Allison Tong

Summary

Publications

  1. pmc Standardised Outcomes in Nephrology-Children and Adolescents (SONG-Kids): a protocol for establishing a core outcome set for children with chronic kidney disease
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Trials 17:401. 2016
  2. pmc Establishing Core Outcome Domains in Hemodialysis: Report of the Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia Electronic address
    Am J Kidney Dis 69:97-107. 2017
  3. doi Perspectives on Pregnancy in Women With CKD: A Semistructured Interview Study
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 66:951-61. 2015
  4. pmc Focus group study of public opinion about paying living kidney donors in Australia
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia The Centre for Kidney Research, Children s Hospital at Westmead, Westmead, New South Wales, Australia
    Clin J Am Soc Nephrol 10:1217-26. 2015
  5. pmc Standardised outcomes in nephrology - Haemodialysis (SONG-HD): study protocol for establishing a core outcome set in haemodialysis
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, Australia
    Trials 16:364. 2015
  6. doi Research Priorities in CKD: Report of a National Workshop Conducted in Australia
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia Electronic address
    Am J Kidney Dis 66:212-22. 2015
  7. doi Research priority setting in kidney disease: a systematic review
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 65:674-83. 2015
  8. doi Perspectives of transplant physicians and surgeons on reimbursement, compensation, and incentives for living kidney donors
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia Electronic address
    Am J Kidney Dis 64:622-32. 2014
  9. doi Qualitative research in CKD: an overview of methods and applications
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 64:338-46. 2014
  10. doi Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 63:913-27. 2014

Collaborators

Detail Information

Publications90

  1. pmc Standardised Outcomes in Nephrology-Children and Adolescents (SONG-Kids): a protocol for establishing a core outcome set for children with chronic kidney disease
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Trials 17:401. 2016
    ....
  2. pmc Establishing Core Outcome Domains in Hemodialysis: Report of the Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia Electronic address
    Am J Kidney Dis 69:97-107. 2017
    ..Integrating these recommendations may foster acceptance and optimize the uptake and translation of core outcomes in hemodialysis, leading to more informative research, for better treatment and improved patient outcomes...
  3. doi Perspectives on Pregnancy in Women With CKD: A Semistructured Interview Study
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 66:951-61. 2015
    ..This study aims to describe the beliefs, values, and experiences of pregnancy in women with CKD to inform prepregnancy counseling and pregnancy care...
  4. pmc Focus group study of public opinion about paying living kidney donors in Australia
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia The Centre for Kidney Research, Children s Hospital at Westmead, Westmead, New South Wales, Australia
    Clin J Am Soc Nephrol 10:1217-26. 2015
    ..Such debates may affect public perception and acceptance of living kidney donation. This study aims to describe the range and depth of public opinion on financial reimbursement, compensation, and incentives for living kidney donors...
  5. pmc Standardised outcomes in nephrology - Haemodialysis (SONG-HD): study protocol for establishing a core outcome set in haemodialysis
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, Australia
    Trials 16:364. 2015
    ....
  6. doi Research Priorities in CKD: Report of a National Workshop Conducted in Australia
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia Electronic address
    Am J Kidney Dis 66:212-22. 2015
    ..These prioritized research questions can inform funding agencies, patient/consumer organizations, policy makers, and researchers in developing a CKD research agenda that is relevant to key stakeholders. ..
  7. doi Research priority setting in kidney disease: a systematic review
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 65:674-83. 2015
    ..This study aims to evaluate approaches to research prioritization in kidney disease and describe research priorities of patients with kidney disease, their caregivers, the health care providers involved in their care, and policy makers...
  8. doi Perspectives of transplant physicians and surgeons on reimbursement, compensation, and incentives for living kidney donors
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia Electronic address
    Am J Kidney Dis 64:622-32. 2014
    ..This study aims to describe the range of attitudes and opinions of transplant physicians on financial reimbursement, compensation, and incentives in living kidney donation...
  9. doi Qualitative research in CKD: an overview of methods and applications
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 64:338-46. 2014
    ....
  10. doi Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Electronic address
    Am J Kidney Dis 63:913-27. 2014
    ..This study aims to describe patients' and caregivers' perspectives on conservative treatment and end-of-life care in chronic kidney disease (CKD)...
  11. doi Quality of life of young adults and adolescents with chronic kidney disease
    Allison Tong
    Center for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia Electronic address
    J Pediatr 163:1179-85.e5. 2013
    ..To elicit utility-based quality of life (QOL) in adolescents and young adults with chronic kidney disease (CKD)...
  12. doi Public awareness and attitudes to living organ donation: systematic review and integrative synthesis
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia
    Transplantation 96:429-37. 2013
    ..Yet, public views on living donation are not well understood. This study aims to synthesize studies on public awareness and attitudes toward living organ donation...
  13. doi Rationing scarce organs for transplantation: healthcare provider perspectives on wait-listing and organ allocation
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Clin Transplant 27:60-71. 2013
    ..Ongoing engagement with stakeholders is needed to enhance transparency, a reasonable balance between efficiency and equity, and avoid discrimination against specific populations...
  14. doi Qualitative research in organ transplantation: recent contributions to clinical care and policy
    A Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, 2006, Australia
    Am J Transplant 13:1390-9. 2013
    ..This review highlights recent contributions of qualitative research to transplantation practice and policy, and identifies key principles to guide qualitative research appraisal...
  15. doi The perspectives of adults living with peritoneal dialysis: thematic synthesis of qualitative studies
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
    Am J Kidney Dis 61:873-88. 2013
    ..This study aims to synthesize published qualitative studies of patients' experiences, beliefs, and attitudes about PD...
  16. doi Experiences and perspectives of adolescents and young adults with advanced CKD
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Sydney, NSW 2145, Australia
    Am J Kidney Dis 61:375-84. 2013
    ..Young people with advanced chronic kidney disease experience delayed growth and poor psychosocial outcomes. This study aims to elicit the experiences and perspectives of young people waiting for a kidney transplant...
  17. pmc Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, NSW, 2006, Australia
    BMC Med Res Methodol 12:181. 2012
    ..abstract:..
  18. doi Adolescent views on transition in diabetes and nephrology
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
    Eur J Pediatr 172:293-304. 2013
    ....
  19. doi The experiences of commercial kidney donors: thematic synthesis of qualitative research
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
    Transpl Int 25:1138-49. 2012
    ..Review of this published literature supports the need for effective implementation of the WHO guiding principles and legislated regulation to deter potential recipients and healthcare providers from pursuing commercial transplantation...
  20. doi "It was just an unconditional gift." Self reflections of non-directed living kidney donors
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Australia
    Clin Transplant 26:589-99. 2012
    ..Reluctance to consider non-directed donation programs solely on concerns of unrealistic or ill-motivations and potential feelings of donor regret appear unwarranted...
  21. doi Children's experiences of living with juvenile idiopathic arthritis: a thematic synthesis of qualitative studies
    Allison Tong
    University of Sydney, Sydney, New South Wales, Australia
    Arthritis Care Res (Hoboken) 64:1392-404. 2012
    ..To describe the experiences and perspectives of children and adolescents living with juvenile idiopathic arthritis (JIA)...
  22. doi The motivations and experiences of living kidney donors: a thematic synthesis
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, NSW, Australia
    Am J Kidney Dis 60:15-26. 2012
    ..The aim of this study was to synthesize published qualitative studies of the experiences and perspectives of living kidney donors...
  23. pmc Patient preferences for the allocation of deceased donor kidneys for transplantation: a mixed methods study
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW 2006, Australia
    BMC Nephrol 13:18. 2012
    ..Deceased donor kidneys are a scarce health resource, yet patient preferences for organ allocation are largely unknown. The aim of this study was to determine patient preferences for how kidneys should be allocated for transplantation...
  24. doi Community preferences for the allocation of deceased donor organs for transplantation: a focus group study
    Michelle J Irving
    School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Nephrol Dial Transplant 28:2187-93. 2013
    ..Little is known about community preferences for the allocation of those organs. We aimed to determine community preferences for organ allocation and reasons for their choices...
  25. doi Patients' priorities for health research: focus group study of patients with chronic kidney disease
    Allison Tong
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW 2145, Australia
    Nephrol Dial Transplant 23:3206-14. 2008
    ..The inclusion of consumer preferences in prioritizing research topics is widely advocated, but prioritization is driven largely by professional agendas...
  26. doi Public attitudes and beliefs about living kidney donation: focus group study
    Allison Tong
    1 Sydney School of Public Health, The University of Sydney, Sydney, Australia 2 Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia 3 Centre for Transplant and Renal Research, Westmead Hospital, Westmead, Australia 4 Division of Nephrology, University of British Columbia, Vancouver, Canada 5 Department of Medicine, The University of Chicago, Chicago, IL 6 Address correspondence to Allison Tong, Ph D, Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW 2145, Sydney, Australia
    Transplantation 97:977-85. 2014
    ..Knowledge about the attitudes and beliefs among the general public about living kidney donation is limited. We aimed to describe public perspectives on living kidney donation...
  27. doi Identifying and integrating consumer perspectives in clinical practice guidelines on autosomal-dominant polycystic kidney disease
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Nephrology (Carlton) 21:122-32. 2016
    ....
  28. pmc Attitudes and beliefs about deceased organ donation in the Arabic-speaking community in Australia: a focus group study
    Angelique F Ralph
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, New South Wales, Australia
    BMJ Open 6:e010138. 2016
    ..To describe the beliefs and attitudes to organ donation in the Arabic-speaking community...
  29. doi Community preferences for the allocation of solid organs for transplantation: a systematic review
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW 2145, Australia
    Transplantation 89:796-805. 2010
    ..This systematic review aimed to ascertain community preferences for organ allocation and the principles underpinning these preferences...
  30. doi Factors that influence the decision to be an organ donor: a systematic review of the qualitative literature
    Michelle J Irving
    School of Public Health, The University of Sydney, Sydney, Australia
    Nephrol Dial Transplant 27:2526-33. 2012
    ..We conducted a systematic review of qualitative studies that explored community attitudes towards living and deceased solid organ donation to inform strategies to improve organ donation rates...
  31. doi Community attitudes to deceased organ donation: a focus group study
    Michelle J Irving
    School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Transplantation 93:1064-9. 2012
    ..Despite broad community support for organ donation, there is a chronic shortage of donor organs for transplantation. This study elicited community attitudes on deceased organ donation and the current Australian organ donation system...
  32. doi Clinicians' Perspectives on Managing Symptom Clusters in Advanced Cancer: A Semistructured Interview Study
    Skye T Dong
    School of Psychology, The University of Sydney, Sydney, New South Wales, Australia Psycho Oncology Co operative Research Group PoCoG, The University of Sydney, Sydney, New South Wales, Australia Centre for Medical Psychology and Evidence based Decision making CeMPED, The University of Sydney, Sydney, New South Wales, Australia Electronic address
    J Pain Symptom Manage 51:706-717.e5. 2016
    ..Managing symptom clusters or multiple concurrent symptoms in patients with advanced cancer remains a clinical challenge. The optimal processes constituting effective management of symptom clusters remain uncertain...
  33. pmc Community Preferences for the Allocation & Donation of Organs--the PAraDOx Study
    Kirsten Howard
    School of Public Health, University of Sydney, NSW, 2006, Australia
    BMC Public Health 11:386. 2011
    ..Reasons for the chronic shortage of deceased organ donations are unclear; there appears to be no lack of 'in principle' public support for organ donation...
  34. pmc Comparative survival and economic benefits of deceased donor kidney transplantation and dialysis in people with varying ages and co-morbidities
    Germaine Wong
    Centre for Kidney Research, Children s Hospital at Westmead, Westmead, Australia
    PLoS ONE 7:e29591. 2012
    ..The aim of our study is to estimate the average and incremental survival benefits and health care costs of listing and transplantation compared to dialysis among individuals with varying co-morbidities...
  35. doi Clinical practice guidelines on wait-listing for kidney transplantation: consistent and equitable?
    Pikli Batabyal
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
    Transplantation 94:703-13. 2012
    ..This study aimed to compare the quality, the scope, and the consistency of international guidelines on wait-listing for kidney transplantation...
  36. doi Nephrologists' perspectives on waitlisting and allocation of deceased donor kidneys for transplant
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
    Am J Kidney Dis 58:704-16. 2011
    ..This study aims to elicit nephrologists' perspectives on waitlisting patients for kidney transplant and the allocation of deceased kidneys...
  37. doi Health benefits and costs of screening for colorectal cancer in people on dialysis or who have received a kidney transplant
    Germaine Wong
    Centre of Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
    Nephrol Dial Transplant 28:917-26. 2013
    ..We aimed to determine the costs and health benefits of CRC screening in people on dialysis or who have received a kidney transplant...
  38. doi Preferences for Policy Options for Deceased Organ Donation for Transplantation: A Discrete Choice Experiment
    Kirsten Howard
    1 Institute for Choice, University of South Australia, North Sydney, NSW, Australia 2 Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia 3 The George Institute for Global Health, Sydney, NSW, Australia 4 Centre for Kidney Research, The Children s Hospital Westmead, Sydney, NSW, Australia 5 Central Clinical School, Bosch Institute, The University of Sydney, Sydney, NSW, Australia 6 Department of Renal Medicine, Royal Prince Alfred Hospital, Camperdown, Sydney, NSW, Australia 7 Menzies School of Health Research, Casuarina, NT, Australia
    Transplantation 100:1136-48. 2016
    ..Despite broad public support for organ donation, there is a chronic shortage of deceased donor organs. We sought to identify community preferences for features of organ donation policies...
  39. doi Patients' experiences and perspectives of living with CKD
    Allison Tong
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
    Am J Kidney Dis 53:689-700. 2009
    ..Rather than focusing on clinical targets, greater attention may need to be given to providing information and psychosocial and practical support at a patient-level not organ-specific level, to maximize patient quality of life...
  40. doi What factors influence people's decisions to register for organ donation? The results of a nominal group study
    Michelle J Irving
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital Westmead, Sydney, NSW, Australia
    Transpl Int 27:617-24. 2014
    ..Many believe the sole right to consent to donation is theirs and not their families; consent policies reflecting this should be explored. ..
  41. pmc Consumer involvement in topic and outcome selection in the development of clinical practice guidelines
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
    Health Expect 15:410-23. 2012
    ..Little is known about how to involve consumers more effectively in guideline development...
  42. doi Important outcomes for kidney transplant recipients: a nominal group and qualitative study
    Martin Howell
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
    Am J Kidney Dis 60:186-96. 2012
    ..The aim of this study was to elicit patient perspectives and priorities for outcomes after transplant and the reasons underpinning these priorities...
  43. doi Children's experiences of dialysis: a systematic review of qualitative studies
    Lidwien Tjaden
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia
    Arch Dis Child 97:395-402. 2012
    ..To describe the experiences and perspectives of children and adolescents on dialysis...
  44. doi Community preferences for the allocation of donor organs for transplantation: a discrete choice study
    Kirsten Howard
    1 Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia 2 The George Institute for Global Health, Missenden Rd, Camperdown, Sydney, NSW, Australia 3 Institute for Choice, The University of South Australia, North Sydney, NSW, Australia 4 Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia 5 Central Clinical School, Bosch Institute, The University of Sydney, Sydney, NSW, Australia 6 Department of Renal Medicine, Royal Prince Alfred Hospital, Camperdown, Sydney, NSW, Australia 7 Menzies School of Health Research, Casuarina, NT, Australia
    Transplantation 99:560-7. 2015
    ..Little is known about the relative weight the community places on various allocation criteria. This study aims to determine community preferences for organ allocation...
  45. doi Quality of life of adolescent kidney transplant recipients
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia
    J Pediatr 159:670-5.e2. 2011
    ..To elicit utility-based quality of life (QOL) of adolescent kidney transplant recipients...
  46. doi Consumer perspectives on pediatric rheumatology care and service delivery: a qualitative study
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia
    J Clin Rheumatol 19:234-40. 2013
    ..This study aimed to elicit parental and adolescent perspectives on pediatric rheumatology care and service delivery and to describe the impact of this process on a proposed model of care addressing pediatric rheumatology service delivery...
  47. doi "When I had my transplant, I became normal." Adolescent perspectives on life after kidney transplantation
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
    Pediatr Transplant 15:285-93. 2011
    ..Novel approaches are needed to foster self-confidence and sense of normality and to provide comprehensive information on the patient journey following kidney transplantation...
  48. doi How do people with chronic kidney disease value cancer-related quality of life?
    Germaine Wong
    Centre for Kidney Research, The Children s Hospital at Westmead, School of Public Health, Sydney University, New South Wales, Australia
    Nephrology (Carlton) 17:32-41. 2012
    ..To estimate the utility-based quality of life (QOL) of people with chronic kidney disease (CKD) and to estimate the QOL associated with two hypothetical colorectal cancer health states...
  49. doi Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies
    Allison Tong
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW 2145, Australia
    Pediatrics 121:349-60. 2008
    ..The objective of this study was to describe the experiences of parents who have children with chronic kidney disease...
  50. doi Adolescent experiences following organ transplantation: a systematic review of qualitative studies
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW 2145, Australia
    J Pediatr 155:542-9. 2009
    ..To describe the experiences of adolescents who underwent organ transplantation...
  51. ncbi Catheter-related interventions to prevent peritonitis in peritoneal dialysis: a systematic review of randomized, controlled trials
    Giovanni F M Strippoli
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Cochrane Renal Group, Locked Bag 4001, University of Sydney, Australia
    J Am Soc Nephrol 15:2735-46. 2004
    ....
  52. doi Exercise training in solid organ transplant recipients: a systematic review and meta-analysis
    Madeleine Didsbury
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia
    Transplantation 95:679-87. 2013
    ..This study aims to assess the health benefits and harms of supervised exercise training programs in solid organ recipients...
  53. doi Knowledge, beliefs and attitudes of kidney transplant recipients regarding their risk of cancer
    Narelle C Williams
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, New South Wales, Australia
    Nephrology (Carlton) 17:300-6. 2012
    ..This study aims to explore these beliefs and attitudes, to better understand patient motives and potential barriers to early detection of cancer...
  54. doi Donor and Recipient Views on Their Relationship in Living Kidney Donation: Thematic Synthesis of Qualitative Studies
    Angelique F Ralph
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia School of Psychology, The University of Sydney, Sydney, NSW, Australia Electronic address
    Am J Kidney Dis . 2016
    ..We aimed to describe donor and recipient expectations and experiences of their relationship in the context of living kidney donation...
  55. doi Health professional and community perspectives on reducing barriers to accessing specialist health care in metropolitan Aboriginal communities: A semi-structured interview study
    Christian Young
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia
    J Paediatr Child Health . 2016
    ..HEALS was a government funded initiative to improve access to specialist ear, nose and throat and speech pathology services for Aboriginal families living in metropolitan areas...
  56. doi 'I feel stronger and younger all the time'-perspectives of elderly kidney transplant recipients: thematic synthesis of qualitative research
    Jule Pinter
    Sydney School of Public Health, University of Sydney, Sydney, NSW 2006, Australia Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW, Australia
    Nephrol Dial Transplant 31:1531-40. 2016
    ..We aimed to describe the perspectives of elderly kidney transplant recipients...
  57. pmc Building better research partnerships by understanding how Aboriginal health communities perceive and use data: a semistructured interview study
    Christian Young
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, New South Wales, Australia
    BMJ Open 6:e010792. 2016
    ..To describe the attitudes and beliefs of health professionals working in Aboriginal Community Controlled Health Services (ACCHS) towards the access, usage and potential value of routinely obtained clinical and research data...
  58. doi Patient and Caregiver Priorities for Outcomes in Hemodialysis: An International Nominal Group Technique Study
    Rachel Urquhart-Secord
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
    Am J Kidney Dis 68:444-54. 2016
    ..Efforts to define and report patient-centered outcomes are gaining momentum, though little work has been done in nephrology. We aimed to identify patient and caregiver priorities for outcomes in hemodialysis...
  59. pmc Preferences for engagement in health technology assessment decision-making: a nominal group technique with members of the public
    Sally Wortley
    Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia
    BMJ Open 6:e010265. 2016
    ..To identify characteristics (factors) about health technology assessment (HTA) decisions that are important to the public in determining whether public engagement should be undertaken and the reasons for these choices...
  60. pmc Eliciting patient preferences, priorities and trade-offs for outcomes following kidney transplantation: a pilot best-worst scaling survey
    Martin Howell
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia School of Public Health, The University of Sydney, Sydney, New South Wales, Australia
    BMJ Open 6:e008163. 2016
    ..The pilot study aimed to test the feasibility of a case 2 best-worst scaling survey (BWS) to elicit recipient with kidney transplantation preferences after transplantation...
  61. doi The expectations and attitudes of patients with chronic kidney disease toward living kidney donor transplantation: a thematic synthesis of qualitative studies
    Camilla S Hanson
    1 Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia 2 Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia 3 Department of Renal Medicine, Royal Prince Alfred Hospital, Camperdown, NSW, Australia 4 Sydney Medical School, University of Sydney, Sydney, NSW, Australia 5 Centre for Transplant and Renal Research, Westmead Hospital, Westmead, NSW, Australia
    Transplantation 99:540-54. 2015
    ..We aimed to describe the beliefs, attitudes, and expectations of patients with chronic kidney disease toward receiving a living kidney donor transplant...
  62. doi 'Suspended in a paradox'-patient attitudes to wait-listing for kidney transplantation: systematic review and thematic synthesis of qualitative studies
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia
    Transpl Int 28:771-87. 2015
    ..Managing patient expectations and ensuring transparency of wait-listing and allocation decisions may allay patient disappointment and skepticism, to improve patient satisfaction and treatment outcomes...
  63. pmc Health and wealth in children and adolescents with chronic kidney disease (K-CAD study)
    Germaine Wong
    Centre for Kidney Research, Kids Research Institute, The Children s Hospital at Westmead, Sydney, Australia
    BMC Public Health 14:307. 2014
    ..In addition to biological influences, the socioeconomic circumstances of caregivers may play a significant role in the health and well-being of children with CKD...
  64. doi Parental perspectives on the financial impact of caring for a child with CKD
    Meredith Medway
    Sydney School of Public Health, The University of Sydney, Sydney, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Australia Electronic address
    Am J Kidney Dis 65:384-93. 2015
    ..This study aims to describe parental perspectives on the financial impact of caring for a child with CKD...
  65. doi Nephrologists' Perspectives on Recipient Eligibility and Access to Living Kidney Donor Transplantation
    Camilla S Hanson
    1 Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia 2 Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia 3 Department of Renal Medicine, Royal Prince Alfred Hospital, The University of Sydney, Sydney, NSW, Australia 4 Centre for Transplant and Renal Research, Westmead Hospital, NSW, Westmead, Australia
    Transplantation 100:943-53. 2016
    ..This study aims to describe nephrologists' attitudes towards recipient eligibility and access to living kidney donor transplantation...
  66. doi Motivations, Challenges, and Attitudes to Self-management in Kidney Transplant Recipients: A Systematic Review of Qualitative Studies
    Nathan J Jamieson
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia
    Am J Kidney Dis 67:461-78. 2016
    ..We aimed to describe kidney transplant recipients' motivations, challenges, and attitudes toward self-management...
  67. doi Patient and caregiver values, beliefs and experiences when considering home dialysis as a treatment option: a semi-structured interview study
    Rachael C Walker
    Sydney School of Public Health, University of Sydney, Sydney, NSW 2006, Australia Hawke s Bay District Health Board, Hawke s Bay, New Zealand
    Nephrol Dial Transplant 31:133-41. 2016
    ..We aimed to describe patient and caregiver values, beliefs and experiences when considering home dialysis, to inform strategies to align policy and practice with patients' needs...
  68. doi Community-Based Interventions and Individuals' Willingness to be a Deceased Organ Donor: Systematic Review and Meta-Analysis
    Andrew T Li
    1 Monash School of Medicine, Monash University, Victoria, Australia 2 Sydney School of Public Health, University of Sydney, New South Wales, Australia 3 Centre for Kidney Research, The Children s Hospital at Westmead, New South Wales, Australia 4 Centre for Transplant and Renal Research, Westmead Hospital, New South Wales, Australia 5 The George Institute for Global Health, Camperdown, New South Wales, Australia 6 The Institute for Choice, University of South Australia, North Sydney, New South Wales, Australia
    Transplantation 99:2634-43. 2015
    ..We aimed to describe and evaluate the effectiveness of community-based interventions to increase the willingness of individuals to be a deceased organ donor...
  69. pmc Patient and caregiver preferences for home dialysis-the home first study: a protocol for qualitative interviews and discrete choice experiments
    Rachael C Walker
    Renal Department, Hawke s Bay District Health Board, Hastings, New Zealand Sydney School of Public Health, School of Medicine, The University of Sydney, Sydney, New South Wales, Australia
    BMJ Open 5:e007405. 2015
    ....
  70. doi Patients' perspectives on hemodialysis vascular access: a systematic review of qualitative studies
    Jordan R Casey
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, Sydney, NSW, Australia
    Am J Kidney Dis 64:937-53. 2014
    ..Concerns about vascular access are prevailing treatment-related stressors for patients on hemodialysis therapy. This study aims to describe patients' perspectives on vascular access initiation and maintenance in hemodialysis...
  71. doi Support interventions for caregivers of people with chronic kidney disease: a systematic review
    Allison Tong
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW 2145, Australia
    Nephrol Dial Transplant 23:3960-5. 2008
    ..Yet, the needs of caregivers are often neglected and under-prioritized. The objective of this review is to evaluate the effectiveness of interventions aimed at providing support to caregivers of people with CKD...
  72. doi Prevention, detection and management of early chronic kidney disease: a systematic review of clinical practice guidelines
    Pamela A Lopez-Vargas
    Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia
    Nephrology (Carlton) 18:592-604. 2013
    ..This study aims to compare the scope, content and consistency of published guidelines on CKD stages I-III...
  73. doi Motivations, experiences, and perspectives of bone marrow and peripheral blood stem cell donors: thematic synthesis of qualitative studies
    Maria C Garcia
    Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia
    Biol Blood Marrow Transplant 19:1046-58. 2013
    ..To maximize donor satisfaction and mitigate the psychosocial risks for HSC donors, strategies to address the emotional challenges of anxiety, sense of coercion, guilt, and grief in donors are warranted. ..
  74. doi Screening and follow-up of living kidney donors: a systematic review of clinical practice guidelines
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, NSW, Australia
    Transplantation 92:962-72. 2011
    ..There is an urgent need for international collaboration and coordination to ensure, where possible, that guidelines for living donation are consistent, evidence based, and comprehensive to promote best outcomes for a precious resource...
  75. doi The perspectives of kidney transplant recipients on medicine taking: a systematic review of qualitative studies
    Allison Tong
    Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW 2145, Australia
    Nephrol Dial Transplant 26:344-54. 2011
    ..This study aimed to describe the beliefs, experiences and perspectives of kidney transplant recipients on medicine taking...
  76. doi Cancer screening in people who have chronic disease: the example of kidney disease
    Germaine Wong
    Centre for Kidney Research, Kids Research Institute, Children s Hospital at Westmead, Westmead, New South Wales, Australia
    Semin Dial 24:72-8. 2011
    ....
  77. doi Characteristics of dialysis important to patients and family caregivers: a mixed methods approach
    Rachael L Morton
    Sydney School of Public Health, The University of Sydney, Sydney, Australia
    Nephrol Dial Transplant 26:4038-46. 2011
    ..The aim of this study was to rank the most important characteristics of dialysis on which patients and caregivers make decisions about treatment...
  78. doi Nephrologists' perspectives on the effect of guidelines on clinical practice: a semistructured interview study
    Michelle J Irving
    Centre for Kidney Research, The Children s Hospital at Westmead, NSW, Australia 2145
    Am J Kidney Dis 55:241-9. 2010
    ..This study aims to explore nephrologists' perspectives on guidelines and elicit their perspectives on the effects of guidelines on clinical decisions...
  79. doi A painful inheritance-patient perspectives on living with polycystic kidney disease: thematic synthesis of qualitative research
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW 2006, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW 2145, Australia
    Nephrol Dial Transplant 30:790-800. 2015
    ..These outcomes are well described, but patient perspectives and experiences of living with ADPKD are under-recognized...
  80. doi The preferences and perspectives of nephrologists on patients' access to kidney transplantation: a systematic review
    Allison Tong
    1 Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia 2 Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia 3 Centre for Transplant and Renal Research, Westmead Hospital, NSW, Westmead, Australia 4 Department of Nephrology, Charite Universitatsmedizin, Berlin, Germany 5 Department for Psychosomatic Medicine, Charite Universitatsmedizin, Berlin, Germany 6 Address correspondence to Allison Tong, Ph D, Centre for Kidney Research, The Children s Hospital at Westmead, Westmead NSW 2145, Australia
    Transplantation 98:682-91. 2014
    ..Evidence-based guidelines may support systematic and equitable decision-making. Interventions for high-risk or disadvantaged patient populations could reduce disparities in access to transplantation. ..
  81. doi Patient and caregiver perspectives on home hemodialysis: a systematic review
    Rachael C Walker
    Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia Hawke s Bay District Health Board, Hawke s Bay, New Zealand Electronic address
    Am J Kidney Dis 65:451-63. 2015
    ..We describe patient and caregiver perspectives and experiences of home HD to inform home HD programs that align with patient preferences...
  82. ncbi Meta-analysis of biochemical and patient-level effects of calcimimetic therapy
    Giovanni F M Strippoli
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Cochrane Renal Group, School of Public Health, University of Sydney, Australia
    Am J Kidney Dis 47:715-26. 2006
    ..We conducted a meta-analysis to evaluate outcomes of therapy with these novel agents...
  83. doi Patient perspectives of a young adult renal clinic: a mixed-methods evaluation
    Allison Tong
    Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, New South Wales, Australia
    Nephrology (Carlton) 20:352-9. 2015
    ..We aimed to evaluate a young adult renal clinic (YAC) intervention that included a multidisciplinary clinic and social programme...
  84. doi Perspectives on pregnancy in women with chronic kidney disease: systematic review of qualitative studies
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Westmead, NSW, Australia
    Nephrol Dial Transplant 30:652-61. 2015
    ..Achieving parenthood in women with chronic kidney disease (CKD) is challenging due to reduced fertility and the risk of adverse outcomes. We aimed to describe women's perspectives of pregnancy in CKD...
  85. doi Knowledge deficit of patients with stage 1-4 CKD: a focus group study
    Pamela A Lopez-Vargas
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Sydney Children s Hospitals Network, Sydney, New South Wales, Australia
    Nephrology (Carlton) 19:234-43. 2014
    ..The aim of this study was to elicit the perspectives of patients with stage 1-4 CKD about their disease, with a specific focus on their information needs in managing and living with CKD and its sequelae...
  86. ncbi Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups
    Allison Tong
    School of Public Health, University of Sydney, NSW, Australia
    Int J Qual Health Care 19:349-57. 2007
    ..Although partial checklists are available, no consolidated reporting framework exists for any type of qualitative design...
  87. doi An analysis of media coverage on the prevention and early detection of CKD in Australia
    Allison Tong
    NHMRC Centre for Clinical Research Excellence in Renal Medicine, Centre for Kidney Research, Children s Hospital at Westmead, Westmead, NSW, Australia
    Am J Kidney Dis 52:159-70. 2008
    ..Extending news media coverage can help exert an influence on health policies and agenda setting and increase public awareness to improve prevention and early detection of CKD...
  88. pmc Radiologists' perspectives about evidence-based medicine and their clinical practice: a semistructured interview study
    Allison Tong
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, New South Wales, Australia
    BMJ Open 4:e006199. 2014
    ..To describe radiologist's attitudes and perspectives on evidence-based medicine (EBM) and their practice...
  89. doi Parental perspectives on evaluation and management of fever in young infants: an interview study
    Sukanya De
    Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia Centre for Kidney Research, The Children s Hospital at Westmead, Sydney, New South Wales, Australia
    Arch Dis Child 99:717-23. 2014
    ..This study aimed to describe the perspectives of parents of young infants presenting to hospital with fever...
  90. ncbi Antimicrobial agents to prevent peritonitis in peritoneal dialysis: a systematic review of randomized controlled trials
    Giovanni F M Strippoli
    Centre for Kidney Research, National Health and Medical Research Council Centre for Clinical Research Excellence in Renal Medicine, Cochrane Renal Group, Children s Hospital at Westmead, University of Sydney, Sydney, Australia
    Am J Kidney Dis 44:591-603. 2004
    ..Oral, nasal, and topical antibiotic prophylaxis; exit-site disinfectants; and other antimicrobial interventions are used to prevent it. This study was conducted to assess what evidence supports these approaches...