Staci Martin

Summary

Affiliation: National Institutes of Health
Country: USA

Publications

  1. ncbi request reprint Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study
    S Martin
    Health Psychology and Neurobehavioral Research Program, 9030 Old Georgetown Road, Bethesda, MD, 20892 8200, USA
    J Genet Couns . 2016
  2. doi request reprint Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Building 82, Room 107 9030 Old Georgetown Road, Bethesda, MD, 20892 8200, USA
    J Genet Couns 23:796-804. 2014
  3. doi request reprint Neurobehavioral profiles in individuals with hyperimmunoglobulin E Syndrome (HIES) and brain white matter hyperintensities
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, MD, 20892, USA
    J Clin Immunol 33:1175-84. 2013
  4. pmc Social-emotional functioning of children and adolescents with neurofibromatosis type 1 and plexiform neurofibromas: relationships with cognitive, disease, and environmental variables
    Staci Martin
    National Cancer Institute, Bethesda, MD 20892 8200, USA
    J Pediatr Psychol 37:713-24. 2012
  5. doi request reprint Family functioning and coping styles in families of children with cancer and HIV disease
    Staci Martin
    National Cancer Institute, Bethesda, MD, USA
    Clin Pediatr (Phila) 51:58-64. 2012
  6. ncbi request reprint Coping styles among families of children with HIV infection
    S C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, Bethesda, MD 20892, USA
    AIDS Care 16:283-92. 2004
  7. pmc Experiences of families with a child, adolescent, or young adult with neurofibromatosis type 1 and plexiform neurofibroma evaluated for clinical trials participation at the National Cancer Institute
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA
    Contemp Clin Trials 32:10-5. 2011
  8. ncbi request reprint Patient, caregiver and regimen characteristics associated with adherence to highly active antiretroviral therapy among HIV-infected children and adolescents
    Staci Martin
    HIV and AIDS Malignancy Branch, Center for Cancer Research, National Cancer Institute, Bethesda, MD, USA
    Pediatr Infect Dis J 26:61-7. 2007
  9. pmc A comparison of adherence assessment methods utilized in the United States: perspectives of researchers, HIV-infected children, and their caregivers
    Staci Martin
    National Cancer Institute, Center for Cancer Research, Bethesda, Maryland, USA
    AIDS Patient Care STDS 23:593-601. 2009
  10. ncbi request reprint Adaptive and maladaptive behavior in children with Smith-Magenis Syndrome
    Staci C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, Bethesda, MD 20892 8200, USA
    J Autism Dev Disord 36:541-52. 2006

Collaborators

Detail Information

Publications24

  1. ncbi request reprint Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1: a Pilot Study
    S Martin
    Health Psychology and Neurobehavioral Research Program, 9030 Old Georgetown Road, Bethesda, MD, 20892 8200, USA
    J Genet Couns . 2016
    ..Having multiple weekly chat sessions held at various days and times may improve accessibility and participation. Clinicians are encouraged to help parents access online support resources...
  2. doi request reprint Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Building 82, Room 107 9030 Old Georgetown Road, Bethesda, MD, 20892 8200, USA
    J Genet Couns 23:796-804. 2014
    ..ISGs for the NF1 population should include patients with NF1 (or parents of children with NF1) as well as a health professional, and both chat rooms and discussion boards likely would be well-received...
  3. doi request reprint Neurobehavioral profiles in individuals with hyperimmunoglobulin E Syndrome (HIES) and brain white matter hyperintensities
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, MD, 20892, USA
    J Clin Immunol 33:1175-84. 2013
    ..This cross-sectional study aimed to describe the cognitive and emotional functioning and quality of life of people with HIES. We also sought to explore the relationship between cognitive functioning and WMHs in this population...
  4. pmc Social-emotional functioning of children and adolescents with neurofibromatosis type 1 and plexiform neurofibromas: relationships with cognitive, disease, and environmental variables
    Staci Martin
    National Cancer Institute, Bethesda, MD 20892 8200, USA
    J Pediatr Psychol 37:713-24. 2012
    ..This descriptive cross-sectional study aimed to determine how cognitive, disease, and environmental variables relate to social-emotional functioning in youth with NF1 and plexiform neurofibromas...
  5. doi request reprint Family functioning and coping styles in families of children with cancer and HIV disease
    Staci Martin
    National Cancer Institute, Bethesda, MD, USA
    Clin Pediatr (Phila) 51:58-64. 2012
    ..Researchers should avoid combining various illness groups indiscriminately. Likewise, clinicians should be sensitive to disease-specific factors when helping families learn to cope with illness-related stressors...
  6. ncbi request reprint Coping styles among families of children with HIV infection
    S C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, Bethesda, MD 20892, USA
    AIDS Care 16:283-92. 2004
    ..Findings suggest the need to target families least likely to utilize resources, and to teach them to effectively seek out and benefit from social and community supports...
  7. pmc Experiences of families with a child, adolescent, or young adult with neurofibromatosis type 1 and plexiform neurofibroma evaluated for clinical trials participation at the National Cancer Institute
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, MD 20892, USA
    Contemp Clin Trials 32:10-5. 2011
    ..However, little is known about the experiences of families with children with NF1 participating in clinical trials...
  8. ncbi request reprint Patient, caregiver and regimen characteristics associated with adherence to highly active antiretroviral therapy among HIV-infected children and adolescents
    Staci Martin
    HIV and AIDS Malignancy Branch, Center for Cancer Research, National Cancer Institute, Bethesda, MD, USA
    Pediatr Infect Dis J 26:61-7. 2007
    ..We also examine the association of adherence to child and caregiver demographic characteristics and surrogate markers of HIV disease...
  9. pmc A comparison of adherence assessment methods utilized in the United States: perspectives of researchers, HIV-infected children, and their caregivers
    Staci Martin
    National Cancer Institute, Center for Cancer Research, Bethesda, Maryland, USA
    AIDS Patient Care STDS 23:593-601. 2009
    ..Most participants reported positive perceptions of their research experience. A consensus among researchers is needed for defining and measuring adherence, and specific recommendations are offered for achieving this goal...
  10. ncbi request reprint Adaptive and maladaptive behavior in children with Smith-Magenis Syndrome
    Staci C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, Bethesda, MD 20892 8200, USA
    J Autism Dev Disord 36:541-52. 2006
    ..Stereotypic and self-injurious behaviors were present in all children. Cognitive functioning was delayed and consistent with communication and daily living skills, while socialization scores were higher than IQ...
  11. ncbi request reprint The Antiretroviral Regimen Complexity Index. A novel method of quantifying regimen complexity
    Staci Martin
    Center for Cancer Research, National Cancer Institute, National Institute of Allergy and Infectious Disease, National Institutes of Health, Bethesda, MD 20892 8200, USA
    J Acquir Immune Defic Syndr 45:535-44. 2007
    ..To date, regimen complexity has not been examined in the literature using standardized procedures incorporating all important elements of antiretroviral (ARV) regimens...
  12. ncbi request reprint Cognitive functioning in school-aged children with vertically acquired HIV infection being treated with highly active antiretroviral therapy (HAART)
    Staci C Martin
    HIV and AIDS Malignancy Branch, National Cancer Institute, 9030 Old Georgetown Road, Bethesda, MD 20814, USA
    Dev Neuropsychol 30:633-57. 2006
    ..Findings emphasize the importance of conducting neuropsychological assessments in this population, particularly for children with cortical atrophy and absolute CD4+ cell counts < or = 500...
  13. doi request reprint Pain interference in youth with neurofibromatosis type 1 and plexiform neurofibromas and relation to disease severity, social-emotional functioning, and quality of life
    Pamela L Wolters
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland
    Am J Med Genet A 167:2103-13. 2015
    ..Future research and treatment of pain in this population should utilize a biopsychosocial approach and involve multidisciplinary therapies including psychological interventions that target social-emotional functioning...
  14. doi request reprint Acceptance and commitment therapy in youth with neurofibromatosis type 1 (NF1) and chronic pain and their parents: A pilot study of feasibility and preliminary efficacy
    Staci Martin
    Pediatric Oncology Branch, National Cancer Institute, Montgomery County, Bethesda, Maryland
    Am J Med Genet A 170:1462-70. 2016
    ..2016 Wiley Periodicals, Inc. ..
  15. doi request reprint Activity of Selumetinib in Neurofibromatosis Type 1-Related Plexiform Neurofibromas
    Eva Dombi
    From the Center for Cancer Research, Pediatric Oncology Branch, Bethesda E D, A Baldwin, L J M, P Whitcomb, S M, R E, P Wolters, J T, J G, A J S, A G, B C W and the Cancer Therapy Evaluation Program, Shady Grove A L D, National Cancer Institute, and the National Heart, Lung, and Blood Institute A Brofferio, Bethesda, National Institutes of Health, and the Food and Drug Administration, Silver Spring L J M, R E all in Maryland the Division of Oncology, Children s Hospital of Philadelphia, and the Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia M J F, J B B Children s National Health System, Washington, DC A K and Cincinnati Children s Hospital, Cincinnati B W, L E A S, T A R, National Institute of Agricultural Biotechnology
    N Engl J Med 375:2550-2560. 2016
    ..Funded by the National Institutes of Health and others; ClinicalTrials.gov number, NCT01362803 .)...
  16. doi request reprint Development and validation of the English Pain Interference Index and Pain Interference Index-Parent report
    Staci Martin
    National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA
    Pain Med 16:367-73. 2015
    ..This study investigated the psychometric properties of the Pain Interference Index (PII), a six-item questionnaire originally developed in Swedish, in chronically ill youth...
  17. doi request reprint Phase II trial of pirfenidone in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas
    Brigitte C Widemann
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland
    Pediatr Blood Cancer 61:1598-602. 2014
    ..The primary objective of this open label, single arm phase II trial was to evaluate the activity of pirfenidone in children and young adults with inoperable PN...
  18. pmc Phase 2 randomized, flexible crossover, double-blinded, placebo-controlled trial of the farnesyltransferase inhibitor tipifarnib in children and young adults with neurofibromatosis type 1 and progressive plexiform neurofibromas
    Brigitte C Widemann
    Pediatric Oncology Branch, National Cancer Institute, Bethesda, Maryland B W, E D, A G, P W, S M, E F, F B Cancer Therapy Evaluation Program, Investigational Drug Branch, National Cancer Institute, Bethesda, Maryland J W Biostatistics and Data Management Section, National Cancer Institute, Bethesda, Maryland S S Diagnostic Radiology Department, National Institutes of Health, Bethesda, Maryland N P The Children s Hospital of Philadelphia, Philadelphia, Pennsylvania J B, E F, F B Ann and Robert H Lurie Children s Hospital, Chicago, Illinois S G Department of Genetics, University of Alabama at Birmingham, South Birmingham, Alabama B K Expert Image Analysis LC, Potomac, Maryland J S Dana Farber Children s Hospital Cancer Center, Boston, Massachusetts M K Cincinnati Children s Hospital, Cincinnati, Ohio J P Children s National Medical Center, Washington, DC A K US Army Medical Research and Material Command, Fort Detrick, Maryland W S Children s Hospital of Alabama, Birmingham, Alabama A R
    Neuro Oncol 16:707-18. 2014
    ..The activity of tipifarnib, which blocks RAS signaling by inhibiting its farnesylation, was tested in children and young adults with NF1 and progressive PNs...
  19. pmc Stressful life events and their relationship to psychological and medical functioning in children and adolescents with HIV infection
    Deborah K Elliott-DeSorbo
    Neuropsychology Group, Center for Cancer Research, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA
    J Acquir Immune Defic Syndr 52:364-70. 2009
    ..To assess the relationship between number and type of stressful life events (SLEs) and psychological and medical functioning in HIV-infected children...
  20. doi request reprint Patient-reported outcomes of pain and physical functioning in neurofibromatosis clinical trials
    Pamela L Wolters
    From the Pediatric Oncology Branch P L W, S M, A B, National Cancer Institute, National Institutes of Health, Bethesda, MD Department of Neurology and Cancer Center V L M, Massachusetts General Hospital, Boston University of Chicago Pritzker School of Medicine J H T, IL Department of Psychological Sciences S E S, University of Vermont, Burlington Departments of Neurology and Genetics A L B, Johns Hopkins University, Baltimore, MD Children s National Health System and The George Washington School of Medicine K W, Washington, DC Department of Speech Pathology and Audiology H L T, California State University, Sacramento Veteran s Administration Pittsburgh Healthcare System and University of Pittsburgh K L G, PA Department of Clinical Neurosciences C M H, Spectrum Health Medical Group and College of Human Medicine, Michigan State University, East Lansing Division of Human Genetics E S, Cincinnati Children s Hospital, OH Department of Public Health Education W N D, School of Health and Human Sciences, University of North Carolina at Greensboro and Advocure NF2 Inc B F, Los Angeles, CA
    Neurology 87:S4-S12. 2016
    ....
  21. doi request reprint Phase I trial and pharmacokinetic study of sorafenib in children with neurofibromatosis type I and plexiform neurofibromas
    Aerang Kim
    Pediatric Oncology Branch, NCI, CCR, Bethesda, Maryland, USA
    Pediatr Blood Cancer 60:396-401. 2013
    ..Monitoring long-term toxicities such as effects on growth and obtaining additional pharmacokinetic data were of importance due to the young age and long duration of therapy seen in previous phase I trials in children with NF1...
  22. doi request reprint Neurocognitive outcomes in neurofibromatosis clinical trials: Recommendations for the domain of attention
    Karin S Walsh
    From the Children s National Health System K S W, K K H, The George Washington School of Medicine, Washington, DC Children s Hospital Colorado J J, University of Colorado School of Medicine, Aurora Pediatric Oncology Branch P L W, S M, National Cancer Institute, Bethesda, MD University of Wisconsin Milwaukee B P K T Clinical Research Directorate Clinical Monitoring Research Program M A T T, Leidos Biomedical Research, Inc, NCI at Frederick, MD California State University H L T, Sacramento Murdoch Children s Research Institute J M P, Victoria, Australia Rainbow Babies and Children s Hospital P d B, Cleveland, OH Roosevelt University C S, Chicago, IL Boston Children s Hospital L S G, N U, MA and University of Vermont S E S, Burlington
    Neurology 87:S21-30. 2016
    ..Future articles will focus on other cognitive domains, with the ultimate goal of achieving agreement for cognitive endpoints that can be used across NF clinical trials. ..
  23. pmc Functional outcome measures for NF1-associated optic pathway glioma clinical trials
    Michael J Fisher
    From the Division of Oncology M J F, Neuroradiology Section, Department of Radiology L T B, and Neuro Ophthalmology Service G T L, The Children s Hospital of Philadelphia Department of Pediatrics M J F and Departments of Neurology and Ophthalmology G T L, The Perelman School of Medicine at the University of Pennsylvania, Philadelphia Departments of Neurology, Ophthalmology, and Pediatrics R A A, Gilbert Family Neurofibromatosis Institute, Children s National Medical Center, Washington, DC Departments of Pediatrics and Neurology J C A, NYU Cancer Institute, NYU Langone Medical Center, New York, NY Children s Hospital at Westmead Clinical School S L A H, The University of Sydney, Australia Department of Neurology S L A H, The Children s Hospital at Westmead, Sydney, Australia University of Pennsylvania School of Medicine L T B, Philadelphia Department of Neurology R E F, Guy s and St Thomas NHS Foundation Trust and Institute of Psychiatry, King s College London Department of Neurology D H G, Washington University School of Medicine, St Louis, MO Department of Pediatrics R L, Feinberg School of Medicine, Northwestern University Ann and Robert H Lurie Children s Hospital of Chicago R L Pediatric Oncology Branch S M, National Cancer Institute, National Institutes of Health, Bethesda, MD and Department of Neurology N J U, Boston Children s Hospital, Harvard Medical School, Boston, MA
    Neurology 81:S15-24. 2013
    ....
  24. pmc Virologic response using directly observed therapy in adolescents with HIV: an adherence tool
    Julia Bilodeau Purdy
    National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA
    J Assoc Nurses AIDS Care 19:158-65. 2008
    ..A period of clinic-monitored DOT may allow diagnosis of nonadherence, discussion of medication barriers, and avoidance of unnecessary medication changes...