Karen Sepucha

Summary

Affiliation: Massachusetts General Hospital
Country: USA

Publications

  1. doi request reprint Developing instruments to measure the quality of decisions: early results for a set of symptom-driven decisions
    Karen R Sepucha
    Health Decision Research Unit, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA
    Patient Educ Couns 73:504-10. 2008
  2. doi request reprint How does feeling informed relate to being informed? The DECISIONS survey
    Karen R Sepucha
    School of Medicine, Harvard University, Cambridge, MA, USA
    Med Decis Making 30:77S-84S. 2010
  3. pmc "It's Valid and Reliable" Is Not Enough: Critical Appraisal of Reporting of Measures in Trials Evaluating Patient Decision Aids
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital and Harvard Medical School, Boston, MA KS University of Colorado School of Medicine, Aurora, CO DDM The Ohio State University, Columbus, OH CEW Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, VA MR Cochrane Institute of Primary Care and Public Health, Cardiff University, Cardiff, UK NJ University of Ottawa and Ottawa Hospital Research Institute, Ottawa, Canada DS Department of Primary Care Medicine, University of Malaya, Kuala Lumpur, Malaya CN Informed Medical Decisions Foundation, Boston, MA CL Institute of Health and Society, Newcastle University, Newcastle, UK JL, RT University of Toronto and The Hospital for Sick Children, Toronto, ON, Canada CMB
    Med Decis Making 34:560-6. 2014
  4. pmc Measuring decision quality: psychometric evaluation of a new instrument for breast cancer chemotherapy
    Clara N Lee
    Department of Surgery, Lineberger Comprehensive Cancer Center, Sheps Center for Health Services Research, University of North Carolina, UNC Plastic Surgery CB 7195, 27599 7195 Chapel Hill, NC, USA
    BMC Med Inform Decis Mak 14:73. 2014
  5. pmc Development and evaluation of a new survey instrument to measure the quality of colorectal cancer screening decisions
    Karen R Sepucha
    Division of General Internal Medicine, Health Decision Sciences Center, Massachusetts General Hospital, 50 Staniford Street, 8th Floor, Boston, MA 02114, USA
    BMC Med Inform Decis Mak 14:72. 2014
  6. doi request reprint Factors associated with the quality of patients' surgical decisions for treatment of hip and knee osteoarthritis
    Karen Sepucha
    Division of General Internal Medicine, Massachusetts General Hospital, Harvard Medical School, Boston, MA Electronic address
    J Am Coll Surg 217:694-701. 2013
  7. doi request reprint Psychometric evaluation of a decision quality instrument for treatment of lumbar herniated disc
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA
    Spine (Phila Pa 1976) 37:1609-16. 2012
  8. pmc Measuring decision quality: psychometric evaluation of a new instrument for breast cancer surgery
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital, and Harvard Medical School, Boston, MA 02114, USA
    BMC Med Inform Decis Mak 12:51. 2012
  9. pmc Decision quality instrument for treatment of hip and knee osteoarthritis: a psychometric evaluation
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital MGH, Harvard Medical School HMS, Boston, MA, USA
    BMC Musculoskelet Disord 12:149. 2011
  10. ncbi request reprint Consultation planning to help breast cancer patients prepare for medical consultations: effect on communication and satisfaction for patients and physicians
    Karen R Sepucha
    Harvard Medical School, Boston, MA, USA
    J Clin Oncol 20:2695-700. 2002

Detail Information

Publications29

  1. doi request reprint Developing instruments to measure the quality of decisions: early results for a set of symptom-driven decisions
    Karen R Sepucha
    Health Decision Research Unit, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA
    Patient Educ Couns 73:504-10. 2008
    ....
  2. doi request reprint How does feeling informed relate to being informed? The DECISIONS survey
    Karen R Sepucha
    School of Medicine, Harvard University, Cambridge, MA, USA
    Med Decis Making 30:77S-84S. 2010
    ..The objective was to examine whether patients' perceptions about how informed they were about common medical decisions are related to their ability to answer various knowledge questions...
  3. pmc "It's Valid and Reliable" Is Not Enough: Critical Appraisal of Reporting of Measures in Trials Evaluating Patient Decision Aids
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital and Harvard Medical School, Boston, MA KS University of Colorado School of Medicine, Aurora, CO DDM The Ohio State University, Columbus, OH CEW Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville, VA MR Cochrane Institute of Primary Care and Public Health, Cardiff University, Cardiff, UK NJ University of Ottawa and Ottawa Hospital Research Institute, Ottawa, Canada DS Department of Primary Care Medicine, University of Malaya, Kuala Lumpur, Malaya CN Informed Medical Decisions Foundation, Boston, MA CL Institute of Health and Society, Newcastle University, Newcastle, UK JL, RT University of Toronto and The Hospital for Sick Children, Toronto, ON, Canada CMB
    Med Decis Making 34:560-6. 2014
    ..This review systematically appraises the quality of reporting of measures used in trials to evaluate the effectiveness of patient decision aids (PtDAs) and presents recommendations for minimum reporting standards...
  4. pmc Measuring decision quality: psychometric evaluation of a new instrument for breast cancer chemotherapy
    Clara N Lee
    Department of Surgery, Lineberger Comprehensive Cancer Center, Sheps Center for Health Services Research, University of North Carolina, UNC Plastic Surgery CB 7195, 27599 7195 Chapel Hill, NC, USA
    BMC Med Inform Decis Mak 14:73. 2014
    ..We developed a decision quality instrument for chemotherapy for early stage breast cancer and sought to evaluate its performance...
  5. pmc Development and evaluation of a new survey instrument to measure the quality of colorectal cancer screening decisions
    Karen R Sepucha
    Division of General Internal Medicine, Health Decision Sciences Center, Massachusetts General Hospital, 50 Staniford Street, 8th Floor, Boston, MA 02114, USA
    BMC Med Inform Decis Mak 14:72. 2014
    ..Guidelines for colorectal cancer screening recommend that patients be informed about options and be able to select preferred method of screening; however, there are no existing measures available to assess whether this happens...
  6. doi request reprint Factors associated with the quality of patients' surgical decisions for treatment of hip and knee osteoarthritis
    Karen Sepucha
    Division of General Internal Medicine, Massachusetts General Hospital, Harvard Medical School, Boston, MA Electronic address
    J Am Coll Surg 217:694-701. 2013
    ..Shared decision making requires informing patients and ensuring that treatment decisions reflect their goals. It is not clear to what extent this happens for patients considering total joint replacement (TJR) for hip or knee osteoarthritis...
  7. doi request reprint Psychometric evaluation of a decision quality instrument for treatment of lumbar herniated disc
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA
    Spine (Phila Pa 1976) 37:1609-16. 2012
    ..Retrospective and prospective patient surveys and a physician survey using a sample from American Medical Association master file...
  8. pmc Measuring decision quality: psychometric evaluation of a new instrument for breast cancer surgery
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital, and Harvard Medical School, Boston, MA 02114, USA
    BMC Med Inform Decis Mak 12:51. 2012
    ..The purpose of this paper is to examine the acceptability, feasibility, reliability and validity of a new decision quality instrument that assesses the extent to which patients are informed and receive treatments that match their goals...
  9. pmc Decision quality instrument for treatment of hip and knee osteoarthritis: a psychometric evaluation
    Karen R Sepucha
    General Medicine Division, Massachusetts General Hospital MGH, Harvard Medical School HMS, Boston, MA, USA
    BMC Musculoskelet Disord 12:149. 2011
    ..The aim of this study was to evaluate the psychometric properties and clinical sensibility of a patient self report instrument, to measure the quality of decisions about total joint replacement for knee or hip osteoarthritis...
  10. ncbi request reprint Consultation planning to help breast cancer patients prepare for medical consultations: effect on communication and satisfaction for patients and physicians
    Karen R Sepucha
    Harvard Medical School, Boston, MA, USA
    J Clin Oncol 20:2695-700. 2002
    ....
  11. doi request reprint Is there a role for decision aids in advanced breast cancer?
    Karen R Sepucha
    Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA
    Med Decis Making 29:475-82. 2009
    ..A diagnosis of metastatic breast cancer (BC) forces patients and providers to make difficult treatment decisions...
  12. ncbi request reprint An approach to measuring the quality of breast cancer decisions
    Karen Sepucha
    Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA
    Patient Educ Couns 65:261-9. 2007
    ....
  13. ncbi request reprint Improving the quality of decision making in breast cancer: consultation planning template and consultation recording template
    Karen R Sepucha
    Harvard Medical School, Boston, MA, USA
    Oncol Nurs Forum 30:99-106. 2003
    ..To describe two templates that can be used to improve the quality of breast cancer treatment decisions...
  14. ncbi request reprint Extending decision support: preparation and implementation
    Karen R Sepucha
    Health Decision Research Unit, Massachusetts General Hospital, Boston, MA 02114, USA
    Patient Educ Couns 50:269-71. 2003
    ..First is avoiding the tendency to move into providing information about options and outcomes before adequate preparation. The second is the tendency to neglect to provide adequate implementation support...
  15. ncbi request reprint Policy support for patient-centered care: the need for measurable improvements in decision quality
    Karen R Sepucha
    Health Decision Research Unit, Massachusetts General Hospital, Boston, USA
    Health Aff (Millwood) . 2004
    ..Policies that support the development and routine use of measures of decision quality will provide opportunities to measurably improve the quality of decisions, thereby leading to more patient-centered and efficient health care...
  16. ncbi request reprint Doing the right thing: systems support for decision quality in cancer care
    Karen Sepucha
    General Medicine Division, Health Decision Research Unit, Massachusetts General Hospital, Harvard Medical School Boston, MA 02114, USA
    Ann Behav Med 32:172-8. 2006
    ..There is considerable evidence of problems with the quality of cancer care. Wide variation in rates of interventions suggests that cancer care decisions may not reflect the preferences of informed patients...
  17. pmc Is there shared decision making when the provider makes a recommendation?
    Marissa Frongillo
    Department of General Medicine, Massachusetts General Hospital, Boston, MA 02114, USA
    Patient Educ Couns 90:69-73. 2013
    ..To compare the amount of shared decision making in breast cancer surgery interactions when providers do and do not make a treatment recommendation...
  18. doi request reprint How to define and measure concordance between patients' preferences and medical treatments: A systematic review of approaches and recommendations for standardization
    Karen Sepucha
    Health Decision Research Unit, Massachusetts General Hospital MGH, Harvard Medical School HMS, 50 Staniford Street, Suite 936, Boston, MA 02114, USA
    Patient Educ Couns 78:12-23. 2010
    ..The purpose is to systematically review the methods used to calculate the association between patients' preferences and treatment choices and to present a set of recommendations for definition and measurement of this concept...
  19. pmc What does it take to have sustained use of decision aids? A programme evaluation for the Breast Cancer Initiative
    Sandra Feibelmann
    Health Decision Research Unit, Massachusetts General Hospital MGH, Boston, MA 02114, USA
    Health Expect 14:85-95. 2011
    ..The Breast Cancer Initiative (BCI) was started in 2002 to disseminate breast cancer decision aids (PtDAs) to providers...
  20. doi request reprint Doctor-patient communication about advance directives in metastatic breast cancer
    Elissa M Ozanne
    Institute for Technology Assessment, Massachusetts General Hospital, Boston, USA
    J Palliat Med 12:547-53. 2009
    ..This study examined whether or not patients with metastatic breast cancer had advance directives, and if so, with whom they discussed written plans for end-of-life decisions...
  21. pmc Development of instruments to measure the quality of breast cancer treatment decisions
    Clara N Lee
    Division of Plastic and Reconstructive Surgery, University of North Carolina, School of Medicine, Chapel Hill, NC 27599 7195, USA
    Health Expect 13:258-72. 2010
    ..Reliable and valid measures of patients' knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality...
  22. pmc Implementing breast cancer decision aids in community sites: barriers and resources
    Kerry A Silvia
    Massachusetts General Hospital, Boston, MA 02114, USA
    Health Expect 11:46-53. 2008
    ..To assess the feasibility of implementing four patient decision aids (PtDAs) for early stage breast cancer treatment decisions into routine clinical care in community settings...
  23. doi request reprint Sensitivity to input variability of the Adjuvant! Online breast cancer prognostic model
    Elissa M Ozanne
    Institute for Technology Assessment and Health Decision Research Unit, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA
    J Clin Oncol 27:214-9. 2009
    ..Because comorbidity is strongly and independently associated with survival, this study tested the hypothesis that Adjuvant! predictions would be sensitive to comorbidity inputs...
  24. doi request reprint A perspective on the patient's role in treatment decisions
    Karen Sepucha
    Massachusetts General Hospital, MA, USA
    Med Care Res Rev 66:53S-74S. 2009
    ..More attention to measurement and policy-level interventions will be required to increase the use of proven tools and to achieve significant improvements in the quality of treatment decisions...
  25. doi request reprint Measuring the quality of surgical decisions for Latina breast cancer patients
    Karen Sepucha
    Health Decision Sciences Center, Department of General Medicine, Massachusetts General Hospital, Boston, MA, USA
    Health Expect 18:2389-400. 2015
    ..There is little in the existing literature that examines a comprehensive measure of decision quality for Latina breast cancer patients...
  26. doi request reprint Decision aid reduces misperceptions about hormone therapy: a randomized controlled trial
    Sorapop Kiatpongsan
    From the 1Department of Obstetrics and Gynecology, Faculty of Medicine, Chulalongkorn University, Bangkok, Thailand 2Harvard Interfaculty Initiative in Health Policy, Cambridge, MA 3Massachusetts General Hospital, Boston, MA and 4Harvard Medical School, Boston, MA
    Menopause 21:33-8. 2014
    ..This study aims to evaluate the role of a decision aid intervention in knowledge of menopausal symptom management...
  27. pmc Decision aids in routine practice: lessons from the breast cancer initiative
    Kerry A Silvia
    Health Decision Research Unit, Massachusetts General Hospital, Boston, MA 02114, USA
    Health Expect 9:255-64. 2006
    ..Many decision aids have been developed to help patients make treatment and screening decisions; however, little is known about implementing them into routine clinical practice...
  28. ncbi request reprint Toward the 'tipping point': decision aids and informed patient choice
    Annette M O'Connor
    School of Nursing and Department of Epidemiology and Community Medicine, University of Ottawa
    Health Aff (Millwood) 26:716-25. 2007
    ..This paper discusses progress in implementing decision aids and the policy prospects for reaching a "tipping point" in the adoption of "informed patient choice" as a standard of practice...
  29. pmc A systematic review of information in decision aids
    Deb Feldman-Stewart
    Division of Cancer Care and Epidemiology, Cancer Research Institute, Queen s University, Kingston, Canada
    Health Expect 10:46-61. 2007
    ..We completed a systematic review of information reported as included in decision aids (DAs) for adult patients, to determine if it is complete, balanced and accurate...