Ellen A Lipstein

Summary

Affiliation: Cincinnati Children's Hospital Medical Center
Country: USA

Publications

  1. pmc Parents' information needs and influential factors when making decisions about TNF-α inhibitors
    Ellen A Lipstein
    Division of Adolescent and Transition Medicine, Cincinnati Children s Hospital Medical Center, 3333 Burnet Ave, Cincinnati, OH, 45229, USA
    Pediatr Rheumatol Online J 14:53. 2016
  2. pmc Evolution of Pediatric Chronic Disease Treatment Decisions: A Qualitative, Longitudinal View of Parents' Decision-Making Process
    Ellen A Lipstein
    Center for Innovation in Chronic Disease Care, Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL, MTB James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL, MTB University of Cincinnati College of Medicine, Cincinnati, OH EAL, MTB
    Med Decis Making 35:703-13. 2015
  3. pmc Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders
    Ellen A Lipstein
    Division of Adolescent Medicine, Center for Innovation in Chronic Disease Care, Cincinnati Children s Hospital Medical Center, 3333 Burnet Ave, MLC 7027, Cincinnati, OH, 45229, USA
    Matern Child Health J 20:665-73. 2016
  4. pmc An emerging field of research: challenges in pediatric decision making
    Ellen A Lipstein
    Division of Adolescent and Transition Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL, WBB Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH EAL, WBB Division of General and Community Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH WBB Center for Pediatric Clinical Effectiveness and Policy Laboratory, The Children s Hospital of Philadelphia, Philadelphia, PA AGF Perelman School of Medicine at the University of Pennsylvania, Pennsylvania AGF, VAM Children s Health Services Research, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN KSH University of Saskatchewan College of Nursing, Saskatoon, Canada JK Department of Anesthesiology and Critical Care Medicine, The Children s Hospital of Philadelphia, Philadelphia, PA VAM Child Health Evaluation and Research Unit, Division of General Pediatrics, University of Michigan Medical School, Ann Arbor, MI LAP Department of Health Management and Policy, University of Michigan School of Public Health Ann Arbor, MI LAP Program of Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada WJU Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Northwestern University Medical School
    Med Decis Making 35:403-8. 2015
  5. pmc Real life clinic visits do not match the ideals of shared decision making
    Ellen A Lipstein
    Division of Adolescent Medicine, Center for Innovation in Chronic Disease Care, Cincinnati Children s Hospital Medical Center, Cincinnati, OH James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center, Cincinnati, OH University of Cincinnati College of Medicine, Cincinnati, OH Electronic address
    J Pediatr 165:178-183.e1. 2014
  6. pmc Understanding treatment decision making in juvenile idiopathic arthritis: a qualitative assessment
    Ellen A Lipstein
    Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA
    Pediatr Rheumatol Online J 11:34. 2013
  7. doi request reprint Parents' information needs in tumor necrosis factor-α inhibitor treatment decisions
    Ellen A Lipstein
    Cincinnati Children s Hospital Medical Center, Cincinnati, OH 45229, USA
    J Pediatr Gastroenterol Nutr 56:244-50. 2013
  8. doi request reprint "I'm the one taking it": adolescent participation in chronic disease treatment decisions
    Ellen A Lipstein
    Center for Innovation in Chronic Disease Care, Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH, USA
    J Adolesc Health 53:253-9. 2013
  9. pmc What is known about parents' treatment decisions? A narrative review of pediatric decision making
    Ellen A Lipstein
    Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH 45229, USA
    Med Decis Making 32:246-58. 2012
  10. doi request reprint Systematic evidence review of newborn screening and treatment of severe combined immunodeficiency
    Ellen A Lipstein
    Center for Child and Adolescent Health Policy, Mass General Hospital for Children, Boston, Massachusetts, USA
    Pediatrics 125:e1226-35. 2010

Detail Information

Publications19

  1. pmc Parents' information needs and influential factors when making decisions about TNF-α inhibitors
    Ellen A Lipstein
    Division of Adolescent and Transition Medicine, Cincinnati Children s Hospital Medical Center, 3333 Burnet Ave, Cincinnati, OH, 45229, USA
    Pediatr Rheumatol Online J 14:53. 2016
    ..The objective of this study was to describe parents' information needs and the influences on their decision making about treatment with TNF-α inhibitors...
  2. pmc Evolution of Pediatric Chronic Disease Treatment Decisions: A Qualitative, Longitudinal View of Parents' Decision-Making Process
    Ellen A Lipstein
    Center for Innovation in Chronic Disease Care, Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL, MTB James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL, MTB University of Cincinnati College of Medicine, Cincinnati, OH EAL, MTB
    Med Decis Making 35:703-13. 2015
    ..However, little is known about how their decision making evolves over time. The objective was to understand parents' processes for treatment decision making in pediatric chronic conditions...
  3. pmc Shared Decision Making in the Care of Children with Developmental and Behavioral Disorders
    Ellen A Lipstein
    Division of Adolescent Medicine, Center for Innovation in Chronic Disease Care, Cincinnati Children s Hospital Medical Center, 3333 Burnet Ave, MLC 7027, Cincinnati, OH, 45229, USA
    Matern Child Health J 20:665-73. 2016
    ..The objectives of this study were (1) to compare parent report of SDM between a physical and a behavioral health condition and; (2) to compare parent report of SDM between two different behavioral health conditions...
  4. pmc An emerging field of research: challenges in pediatric decision making
    Ellen A Lipstein
    Division of Adolescent and Transition Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center, Cincinnati, OH EAL, WBB Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH EAL, WBB Division of General and Community Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH WBB Center for Pediatric Clinical Effectiveness and Policy Laboratory, The Children s Hospital of Philadelphia, Philadelphia, PA AGF Perelman School of Medicine at the University of Pennsylvania, Pennsylvania AGF, VAM Children s Health Services Research, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN KSH University of Saskatchewan College of Nursing, Saskatoon, Canada JK Department of Anesthesiology and Critical Care Medicine, The Children s Hospital of Philadelphia, Philadelphia, PA VAM Child Health Evaluation and Research Unit, Division of General Pediatrics, University of Michigan Medical School, Ann Arbor, MI LAP Department of Health Management and Policy, University of Michigan School of Public Health Ann Arbor, MI LAP Program of Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada WJU Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Northwestern University Medical School
    Med Decis Making 35:403-8. 2015
    ..Understanding and addressing the challenges that exist in pediatric decision making may foster medical decision-making science across the age spectrum. ..
  5. pmc Real life clinic visits do not match the ideals of shared decision making
    Ellen A Lipstein
    Division of Adolescent Medicine, Center for Innovation in Chronic Disease Care, Cincinnati Children s Hospital Medical Center, Cincinnati, OH James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center, Cincinnati, OH University of Cincinnati College of Medicine, Cincinnati, OH Electronic address
    J Pediatr 165:178-183.e1. 2014
    ..To use observation to understand how decisions about higher-risk treatments, such as biologics, are made in pediatric chronic conditions...
  6. pmc Understanding treatment decision making in juvenile idiopathic arthritis: a qualitative assessment
    Ellen A Lipstein
    Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA
    Pediatr Rheumatol Online J 11:34. 2013
    ..As part of a needs assessment, prior to design and implementation of shared decision making interventions, we conducted a qualitative assessment of clinicians' current approaches to treatment decision making in JIA...
  7. doi request reprint Parents' information needs in tumor necrosis factor-α inhibitor treatment decisions
    Ellen A Lipstein
    Cincinnati Children s Hospital Medical Center, Cincinnati, OH 45229, USA
    J Pediatr Gastroenterol Nutr 56:244-50. 2013
    ..The aim of the study was to describe parents' experiences and the information used when making decisions about tumor necrosis factor-α inhibitor (TNFαi) treatment...
  8. doi request reprint "I'm the one taking it": adolescent participation in chronic disease treatment decisions
    Ellen A Lipstein
    Center for Innovation in Chronic Disease Care, Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH, USA
    J Adolesc Health 53:253-9. 2013
    ..To understand adolescents' roles and preferences in chronic disease treatment decisions, using biologic therapy decisions as an example...
  9. pmc What is known about parents' treatment decisions? A narrative review of pediatric decision making
    Ellen A Lipstein
    Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH 45229, USA
    Med Decis Making 32:246-58. 2012
    ..With the increasing complexity of decisions in pediatric medicine, there is a growing need to understand the pediatric decision-making process...
  10. doi request reprint Systematic evidence review of newborn screening and treatment of severe combined immunodeficiency
    Ellen A Lipstein
    Center for Child and Adolescent Health Policy, Mass General Hospital for Children, Boston, Massachusetts, USA
    Pediatrics 125:e1226-35. 2010
    ..Severe combined immunodeficiency (SCID) is a group of disorders that leads to early childhood death as a result of severe infections. Recent research has addressed potential newborn screening for SCID...
  11. doi request reprint Parents' decision-making in newborn screening: opinions, choices, and information needs
    Ellen A Lipstein
    Center for Innovation in Chronic Disease Care, Cincinnati Children s Hospital Medical Center and College of Medicine, University of Cincinati, MLC 7027, 3333 Burnet Ave, Cincinnati, OH 45229, USA
    Pediatrics 126:696-704. 2010
    ..Our objective was to describe how parents consider disease and test characteristics when making decisions about newborn screening...
  12. pmc High Levels of Decisional Conflict and Decision Regret When Making Decisions About Biologics
    Ellen A Lipstein
    Division of Adolescent and Transition Medicine, Department of Pediatrics Department of Pediatrics, James M Anderson Center for Health Systems Excellence, Cincinnati Children s Hospital Medical Center University of Cincinnati College of Medicine Division of Rheumatology Division of Gastroenterology, Hepatology and Nutrition, Department of Pediatrics, Cincinnati Children s Hospital Medical Center, Cincinnati Division of Gastroenterology, Hepatology and Nutrition, Department of Pediatrics, Nationwide Children s Hospital The Ohio State College of Medicine Division of Rheumatology, Department of Pediatrics, Nationwide Children s Hospital, Columbus Division of Biostatistics and Epidemiology, Department of Pediatrics, Cincinnati Children s Hospital Medical Center, Cincinnati, OH
    J Pediatr Gastroenterol Nutr 63:e176-e181. 2016
    ..The aim of the study was to understand the association between parents' perceptions of the decision process and the decision outcomes in decisions about the use of biologics in pediatric chronic conditions...
  13. pmc Making decisions about chronic disease treatment: a comparison of parents and their adolescent children
    Ellen A Lipstein
    Center for Innovation in Chronic Disease Care, Division of Adolescent Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH, USA
    Health Expect 19:716-26. 2016
    ..To compare factors considered by parents to those considered by adolescents making decisions about chronic disease treatments...
  14. doi request reprint Household language, parent developmental concerns, and child risk for developmental disorder
    Katharine E Zuckerman
    Department of Pediatrics, Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Harvard Medical School, Boston, Mass, USA
    Acad Pediatr 9:97-105. 2009
    ..Provider elicitation of parent developmental and behavioral (DB) concerns is the foundation of DB surveillance. Language differences may affect whether providers assess parental DB concerns...
  15. doi request reprint School absenteeism, health status, and health care utilization among children with asthma: associations with parental chronic disease
    Ellen A Lipstein
    MassGeneral Hospital for Children, Center for Child and Adolescent Health Policy, Boston, MA 02114, USA
    Pediatrics 123:e60-6. 2009
    ....
  16. pmc Physicians' Perceptions of Shared Decision Making in Chronic Disease and Its Barriers and Facilitators
    Cassandra M Dodds
    Center for Innovation in Chronic Disease Care, Division of Adolescent and Transition Medicine, Cincinnati Children s Hospital Medical Center, Cincinnati, OH
    J Pediatr 171:307-9.e1-2. 2016
    ..At the same time, they perceived few barriers, other than insurance limitations, to using SDM. ..
  17. pmc Impact of false-positive newborn metabolic screening results on early health care utilization
    Ellen A Lipstein
    Center for Child and Adolescent Health Policy, MassGeneral Hospital for Children, Boston, Massachusetts 02114, USA
    Genet Med 11:716-21. 2009
    ..To analyze the association between false-positive newborn screening results and health care utilization...
  18. doi request reprint A178: Development of Tools to Facilitate Shared Decision Making about Medications for Juvenile Idiopathic Arthritis-A Project of the Pediatric Rheumatology Care and Outcomes Improvement Network
    Esi Morgan Dewitt
    Cincinnati Children s Hospital Medical Center, Cincinnati, OH
    Arthritis Rheumatol 66:S232-3. 2014
    ..PR-COIN is a learning network designed to improve outcomes of JIA care using quality improvement (QI) approaches...
  19. pmc Acceptability of testing children for tobacco-smoke exposure: a national parent survey
    Jonathan P Winickoff
    Center for Child and Adolescent Health Policy, 50 Staniford St, Suite 901, Boston, MA 02114, USA
    Pediatrics 127:628-34. 2011
    ..No previous surveys have assessed whether testing children for exposure to tobacco smoke in the context of their child's primary care visit is acceptable to parents...