Barbara B Biesecker

Summary

Affiliation: National Institutes of Health
Country: USA

Publications

  1. pmc The Greatest Priority for Genetic Counseling: Effectively Meeting Our Clients' Needs 2014 NSGC Natalie Weissberger Paul National Achievement Award
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, 31 Center Drive, Room B1B36, Bethesda, MD, 20817 2073, USA
    J Genet Couns 25:621-4. 2016
  2. ncbi request reprint Theories for Psychotherapeutic Genetic Counseling: Fuzzy Trace Theory and Cognitive Behavior Theory
    Barbara Biesecker
    National Human Genome Research Institute, National Institutes of Health, NHGRI NIH, 31 Center Drive, Rm B1 B36, Bethesda, MD, 20897 2073, USA
    J Genet Couns . 2016
  3. ncbi request reprint Response to A Different Vantage Point Commentary: Psychotherapeutic Genetic Counseling, Is it?
    Barbara Biesecker
    National Human Genome Research Institute, National Institutes of Health, Maryland, Bethesda, MD, 20897 2073, USA
    J Genet Couns . 2016
  4. pmc Adaptation to bipolar disorder and perceived risk to children: a survey of parents with bipolar disorder
    Holly L Peay
    Social and Behavioral Research Branch, National Human Genome Research Institute NHGRI, Building 31 Room B1B36 31 Center Drive MSC 2073, Bethesda, MD 20892, USA
    BMC Psychiatry 13:327. 2013
  5. pmc The impact of genetic testing for Crohn's disease, risk magnitude and graphical format on motivation to stop smoking: an experimental analogue study
    A J Wright
    Health Psychology, Department of Psychology, King s College London, London, UK
    Clin Genet 73:306-14. 2008
  6. pmc Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk
    Barbara B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, USA Health, Behavior and Society, Johns Hopkins Bloomberg, School of Public Health, Baltimore, USA Electronic address
    Patient Educ Couns 93:248-54. 2013
  7. pmc Enhancing informed choice to undergo health screening: a systematic review
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute NIH, Bethesda, MD, USA
    Am J Health Behav 37:351-9. 2013
  8. pmc Genomic sequencing for psychiatric disorders: promise and challenge
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD 20892, USA
    Int J Neuropsychopharmacol 16:1667-72. 2013
  9. pmc Adaptation to living with a genetic condition or risk: a mini-review
    B B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 2073, USA
    Clin Genet 74:401-7. 2008
  10. pmc Exploration of transitional life events in individuals with Friedreich ataxia: implications for genetic counseling
    V Brook White
    Clinical Genetics, Carolinas Medical Center, Charlotte, NC 28232 2861, USA
    Behav Brain Funct 6:65. 2010

Collaborators

Detail Information

Publications28

  1. pmc The Greatest Priority for Genetic Counseling: Effectively Meeting Our Clients' Needs 2014 NSGC Natalie Weissberger Paul National Achievement Award
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, 31 Center Drive, Room B1B36, Bethesda, MD, 20817 2073, USA
    J Genet Couns 25:621-4. 2016
    ..1987). Natalie demonstrated her devotion to children with special needs through her work at the March of Dimes. As such I believe she would concur with the focus of my remarks on the partners in our work: our clients. ..
  2. ncbi request reprint Theories for Psychotherapeutic Genetic Counseling: Fuzzy Trace Theory and Cognitive Behavior Theory
    Barbara Biesecker
    National Human Genome Research Institute, National Institutes of Health, NHGRI NIH, 31 Center Drive, Rm B1 B36, Bethesda, MD, 20897 2073, USA
    J Genet Couns . 2016
    ..We aim to demonstrate how these two specific theories can inform psychotherapeutic genetic counseling practice, and use them as examples of how to take a psychological theory and effectively apply it to genetic counseling...
  3. ncbi request reprint Response to A Different Vantage Point Commentary: Psychotherapeutic Genetic Counseling, Is it?
    Barbara Biesecker
    National Human Genome Research Institute, National Institutes of Health, Maryland, Bethesda, MD, 20897 2073, USA
    J Genet Couns . 2016
    ..We argue that it is a a form of psychoterapy that aims to help clients manage a health threat that affects their psychological wellbeing, paralleling the goals of psychotherapy...
  4. pmc Adaptation to bipolar disorder and perceived risk to children: a survey of parents with bipolar disorder
    Holly L Peay
    Social and Behavioral Research Branch, National Human Genome Research Institute NHGRI, Building 31 Room B1B36 31 Center Drive MSC 2073, Bethesda, MD 20892, USA
    BMC Psychiatry 13:327. 2013
    ....
  5. pmc The impact of genetic testing for Crohn's disease, risk magnitude and graphical format on motivation to stop smoking: an experimental analogue study
    A J Wright
    Health Psychology, Department of Psychology, King s College London, London, UK
    Clin Genet 73:306-14. 2008
    ..Using genetic tests to estimate risks of common complex conditions may not motivate behaviour change beyond the impact of the numerical risk estimates derived from such tests...
  6. pmc Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk
    Barbara B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, USA Health, Behavior and Society, Johns Hopkins Bloomberg, School of Public Health, Baltimore, USA Electronic address
    Patient Educ Couns 93:248-54. 2013
    ..We introduce The Psychological Adaptation Scale (PAS) for assessing adaptation to a chronic condition or risk and present validity data from six studies of genetic conditions...
  7. pmc Enhancing informed choice to undergo health screening: a systematic review
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute NIH, Bethesda, MD, USA
    Am J Health Behav 37:351-9. 2013
    ..To assess the effectiveness of health screening interventions aimed at enhancing informed choice...
  8. pmc Genomic sequencing for psychiatric disorders: promise and challenge
    Barbara Bowles Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD 20892, USA
    Int J Neuropsychopharmacol 16:1667-72. 2013
    ..Research into participant/patient perceptions, preferences and outcomes will identify areas of caution and prepare psychiatrists for eventual integration into clinical care. ..
  9. pmc Adaptation to living with a genetic condition or risk: a mini-review
    B B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892 2073, USA
    Clin Genet 74:401-7. 2008
    ..Further research should result in evidence-based interventions to facilitate client adaptation that can be used effectively by genetic providers within the confines of their clinical work...
  10. pmc Exploration of transitional life events in individuals with Friedreich ataxia: implications for genetic counseling
    V Brook White
    Clinical Genetics, Carolinas Medical Center, Charlotte, NC 28232 2861, USA
    Behav Brain Funct 6:65. 2010
    ..This study captures transitional life events brought about or altered by Friedreich ataxia, a progressive chronic illness leading to disability, and the impact of these events on an affected individual's life course...
  11. pmc Participant use and communication of findings from exome sequencing: a mixed-methods study
    Katie L Lewis
    Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 18:577-83. 2016
    ..This study investigated how genome sequencing results affect health behaviors, affect, and communication...
  12. pmc Perceived ambiguity as a barrier to intentions to learn genome sequencing results
    Jennifer M Taber
    National Cancer Institute, 9609 Medical Center Drive, Bethesda, MD, 20892 9761, USA
    J Behav Med 38:715-26. 2015
    ..Results are consistent with the phenomenon of "ambiguity aversion" and may influence whether people learn and communicate genomic information. ..
  13. pmc Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study
    Flavia M Facio
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    Eur J Hum Genet 21:261-5. 2013
    ..It behooves investigators to facilitate participants' desire to learn a range of information from genomic sequencing while promoting realistic expectations for its clinical and personal utility...
  14. pmc Engagement and communication among participants in the ClinSeq Genomic Sequencing Study
    Gillian W Hooker
    Genetics Services Research Unit, Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med . 2016
    ..In this study, we aimed to describe internal engagement and its correlates among a ClinSeq cohort of adults consented to genome sequencing and receipt of results...
  15. pmc Family functioning mediates adaptation in caregivers of individuals with Rett syndrome
    Amanda E Lamb
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, 31 Center Dr Rm B1B36, Bethesda, MD, 20814, USA Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, USA
    Patient Educ Couns 99:1873-1879. 2016
    ..The objective of this study was to investigate factors related to family functioning and adaptation in caregivers of individuals with Rett syndrome (RS)...
  16. doi request reprint PUGS: A novel scale to assess perceptions of uncertainties in genome sequencing
    Barbara B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, 20892
    Clin Genet . 2016
    ..As such, the PUGS is a promising scale for evaluating perceived uncertainties in genome sequencing, which can inform interventions to help patients form realistic expectations of these uncertainties...
  17. pmc Characterization of Courtesy Stigma Perceived by Parents of Overweight Children with Bardet-Biedl Syndrome
    Barbara Hamlington
    Rocky Mountain Cancer Centers, US Oncology, Denver, Colorado, United States of America Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, Maryland, United States of America
    PLoS ONE 10:e0140705. 2015
    ..We set out to characterize stigma and courtesy stigma experiences surrounding obesity among children with Bardet-Biedl syndrome (BBS), a multisystem genetic disorder, and their parents...
  18. pmc Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health Technology
    Katie L Lewis
    Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, Maryland, United States of America
    PLoS ONE 10:e0132690. 2015
    ..These characteristics may distinguish those who are most likely to pursue genome sequencing and be indicative of their psychological resources to manage returned results. ..
  19. pmc How do research participants perceive "uncertainty" in genome sequencing?
    Barbara B Biesecker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 16:977-80. 2014
    ....
  20. pmc Research participants' attitudes towards the confidentiality of genomic sequence information
    Leila Jamal
    1 Department of Neurogenetics, Kennedy Krieger Institute, Baltimore, MD, USA 2 Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA
    Eur J Hum Genet 22:964-8. 2014
    ..These findings suggest that views about confidentiality and data sharing are highly nuanced and are related to the perceived benefits of joining a research study. ..
  21. pmc Preferences for results delivery from exome sequencing/genome sequencing
    Martha F Wright
    Genetic Disease and Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Genet Med 16:442-7. 2014
    ..The aim of this study was to explore the implications of sequencing information and stated preferences for return of results among research participants...
  22. pmc An approach to pediatric exome and genome sequencing
    Leslie G Biesecker
    aMedical Genomics and Metabolic Genetics Branch bSocial and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA
    Curr Opin Pediatr 26:639-45. 2014
    ..Protocols are critically needed to identify proper patients for testing, select a test and laboratory, engage parents in shared decision-making, and for the return of results...
  23. pmc Teaching genomic counseling: preparing the genetic counseling workforce for the genomic era
    Gillian W Hooker
    Social and Behavioral Research Branch, Genetic Counseling Training Program, The Johns Hopkins School of Public Health, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA
    J Genet Couns 23:445-51. 2014
    ..In this commentary, we explore reasons why genomic sequencing warrants particular consideration and put forward strategies for training program curricula and continuing education programs to meet this need. ..
  24. pmc Genetic literacy and patient perceptions of IBD testing utility and disease control: a randomized vignette study of genetic testing
    Gillian W Hooker
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD Department of Health, Behavior and Society and the Center for Genomic Literacy and Communication, The Johns Hopkins Bloomberg School of Public Health, Baltimore, MD and Harvey M and Lyn P Meyerhoff Inflammatory Bowel Disease Center, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD
    Inflamm Bowel Dis 20:901-8. 2014
    ....
  25. pmc Motivators for participation in a whole-genome sequencing study: implications for translational genomics research
    Flavia M Facio
    National Human Genome Research Institute, National Institutes of Health, 10 Center Drive, Bethesda, MD 20892, USA
    Eur J Hum Genet 19:1213-7. 2011
    ....
  26. pmc Expectations and experiences of investigators and parents involved in a clinical trial for Duchenne/Becker muscular dystrophy
    Holly L Peay
    aSocial and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD, USA
    Clin Trials 11:77-85. 2014
    ..Clinical investigators are also susceptible to harboring high expectations. Little is known about parental motivations and expectations for clinical trials for rare pediatric disorders...
  27. pmc Examination of standardized patient performance: accuracy and consistency of six standardized patients over time
    Lori A H Erby
    The Johns Hopkins Bloomberg School of Public Health, Health, Behavior and Society, Baltimore, MD 21205, USA
    Patient Educ Couns 85:194-200. 2011
    ..To explore the accuracy and consistency of standardized patient (SP) performance in the context of routine genetic counseling, focusing on elements beyond scripted case items including general communication style and affective demeanor...
  28. pmc Quality of life in rare genetic conditions: a systematic review of the literature
    Julie S Cohen
    Kennedy Krieger Institute, Baltimore, MD 21205, USA
    Am J Med Genet A 152:1136-56. 2010
    ..The field of research on QoL in rare genetic conditions will be advanced by uniting around a clear conceptualization of QoL and using more rigorous methodology with comprehensive measures of global QoL...