- Privacy and confidentiality in the publication of pedigrees: a survey of investigators and biomedical journalsJ R Botkin
Department of Pediatrics, University of Utah, Salt Lake City, USA
JAMA 279:1808-12. 1998..Two sets of authoritative guidelines have been published to protect the privacy and confidentiality of subjects, but the influence of these guidelines on publication practices for pedigrees is unknown...
- Protecting the privacy of family members in survey and pedigree researchJ Botkin
Primary Children s Medical Center, 100 N Medical Dr, Salt Lake City, UT 84113, USA
JAMA 285:207-11. 2001..The analysis suggests that strong protections for the rights and welfare of subjects and their family members can be incorporated into survey and pedigree research protocols without hindering projects with extensive consent requirements...