Barbara Prainsack

Summary

Affiliation: King's College London
Country: UK

Publications

  1. pmc Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the Atlantic
    Barbara Prainsack
    Department of Global Health and Social Medicine, King s College London, Strand Campus, 2 10 East Wing, King s Building, London, WC2R 2LS, UK
    Theor Med Bioeth . 2016
  2. pmc The powers of participatory medicine
    Barbara Prainsack
    Department of Social Science, Health and Medicine, King s College London, London, United Kingdom
    PLoS Biol 12:e1001837. 2014
  3. doi A solidarity-based approach to the governance of research biobanks
    Barbara Prainsack
    King s College, London, UK
    Med Law Rev 21:71-91. 2013
  4. doi Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics
    Barbara Prainsack
    Department of Social Science, Health and Medicine, King s College London, Strand, London WC2R 2LS, UK
    Pharmacogenomics 14:403-12. 2013
  5. ncbi DNA behind bars: other ways of knowing forensic DNA technologies
    Barbara Prainsack
    Centre for Biomedicine and Society CBAS, King s College London, Strand, UK
    Soc Stud Sci 39:51-79. 2009
  6. doi Direct-to-consumer genome testing: opportunities for pharmacogenomics research?
    Barbara Prainsack
    King s College London, Centre for Biomedicine and Society CBAS, London, UK
    Pharmacogenomics 11:651-5. 2010
  7. ncbi Attitudes of social science students in Israel and Austria towards the belated twins scenario--an exploratory study
    Barbara Prainsack
    Centre for Biomedicine and Socierty, King s College London, UK
    Public Underst Sci 19:435-51. 2010
  8. doi Voting with their mice: personal genome testing and the "participatory turn" in disease research
    Barbara Prainsack
    King s College London, Centre for Biomedicine and Society, England, UK
    Account Res 18:132-47. 2011
  9. pmc A survey of UK public interest in internet-based personal genome testing
    Lynn F Cherkas
    Department of Twin Research and Genetic Epidemiology, King s College London, London, United Kingdom
    PLoS ONE 5:e13473. 2010

Collaborators

Detail Information

Publications9

  1. pmc Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the Atlantic
    Barbara Prainsack
    Department of Global Health and Social Medicine, King s College London, Strand Campus, 2 10 East Wing, King s Building, London, WC2R 2LS, UK
    Theor Med Bioeth . 2016
    ..After proposing a working definition of solidarity that highlights its utility for guiding policy and practice, we give an example of how a solidarity-based perspective can shape instruments for the governance of data use...
  2. pmc The powers of participatory medicine
    Barbara Prainsack
    Department of Social Science, Health and Medicine, King s College London, London, United Kingdom
    PLoS Biol 12:e1001837. 2014
    ..Does participatory medicine always empower patients, or could it also serve as a tool to shift responsibilities from other actors to individual patients? ..
  3. doi A solidarity-based approach to the governance of research biobanks
    Barbara Prainsack
    King s College, London, UK
    Med Law Rev 21:71-91. 2013
    ..It also allows moving beyond overly restrictive and burdensome, exclusively autonomy-based governance towards governance that is reflective of people's willingness to accept costs to assist others...
  4. doi Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomics
    Barbara Prainsack
    Department of Social Science, Health and Medicine, King s College London, Strand, London WC2R 2LS, UK
    Pharmacogenomics 14:403-12. 2013
    ..The authors anticipate that such developments will benefit pharmacogenomics sooner than other areas of medical practice...
  5. ncbi DNA behind bars: other ways of knowing forensic DNA technologies
    Barbara Prainsack
    Centre for Biomedicine and Society CBAS, King s College London, Strand, UK
    Soc Stud Sci 39:51-79. 2009
    ..For our interviewees, forensic DNA technologies assumed the role of institutionalized memories of their delinquency...
  6. doi Direct-to-consumer genome testing: opportunities for pharmacogenomics research?
    Barbara Prainsack
    King s College London, Centre for Biomedicine and Society CBAS, London, UK
    Pharmacogenomics 11:651-5. 2010
    ..We then discuss the most important benefits and issues we see arising with the idea of 'crowdsourcing' pharmacogenomics research via commercial genome-scan providers. We conclude with a brief vision for the future...
  7. ncbi Attitudes of social science students in Israel and Austria towards the belated twins scenario--an exploratory study
    Barbara Prainsack
    Centre for Biomedicine and Socierty, King s College London, UK
    Public Underst Sci 19:435-51. 2010
    ..In both groups, uncertainty stemming from "novel" elements in the scenario was regularly interpreted as negatively exacerbating existing issues...
  8. doi Voting with their mice: personal genome testing and the "participatory turn" in disease research
    Barbara Prainsack
    King s College London, Centre for Biomedicine and Society, England, UK
    Account Res 18:132-47. 2011
    ..I conclude with an evaluation of the pitfalls and benefits of "crowdsourcing" genetic disease research in the context of personal genomics...
  9. pmc A survey of UK public interest in internet-based personal genome testing
    Lynn F Cherkas
    Department of Twin Research and Genetic Epidemiology, King s College London, London, United Kingdom
    PLoS ONE 5:e13473. 2010
    ....