palliative care

Summary

Summary: Care alleviating symptoms without curing the underlying disease. (Stedman, 25th ed)

Top Publications

  1. ncbi Depression in palliative care: a pragmatic report from the Expert Working Group of the European Association for Palliative Care
    F Stiefel
    Psychiatry Service, University Hospital Lausanne, Switzerland
    Support Care Cancer 9:477-88. 2001
  2. ncbi Early palliative care for patients with metastatic non-small-cell lung cancer
    Jennifer S Temel
    Massachusetts General Hospital, Boston, MA 02114, USA
    N Engl J Med 363:733-42. 2010
  3. pmc Illness trajectories and palliative care
    Scott A Murray
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 330:1007-11. 2005
  4. ncbi Chemotherapy with mitoxantrone plus prednisone or prednisone alone for symptomatic hormone-resistant prostate cancer: a Canadian randomized trial with palliative end points
    I F Tannock
    Department of Medicine, Princess Margaret Hospital, Toronto, Canada
    J Clin Oncol 14:1756-64. 1996
  5. pmc Implementing patient reported outcome measures (PROMs) in palliative care--users' cry for help
    Claudia Bausewein
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Health Qual Life Outcomes 9:27. 2011
  6. ncbi Unilateral versus bilateral endoscopic metal stenting for malignant hilar biliary obstruction
    Itaru Naitoh
    Department of Gastroenterology and Metabolism, Nagoya City University Graduate School of Medical Sciences, Nagoya, Japan
    J Gastroenterol Hepatol 24:552-7. 2009
  7. ncbi Palliative radiotherapy trials for bone metastases: a systematic review
    Edward Chow
    Department of Radiation Oncology, Toronto Sunnybrook Regional Cancer Centre, University of Toronto, Toronto, Ontario, Canada
    J Clin Oncol 25:1423-36. 2007
  8. pmc Randomised comparison of fluorouracil, epidoxorubicin and methotrexate (FEMTX) plus supportive care with supportive care alone in patients with non-resectable gastric cancer
    S Pyrhonen
    Department of Radiotherapy and Oncology, Helsinki University Central Hospital, Finland
    Br J Cancer 71:587-91. 1995
  9. pmc Preferences for chemotherapy in patients with advanced non-small cell lung cancer: descriptive study based on scripted interviews
    G Silvestri
    Division of Pulmonary and Critical Care Medicine, Medical University of South Carolina, Charleston, SC 29425 2220, USA
    BMJ 317:771-5. 1998
  10. ncbi Treatment of existential distress in life threatening illness: a review of manualized interventions
    Katerine LeMay
    School of Psychology, University of Ottawa, Ottawa, ON, Canada
    Clin Psychol Rev 28:472-93. 2008

Detail Information

Publications318 found, 100 shown here

  1. ncbi Depression in palliative care: a pragmatic report from the Expert Working Group of the European Association for Palliative Care
    F Stiefel
    Psychiatry Service, University Hospital Lausanne, Switzerland
    Support Care Cancer 9:477-88. 2001
    Our objective in this study was to summarize the relevant knowledge on depression in palliative care and to provide a framework for clinical, scientific and educational efforts at improving its management...
  2. ncbi Early palliative care for patients with metastatic non-small-cell lung cancer
    Jennifer S Temel
    Massachusetts General Hospital, Boston, MA 02114, USA
    N Engl J Med 363:733-42. 2010
    ..We examined the effect of introducing palliative care early after diagnosis on patient-reported outcomes and end-of-life care among ambulatory patients with newly ..
  3. pmc Illness trajectories and palliative care
    Scott A Murray
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX
    BMJ 330:1007-11. 2005
  4. ncbi Chemotherapy with mitoxantrone plus prednisone or prednisone alone for symptomatic hormone-resistant prostate cancer: a Canadian randomized trial with palliative end points
    I F Tannock
    Department of Medicine, Princess Margaret Hospital, Toronto, Canada
    J Clin Oncol 14:1756-64. 1996
    ..To investigate the benefit of chemotherapy in patients with symptomatic hormone-resistant prostate cancer using relevant end points of palliation in a randomized controlled trial...
  5. pmc Implementing patient reported outcome measures (PROMs) in palliative care--users' cry for help
    Claudia Bausewein
    King s College London, Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation, London, UK
    Health Qual Life Outcomes 9:27. 2011
    Patient-reported outcome measurement (PROM) plays an increasingly important role in palliative care. A variety of measures exists and is used in clinical care, audit and research...
  6. ncbi Unilateral versus bilateral endoscopic metal stenting for malignant hilar biliary obstruction
    Itaru Naitoh
    Department of Gastroenterology and Metabolism, Nagoya City University Graduate School of Medical Sciences, Nagoya, Japan
    J Gastroenterol Hepatol 24:552-7. 2009
    ..The aim of this study was to compare endoscopic unilateral versus bilateral drainage in patients with malignant hilar biliary obstruction using a self-expanding metal stent (SEMS)...
  7. ncbi Palliative radiotherapy trials for bone metastases: a systematic review
    Edward Chow
    Department of Radiation Oncology, Toronto Sunnybrook Regional Cancer Centre, University of Toronto, Toronto, Ontario, Canada
    J Clin Oncol 25:1423-36. 2007
    ..The objective is to update previous meta-analyses with a systematic review of randomized palliative radiotherapy (RT) trials comparing single fractions (SFs) versus multiple fractions (MFs)...
  8. pmc Randomised comparison of fluorouracil, epidoxorubicin and methotrexate (FEMTX) plus supportive care with supportive care alone in patients with non-resectable gastric cancer
    S Pyrhonen
    Department of Radiotherapy and Oncology, Helsinki University Central Hospital, Finland
    Br J Cancer 71:587-91. 1995
    ..It can be used as a reference treatment in testing new investigational combinations...
  9. pmc Preferences for chemotherapy in patients with advanced non-small cell lung cancer: descriptive study based on scripted interviews
    G Silvestri
    Division of Pulmonary and Critical Care Medicine, Medical University of South Carolina, Charleston, SC 29425 2220, USA
    BMJ 317:771-5. 1998
    ..To determine how patients with lung cancer value the trade off between the survival benefit of chemotherapy and its toxicities...
  10. ncbi Treatment of existential distress in life threatening illness: a review of manualized interventions
    Katerine LeMay
    School of Psychology, University of Ottawa, Ottawa, ON, Canada
    Clin Psychol Rev 28:472-93. 2008
    ..Similarities and differences between each intervention are noted, and clinical and empirical considerations are discussed...
  11. ncbi Evidence-based interventions to improve the palliative care of pain, dyspnea, and depression at the end of life: a clinical practice guideline from the American College of Physicians
    Amir Qaseem
    American College of Physicians, Philadelphia, Pennsylvania 19106, USA
    Ann Intern Med 148:141-6. 2008
    ..RECOMMENDATION 5: Clinicians should ensure that advance care planning, including completion of advance directives, occurs for all patients with serious illness. (Grade: strong recommendation, low quality of evidence.)...
  12. ncbi A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease
    Joao Paulo Solano
    Division of Internal Medicine, Department of Medicine, Federal University of Sao Paulo, Sao Paulo, Brazil
    J Pain Symptom Manage 31:58-69. 2006
    ..There appears to be a common pathway toward death for malignant and nonmalignant diseases. The designs of symptom prevalence studies need to be improved because of methodological disparities in symptom assessment and designs...
  13. ncbi Randomized trial of short- versus long-course radiotherapy for palliation of painful bone metastases
    William F Hartsell
    Advocate Good Samaritan Hospital, Downers Grove, IL, USA
    J Natl Cancer Inst 97:798-804. 2005
    ..We investigated whether 8 Gy delivered in a single treatment fraction provides pain and narcotic relief that is equivalent to that of the standard treatment course of 30 Gy delivered in 10 treatment fractions over 2 weeks...
  14. ncbi Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference
    Christina Puchalski
    George Washington Institute for Spirituality and Health, The George Washington University, Washington, D C, USA
    J Palliat Med 12:885-904. 2009
    ..The Conference was based on the belief that spiritual care is a fundamental component of quality palliative care. This document and the conference recommendations it includes builds upon prior literature, the National ..
  15. ncbi Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review
    W Slort
    Department of General Practice, and EMGO Institute for Health and Care Research, VU University Medical Centre, The Netherlands
    Palliat Med 25:613-29. 2011
    While effective general practitioner (GP)-patient communication is required for the provision of good palliative care, barriers and facilitators for this communication are largely unknown...
  16. pmc Can this patient be discharged home? Factors associated with at-home death among patients with cancer
    Alberto Alonso-Babarro
    La Paz University Hospital, Madrid Autonomous University, Madrid, Spain
    J Clin Oncol 29:1159-67. 2011
    ..The purpose of this study was to identify factors associated with at-home death among patients with advanced cancer and create a decision-making model for discharging patients from an acute-care hospital...
  17. ncbi Shared decision-making in palliative care: a systematic mixed studies review using narrative synthesis
    Emmanuelle Bélanger
    Division of Social and Transcultural Psychiatry, McGill University, Montreal, Canada
    Palliat Med 25:242-61. 2011
    The aim of this study is to synthesize knowledge about the process of shared decision-making (SDM) in palliative care. Medline, EMBASE, CINAHL, PsychInfo, Web of Science were searched with core concepts: shared decisions, patient ..
  18. ncbi A new set of quality indicators for palliative care: process and results of the development trajectory
    Susanne J J Claessen
    Department of Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
    J Pain Symptom Manage 42:169-82. 2011
    In some countries (the United States in particular), quality indicators for palliative care have already been developed...
  19. ncbi Improving the effectiveness of interventions in palliative care: the potential role of qualitative research in enhancing evidence from randomized controlled trials
    Kate Flemming
    Department of Health Sciences, The University of York, York, UK
    Palliat Med 22:123-31. 2008
    Evaluating interventions in palliative care using randomized controlled trials (RCTs) has helped advance the specialty and create an evidence base for the delivery of care...
  20. ncbi Aggregating single patient (n-of-1) trials in populations where recruitment and retention was difficult: the case of palliative care
    Jane Nikles
    The University of Queensland, Discipline of General Practice, Queensland, Australia, South Australia
    J Clin Epidemiol 64:471-80. 2011
    ..The article examines a proposed palliative care trial as a test case.
  21. ncbi Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers
    Barbara Gomes
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    Cochrane Database Syst Rev 6:CD007760. 2013
    ..Despite best efforts and policies, one-third or less of all deaths take place at home in many countries of the world...
  22. ncbi Effect of early palliative care on chemotherapy use and end-of-life care in patients with metastatic non-small-cell lung cancer
    Joseph A Greer
    Massachusetts General Hospital Cancer Center, Yawkey Building, Suite 9A, 55 Fruit St, Boston, MA 02114, USA
    J Clin Oncol 30:394-400. 2012
    Prior research shows that introducing palliative care soon after diagnosis for patients with metastatic non-small-cell lung cancer (NSCLC) is associated with improvements in quality of life, mood, and survival...
  23. ncbi Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology
    Tiny Jaarsma
    Department of Cardiology, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands
    Eur J Heart Fail 11:433-43. 2009
    ..At this moment only a comparatively small number of heart failure patients receive specialist palliative care. Heart failure patients may have generic palliative care needs, such as refractory multifaceted symptoms, ..
  24. ncbi Prevalence, burden, and correlates of physical and psychological symptoms among HIV palliative care patients in sub-Saharan Africa: an international multicenter study
    Richard Harding
    Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, United Kingdom
    J Pain Symptom Manage 44:1-9. 2012
    ..been given to the prevalence and related burden of physical and psychological symptoms for those accessing palliative care. Despite evidence of problems persisting throughout the trajectory and alongside treatment, scant attention ..
  25. ncbi How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS
    Richard Harding
    Department of Palliative Care, Policy, and Rehabilitation and The Cicely Saunders Institute of Palliative Care, King s College London, London, United Kingdom
    J Pain Symptom Manage 45:746-52. 2013
    ..The incidence of life-limiting progressive disease in sub-Saharan Africa presents a significant clinical and public health challenge. The ability to easily measure patient outcomes is essential to improving care...
  26. pmc Evaluating an evidence-based curriculum in undergraduate palliative care education: piloting a phase II exploratory trial for a complex intervention
    Christian Schulz
    Institute for Ethics and Communication in Healthcare Systems, School of Medicine, Faculty of Health, Witten Herdecke University, Alfred Herrhausen Straße 50, D 58448, Witten, Germany
    BMC Med Educ 13:1. 2013
    By 2013 Palliative Care will become a mandatory examination subject in the medical curriculum in Germany. There is a pressing need for effective and well-designed curricula and assessment methods...
  27. ncbi Transition to adult services for children and young people with palliative care needs: a systematic review
    M Doug
    Health Sciences Research Institute, University of Warwick, Coventry, UK
    Arch Dis Child 96:78-84. 2011
    To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs.
  28. ncbi Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: results of a randomized study of early palliative care
    Jennifer S Temel
    Massachusetts GeneralHospital Cancer Center, 55 Fruit Street, Massachusetts General Hospital, Boston, MA 02114, USA
    J Clin Oncol 29:2319-26. 2011
    ..The aims of this study were to explore perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer (NSCLC) and to examine the effect of early palliative care on these views over time.
  29. ncbi Self-expanding metal stents for gastroduodenal malignancies: systematic review of their clinical effectiveness
    A Dormann
    Dept of Medicine, Minden Hospital, Minden, Germany
    Endoscopy 36:543-50. 2004
    ..Recently, metal stents have emerged as a new therapeutic option. The aim of the present study was to review the currently published evidence on the effectiveness and safety of this form of endoscopic treatment...
  30. ncbi 'That's part of everybody's job': the perspectives of health care staff in England and New Zealand on the meaning and remit of palliative care
    Merryn Gott
    The University of Auckland, School of Nursing, Auckland, New Zealand
    Palliat Med 26:232-41. 2012
    the right for patients of all diagnoses to be in receipt of palliative care from an early point in the diagnosis of a life-limiting condition is now enshrined in policy in a number of countries and increased emphasis is placed upon the ..
  31. pmc Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
    Marie Bakitas
    Department of Anesthesiology, Section of Palliative Medicine, Dartmouth Medical School, Dartmouth Hitchcock Medical Center, Lebanon, New Hampshire 03756, USA
    JAMA 302:741-9. 2009
    There are few randomized controlled trials on the effectiveness of palliative care interventions to improve the care of patients with advanced cancer.
  32. ncbi Evidence for improving palliative care at the end of life: a systematic review
    Karl A Lorenz
    Division of General Internal Medicine, Veterans Integrated Palliative Program, Veterans Affairs Greater Los Angeles Healthcare System, Los Angeles, California 90073, USA
    Ann Intern Med 148:147-59. 2008
    ..Many persons and their families are burdened by serious chronic illness in late life. How to best support quality of life is an important consideration for care...
  33. ncbi Endoscopic bilateral metal stent placement for advanced hilar cholangiocarcinoma: a pilot study of a newly designed Y stent
    Jung Hyun Lee
    Department of Internal Medicine, Pusan National University College of Medicine, Seo Gu, Busan, Korea
    Gastrointest Endosc 66:364-9. 2007
    ....
  34. pmc Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups
    Cathy Shipman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Weston Education Centre, London SE5 9RJ
    BMJ 337:a1720. 2008
    ..To identify major concerns of national and local importance in the provision, commissioning, research, and use of generalist end of life care...
  35. pmc Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale
    Richard Harding
    Dept Palliative Care, King s College London, Weston Education Centre, Denmark Hill, London SE5 9RJ, UK
    Health Qual Life Outcomes 8:10. 2010
    ..A primary reason has been the lack of appropriate locally-validated outcome tools. This study aimed to validate a multidimensional scale (the APCA African Palliative Outcome Scale) in a multi-centred international study...
  36. ncbi Dying with advanced dementia in the nursing home
    Susan L Mitchell
    Research and Training Institute, Hebrew Rehabilitation Center for Aged, Boston, MA 02131, USA
    Arch Intern Med 164:321-6. 2004
    ..Nursing homes are important providers of end-of-life care to persons with advanced dementia...
  37. ncbi Palliative care in children in Wales: a study of provision and need
    Richard D W Hain
    University of Wales College of Medicine, Department of Child Health, Llandough Hospital, Penarth, Vale of Glamorgan CF64 2XX, Wales, UK
    Palliat Med 19:137-42. 2005
    To establish incidence and prevalence of children needing palliative care in Wales.
  38. ncbi Integrating palliative care in severe chronic obstructive lung disease
    Kimberly A Hardin
    Department of Internal Medicine, UCD Health System Pulmonary Rehabilitation Program, University of California, Davis, Sacramento, CA 95817, USA
    COPD 5:207-20. 2008
    b>Palliative care services for patients with chronic obstructive pulmonary disease (COPD) have been limited in most health care schemes despite the significant impact its symptoms can have on quality of life (QOL)...
  39. ncbi Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, King s College London, London SE5 9RJ, United Kingdom
    J Pain Symptom Manage 38:816-26. 2009
    b>Palliative care is being advocated for noncancer patients but needs evidence of effectiveness and cost-effectiveness.
  40. ncbi Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review
    D A Gruenewald
    Geriatric Research, Education, and Clinical Center, Veterans Affairs Puget Sound Health Care System, Seattle, WA 98108, USA
    Mult Scler 10:690-704. 2004
    ..Further work is needed to clarify the domains of care relevant to people with severe MS, and to measure health-related QoL in this population...
  41. ncbi Perceptions of the use of a remote monitoring system in patients receiving palliative care at home
    Kathryn McCall
    Belford Hospital, Fort William, UK
    Int J Palliat Nurs 14:426-31. 2008
    ..professionals may be difficult, the ongoing review and management of symptoms--a fundamental part of good palliative care--can be difficult to achieve...
  42. ncbi Evaluation of hospital palliative care teams: strengths and weaknesses of the before-after study design and strategies to improve it
    S Simon
    Institute of Palliative Care, Oldenburg, Germany
    Palliat Med 23:23-8. 2009
    Hospital palliative care teams (HPCTs) are well established as multi-professional services to provide palliative care in an acute hospital setting and are increasing in number...
  43. ncbi Just palliative care: responding responsibly to the suffering of the poor
    Eric L Krakauer
    Department of Medicine, Harvard Medical School, Boston, Massachusetts 02215, USA
    J Pain Symptom Manage 36:505-12. 2008
    The disproportionate suffering of the world's poor from AIDS and cancer has generated efforts to promote palliative care as an affordable alternative to expensive disease-modifying therapies...
  44. ncbi Discomfort in dementia patients dying from pneumonia and its relief by antibiotics
    Jenny T van der Steen
    Departments of Public and OccupationalHealth, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands
    Scand J Infect Dis 41:143-51. 2009
    ..Maintaining comfort is a goal of palliative care in end-stage dementia...
  45. ncbi Palliative care teams in the intensive care unit: a randomised, controlled, feasibility study
    Winston Cheung
    Department of Intensive Care, Concord Repatriation General Hospital, Sydney, NSW
    Crit Care Resusc 12:28-35. 2010
    To determine whether palliative care teams can improve patient, family and staff satisfaction for patients receiving end-of-life care in the intensive care unit and reduce surrogate markers of health care costs.
  46. ncbi Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying
    Clare Gardiner
    School of Nursing and Midwifery, The University of Sheffield, Sheffield S11 9NE, UK
    Palliat Med 23:691-7. 2009
    ..Open communication regarding death, as advocated in a palliative care approach, is also appropriate to alleviate patients fears and to allow them to make decisions regarding the ..
  47. ncbi Place of death and palliative care following discharge from paediatric intensive care units
    Lorna K Fraser
    Paediatric Epidemiology Group, Centre for Epidemiology and Biostatistics, University of Leeds, Leeds, UK
    Arch Dis Child 96:1195-8. 2011
    To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care.
  48. ncbi Supportive versus palliative care: what's in a name?: a survey of medical oncologists and midlevel providers at a comprehensive cancer center
    Nada Fadul
    Department of Palliative Care and Rehabilitation Medicine, The University of Texas M D Anderson Cancer Center, Houston, Texas, USA
    Cancer 115:2013-21. 2009
    b>Palliative care has been progressively adopted by American cancer centers; however, referrals to palliative care continue to occur late in the trajectory of illness...
  49. ncbi Perceptions of the term palliative care
    Ann Morstad Boldt
    Department of Pediatrics, Medical College of Wisconsin, Milwaukee, 53226, USA
    J Palliat Med 9:1128-36. 2006
    To assess parents' and health care providers' perceptions of the name and description of a pediatric palliative care (PPC) program.
  50. ncbi Measurement challenges of informal caregiving: a novel measurement method applied to a cohort of palliative care patients
    Serge Dumont
    Laval University, School of Social Work, Pavillon Charles De Koninck, Quebec, Quebec, Canada
    Soc Sci Med 71:1890-5. 2010
    ..The proposed measurement method is then applied to a cohort of informal caregivers of palliative care patients...
  51. ncbi What is the evidence that palliative care teams improve outcomes for cancer patients and their families?
    Irene J Higginson
    Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King s College London, London, UK
    Cancer J 16:423-35. 2010
    Patients with advanced cancer experience a complex web of problems, all of which interact. Specialist palliative care services have developed to meet these needs, but their effectiveness should be considered...
  52. ncbi Implementation and impact of the Gold Standards Framework in community palliative care: a qualitative study of three primary care trusts
    C Walshe
    Department of Health Research, School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK
    Palliat Med 22:736-43. 2008
    ..within UK general practices, yet there is little understanding of its impact on the provision of community palliative care services...
  53. ncbi How common are palliative care needs among older people who die in the emergency department?
    Teresa Beynon
    Department of Palliative Care, St Thomas Hospital, London SE1 7EH, UK
    Emerg Med J 28:491-5. 2011
    To determine the prevalence and nature of palliative care needs in people aged 65 years or more (65+) who die in emergency departments (EDs).
  54. ncbi Integrating palliative care for patients with advanced chronic kidney disease: recent advances, remaining challenges
    Sara N Davison
    Department of Medicine and Institute of Health Economics, University of Alberta, 11 107 Clinical Sciences Building, Edmonton, Alberta, Canada T6G 2G3
    J Palliat Care 27:53-61. 2011
    ..Despite substantial advancements in renal palliative care over the past decade, much research is still required...
  55. ncbi Systematic review of the literature: parental outcomes after diagnosis of fetal anomaly
    Charlotte Wool
    University of Texas at Tyler, Dillsburg, Pennsylvania 17019, USA
    Adv Neonatal Care 11:182-92. 2011
    ..2010 by using the key words such as fetal anomaly, congenital malformations, pregnancy termination, perinatal palliative care, and perinatal hospice. Regardless of the option taken, women often experienced intense grief reactions...
  56. pmc Support of cancer patients' spiritual needs and associations with medical care costs at the end of life
    Tracy Balboni
    Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, Boston, Massachusetts, USA
    Cancer 117:5383-91. 2011
    ..Although spiritual care is associated with less aggressive medical care at the end of life (EOL), it remains infrequent. It is unclear if the omission of spiritual care impacts EOL costs...
  57. ncbi Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?
    Irene J Higginson
    Department of Palliative Care and Policy, Guy s, King s and St Thomas School of Medicine, King s College London, Weston Education Center, London, United Kingdom
    J Pain Symptom Manage 25:150-68. 2003
    b>Palliative care provision varies widely, and the effectiveness of palliative and hospice care teams (PCHCT) is unproven...
  58. ncbi American Society of Clinical Oncology provisional clinical opinion: the integration of palliative care into standard oncology care
    Thomas J Smith
    Sidney Kimmel Cancer Center at Johns Hopkins Medicine, Baltimore, MD, USA
    J Clin Oncol 30:880-7. 2012
    ..This PCO addresses the integration of palliative care services into standard oncology practice at the time a person is diagnosed with metastatic or advanced cancer.
  59. ncbi Advance care planning in COPD
    Kevin Patel
    Division of Pulmonary and Critical Care Medicine, University of Washington, Seattle, Washington, USA
    Respirology 17:72-8. 2012
    ..Future studies should focus on interventions that facilitate concurrent ACP and prepare patients for making in-the-moment decisions, with the goal of improving the quality of end-of-life care...
  60. ncbi Using mixed methods to develop and evaluate complex interventions in palliative care research
    Morag C Farquhar
    General Practice and Primary Care Research Unit, Department of Public Health and Primary Care, University of Cambridge, Institute of Public Health, UK
    Palliat Med 25:748-57. 2011
    ..They are therefore particularly valuable in palliative care research where the majority of interventions are complex, and the identification of outcomes particularly ..
  61. pmc Doctors' perceptions of palliative care for heart failure: focus group study
    Barbara Hanratty
    Department of Public Health, University of Liverpool, Liverpool L69 3GB
    BMJ 325:581-5. 2002
    To identify doctors' perceptions of the need for palliative care for heart failure and barriers to change.
  62. pmc Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study
    Lucy E Selman
    King s College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London SE5 9PJ, UK
    Health Qual Life Outcomes 9:21. 2011
    Quality of life (QOL) is a core outcome of palliative care, yet in African settings there is a lack of evidence on patients' levels of QOL...
  63. ncbi Mapping levels of palliative care development: a global view
    Michael Wright
    International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster, United Kingdom
    J Pain Symptom Manage 35:469-85. 2008
    b>Palliative care is coming to be regarded as a human right. Yet globally, palliative care development appears patchy and comparative data about the distribution of services are generally unavailable...
  64. ncbi Expandable metal stents for endoscopic bilateral stent-within-stent placement for malignant hilar biliary obstruction
    Prabhleen Chahal
    Division of Gastroenterology and Hepatology, Mayo Clinic College of Medicine, Rochester, Minnesota 55905, USA
    Gastrointest Endosc 71:195-9. 2010
    ..In many studies, side-by-side placement is performed, although it is unclear whether this is the most anatomical and functional approach...
  65. ncbi Symptom burden and quality of life in end-stage renal disease: a study of 179 patients on dialysis and palliative care
    D S P Yong
    Department of Medicine and Geriatrics, Caritas Medical Centre, Kowloon, Hong Kong
    Palliat Med 23:111-9. 2009
    b>Palliative care for end-stage renal disease (ESRD) is developing in Hong Kong. This is the first local study to explore the symptom burden and quality of life (QOL) of ESRD patients on chronic dialysis and palliative care...
  66. ncbi Existential suffering in the palliative care setting: an integrated literature review
    Patricia Boston
    Division of Palliative Care, Department of Family Practice, University of British Columbia, Vancouver, British Columbia, Canada
    J Pain Symptom Manage 41:604-18. 2011
    ..Existential and spiritual concerns in relation to palliative end-of-life care have received increasing attention over the past decade...
  67. pmc Care of the dying patient: the last hours or days of life
    John Ellershaw
    Marie Curie Centre Liverpool, Speke Road, Liverpool L25 8QA
    BMJ 326:30-4. 2003
  68. pmc Outcome of primary tumor in patients with synchronous stage IV colorectal cancer receiving combination chemotherapy without surgery as initial treatment
    George A Poultsides
    Department of Surgery, Memorial Sloan Kettering Cancer Center, New York, NY 10065, USA
    J Clin Oncol 27:3379-84. 2009
    ....
  69. ncbi Hospice and palliative care development in Africa: a multi-method review of services and experiences
    David Clark
    International Observatory on End of Life Care, Institute for Health Research, Lancaster University, Lancaster, United Kingdom
    J Pain Symptom Manage 33:698-710. 2007
    There is a paucity of information on hospice and palliative care provision in Africa and only a weak evidence base upon which to build policy and practice development...
  70. ncbi Living with advanced heart failure: a prospective, community based study of patients and their carers
    Kirsty J Boyd
    Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh, UK
    Eur J Heart Fail 6:585-91. 2004
    ..Services for people with heart failure are under-developed. The perspectives of patients, their informal and professional carers should inform development of service models...
  71. pmc A cross-cultural study of physician treatment decisions for demented nursing home patients who develop pneumonia
    Margaret R Helton
    Department of Family Medicine, University of North Carolina, Chapel Hill, NC 27599 7595, USA
    Ann Fam Med 4:221-7. 2006
    ..We wanted to explore factors that influence Dutch and US physician treatment decisions when nursing home patients with dementia become acutely ill with pneumonia...
  72. ncbi Plasma Epstein-Barr virus DNA level strongly predicts survival in metastatic/recurrent nasopharyngeal carcinoma treated with palliative chemotherapy
    Xin An
    Department of Medical Oncology, Sun Yat sen University Cancer Center, Guangzhou, China
    Cancer 117:3750-7. 2011
    ..However, data regarding utility of plasma EBV DNA in metastatic NPC are rare. The current study was to test the prognostic implication of plasma EBV DNA level in metastatic/recurrent NPC patients treated with palliative chemotherapy...
  73. doi Just enough palliation: radiation dose and outcome in patients with non-small-cell lung cancer
    Henry Wagner
    J Clin Oncol 26:3920-2. 2008
  74. ncbi Systematic review of educational interventions in palliative care for primary care physicians
    Marta Pelayo Alvarez
    Primary Health Care Centre, Algemesí, Valencia, Spain
    Palliat Med 20:673-83. 2006
    A literature review of educational interventions in palliative care (PC) for primary care physicians (PCP) was performed, to evaluate its impact in changing professional practice.
  75. ncbi The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care
    Mogens Groenvold
    Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, 23, Bispebjerg Bakke, DK 2400 Copenhagen NV, Denmark
    Eur J Cancer 42:55-64. 2006
    ..the EORTC QLQ-C30, one of the most widely used health-related quality of life questionnaires in oncology, for palliative care research...
  76. ncbi Palliation of metastatic bone pain: single fraction versus multifraction radiotherapy--a systematic review of randomised trials
    W M Sze
    Departament of Clinical Oncology, Pamela Youde Nethersole Eastern Hospital, Chai Wan, Hong Kong, PR China
    Clin Oncol (R Coll Radiol) 15:345-52. 2003
    ..However, the re-treatment rate and pathological fracture rate were higher after single fraction radiotherapy. Studies with quality of life and health economic end points are warranted to find out the optimal treatment option...
  77. ncbi Initial performance profile of a new 6F self-expanding metal stent for palliation of malignant hilar biliary obstruction
    Jennifer Chennat
    Center for Endoscopic Research and Therapeutics, Section of Gastroenterology, Department of Medicine, University of Chicago Medical Center, Chicago, Illinois 60637, USA
    Gastrointest Endosc 72:632-6. 2010
    ..A 6F endoscopic biliary self-expanding metal stent (SEMS) has been newly introduced for intended simultaneous side-by-side bilateral deployment in hilar malignant obstruction...
  78. ncbi Is there a role for palliative gastrectomy in patients with stage IV gastric cancer?
    Reza F Saidi
    Providence Hospital and Medical Centers, 16001 West Nine Mile Road, Southfield, Michigan 48075, USA
    World J Surg 30:21-7. 2006
    ..Palliative gastrectomy plus systemic therapy should be compared with systemic therapy alone in a randomized trial...
  79. ncbi The challenge of patients' unmet palliative care needs in the final stages of chronic illness
    D Fitzsimons
    Nursing Research and Development, Belfast City Hospital, Belfast, Northern Ireland
    Palliat Med 21:313-22. 2007
    ..There is consensus in the literature that the end of life care for patients with chronic illness is suboptimal, but research on the specific needs of this population is limited...
  80. ncbi Initial assessment of a new instrument to measure quality of life at the end of life
    Karen E Steinhauser
    Program on the Medical Encounter and Palliative Care, Center for Health Services Research in Primary Care, Durham VA Medical Center, Durham, North Carolina 27705, USA
    J Palliat Med 5:829-41. 2002
    ..We conducted this study to pilot a new multidimensional instrument to assess the quality of life at the end of life...
  81. ncbi Prospective study of palliative care in ALS: choice, timing, outcomes
    S M Albert
    Gertrude H Sergievsky Center, Columbia University, New York, NY, USA
    J Neurol Sci 169:108-13. 1999
    To understand palliative care choices among people with ALS, it is important to follow a group of recently diagnosed patients and record when patients reach well-defined palliative care milestones...
  82. ncbi Adverse effects of opioids on the central nervous systems of palliative care patients
    Jane Vella-Brincat
    Nurse Maude Hospice, Christchurch, New Zealand
    J Pain Palliat Care Pharmacother 21:15-25. 2007
    ..This review addresses the incidence, possible mechanisms, and treatment of each of these groups of opioid-induced adverse effects...
  83. ncbi Scales for evaluation of End-of-Life Care in Dementia
    L Volicer
    Geriatrics Research Education Clinical Center, E.N. Rogers Memorial Veterans Hospital, Bedford, Massachusetts 01730, USA
    Alzheimer Dis Assoc Disord 15:194-200. 2001
    ..The three scales developed and evaluated in this study can be used as outcome measures in studies investigating effectiveness of interventions aimed to improve end-of-life care for individuals with dementia...
  84. ncbi Gastric cancer
    Vincenzo Catalano
    SOC Oncologia Medica, Azienda Ospedaliera Ospedale San Salvatore, Via C Lombroso 1, 61100 Pesaro, Italy catalano
    Crit Rev Oncol Hematol 71:127-64. 2009
    ..This review summarizes the most important recommendations for the management of patients with gastric cancer...
  85. pmc Palliative care in urgent need of recognition and development in general practice: the example of Germany
    Nils Schneider
    Institute of Epidemiology, Social Medicine and Health System Research, Hannover Medical School, Hannover, Germany
    BMC Fam Pract 11:66. 2010
    Specialist palliative care is being increasingly recognised and developed to improve end-of-life care in many developed countries...
  86. ncbi Current concepts in malignant bowel obstruction management
    Eric Roeland
    The Institute for Palliative Medicine at San Diego Hospice, 4311 Third Avenue, San Diego, CA 92103, USA
    Curr Oncol Rep 11:298-303. 2009
    ..This article discusses the current understanding of MBO pathophysiology and emphasizes current MBO management concepts; it then reviews surgical, interventional, and medical approaches...
  87. ncbi A review of hypofractionated palliative radiotherapy
    Stephen T Lutz
    Department of Radiation Oncology, Blanchard Valley Regional Cancer Center, Findlay, Ohio 45840, USA
    Cancer 109:1462-70. 2007
    ..reluctance of radiation oncologists to provide single-fraction treatment acts as a barrier to referrals from palliative care professionals...
  88. ncbi Hope in palliative care: from narcissism to self-transcendence in amyotrophic lateral sclerosis
    Joanna H Fanos
    Department of Pediatrics, Dartmouth Medical School, Dartmouth Hitchcock Medical Center Lebanon, New Hampshire 03756, USA
    J Palliat Med 11:470-5. 2008
    The concept of hope in palliative care is an important and neglected area of research...
  89. ncbi Research methodologies in palliative care: a bibliometric analysis
    S A Payne
    International Observatory on End of Life Care, Lancaster University, Lancaster, UK
    Palliat Med 22:336-42. 2008
    The aspiration to design and conduct high-quality research in palliative care has been an important but elusive goal...
  90. ncbi Effectiveness of open versus antireflux stents for palliation of distal esophageal carcinoma and prevention of symptomatic gastroesophageal reflux
    Hans Ulrich Laasch
    Department of Radiology, South Manchester University Hospitals NHS Trust, Southmoor Rd, Wythenshawe, Manchester M23 9LT, England
    Radiology 225:359-65. 2002
    ..To compare the effectiveness of an antireflux stent with that of a standard open stent in preventing symptoms of gastroesophageal reflux in patients with inoperable distal esophageal cancer...
  91. pmc Family member satisfaction with end-of-life decision making in the ICU
    Cynthia J Gries
    Division of Pulmonary and Critical Care, Department of Medicine, University of Washington, Seattle, WA 98195, USA
    Chest 133:704-12. 2008
    ..The identification of chart-based quality indicators of palliative care that predict family satisfaction with decision making may help to guide interventions to improve decision ..
  92. ncbi Fractionated stereotactic radiosurgery for reirradiation of head-and-neck cancer
    Keith R Unger
    Department of Radiation Medicine, Georgetown University Hospital, Washington, DC 20007, USA
    Int J Radiat Oncol Biol Phys 77:1411-9. 2010
    ..We report our experience with reirradiation using fractionated SRS for head-and-neck cancer...
  93. ncbi How well do general practitioners deliver palliative care? A systematic review
    Geoffrey K Mitchell
    Centre for General Practice, University of Queensland Medical School, Herston Road, Herston 4006, Queensland, Australia
    Palliat Med 16:457-64. 2002
    General practitioners (GPs) deliver the majority of palliative care to patients in the last year of life...
  94. ncbi Comparison of duodenal stent placement with surgical gastrojejunostomy for palliation in patients with duodenal obstructions caused by pancreaticobiliary malignancies
    I Maetani
    Third Dept of Internal Medicine, Toho University, Tokyo, Japan
    Endoscopy 36:73-8. 2004
    ..The present study evaluated the outcome of duodenal stent placement and surgical gastrojejunostomy for palliation of duodenal stenosis caused by pancreaticobiliary malignancies...
  95. ncbi Information needs in terminal illness
    J S Kutner
    Division of General Internal Medicine, University of Colorado Health Sciences Center, Denver 80262, USA
    Soc Sci Med 48:1341-52. 1999
    ..We sought to describe the issues important to terminally ill patients receiving palliative care and to determine whether patient characteristics influence the needs of these patients...
  96. ncbi Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients
    Colleen S McClain
    Fordham University, Bronx, NY 10458, USA
    Lancet 361:1603-7. 2003
    ..The importance of spirituality in coping with a terminal illness is becoming increasingly recognised. We aimed to assess the relation between spiritual well-being, depression, and end-of-life despair in terminally-ill cancer patients...
  97. ncbi Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review
    Peter A Coventry
    School of Nursing, Midwifery and Social Work, The University of Manchester, Oxford Road, Manchester M13 9PL, UK
    Age Ageing 34:218-27. 2005
    most people in contemporary western society die of the chronic diseases of old age. Whilst palliative care is appropriate for elderly patients with chronic, non-malignant disease, few of these patients access such care compared with ..
  98. ncbi Endoscopic palliation of patients with biliary obstruction caused by nonresectable hilar cholangiocarcinoma: efficacy of self-expandable metallic Wallstents
    John L S Cheng
    Department of Gastroenterology and Hepatology, Academic Medical Center, Amsterdam, The Netherlands
    Gastrointest Endosc 56:33-9. 2002
    ..The aim of this study was to evaluate the efficacy of an endoscopically inserted self-expandable metal stent for treatment of biliary obstruction caused by nonresectable hilar cholangiocarcinoma...
  99. ncbi A comparison of covered and uncovered Wallstents for the management of distal malignant biliary obstruction
    Won Jae Yoon
    Department of Internal Medicine, Seoul National University College of Medicine, 28 Yeongeon dong, Jongno gu, Seoul 110 744, Korea
    Gastrointest Endosc 63:996-1000. 2006
    ..The efficacy and complications of covered self-expandable metal stents (SEMS) remain controversial...
  100. ncbi Barriers to palliative care for children: perceptions of pediatric health care providers
    Betty Davies
    Department of Family Health Care Nursing, University of California, San Francisco, School of Nursing, San Francisco, CA 94143 0606, USA
    Pediatrics 121:282-8. 2008
    The goal was to explore barriers to palliative care experienced by pediatric health care providers caring for seriously ill children.
  101. ncbi Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial
    Symone B Detmar
    Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Plesmanlaan 121, 1066 CX Amsterdam, The Netherlands
    JAMA 288:3027-34. 2002
    ..There has been increasing interest in the use of health-related quality-of-life (HRQL) assessments in daily clinical practice, yet few empirical studies have been conducted to evaluate the usefulness of such assessments...

Research Grants82

  1. Nutrition Intervention to Reduce Symptoms in Patients with Advanced Heart Failure
    Terry A Lennie; Fiscal Year: 2013
    ..Therefore, it is recommended that palliative care be initiated soon after diagnosis...
  2. Recombinant Polymers for Transarterial Chemoembolization of Liver Cancer
    AZADEH POURSAID; Fiscal Year: 2013
    ..The primary curative treatment is liver transplant, but if a donor liver is not available, only palliative care such as transarterial chemoembolization (TACE) are possible. TACE targets the tumor blood supply...
  3. PTHrP Modulation of TRPV1 in Pain Associated with Breast Cancer Bone Metastasis
    AARON DAVID MICKLE; Fiscal Year: 2013
    ..As palliative care is the major therapeutic goal for patients with breast cancer bone metastasis, a better understanding of ..
  4. Conducting Research in Pediatric Hematology/Oncology
    Debra L Friedman; Fiscal Year: 2013
    ..the control continuum, including prevention, diagnosis and treatment, supportive care, survivorship and palliative care. Each of the pathways has programmatic goals with an over-riding emphasis to provide a deep research training ..
  5. Treatment for Dysmyelination in PMD and SPG2
    Pamela E Knapp; Fiscal Year: 2013
    ..Further, the strategy of silencing developed here should be applicable to other diseases involving dominant, negative mutations. ..
  6. Does Violence Against Women result in disparities in cancer care for women with b
    Ann L Coker; Fiscal Year: 2013
    ..being diagnosed with cancer at a later stage, not receiving recommended cancer treatment including supportive/palliative care, and poorer cancer specific survival among women diagnosed with these cancers in Kentucky and adjusting for ..
  7. The Living Well Project: Early Palliative Care and MI for persons with AIDS
    Tammie E Quest; Fiscal Year: 2013
    DESCRIPTION (provided by applicant): Early palliative care is now recommended for persons at the time of diagnosis of a life threatening illness...
  8. In-reach for Successful Aging through Education(i-SAGE)
    Vyjeyanthi S Periyakoil; Fiscal Year: 2013
    ..and Hawaii, Foothill College, University of California, San Francisco School of Nursing and the VA Nationwide Palliative Care Network;and (b) Bi-lingual, multi-cultural peer health promoters (lay health advisers) from the 13 different ..
  9. A Translational Framework for Methodological Rigor to Improve Patient Centered Ou
    Francesca Dominici; Fiscal Year: 2013
    ..g. multiple treatments, coordination among medical teams, palliative care) cannot be addressed with randomized clinical trials, only...
  10. USE AND OUTCOMES OF INTERMITTENT ANDROGEN DEPRIVATION THERAPY IN PROSTATE CANCER
    Huei Ting Tsai; Fiscal Year: 2013
    ..S. general practice. Findings from the proposed study will generate new hypotheses regarding the comparative effectiveness of intermittent and continuous ADT and will inform subsequent research to help guide ADT use in prostate cancer. ..
  11. Experiences of Family Members of Nursing Home Patients with Advanced Dementia
    Jane L Givens; Fiscal Year: 2013
    ..analyses, qualitative research, scale development and the application of these approaches to the conduct of palliative care and aging research;and 3...
  12. Informing Decisions in Chronic Critical Illness: An RCT
    Judith E Nelson; Fiscal Year: 2013
    ..outcomes of a proactive program of protocolized, interdisciplinary, informational support meetings led by a palliative care physician, plus a printed informational aid, for families of chronically critically ill patients;and (2) To ..
  13. Chronic Graft Destruction: Interplay of Allo- and Autoantibodies and Nonadherence
    Steven A Webber; Fiscal Year: 2013
    ..We hypothesize that a bortezomib-based regimen will be effective in reducing anti-HLA antibodies and reducing calculated PRA. ..
  14. A Randomized trial of early palliative care for newly diagnosed cancer patients
    JENNIFER SUE TEMEL; Fiscal Year: 2013
    ..We hypothesize that a highly integrated model of early palliative care will improve quality of life and mood in both patients and their family caregivers as well as facilitate the ..
  15. End of Life Preferences and Healthcare Resource Use in Heart Failure Patients
    SHANNON DUNLAY; Fiscal Year: 2013
    ..at the end of life and how it may be impacted by the type of HF (HFpEF, HFrEF), frailty, and use of palliative care and hospice services (Aim 1)...
  16. Therapeutic Pathways to Improving End of Life Outcomes Among Families in Palliati
    TALIA IRIT ZAIDER; Fiscal Year: 2011
    ..Similarly, the World Health Organization's definition of palliative care includes the capacity to "offer a support system to help the family cope during the patient's illness ..
  17. Trajectory of Adverse events and Analgesia with Opioids in older adults - TAANGO
    Richard A Deyo; Fiscal Year: 2013
    ..Opioids are effective in managing acute pain and may have been underused for terminal illness and palliative care. However, the optimal approach to therapy for chronic non-cancer pain remains controversial because of sparse ..
  18. End-of-life decision making in seriously ill patients: the case of ESRD
    Melissa Wachterman; Fiscal Year: 2011
    ..D., M.P.H., a palliative care physician, into an independent research scientist in the area of end-of-life (EOL) care, particularly for ..
  19. Palliative Care in People Living with AIDS: Integrating into Standard of Care
    MAUREEN ELLEN LYON; Fiscal Year: 2013
    ..The goal of this multidisciplinary study is to relieve suffering and maximize quality of life through advance palliative care planning in adult persons living with AIDS (PLWA) or life-limiting co-morbidities...
  20. Black-White Differences in Advanced Cancer Communication, Acceptance, and Care
    Holly Gwen Prigerson; Fiscal Year: 2013
    ..terminal illness, a preference for comfort care over life-extension, fewer life-prolonging procedures, more palliative care, and receipt of care consistent with patient wishes...
  21. Innovative Curriculum for Mid-Career Training in Palliative Care
    FRANK DOUGLAS FERRIS MD; Fiscal Year: 2013
    ..This application tests the hypothesis that a curriculum in palliative care for mid-career physicians that combines didactic information with bedside mentoring while the physician is ..
  22. Synthesis and Characterization of Polymeric Antioxidant microparticles for the pr
    NIHAR MANILAL SHAH; Fiscal Year: 2013
    ..Most treatments have focused on either palliative care or accelerating the wound healing process through the application of growth factors (GF)...
  23. Informed Consent in Pediatric Phase I Cancer Trials
    Eric D Kodish; Fiscal Year: 2011
    ..We will examine the way that Phase I trials are actually presented, whether and how alternatives like hospice/palliative care are introduced, and what parents and older children understand after this communication process...
  24. Partnerships Between Medicaid, Tumor Registries &Cancer Control Researchers
    Deborah Schrag; Fiscal Year: 2013
    ..with Cancer * Evaluate use and outcomes of hormonal and chemotherapy for early stage breast cancer * Evaluate palliative care for patients with advanced solid tumors 3...
  25. End-of-Life Care After Severe Fetal Diagnosis
    Beth Black; Fiscal Year: 2012
    ..for Maternal and Infant Health (the Center) provides perinatal end-of-life care under the rubric of perinatal palliative care, recently changed from perinatal hospice;providers continue to develop this model of care to address the ..
  26. Patient-provider communication for patients with communication disorders
    CAROLYN RAE BAYLOR; Fiscal Year: 2013
    ..of communication disorders is high among aging patients and in a number of settings including nursing homes, palliative care, and stroke units...
  27. Individual Meaning-Centered Psychotherapy in Advanced Cancer Patients
    William Breitbart; Fiscal Year: 2013
    ..provided by applicant): Spirituality and its role in end-of-life care has emerged as a central issue in palliative care. There have been several recent studies of terminally ill cancer patients, both by our research group and ..
  28. Building Capacity for Rural Integrated Palliative Care: Bridges to Healthy Transi
    KATHARINE JOY BUCK; Fiscal Year: 2010
    ..Integrated palliative care promises to improve the quality and continuity of care from diagnosis forward...
  29. Development &Dissemination of Education in Pediatric Palliative Care
    STEFAN FRIEDRICHSDORF; Fiscal Year: 2013
    ..applicant): The Institute of Medicine and the National Cancer Policy Board have called for the integration of palliative care for all patients with cancer and other life-limiting diseases...
  30. Randomized Trial of an HIV Navigation Program for Early Palliative Care
    Jacquelyn Slomka; Fiscal Year: 2013
    ..b>Palliative care, focused on comprehensive management of physical, psychological, social, and spiritual needs of persons with ..
  31. Palliative Care Symptom Management in Rural Communities
    Ardith Z Doorenbos; Fiscal Year: 2013
    DESCRIPTION (provided by applicant): Palliative care aims to provide relief of pain and other patient symptoms, such as fatigue, dyspnea, constipation, anxiety, and depression, in order to improve quality of life...
  32. Palliative Care in Heart Failure (PAL-HF)
    James A Tulsky; Fiscal Year: 2013
    ..b>Palliative care interventions are designed to provide multidimensional support to patients and families with advanced serious ..
  33. Can Concurrent Hospice Care and Cancer Treatment Achieve Superior Outcomes?
    Vincent Mor; Fiscal Year: 2013
    ..of offering concurrent care (disease modifying treatment -- Chemotherapy and XRT - while receiving hospice/palliative care) to Veterans dying of cancer...
  34. Walking Forward - American Indian Participation in Cancer Clinical Trials
    Daniel G Petereit; Fiscal Year: 2013
    ..the average stage at which cancer presents, to increase cancer survival rates, and to increase access to palliative care and other services to manage the complex disease states of our clients...
  35. Breaking the Cycle of Poverty Among Seniors and Their Family Caregivers
    Melissa Andrea Simon; Fiscal Year: 2012
    ..and health disparities research and her team of collaborators'long standing expertise in geriatrics, palliative care, and health economics...
  36. Early vs. Later Palliative Cancer Care: Clinical and Biobehavioral Effects
    MARIE ANNE BAKITAS; Fiscal Year: 2011
    ..b>Palliative care strives to improve quality of life (QOL) and to prevent "bad deaths" by providing expert, interdisciplinary ..
  37. Parent Experiences of Continuing Pregnancy with Lethal Fetal Diagnosis
    DENISE Y COTE-ARSENAULT; Fiscal Year: 2013
    ..needs, and responses in order to inform the development of responsive health care services, such as perinatal palliative care. No US prospective studies on continuing pregnancy with LFD are reported in literature...
  38. Impact of Palliative Care on Healthcare Utilization of Seriously Ill Older Adults
    LAURA PILAR GELFMAN; Fiscal Year: 2013
    ..Despite these numbers, less than 10% of patients with HF receive any form of palliative care;as of 2007, less than 12% of hospice admissions were patients with HF...
  39. Rectal Medication Administration Device for Palliative Care
    BRADFORD MACY; Fiscal Year: 2013
    ..Advancements in the field of hospice and palliative care are very important. In 2010 there were 1.6M patients in hospice in the US, growing at 11% per year...
  40. Novel Wound Powder RGN107 to Reduce Wound Odor, Pain and Exudate at End-of-Life
    Teresa J Kelechi; Fiscal Year: 2013
    DESCRIPTION: Palliative care can provide comfort and support for individuals at the end of life who have a wound. Such people frequently face distressing symptoms that profoundly affect quality of life...
  41. Palliative Care Provider Online Education in Evidence-Based Complementary Therapi
    Leila Kozak; Fiscal Year: 2011
    DESCRIPTION (provided by applicant): Palliative care represents one of the most rapidly expanding sectors of health care...
  42. Improving Psychiatric Interventions at the End of Life
    Scott A Irwin; Fiscal Year: 2012
    ..scientist who would obtain RO1 funding in a new and critically important area, psychiatric hospice and palliative care. This proposal is consistent with the NIMH strategic plan of strengthening the application of mental health ..
  43. Pediatric Heart Network: Follow-up of the Single Ventricle Reconstruction Trial
    Wyman Lai; Fiscal Year: 2010
    ..The results of this multicenter, prospective study will provide important information regarding the optimal neonatal surgical intervention for this lesion. (End of Abstract) ..
  44. Meaning-Centered Grief Therapy for Parents Bereaved by Cancer
    Wendy G Lichtenthal; Fiscal Year: 2013
    ..cancer patients and their families, specializing in grief interventions to improve continuity of care from palliative care through bereavement. This application represents the logical next step in my career development...
  45. Non-cancer pain and cognitive impairment: A disabling relationship
    Joseph W Shega; Fiscal Year: 2012
    ..He seeks to apply this paradigm to palliative care and geriatrics populations particularly those with cognitive impairment...
  46. Patient Care Outcomes at End-of-Life for Older Adults in ICU
    Jennifer B Seaman; Fiscal Year: 2013
    ..Research has shown that palliative care consultation can improve EOL care, but implementation in the ICU is inconsistent and proxy measures are ..
  47. Longitudinal Pediatric Palliative Care: Quality of Life &Spiritual Struggle
    MAUREEN ELLEN LYON; Fiscal Year: 2013
    DESCRIPTION (provided by applicant): Our goal is to advance palliative care with children and their families aimed at relieving suffering (psychological, spiritual, physical) and maximizing quality of life...
  48. Integrating Palliative Oncology Care into Doctor of Nursing Practice Programs
    Betty R Ferrell; Fiscal Year: 2013
    ..a key role in assessing, managing, and directing the care of people with cancer, especially in the realm of palliative care. With the development of this new doctorate in nursing, those with a DNP degree have a unique opportunity to ..
  49. Transcatheter Intra-arterial Perfusion MRI Monitoring of Liver Tumor Embolization
    ANDREW CHRISTIAN LARSON; Fiscal Year: 2010
    ..Task 2: To test the hypothesis that DSA flow estimates are poorly reflective of tumor perfusion reduction by comparison to quantitative intra-procedural TRIP-MRI perfusion measurements. ..
  50. Trajectories and Palliation Study (TAPS)
    Karl Lorenz; Fiscal Year: 2013
    DESCRIPTION (provided by applicant): Evidence increasingly supports the role of palliative care in improving both the efficiency of care and the quality of life of patients and caregivers living with advanced chronic serious illness...
  51. Organizational Factors and the Delivery of Nursing Home Care
    DAVID GEORGE STEVENSON; Fiscal Year: 2013
    ..g., observing care planning activities at a local nursing home and participating in palliative care grand rounds). The career development award includes a research plan that will enable Dr...
  52. Promoting Independence Through Pain and Symptom Management
    Albert L Siu; Fiscal Year: 2013
    ..collaborations are the source for new research projects and junior faculty with interests in geriatrics and palliative care. Three of the OAIC cores will be led by individuals who have devoted their careers to geriatrics, a fourth is ..
  53. MidCareer Mentoring Award for Patient-Oriented Research
    Kenneth E Covinsky; Fiscal Year: 2013
    ..Each mentee will have a focused career development plan that includes directed didactic and developmental activities and a mentored research project that will lead to first author publications. ..
  54. Decisionmaking in Pediatric Advanced Care
    JOHN CHRIS FEUDTNER; Fiscal Year: 2013
    ..our research team has developed an integrative psychosocial conceptual model that we employ to aid parents in palliative care decision making...
  55. Chemotherapy and Disability in Older Hormone-Refractory Prostate Cancer Patients
    KRISTEN JENNIFER WELLS; Fiscal Year: 2010
    ..Compared to best palliative care, newly developed chemotherapy drugs and regimens increased survival, response rate, and palliation in ..
  56. Informing/Improving ICU Palliative Care for Older Adults
    Judith E Nelson; Fiscal Year: 2013
    ..Most of these patients are older adults and all are in need of evidence-based, skillful, and compassionate palliative care. In fact, it is now accepted that palliative care is an essential component of comprehensive care from the ..
  57. Sustaining palliative care to drug users with HIV/AIDS &health disparities
    Amy Knowlton; Fiscal Year: 2013
    ..Major goals of palliative care (PC) programs are to enhance the quality of life (QOL) of patients and their families, optimize function, and ..
  58. Cardiac Conduction through Engineered Tissue
    Douglas Cowan; Fiscal Year: 2009
    ....
  59. Gene therapy in canine myotubular myopathy for clinical translation
    Martin K Childers; Fiscal Year: 2013
    ..Only supportive, palliative care is available...
  60. A Vision of Hope: Integration of Palliative Care in Chronic Pediatric Diseases
    Cynda H Rushton; Fiscal Year: 2010
    ..this proposal is directly responsive to the following specific challenge topic: 04-NR-102* Methods to Enhance Palliative Care and End-of-Life Research This initiative will develop and test interventions to enhance the quality of care ..
  61. Planning Palliative Care for Homeless Veterans Who Are at the End of Life
    EVELYN A HUTT; Fiscal Year: 2013
    ..The proposed research is designed to understand the scope of unmet need for palliative care among homeless veterans, and the barriers and facilitators to providing them excellent EOL care...
  62. Implementing best practice in palliative care
    Amy P Abernethy; Fiscal Year: 2013
    b>Palliative care and hospice focus on the relief of suffering and achieving the best possible quality of life, including ameliorating symptoms, relieving psychological distress, and promoting spiritual well-being for patients their ..
  63. Shared Decision-Making in End-Stage Heart & Lung Disease
    Mark Sullivan; Fiscal Year: 2005
    ..S. adults, yet they have received relatively little attention in the hospice or palliative care literature...
  64. Palliative Care Curriculum for Medical Residents
    Charles von Gunten; Fiscal Year: 2009
    ..provided by applicant): There is substantial evidence that physicians do not have adequate training in palliative care. In preliminary work, we have developed evaluation methods and curricula for physicians and established a ..
  65. Communication in Late-stage Cancer: Exploring Hospice Decision
    DEBORAH PEASE WALDROP; Fiscal Year: 2010
    ..broad Challenge Area (04): Clinical Research and specific Challenge Topic, 04-NR-103*: Methods to Enhance Palliative Care and End-of-Life Research...
  66. PALLIATIVE CARE FELLOWSHIP
    Janet Abrahm; Fiscal Year: 2000
    ..family and primary care physicians, more generalists will need to develop expertise in symptom management and palliative care. This proposal describes a one year palliative care fellowship to be offered by the Hematology/Oncology ..
  67. DYING, DEATH, AND GRIEF--INTERNET PROJECT
    Sara Knight; Fiscal Year: 2002
    ..education in the needs of the dying cancer patient and the bereaved family is necessary for compassionate palliative care. In spite of efforts to include death education through traditional medical and nursing curriculae, serious ..
  68. HOPE--HOME CARE OUTREACH FOR PALLIATIVE CARE EDUCATION
    Betty Ferrell; Fiscal Year: 2001
    ..The specific aims are to 1) Implement the Home care Outreach for Palliative care Education (HOPE) curriculum focusing on priority topics in end of life care including pain management, ..
  69. Family Decisions About Palliative Care
    Alison Karasz; Fiscal Year: 2004
    ..in end of life care: the decision to shift the direction of treatment away from curative efforts towards a palliative care approach. Patients from three ethnic groups will be recruited for the purpose of cross-cultural comparison...
  70. Dignity Intervention for Terminally Ill Cancer Patients
    Harvey Chochinov; Fiscal Year: 2007
    DESCRIPTION (provided by applicant): One of the greatest challenges facing palliative care today is how to address suffering of dying patients, particularly suffering that derives from psychosocial, spiritual or existential domains of ..
  71. CHFR Methylation for Predicting Taxane Sensitivity in Lung and Esophageal Cancer
    James Herman; Fiscal Year: 2007
    ..We will further develop a test for CHFR methylation and determine whether CHFR methylation can be used to predict which patients will respond to taxane based chemotherapies. ..
  72. Palliative Care for Hospitalized Cancer Patients
    Diane E Meier; Fiscal Year: 2010
    DESCRIPTION (provided by applicant): The purpose of this study is to evaluate the clinical outcomes of palliative care consultation teams on the care of hospitalized patients with advanced cancer...
  73. Effects of Acupuncture on Pain,Nausea,Quality of Life
    David Rosenthal; Fiscal Year: 2003
    ..The issues of palliative care in the end of life of a cancer patient are extremely important as currently, the majority of cancer patients ..
  74. PALLIATIVE CARE FELLOWSHIP
    J Billings; Fiscal Year: 2004
    ..Yet only a handful of palliative care fellowships currently exist in the United States to train the academic physicians who can practice and teach ..
  75. Timely End-of-Life Communication to Parents of Children with Brain Tumors
    VERNA LEE FERGUSON; Fiscal Year: 2010
    ..Parents are responsible for palliative care and end of life care (PC/EOL) decisions for these children, and they suffer from emotional distress, ..
  76. Preparing Caregivers for the Death of their Loved One
    Randy Hebert; Fiscal Year: 2007
    ..Randy Hebert with the training and experience to become an independent palliative care and bereavement researcher...
  77. Palliative Care Curriculum for 3rd-Year Medical Students
    Charles von Gunten; Fiscal Year: 2007
    Education of medical students about end-of-life care, palliative care and hospice care is poor. The Liaison Committee for Medical Education (LCME) requires all medical schools to teach this subject...
  78. Race effects in oncologists' end-of-life communication
    Kathryn Pollak; Fiscal Year: 2007
    ..These disparities may be due to many factors, including lack of awareness of palliative care options and poor communication between patients and oncologists at the end of life...
  79. Veterans Affairs Nationwide Palliative Care Network
    VYJEYANTHI PERIYAKOIL; Fiscal Year: 2005
    The concept of the Veterans Affairs Palliative Care Network (PCN) is to create opportunities for a practice-relevant, problem-based virtual asynchronous learning network specifically tailored towards VA providers caring for veterans at ..
  80. Pilot of an Intervention for Caregivers of Hospice HF Patients
    Susan C McMillan; Fiscal Year: 2010
    ..Hospice provides comprehensive palliative care for both patients and their family members, but family caregivers often have unmet needs, even when receiving ..
  81. Interventions and Quality of Life in Cancer and AIDS
    DEBORAH SHERMAN; Fiscal Year: 2002
    ..of measures to examine quality of life of the patient/family dyads; and 5) pilot test the Continuum of Palliative Care Intervention Inventory (CPCII) to evaluate its ability to document palliative care interventions for patients ..
  82. Nursing Education Model--Pallative Care Beyond Hospice
    Paula Nelson Marten; Fiscal Year: 2003
    This revised application requests funding to integrate the principles and practice of palliative care nursing into urban settings including acute and long-term care...