Summary: The privacy of information and its protection against unauthorized disclosure.
Publications257 found, 100 shown here
- A multidisciplinary approach to honest broker services for tissue banks and clinical data: a pragmatic and practical modelRajiv Dhir
Department of Pathology, University of Pittsburgh, UPMC Shadyside Presbyterian Hospital, Pittsburgh, Pennsylvania 15232, USA
Cancer 113:1705-15. 2008..This complex process needs resolution of a variety of issues regarding the precise role of the HB and their interaction with data. There also is an obvious need for software solutions to make the task of deidentification easier...
- A research agenda for personal health records (PHRs)David C Kaelber
Partners HealthCare Information Systems, Boston MA, USA
J Am Med Inform Assoc 15:729-36. 2008..We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency...
- Current medicolegal and confidentiality issues in large, multicenter research programsP A Carney
Norris Cotton Cancer Center, Department of Community and Family Medicine, Dartmouth Medical School, Hanover Lebanon, NH, USA
Am J Epidemiol 152:371-8. 2000..sites to a single data repository; however, standards for managing data security are needed to protect the confidentiality of participants...
- Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibilityNicole Angotti
University of Texas at Austin, TX, USA
Soc Sci Med 68:2263-70. 2009..Our study suggests that attention to these factors in VCT strategies may mitigate the fear of HIV testing, and ultimately increase uptake in rural African settings...
- Evaluating re-identification risks with respect to the HIPAA privacy ruleKathleen Benitez
Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
J Am Med Inform Assoc 17:169-77. 2010....
- The MITRE Identification Scrubber Toolkit: design, training, and assessmentJohn Aberdeen
The MITRE Corporation, 202 Burlington Rd, Bedford, MA 01730, United States
Int J Med Inform 79:849-59. 2010....
- Protecting privacy using k-anonymityKhaled El Emam
Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario K1J 8L1, Canada
J Am Med Inform Assoc 15:627-37. 2008..To alleviate such concerns, it is possible to anonymize the data before disclosure. One popular anonymization approach is k-anonymity. There have been no evaluations of the actual re-identification probability of k-anonymized data sets...
- The adequacy of informed consent forms in genetic research in Oman: a pilot studyAsya Al-Riyami
Ministry of Health, Oman and Research and Ethics Committee, Sultanate of Oman
Dev World Bioeth 11:57-62. 2011..relevant to health would be disclosed, whether participants may share in commercial products, the extent of confidentiality protections, and the inclusion of additional consent forms for future storage and use of tissue samples...
- Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreakKhaled El Emam
CHEO Research Institute, Smyth Road, Ottawa, K1H 8L1, Canada
BMC Public Health 11:454. 2011..Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak...
- Case study: An ethics case study of HIV prevention research on Facebook: the Just/Us studySheana S Bull
MPH, Colorado School of Public Health, University of Colorado Denver, 13001 East 17th Place, Building 500, Campus Box B 119, Aurora, CO 80045, USA
J Pediatr Psychol 36:1082-92. 2011..To consider issues related to research with youth on social networking sites online...
- A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registersTim Churches
Centre for Epidemiology and Research, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
BMC Med Res Methodol 3:1. 2003..However, growing concern over the privacy and confidentiality aspects of disease registers may hinder their future operation...
- Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of LahoreAyesha Humayun
Department of Community Health Sciences, FMH College of Medicine and Dentistry, Lahore, Pakistan
BMC Med Ethics 9:14. 2008The principles of informed consent, confidentiality and privacy are often neglected during patient care in developing countries. We assessed the degree to which doctors in Lahore adhere to these principles during outpatient consultations.
- Women's views on consent, counseling and confidentiality in PMTCT: a mixed-methods study in four African countriesAnita Hardon
Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, The Netherlands
BMC Public Health 12:26. 2012..This paper focuses on the quality of information provision and counseling and disclosure patterns in Burkina Faso, Kenya, Malawi and Uganda to identify how services can be improved to enable better PMTCT outcomes...
- The disclosure of diagnosis codes can breach research participants' privacyGrigorios Loukides
Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
J Am Med Inform Assoc 17:322-7. 2010....
- Online posting of unprofessional content by medical studentsKatherine C Chretien
Medical Service, Washington DC VA Medical Center and Department of Medicine, George Washington University School of Medicine and Health Sciences, Washington, DC 20422, USA
JAMA 302:1309-15. 2009..Web 2.0 applications, such as social networking sites, are creating new challenges for medical professionalism. The scope of this problem in undergraduate medical education is not well-defined...
- Sharing medical data for health research: the early personal health record experienceElissa R Weitzman
Department of Pediatrics, Harvard Medical School, Boston, United States
J Med Internet Res 12:e14. 2010..Understanding consumer willingness to share data is critical to advancing this model...
- Content of weblogs written by health professionalsTara Lagu
Robert Wood Johnson Clinical Scholars Program, University of Pennsylvania, Philadelphia, PA 19104, USA
J Gen Intern Med 23:1642-6. 2008..Medical weblogs ("blogs") have emerged as a new connection between health professionals and the public...
- Attitudes to voluntary counselling and testing for HIV among pregnant women in rural south-west UgandaR Pool
Medical Research Council Programme on AIDS in Uganda, Entebbe, Uganda
AIDS Care 13:605-15. 2001..They were anxious, however, about confidentiality, and there was a widespread fear that maternity staff might refuse to assist them when the time came to ..
- A globally optimal k-anonymity method for the de-identification of health dataKhaled El Emam
CHEO Research Institute, 401 Smyth Road, Ott, ON K1H8L1, Canada
J Am Med Inform Assoc 16:670-82. 2009..Often legislative requirements to obtain consent are waived if the information collected or disclosed is de-identified...
- Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative studyFasil Tekola
School of Public Health, Addis Ababa University, Addis Ababa, Ethiopia
BMC Med Ethics 10:13. 2009..The aim of this study was to explore the impact of social stigma on the process of obtaining consent for a study on the genetics of podoconiosis in Southern Ethiopia...
- Research use of linked health data--a best practice protocolC W Kelman
Department of Health and Ageing, Canberra, ACT
Aust N Z J Public Health 26:251-5. 2002..This approach is designed to promote confidence in the community and among data custodians that there are benefits of linked health information being used and that individual privacy is being rigorously protected...
- A computational model to protect patient data from location-based re-identificationBradley Malin
Department of Biomedical Informatics, Eskind Biomedical Library, Fourth Floor, 2209 Garland Avenue, Vanderbilt University, Nashville, TN 37232 8340, USA
Artif Intell Med 40:223-39. 2007..In this paper, we develop and evaluate computational methods that health care organizations can apply to disclose patient-specific DNA records that are impregnable to trail re-identification...
- Protecting count queries in study designStaal A Vinterbo
Division of Biomedical Informatics, Department of Medicine, University of California San Diego, La Jolla, California 92093 0728, USA
J Am Med Inform Assoc 19:750-7. 2012..The goal of this study is to extend current query answer systems to guarantee a quantifiable level of privacy and allow users to tailor perturbations to maximize the usefulness according to their needs...
- Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harmsHolly K Tabor
Department of Pediatrics, University of Washington, Seattle, Washington, USA
Am J Med Genet A 158:1310-9. 2012Scientific evidence on the extent to which ethical concerns about privacy, confidentiality, and return of results for whole genome sequencing (WGS) are effectively conveyed by informed consent (IC) is lacking...
- Large medical databases, population-based research, and patient confidentialityG E Simon
Center ofr Health Studies, Group Health Cooperative, Seattle, WA 98101 1448, USA
Am J Psychiatry 157:1731-7. 2000..This article is a discussion of the use of large clinical databases in population-based research on psychiatric disorders...
- Associations between mode of HIV testing and consent, confidentiality, and referral: a comparative analysis in four African countriesCarla Makhlouf Obermeyer
Center for Research on Population and Health, American University of Beirut, Beirut, Lebanon
PLoS Med 9:e1001329. 2012..This paper examines whether practices regarding consent, confidentiality, and referral vary depending on whether testing is provided through voluntary counseling and testing (VCT) or ..
- Nepal: Supreme Court makes landmark decisions on LGBTI rights and the right to confidentialitySandra Ka Hon Chu
HIV AIDS Policy Law Rev 13:62-4. 2008
- Evaluating common de-identification heuristics for personal health informationKhaled El Emam
CHEO Research Institute, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada
J Med Internet Res 8:e28. 2006..De-identification heuristics are provided in the Health Insurance Portability and Accountability Act Privacy Rule, funding agency and professional association privacy guidelines, and common practice...
- Storing newborn blood spots: modern controversiesLinda Kharaboyan
Centre de recherche en droit public, University of Montreal
J Law Med Ethics 32:741-8. 2004
- Ethics and biobanksM G Hansson
1Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics, Uppsala University, Uppsala Science Park, Uppsala SE 751 85, Sweden
Br J Cancer 100:8-12. 2009..The difficult question regarding the return of information to research subjects is the focus of the current research, but a helpful analysis of some of the issues at stake and concrete recommendations have recently been suggested...
- Advocating prevention over punishment: the risks of HIV criminalization in Burkina FasoPatrice Sanon
Réseau Accès aux Médicaments Essentiels RAME, Ouagadougou, Burkina Faso
Reprod Health Matters 17:146-53. 2009..The Burkina Faso law offers a number of protections for people with HIV, such as confidentiality of HIV test results, and holds the government accountable for providing health services for people with HIV ..
- The inadvertent disclosure of personal health information through peer-to-peer file sharing programsKhaled El Emam
Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada
J Am Med Inform Assoc 17:148-58. 2010..We wanted to estimate the extent to which personal health information (PHI) is being disclosed in this way, and compare that to the extent of disclosure of personal financial information (PFI)...
- Protected health information on social networking sites: ethical and legal considerationsLindsay A Thompson
University of Florida, Department of Pediatrics, Gainesville, FL, United States
J Med Internet Res 13:e8. 2011..However, it is unknown whether students and residents portray protected health information and under what circumstances or contexts...
- Effects of personal identifier resynthesis on clinical text de-identificationReyyan Yeniterzi
Faculty of Engineering and Natural Sciences, Sabanci University, Istanbul, Turkey
J Am Med Inform Assoc 17:159-68. 2010..The goal of this research is to evaluate the effectiveness and examine possible bias introduced by resynthesis on de-identification software...
- Ethical approaches to adolescent participation in sexual health researchSarah Flicker
Faculty of Environmental Studies, York University, Toronto, Ontario, Canada
J Adolesc Health 42:3-10. 2008....
- Strategies for maintaining patient privacy in i2b2Shawn N Murphy
Laboratory of Computer Science, Massachusetts General Hospital, Boston, Massachusetts, USA
J Am Med Inform Assoc 18:i103-8. 2011..Some of these challenges arise from a misperception that the problem should be solved technically when actually the problem needs a holistic solution...
- HIV patients' willingness to share personal health information electronicallyPaul A Teixeira
Department of Biomedical Informatics, Columbia University, New York, NY 10032, USA
Patient Educ Couns 84:e9-12. 2011..To assess the attitudes of persons living with HIV/AIDS (PLWH) towards having their personal health information (PHI) stored and shared electronically...
- An open source toolkit for medical imaging de-identificationDavid Rodríguez González
National e Science Centre, School of Informatics, University of Edinburgh, Edinburgh, UK
Eur Radiol 20:1896-904. 2010..Our objective is to provide a flexible mechanism for anonymising Digital Imaging and Communications in Medicine (DICOM) data that meets the requirements for deployment in multicentre trials...
- Secondary uses and the governance of de-identified data: lessons from the human genome diversity panelStephanie M Fullerton
Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, 98195, USA
BMC Med Ethics 12:16. 2011....
- A secure protocol for protecting the identity of providers when disclosing data for disease surveillanceKhaled El Emam
Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada
J Am Med Inform Assoc 18:212-7. 2011Providers have been reluctant to disclose patient data for public-health purposes. Even if patient privacy is ensured, the desire to protect provider confidentiality has been an important driver of this reluctance.
- A data-hiding technique with authentication, integration, and confidentiality for electronic patient recordsHui Mei Chao
Department of Electrical Engineering, De Lin Institute of Technology, Taipei County, Taiwan, ROC
IEEE Trans Inf Technol Biomed 6:46-53. 2002..the "bipolar multiple-number base" was developed to provide capabilities of authentication, integration, and confidentiality for an electronic patient record (EPR) transmitted among hospitals through the Internet...
- Confidentiality and parental involvement in adolescent sexual and reproductive health care: a cross-sectional study of Lithuanian general practitionersLina Jaruseviciene
Department of Family Medicine, Kaunas University of Medicine, Lithuania
Scand J Public Health 39:484-91. 2011We surveyed Lithuanian general practitioners' (GPs) views on the importance of confidentiality for adolescents and on their practices in informing parents about sexual and reproductive health consultations with this age group.
- How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systemsBradley Malin
Data Privacy Laboratory, School of Computer Science, Carnegie Mellon University, Pittsburgh, PA 15213 3890, USA
J Biomed Inform 37:179-92. 2004..We propose that such techniques can be applied as system tests of privacy protection capabilities...
- Statutory basis for public health reporting beyond specific diseasesClaire V Broome
Centers for Disease Control and Prevention, Department of Health and Human Services, Atlanta, GA 30333, USA
J Urban Health 80:i14-22. 2003..The intent of these reporting laws and the Health Insurance Portability and Accountability Act Privacy Rule is to support this critical disease surveillance function for the benefit of the entire population...
- Experiences of physicians who frequently use e-mail with patientsThomas K Houston
Department of Medicine, The Johns Hopkins University School of Medicine, Johns Hopkins University School of Hygiene and Public Health, Baltimore, MD 21205, USA
Health Commun 15:515-25. 2003..Increasing integration into practice to enhance time-saving aspects and improve patient education might lead to more sustained use of this promising communication tool...
- A model for expanded public health reporting in the context of HIPAASoumitra Sengupta
Department of Biomedical Informatics, Columbia University, New York, NY, USA
J Am Med Inform Assoc 15:569-74. 2008..The appropriateness of these approaches varies with the definition of what data may be included, the requirements of the minimum necessary standard, the accounting of disclosures, and the feasibility of the approach...
- Patients' attitudes towards sharing their health informationRichard Whiddett
Department of Information Systems, Massey University, Palmerston North, New Zealand
Int J Med Inform 75:530-41. 2006..This research investigated (1) the attitudes of patients toward sharing their medical information and (2) whether patients considered themselves to be well-informed about the uses that are made of their information...
- Beyond "misunderstanding": written information and decisions about taking part in a genetic epidemiology studyMary Dixon-Woods
University of Leicester, Leicester, UK
Soc Sci Med 65:2212-22. 2007..These questions need to be addressed through engagement and dialogue between the research, research participants, social science, and ethics communities...
- Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspectiveBéatrice Godard
INSERM SC11, Hopital Broussais, Paris, France
Eur J Hum Genet 11:S88-122. 2003..Such standardization would facilitate a greater protection of individuals as well as future international cooperation in biomedical research...
- Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?Donald J Willison
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada
BMC Med Ethics 10:10. 2009..Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research...
- Ethics. Identifiability in genomic researchWilliam W Lowrance
Science 317:600-2. 2007
- Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?Donald J Willison
Centre for Evaluation of Medicines, St Joseph s Healthcare, 105 Main Street East, P1, Hamilton, Ontario, Canada
J Am Med Inform Assoc 14:706-12. 2007..This study sought to determine public opinion on alternatives to project-specific consent for use of their personal information for health research...
- 2008 European Guideline on HIV testingM Poljak
Faculty of Medicine, Institute of Microbiology and Immunology, University of Liubljana, Zatoska 4, 1000, Ljubljana, Slovenia
Int J STD AIDS 20:77-83. 2009..Its aim is to provide practical guidance to clinicians in these settings who undertake HIV testing and suggest appropriate standards for the audit of service provision...
- Confidentiality laws and secrecy in medical research: improving public access to data on drug safetyAaron S Kesselheim
Division of Pharmacoepidemiology and Pharmacoeconomics, Brigham and Women s Hospital, Boston, Massachusetts, USA
Health Aff (Millwood) 26:483-91. 2007..We suggest regulatory and legislative policy changes regarding how the FDA handles confidential information that can improve understanding of the risks of prescription drugs...
- Privacy versus public health: the impact of current confidentiality rulesDaniel Wartenberg
Department of Environmental and Occupational Medicine, Robert Wood Johnson Medical School, University of Medicine and Dentistry of New Jersey, Piscatawa, NJ 08854, USA
Am J Public Health 100:407-12. 2010..However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing ..
- USB-based Personal Health Records: an analysis of features and functionalityFrancine L Maloney
Partners HealthCare, Clinical Informatics Research and Development, Wellesley, MA 02481, USA
Int J Med Inform 79:97-111. 2010..To determine the features of commercially available USB-based Personal Health Records (PHR) devices, and compare the commercial state of the art to recommendations made by certification committees...
- A software tool for removing patient identifying information from clinical documentsF Jeff Friedlin
Regenstrief Institute, Indianapolis, IN 46202, USA
J Am Med Inform Assoc 15:601-10. 2008..We conclude that MeDS successfully de-identified a wide range of medical documents from numerous sources and creates scrubbed reports that retain their interpretability, thereby maintaining their usefulness for research...
- Genetic research on stored tissue samples from minors: a systematic review of the ethical literatureKristien Hens
Katholieke Universiteit Leuven, Centre for Biomedical Ethics and Law, Leuven, Belgium
Am J Med Genet A 149:2346-58. 2009..We have described the different components of these themes, as they occurred in the literature and have provided a discourse on the topic...
- Patients' attitudes toward electronic health information exchange: qualitative studySteven R Simon
Department of Population Medicine, Harvard Medical School and Harvard Pilgrim Health Care, Boston, MA 02215, USA
J Med Internet Res 11:e30. 2009..In many countries, there has been substantial progress in establishing the electronic transmission of patients' health information between health care providers, but little is known about how best to engage patients in the process...
- Developing a simplified consent form for biobankingLaura M Beskow
Center for Genome Ethics, Law and Policy, Duke Institute for Genome Sciences and Policy, Duke University, Durham, North Carolina, United States of America
PLoS ONE 5:e13302. 2010..We then gathered preliminary data concerning its content from hypothetical biobank participants...
- Public health surveillance: historical origins, methods and evaluationS Declich
Department of Epidemiology, University of Ottawa, Canada
Bull World Health Organ 72:285-304. 1994..Finally, some points to be considered in establishing a new surveillance system are presented...
- Sharing patient data: competing demands of privacy, trust and research in primary careMargaret A Stone
Department of Health Sciences, University of Leicester
Br J Gen Pract 55:783-9. 2005..Patient privacy may conflict with the advancement of knowledge through data sharing. The data contained in primary care records are uniquely comprehensive...
- Research on medical records without informed consentFranklin G Miller
Department of Bioethics, National Institutes of Health, USA
J Law Med Ethics 36:560-6. 2008..This article analyzes the scope of these norms and provides an ethical justification for research using personally identifiable medical information without consent...
- Consent, confidentiality, and the Data Protection ActAmy Iversen
King s Centre for Military Health Research, King s College London, Institute of Psychiatry, London
BMJ 332:165-9. 2006
- Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogueDonald J Willison
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada
BMC Med Ethics 9:18. 2008..We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues...
- The legal and ethical aspects of telemedicine. 1: Confidentiality and the patient's rights of accessB Stanberry
Seafarers International Research Centre, Department of Maritime Studies and International Transport, University of Wales, Cardiff, UK
J Telemed Telecare 3:179-87. 1997This paper reviews the principle of confidentiality and the rights of access by patients to their medical records...
- Patient privacy and social mediaAmy L Hader
American Association of Nurse Anesthetists, Park Ridge, Illinois, USA
AANA J 78:270-4. 2010..Facebook and other online postings must comply with the Health Insurance Portability and Accountability Act of 1996 (HIPAA), applicable facility policy, state law, and AANA's Code of Ethics...
- What do Islamic institutional fatwas say about medical and research confidentiality and breach of confidentiality?Ghiath Alahmad
National Guard Health Affairs, King Abdullah International Research Center, P O Box 22490 mail code 1515 Riyadh 11426, Saudi Arabia
Dev World Bioeth 12:104-12. 2012Protecting confidentiality is an essential value in all human relationships, no less in medical practice and research...
- Women's views of prenatal violence screening: acceptability and confidentiality issuesPaula Rinard Renker
The Ohio State University College of Nursing, Columbus, 43210, USA
Obstet Gynecol 107:348-54. 2006..The purpose of this research was to address the need for evidenced-based practices for violence screening by identifying women's perceptions of, and experiences with, prenatal violence screening...
- Factors influencing attitudes towards medical confidentiality among Swiss physiciansB S Elger
University Center of Legal Medicine of Geneva and Lausanne, Switzerland
J Med Ethics 35:517-24. 2009Medical confidentiality is a core concept of professionalism and should be an integral part of pregraduate and postgraduate medical education...
- Concerns over confidentiality may deter adolescents from consulting their doctors. A qualitative explorationJ Carlisle
Public Health, School of Health and Related Research, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK
J Med Ethics 32:133-7. 2006..This study sought to identify issues and concerns of adolescents, and their parents, in relation to confidentiality and teenagers' personal health information.
- Ethical considerations for clinical photography in the global SouthTracy MacIntosh
Friedman School of Nutrition Science and Policy, Tufts University, 150 Harrison Ave, Boston, MA, 02111
Dev World Bioeth 6:81-8. 2006....
- Distributed data processing for public health surveillanceRoss Lazarus
Channing Laboratory, Department of Medicine, Brigham and Women s Hospital and Harvard Medical School, Boston, MA, USA
BMC Public Health 6:235. 2006....
- Should confidentiality in medicine be absolute?John Balint
Alden March Bioethics Institute, Albany Medical College, USA
Am J Bioeth 6:19-20; discussion W32-4. 2006
- Confidentiality preserving audits of electronic medical record accessBradley Malin
Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, TN 37232, United States
Stud Health Technol Inform 129:320-4. 2007..We motivate the protocol in a real world medical center and then generalize the protocol for implementation in existing healthcare environments...
- A defense of unqualified medical confidentialityKenneth Kipnis
University of Hawaii, Manoa, USA
Am J Bioeth 6:7-18. 2006It is broadly held that confidentiality may be breached when doing so can avert grave harm to a third party. This essay challenges the conventional wisdom...
- Consent revisited: points to considerBartha Maria Knoppers
Universite de Montreal Law Faculty, Centre de recherche en droit public CRDP, Canada
Health Law Rev 13:33-8. 2005
- Medical information, confidentiality and a child's right to privacyJoan Loughrey
University of Central Lancashire, UK
Leg Stud (Soc Leg Scholars) 23:510-35. 2003Following the Gillick case in 1986, it was recognised that mature minors were owed a duty of confidentiality in respect of their medical information...
- Health information privacy and public healthJames G Hodge
Georgetown University Law Center, USA
J Law Med Ethics 31:663-71. 2003
- "Opt-out" testing for HIV in Africa: a cautionJoanne Csete
Lancet 363:493-4. 2004
- The next step in health data exchanges: trust and privacy in exchange networksSteve D Gravely
Troutman Sanders LLP, Richmond, VA, USA
J Healthc Inf Manag 23:33-7. 2009..The evolving model for data exchange agreements is a multi-party trust agreement. This article will examine the crucial components of a multi-party trust agreement...
- Confidentiality issues for medical data minersJules J Berman
Pathology Informatics Cancer Diagnosis Program, DCTD, NCI, NIH, EPN Room 6028, 6130 Executive Building, Rockville, MD 20892, USA
Artif Intell Med 26:25-36. 2002The first task in any medical data mining effort is ensuring patient confidentiality. In the past, most data mining efforts ensured confidentiality by the dubious policy of withholding their raw data from colleagues and the public...
- 'Confidentiality smokescreens' and carers for people with mental health problems: the perspectives of professionalsBen Gray
All Wales Alliance for Research and Development in Health and Social Care, Institute of Medical and Social Care Research, University of Wales, Bangor, Wales
Health Soc Care Community 16:378-87. 2008..sharing between professionals and carers has failed to deal with the practical dilemmas of patient confidentiality. Professional codes and training neither explore nor develop the moral and ethical ground that stands between ..
- The effect of the new federal medical-privacy rule on researchJennifer Kulynych
Association of American Medical Colleges, Washington, DC 20037, USA
N Engl J Med 346:201-4. 2002
- Limits of confidentiality: Disclosure of HIV seropositivityJames W Jones
Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77030, USA
J Vasc Surg 38:1443-4. 2003
- Learning from experience: privacy and the secondary use of data in health researchWilliam Lowrance
J Health Serv Res Policy 8:S1:2-7. 2003..Safeguards are an integral part of the research promise to the public, offer crucial reassurance and should be emphasised. For health services research, databases are core resources, and their stewardship must be cultivated...
- An ethical framework for sharing patient data without consentRobert Navarro
Sapior Ltd, London, UK
Inform Prim Care 16:257-62. 2008....
- Evaluating predictors of geographic area population size cut-offs to manage re-identification riskKhaled El Emam
Children s Hospital of Eastern Ontario Research Institute, Pediatrics, Faculty of Medicine, University of Ottawa, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada
J Am Med Inform Assoc 16:256-66. 2009..Our objective is to estimate the population size cut-off at which a geographic area is sufficiently large so that no data suppression or further aggregation is necessary...
- Confidentiality and the telephone in family practice: a qualitative study of the views of patients, clinicians and administrative staffBrian McKinstry
Centre for Population Health Sciences, University of Edinburgh, UK
Fam Pract 26:344-50. 2009b>Confidentiality is considered a cornerstone of the medical consultation...
- Security in health-care information systems--current trendsE Smith
Rand Afrikaans University, Department of Computer Science, Auckland Park, South Africa
Int J Med Inform 54:39-54. 1999..computerised health-care information systems should, therefore, guarantee adequate protection of the confidentiality and integrity of patient information...
- Inferential genotyping of Y chromosomes in Latter-Day Saints founders and comparison to Utah samples in the HapMap projectJane Gitschier
Department of Medicine and Pediatrics and Institute for Human Genetics, University of California, San Francisco, CA 94143, USA
Am J Hum Genet 84:251-8. 2009....
- Medical ethics in surgical wards: knowledge, attitude and practice of surgical team members in KarachiB Shiraz
Department of Surgery, Ziauddin Medical University Hospital, 169 B, Block 3, PECHS, Karachi, Pakistan
Indian J Med Ethics 2:94-6. 2005..Forty-two respondents gave correct answers on questions of confidentiality and knowledge of law pertaining to trauma victims. Only 11 reported having been taught ethics as students...
- Health-information altruists--a potentially critical resourceIsaac S Kohane
Department of Pediatrics, Children s Hospital and Harvard Medical School, Boston, USA
N Engl J Med 353:2074-7. 2005
- Developing a standard for de-identifying electronic patient records written in Swedish: precision, recall and F-measure in a manual and computerized annotation trialSumithra Velupillai
Department of Computer and Systems Sciences, Stockholm University KTH, Kista, Sweden
Int J Med Inform 78:e19-26. 2009..Therefore, methods for de-identifying EPRs are needed. The work presented here aims to perform a manual and automatic Protected Health Information (PHI)-annotation trial for EPRs written in Swedish...
- Automated de-identification of free-text medical recordsIshna Neamatullah
Laboratory for Computational Physiology, Massachusetts Institute of Technology, Cambridge, MA 02139, USA
BMC Med Inform Decis Mak 8:32. 2008Text-based patient medical records are a vital resource in medical research. In order to preserve patient confidentiality, however, the U.S...
- Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to considerAmy L McGuire
From the 1Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA
Genet Med 10:495-9. 2008..These discussions can help guide policy that will facilitate the biological and clinical resource development to support the introduction of this information into health care...
- Giving patients access to their medical records via the internet: the PCASSO experienceDaniel Masys
Biomedical Informatics, School of Medicine, University of California, San Diego, La Jolla, California 92093 0602, USA
J Am Med Inform Assoc 9:181-91. 2002..The Patient-Centered Access to Secure Systems Online (PCASSO) project is designed to apply state-of-the-art-security to the communication of clinical information over the Internet...
- Threats to privacy protectionCarol Isaacson Barash
Science 318:913-4. 2007
- Forgone health care among U.S. adolescents: associations between risk characteristics and confidentiality concernJocelyn A Lehrer
Bixby Center for Reproductive Health Research and Policy, University of California, San Francisco, San Francisco, California, USA
J Adolesc Health 40:218-26. 2007To examine risk characteristics associated with citing confidentiality concern as a reason for forgone health care, among a sample of U.S. adolescents who reported having forgone health care they believed was necessary in the past year.
- Sleeping better at night: investigators' experiences with certificates of confidentialityLeslie E Wolf
IRB 28:1-7. 2006
- Evaluating the state-of-the-art in automatic de-identificationOzlem Uzuner
University at Albany, SUNY, Draper 114A, 135 Western Ave, Albany, NY 12222, USA
J Am Med Inform Assoc 14:550-63. 2007..However, identifying ambiguous PHI proved challenging. The performance of systems on the test data set is encouraging. Future evaluations of these systems will involve larger data sets from more heterogeneous sources...
- STRUCTURE-BASED TUBERCULOSIS DRUG DESIGN TARGETED AT ACYL-COA CARBOXYLASEShiou Chuan Tsai; Fiscal Year: 2010..PERFORMANCE SITE(S) (organization, city, state) University of California, Irvine, CA 92697, USA REVISED ABSTRACT SECTION ..
- GRADUATE TRAINING IN GENETICSMichael Bender; Fiscal Year: 2006..Kathehne R.' Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD ..
- Rural Trial of Clinic Order Entry with Decision SupportMatthew Samore; Fiscal Year: 2006..will allow common access to records across providers who share patients while maintaining strict levels of confidentiality. The CCOE decision support logic will encompass drug interactions, allergy contraindications, disease ..
- Novel Corneal Implant MaterialsShiao Chang; Fiscal Year: 2006..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. RESEARCH GRANT ..
- Integrated Samples of Eurasian CensusesROBERT EDWARD MCCAA; Fiscal Year: 2010..This work involved data cleaning, drawing samples, implementing confidentiality protections, creating integrated variables, developing comprehensive metadata, and disseminating the data and ..
- TRAINING PROGRAM IN GENETICS AND GENOMICSWilliam Gelbart; Fiscal Year: 2006..Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
- AIDS Stigma & Gender: Health Consequences in Urban IndiaMaria Ekstrand; Fiscal Year: 2006..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
- Congenital and neonatal malaria in MaliAbdoulaye Djimde; Fiscal Year: 2006..research grant ..
- ISLET-CELL RESOURCES CTR OF SOUTHERN CALIFORNIAARTHUR RIGGS; Fiscal Year: 2006..4/98) Page 2 BB Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b. ..
- The Sexual Abuse of Vulnerable Adults in InstitutionsPamela Teaster; Fiscal Year: 2006..abstract_text> ..
- Internet as Supplier: Preventing Adolescent Use of Non-Medical Addictive RxAmelia Arria; Fiscal Year: 2009..The data collection has been designed to completely protect confidentiality. The study has three primary aims: 1...
- RESEARCH TRAINING IN DIGESTIVE DISEASESDaniel Podolsky; Fiscal Year: 2006..Type the name of the program director at thd^Hof each printed page and each continuation page.^Hr type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
- Nanoscale patterning that promotes cell adhesionHEATHER MAYNARD; Fiscal Year: 2006..research grant ..