- The ethics of neonatal research: An ethicist's and a parents' perspective
Department of Pediatrics and Clinical Ethics, University of Montreal, Montreal, Canada Sainte Justine Hospital Research Center, Montreal, Quebec, Canada Electronic address
Semin Fetal Neonatal Med 20:436-41. 2015
..Following a review of the history of research ethics, this article examines and discusses the ethics of research in neonatology. In addition, challenges and opportunities are identified and ideas for future investigations are proposed. ..
- Medical interventions for children with trisomy 13 and trisomy 18: what is the value of a short disabled life?
Department of Pediatrics and Clinical Ethics, Neonatology and Clinical Ethics, Sainte Justine Hospital, University of Montreal, Montreal, QC, Canada
Acta Paediatr 102:1112-7. 2013
..Resource allocation considerations are often invoked to withhold LSI for T13 or T18 even though they are seldom mentioned for older patients with comparable outcomes...
- End-of-life decisions for extremely low-gestational-age infants: why simple rules for complicated decisions should be avoided
Department of Pediatrics and Clinical Ethics, University of Montreal Neonatology and Clinical Ethics, Sainte Justine Hospital, Montreal, Quebec, Canada H3T 1C5 Electronic address
Semin Perinatol 38:31-7. 2014
..The aim should be to establish individualized goals of care with families while recognizing uncertainty, rather than acting on labels derived from gestational age categories alone. ..
- Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology
Department of Pediatrics and Clinical Ethics, University of Montreal, Montreal, Quebec, Canada Sainte Justine Hospital, Montreal, Quebec, Canada Electronic address
Semin Perinatol 38:38-46. 2014
..6) Emotions: relational aspects of decision making which include the following: emotions, social supports, coping with uncertainty, adaptation, and resilience. In this paper, we consider some aspects of this complex process. ..
- Antenatal counselling for parents facing an extremely preterm birth: limitations of the medical evidence
Division of Neonatology and Clinical Ethics, Department of Pediatrics, University of Montreal, Sainte Justine Hospital, Montreal, QC, Canada
Acta Paediatr 101:800-4. 2012
..Statistics are difficult to understand at any time. Rational decision-making may be difficult when taking life-and-death decisions. Furthermore, the role of emotions is not discussed in peri-viability guidelines...
- I would never want this for my baby
Department of Pediatrics Neonatology, McGill University, Montreal, Quebec, Canada
Pediatr Crit Care Med 10:113-4. 2009
..To explore end-of-life issues and so-called futile care by narrative...
- Relationship between site of training and residents' attitudes about neonatal resuscitation
McGill University, Department of Pediatrics, Montreal, Quebec, Canada
Arch Pediatr Adolesc Med 162:532-7. 2008
- The experience of families with children with trisomy 13 and 18 in social networks
Department of Pediatrics and Clinical Ethics, University of Montreal, Neonatologist and Clinical Ethicist, Sainte Justine Hospital, 3175 Chemin Cote Sainte Catherine, Montreal QC, H3T 1C5 Canada
Pediatrics 130:293-8. 2012
..For these reasons, interventions are generally not recommended by providers. After a diagnosis, parents may turn to support groups for additional information...
- Ethics ain't easy: do we need simple rules for complicated ethical decisions?
Paediatrics, McGill University, Montreal, Quebec, Canada
Acta Paediatr 97:402-6. 2008
..Recommendations from national bodies regarding extremely preterm infants have focussed almost exclusively on thresholds for intervention based upon estimated gestational age (GA) alone...
- An infant with trisomy 18 and a ventricular septal defect
Department of Pediatrics, University of Montreal, Montreal, Quebec, Canada
Pediatrics 127:754-9. 2011
..We presented the case of an infant with trisomy 18 to 2 neonatologists with experience in clinical ethics, Annie Janvier and Felix Okah, and to a parent, Barbara Farlow. They do not agree about the right thing to do.
- Are newborns morally different from older children?
McGill University, Montreal, Quebec, Canada
Theor Med Bioeth 28:413-25. 2007
- The influence of family characteristics on perinatal decision making
Kirstie R Marcello
Thomas Jefferson University, Philadelphia, Pennsylvania, USA
Pediatrics 127:e934-9. 2011
..To determine whether parental characteristics affect estimates of best interests and intervention decisions for preterm infants...
- Whom are we comforting? An analysis of comfort medications delivered to dying neonates
Pediatrics and Clinical Ethics, Universite de Montreal, Montreal, Quebec, Canada
J Pediatr 159:206-10. 2011
..To clarify the use of end-of-life comfort medications or neuromuscular blockers (NMBs) in culturally different neonatal intensive care units (NICUs)...
- Evolving neonatal steroid prescription habits and patient outcomes
Neonatology Division, Department of Pediatrics, Centre Hospitalier Universitaire de Sherbrooke, Sherbrooke University, Sherbrooke, QC, Canada
Acta Paediatr 102:799-804. 2013
..Indications for post-natal steroids among preterm infants are evolving. The objective of this study was to compare steroid use in 2 cohorts 5 years apart and to document the short- and long-term outcomes of our most recent cohort...
- The ethics of neonatal resuscitation at the margins of viability: informed consent and outcomes
Division of Neonatology, Royal Victoria Hospital, Montreal, Quebec, Canada
J Pediatr 147:579-85. 2005
- Cohort study of probiotics in a North American neonatal intensive care unit
Centre hospitalier universitaire Sainte Justine, Montreal, Quebec, Canada
J Pediatr 164:980-5. 2014
..To determine whether routine probiotic administration to very preterm infants would reduce the incidence of necrotizing enterocolitis (NEC) without adverse consequences...
- Apnea is associated with neurodevelopmental impairment in very low birth weight infants
McGill University Department of Paediatrics and the Royal Victoria Hospital, Montreal, Quebec H3A 1A1, Canada
J Perinatol 24:763-8. 2004
..To determine whether apnea in preterm infants is associated with abnormal neurodevelopmental outcome...
- The paediatric consequences of Assisted Reproductive Technologies, with special emphasis on multiple pregnancies
Keith J Barrington
CHU Sainte Justine, Montreal, QC, Canada
Acta Paediatr 102:340-8. 2013
..Although in most cases, there are no adverse health consequences, assisted reproductive technologies (ART) are associated with some risks that are reviewed in this article...
- The best-interest standard is not applied for neonatal resuscitation decisions
Department of Pediatrics, McGill University, Montreal, Quebec H3A 1A1, Canada
Pediatrics 121:963-9. 2008
..Legal and ethical standards require resuscitation when it is considered to be in the patient's best interest. We hypothesized that newborn infants might be dealt with according to different standards, compared with older patients...
- Later rather than sooner: the impact of clinical management on timing and modes of death in the last decade
Neonatology and Clinical Ethics, Universite de Montreal, Sainte Justine Hospital, Montreal, QC, Canada
Acta Paediatr 103:1148-52. 2014
..Technological and clinical advances have reduced neonatal deaths, and this study explored how the mode and timing of neonatal deaths has changed in a tertiary neonatal intensive care unit (NICU) over 10 years...
- Ethics and etiquette in neonatal intensive care
Department of Pediatrics and Clinical Ethics, Universite de Montreal, Neonatology and Clinical Ethics, Hopital Sainte Justine, Montreal, Quebec, Canada
JAMA Pediatr 168:857-8. 2014
..These specific and practical recommendations may help parents feel well treated and respected as they go through a challenging NICU stay. ..
- The epidemic of multiple gestations and neonatal intensive care unit use: the cost of irresponsibility
Department of Pediatrics, University of Montreal, Montreal, Quebec, Canada
J Pediatr 159:409-13. 2011
- The significance of intrauterine growth restriction is different from prematurity for the outcome of infants with gastroschisis
Pramod S Puligandla
Montreal Children s Hospital, Montreal, Quebec, Canada
J Pediatr Surg 39:1200-4. 2004
..The authors compared the outcomes of intrauterine growth-restricted infants (IUGR) with gastroschisis to those without growth restriction because IUGR is different from prematurity...