confidentiality

Summary

Summary: The privacy of information and its protection against unauthorized disclosure.

Top Publications

  1. pmc Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibility
    Nicole Angotti
    University of Texas at Austin, TX, USA
    Soc Sci Med 68:2263-70. 2009
  2. pmc Associations between mode of HIV testing and consent, confidentiality, and referral: a comparative analysis in four African countries
    Carla Makhlouf Obermeyer
    Center for Research on Population and Health, American University of Beirut, Beirut, Lebanon
    PLoS Med 9:e1001329. 2012
  3. pmc Strategies for maintaining patient privacy in i2b2
    Shawn N Murphy
    Laboratory of Computer Science, Massachusetts General Hospital, Boston, Massachusetts, USA
    J Am Med Inform Assoc 18:i103-8. 2011
  4. pmc A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registers
    Tim Churches
    Centre for Epidemiology and Research, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
    BMC Med Res Methodol 3:1. 2003
  5. pmc Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore
    Ayesha Humayun
    Department of Community Health Sciences, FMH College of Medicine and Dentistry, Lahore, Pakistan
    BMC Med Ethics 9:14. 2008
  6. pmc Facilitating HIV disclosure across diverse settings: a review
    Carla Makhlouf Obermeyer
    Department of HIV AIDS, World Health Organization, 20 Ave Appia, 1211 Geneva, Switzerland
    Am J Public Health 101:1011-23. 2011
  7. pmc Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper
    Charles Safran
    American Medical Informatics Association, 4915 St Elmo Avenue, Suite 401, Bethesda, MD 20814, USA
    J Am Med Inform Assoc 14:1-9. 2007
  8. ncbi Research use of linked health data--a best practice protocol
    C W Kelman
    Department of Health and Ageing, Canberra, ACT
    Aust N Z J Public Health 26:251-5. 2002
  9. ncbi Women's views of prenatal violence screening: acceptability and confidentiality issues
    Paula Rinard Renker
    The Ohio State University College of Nursing, Columbus, 43210, USA
    Obstet Gynecol 107:348-54. 2006
  10. pmc Women's views on consent, counseling and confidentiality in PMTCT: a mixed-methods study in four African countries
    Anita Hardon
    Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, The Netherlands
    BMC Public Health 12:26. 2012

Detail Information

Publications285 found, 100 shown here

  1. pmc Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibility
    Nicole Angotti
    University of Texas at Austin, TX, USA
    Soc Sci Med 68:2263-70. 2009
    ..Our study suggests that attention to these factors in VCT strategies may mitigate the fear of HIV testing, and ultimately increase uptake in rural African settings...
  2. pmc Associations between mode of HIV testing and consent, confidentiality, and referral: a comparative analysis in four African countries
    Carla Makhlouf Obermeyer
    Center for Research on Population and Health, American University of Beirut, Beirut, Lebanon
    PLoS Med 9:e1001329. 2012
    ..This paper examines whether practices regarding consent, confidentiality, and referral vary depending on whether testing is provided through voluntary counseling and testing (VCT) or ..
  3. pmc Strategies for maintaining patient privacy in i2b2
    Shawn N Murphy
    Laboratory of Computer Science, Massachusetts General Hospital, Boston, Massachusetts, USA
    J Am Med Inform Assoc 18:i103-8. 2011
    ..Some of these challenges arise from a misperception that the problem should be solved technically when actually the problem needs a holistic solution...
  4. pmc A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registers
    Tim Churches
    Centre for Epidemiology and Research, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
    BMC Med Res Methodol 3:1. 2003
    ..However, growing concern over the privacy and confidentiality aspects of disease registers may hinder their future operation...
  5. pmc Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore
    Ayesha Humayun
    Department of Community Health Sciences, FMH College of Medicine and Dentistry, Lahore, Pakistan
    BMC Med Ethics 9:14. 2008
    The principles of informed consent, confidentiality and privacy are often neglected during patient care in developing countries. We assessed the degree to which doctors in Lahore adhere to these principles during outpatient consultations.
  6. pmc Facilitating HIV disclosure across diverse settings: a review
    Carla Makhlouf Obermeyer
    Department of HIV AIDS, World Health Organization, 20 Ave Appia, 1211 Geneva, Switzerland
    Am J Public Health 101:1011-23. 2011
    ..is central to debates about HIV because of its potential for HIV prevention and its links to privacy and confidentiality as human-rights issues...
  7. pmc Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper
    Charles Safran
    American Medical Informatics Association, 4915 St Elmo Avenue, Suite 401, Bethesda, MD 20814, USA
    J Am Med Inform Assoc 14:1-9. 2007
    ..Such a framework can guide and facilitate widespread collection, storage, aggregation, linkage, and transmission of health data. The framework will provide appropriate protections for legitimate secondary use...
  8. ncbi Research use of linked health data--a best practice protocol
    C W Kelman
    Department of Health and Ageing, Canberra, ACT
    Aust N Z J Public Health 26:251-5. 2002
    ..This approach is designed to promote confidence in the community and among data custodians that there are benefits of linked health information being used and that individual privacy is being rigorously protected...
  9. ncbi Women's views of prenatal violence screening: acceptability and confidentiality issues
    Paula Rinard Renker
    The Ohio State University College of Nursing, Columbus, 43210, USA
    Obstet Gynecol 107:348-54. 2006
    ..The purpose of this research was to address the need for evidenced-based practices for violence screening by identifying women's perceptions of, and experiences with, prenatal violence screening...
  10. pmc Women's views on consent, counseling and confidentiality in PMTCT: a mixed-methods study in four African countries
    Anita Hardon
    Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, The Netherlands
    BMC Public Health 12:26. 2012
    ..This paper focuses on the quality of information provision and counseling and disclosure patterns in Burkina Faso, Kenya, Malawi and Uganda to identify how services can be improved to enable better PMTCT outcomes...
  11. ncbi Current medicolegal and confidentiality issues in large, multicenter research programs
    P A Carney
    Norris Cotton Cancer Center, Department of Community and Family Medicine, Dartmouth Medical School, Hanover Lebanon, NH, USA
    Am J Epidemiol 152:371-8. 2000
    ..sites to a single data repository; however, standards for managing data security are needed to protect the confidentiality of participants...
  12. ncbi Online posting of unprofessional content by medical students
    Katherine C Chretien
    Medical Service, Washington DC VA Medical Center and Department of Medicine, George Washington University School of Medicine and Health Sciences, Washington, DC 20422, USA
    JAMA 302:1309-15. 2009
    ..Web 2.0 applications, such as social networking sites, are creating new challenges for medical professionalism. The scope of this problem in undergraduate medical education is not well-defined...
  13. pmc Evaluating the state-of-the-art in automatic de-identification
    Ozlem Uzuner
    University at Albany, SUNY, Draper 114A, 135 Western Ave, Albany, NY 12222, USA
    J Am Med Inform Assoc 14:550-63. 2007
    ..However, identifying ambiguous PHI proved challenging. The performance of systems on the test data set is encouraging. Future evaluations of these systems will involve larger data sets from more heterogeneous sources...
  14. pmc Building public trust in uses of Health Insurance Portability and Accountability Act de-identified data
    Deven McGraw
    Center for Democracy and Technology, 1634 I Street, NW suite 1100, Washington, DC 20006
    J Am Med Inform Assoc 20:29-34. 2013
    ....
  15. ncbi Secure Dynamic access control scheme of PHR in cloud computing
    Tzer Shyong Chen
    Department of Information Management, Tunghai University, Taichung, Taiwan
    J Med Syst 36:4005-20. 2012
    ....
  16. pmc "Not all my friends need to know": a qualitative study of teenage patients, privacy, and social media
    Maja Van Der Velden
    Department of Informatics, University of Oslo, Oslo, Norway
    J Am Med Inform Assoc 20:16-24. 2013
    ..There have been no studies of how they manage personal health information on social media...
  17. pmc Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us study
    Sheana S Bull
    MPH, Colorado School of Public Health, University of Colorado Denver, 13001 East 17th Place, Building 500, Campus Box B 119, Aurora, CO 80045, USA
    J Pediatr Psychol 36:1082-92. 2011
    ..To consider issues related to research with youth on social networking sites online...
  18. ncbi The adequacy of informed consent forms in genetic research in Oman: a pilot study
    Asya Al-Riyami
    Ministry of Health, Oman and Research and Ethics Committee, Sultanate of Oman
    Dev World Bioeth 11:57-62. 2011
    ..relevant to health would be disclosed, whether participants may share in commercial products, the extent of confidentiality protections, and the inclusion of additional consent forms for future storage and use of tissue samples...
  19. pmc Protected health information on social networking sites: ethical and legal considerations
    Lindsay A Thompson
    University of Florida, Department of Pediatrics, Gainesville, FL, United States
    J Med Internet Res 13:e8. 2011
    ..However, it is unknown whether students and residents portray protected health information and under what circumstances or contexts...
  20. pmc Evaluating re-identification risks with respect to the HIPAA privacy rule
    Kathleen Benitez
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:169-77. 2010
    ....
  21. pmc Automatic de-identification of textual documents in the electronic health record: a review of recent research
    Stephane M Meystre
    Department of Biomedical Informatics, University of Utah, Salt Lake City, Utah, USA
    BMC Med Res Methodol 10:70. 2010
    In the United States, the Health Insurance Portability and Accountability Act (HIPAA) protects the confidentiality of patient data and requires the informed consent of the patient and approval of the Internal Review Board to use data for ..
  22. pmc A systematic review of re-identification attacks on health data
    Khaled El Emam
    Electronic Health Information Laboratory, CHEO Research Institute, Ottawa, Canada
    PLoS ONE 6:e28071. 2011
    ....
  23. pmc Sharing medical data for health research: the early personal health record experience
    Elissa R Weitzman
    Department of Pediatrics, Harvard Medical School, Boston, United States
    J Med Internet Res 12:e14. 2010
    ..Understanding consumer willingness to share data is critical to advancing this model...
  24. pmc A globally optimal k-anonymity method for the de-identification of health data
    Khaled El Emam
    CHEO Research Institute, 401 Smyth Road, Ott, ON K1H8L1, Canada
    J Am Med Inform Assoc 16:670-82. 2009
    ..Often legislative requirements to obtain consent are waived if the information collected or disclosed is de-identified...
  25. ncbi Sharing electronic health records: the patient view
    John Powell
    Epidemiology and Public Health, Health Sciences Research Institute, Warwick Medical School, University of Warwick, Coventry, UK
    Inform Prim Care 14:55-7. 2006
    ..system to the National Health Service (NHS) has raised concerns about issues of data accuracy, security and confidentiality. The primary aim of this project was to identify the extent to which primary care patients will allow their ..
  26. ncbi Inadequate pre-antiretroviral care, stock-out of antiretroviral drugs and stigma: policy challenges/bottlenecks to the new WHO recommendations for earlier initiation of antiretroviral therapy (CD<350 cells/microL) in eastern Uganda
    Lubega Muhamadi
    District Health Office, Iganga District Adminstration, Iganga, Uganda
    Health Policy 97:187-94. 2010
    ....
  27. pmc Development and evaluation of an open source software tool for deidentification of pathology reports
    Bruce A Beckwith
    Department of Pathology, Beth Israel Deaconess Medical Center, 330 Brookline Ave, Boston, MA, USA
    BMC Med Inform Decis Mak 6:12. 2006
    ..1800 new pathology reports were then processed. Each report was reviewed manually before and after deidentification to catalog all identifiers and note those that were not removed...
  28. ncbi Measuring patients' trust in their primary care providers
    Mark A Hall
    Wake Forest University, USA
    Med Care Res Rev 59:293-318. 2002
    ..Correlations are equivalent with lack of disputes, length of relationship, and number of visits [corrected]...
  29. pmc Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study
    Fasil Tekola
    School of Public Health, Addis Ababa University, Addis Ababa, Ethiopia
    BMC Med Ethics 10:13. 2009
    ..The aim of this study was to explore the impact of social stigma on the process of obtaining consent for a study on the genetics of podoconiosis in Southern Ethiopia...
  30. pmc Privacy technology to support data sharing for comparative effectiveness research: a systematic review
    Xiaoqian Jiang
    Division of Biomedical Informatics, University of California, San Diego, La Jolla, CA 92093, USA
    Med Care 51:S58-65. 2013
    ..These concerns have spurred the development of new technologies for privacy-preserving data sharing and data mining. Our goal is to review existing and emerging techniques that may be appropriate for data sharing related to CER...
  31. ncbi Factors predicting patients' perception of privacy and satisfaction for emergency care
    Yen Ko Lin
    Department of Emergency Medicine, Kaohsiung Medical University Hospital, Kaohsiung Medical University, Kaohsiung, Taiwan
    Emerg Med J 28:604-8. 2011
    ..To identify emergency department (ED) predictors of patients' perception of privacy and whether patients' perception of privacy was significantly associated with patient satisfaction, in an urban, university-based hospital ED...
  32. ncbi Confidentiality and privacy breaches in a university hospital emergency department
    E J Mlinek
    University of Nebraska Medical Center, Department of Surgery, Omaha, NE, USA
    Acad Emerg Med 4:1142-6. 1997
    To determine the frequency of visual and auditory confidentiality and privacy breaches in a university ED.
  33. ncbi Emergency Department patient perceptions of privacy and confidentiality
    Jon C Olsen
    Department of Emergency Medicine, Lutheran General Hospital, 1775 West Dempster Street, Park Ridge, IL 60088, USA
    J Emerg Med 25:329-33. 2003
    The study objective was to determine if Emergency Department (ED) patients experience breaches of privacy and confidentiality during their ED stay and to determine if the type of room in which the patient is placed affects privacy...
  34. pmc Driving toward guiding principles: a goal for privacy, confidentiality, and security of health information
    S A Buckovich
    Mitretek Systems, Health Information Technology Institute, McLean, VA 22102, USA
    J Am Med Inform Assoc 6:122-33. 1999
    ..providing easier access and dissemination of health information, the development of guiding privacy, confidentiality, and security principles is necessary to help balance the protection of patients' privacy interests against ..
  35. pmc SHARE: system design and case studies for statistical health information release
    James Gardner
    Digital Reasoning Systems Inc, Franklin, Tennessee, USA
    J Am Med Inform Assoc 20:109-16. 2013
    ..We present two case studies that evaluate the software on real medical datasets and demonstrate the feasibility and utility of applying the differential privacy framework on biomedical data...
  36. pmc Protecting patient confidentiality in telephone consultations in general practice
    Daniel Sokol
    Br J Gen Pract 56:384-5. 2006
  37. pmc Patient confidentiality and telephone consultations: time for a password
    D K Sokol
    Centre for Professional Ethics, Chancellor s Building, Keele University, Keele, Staffordshire, ST5 5BG, UK
    J Med Ethics 32:688-9. 2006
    ..consultations are widely used in the delivery of healthcare, they are vulnerable to breaches of patient confidentiality. Current guidelines on telephone consultations do not address adequately the issue of confidentiality...
  38. pmc Concerns over confidentiality may deter adolescents from consulting their doctors. A qualitative exploration
    J Carlisle
    Public Health, School of Health and Related Research, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK
    J Med Ethics 32:133-7. 2006
    ..This study sought to identify issues and concerns of adolescents, and their parents, in relation to confidentiality and teenagers' personal health information.
  39. ncbi From Hippocrates to HIPAA: privacy and confidentiality in emergency medicine--Part I: conceptual, moral, and legal foundations
    John C Moskop
    Department of Medical Humanities, The Brody School of Medicine at East Carolina University, Bioethics Center, University Health Systems of Eastern Carolina, Greenville, NC 27834, USA
    Ann Emerg Med 45:53-9. 2005
    Respect for patient privacy and confidentiality is an ancient and a contemporary professional responsibility of physicians...
  40. pmc Encryption characteristics of two USB-based personal health record devices
    Adam Wright
    Department of Medical Informatics and Clinical Epidemiology, Oregon Health and Science University, 3181 Sam Jackson Park Rd, Portland, OR 97239, USA
    J Am Med Inform Assoc 14:397-9. 2007
    ..This article describes the weaknesses we discovered, outlines three critical flaws with the security model used by the devices, and recommends four guidelines for improving the security of similar devices...
  41. ncbi The MITRE Identification Scrubber Toolkit: design, training, and assessment
    John Aberdeen
    The MITRE Corporation, 202 Burlington Rd, Bedford, MA 01730, United States
    Int J Med Inform 79:849-59. 2010
    ....
  42. pmc Privacy-preserving heterogeneous health data sharing
    Noman Mohammed
    Department of Computer Science and Software Engineering, Concordia University, Montreal, Quebec, Canada
    J Am Med Inform Assoc 20:462-9. 2013
    ..In this paper, we propose an algorithm that considers both relational and set-valued data in differentially private disclosure of healthcare data...
  43. pmc Electronic health records should support clinical research
    John Powell
    J Med Internet Res 7:e4. 2005
    ..Clinicians and patients must have confidence in the consent, confidentiality and security arrangements for the uses of secondary data...
  44. ncbi Potential harms, anonymization, and the right to withdraw consent to biobank research
    Stefan Eriksson
    Centre for Bioethics at Karolinska Institutet and Uppsala University, Uppsala Science Park, SE 751 85 Uppsala, Sweden
    Eur J Hum Genet 13:1071-6. 2005
    ..Still, this underlines the fact that we all share a responsibility for health research and that no one should take withdrawal from biobank research lightly...
  45. pmc Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak
    Khaled El Emam
    CHEO Research Institute, Smyth Road, Ottawa, K1H 8L1, Canada
    BMC Public Health 11:454. 2011
    ..Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak...
  46. ncbi Storing newborn blood spots: modern controversies
    Linda Kharaboyan
    Centre de recherche en droit public, University of Montreal
    J Law Med Ethics 32:741-8. 2004
  47. pmc Evaluating common de-identification heuristics for personal health information
    Khaled El Emam
    CHEO Research Institute, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada
    J Med Internet Res 8:e28. 2006
    ..De-identification heuristics are provided in the Health Insurance Portability and Accountability Act Privacy Rule, funding agency and professional association privacy guidelines, and common practice...
  48. ncbi Nepal: Supreme Court makes landmark decisions on LGBTI rights and the right to confidentiality
    Sandra Ka Hon Chu
    HIV AIDS Policy Law Rev 13:62-4. 2008
  49. ncbi A computational model to protect patient data from location-based re-identification
    Bradley Malin
    Department of Biomedical Informatics, Eskind Biomedical Library, Fourth Floor, 2209 Garland Avenue, Vanderbilt University, Nashville, TN 37232 8340, USA
    Artif Intell Med 40:223-39. 2007
    ..In this paper, we develop and evaluate computational methods that health care organizations can apply to disclose patient-specific DNA records that are impregnable to trail re-identification...
  50. ncbi Ethical approaches to adolescent participation in sexual health research
    Sarah Flicker
    Faculty of Environmental Studies, York University, Toronto, Ontario, Canada
    J Adolesc Health 42:3-10. 2008
    ....
  51. pmc The inadvertent disclosure of personal health information through peer-to-peer file sharing programs
    Khaled El Emam
    Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
    J Am Med Inform Assoc 17:148-58. 2010
    ..We wanted to estimate the extent to which personal health information (PHI) is being disclosed in this way, and compare that to the extent of disclosure of personal financial information (PFI)...
  52. ncbi Large medical databases, population-based research, and patient confidentiality
    G E Simon
    Center ofr Health Studies, Group Health Cooperative, Seattle, WA 98101 1448, USA
    Am J Psychiatry 157:1731-7. 2000
    ..This article is a discussion of the use of large clinical databases in population-based research on psychiatric disorders...
  53. ncbi An open source toolkit for medical imaging de-identification
    David Rodríguez González
    National e Science Centre, School of Informatics, University of Edinburgh, Edinburgh, UK
    Eur Radiol 20:1896-904. 2010
    ..Our objective is to provide a flexible mechanism for anonymising Digital Imaging and Communications in Medicine (DICOM) data that meets the requirements for deployment in multicentre trials...
  54. pmc Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms
    Holly K Tabor
    Department of Pediatrics, University of Washington, Seattle, Washington, USA
    Am J Med Genet A 158:1310-9. 2012
    Scientific evidence on the extent to which ethical concerns about privacy, confidentiality, and return of results for whole genome sequencing (WGS) are effectively conveyed by informed consent (IC) is lacking...
  55. pmc Protecting count queries in study design
    Staal A Vinterbo
    Division of Biomedical Informatics, Department of Medicine, University of California San Diego, La Jolla, California 92093 0728, USA
    J Am Med Inform Assoc 19:750-7. 2012
    ..The goal of this study is to extend current query answer systems to guarantee a quantifiable level of privacy and allow users to tailor perturbations to maximize the usefulness according to their needs...
  56. pmc Effects of personal identifier resynthesis on clinical text de-identification
    Reyyan Yeniterzi
    Faculty of Engineering and Natural Sciences, Sabanci University, Istanbul, Turkey
    J Am Med Inform Assoc 17:159-68. 2010
    ..The goal of this research is to evaluate the effectiveness and examine possible bias introduced by resynthesis on de-identification software...
  57. pmc HIV patients' willingness to share personal health information electronically
    Paul A Teixeira
    Department of Biomedical Informatics, Columbia University, New York, NY 10032, USA
    Patient Educ Couns 84:e9-12. 2011
    ..To assess the attitudes of persons living with HIV/AIDS (PLWH) towards having their personal health information (PHI) stored and shared electronically...
  58. ncbi Advocating prevention over punishment: the risks of HIV criminalization in Burkina Faso
    Patrice Sanon
    Réseau Accès aux Médicaments Essentiels RAME, Ouagadougou, Burkina Faso
    Reprod Health Matters 17:146-53. 2009
    ..The Burkina Faso law offers a number of protections for people with HIV, such as confidentiality of HIV test results, and holds the government accountable for providing health services for people with HIV ..
  59. pmc A secure protocol for protecting the identity of providers when disclosing data for disease surveillance
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada
    J Am Med Inform Assoc 18:212-7. 2011
    Providers have been reluctant to disclose patient data for public-health purposes. Even if patient privacy is ensured, the desire to protect provider confidentiality has been an important driver of this reluctance.
  60. pmc Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel
    Stephanie M Fullerton
    Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, 98195, USA
    BMC Med Ethics 12:16. 2011
    ....
  61. ncbi Confidentiality and parental involvement in adolescent sexual and reproductive health care: a cross-sectional study of Lithuanian general practitioners
    Lina Jaruseviciene
    Department of Family Medicine, Kaunas University of Medicine, Lithuania
    Scand J Public Health 39:484-91. 2011
    We surveyed Lithuanian general practitioners' (GPs) views on the importance of confidentiality for adolescents and on their practices in informing parents about sexual and reproductive health consultations with this age group.
  62. ncbi A data-hiding technique with authentication, integration, and confidentiality for electronic patient records
    Hui Mei Chao
    Department of Electrical Engineering, De Lin Institute of Technology, Taipei County, Taiwan, ROC
    IEEE Trans Inf Technol Biomed 6:46-53. 2002
    ..the "bipolar multiple-number base" was developed to provide capabilities of authentication, integration, and confidentiality for an electronic patient record (EPR) transmitted among hospitals through the Internet...
  63. ncbi Experiences of physicians who frequently use e-mail with patients
    Thomas K Houston
    Department of Medicine, The Johns Hopkins University School of Medicine, Johns Hopkins University School of Hygiene and Public Health, Baltimore, MD 21205, USA
    Health Commun 15:515-25. 2003
    ..Increasing integration into practice to enhance time-saving aspects and improve patient education might lead to more sustained use of this promising communication tool...
  64. pmc A model for expanded public health reporting in the context of HIPAA
    Soumitra Sengupta
    Department of Biomedical Informatics, Columbia University, New York, NY, USA
    J Am Med Inform Assoc 15:569-74. 2008
    ..The appropriateness of these approaches varies with the definition of what data may be included, the requirements of the minimum necessary standard, the accounting of disclosures, and the feasibility of the approach...
  65. pmc Statutory basis for public health reporting beyond specific diseases
    Claire V Broome
    Centers for Disease Control and Prevention, Department of Health and Human Services, Atlanta, GA 30333, USA
    J Urban Health 80:i14-22. 2003
    ..The intent of these reporting laws and the Health Insurance Portability and Accountability Act Privacy Rule is to support this critical disease surveillance function for the benefit of the entire population...
  66. ncbi How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems
    Bradley Malin
    Data Privacy Laboratory, School of Computer Science, Carnegie Mellon University, Pittsburgh, PA 15213 3890, USA
    J Biomed Inform 37:179-92. 2004
    ..We propose that such techniques can be applied as system tests of privacy protection capabilities...
  67. pmc The disclosure of diagnosis codes can breach research participants' privacy
    Grigorios Loukides
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:322-7. 2010
    ....
  68. pmc Overcoming barriers to recruitment in health research
    Jenny Hewison
    University of Leeds, Institute of Health Sciences and Public Health Research, Leeds LS2 9LT
    BMJ 333:300-2. 2006
  69. pmc Social but safe? Quality and safety of diabetes-related online social networks
    Elissa R Weitzman
    Children s Hospital Informatics Program at the Harvard MIT Division of Health Sciences and Technology, Children s Hospital Boston, Boston, Massachusetts, USA
    J Am Med Inform Assoc 18:292-7. 2011
    ..To foster informed decision-making about health social networking (SN) by patients and clinicians, the authors evaluated the quality/safety of SN sites' policies and practices...
  70. ncbi Truth and consequences: ethics, confidentiality, and disclosure in adolescent longitudinal prevention research
    Christine Lothen-Kline
    Department of Public and Community Health, College of Health and Human Performance, University of Maryland, College Park, Maryland 20742, USA
    J Adolesc Health 33:385-94. 2003
    To examine data from a natural experiment resulting from a change made in the confidentiality agreement midway through a randomized, longitudinal, controlled trial to prevent or delay adolescent alcohol use...
  71. pmc Protecting privacy using k-anonymity
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario K1J 8L1, Canada
    J Am Med Inform Assoc 15:627-37. 2008
    ..To alleviate such concerns, it is possible to anonymize the data before disclosure. One popular anonymization approach is k-anonymity. There have been no evaluations of the actual re-identification probability of k-anonymized data sets...
  72. pmc Content of weblogs written by health professionals
    Tara Lagu
    Robert Wood Johnson Clinical Scholars Program, University of Pennsylvania, Philadelphia, PA 19104, USA
    J Gen Intern Med 23:1642-6. 2008
    ..Medical weblogs ("blogs") have emerged as a new connection between health professionals and the public...
  73. ncbi Effect of mandatory parental notification on adolescent girls' use of sexual health care services
    Diane M Reddy
    Department of Psychology, University of Wisconsin Milwaukee, PO Box 413, Milwaukee, WI 53201, USA
    JAMA 288:710-4. 2002
    ..Recently, legislation that would prohibit prescribed contraceptives for adolescents without parental involvement was introduced in 10 states and the US Congress...
  74. pmc A software tool for removing patient identifying information from clinical documents
    F Jeff Friedlin
    Regenstrief Institute, Indianapolis, IN 46202, USA
    J Am Med Inform Assoc 15:601-10. 2008
    ..We conclude that MeDS successfully de-identified a wide range of medical documents from numerous sources and creates scrubbed reports that retain their interpretability, thereby maintaining their usefulness for research...
  75. pmc Patients' attitudes toward electronic health information exchange: qualitative study
    Steven R Simon
    Department of Population Medicine, Harvard Medical School and Harvard Pilgrim Health Care, Boston, MA 02215, USA
    J Med Internet Res 11:e30. 2009
    ..In many countries, there has been substantial progress in establishing the electronic transmission of patients' health information between health care providers, but little is known about how best to engage patients in the process...
  76. ncbi Patients' attitudes towards sharing their health information
    Richard Whiddett
    Department of Information Systems, Massey University, Palmerston North, New Zealand
    Int J Med Inform 75:530-41. 2006
    ..This research investigated (1) the attitudes of patients toward sharing their medical information and (2) whether patients considered themselves to be well-informed about the uses that are made of their information...
  77. ncbi Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective
    Béatrice Godard
    INSERM SC11, Hopital Broussais, Paris, France
    Eur J Hum Genet 11:S88-122. 2003
    ..Such standardization would facilitate a greater protection of individuals as well as future international cooperation in biomedical research...
  78. pmc Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?
    Donald J Willison
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada
    BMC Med Ethics 10:10. 2009
    ..Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research...
  79. ncbi Ethics. Identifiability in genomic research
    William W Lowrance
    Science 317:600-2. 2007
  80. pmc Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?
    Donald J Willison
    Centre for Evaluation of Medicines, St Joseph s Healthcare, 105 Main Street East, P1, Hamilton, Ontario, Canada
    J Am Med Inform Assoc 14:706-12. 2007
    ..This study sought to determine public opinion on alternatives to project-specific consent for use of their personal information for health research...
  81. ncbi Beyond "misunderstanding": written information and decisions about taking part in a genetic epidemiology study
    Mary Dixon-Woods
    University of Leicester, Leicester, UK
    Soc Sci Med 65:2212-22. 2007
    ..These questions need to be addressed through engagement and dialogue between the research, research participants, social science, and ethics communities...
  82. ncbi Attitudes to voluntary counselling and testing for HIV among pregnant women in rural south-west Uganda
    R Pool
    Medical Research Council Programme on AIDS in Uganda, Entebbe, Uganda
    AIDS Care 13:605-15. 2001
    ..They were anxious, however, about confidentiality, and there was a widespread fear that maternity staff might refuse to assist them when the time came to ..
  83. pmc Patient perspectives of medical confidentiality: a review of the literature
    Pamela Sankar
    Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104 3308, USA
    J Gen Intern Med 18:659-69. 2003
    To lay the groundwork for a better understanding of patient views on medical confidentiality.
  84. pmc A research agenda for personal health records (PHRs)
    David C Kaelber
    Partners HealthCare Information Systems, Boston MA, USA
    J Am Med Inform Assoc 15:729-36. 2008
    ..We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency...
  85. pmc Ethics and biobanks
    M G Hansson
    1Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics, Uppsala University, Uppsala Science Park, Uppsala SE 751 85, Sweden
    Br J Cancer 100:8-12. 2009
    ..The difficult question regarding the return of information to research subjects is the focus of the current research, but a helpful analysis of some of the issues at stake and concrete recommendations have recently been suggested...
  86. ncbi Should donors be allowed to give broad consent to future biobank research?
    Mats G Hansson
    Centre for Bioethics at Karolinska Institute and Uppsala University, Uppsala, Sweden
    Lancet Oncol 7:266-9. 2006
    ....
  87. ncbi Genetic research on stored tissue samples from minors: a systematic review of the ethical literature
    Kristien Hens
    Katholieke Universiteit Leuven, Centre for Biomedical Ethics and Law, Leuven, Belgium
    Am J Med Genet A 149:2346-58. 2009
    ..We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic...
  88. ncbi USB-based Personal Health Records: an analysis of features and functionality
    Francine L Maloney
    Partners HealthCare, Clinical Informatics Research and Development, Wellesley, MA 02481, USA
    Int J Med Inform 79:97-111. 2010
    ..To determine the features of commercially available USB-based Personal Health Records (PHR) devices, and compare the commercial state of the art to recommendations made by certification committees...
  89. pmc Privacy versus public health: the impact of current confidentiality rules
    Daniel Wartenberg
    Department of Environmental and Occupational Medicine, Robert Wood Johnson Medical School, University of Medicine and Dentistry of New Jersey, Piscatawa, NJ 08854, USA
    Am J Public Health 100:407-12. 2010
    ..However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing ..
  90. pmc Public health surveillance: historical origins, methods and evaluation
    S Declich
    Department of Epidemiology, University of Ottawa, Canada
    Bull World Health Organ 72:285-304. 1994
    ..Finally, some points to be considered in establishing a new surveillance system are presented...
  91. ncbi Confidentiality laws and secrecy in medical research: improving public access to data on drug safety
    Aaron S Kesselheim
    Division of Pharmacoepidemiology and Pharmacoeconomics, Brigham and Women s Hospital, Boston, Massachusetts, USA
    Health Aff (Millwood) 26:483-91. 2007
    ..We suggest regulatory and legislative policy changes regarding how the FDA handles confidential information that can improve understanding of the risks of prescription drugs...
  92. pmc Developing a simplified consent form for biobanking
    Laura M Beskow
    Center for Genome Ethics, Law and Policy, Duke Institute for Genome Sciences and Policy, Duke University, Durham, North Carolina, United States of America
    PLoS ONE 5:e13302. 2010
    ..We then gathered preliminary data concerning its content from hypothetical biobank participants...
  93. ncbi 2008 European Guideline on HIV testing
    M Poljak
    Faculty of Medicine, Institute of Microbiology and Immunology, University of Liubljana, Zatoska 4, 1000, Ljubljana, Slovenia
    Int J STD AIDS 20:77-83. 2009
    ..Its aim is to provide practical guidance to clinicians in these settings who undertake HIV testing and suggest appropriate standards for the audit of service provision...
  94. pmc Sharing patient data: competing demands of privacy, trust and research in primary care
    Margaret A Stone
    Department of Health Sciences, University of Leicester
    Br J Gen Pract 55:783-9. 2005
    ..Patient privacy may conflict with the advancement of knowledge through data sharing. The data contained in primary care records are uniquely comprehensive...
  95. ncbi Research on medical records without informed consent
    Franklin G Miller
    Department of Bioethics, National Institutes of Health, USA
    J Law Med Ethics 36:560-6. 2008
    ..This article analyzes the scope of these norms and provides an ethical justification for research using personally identifiable medical information without consent...
  96. pmc Consent, confidentiality, and the Data Protection Act
    Amy Iversen
    King s Centre for Military Health Research, King s College London, Institute of Psychiatry, London
    BMJ 332:165-9. 2006
  97. pmc Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue
    Donald J Willison
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada
    BMC Med Ethics 9:18. 2008
    ..We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues...
  98. ncbi Factors influencing attitudes towards medical confidentiality among Swiss physicians
    B S Elger
    University Center of Legal Medicine of Geneva and Lausanne, Switzerland
    J Med Ethics 35:517-24. 2009
    Medical confidentiality is a core concept of professionalism and should be an integral part of pregraduate and postgraduate medical education...
  99. ncbi What do Islamic institutional fatwas say about medical and research confidentiality and breach of confidentiality?
    Ghiath Alahmad
    National Guard Health Affairs, King Abdullah International Research Center, P O Box 22490 mail code 1515 Riyadh 11426, Saudi Arabia
    Dev World Bioeth 12:104-12. 2012
    Protecting confidentiality is an essential value in all human relationships, no less in medical practice and research...
  100. ncbi Patient privacy and social media
    Amy L Hader
    American Association of Nurse Anesthetists, Park Ridge, Illinois, USA
    AANA J 78:270-4. 2010
    ..Facebook and other online postings must comply with the Health Insurance Portability and Accountability Act of 1996 (HIPAA), applicable facility policy, state law, and AANA's Code of Ethics...
  101. ncbi The legal and ethical aspects of telemedicine. 1: Confidentiality and the patient's rights of access
    B Stanberry
    Seafarers International Research Centre, Department of Maritime Studies and International Transport, University of Wales, Cardiff, UK
    J Telemed Telecare 3:179-87. 1997
    This paper reviews the principle of confidentiality and the rights of access by patients to their medical records...

Research Grants72

  1. STRUCTURE-BASED TUBERCULOSIS DRUG DESIGN TARGETED AT ACYL-COA CARBOXYLASE
    Shiou Chuan Tsai; Fiscal Year: 2010
    ..PERFORMANCE SITE(S) (organization, city, state) University of California, Irvine, CA 92697, USA REVISED ABSTRACT SECTION ..
  2. Genome-wide recombination as a risk factor for nondisjunction
    NATASHA D HOLLIS; Fiscal Year: 2010
    ..The research plan is well written and attention has been paid to potential risks and confidentiality issues. The preliminary data collected suggest a high likelihood of success of the project...
  3. Behavioral Activation Therapy for Rural Veterans with Diabetes and Depression
    Aanand Dinkar Naik; Fiscal Year: 2013
    ..7. Human Subject Protections. Acceptable. The primary risks associated with this study are risks to confidentiality and possible psychological distress associated with questionnaires or the content of the intervention...
  4. NADPH oxidase-associated transition from Barrett's esophagus to adenocarcinoma
    Weibiao Cao; Fiscal Year: 2013
    ..In addition, NOX5-S may be a potential biomarker for early detection of esophageal dysplasia. Our model may also be applicable to other inflammation-associated cancers. ..
  5. Protein Structure/Function by NMR, Crystallography and Computational Chemistry
    Eric Oldfield; Fiscal Year: 2012
    ....
  6. Epithelial Regulation of Th2 Immune Responses in the Lung
    Marsha Wills-Karp; Fiscal Year: 2013
    ..List all other key personnel in alphabetical order, last name first. Name eRA Commons User Name Organization Role on Project Wills-Karp, Marsha Wildc7 CCHMC PI Finkelman, Fred frefin CCHMC Co-Investigator ..
  7. 10-Theory and Experiment for Genome Packaging in HBV Nucleocapsids
    JIANZHONG contact WU; Fiscal Year: 2010
    ....
  8. DNA cross-linking by diepoxybutane
    Natalia Y Tretyakova; Fiscal Year: 2013
    ..PERFORMANCE SITE(S) (organization, city, state) The Cancer Center, University of Minnesota Minneapolis, Minnesota ..
  9. Mechanism of Heat Shock Protein Induction by Glutamine
    Paul E Wischmeyer; Fiscal Year: 2012
    ..abstract_text> ..
  10. Aging Together: Brothers and Sisters of the Wisconsin Longitudinal Study
    John Robert Warren; Fiscal Year: 2013
    ..directly or through a secure data enclave, consistent with high standards of protection for the privacy and confidentiality of research participants-as soon as they have been collected, cleaned, and documented...
  11. Strengthening Supports for Healthy Relationships: A Gender-Sensitive, Mixed Metho
    Poco Kernsmith; Fiscal Year: 2013
    ..At each stage of the research process, extensive measures will be taken to preserve the confidentiality of participants...
  12. NEWBORN SCREENING TRANSLATIONAL RESEARCH NETWORK (NBSTRN)
    Michael Watson; Fiscal Year: 2013
    ..promote progress and avoid fragmentation of effort Develop policies and procedures that support privacy and confidentiality of patient-related information as well as appropriate rules by which to conduct the research The NBSTRN works ..
  13. Rapid Response Surveillance Study #09-5 - Constructing Geographic Areas in GIS fo
    Sally L Glaser; Fiscal Year: 2009
    ..estimating reliable tract-level incidence rates that would not jeopardize patients[unreadable] privacy and confidentiality. Several geographic strategies have been proposed to mitigate the problem...
  14. Molecular mechanisms of Axenfeld-Rieger syndrome
    Elena V Semina; Fiscal Year: 2013
    ....
  15. Molecular characterization of congenital cataract
    Elena V Semina; Fiscal Year: 2013
    ..Name Organization Role on Project Elena V. Semina, PhD Medical College of Wisconsin PI Disclosure Permission Statement. Applicable to SBIR/STTR Only. See instructions. Yes No PHS 398 (Rev. 05/01) Page _2___ Form Page 2 ..
  16. Patient Awareness and Consumer Education Research Cente*
    Maria E Suarez Almazor; Fiscal Year: 2010
    ..Publications 2. Research Grants 3. Conceptual Framework &DemonstrationProjects 4. VisionTree Software PHS 398 (Rev. 09/04) Page 4 Form Page 3 ..
  17. Primary biliary cirrhosis: molecular genetics and microbial pathogenesis
    Jochen Mattner; Fiscal Year: 2013
    ..BENDELAC University of Chicago Consultant Hildeman, David DHILDE CCHMC Consultant University of Pittsburgh ..
  18. The Effects of Insiderness on Data in the Dominican Republic
    MARIANO SANA; Fiscal Year: 2010
    ..on data quality are reduced when self-administered questionnaires are used to increase confidence in response confidentiality;and (d) explore how characteristics associated with respondents, interviewers, and the interview process ..
  19. Assessing the Accuracy of Self-Report of HIV Testing Behavior
    Karen J Chronister; Fiscal Year: 2011
    ..in surveillance procedures and protocols developed following CDC guidelines with special consideration to confidentiality and security...
  20. Data Coordinating Center for Autism &Other Developmental Disabilities: SEED I&II
    Philip L Reed; Fiscal Year: 2013
    ..levels and capabilities;(5) Maintain information system infrastructure;(6) Provide leadership regarding data confidentiality and security policies;(7) Support study sites, and users broadly;(7) facilitte data sharing, data access for ..
  21. Integrated Samples of Eurasian Censuses
    ROBERT EDWARD MCCAA; Fiscal Year: 2013
    ..This work involved data cleaning, drawing samples, implementing confidentiality protections, creating integrated variables, developing comprehensive metadata, and disseminating the data and ..
  22. An Audio Music Self-management Program to Improve ART Adherence in Rural GA
    Marcia McDonnell Holstad; Fiscal Year: 2013
    ..the delivery of HIV adherence self-management education by overcoming barriers of isolation, transportation, confidentiality and stigma in this vulnerable group...
  23. Adapting the Women's CoOp for At-Risk Teens
    Wendee M Wechsberg; Fiscal Year: 2011
    ..g., age, relationships with males, changes in knowledge about HIV risk behaviors, and competency in active refusal, negotiation, and condom skills). ..
  24. Autism Genetics, Phase II: Increasing Representation of Human Diversity
    Matthew W State; Fiscal Year: 2013
    ..As has been our practice, our Network will make all phenotypic and genotype data accessible via the internet on a rolling basis, further enhancing the value of this resource to the community. ..
  25. Professional Dilemmas:Health Workers'Perceptions of Postabortion Care in Senegal
    JULIA SIRI SUH; Fiscal Year: 2012
    ..The research protocol will protect confidentiality and anonymity of respondents...
  26. Barriers to Alcohol, Drug and PTSD Treatment for Returning National Guard
    Roland S Moore; Fiscal Year: 2013
    ..g., military and civilian employer screening procedures, lack of military confidentiality, insurance coverage, promotion policies and procedures, etc...
  27. Prenatal tobacco exposure: effects on neuropsychological outcomes and ADHD
    Valerie S Knopik; Fiscal Year: 2013
    ..abstract_text> ..
  28. Tennessee Valley Cooperative Human Tissue Network
    Mary Kay Washington; Fiscal Year: 2013
    ..quality control on all tissues harvested to ensure tissue quality and appropriateness;6) to protect patient confidentiality by developing and implementing improved approaches to obtain explicit informed consent for use of extraneous ..
  29. Developing Rwandan Research Capacity in Cervical Cancer and other AIDS Malignanci
    Kathryn M Anastos; Fiscal Year: 2013
    ..both the epidemiologist and local staff in the use of registry matching, with appropriate steps to guard confidentiality, as a powerful epidemiologic tool elucidating ARM patterns in the era of AIDS treatment in Africa...
  30. Shaping the Health of Adolescents in Zimbabwe (SHAZ!)
    MEGAN SUZANNE DUNBAR; Fiscal Year: 2013
    ..savings, as well as conceal the HIV status of study participants, facilitating our ethical mandate to ensure confidentiality. Through our proposed design-that brings together the Women's Global Health Imperative at RTI ..
  31. Affective influences on adolescent sexual risk behavior: Couple &family contexts
    VINCENT M GUILAMO-RAMOS; Fiscal Year: 2013
    ..abstract_text> ..
  32. Vanderbilt Genome Electronic Records Project
    Dan M Roden; Fiscal Year: 2013
    ..4) To develop new tools to maximize our ability to effectively share genomic information and ensure patient confidentiality. We subscribe to a vision of Personalized Medicine in which genomic and other patient-specific information ..
  33. TAS::75 0850::TAS RECOVERY ACT ADOPT COMMON INFRASTRUCTURE SUPPORT UNDER OPERATI
    SUDHIR RAJU; Fiscal Year: 2009
    ..unreadable] Improve communication between CTEP and its collaborators. [unreadable] Assure the security and confidentiality of proprietary and patient information...
  34. Sharing Restricted Data for Secondary Research: Evolving Tools and Protocols
    James W McNally; Fiscal Year: 2013
    ..In recent years growing concern over data confidentiality has emerged as a core directly impacting access to and the availably of research data for secondary analysis...
  35. Families created by assisted reproduction: parenting and child development
    SUSAN ESTHER GOLOMBOK; Fiscal Year: 2011
    ..These samples are the first of their kind to be followed up from infancy, thus providing an opportunity to examine the influence of early experience on later development in these new family forms. ..
  36. Archiving Additional Waves of the Swedish Adoption/Twin Study of Aging (SATSA)
    Nancy L Pedersen; Fiscal Year: 2012
    ..the course of preparing data files for archiving, we will further de-identify the data o protect the confidentiality of participants...
  37. Community Appalachian Investigation and Research Network (CAIRN)
    ANN L CHESTER; Fiscal Year: 2010
    ..Health Portal to facilitate bidirectional information flow and organization while maintaining security and confidentiality. These cores are designed to interface the community and academia, and interact seamlessly with each other...
  38. MULTIDISCIPLINARY ENVIRONMENTAL HEALTH TRAINING
    David Carpenter; Fiscal Year: 2006
    ..Foreign Collaborator Major Foreign Collaborator Major Foreign Collaborator Major Foreign Collaborator Major Foreign Collaborator BB tf Principal Wcstigator/Program Director (Last, first, middle): C^Bpenter, David OrlO ..
  39. POL and Access Intervention to Reduce HIV Stigma among Service Providers in China
    Li Li; Fiscal Year: 2012
    ..settings discourages PLH from seeking care if they previously experienced unwelcoming treatment or their confidentiality was not protected...
  40. Advancing Spatial Evaluation Methods to Improve Healthcare Efficiency and Quality
    Luc Anselin; Fiscal Year: 2013
    ..abstract_text> ..
  41. Action for Health in Diabetes Brain Magnetic Resonance Imaging Ancillary Study
    MARK ANDREW ESPELAND; Fiscal Year: 2013
    ..be willing to join brain imaging studies and we have developed successful protocols for maintaining safety, confidentiality, and quality...
  42. Rethinking Informed Consent for Pragmatic Comparative Effectiveness Trials
    Danielle Whicher; Fiscal Year: 2011
    ..the use of data from electronic medical records for research purposes, including how to manage privacy and confidentiality and whether informed consent is required from patients...
  43. Optimal Micro-Data Switching: An Enhanced Framework and Decision Tool for Confid
    James Kelly; Fiscal Year: 2009
    ..make the data available for analysis without disclosing information that would infringe on privacy, violate confidentiality, or endanger national security...
  44. Using Community Participation to Improve the Health System in South India
    KAIVAN MUNSHI; Fiscal Year: 2013
    ..receiving direct benefits in return-is seen as the primary motivation for community volunteers when strict confidentiality must be maintained, as with TB case management...
  45. Community Context of Colorectal Cancer Disparities
    Jim P Stimpson; Fiscal Year: 2012
    ..NHIS was collected under statutory authority that requires strict protection of respondent confidentiality. To maintain confidentiality, public versions of these data do not contain aggregate level identifiers...
  46. DRW HIV-Ab/HBsAg Duplex Rapid Test submission for FDA-PMA approval
    Helen Lee; Fiscal Year: 2009
    ..This is especially true in blood banks processing less than10,000 donations/year located in regions of high prevalence for the HIV and HBV viral markers. Confidential information: patent application in process ..
  47. Genome-Wide Study of Cataract and Low HDL in the Personalized Medicine Research P
    Catherine Anne McCarty; Fiscal Year: 2010
    ..conduct of whole genome association studies, and maximize data sharing without compromising data security or confidentiality, 3a) elucidate combinations of genetic markers that predispose subjects to the development of cataract, 3b) ..
  48. Probing optical property changes in photonic materials for faster timing in PET
    Craig S Levin; Fiscal Year: 2013
    ..The following contains confidential information that should not be used except for purpose of review and evaluation of this proposal. ..
  49. Preparing for research careers related to diabetes, digestive and kidney diseases
    WILLIAM BRIAN REEVES; Fiscal Year: 2013
    ..The curriculum will also include discussions on normative standards of conduct, privacy and confidentiality issues, laboratory safety, research integrity, record keeping, data management, and communication skills...
  50. Carolinas Conversations: A Multiethnic Digital Corpus of Speech for Older Persons
    Charlene Pope; Fiscal Year: 2009
    ..Privacy and confidentiality will be maintained for the persons recorded, using previously developed consent procedures and research ..
  51. Exploring New Methods for Protecting and Distributing Confidential Research Data
    FELICIA B LECLERE; Fiscal Year: 2010
    ..Each custom system will secure the data storage and usage environment in accordance with the confidentiality requirements of each data file...
  52. Software Leveraging a Standards-Based Web Service Framework for Decision Support
    David Lobach; Fiscal Year: 2009
    ..Increased use of decision support tools can be expected to improve care quality, reduce medical errors, lower healthcare costs, and augment disease management for patients and populations. ..
  53. Para un Futuro: Feasability of a Photovoice approach to Increase Latino Parent-Ad
    Meagan Gallagher; Fiscal Year: 2009
    ..At the beginning of each data collection activity, the interviewer or group facilitator will confirm confidentiality and the participant's right to refuse participation...
  54. COOPERATIVE HUMAN TISSUE NETWORK
    William E Grizzle; Fiscal Year: 2013
    ..the scientists receiving tissues and the CHTN;3) development of regulatory policies to include: positions on confidentiality and informed consent;inclusion of guidelines for implementation of new and modified Federal regulations and ..
  55. Geisinger eGenonic Medicine (GeM) Program
    Marc S Williams; Fiscal Year: 2013
    ..and tissue) that are linkable to data in the Geisinger EMR for broad research use in a manner that protects confidentiality of patient information...
  56. NYSDOH Hurricane Sandy Recovery: Priority Research Area C - Evaluation of the Pub
    Guthrie S Birkhead; Fiscal Year: 2013
    ..analysis will be conducted as approved by the NYSDOH Institutional Review Board to assure informed consent and confidentiality. All research activities will be overseen by a Guidance Team with academic, local, and state representatives.
  57. Curricular and Pedagogical Innovations in Quantitative Biology
    Weigang Qiu; Fiscal Year: 2012
    ..The proposed project will produce a future generation of scientists with the quantitative skills required for biomedical research in the 21st century. PERFORMANCE ..
  58. SBIRT (Pain Management) for Veterans Filing Compensation Claims
    Marc I Rosen; Fiscal Year: 2013
    ..SBIRT-PM will be delivered around the time of the Compensation examination by a counselor, with confidentiality assured...
  59. Expansion Research Capability to Study Comparative Effectiveness in Complex Pati*
    Youjie Huang; Fiscal Year: 2010
    ..The linked data will be documented. Protection of patient's confidentiality will be enforced throughout the project...
  60. New Technology to Preserve Patient Privacy and Data Quality in Health Research
    XiaoBai Li; Fiscal Year: 2013
    ..By adequately protecting privacy, the proposed technology will alleviate concerns about loss of participant confidentiality and enable improved quality and efficiency for research based on secondary use of data...
  61. UCSD Integrated Cardiovascular Epidemiology Fellowship
    BESS HYA MARCUS; Fiscal Year: 2013
    ..didactic coursework on epidemiology and /or behavioral medicine, protection of human subjects in research, confidentiality requirements, elements of appropriate and unbiased analysis of data, and, after the completion of training, ..
  62. School-based Health Clinics: Effects on Youth and Young Adult Sexual Behavior
    Melina Bersamin; Fiscal Year: 2013
    ..g., finances, confidentiality concerns;Kirby, 2002);and (3) directly or indirectly expose youth to family planning resources and services ..
  63. ETHICS COURSE SCIENTIST-PARTICIPANT PARTNERSHIPS
    Celia Fisher; Fiscal Year: 2000
    ..adults with impaired capacity to consent, and federal guidelines for emergency research consent waivers; (5) confidentiality procedures including ethical issues associated with genetic testing, HIV/AIDS related research, and use of ..
  64. Rural Trial of Clinic Order Entry with Decision Support
    Matthew Samore; Fiscal Year: 2006
    ..will allow common access to records across providers who share patients while maintaining strict levels of confidentiality. The CCOE decision support logic will encompass drug interactions, allergy contraindications, disease ..
  65. International Program for Mining Health and Safety
    Jefferey Burgess; Fiscal Year: 2006
    ..Jefferey L. Type the name of the principal investigator/program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) RESEARCH GRANT ..
  66. Novel Corneal Implant Materials
    Shiao Chang; Fiscal Year: 2006
    ..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. RESEARCH GRANT ..
  67. TRAINING PROGRAM IN GENETICS AND GENOMICS
    William Gelbart; Fiscal Year: 2006
    ..Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  68. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2006
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  69. Congenital and neonatal malaria in Mali
    Abdoulaye Djimde; Fiscal Year: 2006
    ..research grant ..
  70. The Sexual Abuse of Vulnerable Adults in Institutions
    Pamela Teaster; Fiscal Year: 2006
    ..abstract_text> ..
  71. Analyzing the Effectiveness of a Non-Verbal Response Card: Evidence from Ethiopia
    David Lindstrom; Fiscal Year: 2009
    ..The card increases the level of privacy and confidentiality in an interviewer- administered survey, and it makes minimal cognitive demands on the respondent...
  72. Nanoscale patterning that promotes cell adhesion
    HEATHER MAYNARD; Fiscal Year: 2006
    ..research grant ..