confidentiality

Summary

Summary: The privacy of information and its protection against unauthorized disclosure.

Top Publications

  1. pmc A multidisciplinary approach to honest broker services for tissue banks and clinical data: a pragmatic and practical model
    Rajiv Dhir
    Department of Pathology, University of Pittsburgh, UPMC Shadyside Presbyterian Hospital, Pittsburgh, Pennsylvania 15232, USA
    Cancer 113:1705-15. 2008
  2. pmc A research agenda for personal health records (PHRs)
    David C Kaelber
    Partners HealthCare Information Systems, Boston MA, USA
    J Am Med Inform Assoc 15:729-36. 2008
  3. ncbi Current medicolegal and confidentiality issues in large, multicenter research programs
    P A Carney
    Norris Cotton Cancer Center, Department of Community and Family Medicine, Dartmouth Medical School, Hanover Lebanon, NH, USA
    Am J Epidemiol 152:371-8. 2000
  4. pmc Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibility
    Nicole Angotti
    University of Texas at Austin, TX, USA
    Soc Sci Med 68:2263-70. 2009
  5. pmc Evaluating re-identification risks with respect to the HIPAA privacy rule
    Kathleen Benitez
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:169-77. 2010
  6. ncbi The MITRE Identification Scrubber Toolkit: design, training, and assessment
    John Aberdeen
    The MITRE Corporation, 202 Burlington Rd, Bedford, MA 01730, United States
    Int J Med Inform 79:849-59. 2010
  7. pmc Protecting privacy using k-anonymity
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario K1J 8L1, Canada
    J Am Med Inform Assoc 15:627-37. 2008
  8. doi The adequacy of informed consent forms in genetic research in Oman: a pilot study
    Asya Al-Riyami
    Ministry of Health, Oman and Research and Ethics Committee, Sultanate of Oman
    Dev World Bioeth 11:57-62. 2011
  9. pmc Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak
    Khaled El Emam
    CHEO Research Institute, Smyth Road, Ottawa, K1H 8L1, Canada
    BMC Public Health 11:454. 2011
  10. pmc Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us study
    Sheana S Bull
    MPH, Colorado School of Public Health, University of Colorado Denver, 13001 East 17th Place, Building 500, Campus Box B 119, Aurora, CO 80045, USA
    J Pediatr Psychol 36:1082-92. 2011

Detail Information

Publications257 found, 100 shown here

  1. pmc A multidisciplinary approach to honest broker services for tissue banks and clinical data: a pragmatic and practical model
    Rajiv Dhir
    Department of Pathology, University of Pittsburgh, UPMC Shadyside Presbyterian Hospital, Pittsburgh, Pennsylvania 15232, USA
    Cancer 113:1705-15. 2008
    ..This complex process needs resolution of a variety of issues regarding the precise role of the HB and their interaction with data. There also is an obvious need for software solutions to make the task of deidentification easier...
  2. pmc A research agenda for personal health records (PHRs)
    David C Kaelber
    Partners HealthCare Information Systems, Boston MA, USA
    J Am Med Inform Assoc 15:729-36. 2008
    ..We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency...
  3. ncbi Current medicolegal and confidentiality issues in large, multicenter research programs
    P A Carney
    Norris Cotton Cancer Center, Department of Community and Family Medicine, Dartmouth Medical School, Hanover Lebanon, NH, USA
    Am J Epidemiol 152:371-8. 2000
    ..sites to a single data repository; however, standards for managing data security are needed to protect the confidentiality of participants...
  4. pmc Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibility
    Nicole Angotti
    University of Texas at Austin, TX, USA
    Soc Sci Med 68:2263-70. 2009
    ..Our study suggests that attention to these factors in VCT strategies may mitigate the fear of HIV testing, and ultimately increase uptake in rural African settings...
  5. pmc Evaluating re-identification risks with respect to the HIPAA privacy rule
    Kathleen Benitez
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:169-77. 2010
    ....
  6. ncbi The MITRE Identification Scrubber Toolkit: design, training, and assessment
    John Aberdeen
    The MITRE Corporation, 202 Burlington Rd, Bedford, MA 01730, United States
    Int J Med Inform 79:849-59. 2010
    ....
  7. pmc Protecting privacy using k-anonymity
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario K1J 8L1, Canada
    J Am Med Inform Assoc 15:627-37. 2008
    ..To alleviate such concerns, it is possible to anonymize the data before disclosure. One popular anonymization approach is k-anonymity. There have been no evaluations of the actual re-identification probability of k-anonymized data sets...
  8. doi The adequacy of informed consent forms in genetic research in Oman: a pilot study
    Asya Al-Riyami
    Ministry of Health, Oman and Research and Ethics Committee, Sultanate of Oman
    Dev World Bioeth 11:57-62. 2011
    ..relevant to health would be disclosed, whether participants may share in commercial products, the extent of confidentiality protections, and the inclusion of additional consent forms for future storage and use of tissue samples...
  9. pmc Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak
    Khaled El Emam
    CHEO Research Institute, Smyth Road, Ottawa, K1H 8L1, Canada
    BMC Public Health 11:454. 2011
    ..Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak...
  10. pmc Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us study
    Sheana S Bull
    MPH, Colorado School of Public Health, University of Colorado Denver, 13001 East 17th Place, Building 500, Campus Box B 119, Aurora, CO 80045, USA
    J Pediatr Psychol 36:1082-92. 2011
    ..To consider issues related to research with youth on social networking sites online...
  11. pmc A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registers
    Tim Churches
    Centre for Epidemiology and Research, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
    BMC Med Res Methodol 3:1. 2003
    ..However, growing concern over the privacy and confidentiality aspects of disease registers may hinder their future operation...
  12. pmc Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore
    Ayesha Humayun
    Department of Community Health Sciences, FMH College of Medicine and Dentistry, Lahore, Pakistan
    BMC Med Ethics 9:14. 2008
    The principles of informed consent, confidentiality and privacy are often neglected during patient care in developing countries. We assessed the degree to which doctors in Lahore adhere to these principles during outpatient consultations.
  13. pmc Women's views on consent, counseling and confidentiality in PMTCT: a mixed-methods study in four African countries
    Anita Hardon
    Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, The Netherlands
    BMC Public Health 12:26. 2012
    ..This paper focuses on the quality of information provision and counseling and disclosure patterns in Burkina Faso, Kenya, Malawi and Uganda to identify how services can be improved to enable better PMTCT outcomes...
  14. pmc The disclosure of diagnosis codes can breach research participants' privacy
    Grigorios Loukides
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:322-7. 2010
    ....
  15. doi Online posting of unprofessional content by medical students
    Katherine C Chretien
    Medical Service, Washington DC VA Medical Center and Department of Medicine, George Washington University School of Medicine and Health Sciences, Washington, DC 20422, USA
    JAMA 302:1309-15. 2009
    ..Web 2.0 applications, such as social networking sites, are creating new challenges for medical professionalism. The scope of this problem in undergraduate medical education is not well-defined...
  16. pmc Sharing medical data for health research: the early personal health record experience
    Elissa R Weitzman
    Department of Pediatrics, Harvard Medical School, Boston, United States
    J Med Internet Res 12:e14. 2010
    ..Understanding consumer willingness to share data is critical to advancing this model...
  17. pmc Content of weblogs written by health professionals
    Tara Lagu
    Robert Wood Johnson Clinical Scholars Program, University of Pennsylvania, Philadelphia, PA 19104, USA
    J Gen Intern Med 23:1642-6. 2008
    ..Medical weblogs ("blogs") have emerged as a new connection between health professionals and the public...
  18. ncbi Attitudes to voluntary counselling and testing for HIV among pregnant women in rural south-west Uganda
    R Pool
    Medical Research Council Programme on AIDS in Uganda, Entebbe, Uganda
    AIDS Care 13:605-15. 2001
    ..They were anxious, however, about confidentiality, and there was a widespread fear that maternity staff might refuse to assist them when the time came to ..
  19. pmc A globally optimal k-anonymity method for the de-identification of health data
    Khaled El Emam
    CHEO Research Institute, 401 Smyth Road, Ott, ON K1H8L1, Canada
    J Am Med Inform Assoc 16:670-82. 2009
    ..Often legislative requirements to obtain consent are waived if the information collected or disclosed is de-identified...
  20. pmc Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study
    Fasil Tekola
    School of Public Health, Addis Ababa University, Addis Ababa, Ethiopia
    BMC Med Ethics 10:13. 2009
    ..The aim of this study was to explore the impact of social stigma on the process of obtaining consent for a study on the genetics of podoconiosis in Southern Ethiopia...
  21. ncbi Research use of linked health data--a best practice protocol
    C W Kelman
    Department of Health and Ageing, Canberra, ACT
    Aust N Z J Public Health 26:251-5. 2002
    ..This approach is designed to promote confidence in the community and among data custodians that there are benefits of linked health information being used and that individual privacy is being rigorously protected...
  22. ncbi A computational model to protect patient data from location-based re-identification
    Bradley Malin
    Department of Biomedical Informatics, Eskind Biomedical Library, Fourth Floor, 2209 Garland Avenue, Vanderbilt University, Nashville, TN 37232 8340, USA
    Artif Intell Med 40:223-39. 2007
    ..In this paper, we develop and evaluate computational methods that health care organizations can apply to disclose patient-specific DNA records that are impregnable to trail re-identification...
  23. pmc Protecting count queries in study design
    Staal A Vinterbo
    Division of Biomedical Informatics, Department of Medicine, University of California San Diego, La Jolla, California 92093 0728, USA
    J Am Med Inform Assoc 19:750-7. 2012
    ..The goal of this study is to extend current query answer systems to guarantee a quantifiable level of privacy and allow users to tailor perturbations to maximize the usefulness according to their needs...
  24. pmc Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms
    Holly K Tabor
    Department of Pediatrics, University of Washington, Seattle, Washington, USA
    Am J Med Genet A 158:1310-9. 2012
    Scientific evidence on the extent to which ethical concerns about privacy, confidentiality, and return of results for whole genome sequencing (WGS) are effectively conveyed by informed consent (IC) is lacking...
  25. ncbi Large medical databases, population-based research, and patient confidentiality
    G E Simon
    Center ofr Health Studies, Group Health Cooperative, Seattle, WA 98101 1448, USA
    Am J Psychiatry 157:1731-7. 2000
    ..This article is a discussion of the use of large clinical databases in population-based research on psychiatric disorders...
  26. pmc Associations between mode of HIV testing and consent, confidentiality, and referral: a comparative analysis in four African countries
    Carla Makhlouf Obermeyer
    Center for Research on Population and Health, American University of Beirut, Beirut, Lebanon
    PLoS Med 9:e1001329. 2012
    ..This paper examines whether practices regarding consent, confidentiality, and referral vary depending on whether testing is provided through voluntary counseling and testing (VCT) or ..
  27. ncbi Nepal: Supreme Court makes landmark decisions on LGBTI rights and the right to confidentiality
    Sandra Ka Hon Chu
    HIV AIDS Policy Law Rev 13:62-4. 2008
  28. pmc Evaluating common de-identification heuristics for personal health information
    Khaled El Emam
    CHEO Research Institute, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada
    J Med Internet Res 8:e28. 2006
    ..De-identification heuristics are provided in the Health Insurance Portability and Accountability Act Privacy Rule, funding agency and professional association privacy guidelines, and common practice...
  29. ncbi Storing newborn blood spots: modern controversies
    Linda Kharaboyan
    Centre de recherche en droit public, University of Montreal
    J Law Med Ethics 32:741-8. 2004
  30. pmc Ethics and biobanks
    M G Hansson
    1Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics, Uppsala University, Uppsala Science Park, Uppsala SE 751 85, Sweden
    Br J Cancer 100:8-12. 2009
    ..The difficult question regarding the return of information to research subjects is the focus of the current research, but a helpful analysis of some of the issues at stake and concrete recommendations have recently been suggested...
  31. ncbi Advocating prevention over punishment: the risks of HIV criminalization in Burkina Faso
    Patrice Sanon
    Réseau Accès aux Médicaments Essentiels RAME, Ouagadougou, Burkina Faso
    Reprod Health Matters 17:146-53. 2009
    ..The Burkina Faso law offers a number of protections for people with HIV, such as confidentiality of HIV test results, and holds the government accountable for providing health services for people with HIV ..
  32. pmc The inadvertent disclosure of personal health information through peer-to-peer file sharing programs
    Khaled El Emam
    Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
    J Am Med Inform Assoc 17:148-58. 2010
    ..We wanted to estimate the extent to which personal health information (PHI) is being disclosed in this way, and compare that to the extent of disclosure of personal financial information (PFI)...
  33. pmc Protected health information on social networking sites: ethical and legal considerations
    Lindsay A Thompson
    University of Florida, Department of Pediatrics, Gainesville, FL, United States
    J Med Internet Res 13:e8. 2011
    ..However, it is unknown whether students and residents portray protected health information and under what circumstances or contexts...
  34. pmc Effects of personal identifier resynthesis on clinical text de-identification
    Reyyan Yeniterzi
    Faculty of Engineering and Natural Sciences, Sabanci University, Istanbul, Turkey
    J Am Med Inform Assoc 17:159-68. 2010
    ..The goal of this research is to evaluate the effectiveness and examine possible bias introduced by resynthesis on de-identification software...
  35. ncbi Ethical approaches to adolescent participation in sexual health research
    Sarah Flicker
    Faculty of Environmental Studies, York University, Toronto, Ontario, Canada
    J Adolesc Health 42:3-10. 2008
    ....
  36. pmc Strategies for maintaining patient privacy in i2b2
    Shawn N Murphy
    Laboratory of Computer Science, Massachusetts General Hospital, Boston, Massachusetts, USA
    J Am Med Inform Assoc 18:i103-8. 2011
    ..Some of these challenges arise from a misperception that the problem should be solved technically when actually the problem needs a holistic solution...
  37. pmc HIV patients' willingness to share personal health information electronically
    Paul A Teixeira
    Department of Biomedical Informatics, Columbia University, New York, NY 10032, USA
    Patient Educ Couns 84:e9-12. 2011
    ..To assess the attitudes of persons living with HIV/AIDS (PLWH) towards having their personal health information (PHI) stored and shared electronically...
  38. doi An open source toolkit for medical imaging de-identification
    David Rodríguez González
    National e Science Centre, School of Informatics, University of Edinburgh, Edinburgh, UK
    Eur Radiol 20:1896-904. 2010
    ..Our objective is to provide a flexible mechanism for anonymising Digital Imaging and Communications in Medicine (DICOM) data that meets the requirements for deployment in multicentre trials...
  39. pmc Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel
    Stephanie M Fullerton
    Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, 98195, USA
    BMC Med Ethics 12:16. 2011
    ....
  40. pmc A secure protocol for protecting the identity of providers when disclosing data for disease surveillance
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada
    J Am Med Inform Assoc 18:212-7. 2011
    Providers have been reluctant to disclose patient data for public-health purposes. Even if patient privacy is ensured, the desire to protect provider confidentiality has been an important driver of this reluctance.
  41. ncbi A data-hiding technique with authentication, integration, and confidentiality for electronic patient records
    Hui Mei Chao
    Department of Electrical Engineering, De Lin Institute of Technology, Taipei County, Taiwan, ROC
    IEEE Trans Inf Technol Biomed 6:46-53. 2002
    ..the "bipolar multiple-number base" was developed to provide capabilities of authentication, integration, and confidentiality for an electronic patient record (EPR) transmitted among hospitals through the Internet...
  42. doi Confidentiality and parental involvement in adolescent sexual and reproductive health care: a cross-sectional study of Lithuanian general practitioners
    Lina Jaruseviciene
    Department of Family Medicine, Kaunas University of Medicine, Lithuania
    Scand J Public Health 39:484-91. 2011
    We surveyed Lithuanian general practitioners' (GPs) views on the importance of confidentiality for adolescents and on their practices in informing parents about sexual and reproductive health consultations with this age group.
  43. ncbi How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems
    Bradley Malin
    Data Privacy Laboratory, School of Computer Science, Carnegie Mellon University, Pittsburgh, PA 15213 3890, USA
    J Biomed Inform 37:179-92. 2004
    ..We propose that such techniques can be applied as system tests of privacy protection capabilities...
  44. pmc Statutory basis for public health reporting beyond specific diseases
    Claire V Broome
    Centers for Disease Control and Prevention, Department of Health and Human Services, Atlanta, GA 30333, USA
    J Urban Health 80:i14-22. 2003
    ..The intent of these reporting laws and the Health Insurance Portability and Accountability Act Privacy Rule is to support this critical disease surveillance function for the benefit of the entire population...
  45. ncbi Experiences of physicians who frequently use e-mail with patients
    Thomas K Houston
    Department of Medicine, The Johns Hopkins University School of Medicine, Johns Hopkins University School of Hygiene and Public Health, Baltimore, MD 21205, USA
    Health Commun 15:515-25. 2003
    ..Increasing integration into practice to enhance time-saving aspects and improve patient education might lead to more sustained use of this promising communication tool...
  46. pmc A model for expanded public health reporting in the context of HIPAA
    Soumitra Sengupta
    Department of Biomedical Informatics, Columbia University, New York, NY, USA
    J Am Med Inform Assoc 15:569-74. 2008
    ..The appropriateness of these approaches varies with the definition of what data may be included, the requirements of the minimum necessary standard, the accounting of disclosures, and the feasibility of the approach...
  47. ncbi Patients' attitudes towards sharing their health information
    Richard Whiddett
    Department of Information Systems, Massey University, Palmerston North, New Zealand
    Int J Med Inform 75:530-41. 2006
    ..This research investigated (1) the attitudes of patients toward sharing their medical information and (2) whether patients considered themselves to be well-informed about the uses that are made of their information...
  48. ncbi Beyond "misunderstanding": written information and decisions about taking part in a genetic epidemiology study
    Mary Dixon-Woods
    University of Leicester, Leicester, UK
    Soc Sci Med 65:2212-22. 2007
    ..These questions need to be addressed through engagement and dialogue between the research, research participants, social science, and ethics communities...
  49. ncbi Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective
    Béatrice Godard
    INSERM SC11, Hopital Broussais, Paris, France
    Eur J Hum Genet 11:S88-122. 2003
    ..Such standardization would facilitate a greater protection of individuals as well as future international cooperation in biomedical research...
  50. pmc Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?
    Donald J Willison
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada
    BMC Med Ethics 10:10. 2009
    ..Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research...
  51. ncbi Ethics. Identifiability in genomic research
    William W Lowrance
    Science 317:600-2. 2007
  52. pmc Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?
    Donald J Willison
    Centre for Evaluation of Medicines, St Joseph s Healthcare, 105 Main Street East, P1, Hamilton, Ontario, Canada
    J Am Med Inform Assoc 14:706-12. 2007
    ..This study sought to determine public opinion on alternatives to project-specific consent for use of their personal information for health research...
  53. doi 2008 European Guideline on HIV testing
    M Poljak
    Faculty of Medicine, Institute of Microbiology and Immunology, University of Liubljana, Zatoska 4, 1000, Ljubljana, Slovenia
    Int J STD AIDS 20:77-83. 2009
    ..Its aim is to provide practical guidance to clinicians in these settings who undertake HIV testing and suggest appropriate standards for the audit of service provision...
  54. ncbi Confidentiality laws and secrecy in medical research: improving public access to data on drug safety
    Aaron S Kesselheim
    Division of Pharmacoepidemiology and Pharmacoeconomics, Brigham and Women s Hospital, Boston, Massachusetts, USA
    Health Aff (Millwood) 26:483-91. 2007
    ..We suggest regulatory and legislative policy changes regarding how the FDA handles confidential information that can improve understanding of the risks of prescription drugs...
  55. pmc Privacy versus public health: the impact of current confidentiality rules
    Daniel Wartenberg
    Department of Environmental and Occupational Medicine, Robert Wood Johnson Medical School, University of Medicine and Dentistry of New Jersey, Piscatawa, NJ 08854, USA
    Am J Public Health 100:407-12. 2010
    ..However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing ..
  56. doi USB-based Personal Health Records: an analysis of features and functionality
    Francine L Maloney
    Partners HealthCare, Clinical Informatics Research and Development, Wellesley, MA 02481, USA
    Int J Med Inform 79:97-111. 2010
    ..To determine the features of commercially available USB-based Personal Health Records (PHR) devices, and compare the commercial state of the art to recommendations made by certification committees...
  57. pmc A software tool for removing patient identifying information from clinical documents
    F Jeff Friedlin
    Regenstrief Institute, Indianapolis, IN 46202, USA
    J Am Med Inform Assoc 15:601-10. 2008
    ..We conclude that MeDS successfully de-identified a wide range of medical documents from numerous sources and creates scrubbed reports that retain their interpretability, thereby maintaining their usefulness for research...
  58. doi Genetic research on stored tissue samples from minors: a systematic review of the ethical literature
    Kristien Hens
    Katholieke Universiteit Leuven, Centre for Biomedical Ethics and Law, Leuven, Belgium
    Am J Med Genet A 149:2346-58. 2009
    ..We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic...
  59. pmc Patients' attitudes toward electronic health information exchange: qualitative study
    Steven R Simon
    Department of Population Medicine, Harvard Medical School and Harvard Pilgrim Health Care, Boston, MA 02215, USA
    J Med Internet Res 11:e30. 2009
    ..In many countries, there has been substantial progress in establishing the electronic transmission of patients' health information between health care providers, but little is known about how best to engage patients in the process...
  60. pmc Developing a simplified consent form for biobanking
    Laura M Beskow
    Center for Genome Ethics, Law and Policy, Duke Institute for Genome Sciences and Policy, Duke University, Durham, North Carolina, United States of America
    PLoS ONE 5:e13302. 2010
    ..We then gathered preliminary data concerning its content from hypothetical biobank participants...
  61. pmc Public health surveillance: historical origins, methods and evaluation
    S Declich
    Department of Epidemiology, University of Ottawa, Canada
    Bull World Health Organ 72:285-304. 1994
    ..Finally, some points to be considered in establishing a new surveillance system are presented...
  62. pmc Sharing patient data: competing demands of privacy, trust and research in primary care
    Margaret A Stone
    Department of Health Sciences, University of Leicester
    Br J Gen Pract 55:783-9. 2005
    ..Patient privacy may conflict with the advancement of knowledge through data sharing. The data contained in primary care records are uniquely comprehensive...
  63. doi Research on medical records without informed consent
    Franklin G Miller
    Department of Bioethics, National Institutes of Health, USA
    J Law Med Ethics 36:560-6. 2008
    ..This article analyzes the scope of these norms and provides an ethical justification for research using personally identifiable medical information without consent...
  64. pmc Consent, confidentiality, and the Data Protection Act
    Amy Iversen
    King s Centre for Military Health Research, King s College London, Institute of Psychiatry, London
    BMJ 332:165-9. 2006
  65. pmc Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue
    Donald J Willison
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada
    BMC Med Ethics 9:18. 2008
    ..We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues...
  66. ncbi The legal and ethical aspects of telemedicine. 1: Confidentiality and the patient's rights of access
    B Stanberry
    Seafarers International Research Centre, Department of Maritime Studies and International Transport, University of Wales, Cardiff, UK
    J Telemed Telecare 3:179-87. 1997
    This paper reviews the principle of confidentiality and the rights of access by patients to their medical records...
  67. ncbi Patient privacy and social media
    Amy L Hader
    American Association of Nurse Anesthetists, Park Ridge, Illinois, USA
    AANA J 78:270-4. 2010
    ..Facebook and other online postings must comply with the Health Insurance Portability and Accountability Act of 1996 (HIPAA), applicable facility policy, state law, and AANA's Code of Ethics...
  68. doi What do Islamic institutional fatwas say about medical and research confidentiality and breach of confidentiality?
    Ghiath Alahmad
    National Guard Health Affairs, King Abdullah International Research Center, P O Box 22490 mail code 1515 Riyadh 11426, Saudi Arabia
    Dev World Bioeth 12:104-12. 2012
    Protecting confidentiality is an essential value in all human relationships, no less in medical practice and research...
  69. ncbi Women's views of prenatal violence screening: acceptability and confidentiality issues
    Paula Rinard Renker
    The Ohio State University College of Nursing, Columbus, 43210, USA
    Obstet Gynecol 107:348-54. 2006
    ..The purpose of this research was to address the need for evidenced-based practices for violence screening by identifying women's perceptions of, and experiences with, prenatal violence screening...
  70. ncbi Factors influencing attitudes towards medical confidentiality among Swiss physicians
    B S Elger
    University Center of Legal Medicine of Geneva and Lausanne, Switzerland
    J Med Ethics 35:517-24. 2009
    Medical confidentiality is a core concept of professionalism and should be an integral part of pregraduate and postgraduate medical education...
  71. pmc Concerns over confidentiality may deter adolescents from consulting their doctors. A qualitative exploration
    J Carlisle
    Public Health, School of Health and Related Research, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK
    J Med Ethics 32:133-7. 2006
    ..This study sought to identify issues and concerns of adolescents, and their parents, in relation to confidentiality and teenagers' personal health information.
  72. ncbi Ethical considerations for clinical photography in the global South
    Tracy MacIntosh
    Friedman School of Nutrition Science and Policy, Tufts University, 150 Harrison Ave, Boston, MA, 02111
    Dev World Bioeth 6:81-8. 2006
    ....
  73. pmc Distributed data processing for public health surveillance
    Ross Lazarus
    Channing Laboratory, Department of Medicine, Brigham and Women s Hospital and Harvard Medical School, Boston, MA, USA
    BMC Public Health 6:235. 2006
    ....
  74. ncbi Should confidentiality in medicine be absolute?
    John Balint
    Alden March Bioethics Institute, Albany Medical College, USA
    Am J Bioeth 6:19-20; discussion W32-4. 2006
  75. ncbi Confidentiality preserving audits of electronic medical record access
    Bradley Malin
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, TN 37232, United States
    Stud Health Technol Inform 129:320-4. 2007
    ..We motivate the protocol in a real world medical center and then generalize the protocol for implementation in existing healthcare environments...
  76. ncbi A defense of unqualified medical confidentiality
    Kenneth Kipnis
    University of Hawaii, Manoa, USA
    Am J Bioeth 6:7-18. 2006
    It is broadly held that confidentiality may be breached when doing so can avert grave harm to a third party. This essay challenges the conventional wisdom...
  77. ncbi Consent revisited: points to consider
    Bartha Maria Knoppers
    Universite de Montreal Law Faculty, Centre de recherche en droit public CRDP, Canada
    Health Law Rev 13:33-8. 2005
  78. ncbi Medical information, confidentiality and a child's right to privacy
    Joan Loughrey
    University of Central Lancashire, UK
    Leg Stud (Soc Leg Scholars) 23:510-35. 2003
    Following the Gillick case in 1986, it was recognised that mature minors were owed a duty of confidentiality in respect of their medical information...
  79. ncbi Health information privacy and public health
    James G Hodge
    Georgetown University Law Center, USA
    J Law Med Ethics 31:663-71. 2003
  80. ncbi "Opt-out" testing for HIV in Africa: a caution
    Joanne Csete
    Lancet 363:493-4. 2004
  81. ncbi The next step in health data exchanges: trust and privacy in exchange networks
    Steve D Gravely
    Troutman Sanders LLP, Richmond, VA, USA
    J Healthc Inf Manag 23:33-7. 2009
    ..The evolving model for data exchange agreements is a multi-party trust agreement. This article will examine the crucial components of a multi-party trust agreement...
  82. ncbi Confidentiality issues for medical data miners
    Jules J Berman
    Pathology Informatics Cancer Diagnosis Program, DCTD, NCI, NIH, EPN Room 6028, 6130 Executive Building, Rockville, MD 20892, USA
    Artif Intell Med 26:25-36. 2002
    The first task in any medical data mining effort is ensuring patient confidentiality. In the past, most data mining efforts ensured confidentiality by the dubious policy of withholding their raw data from colleagues and the public...
  83. doi 'Confidentiality smokescreens' and carers for people with mental health problems: the perspectives of professionals
    Ben Gray
    All Wales Alliance for Research and Development in Health and Social Care, Institute of Medical and Social Care Research, University of Wales, Bangor, Wales
    Health Soc Care Community 16:378-87. 2008
    ..sharing between professionals and carers has failed to deal with the practical dilemmas of patient confidentiality. Professional codes and training neither explore nor develop the moral and ethical ground that stands between ..
  84. ncbi The effect of the new federal medical-privacy rule on research
    Jennifer Kulynych
    Association of American Medical Colleges, Washington, DC 20037, USA
    N Engl J Med 346:201-4. 2002
  85. ncbi Limits of confidentiality: Disclosure of HIV seropositivity
    James W Jones
    Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77030, USA
    J Vasc Surg 38:1443-4. 2003
  86. ncbi Learning from experience: privacy and the secondary use of data in health research
    William Lowrance
    J Health Serv Res Policy 8:S1:2-7. 2003
    ..Safeguards are an integral part of the research promise to the public, offer crucial reassurance and should be emphasised. For health services research, databases are core resources, and their stewardship must be cultivated...
  87. ncbi An ethical framework for sharing patient data without consent
    Robert Navarro
    Sapior Ltd, London, UK
    Inform Prim Care 16:257-62. 2008
    ....
  88. pmc Evaluating predictors of geographic area population size cut-offs to manage re-identification risk
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Pediatrics, Faculty of Medicine, University of Ottawa, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada
    J Am Med Inform Assoc 16:256-66. 2009
    ..Our objective is to estimate the population size cut-off at which a geographic area is sufficiently large so that no data suppression or further aggregation is necessary...
  89. doi Confidentiality and the telephone in family practice: a qualitative study of the views of patients, clinicians and administrative staff
    Brian McKinstry
    Centre for Population Health Sciences, University of Edinburgh, UK
    Fam Pract 26:344-50. 2009
    b>Confidentiality is considered a cornerstone of the medical consultation...
  90. ncbi Security in health-care information systems--current trends
    E Smith
    Rand Afrikaans University, Department of Computer Science, Auckland Park, South Africa
    Int J Med Inform 54:39-54. 1999
    ..computerised health-care information systems should, therefore, guarantee adequate protection of the confidentiality and integrity of patient information...
  91. pmc Inferential genotyping of Y chromosomes in Latter-Day Saints founders and comparison to Utah samples in the HapMap project
    Jane Gitschier
    Department of Medicine and Pediatrics and Institute for Human Genetics, University of California, San Francisco, CA 94143, USA
    Am J Hum Genet 84:251-8. 2009
    ....
  92. ncbi Medical ethics in surgical wards: knowledge, attitude and practice of surgical team members in Karachi
    B Shiraz
    Department of Surgery, Ziauddin Medical University Hospital, 169 B, Block 3, PECHS, Karachi, Pakistan
    Indian J Med Ethics 2:94-6. 2005
    ..Forty-two respondents gave correct answers on questions of confidentiality and knowledge of law pertaining to trauma victims. Only 11 reported having been taught ethics as students...
  93. ncbi Health-information altruists--a potentially critical resource
    Isaac S Kohane
    Department of Pediatrics, Children s Hospital and Harvard Medical School, Boston, USA
    N Engl J Med 353:2074-7. 2005
  94. ncbi Developing a standard for de-identifying electronic patient records written in Swedish: precision, recall and F-measure in a manual and computerized annotation trial
    Sumithra Velupillai
    Department of Computer and Systems Sciences, Stockholm University KTH, Kista, Sweden
    Int J Med Inform 78:e19-26. 2009
    ..Therefore, methods for de-identifying EPRs are needed. The work presented here aims to perform a manual and automatic Protected Health Information (PHI)-annotation trial for EPRs written in Swedish...
  95. pmc Automated de-identification of free-text medical records
    Ishna Neamatullah
    Laboratory for Computational Physiology, Massachusetts Institute of Technology, Cambridge, MA 02139, USA
    BMC Med Inform Decis Mak 8:32. 2008
    Text-based patient medical records are a vital resource in medical research. In order to preserve patient confidentiality, however, the U.S...
  96. doi Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider
    Amy L McGuire
    From the 1Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA
    Genet Med 10:495-9. 2008
    ..These discussions can help guide policy that will facilitate the biological and clinical resource development to support the introduction of this information into health care...
  97. pmc Giving patients access to their medical records via the internet: the PCASSO experience
    Daniel Masys
    Biomedical Informatics, School of Medicine, University of California, San Diego, La Jolla, California 92093 0602, USA
    J Am Med Inform Assoc 9:181-91. 2002
    ..The Patient-Centered Access to Secure Systems Online (PCASSO) project is designed to apply state-of-the-art-security to the communication of clinical information over the Internet...
  98. ncbi Threats to privacy protection
    Carol Isaacson Barash
    Science 318:913-4. 2007
  99. ncbi Forgone health care among U.S. adolescents: associations between risk characteristics and confidentiality concern
    Jocelyn A Lehrer
    Bixby Center for Reproductive Health Research and Policy, University of California, San Francisco, San Francisco, California, USA
    J Adolesc Health 40:218-26. 2007
    To examine risk characteristics associated with citing confidentiality concern as a reason for forgone health care, among a sample of U.S. adolescents who reported having forgone health care they believed was necessary in the past year.
  100. ncbi Sleeping better at night: investigators' experiences with certificates of confidentiality
    Leslie E Wolf
    IRB 28:1-7. 2006
  101. pmc Evaluating the state-of-the-art in automatic de-identification
    Ozlem Uzuner
    University at Albany, SUNY, Draper 114A, 135 Western Ave, Albany, NY 12222, USA
    J Am Med Inform Assoc 14:550-63. 2007
    ..However, identifying ambiguous PHI proved challenging. The performance of systems on the test data set is encouraging. Future evaluations of these systems will involve larger data sets from more heterogeneous sources...

Research Grants74

  1. MSKCC Clinical Research Methodology Curriculum
    Dean Bajorin; Fiscal Year: 2006
    ..1 Description, Performance Sites, and Personnel ...................................................................................................... 2-3 ..
  2. UAB Clinical Research Training Program
    Larry Moreland; Fiscal Year: 2006
    ..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. RESEARCH GRANT ..
  3. A Grant to Establish a Center for the Prevention and Control of Risk Factors for
    James Sullivan; Fiscal Year: 2007
    ..6 NGHM recognizes the Health Insurance Portability and Accountability Act confidentiality issues...
  4. International Training & Research in Envir. and Occup. *
    Daniel Hryhorczuk; Fiscal Year: 2006
    ..Type the name of the program director at the top of each printed page and each continuation page. (For type specificatibni, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCHSERVICEAWARD (Substitute Page) ..
  5. NCCU-LCCC Partnership in Cancer Research (2 of 2)
    HENRY SHELTON EARP; Fiscal Year: 2010
    ..abstract_text> ..
  6. Multidisciplinary Clinical and Translational Science (MCTS) Program (UL1)
    Philip Greenland; Fiscal Year: 2009
    ..2.2) Regulatory Support Program 813 (2.3) Biomedical Informatics Center :..... 830 (2.4) Center for Clinical Research Education 848 PHS 398/2590 (Rev. 09/64;Reissued4/2006) Page 7 Continuation Format Page ..
  7. CLINICAL RESEARCH CURRICULA FOR PHYSICIANS/MED STUDENTS
    Thomas Lloyd; Fiscal Year: 2006
    ..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. CLINICAL RESEARCH CURRICULUM AWARD ..
  8. DRW HIV-Ab/HCV-Ab/HBsAg Triplex Rapid Test Submission for FDA-PMA Approval
    Helen H Lee; Fiscal Year: 2010
    ..This is especially true in blood banks processing less than10,000 donations/year located in regions of high prevalence for the HIV, HCV and HBV viral markers. Confidential information: patent application in process ..
  9. MULTIDISCIPLINARY ENVIRONMENTAL HEALTH TRAINING
    David Carpenter; Fiscal Year: 2006
    ..Foreign Collaborator Major Foreign Collaborator Major Foreign Collaborator Major Foreign Collaborator Major Foreign Collaborator BB tf Principal Wcstigator/Program Director (Last, first, middle): C^Bpenter, David OrlO ..
  10. Iowa Int'l Research & Training in Environ & Occup Health
    Thomas Cook; Fiscal Year: 2006
    ..V^ Aype the name of the principal investigator/prog^k|irector at the top of each printed page and each coj^iuation page. (For type specifications, see instructions onpage 6.) ^^F RESEARCH GRANT ..
  11. Iowa Int'l Research & Training in Environ & Occup Health
    Thomas Cook; Fiscal Year: 2006
    ..V^ Aype the name of the principal investigator/prog^k|irector at the top of each printed page and each coj^iuation page. (For type specifications, see instructions onpage 6.) ^^F RESEARCH GRANT ..
  12. China-California: Environmental Health Training Program
    Richard Kreutzer; Fiscal Year: 2006
    ..M.D. Type the name of the principal investigator/program director at the top of each printed page and each corfiinuation page. (For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  13. Clinical Investigator Training Enhancement Program--CITE
    Kurt Kroenke; Fiscal Year: 2006
    ..research grant ..
  14. SEER RRSS #5 - Constructing Geographic Areas in GIS for Cancer Data Analysis
    Vivien Chen; Fiscal Year: 2009
    ..estimating reliable tract-level incidence rates that would not jeopardize patients[unreadable] privacy and confidentiality. Several geographic strategies have been proposed to mitigate the problem...
  15. Building Capacity to Reduce Arsenicosis in Bangladesh
    Joseph Graziano; Fiscal Year: 2006
    ..Joseph H. Type the name of the principal investigator/program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  16. TRAINING CURRICULUM IN PATIENT ORIENTED RESEARCH
    Robert Toto; Fiscal Year: 2006
    ..research grant ..
  17. Univ of Michigan Training Programs in Clinical Research
    David Schteingart; Fiscal Year: 2006
    ..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. RESEARCH GRANT ..
  18. DRW HIV-Ab/HBsAg Duplex Rapid Test submission for FDA-PMA approval
    Helen Lee; Fiscal Year: 2009
    ..This is especially true in blood banks processing less than10,000 donations/year located in regions of high prevalence for the HIV and HBV viral markers. Confidential information: patent application in process ..
  19. Rapid Response Surveillance Study #09-5 - Constructing Geographic Areas in GIS fo
    Sally L Glaser; Fiscal Year: 2009
    ..estimating reliable tract-level incidence rates that would not jeopardize patients[unreadable] privacy and confidentiality. Several geographic strategies have been proposed to mitigate the problem...
  20. STRUCTURE-BASED TUBERCULOSIS DRUG DESIGN TARGETED AT ACYL-COA CARBOXYLASE
    Shiou Chuan Tsai; Fiscal Year: 2010
    ..PERFORMANCE SITE(S) (organization, city, state) University of California, Irvine, CA 92697, USA REVISED ABSTRACT SECTION ..
  21. STRUCTURE-BASED TUBERCULOSIS DRUG DESIGN TARGETED AT ACYL-COA CARBOXYLASE
    Shiou Chuan Tsai; Fiscal Year: 2009
    ..PERFORMANCE SITE(S) (organization, city, state) University of California, Irvine, CA 92697, USA REVISED ABSTRACT SECTION ..
  22. GRADUATE TRAINING IN GENETICS
    Michael Bender; Fiscal Year: 2006
    ..Kathehne R.' Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD ..
  23. Mount Sinai Medical Scientists Training Grant
    Diomedes Logothetis; Fiscal Year: 2006
    ..For type sjj^tfications, see instructions on page 6). INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  24. Para un Futuro: Feasability of a Photovoice approach to Increase Latino Parent-Ad
    Meagan Gallagher; Fiscal Year: 2009
    ..At the beginning of each data collection activity, the interviewer or group facilitator will confirm confidentiality and the participant's right to refuse participation...
  25. GRADUATE TRAINING PROGRAM IN CLINICAL INVESTIGATION
    N Adkinson; Fiscal Year: 2006
    ..Council; Instructor; Trainer Consultant; Instructor Adv. Council; Outcomes Asses. Adv. Council; Course Dir.; Trainer Adv. Council; Trainer BB Adkinson, N. Franklin, Jr. K30 Clinical Research Curriculum Award Application ..
  26. Patient Awareness and Consumer Education Research Cente*
    Maria E Suarez Almazor; Fiscal Year: 2010
    ..Publications 2. Research Grants 3. Conceptual Framework &DemonstrationProjects 4. VisionTree Software PHS 398 (Rev. 09/04) Page 4 Form Page 3 ..
  27. Patient Awareness and Consumer Education Research Cente*
    Maria Suarez Almazor; Fiscal Year: 2007
    ..Publications 2. Research Grants 3. Conceptual Framework & DemonstrationProjects 4. VisionTree Software PHS 398 (Rev. 09/04) Page 4 Form Page 3 ..
  28. Patient Awareness and Consumer Education Research Cente*
    Maria Suarez Almazor; Fiscal Year: 2009
    ..Publications 2. Research Grants 3. Conceptual Framework &DemonstrationProjects 4. VisionTree Software PHS 398 (Rev. 09/04) Page 4 Form Page 3 ..
  29. UAB-AKU ITREOH
    Nalini Sathiakumar; Fiscal Year: 2006
    ..For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  30. International Research Training Program
    Sarah Felknor; Fiscal Year: 2006
    ..For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  31. ETHICS COURSE SCIENTIST-PARTICIPANT PARTNERSHIPS
    Celia Fisher; Fiscal Year: 1999
    ..adults with impaired capacity to consent, and federal guidelines for emergency research consent waivers; (5) confidentiality procedures including ethical issues associated with genetic testing, HIV/AIDS related research, and use of ..
  32. ETHICS COURSE SCIENTIST-PARTICIPANT PARTNERSHIPS
    Celia Fisher; Fiscal Year: 2000
    ..adults with impaired capacity to consent, and federal guidelines for emergency research consent waivers; (5) confidentiality procedures including ethical issues associated with genetic testing, HIV/AIDS related research, and use of ..
  33. Rural Trial of Clinic Order Entry with Decision Support
    Matthew Samore; Fiscal Year: 2004
    ..will allow common access to records across providers who share patients while maintaining strict levels of confidentiality. The CCOE decision support logic will encompass drug interactions, allergy contraindications, disease ..
  34. Rural Trial of Clinic Order Entry with Decision Support
    Matthew Samore; Fiscal Year: 2005
    ..will allow common access to records across providers who share patients while maintaining strict levels of confidentiality. The CCOE decision support logic will encompass drug interactions, allergy contraindications, disease ..
  35. Rural Trial of Clinic Order Entry with Decision Support
    Matthew Samore; Fiscal Year: 2006
    ..will allow common access to records across providers who share patients while maintaining strict levels of confidentiality. The CCOE decision support logic will encompass drug interactions, allergy contraindications, disease ..
  36. International Training and Research in EOH
    NELSON STEENLAND; Fiscal Year: 2006
    ..Heredia PHS 398(Rev 4/98) Page 2 Role on Project [unreadable]v Principal Investigator Major Foreign Collaborator, Chile Major Foreign Collaborator,Peru -^ BB Face page Description, Performenace Sites, and Personnel ..
  37. International Scholars in Occup. & Environ Health
    Matthew Keifer; Fiscal Year: 2006
    ..Type the name of the principal investigator/program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  38. University of Utah Clinical Research Curriculum Award
    JAMES KUSHNER; Fiscal Year: 2006
    ..research grant ..
  39. Pre and Post Doctoral Training: UMKC School of Dentistry
    J Eick; Fiscal Year: 2006
    ..For type specifications, see instructions on page 6) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  40. International Program for Mining Health and Safety
    Jefferey Burgess; Fiscal Year: 2006
    ..Jefferey L. Type the name of the principal investigator/program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  41. Mt Sinai/Queens Coll. Int'l Training Env & Occup Health
    Luz Claudio; Fiscal Year: 2006
    ..Type the name of the principal investigator/program directorat the top of each printed page and eachcontinuation page. (For type specifications, see instructions on page6.) RESEARCH GRANT ..
  42. Novel Corneal Implant Materials
    Shiao Chang; Fiscal Year: 2006
    ..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. RESEARCH GRANT ..
  43. TRAINING GRANT IN MUCOSAL IMMUNOLOGY AND EPIDEMIOLOGY
    Stephen Calderwood; Fiscal Year: 2006
    ..Type the name of the program director at the top of eacn printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  44. CLINICAL RESEARCH CURRICULUM AWARD
    Henry Blumberg; Fiscal Year: 2006
    ..Executive Committee Form Page2 Stephens, David S. WOODRUFF HEALTH SCIENCES CENTER OF EMORY UNIVERSITY CLINICAL RESEARCH CURRICULUM AWARD (CRCA) (K30) APPLICATION Response to RFA Number: HL-04-004 ..
  45. Integrated Samples of Eurasian Censuses
    ROBERT EDWARD MCCAA; Fiscal Year: 2010
    ..This work involved data cleaning, drawing samples, implementing confidentiality protections, creating integrated variables, developing comprehensive metadata, and disseminating the data and ..
  46. TRAINING PROGRAM IN GENETICS AND GENOMICS
    William Gelbart; Fiscal Year: 2006
    ..Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  47. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2005
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  48. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2006
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  49. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2004
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  50. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2003
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  51. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2004
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  52. Congenital and neonatal malaria in Mali
    Abdoulaye Djimde; Fiscal Year: 2006
    ..research grant ..
  53. ISLET-CELL RESOURCES CTR OF SOUTHERN CALIFORNIA
    ARTHUR RIGGS; Fiscal Year: 2006
    ..4/98) Page 2 BB Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b. ..
  54. The Sexual Abuse of Vulnerable Adults in Institutions
    Pamela Teaster; Fiscal Year: 2004
    ..abstract_text> ..
  55. The Sexual Abuse of Vulnerable Adults in Institutions
    Pamela Teaster; Fiscal Year: 2006
    ..abstract_text> ..
  56. The Sexual Abuse of Vulnerable Adults in Institutions
    Pamela Teaster; Fiscal Year: 2005
    ..abstract_text> ..
  57. Internet as Supplier: Preventing Adolescent Use of Non-Medical Addictive Rx
    Amelia Arria; Fiscal Year: 2009
    ..The data collection has been designed to completely protect confidentiality. The study has three primary aims: 1...
  58. Recovery of RNA from Formalin-Fixed Tissues
    TIMOTHY O LEARY; Fiscal Year: 2006
    ..research grant ..
  59. Optimal Micro-Data Switching: An Enhanced Framework and Decision Tool for Confid
    James Kelly; Fiscal Year: 2009
    ..make the data available for analysis without disclosing information that would infringe on privacy, violate confidentiality, or endanger national security...
  60. Mechanisms for Racial Disparity in Preterm Birth
    Jane Hitti; Fiscal Year: 2001
    ..Potential subjects will be identified through birth certificate data, with appropriate measures to protect confidentiality. We will enroll 100 African American and 100 white women with a prior early preterm birth at 20-34 weeks ..
  61. Mechanisms for Racial Disparity in Preterm Birth
    Jane Hitti; Fiscal Year: 2004
    ..Potential subjects will be identified through birth certificate data, with appropriate measures to protect confidentiality. We will enroll 100 African American and 100 white women with a prior early preterm birth at 20-34 weeks ..
  62. Mechanisms for Racial Disparity in Preterm Birth
    Jane Hitti; Fiscal Year: 2002
    ..Potential subjects will be identified through birth certificate data, with appropriate measures to protect confidentiality. We will enroll 100 African American and 100 white women with a prior early preterm birth at 20-34 weeks ..
  63. Mechanisms for Racial Disparity in Preterm Birth
    Jane Hitti; Fiscal Year: 2003
    ..Potential subjects will be identified through birth certificate data, with appropriate measures to protect confidentiality. We will enroll 100 African American and 100 white women with a prior early preterm birth at 20-34 weeks ..
  64. Analyzing the Effectiveness of a Non-Verbal Response Card: Evidence from Ethiopia
    David Lindstrom; Fiscal Year: 2009
    ..The card increases the level of privacy and confidentiality in an interviewer- administered survey, and it makes minimal cognitive demands on the respondent...
  65. The Effects of Insiderness on Data in the Dominican Republic
    MARIANO SANA; Fiscal Year: 2010
    ..on data quality are reduced when self-administered questionnaires are used to increase confidence in response confidentiality;and (d) explore how characteristics associated with respondents, interviewers, and the interview process ..
  66. RESEARCH TRAINING IN DIGESTIVE DISEASES
    Daniel Podolsky; Fiscal Year: 2006
    ..Type the name of the program director at thd^Hof each printed page and each continuation page.^Hr type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  67. RESEARCH TRAINING IN DIGESTIVE DISEASES
    Daniel Podolsky; Fiscal Year: 2006
    ..Type the name of the program director at thd^Hof each printed page and each continuation page.^Hr type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  68. The Effects of Insiderness on Data in the Dominican Republic
    MARIANO SANA; Fiscal Year: 2009
    ..on data quality are reduced when self-administered questionnaires are used to increase confidence in response confidentiality;and (d) explore how characteristics associated with respondents, interviewers, and the interview process ..
  69. Nanoscale patterning that promotes cell adhesion
    HEATHER MAYNARD; Fiscal Year: 2006
    ..research grant ..
  70. Intl Research & Training Program in Env & Occ Hlth
    ALLAN SMITH; Fiscal Year: 2006
    ..Fortype ^Unifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..