Sara Chandros Hull

Summary

Affiliation: National Institutes of Health
Country: USA

Publications

  1. pmc Patients' attitudes about the use of placebo treatments: telephone survey
    Sara Chandros Hull
    Office of the Clinical Director, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    BMJ 347:f3757. 2013
  2. pmc Patients' views on identifiability of samples and informed consent for genetic research
    Sara Chandros Hull
    National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Am J Bioeth 8:62-70. 2008
  3. pmc Pediatric biobanks: approaching informed consent for continuing research after children grow up
    Aaron J Goldenberg
    Department of Bioethics, Case Western Reserve University, Cleveland, OH, USA
    J Pediatr 155:578-83. 2009
  4. ncbi request reprint The limits of disclosure: what research subjects want to know about investigator financial interests
    Christine Grady
    Section on Human Subjects Research, Department ofClinical Bioethics, Clinical Center, NIH, USA
    J Law Med Ethics 34:592-9, 481. 2006
  5. pmc Disclosure of incidental findings from next-generation sequencing in pediatric genomic research
    Ruqayyah Abdul-Karim
    Department of Bioethics, Clinical Center, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Pediatrics 131:564-71. 2013
  6. doi request reprint Recontacting participants for expanded uses of existing samples and data: a case study
    Stephanie C Chen
    Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med . 2017
  7. doi request reprint Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing
    Michelle J Bayefsky
    Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD, USA
    Prenat Diagn . 2016
  8. pmc Towards a more representative morphology: clinical and ethical considerations for including diverse populations in diagnostic genetic atlases
    Maya Koretzky
    Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 18:1069-1074. 2016
  9. pmc Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent
    Justin Lowenthal
    Department of Bioethics, Clinical Center
    Stem Cells Transl Med 1:409-21. 2012
  10. pmc Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins
    Julie Chevalier Sapp
    Genetic Diseases Research Branch, National Human Genome Research Institute, 10 Center Drive, Bethesda, MD 20892, USA
    Prenat Diagn 30:77-82. 2010

Collaborators

Detail Information

Publications12

  1. pmc Patients' attitudes about the use of placebo treatments: telephone survey
    Sara Chandros Hull
    Office of the Clinical Director, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    BMJ 347:f3757. 2013
    ..To examine the attitudes of US patients about the use of placebo treatments in medical care...
  2. pmc Patients' views on identifiability of samples and informed consent for genetic research
    Sara Chandros Hull
    National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Am J Bioeth 8:62-70. 2008
    ..Data from this study should cause policy-makers to question whether this distinction is useful in relation to research with previously collected clinically derived samples...
  3. pmc Pediatric biobanks: approaching informed consent for continuing research after children grow up
    Aaron J Goldenberg
    Department of Bioethics, Case Western Reserve University, Cleveland, OH, USA
    J Pediatr 155:578-83. 2009
    ..The objective of this study was to examine adults' attitudes about continued research with their pediatric samples/data, particularly when they could not be located to provide consent...
  4. ncbi request reprint The limits of disclosure: what research subjects want to know about investigator financial interests
    Christine Grady
    Section on Human Subjects Research, Department ofClinical Bioethics, Clinical Center, NIH, USA
    J Law Med Ethics 34:592-9, 481. 2006
    ..Although disclosure of investigator financial interest information to research participants is often recommended, its usefulness is limited, especially when participation is desired because of illness...
  5. pmc Disclosure of incidental findings from next-generation sequencing in pediatric genomic research
    Ruqayyah Abdul-Karim
    Department of Bioethics, Clinical Center, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Pediatrics 131:564-71. 2013
    ..We hope this will be a useful source of guidance for investigators, institutional review boards, and bioethicists that anticipates the complicated ethical issues raised by advances in genomic technology...
  6. doi request reprint Recontacting participants for expanded uses of existing samples and data: a case study
    Stephanie C Chen
    Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med . 2017
    ..We explore whether a waiver of consent with notification and the option to withdraw (WNOW) is a viable alternative to written informed consent for secondary uses of samples and data...
  7. doi request reprint Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing
    Michelle J Bayefsky
    Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD, USA
    Prenat Diagn . 2016
    ..The goal of this project was to explore OB/GYNs' views on the ethical issues surrounding PWGS and their preparedness for counseling patients on its use...
  8. pmc Towards a more representative morphology: clinical and ethical considerations for including diverse populations in diagnostic genetic atlases
    Maya Koretzky
    Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 18:1069-1074. 2016
    ..Genet Med 18 11, 1069-1074...
  9. pmc Specimen collection for induced pluripotent stem cell research: harmonizing the approach to informed consent
    Justin Lowenthal
    Department of Bioethics, Clinical Center
    Stem Cells Transl Med 1:409-21. 2012
    ..Our approach balances the goals of iPSC and regenerative medicine researchers with the interests of individual research participants...
  10. pmc Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins
    Julie Chevalier Sapp
    Genetic Diseases Research Branch, National Human Genome Research Institute, 10 Center Drive, Bethesda, MD 20892, USA
    Prenat Diagn 30:77-82. 2010
    ..This study explores ambivalence toward undergoing amniocentesis among pregnant women with overall positive attitudes. Its novelty lies in the characterization of the type and origins of the ambivalence...
  11. ncbi request reprint Carrier screening panels for Ashkenazi Jews: is more better?
    Jennifer R Leib
    Neurogenetics Branch, National Institute of Neurological Diseases and Stroke, National Institutes of Health, Bethesda, Maryland 20892 1156, USA
    Genet Med 7:185-90. 2005
    ....
  12. ncbi request reprint Genetic research involving human biological materials: a need to tailor current consent forms
    Sara Chandros Hull
    Social and Behavioral Research Branch, National Human Genome Research Institute, NIH, Bethesda, MD, USA
    IRB 26:1-7. 2004