Janet A Deatrick
Affiliation: University of Pennsylvania
- Parents' views of their children's participation in phase I oncology clinical trialsJanet A Deatrick
International Center of Research for Women, Children, and Families, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA
J Pediatr Oncol Nurs 19:114-21. 2002..These themes are contrasted to clinical, parental, and ethical perspectives from the literature to make recommendations for further research emphasizing the concerns of families...
- Exploring family management of childhood brain tumor survivorsJanet A Deatrick
Center for Health Disparities Research, University of Pennsylvania School of Nursing, Philadelphia, PA 19104 4217, USA
J Pediatr Oncol Nurs 26:303-11. 2009..In this report, 2 hypothetical, contrasting case studies of family management are used to illustrate family management within the context of brain tumor survivors...
- Correlates of children's competence to make healthcare decisionsJanet A Deatrick
University of Pennsylvania School of Nursing, Philadelphia, USA
J Clin Ethics 14:152-63. 2003
- Fostering health equity: clinical and research training strategies from nursing educationJanet A Deatrick
School of Nursing, Center for Health Disparities Research, University of Pennsylvania, PA, USA
Kaohsiung J Med Sci 25:479-85. 2009..A unique perspective is presented through collaboration between a nursing school and a center for health disparities research...
- Family Management Style Framework: a new tool with potential to assess families who have children with brain tumorsJanet A Deatrick
Center for Health Disparities Research, University of Pennsylvania School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104 6096, USA
J Pediatr Oncol Nurs 23:19-27. 2006..The purpose of this article is to present the Family Management Styles Framework as a tool that is useful in both clinical practice and research for assessing families who have children with cancer, including those with brain tumors...
- Stakeholder validation of a model of readiness for transition to adult careLisa A Schwartz
The Children s Hospital of Philadelphia, Philadelphia, Pennsylvania2Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania
JAMA Pediatr 167:939-46. 2013..There is a lack of theoretical models to guide development and implementation of evidence-based guidelines, assessments, and interventions to improve transition readiness...
- Parent perspectives on family-based psychosocial interventions in pediatric cancer: a mixed-methods approachMatthew C Hocking
The Children s Hospital of Philadelphia, Philadelphia, PA, USA
Support Care Cancer 22:1287-94. 2014..Qualitative themes highlight the importance of using a traumatic stress framework to inform the development of family-based interventions for those affected by pediatric cancer...
- Scale development based on likelihood cross-validationGeorge J Knafl
School of Nursing, University of North Carolina at Chapel Hill, NC 27599 7460, USA
Stat Methods Med Res 21:599-619. 2012..An example analysis is presented on the development of scales to measure how parents caring for a child with a chronic condition view their family's management of that condition...
- Community violence exposure and positive youth development in urban youthCatherine C McDonald
University of Pennsylvania, School of Nursing, Center for Health Equity Research, 2l, 418 Curie Boulevard, Philadelphia, PA 19104 4217, USA
J Community Health 36:925-32. 2011..Points of intervention should focus on families, with attention to parental figures in the home and overall family functioning...
- Health care autonomy in children with chronic conditions: implications for self-care and family managementBarbara L Beacham
Center for Health Equity Research, University of Pennsylvania School of Nursing, Room 243 2Lower Claire M Fagin Hall, 418 Curie Boulevard, Philadelphia, PA 19104 4217, USA Electronic address
Nurs Clin North Am 48:305-17. 2013..This review links the 3 concepts and discusses the implications for families and health care providers. Case studies are provided as exemplars to highlight areas where intervention and research is needed...
- Health-related quality of life of adolescent and young adult survivors of childhood brain tumorsLamia P Barakat
The Children s Hospital of Philadelphia, Philadelphia, PA, USA
Psychooncology 24:804-11. 2015....
- A typology of heart failure self-care management in non-eldersVictoria Vaughan Dickson
School of Nursing, University of Pennsylvania, Philadelphia, PA 19104 6096, United States
Eur J Cardiovasc Nurs 7:171-81. 2008..Self-care was defined as an active, cognitive process in which persons engage for the purpose of maintaining their health (maintenance) and managing symptoms (management)...
- Analysis of cross-sectional univariate measurements for family dyads using linear mixed modelingGeorge J Knafl
School of Nursing, University of North Carolina at Chapel Hill 27599 7460, USA
J Fam Nurs 15:130-51. 2009..Thus, it is recommended that IFC be reported as standard practice reflecting the fact that a family dyad is more than just the aggregate of two individuals. Moreover, not accounting for IFC can affect the conclusions...
- Cultural influence on family management of children with cancerAnnaka Gustafson Thibodeaux
Children s Hospital of Philadelphia, Oncology Bone Marrow Transplant Unit, Philadelphia, PA, USA
J Pediatr Oncol Nurs 24:227-33. 2007..Implications for practice include the possibility of providing evidence-based culturally competent care to families of children with cancer...
- Children's food choice process in the home environment. A qualitative descriptive studyJoanna E Holsten
University of Pennsylvania, School of Nursing, Fagin Hall, 418 Curie Blvd, Philadelphia, PA 19104 4217, USA
Appetite 58:64-73. 2012..Children evaluated potential food options based on their hunger level, food preferences, time pressure and activity prioritization, food preparation effort and skills, and expected physical consequences of food...
- Neurocognitive and family functioning and quality of life among young adult survivors of childhood brain tumorsMatthew C Hocking
Division of Oncology, The Children s Hospital of Philadelphia, Philadelphia, PA 19104, USA
Clin Neuropsychol 25:942-62. 2011..Future directions for research and clinical care for this vulnerable group of survivors are discussed...
- Differences in perceptions of the diagnosis and treatment of obstructive sleep apnea and continuous positive airway pressure therapy among adherers and nonadherersAmy M Sawyer
University of Pennsylvania, Philadelphia, Pennsylvania, USA
Qual Health Res 20:873-92. 2010..Our findings suggest opportunities for developing and testing tailored interventions to promote CPAP use...
- Diabetes risk factors in children: a partnership between nurse practitioner and high school studentsTerri H Lipman
University of Pennsylvania School of Nursing, USA
MCN Am J Matern Child Nurs 36:56-62. 2011....
- Assessment of the psychometric properties of the Family Management MeasureKathleen Knafl
School of Nursing, University of North Carolina, Chapel Hill, NC 27599 746, USA
J Pediatr Psychol 36:494-505. 2011..This paper reports development of the Family Management Measure (FaMM) of parental perceptions of family management of chronic conditions...
- Using focus groups to adapt ethnically appropriate, information-seeking and recruitment messages for a prostate cancer screening program for men at high riskCharlene J Bryan
School of Nursing, University of Pennsylvania, PA, USA
J Natl Med Assoc 100:674-82. 2008..To adapt ethnically appropriate radio and newspaper messages in order to increase information-seeking and recruitment to the high-risk Prostate Cancer Risk Assessment Program (PRAP) using input from focus groups...
- Factors associated with the development of expertise in heart failure self-careBarbara Riegel
School of Nursing, University of Pennsylvania, Philadelphia, PA 19104 6096, USA
Nurs Res 56:235-43. 2007..Self-care is vital for successful heart failure (HF) management. Mastering self-care is challenging; few patients develop sufficient expertise to avoid repeated hospitalization...
- Mother-caregiver expectations for function among survivors of childhood brain tumorsMatthew S Lucas
Center for Bioethics, Urban Health, and Policy, Lewis Katz School of Medicine, Temple University, 3440 North Broad Street, Suite 200, Philadelphia, PA, 19140, USA
Support Care Cancer 24:2147-54. 2016..We sought to describe the nature of caregivers' expectations about survivors' function and how expectations connect to ongoing management and decision-making...
- A mixed methods assessment of coping with pediatric cancerAimee K Hildenbrand
a Center for Injury Research and Prevention, The Children s Hospital of Philadelphia, Philadelphia, PA, USA
J Psychosoc Oncol 32:37-58. 2014..Using a mixed methods approach to assess coping provides a richer understanding of families' experiences, which can better inform clinical practice. ..
- A review of diabetes mellitus-specific family assessment instrumentsMinKyoung Song
University of Pennsylvania School of Nursing, Philadelphia, 418 Curie Boulevard, Philadelphia, PA 19104 4217, USA
West J Nurs Res 35:405-33. 2013..Suggestions for improving DM-specific FAIs are provided and a rationale for why DM-specific and non-DM-specific FAIs is needed to fully measure family issues related to family dynamics/attributes on DM patient care...
- Identifying the educational needs of parents at the completion of their child's cancer therapyWendy L Hobbie
The Children s Hospital of Philadelphia, PA 19104, USA
J Pediatr Oncol Nurs 27:190-5. 2010..In the feasibility portion of this study, parents were able to complete the questionnaires with no negative feedback provided...
- Symptoms described by African American women evaluated for preterm laborMarilyn Stringer
School of Nursing, University of Pennsylvania, Philadelphia, PA 19124 6096, USA
J Obstet Gynecol Neonatal Nurs 37:196-202. 2008..To describe symptoms, self-care for symptoms, and lay consultations of African American women later diagnosed with a likelihood of preterm labor (PTL)...
- Parenting in the face of childhood life-threatening conditions: The ordinary in the context of the extraordinaryKim Mooney-Doyle
The Center for Global Women s Health and The Center for Health Equity Research, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania
Palliat Support Care 14:187-98. 2016..Uncovering what it means to be a parent during the extraordinary time of a child's life-threatening condition (LTC) is important for understanding family goals, decision making, and the work of parenting within this context...
- Ethical frameworks for surrogates' end-of-life planning experiences: A qualitative systematic reviewHyejin Kim
University of Pennsylvania, USA
Nurs Ethics . 2016....
- Children with chronic conditions: perspectives on condition managementBarbara L Beacham
University of Pennsylvania School of Nursing, Philadelphia, PA Indiana University School of Nursing, Indianapolis, IN Electronic address
J Pediatr Nurs 30:25-35. 2015..Future studies of this phenomenon comparing child and parent perspectives would further our understanding of the influence of family management...
- Tasks and communication as an avenue to enhance parenting of children birth-5 years: an integrative reviewKim Mooney-Doyle
University of Pennsylvania School of Nursing, Philadelphia, PA Electronic address
J Pediatr Nurs 30:184-207. 2015....
- The role of family phenomena in posttraumatic stress in youthCatherine C McDonald
Center for Health Equity Research, University of Pennsylvania School of Nursing, Philadelphia, PA, USA
J Child Adolesc Psychiatr Nurs 24:38-50. 2011..Youth face trauma that can cause posttraumatic stress (PTS)...
- Patient-provider race-concordance: does it matter in improving minority patients' health outcomes?Salimah H Meghani
NewCourtland Center for Transitions and Health, School of Nursing, University of Pennsylvania, Philadelphia, USA
Ethn Health 14:107-30. 2009..To understand if patient-provider race-concordance is associated with improved health outcomes for minorities...
- Understanding interventions and outcomes in mothers of infantsMarcia R Gardner
Center for Health Disparities Research, School of Nursing, University of Pennsylvania, Pennsylvania, Philadelphia 19102, USA
Issues Compr Pediatr Nurs 29:25-44. 2006..Based on the evidence, nurses can incorporate selected strategies into nursing care to promote effective mothering during the first years of a child's life...
- Family management style and the challenge of moving from conceptualization to measurementKathleen A Knafl
Yale University School of Nursing, USA
J Pediatr Oncol Nurs 23:12-8. 2006..Content validity testing has been completed on the FMS Survey. Future plans include full-scale field testing of remaining psychometric properties...
- Family management styles related to withdrawal of life-sustaining therapy from adults who are acutely ill or injuredDebra Lynn McHale Wiegand
University of Maryland School of Nursing, North Wales, PA 19454, USA
J Fam Nurs 14:16-32. 2008..FMSs were constructed through typifying how these dimensions differed across families. Understanding FMSs can aid health care providers as families are assessed and interventions are planned...
- Family patterns of decision-making in pediatric clinical trialsJulia A Snethen
College of Nursing, University of Wisconsin Milwaukee, Milwaukee, Wisconsin 53211, USA
Res Nurs Health 29:223-32. 2006..These patterns of decision-making affect how parents and children communicate with health professionals and influence the effectiveness of health care providers interactions with the family related to the decision-making process...
- Consensus statements: the Family Management Style Framework and its use with families of children with cancerAudrey E Nelson
J Pediatr Oncol Nurs 23:36-7. 2006
- Distinguished contribution to family nursing research award (2007): the research team of Kathleen A. Knafl, Janet A. Deatrick, and Agatha GalloJanice M Bell
J Fam Nurs 14:151-6. 2008
- An alternative model for postdoctoral education of nurses engaged in research with potentially vulnerable populationsSusan Gennaro
New York University College of Nursing, New York, NY 10003, USA
Nurs Outlook 55:275-81. 2007..A program like the SNRI can be successful in widening the research pipeline, in imparting knowledge, and in fostering positive attitudes as well as in improving research skills...
- Home care nurses' descriptions of important agency attributesLinda Flynn
College of Nursing, Rutgers, State University of New Jersey, Newark, NJ, USA
J Nurs Scholarsh 35:385-90. 2003..To identify attributes of home care agencies described by nurses as important to their professional practice and job satisfaction...
- Top 10 tips for successful qualitative grantsmanshipKathleen A Knafl
Res Nurs Health 28:441-3. 2005
- Barriers and strategies for recruiting study participants in clinical settingsSusan Sullivan-Bolyai
University of Massachusetts, Worcester, MA 01655 0002, USA
West J Nurs Res 29:486-500. 2007..Each barrier is described, and specific strategies are suggested based on the empirical literature. In some instances, the coauthors' experiences are also shared...
- Mothers as caregivers for survivors of brain tumorsJanet Deatrick; Fiscal Year: 2009....