Jennifer W Mack

Summary

Affiliation: Harvard University
Country: USA

Publications

  1. doi request reprint Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts
    Cancer . 2016
  2. ncbi request reprint Decisional Regret Among Parents of Children With Cancer
    Jennifer W Mack
    Jennifer W Mack and Angel M Cronin, Dana Farber Cancer Institute Jennifer W Mack, Boston Children s Hospital, Boston, MA and Tammy I Kang, Children s Hospital of Philadelphia, Philadelphia, PA
    J Clin Oncol . 2016
  3. pmc Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California
    Jennifer W Mack
    Dana Farber Cancer Institute, 450 Brookline Ave, Boston, MA 02215, USA
    J Clin Oncol 31:2569-79. 2013
  4. pmc Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study
    Jennifer W Mack
    Dana Farber Cancer Institute, Boston, MA 02215, USA
    J Clin Oncol 30:4387-95. 2012
  5. pmc Racial disparities in the outcomes of communication on medical care received near death
    Jennifer W Mack
    Department of Pediatric Oncology and Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    Arch Intern Med 170:1533-40. 2010
  6. pmc End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences
    Jennifer W Mack
    Dana Farber Cancer Institute, Department of Pediatric Oncology, 44 Binney St 454, Boston, MA 02115, USA
    J Clin Oncol 28:1203-8. 2010
  7. doi request reprint Peace of mind and sense of purpose as core existential issues among parents of children with cancer
    Jennifer W Mack
    Department of Medicine, Children s Hospital, Boston, Massachusetts, USA
    Arch Pediatr Adolesc Med 163:519-24. 2009
  8. pmc Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    Cancer 115:3302-11. 2009
  9. pmc Parents' views of cancer-directed therapy for children with no realistic chance for cure
    Jennifer W Mack
    Center for Outcomes and Policy Research and Department of Pediatric Oncology, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
    J Clin Oncol 26:4759-64. 2008
  10. pmc Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA
    Cancer 112:2509-17. 2008

Detail Information

Publications39

  1. doi request reprint Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts
    Cancer . 2016
    ..Little is known about experiences in pediatrics and more serious illness; therefore, we examined difficult relationships between parents and physicians of children with cancer...
  2. ncbi request reprint Decisional Regret Among Parents of Children With Cancer
    Jennifer W Mack
    Jennifer W Mack and Angel M Cronin, Dana Farber Cancer Institute Jennifer W Mack, Boston Children s Hospital, Boston, MA and Tammy I Kang, Children s Hospital of Philadelphia, Philadelphia, PA
    J Clin Oncol . 2016
    ..We sought to evaluate the extent to which parents feel satisfied with, or regretful of, decisions made for their child's cancer treatment and to identify factors associated with heightened regret...
  3. pmc Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California
    Jennifer W Mack
    Dana Farber Cancer Institute, 450 Brookline Ave, Boston, MA 02215, USA
    J Clin Oncol 31:2569-79. 2013
    ..Medicare patients with advanced cancer have low rates of hospice use. We sought to evaluate hospice use among patients in Medicaid, which insures younger and indigent patients, relative to those in Medicare...
  4. pmc Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study
    Jennifer W Mack
    Dana Farber Cancer Institute, Boston, MA 02215, USA
    J Clin Oncol 30:4387-95. 2012
    ..We sought to evaluate the extent to which EOL discussion characteristics, such as timing, involved providers, and location, are associated with the aggressiveness of care received near death...
  5. pmc Racial disparities in the outcomes of communication on medical care received near death
    Jennifer W Mack
    Department of Pediatric Oncology and Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    Arch Intern Med 170:1533-40. 2010
    ..This study aimed to evaluate whether differences in patient-physician communication contribute to disparities in EOL care between black patients and white patients...
  6. pmc End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences
    Jennifer W Mack
    Dana Farber Cancer Institute, Department of Pediatric Oncology, 44 Binney St 454, Boston, MA 02115, USA
    J Clin Oncol 28:1203-8. 2010
    ..Physicians have an ethical obligation to honor patients' values for care, including at the end of life (EOL). We sought to evaluate factors that help patients to receive care consistent with their preferences...
  7. doi request reprint Peace of mind and sense of purpose as core existential issues among parents of children with cancer
    Jennifer W Mack
    Department of Medicine, Children s Hospital, Boston, Massachusetts, USA
    Arch Pediatr Adolesc Med 163:519-24. 2009
    ..To evaluate issues experienced by parents of children with cancer and factors related to parents' ability to find peace of mind...
  8. pmc Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    Cancer 115:3302-11. 2009
    ..In this study, the authors sought to develop and validate a measure of therapeutic alliance between patients with advanced cancer and their physicians and to evaluate the effects of therapeutic alliance on EOL experiences and care...
  9. pmc Parents' views of cancer-directed therapy for children with no realistic chance for cure
    Jennifer W Mack
    Center for Outcomes and Policy Research and Department of Pediatric Oncology, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
    J Clin Oncol 26:4759-64. 2008
    ..We assessed parents' experiences with treatment for their children with cancer and no realistic chance of cure...
  10. pmc Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA
    Cancer 112:2509-17. 2008
    ..The role of emotional acceptance of a terminal illness in end-of-life (EOL) care is not known. The authors developed a measure of peaceful acceptance at the EOL, and evaluated the role of peaceful acceptance in EOL decision-making and care...
  11. ncbi request reprint Hope and prognostic disclosure
    Jennifer W Mack
    Center for Outcomes and Policy Research, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
    J Clin Oncol 25:5636-42. 2007
    ..Physicians sometimes selectively convey prognostic information to support patients' hopes. However, the relationship between prognostic disclosure and hope is not known...
  12. doi request reprint Parents' roles in decision making for children with cancer in the first year of cancer treatment
    Jennifer W Mack
    Center for Outcomes and Policy Research, Dana Farber Cancer Institute, 44 Binney St, Boston, MA 02115, USA
    J Clin Oncol 29:2085-90. 2011
    ..To evaluate the extent to which parents of children with cancer are involved in decision making in the ways they prefer during the first year of treatment...
  13. ncbi request reprint Quality of health care for children: role of health and chronic illness in inpatient care experiences
    Jennifer W Mack
    Dana Farber Cancer Institute, Boston, MA 02115, USA
    Arch Pediatr Adolesc Med 161:828-34. 2007
    ..To assess how parent reports about the inpatient care of their children vary according to the health status of children with and without chronic conditions...
  14. ncbi request reprint Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction
    Jennifer W Mack
    Department of Pediatric Oncology, and the Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Clin Oncol 25:1357-62. 2007
    ..We assessed understanding of likelihood of cure and functional outcome among parents of children with cancer and sought to identify factors that place parents at risk for overly optimistic beliefs about prognosis...
  15. ncbi request reprint Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information
    Jennifer W Mack
    Departments of Pediatric Oncology, Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Clin Oncol 24:5265-70. 2006
    ..We aimed to determine parent preferences for prognostic information about their children with cancer and the results of receiving such information...
  16. pmc Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment
    Alexi A Wright
    Department of Medical Oncology and Center for Psycho Oncology and Palliative Care Research, Dana Farber Cancer Institute, 550 Shields Warren, 44 Binney St, Boston, MA 02115, USA
    JAMA 300:1665-73. 2008
    ..Talking about death can be difficult. Without evidence that end-of-life discussions improve patient outcomes, physicians must balance their desire to honor patient autonomy against a concern of inflicting psychological harm...
  17. ncbi request reprint Parent and physician perspectives on quality of care at the end of life in children with cancer
    Jennifer W Mack
    Department of Pediatric Oncology, Center for Outcomes and Policy Research, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Clin Oncol 23:9155-61. 2005
    ..To ascertain parents' and physicians' assessments of quality of end-of-life care for children with cancer and to determine factors associated with high-quality care as perceived by parents and physicians...
  18. pmc End-of-life care discussions among patients with advanced cancer: a cohort study
    Jennifer W Mack
    Dana Farber Cancer Institute, Children s Hospital, Harvard Medical School, Boston, Massachusetts, USA
    Ann Intern Med 156:204-10. 2012
    ..National guidelines recommend that physicians discuss end-of-life (EOL) care planning with patients with cancer whose life expectancy is less than 1 year...
  19. pmc Patients' expectations about effects of chemotherapy for advanced cancer
    Jane C Weeks
    Department of Medical Oncology, Dana Farber Cancer Institute, Boston, MA 02215, USA
    N Engl J Med 367:1616-25. 2012
    ..Chemotherapy for metastatic lung or colorectal cancer can prolong life by weeks or months and may provide palliation, but it is not curative...
  20. pmc Intensity of Medical Interventions between Diagnosis and Death in Patients with Advanced Lung and Colorectal Cancer: A CanCORS Analysis
    Gabriel A Brooks
    1 Dana Farber Cancer Institute, Boston, Massachusetts
    J Palliat Med 19:42-50. 2016
    ..Medical interventions are an important component of the illness experience in advanced cancer...
  21. pmc High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program
    Jennifer W Mack
    Department of Pediatric Oncology The Division of Population Sciences Center for Outcomes and Policy Research, Dana Farber Cancer Institute Division of Pediatric Hematology Oncology, Children s Hospital, Boston, MA New York State Department of Health, State Cancer Registry New York State Department of Health, Office of Quality and Patient Safety, Albany, NY Medical Oncology, Dana Farber Cancer Institute, Boston, MA
    Med Care 53:1018-26. 2015
    ..Little is known about the care that adolescent and young adult (AYA) cancer patients receive at the end of life (EOL)...
  22. pmc Influence of patients' preferences and treatment site on cancer patients' end-of-life care
    Alexi A Wright
    Department of Medical Oncology, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    Cancer 116:4656-63. 2010
    ..The authors examined whether patients' desire for life-extending therapy was associated with their EOL care...
  23. ncbi request reprint Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis
    Jennifer W Mack
    Departments of Pediatric Oncology and the Center for Outcomes and Policy Research, Dana Farber Cancer Institute and the Department of Medicine, Children s Hospital, Boston, Massachusetts 02115, USA
    Curr Opin Pediatr 18:10-4. 2006
    ..Pediatric palliative care, with its emphasis on symptom management and quality of life, is an important aspect of care of children with life-threatening illnesses. We review recent publications with implications for care of these children...
  24. doi request reprint Communicating about prognosis: ethical responsibilities of pediatricians and parents
    Jennifer W Mack
    Department of Pediatric Oncology and the Center for Population Sciences, Dana Farber Cancer Institute, Boston, Massachusetts
    Pediatrics 133:S24-30. 2014
    ..In this article, we describe the ethical issues involved in disclosure of prognostic information to parents and children with life-threatening illness and offer practical guidance for these conversations. ..
  25. ncbi request reprint The Day One Talk
    Jennifer W Mack
    Pediatric Oncology, Dana Farber Cancer Institute and Children s Hospital, 44 Binney Street, Boston, MA, USA
    J Clin Oncol 22:563-6. 2004
  26. ncbi request reprint Can end of life care for the pediatric patient suffering with escalating and intractable symptoms be improved?
    Kathleen E Houlahan
    Hematology Oncology Stem Cell Transplant Program, Children s Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA
    J Pediatr Oncol Nurs 23:45-51. 2006
    ..The EOL Rapid Response Model of Care outlines a process of care and provides recommendations and templated physician orders for rapid titration of opioids...
  27. pmc Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age
    Jennifer W Mack
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, MA, USA
    Psychooncology 25:1085-91. 2016
    ..Our aim is to understand experiences with treatment decision-making among young adults with cancer...
  28. pmc The role of families in decisions regarding cancer treatments
    Gabriela S Hobbs
    Department of Medical Oncology, Harvard Medical School, Massachusetts General Hospital, Boston, Massachusetts
    Cancer 121:1079-87. 2015
    ..To the authors' knowledge, little is known concerning the extent and predictors of the involvement of a patient's family in decisions regarding cancer treatments...
  29. pmc Physicians' propensity to discuss prognosis is associated with patients' awareness of prognosis for metastatic cancers
    Pang Hsiang Liu
    1 Department of Health Care Policy, Harvard Medical School, Boston, Massachusetts
    J Palliat Med 17:673-82. 2014
    ..Prognosis discussion is an essential component of informed decision-making. However, many terminally ill patients have a limited awareness of their prognosis and the causes are unclear...
  30. ncbi request reprint Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexia
    Gina Santucci
    Pediatric Advanced Care Team, The Children s Hospital of Philadelphia, 3400 Civic Center Boulevard, 4th Floor Wood Building, Philadelphia, PA 19104, USA
    Pediatr Clin North Am 54:673-89, x. 2007
    ..Aggressive management of these symptoms is essential to improving the quality of life for these children...
  31. doi request reprint "Don't Try to Cover the Sky with Your Hands": Parents' Experiences with Prognosis Communication About Their Children with Advanced Cancer
    Justin A Nyborn
    1 Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts
    J Palliat Med 19:626-31. 2016
    ..Physicians worry that disclosure of prognostic information can be distressing and deprive families of hope. Retrospective studies have shown that prognostic disclosure does not abrogate hope, but prospective data are lacking...
  32. doi request reprint Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling
    Angela M Feraco
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts
    Pediatr Blood Cancer 63:966-72. 2016
    ..This review summarizes evidence for existing methods to enhance communication skills and calls for revitalizing communication skills training within pediatric oncology...
  33. doi request reprint Parent perceptions of the quality of information received about a child's cancer
    Erica Kaye
    Department of Medicine, Boston Children s Hospital, Boston, Mass
    Pediatr Blood Cancer 60:1896-901. 2013
    ..Parents' perceptions of the quality of information communicated by their child's oncologist about the child's cancer are not well understood...
  34. pmc Research participation experiences of parents of children with cancer who were asked about their child's prognosis
    Maura E Olcese
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts, USA
    J Palliat Med 15:269-73. 2012
    ..Without clear data about the risks and benefits of participating in such studies, however, review board members must use personal judgment to assess emotional harm...
  35. ncbi request reprint Mucoepidermoid carcinoma of the parotid gland in children: A 10-year experience
    Reza Rahbar
    Department of Otolaryngology, Children s Hospital, Harvard Medical School, Boston, MA 02115, USA
    Arch Otolaryngol Head Neck Surg 132:375-80. 2006
    ..To determine the presentation, pathologic features, treatment outcome, and prognosis of mucoepidermoid carcinoma of the parotid gland in children...
  36. pmc Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer
    Katie A Greenzang
    Dana Farber Boston Children s Cancer and Blood Disorders Center, Boston, Massachusetts
    Cancer 122:2587-94. 2016
    ..Parents of children with cancer desire information regarding the late effects of treatment. In the current study, the authors assessed parents' preparedness for late effects at least 5 years after their child's diagnosis...
  37. pmc Patient beliefs that chemotherapy may be curative and care received at the end of life among patients with metastatic lung and colorectal cancer
    Jennifer W Mack
    Division of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts
    Cancer 121:1891-7. 2015
    ..This study assessed whether patients with advanced cancer who believed that chemotherapy might offer a cure were more likely to receive chemotherapy in the last month of life and less likely to enroll in hospice care before death...
  38. doi request reprint Parental hope for children with advanced cancer
    Junne Kamihara
    The Department of Pediatric Oncology and the Center for Population Sciences, Dana Farber Cancer Institute, Boston, Massachusetts
    Pediatrics 135:868-74. 2015
    ....
  39. doi request reprint Evaluating the quality of supportive oncology using patient-reported data
    Sydney M Dy
    Johns Hopkins Bloomberg School of Public Health, Baltimore, MD University of California, Los Angeles Veterans Health Administration of Greater Los Angeles, Los Angeles, CA and Dana Farber Cancer Institute, Boston, MA
    J Oncol Pract 10:e223-30. 2014
    ..We evaluated applying patient-reported data from the Cancer Care Outcomes Research and Surveillance Consortium national study to quality indicators addressing supportive oncology domains...