Affiliation: Children's Mercy Hospital
- Introduction to Bioethics Special Supplement V: Ethical Issues in Genomic Testing of ChildrenJohn D Lantos
Children s Mercy Hospital, Kansas City, Missouri
Pediatrics 137:S1-2. 2016..This special supplement to Pediatrics presents some early reports from researchers who are exploring both the technical issues as well as the ethical, legal, and social issues that arise when we perform genomic sequencing on newborns. ..
- Considerations in the evaluation and determination of minimal risk in pragmatic clinical trialsJohn D Lantos
Children s Mercy Bioethics Center, Department of Pediatrics, Children s Mercy Hospital, University of Missouri Kansas City, Kansas City, MO, USA
Clin Trials 12:485-93. 2015....
- International and cross-cultural dimensions of treatment decisions for neonatesJohn D Lantos
Children s Mercy Hospital Bioethics Center, and University of Missouri Kansas City, Kansas City, MO, USA Electronic address
Semin Fetal Neonatal Med 20:368-72. 2015..This article reviews these differences and discusses the implications for the ways in which we think about international differences in decisions about life-sustaining treatment. ..
- What is Behind the Rising Rates of Preterm Birth in the United States?John D Lantos
Professor of Pediatrics, University of Missouri at Kansas City, and Director, Children s Mercy Bioethics Center, Children s Mercy Hospital, Kansas City, MO, USA and
Rambam Maimonides Med J 2:e0065. 2011..We analyze why these efforts had been unsuccessful. Finally, we will speculate about whether something has changed in the last few years that might finally bend the curve and reverse the trend of a steadily rising preterm birth rate. ..
- Is treatment futile for an extremely premature infant with giant omphalocele?Dalia Feltman
Children s Mercy Hospital, 2401 Gillham Rd, Kansas City, MO 64108
Pediatrics 133:123-8. 2014....
- When life-sustaining treatment is withdrawn and the patient doesn't dieStefan Kutzsche
Children s Mercy Hospital, 2401 Gillham Rd, Kansas City, MO, 64108
Pediatrics 132:893-7. 2013..Steven R. Leuthner is a neonatologist and professor of pediatrics and bioethics at the Medical College of Wisconsin. They each recommend slightly different approaches to this dilemma. ..
- A young adult Jehovah's Witness with severe anemiaNnenna Ukachi
New York Methodist Hospital, Brooklyn, NY, USA
Pediatrics 132:547-51. 2013..She is going into heart failure. Her doctors urgently recommend blood transfusions. The young woman and her family adamantly refuse. Should the doctors let her die? Is there any alternative? ..
- The evolving ethics of infant dialysisJohn D Lantos
Children s Mercy Hospital, University of Missouri, 2401 Gillham Road, Kansas City, MO 64108, USA
Pediatr Nephrol 28:1943-7. 2013..Finally, we propose a research agenda to answer questions that are crucial to making good ethical decisions about infant dialysis. ..
- Can a patient designate his doctor as his proxy decision maker?Philip G Black
Cystic Fibrosis Service, Children s Mercy Hospital, Kansas City, MO 64108, USA
Pediatrics 131:986-90. 2013....
- A new pediatrics for a new centuryJohn D Lantos
Department of Pediatrics, University of Missouri Kansas City, 2401 Gillham Rd, Kansas City, MO 64108, USA
Pediatrics 131:S121-6. 2013..A failure to change, however, might perpetuate a system that is not doing all it can for the health of America's children and the society they will form...
- Dangerous and expensive screening and treatment for rare childhood diseases: the case of Krabbe diseaseJohn D Lantos
Department of Pediatrics, University of Missouri, Kansas City, Missouri Children s Mercy Bioethics Center, Children s Mercy Hospital, Kansas City 64108, Missouri
Dev Disabil Res Rev 17:15-8. 2011..I conclude that pilot programs in pioneer states should be carefully evaluated before testing for Krabbe is universalized...
- Clinician integrity and limits to patient autonomyJohn Lantos
Children s Mercy Bioethics Center, Children s Mercy Hospital, 2401 Gilham Rd, Kansas City, MO 64108, USA
JAMA 305:495-9. 2011..Future research on this vital but underexplored topic is needed to determine the extent to which clinicians' professional integrity places limits on the types of patient requests to which they should agree...
- Does pediatrics need its own bioethics?John D Lantos
University of Missouri at Kansas City, Children s Mercy Bioethics Center, Children s Mercy Hospital, Kansas City, MO 64108, USA
Perspect Biol Med 53:613-24. 2010..It puts these issues into historical context by examining the implications of Saul Krugman's famous studies on the etiology and prevention of hepatitis at New York's Willowbrook State School...
- Current empirical research in neonatal bioethicsCameron H Swinton
The University of Chicago, Chicago, IL, USA
Acta Paediatr 99:1773-81. 2010..Empirical research in bioethics can answer questions about what doctors and parents think and do. It does not answer questions about what they ought to do...
- Should the "slow code" be resuscitated?John D Lantos
Children s Mercy Bioethics Center, 2401 Gillham Road, Kansas City, MO 64108, USA
Am J Bioeth 11:8-12. 2011....
- The mathematics of morality for neonatal resuscitationWilliam Meadow
The University of Chicago, Chicago, IL 60637, USA
Clin Perinatol 39:941-56. 2012..The predictive value (>95%) for the outcome of death or survival with neurodevelopmental impairment is discussed...
- Changes in mortality for extremely low birth weight infants in the 1990s: implications for treatment decisions and resource useWilliam Meadow
Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois, USA
Pediatrics 113:1223-9. 2004..We wondered how these medical advances had affected both the epidemiology and ethics of life and death for extremely low birth weight (ELBW) infants in the NICU...
- Resuscitation in the "gray zone" of viability: determining physician preferences and predicting infant outcomesJaideep Singh
Department of Pediatrics, University of Chicago, 5815 South Maryland Ave, Chicago, IL 60637, USA
Pediatrics 120:519-26. 2007..We assessed physician preferences and physician prognostic abilities regarding delivery room management of exceedingly low birth weight/short gestation infants...
- Some are old, some are new: life and death in the ICUWilliam Meadow
Department of Pediatrics and Critical Care Medicine, MacLean Center for Clinical Medical Ethics, The University of Chicago, Chicago, IL 60637, USA
Semin Perinatol 27:471-9. 2003..To the extent that informed decisions can be made with 95% certainty, we may have found a foothold on the slippery ethical slope of benefit/burden calculations in the NICU. Unfortunately, we have no comparable data for MICU survivors...
- When parents request seemingly futile treatment for their childrenJohn Lantos
Department of Pediatrics, University of Chicago General, MacLean Center for Clinical Medical Ethics, IL 60637, USA
Mt Sinai J Med 73:587-9. 2006..It discusses the difference between technical considerations and value considerations in futility determinations, and then breaks down the concept of futility into four components - power, money, trust and hope...
- The nonimpact of gestational age on neurodevelopmental outcome for ventilated survivors born at 23-28 weeks of gestationBree Andrews
Department of Pediatrics, The University of Chicago, IL 60637, USA
Acta Paediatr 101:574-8. 2012..This study addresses a different question - whether the gestational maturity improves neurodevelopmental outcomes for ventilated infants born at 23-28 weeks who survive to neonatal intensive care unit (NICU) discharge...
- End-of-life after birth: death and dying in a neonatal intensive care unitJaideep Singh
Department of Pediatrics, University of Chicago, and the MacLean Center for Clinical Medical Ethics, Chicago, Illinois 60637, USA
Pediatrics 114:1620-6. 2004..We hypothesized that clarifying them would more accurately portray the process of end-of-life decision-making in the NICU...
- Neonatology has always been a bargain--even when we weren't very good at it!Basharat Buchh
Department of Pediatrics, University of Chicago, Chicago, IL 60637, USA
Acta Paediatr 96:659-63. 2007..We wondered whether Neonatal Intensive Care Unit resources for Extremely Low Birth Weight infants have always been disproportionately devoted to survivors, even when ELBW infants were very likely to die...
- Current opinion in pediatrics: ethics and law 2001William Meadow
Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
Curr Opin Pediatr 14:170-3. 2002
- How infants die in the neonatal intensive care unit: trends from 1999 through 2008Julie Weiner
Department of Neonatology, Children s Mercy Hospitals and Clinics, 2401 Gillham Rd, Kansas City, MO 64119, USA
Arch Pediatr Adolesc Med 165:630-4. 2011....
- An infant with trisomy 18 and a ventricular septal defectAnnie Janvier
Department of Pediatrics, University of Montreal, Montreal, Quebec, Canada
Pediatrics 127:754-9. 2011..We presented the case of an infant with trisomy 18 to 2 neonatologists with experience in clinical ethics, Annie Janvier and Felix Okah, and to a parent, Barbara Farlow. They do not agree about the right thing to do...
- Serial assessment of mortality in the neonatal intensive care unit by algorithm and intuition: certainty, uncertainty, and informed consentWilliam Meadow
Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
Pediatrics 109:878-86. 2002....
- The physician-surrogate relationshipAlexia M Torke
MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Ill 60637, USA
Arch Intern Med 167:1117-21. 2007..We outline key issues affecting the physician-surrogate relationship and provide guidance for physicians who are making decisions with surrogates...
- Agency and authenticity: which value grounds patient choice?Daniel Brudney
Department of Philosophy, The University of Chicago, 1115 East 58th Street, Chicago, IL 60637, USA
Theor Med Bioeth 32:217-27. 2011..In some cases, the two values (that of agency and that of authenticity) entail different outcomes. We argue that the comparative value of these values needs to be assessed...
- The National Consensus Project for Quality Palliative Care Clinical Practice Guidelines Domain 8: ethical and legal aspects of careWilliam H Colby
Truman Medical Center, Kansas City, MO, USA
HEC Forum 22:117-31. 2010..Within the guidelines there are eight domains to the provision of palliative care. This article focuses on the last, but very significant Domain 8--Ethical and Legal Aspects of Care...
- Should our well-child care system be redesigned? A national survey of pediatriciansTumaini Coker
Robert Wood Johnson Clinical Scholars Program, University of Chicago, Chicago, IL 60637, USA
Pediatrics 118:1852-7. 2006..The goal was to examine pediatricians' views about whether and how well-child care for children 0 to 5 years of age should be changed...
- Which nurseries currently care for ventilated neonates in Illinois and Wisconsin? Implications for the next generation of perinatal regionalizationWilliam Meadow
Department of Pediatrics, Children s Hospital, University of Chicago, Chicago, Illinois 60637, USA
Am J Perinatol 19:197-203. 2002..It is time to acknowledge the distinction between the Level II nursery of the past and the newly evolving Level II+ NICUs...
- Parents who walk awayJohn Lantos
University of Chicago, Department of Pediatrics, Chicago, IL, USA
Ambul Pediatr 7:205-6. 2007
- Infants of borderline viability: the ethics of delivery room careJessica Brunkhorst
Children s Mercy Hospital and Clinics, 2401 Gillham Road, Kansas City, MO 64108, USA
Semin Fetal Neonatal Med 19:290-5. 2014....
- Extracorporeal membrane oxygenation after stem cell transplant: clinical decision-making in the absence of evidenceRachel K Wolfson
Sections of Critical Care, University of Chicago, IL, USA
Pediatr Crit Care Med 6:200-3. 2005..To discuss the ethical dilemmas that arise in considering innovative therapies for critically ill children when there is little data to support their use...
- Consulting the many and the wiseJohn Lantos
The University of Chicago, USA
Am J Bioeth 4:60-1. 2004
- Who cares for the children? Pediatricians and parental leaveCraig F Garfield
Department of Pediatrics, Evanston Northwestern Healthcare Research Institute and Feinberg School of Medicine, Northwestern University, Chicago, Ill 30201, USA
Ambul Pediatr 3:228-33. 2003..Evidence suggests that parental leave (PL) benefits child health and infant-parent attachment, yet little is known about how pediatricians view and discuss PL with parents...
- Healthcare worker knowledge and attitudes regarding influenza immunization and childhood vaccinationAngela L Myers
Children s Mercy Hospitals and Clinics and the University of Missouri at Kansas City School of Medicine, Kansas City, Missouri 64108, USA
Infect Control Hosp Epidemiol 31:643-6. 2010..HCWs who received influenza vaccine were more likely to immunize their children against influenza, although a substantial proportion of HCWs' children did not receive influenza vaccination...
- Summary proceedings from the neonatal pain-control groupKanwaljeet J S Anand
Department of Pediatrics, University of Arkansas for Medical Sciences, Little Rock, Arkansas, USA
Pediatrics 117:S9-S22. 2006..Full-length articles on procedural pain, sedation and analgesia for ventilated infants, perioperative pain, and study designs for neonatal pain research were published in Clinical Therapeutics (June 2005)...