patients and with content-based coding of clinician communication with patients. ..
  43. Family Experience: End of Life for a Family Member with a Chronic Illness
    DEBRA LYNN MCHALE WIEGAND; Fiscal Year: 2009
    ..The results of the study will be published and presented in local and national meetings to health care professionals and others who would benefit from information related to how to help these vulnerable family members. ..
  44. DESIRE FOR DEATH AMONG TERMINALLY ILL PATIENTS WITH AIDS
    William Breitbart; Fiscal Year: 2001
    ....
  45. Effects of Mental Parity on High-Cost and Severely-Ill Individuals
    Haiden A Huskamp; Fiscal Year: 2011
    ..We will estimate a combination of two-part random-effects models for longitudinal data, latent class random-effects models, logistic regression models, Poisson regression models, and hazard models to address these aims. ..
  46. Using behavioral economics to understand end-of-life decisions
    Amber E Barnato; Fiscal Year: 2010
    ....
  47. Prescription Drug Coverage and Health Outcomes in Elders
    Jennifer Tjia; Fiscal Year: 2008
    ..abstract_text> ..
  48. End-of-Life Decision Making in ICUs: Roles and Relationships of Key Players
    Judith Gedney Baggs; Fiscal Year: 2010
    ..The study will help support interventions respectful of the perspectives of all participants in EOLDM. ..
  49. Meaning-Centered Psychotherapy in Advanced Cancer
    William Breitbart; Fiscal Year: 2002
    ..Larger, randomized controlled trials of Meaning-Centered Group Psychotherapy will be conducted in the future utilizing the insights learned from this pilot intervention study. ..
  50. Chronic Pain Self-Management for the Elderly
    Mary Ersek; Fiscal Year: 2005
    ..abstract_text> ..
  51. Work-Family Conflicts of Older Women
    Rachel Pruchno; Fiscal Year: 2005
    ....
  52. Treatment goals at the end of life
    Terri Fried; Fiscal Year: 2006
    ..Fried s continued success, Yale offers the resources necessary to ensure Dr. Fried s continued development as an independent investigator. ..
  53. Depression, Cytokines, and Pancreatic Cancer
    William Breitbart; Fiscal Year: 2006
    ..abstract_text> ..
  54. END OF LIFE PREFERENCES & OUTCOMES: PATIENTS & SPOUSES
    Rachel Pruchno; Fiscal Year: 2004
    ..Analyses would focus on both cross-sectional and prospective longitudinal relationships using a combination of a regression, structural equation modeling, and categorical data analysis techniques. ..
  55. Economics of Formulary Design and Mental Health Policy
    Haiden Huskamp; Fiscal Year: 2006
    ..Huskamp the training, mentoring, time and resources to develop the skills that will put her in a position to lead independent research on the economics of pharmaceutical treatment for mental illnesses. ..
  56. Patient and family participation in hospice team meeting
    Debra Parker Oliver; Fiscal Year: 2007
    ..The results of this study will provide preliminary data for a larger multi-phase, multi-site follow-up project. [unreadable] [unreadable] [unreadable]..
  57. Decisionmaking in Pediatric Palliative Care
    JOHN FEUDTNER; Fiscal Year: 2007
    ..unreadable] [unreadable] [unreadable]..
  58. SLEEP HEART HEALTH STUDY
    Helaine Resnick; Fiscal Year: 2007
    ..Accomplishing these goals will provide important information concerning the public health impact of SDB. ..
  59. Challenging Life Events in Older Persons
    TIMOTHY DAALEMAN; Fiscal Year: 2005
    ..e. social support, mental health status. Secondary aims include learning how a baseline measure of patient spirituality predicts future death attitudes and discussions of advance care planning. ..
  60. End of Life Decisions: Differences in Patient and Proxy Treatment Preferences
    SUSAN PARKS; Fiscal Year: 2008
    ..A better understanding of these factors will ultimately improve the shared decision making done between healthcare providers and families at the end of life for decisionally-incapacitated patients. [unreadable] [unreadable] [unreadable]..
  61. Exercise in Patients with Advanced NSCLC: A Pilot Study
    Jennifer Temel; Fiscal Year: 2005
    ..abstract_text> ..
  62. Managed Care Penetration and Cancer Care
    Nancy Keating; Fiscal Year: 2003
    ..If managed care penetration is negatively associated with the delivery of care, interventions targeted toward policy-makers, providers, and patients will be needed to counteract the effects of market forces. ..
  63. Local Therapy of Breast Cancer in Community Populations
    Nancy Keating; Fiscal Year: 2007
    ..Moreover, the work will provide insight into different techniques for the analysis of observational data. ..
  64. Fractures, Heart Disease, and Stroke on Aromatase Inhibitors
    Nancy L Keating; Fiscal Year: 2010
    ....
  65. Ethical Aspects of Dementia Research
    Betty Black; Fiscal Year: 2005
    ....
  66. The Social Context of Unintended Pregnancy in College-aged Women
    MELISSA LEHAN MACKIN; Fiscal Year: 2009
    ..This knowledge will contribute to improved public health interventions, lead to a decrease in disparities in access to health care, and allow for informed health policy decisions. ..