M J Esplen
Affiliation: University of Toronto
- Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndromeM J Esplen
Behavioral Sciences and Health Research Division, Toronto General Research Institute, University Health Network, Toronto, Canada
Clin Genet 80:415-23. 2011..37, p < 0.001). The scale's performance was stable across participant characteristics. This new scale for measuring self-concept has potential to be used as a clinical tool and as a measure for future studies...
- Colorectal cancer survivors undergoing genetic testing for hereditary non-polyposis colorectal cancer: motivational factors and psychosocial functioningM J Esplen
Behavioral Sciences and Health Research Division, Toronto General Research Institute, University Health Network, Toronto, Ontario, Canada
Clin Genet 72:394-401. 2007..Findings have implications for future research and potential support needs during the genetic counseling and testing process...
- The FAP self-concept scale (adult form)Mary Jane Esplen
Behavioral Sciences and Health Research Division, Toronto General Research Institute, University Health Network, E 9 242A, 200 Elizabeth Street, Toronto, ON, Canada
Fam Cancer 8:39-50. 2009..A diagnosis of FAP may alter a person's self-concept, which in turn may impact on an individual's quality of life and screening behaviors...
- The BRCA Self-Concept Scale: a new instrument to measure self-concept in BRCA1/2 mutation carriersMary Jane Esplen
Behavioral Sciences and Health, Toronto General Research Institute, University Health Network, Toronto, Ont, Canada M5G 2C4
Psychooncology 18:1216-29. 2009..The centrality of a person's self-concept in maintaining physical and psychosocial well-being has been well recognized; however, to date research exploring altered self-concept related to carrier knowledge is limited...
- A multicenter study of supportive-expressive group therapy for women with BRCA1/BRCA2 mutationsMary Jane Esplen
Behavioral Sciences and Health Research Division, University Health Network, University of Toronto, Toronto, Ontario, Canada
Cancer 101:2327-40. 2004..The current study developed, standardized, and conducted preliminary testing of a supportive-expressive group therapy intervention designed to address these challenges...
- Quality of life in adults diagnosed with familial adenomatous polyposis and desmoid tumorMary Jane Esplen
Division of Behavioral Sciences and Health, Toronto General Research Institute, University Health Network and Faculty of Medicine and Nursing, University of Toronto, Toronto, Canada
Dis Colon Rectum 47:687-95; discussion 695-6. 2004..The purpose of this study was to examine the health-related quality of life in a sample of Canadian adults diagnosed with familial adenomatous polyposis and desmoid tumor...
- The experience of loss and anticipation of distress in colorectal cancer patients undergoing genetic testingMary Jane Esplen
Familial Gastrointestinal Cancer Registry, Mount Sinai Hospital, 600 University Avenue, M5G 1X5 Toronto, ON, Canada
J Psychosom Res 55:427-35. 2003..We also explored the relationship among demographic, medical, family history and loss variables and current pretest distress, and those related to anticipated posttest distress...
- A supportive-expressive group intervention for women with a family history of breast cancer: results of a phase II studyM J Esplen
Department of Psychiatry, Mount Sinai Hospital, Toronto, Ontario, Canada
Psychooncology 9:243-52. 2000..Evidence suggests that there are significant psychological and behavioural sequelae associated with having a family history of breast cancer (BC) which can interfere with comprehension of risk estimates...
- Motivations and psychosocial impact of genetic testing for HNPCCM J Esplen
Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada
Am J Med Genet 103:9-15. 2001..These preliminary findings should be further explored in a larger prospective study design over multiple time points...
- Long-term psychosocial and behavioral adjustment in individuals receiving genetic test results in Lynch syndromeM J Esplen
University Health Network, Toronto, Canada Department of Psychiatry, Faculty of Medicine, University of Toronto, Toronto, Canada de Souza Institute, Toronto, Canada
Clin Genet 87:525-32. 2015..In summary, most individuals adapt to genetic test results over the long term and continue to engage in screening. A subgroup, including some non-carriers, may require added psychosocial support. ..
- Quality of life and functional outcome for individuals who underwent very early colectomy for familial adenomatous polyposisC A Durno
Department of Surgery, University of Toronto, Toronto, Ontario, Canada
Dis Colon Rectum 55:436-43. 2012..There is a group of children who develop polyps at a younger age requiring earlier colectomy. Little is known about this very young subgroup in relation to bowel function or quality of life...
- An investigation of the disclosure process and support needs of BRCA1 and BRCA2 carriersJordana Segal
Department of Psychiatry, Mount Sinai Hospital, Toronto, Ontario, Canada
Am J Med Genet A 125:267-72. 2004..Both disclosed and non-disclosed carriers demonstrated significant interest in a variety of interventions to support the disclosure process...
- Supportive-expressive group psychotherapy for persons with inflammatory bowel diseaseR G Maunder
Department of Psychiatry, University of Toronto, Mount Sinai Hospital, Toronto, Ontario
Can J Psychiatry 46:622-6. 2001..Supportive-expressive (SE) group psychotherapy is designed to be applicable to medically ill populations. In this open trial, SE therapy was adapted for use in treating inflammatory bowel disease (IBD)...
- Pancreatic cancer risk counselling and screening: impact on perceived risk and psychological functioningChristine Maheu
York University, Toronto, ON, Canada
Fam Cancer 9:617-24. 2010....
- Psychosocial functioning in women who have undergone bilateral prophylactic mastectomyKelly A Metcalfe
Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada
Psychooncology 13:14-25. 2004....
- Predictors of quality of life in women with a bilateral prophylactic mastectomyKelly A Metcalfe
The Center for Research in Women s Health, Sunnybrook and Women s College Health Sciences Center, University of Toronto, Toronto, Ontario, Canada
Breast J 11:65-9. 2005..Vulnerability and psychological distress are important predictors of quality of life in women who have previously undergone bilateral prophylactic mastectomy...
- Facilitating adjustment to inflammatory bowel disease: a model of psychosocial intervention in non-psychiatric patientsR Maunder
Department of Psychiatry, University of Toronto, and Department of Psychiatry and IBD Centre, Mount Sinai Hospital, Toronto, Ontario, Canada
Psychother Psychosom 68:230-40. 1999..A model of normal psychosocial adjustment to IBD and the interventions which can improve difficulties with adjustment will facilitate rational therapeutic intervention and needed research in this area...
- The phases of disclosing BRCA1/2 genetic information to offspringSusan Clarke
Lawrence Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada
Psychooncology 17:797-803. 2008..Our study examines the experiences of BRCA1/2 carriers in communicating genetic information to their offspring using a grounded theory approach...
- Alleviating existential distress of cancer patients: can relational ethics guide clinicians?D Leung
Lawrence S Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada
Eur J Cancer Care (Engl) 19:30-8. 2010..Implications for oncology care are suggested at the micro-, meso- and macro-levels to encourage clinicians to ethically respond to patients' existential distress needs...
- Attitudes toward genetic testing in patients with inflammatory bowel diseaseSimon Lal
Inflammatory Bowel Disease Centre, Division of Gastroenterology, Mount Sinai Hospital, Toronto, Ontario, Canada
Eur J Gastroenterol Hepatol 19:321-7. 2007..The aim of this study was to evaluate the attitudes of patients with inflammatory bowel disease toward genetic testing...
- Mapping the human genome: psychosocial impacts and implications for nursingMary Jane Esplen
Faculty of Medicine and Faculty of Nursing, University of Toronto, Ontario, Canada
Can J Nurs Res 38:115-22. 2006
- A couples intervention for patients facing advanced cancer and their spouse caregivers: outcomes of a pilot studyLinda M McLean
Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Toronto, Ontario, Canada
Psychooncology 17:1152-6. 2008..A secondary objective was to determine its impact on other symptoms of psychosocial distress and its feasibility and acceptability as a clinical intervention...
- Relatives of colorectal cancer patients: factors associated with screening behaviorLisa Madlensky
Institute of Medical Science, University of Toronto, Toronto, Ontario, Canada
Am J Prev Med 25:187-94. 2003....
- Reasons given by relatives of colorectal cancer patients for not undergoing screeningLisa Madlensky
Institute of Medical Science, University of Toronto, Ontario, Canada
Prev Med 39:643-8. 2004..Little is known about the reasons why this group chooses not to be screened, and understanding these reasons has implications for the development of tailored interventions...
- The educational needs and professional roles of Canadian physicians and nurses regarding genetic testing and adult onset hereditary diseaseJoan L Bottorff
School of Nursing, University of British Columbia, Vancouver, Canada
Community Genet 8:80-7. 2005..To investigate the knowledge, professional involvement and confidence of Canadian nurses and physicians in providing genetic services for adult onset hereditary disease...
- Canadian nursing in the genomic era: a call for leadershipJoan L Bottorff
Nursing and Health Behaviour Research Unit, School of Nursing, University of British Columbia Vancouver, BC
Nurs Leadersh (Tor Ont) 18:56-72. 2005..Issues that need to be addressed related to nursing practice, education and research are offered to engage nursing leaders in advocating for the incorporation of genomics into nursing in Canada...
- International perspectives on genetic counseling and testing for breast cancer riskBettina Meiser
Psychosocial Research Group, Department of Medical Oncology, Prince of Wales Hospital, Dickinson 3, Randwick, NSW, Australia
Breast Dis 27:109-25. 2006....
- Nursing and geneticsJoan L Bottorff
School of Nursing, Nursing and Health Behaviour Research Unit, University of British Columbia, Vancouver
Can Nurse 100:24-8. 2004
- Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer RegistryKelly Kohut
J Med Genet 44:404-7. 2007..Hereditary non-polyposis colorectal cancer (HNPCC) is a genetic predisposition to colorectal and certain other cancers. Effective screening that can prevent colorectal cancer is an important incentive for genetic testing...
- Establishing roles in genetic nursing: interviews with Canadian nursesJoan L Bottorff
Faculty of Health and Social Development, University of British Columbia Okanagan, Kelowna, Canada
Can J Nurs Res 37:96-115. 2005..A coordinated national effort among all stakeholders is needed to provide the resources necessary to support the appropriate and effective use of nursing expertise as genetics is integrated into the Canadian health-care system...