Pamela L Wolters

Summary

Affiliation: National Institutes of Health
Country: USA

Publications

  1. doi request reprint Patient-reported outcomes of pain and physical functioning in neurofibromatosis clinical trials
    Pamela L Wolters
    From the Pediatric Oncology Branch P L W, S M, A B, National Cancer Institute, National Institutes of Health, Bethesda, MD Department of Neurology and Cancer Center V L M, Massachusetts General Hospital, Boston University of Chicago Pritzker School of Medicine J H T, IL Department of Psychological Sciences S E S, University of Vermont, Burlington Departments of Neurology and Genetics A L B, Johns Hopkins University, Baltimore, MD Children s National Health System and The George Washington School of Medicine K W, Washington, DC Department of Speech Pathology and Audiology H L T, California State University, Sacramento Veteran s Administration Pittsburgh Healthcare System and University of Pittsburgh K L G, PA Department of Clinical Neurosciences C M H, Spectrum Health Medical Group and College of Human Medicine, Michigan State University, East Lansing Division of Human Genetics E S, Cincinnati Children s Hospital, OH Department of Public Health Education W N D, School of Health and Human Sciences, University of North Carolina at Greensboro and Advocure NF2 Inc B F, Los Angeles, CA
    Neurology 87:S4-S12. 2016
  2. pmc Neurodevelopment of children under 3 years of age with Smith-Magenis syndrome
    Pamela L Wolters
    Medical Illness Counseling Center, Chevy Chase, MD, USA
    Pediatr Neurol 41:250-8. 2009
  3. pmc A comparison of adherence assessment methods utilized in the United States: perspectives of researchers, HIV-infected children, and their caregivers
    Staci Martin
    National Cancer Institute, Center for Cancer Research, Bethesda, Maryland, USA
    AIDS Patient Care STDS 23:593-601. 2009
  4. doi request reprint Family functioning and coping styles in families of children with cancer and HIV disease
    Staci Martin
    National Cancer Institute, Bethesda, MD, USA
    Clin Pediatr (Phila) 51:58-64. 2012
  5. ncbi request reprint The Antiretroviral Regimen Complexity Index. A novel method of quantifying regimen complexity
    Staci Martin
    Center for Cancer Research, National Cancer Institute, National Institute of Allergy and Infectious Disease, National Institutes of Health, Bethesda, MD 20892 8200, USA
    J Acquir Immune Defic Syndr 45:535-44. 2007
  6. pmc Conclusions and future directions for the REiNS International Collaboration
    Brigitte C Widemann
    From the Pediatric Oncology Branch B C W, E D, P L W, National Cancer Institute, Bethesda, MD Department of Neurology, Neurosurgery, and Oncology J O B, Johns Hopkins, Baltimore, MD Division of Oncology, Department of Pediatrics M J F, The Children s Hospital of Pennsylvania, Philadelphia Plymouth University Peninsula Schools of Medicine and Dentistry C O H, Plymouth, United Kingdom The Jennifer and Daniel Gilbert Neurofibromatosis Institute K S W, Children s National Medical Center, Washington, DC and Neurology Department and Cancer Center S R P Massachusetts General Hospital, Boston, MA
    Neurology 81:S41-4. 2013
  7. pmc Patient-reported outcomes in neurofibromatosis and schwannomatosis clinical trials
    Pamela L Wolters
    From the Pediatric Oncology Branch P L W, S M, A B, National Cancer Institute Department of Neurology and Cancer Center V L M, Massachusetts General Hospital Veterans Administration Pittsburgh Healthcare System and University of Pittsburgh K L G Department of Clinical Neurosciences C M H, Spectrum Health Medical Group and College of Human Medicine, Michigan State University University of Chicago Pritzker School of Medicine J H T and Division of Human Genetics E K S, Cincinnati Children s Hospital
    Neurology 81:S6-14. 2013
  8. doi request reprint Pain interference in youth with neurofibromatosis type 1 and plexiform neurofibromas and relation to disease severity, social-emotional functioning, and quality of life
    Pamela L Wolters
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland
    Am J Med Genet A 167:2103-13. 2015
  9. doi request reprint Acceptance and commitment therapy in youth with neurofibromatosis type 1 (NF1) and chronic pain and their parents: A pilot study of feasibility and preliminary efficacy
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Montgomery County, Bethesda, Maryland
    Am J Med Genet A 170:1462-70. 2016
  10. pmc Stressful life events and their relationship to psychological and medical functioning in children and adolescents with HIV infection
    Deborah K Elliott-DeSorbo
    Neuropsychology Group, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA
    J Acquir Immune Defic Syndr 52:364-70. 2009

Detail Information

Publications26

  1. doi request reprint Patient-reported outcomes of pain and physical functioning in neurofibromatosis clinical trials
    Pamela L Wolters
    From the Pediatric Oncology Branch P L W, S M, A B, National Cancer Institute, National Institutes of Health, Bethesda, MD Department of Neurology and Cancer Center V L M, Massachusetts General Hospital, Boston University of Chicago Pritzker School of Medicine J H T, IL Department of Psychological Sciences S E S, University of Vermont, Burlington Departments of Neurology and Genetics A L B, Johns Hopkins University, Baltimore, MD Children s National Health System and The George Washington School of Medicine K W, Washington, DC Department of Speech Pathology and Audiology H L T, California State University, Sacramento Veteran s Administration Pittsburgh Healthcare System and University of Pittsburgh K L G, PA Department of Clinical Neurosciences C M H, Spectrum Health Medical Group and College of Human Medicine, Michigan State University, East Lansing Division of Human Genetics E S, Cincinnati Children s Hospital, OH Department of Public Health Education W N D, School of Health and Human Sciences, University of North Carolina at Greensboro and Advocure NF2 Inc B F, Los Angeles, CA
    Neurology 87:S4-S12. 2016
    ....
  2. pmc Neurodevelopment of children under 3 years of age with Smith-Magenis syndrome
    Pamela L Wolters
    Medical Illness Counseling Center, Chevy Chase, MD, USA
    Pediatr Neurol 41:250-8. 2009
    ..Combining age groups in studies may mask developmental and behavioral differences. Increased knowledge of these early neurodevelopmental characteristics should facilitate diagnosis and appropriate intervention...
  3. pmc A comparison of adherence assessment methods utilized in the United States: perspectives of researchers, HIV-infected children, and their caregivers
    Staci Martin
    National Cancer Institute, Center for Cancer Research, Bethesda, Maryland, USA
    AIDS Patient Care STDS 23:593-601. 2009
    ..Most participants reported positive perceptions of their research experience. A consensus among researchers is needed for defining and measuring adherence, and specific recommendations are offered for achieving this goal...
  4. doi request reprint Family functioning and coping styles in families of children with cancer and HIV disease
    Staci Martin
    National Cancer Institute, Bethesda, MD, USA
    Clin Pediatr (Phila) 51:58-64. 2012
    ..Researchers should avoid combining various illness groups indiscriminately. Likewise, clinicians should be sensitive to disease-specific factors when helping families learn to cope with illness-related stressors...
  5. ncbi request reprint The Antiretroviral Regimen Complexity Index. A novel method of quantifying regimen complexity
    Staci Martin
    Center for Cancer Research, National Cancer Institute, National Institute of Allergy and Infectious Disease, National Institutes of Health, Bethesda, MD 20892 8200, USA
    J Acquir Immune Defic Syndr 45:535-44. 2007
    ..To date, regimen complexity has not been examined in the literature using standardized procedures incorporating all important elements of antiretroviral (ARV) regimens...
  6. pmc Conclusions and future directions for the REiNS International Collaboration
    Brigitte C Widemann
    From the Pediatric Oncology Branch B C W, E D, P L W, National Cancer Institute, Bethesda, MD Department of Neurology, Neurosurgery, and Oncology J O B, Johns Hopkins, Baltimore, MD Division of Oncology, Department of Pediatrics M J F, The Children s Hospital of Pennsylvania, Philadelphia Plymouth University Peninsula Schools of Medicine and Dentistry C O H, Plymouth, United Kingdom The Jennifer and Daniel Gilbert Neurofibromatosis Institute K S W, Children s National Medical Center, Washington, DC and Neurology Department and Cancer Center S R P Massachusetts General Hospital, Boston, MA
    Neurology 81:S41-4. 2013
    ..The REiNS Collaboration welcomes anyone interested in providing his or her expertise toward this effort. ..
  7. pmc Patient-reported outcomes in neurofibromatosis and schwannomatosis clinical trials
    Pamela L Wolters
    From the Pediatric Oncology Branch P L W, S M, A B, National Cancer Institute Department of Neurology and Cancer Center V L M, Massachusetts General Hospital Veterans Administration Pittsburgh Healthcare System and University of Pittsburgh K L G Department of Clinical Neurosciences C M H, Spectrum Health Medical Group and College of Human Medicine, Michigan State University University of Chicago Pritzker School of Medicine J H T and Division of Human Genetics E K S, Cincinnati Children s Hospital
    Neurology 81:S6-14. 2013
    ....
  8. doi request reprint Pain interference in youth with neurofibromatosis type 1 and plexiform neurofibromas and relation to disease severity, social-emotional functioning, and quality of life
    Pamela L Wolters
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland
    Am J Med Genet A 167:2103-13. 2015
    ..Future research and treatment of pain in this population should utilize a biopsychosocial approach and involve multidisciplinary therapies including psychological interventions that target social-emotional functioning...
  9. doi request reprint Acceptance and commitment therapy in youth with neurofibromatosis type 1 (NF1) and chronic pain and their parents: A pilot study of feasibility and preliminary efficacy
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Montgomery County, Bethesda, Maryland
    Am J Med Genet A 170:1462-70. 2016
    ..2016 Wiley Periodicals, Inc. ..
  10. pmc Stressful life events and their relationship to psychological and medical functioning in children and adolescents with HIV infection
    Deborah K Elliott-DeSorbo
    Neuropsychology Group, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA
    J Acquir Immune Defic Syndr 52:364-70. 2009
    ..To assess the relationship between number and type of stressful life events (SLEs) and psychological and medical functioning in HIV-infected children...
  11. doi request reprint Neurocognitive outcomes in neurofibromatosis clinical trials: Recommendations for the domain of attention
    Karin S Walsh
    From the Children s National Health System K S W, K K H, The George Washington School of Medicine, Washington, DC Children s Hospital Colorado J J, University of Colorado School of Medicine, Aurora Pediatric Oncology Branch P L W, S M, National Cancer Institute, Bethesda, MD University of Wisconsin Milwaukee B P K T Clinical Research Directorate Clinical Monitoring Research Program M A T T, Leidos Biomedical Research, Inc, NCI at Frederick, MD California State University H L T, Sacramento Murdoch Children s Research Institute J M P, Victoria, Australia Rainbow Babies and Children s Hospital P d B, Cleveland, OH Roosevelt University C S, Chicago, IL Boston Children s Hospital L S G, N U, MA and University of Vermont S E S, Burlington
    Neurology 87:S21-30. 2016
    ..Future articles will focus on other cognitive domains, with the ultimate goal of achieving agreement for cognitive endpoints that can be used across NF clinical trials. ..
  12. doi request reprint Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Building 82, Room 107 9030 Old Georgetown Road, Bethesda, MD, 20892 8200, USA
    J Genet Couns 23:796-804. 2014
    ..ISGs for the NF1 population should include patients with NF1 (or parents of children with NF1) as well as a health professional, and both chat rooms and discussion boards likely would be well-received...
  13. pmc Phase 2 randomized, flexible crossover, double-blinded, placebo-controlled trial of the farnesyltransferase inhibitor tipifarnib in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas
    Brigitte C Widemann
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland B W, E D, A G, P W, S M, E F, F B Cancer Therapy Evaluation Program, Investigational Drug Branch, National Cancer Institute, Bethesda, Maryland J W Biostatistics and Data Management Section, National Cancer Institute, Bethesda, Maryland S S Diagnostic Radiology Department, National Institutes of Health, Bethesda, Maryland N P The Children s Hospital of Philadelphia, Philadelphia, Pennsylvania J B, E F, F B Ann and Robert H Lurie Children s Hospital, Chicago, Illinois S G Department of Genetics, University of Alabama at Birmingham, South Birmingham, Alabama B K Expert Image Analysis LC, Potomac, Maryland J S Dana Farber Children s Hospital Cancer Center, Boston, Massachusetts M K Cincinnati Children s Hospital, Cincinnati, Ohio J P Children s National Medical Center, Washington, DC A K US Army Medical Research and Material Command, Fort Detrick, Maryland W S Children s Hospital of Alabama, Birmingham, Alabama A R
    Neuro Oncol 16:707-18. 2014
    ..The activity of tipifarnib, which blocks RAS signaling by inhibiting its farnesylation, was tested in children and young adults with NF1 and progressive PNs...
  14. doi request reprint Development and validation of the English Pain Interference Index and Pain Interference Index-Parent report
    Staci Martin
    National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA
    Pain Med 16:367-73. 2015
    ..This study investigated the psychometric properties of the Pain Interference Index (PII), a six-item questionnaire originally developed in Swedish, in chronically ill youth...
  15. doi request reprint Phase II trial of pirfenidone in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas
    Brigitte C Widemann
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland
    Pediatr Blood Cancer 61:1598-602. 2014
    ..The primary objective of this open label, single arm phase II trial was to evaluate the activity of pirfenidone in children and young adults with inoperable PN...
  16. ncbi request reprint Patient, caregiver and regimen characteristics associated with adherence to highly active antiretroviral therapy among HIV-infected children and adolescents
    Staci Martin
    HIV and AIDS Malignancy Branch, Center for Cancer Research, National Cancer Institute, Bethesda, MD, USA
    Pediatr Infect Dis J 26:61-7. 2007
    ..We also examine the association of adherence to child and caregiver demographic characteristics and surrogate markers of HIV disease...
  17. ncbi request reprint Cognitive decline with immunologic and virologic stability in four children with human immunodeficiency virus disease
    Mary Anne Toledo Tamula
    HIV and AIDS Malignancy Branch, National Cancer Institute, National Institutes of Health, Bethesda, MD 20892 1868, USA
    Pediatrics 112:679-84. 2003
    ..Longitudinal cognitive assessments of children receiving HAART appear indicated to identify cognitive decline and to provide appropriate therapeutic intervention when manifestations of HIV-related CNS disease progression occur...
  18. pmc A phase 2 study of pegylated interferon α-2b (PEG-Intron(®)) in children with diffuse intrinsic pontine glioma
    Katherine Warren
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, MD 20892, USA
    Cancer 118:3607-13. 2012
    ..The primary objective was to compare 2-year survival with a historic cohort that received radiation therapy alone...
  19. pmc Experiences of families with a child, adolescent, or young adult with neurofibromatosis type 1 and plexiform neurofibroma evaluated for clinical trials participation at the National Cancer Institute
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA
    Contemp Clin Trials 32:10-5. 2011
    ..However, little is known about the experiences of families with children with NF1 participating in clinical trials...
  20. ncbi request reprint Cognitive functioning in school-aged children with vertically acquired HIV infection being treated with highly active antiretroviral therapy (HAART)
    Staci C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, 9030 Old Georgetown Road, Bethesda, MD 20814, USA
    Dev Neuropsychol 30:633-57. 2006
    ..Findings emphasize the importance of conducting neuropsychological assessments in this population, particularly for children with cortical atrophy and absolute CD4+ cell counts < or = 500...
  21. ncbi request reprint Adaptive and maladaptive behavior in children with Smith-Magenis Syndrome
    Staci C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, Bethesda, MD 20892 8200, USA
    J Autism Dev Disord 36:541-52. 2006
    ..Stereotypic and self-injurious behaviors were present in all children. Cognitive functioning was delayed and consistent with communication and daily living skills, while socialization scores were higher than IQ...
  22. pmc Achieving consensus for clinical trials: the REiNS International Collaboration
    Scott R Plotkin
    From the Neurology Department and Cancer Center S R P, Massachusetts General Hospital, Boston, MA Department of Neurology, Neurosurgery, and Oncology J O B, Johns Hopkins, Baltimore, MD Pediatric Oncology Branch E D, P L W, B C W, National Cancer Institute, Bethesda, MD Division of Oncology, Department of Pediatrics M J F, The Children s Hospital of Pennsylvania, Philadelphia Plymouth University Peninsula Schools of Medicine and Dentistry C O H, Plymouth, United Kingdom and The Jennifer and Daniel Gilbert Neurofibromatosis Institute K S W, Children s National Medical Center, Washington, DC
    Neurology 81:S1-5. 2013
    ..Ultimately, we plan to engage industry partners and national regulatory agencies in this process to facilitate the approval of drugs for patients with NF...
  23. pmc Neuropsychological testing and biomarkers in the management of brain metastases
    Andrew Baschnagel
    Radiation Oncology Branch, National Cancer Institute, National Institutes of Health, 9000 Rockville Pike, Building 10 CRC, Room B2 3561, Bethesda, Maryland, 20892, USA
    Radiat Oncol 3:26. 2008
    ....
  24. pmc Detection and characterization of neurotoxicity in cancer patients using proton MR spectroscopy
    Emilie A Steffen-Smith
    Pediatric Oncology Branch, National Cancer Institute, Center for Cancer Research, National Institutes of Health NIH, Bethesda, MD 20892, USA
    Childs Nerv Syst 24:807-13. 2008
    ....
  25. ncbi request reprint Very high-dose methotrexate (33.6 g/m(2)) as central nervous system preventive therapy for childhood acute lymphoblastic leukemia: results of National Cancer Institute/Children's Cancer Group trials CCG-191P, CCG-134P and CCG-144P
    Paul C Nathan
    Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA
    Leuk Lymphoma 47:2488-504. 2006
    ..VHD-MTX achieved similar survival to other CNS-directed therapies without the long-term impact on intelligence, but with substantial acute toxicities...
  26. pmc Randomized placebo-controlled study of lovastatin in children with neurofibromatosis type 1
    Jonathan M Payne
    From the Murdoch Children s Research Institute J M P, S J C H, K N N, Royal Children s Hospital Department of Paediatrics J M P, K N N, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne Children s Hospital Education Research Institute B B, Children s Hospital at Westmead Discipline of Paediatrics and Child Health B B, University of Sydney, Australia Department of Neurology N J U, C R C, Boston Children s Hospital, MA Department of Preventative Medicine A C, School of Public Health G C, Department of Psychology J D A, and Department of Genetics B K, University of Alabama at Birmingham Department of Neurology T R, S H O, Children s Hospital of Los Angeles, CA Center for Neuroscience and Behavioral Medicine K S W, G A G, R J P, M T A, Children s National Health System, Washington, DC Pediatric Oncology Branch Center for Cancer Research P L W, National Cancer Institute, Bethesda, MD Division of Neurology J T, S J H, University of Chicago Medicine Comer Children s Hospital, IL Human Genetics E S and Division of Neurology A W B, Cincinnati Children s Hospital Medical Center, University of Tsukuba
    Neurology 87:2575-2584. 2016
    ..To assess the efficacy of lovastatin on visuospatial learning and attention for treating cognitive and behavioral deficits in children with neurofibromatosis type 1 (NF1)...