Affiliation: King's College London
- Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the AtlanticBarbara Prainsack
Department of Global Health and Social Medicine, King s College London, Strand Campus, 2 10 East Wing, King s Building, London, WC2R 2LS, UK
Theor Med Bioeth . 2016..After proposing a working definition of solidarity that highlights its utility for guiding policy and practice, we give an example of how a solidarity-based perspective can shape instruments for the governance of data use...
- The powers of participatory medicineBarbara Prainsack
Department of Social Science, Health and Medicine, King s College London, London, United Kingdom
PLoS Biol 12:e1001837. 2014..Does participatory medicine always empower patients, or could it also serve as a tool to shift responsibilities from other actors to individual patients? ..
- A solidarity-based approach to the governance of research biobanksBarbara Prainsack
King s College, London, UK
Med Law Rev 21:71-91. 2013..It also allows moving beyond overly restrictive and burdensome, exclusively autonomy-based governance towards governance that is reflective of people's willingness to accept costs to assist others...
- Beyond the clinic: 'direct-to-consumer' genomic profiling services and pharmacogenomicsBarbara Prainsack
Department of Social Science, Health and Medicine, King s College London, Strand, London WC2R 2LS, UK
Pharmacogenomics 14:403-12. 2013..The authors anticipate that such developments will benefit pharmacogenomics sooner than other areas of medical practice...
- DNA behind bars: other ways of knowing forensic DNA technologiesBarbara Prainsack
Centre for Biomedicine and Society CBAS, King s College London, Strand, UK
Soc Stud Sci 39:51-79. 2009..For our interviewees, forensic DNA technologies assumed the role of institutionalized memories of their delinquency...
- Direct-to-consumer genome testing: opportunities for pharmacogenomics research?Barbara Prainsack
King s College London, Centre for Biomedicine and Society CBAS, London, UK
Pharmacogenomics 11:651-5. 2010..We then discuss the most important benefits and issues we see arising with the idea of 'crowdsourcing' pharmacogenomics research via commercial genome-scan providers. We conclude with a brief vision for the future...
- Attitudes of social science students in Israel and Austria towards the belated twins scenario--an exploratory studyBarbara Prainsack
Centre for Biomedicine and Socierty, King s College London, UK
Public Underst Sci 19:435-51. 2010..In both groups, uncertainty stemming from "novel" elements in the scenario was regularly interpreted as negatively exacerbating existing issues...
- Voting with their mice: personal genome testing and the "participatory turn" in disease researchBarbara Prainsack
King s College London, Centre for Biomedicine and Society, England, UK
Account Res 18:132-47. 2011..I conclude with an evaluation of the pitfalls and benefits of "crowdsourcing" genetic disease research in the context of personal genomics...
- A survey of UK public interest in internet-based personal genome testingLynn F Cherkas
Department of Twin Research and Genetic Epidemiology, King s College London, London, United Kingdom
PLoS ONE 5:e13473. 2010....