confidentiality

Summary

Summary: The privacy of information and its protection against unauthorized disclosure.

Top Publications

  1. ncbi HIPAA the health care hippo: despite the rhetoric, is privacy still an issue?
    Kay Kuczynski
    Department of Social Work, East Tennessee State University, Johnson City 37614 0002, USA
    Soc Work 50:283-7. 2005
  2. ncbi Privacy architecture and e-consent. What the future holds
    Kathleen Connor
    FOX Systems, Inc, Olympia, WA, USA
    J AHIMA 78:64-5, 70. 2007
  3. ncbi A globally optimal k-anonymity method for the de-identification of health data
    Khaled El Emam
    CHEO Research Institute, 401 Smyth Road, Ott, ON K1H8L1, Canada
    J Am Med Inform Assoc 16:670-82. 2009
  4. ncbi Evaluating re-identification risks with respect to the HIPAA privacy rule
    Kathleen Benitez
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:169-77. 2010
  5. ncbi Statutory basis for public health reporting beyond specific diseases
    Claire V Broome
    Centers for Disease Control and Prevention, Department of Health and Human Services, Atlanta, GA 30333, USA
    J Urban Health 80:i14-22. 2003
  6. ncbi Experiences of physicians who frequently use e-mail with patients
    Thomas K Houston
    Department of Medicine, The Johns Hopkins University School of Medicine, Johns Hopkins University School of Hygiene and Public Health, Baltimore, MD 21205, USA
    Health Commun 15:515-25. 2003
  7. ncbi Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibility
    Nicole Angotti
    University of Texas at Austin, TX, USA
    Soc Sci Med 68:2263-70. 2009
  8. ncbi Sharing medical data for health research: the early personal health record experience
    Elissa R Weitzman
    Department of Pediatrics, Harvard Medical School, Boston, United States
    J Med Internet Res 12:e14. 2010
  9. ncbi The MITRE Identification Scrubber Toolkit: design, training, and assessment
    John Aberdeen
    The MITRE Corporation, 202 Burlington Rd, Bedford, MA 01730, United States
    Int J Med Inform 79:849-59. 2010
  10. ncbi Protecting privacy using k-anonymity
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario K1J 8L1, Canada
    J Am Med Inform Assoc 15:627-37. 2008

Research Grants

  1. STRUCTURE-BASED TUBERCULOSIS DRUG DESIGN TARGETED AT ACYL-COA CARBOXYLASE
    Shiou Chuan Tsai; Fiscal Year: 2010
  2. GRADUATE TRAINING IN GENETICS
    Michael Bender; Fiscal Year: 2006
  3. Rural Trial of Clinic Order Entry with Decision Support
    Matthew Samore; Fiscal Year: 2006
  4. Novel Corneal Implant Materials
    Shiao Chang; Fiscal Year: 2006
  5. Integrated Samples of Eurasian Censuses
    ROBERT EDWARD MCCAA; Fiscal Year: 2010
  6. TRAINING PROGRAM IN GENETICS AND GENOMICS
    William Gelbart; Fiscal Year: 2006
  7. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2006
  8. Congenital and neonatal malaria in Mali
    Abdoulaye Djimde; Fiscal Year: 2006
  9. ISLET-CELL RESOURCES CTR OF SOUTHERN CALIFORNIA
    ARTHUR RIGGS; Fiscal Year: 2006
  10. The Sexual Abuse of Vulnerable Adults in Institutions
    Pamela Teaster; Fiscal Year: 2006

Detail Information

Publications212 found, 100 shown here

  1. ncbi HIPAA the health care hippo: despite the rhetoric, is privacy still an issue?
    Kay Kuczynski
    Department of Social Work, East Tennessee State University, Johnson City 37614 0002, USA
    Soc Work 50:283-7. 2005
  2. ncbi Privacy architecture and e-consent. What the future holds
    Kathleen Connor
    FOX Systems, Inc, Olympia, WA, USA
    J AHIMA 78:64-5, 70. 2007
  3. ncbi A globally optimal k-anonymity method for the de-identification of health data
    Khaled El Emam
    CHEO Research Institute, 401 Smyth Road, Ott, ON K1H8L1, Canada
    J Am Med Inform Assoc 16:670-82. 2009
    ..Often legislative requirements to obtain consent are waived if the information collected or disclosed is de-identified...
  4. ncbi Evaluating re-identification risks with respect to the HIPAA privacy rule
    Kathleen Benitez
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, Tennessee 37203, USA
    J Am Med Inform Assoc 17:169-77. 2010
    ....
  5. ncbi Statutory basis for public health reporting beyond specific diseases
    Claire V Broome
    Centers for Disease Control and Prevention, Department of Health and Human Services, Atlanta, GA 30333, USA
    J Urban Health 80:i14-22. 2003
    ..The intent of these reporting laws and the Health Insurance Portability and Accountability Act Privacy Rule is to support this critical disease surveillance function for the benefit of the entire population...
  6. ncbi Experiences of physicians who frequently use e-mail with patients
    Thomas K Houston
    Department of Medicine, The Johns Hopkins University School of Medicine, Johns Hopkins University School of Hygiene and Public Health, Baltimore, MD 21205, USA
    Health Commun 15:515-25. 2003
    ..Increasing integration into practice to enhance time-saving aspects and improve patient education might lead to more sustained use of this promising communication tool...
  7. ncbi Increasing the acceptability of HIV counseling and testing with three C's: convenience, confidentiality and credibility
    Nicole Angotti
    University of Texas at Austin, TX, USA
    Soc Sci Med 68:2263-70. 2009
    ..Our study suggests that attention to these factors in VCT strategies may mitigate the fear of HIV testing, and ultimately increase uptake in rural African settings...
  8. ncbi Sharing medical data for health research: the early personal health record experience
    Elissa R Weitzman
    Department of Pediatrics, Harvard Medical School, Boston, United States
    J Med Internet Res 12:e14. 2010
    ..Understanding consumer willingness to share data is critical to advancing this model...
  9. ncbi The MITRE Identification Scrubber Toolkit: design, training, and assessment
    John Aberdeen
    The MITRE Corporation, 202 Burlington Rd, Bedford, MA 01730, United States
    Int J Med Inform 79:849-59. 2010
    ....
  10. ncbi Protecting privacy using k-anonymity
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario K1J 8L1, Canada
    J Am Med Inform Assoc 15:627-37. 2008
    ..To alleviate such concerns, it is possible to anonymize the data before disclosure. One popular anonymization approach is k-anonymity. There have been no evaluations of the actual re-identification probability of k-anonymized data sets...
  11. ncbi A model for expanded public health reporting in the context of HIPAA
    Soumitra Sengupta
    Department of Biomedical Informatics, Columbia University, New York, NY, USA
    J Am Med Inform Assoc 15:569-74. 2008
    ..The appropriateness of these approaches varies with the definition of what data may be included, the requirements of the minimum necessary standard, the accounting of disclosures, and the feasibility of the approach...
  12. ncbi How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems
    Bradley Malin
    Data Privacy Laboratory, School of Computer Science, Carnegie Mellon University, Pittsburgh, PA 15213 3890, USA
    J Biomed Inform 37:179-92. 2004
    ..We propose that such techniques can be applied as system tests of privacy protection capabilities...
  13. ncbi Ethics. Identifiability in genomic research
    William W Lowrance
    Science 317:600-2. 2007
  14. ncbi Attitudes to voluntary counselling and testing for HIV among pregnant women in rural south-west Uganda
    R Pool
    Medical Research Council Programme on AIDS in Uganda, Entebbe, Uganda
    AIDS Care 13:605-15. 2001
    ..They were anxious, however, about confidentiality, and there was a widespread fear that maternity staff might refuse to assist them when the time came to ..
  15. ncbi Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?
    Donald J Willison
    Centre for Evaluation of Medicines, St Joseph s Healthcare, 105 Main Street East, P1, Hamilton, Ontario, Canada
    J Am Med Inform Assoc 14:706-12. 2007
    ..This study sought to determine public opinion on alternatives to project-specific consent for use of their personal information for health research...
  16. ncbi Consent, confidentiality, and the Data Protection Act
    Amy Iversen
    King's Centre for Military Health Research, King's College London, Institute of Psychiatry, London
    BMJ 332:165-9. 2006
  17. ncbi Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue
    Donald J Willison
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada
    BMC Med Ethics 9:18. 2008
    ..We sought to elicit public values in this matter and to work toward an agreement about a common approach to consent for use of personal information for health research through deliberative public dialogues...
  18. ncbi A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registers
    Tim Churches
    Centre for Epidemiology and Research, New South Wales Department of Health, Locked Mail Bag 961, North Sydney NSW 2059, Australia
    BMC Med Res Methodol 3:1. 2003
    ..However, growing concern over the privacy and confidentiality aspects of disease registers may hinder their future operation...
  19. ncbi A defense of unqualified medical confidentiality
    Kenneth Kipnis
    University of Hawaii, Manoa, USA
    Am J Bioeth 6:7-18. 2006
    It is broadly held that confidentiality may be breached when doing so can avert grave harm to a third party. This essay challenges the conventional wisdom...
  20. ncbi Distributed data processing for public health surveillance
    Ross Lazarus
    Channing Laboratory, Department of Medicine, Brigham and Women s Hospital and Harvard Medical School, Boston, MA, USA
    BMC Public Health 6:235. 2006
    ....
  21. ncbi Confidentiality issues for medical data miners
    Jules J Berman
    Pathology Informatics Cancer Diagnosis Program, DCTD, NCI, NIH, EPN Room 6028, 6130 Executive Building, Rockville, MD 20892, USA
    Artif Intell Med 26:25-36. 2002
    The first task in any medical data mining effort is ensuring patient confidentiality. In the past, most data mining efforts ensured confidentiality by the dubious policy of withholding their raw data from colleagues and the public...
  22. ncbi The next step in health data exchanges: trust and privacy in exchange networks
    Steve D Gravely
    Troutman Sanders LLP, Richmond, VA, USA
    J Healthc Inf Manag 23:33-7. 2009
    ..The evolving model for data exchange agreements is a multi-party trust agreement. This article will examine the crucial components of a multi-party trust agreement...
  23. ncbi Content of weblogs written by health professionals
    Tara Lagu
    Robert Wood Johnson Clinical Scholars Program, University of Pennsylvania, Philadelphia, PA 19104, USA
    J Gen Intern Med 23:1642-6. 2008
    ..Medical weblogs ("blogs") have emerged as a new connection between health professionals and the public...
  24. ncbi Should confidentiality in medicine be absolute?
    John Balint
    Alden March Bioethics Institute, Albany Medical College, USA
    Am J Bioeth 6:19-20; discussion W32-4. 2006
  25. ncbi Medical information, confidentiality and a child's right to privacy
    Joan Loughrey
    University of Central Lancashire, UK
    Leg Stud (Soc Leg Scholars) 23:510-35. 2003
    Following the Gillick case in 1986, it was recognised that mature minors were owed a duty of confidentiality in respect of their medical information...
  26. ncbi Health information privacy and public health
    James G Hodge
    Georgetown University Law Center, USA
    J Law Med Ethics 31:663-71. 2003
  27. ncbi "Opt-out" testing for HIV in Africa: a caution
    Joanne Csete
    Lancet 363:493-4. 2004
  28. ncbi Limits of confidentiality: Disclosure of HIV seropositivity
    James W Jones
    Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77030, USA
    J Vasc Surg 38:1443-4. 2003
  29. ncbi An ethical framework for sharing patient data without consent
    Robert Navarro
    Sapior Ltd, London, UK
    Inform Prim Care 16:257-62. 2008
    ....
  30. ncbi Evaluating predictors of geographic area population size cut-offs to manage re-identification risk
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Pediatrics, Faculty of Medicine, University of Ottawa, 401 Smyth Road, Ottawa, ON K1H 8L1, Canada
    J Am Med Inform Assoc 16:256-66. 2009
    ..Our objective is to estimate the population size cut-off at which a geographic area is sufficiently large so that no data suppression or further aggregation is necessary...
  31. ncbi Learning from experience: privacy and the secondary use of data in health research
    William Lowrance
    J Health Serv Res Policy 8:S1:2-7. 2003
    ..Safeguards are an integral part of the research promise to the public, offer crucial reassurance and should be emphasised. For health services research, databases are core resources, and their stewardship must be cultivated...
  32. ncbi Consent revisited: points to consider
    Bartha Maria Knoppers
    Universite de Montreal Law Faculty, Centre de recherche en droit public (CRDP, Canada
    Health Law Rev 13:33-8. 2005
  33. ncbi A data-hiding technique with authentication, integration, and confidentiality for electronic patient records
    Hui Mei Chao
    Department of Electrical Engineering, De Lin Institute of Technology, Taipei County, Taiwan, ROC
    IEEE Trans Inf Technol Biomed 6:46-53. 2002
    ..multiple-number base" was developed to provide capabilities of authentication, integration, and confidentiality for an electronic patient record (EPR) transmitted among hospitals through the Internet...
  34. ncbi Confidentiality and the telephone in family practice: a qualitative study of the views of patients, clinicians and administrative staff
    Brian McKinstry
    Centre for Population Health Sciences, University of Edinburgh, UK
    Fam Pract 26:344-50. 2009
    b>Confidentiality is considered a cornerstone of the medical consultation...
  35. ncbi Online posting of unprofessional content by medical students
    Katherine C Chretien
    Medical Service, Washington DC VA Medical Center and Department of Medicine, George Washington University School of Medicine and Health Sciences, Washington, DC 20422, USA
    JAMA 302:1309-15. 2009
    ..Web 2.0 applications, such as social networking sites, are creating new challenges for medical professionalism. The scope of this problem in undergraduate medical education is not well-defined...
  36. ncbi Privacy versus public health: the impact of current confidentiality rules
    Daniel Wartenberg
    Department of Environmental and Occupational Medicine, Robert Wood Johnson Medical School, University of Medicine and Dentistry of New Jersey, Piscatawa, NJ 08854, USA
    Am J Public Health 100:407-12. 2010
    ..However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing ..
  37. ncbi The effect of the new federal medical-privacy rule on research
    Jennifer Kulynych
    Association of American Medical Colleges, Washington, DC 20037, USA
    N Engl J Med 346:201-4. 2002
  38. ncbi Confidentiality preserving audits of electronic medical record access
    Bradley Malin
    Department of Biomedical Informatics, School of Medicine, Vanderbilt University, Nashville, TN 37232, United States
    Stud Health Technol Inform 129:320-4. 2007
    ..We motivate the protocol in a real world medical center and then generalize the protocol for implementation in existing healthcare environments...
  39. ncbi A secure protocol for protecting the identity of providers when disclosing data for disease surveillance
    Khaled El Emam
    Children s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada
    J Am Med Inform Assoc 18:212-7. 2011
    Providers have been reluctant to disclose patient data for public-health purposes. Even if patient privacy is ensured, the desire to protect provider confidentiality has been an important driver of this reluctance.
  40. ncbi 'Confidentiality smokescreens' and carers for people with mental health problems: the perspectives of professionals
    Ben Gray
    All Wales Alliance for Research and Development in Health and Social Care, Institute of Medical and Social Care Research, University of Wales, Bangor, Wales
    Health Soc Care Community 16:378-87. 2008
    ..sharing between professionals and carers has failed to deal with the practical dilemmas of patient confidentiality. Professional codes and training neither explore nor develop the moral and ethical ground that stands between ..
  41. ncbi Security in health-care information systems--current trends
    E Smith
    Rand Afrikaans University, Department of Computer Science, Auckland Park, South Africa
    Int J Med Inform 54:39-54. 1999
    ..computerised health-care information systems should, therefore, guarantee adequate protection of the confidentiality and integrity of patient information...
  42. ncbi Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?
    Donald J Willison
    Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada
    BMC Med Ethics 10:10. 2009
    ..Little is known about the opinion of those who have more or less stigmatizing health conditions regarding the need for consent for use of their personal information for health research...
  43. ncbi Sleeping better at night: investigators' experiences with certificates of confidentiality
    Leslie E Wolf
    IRB 28:1-7. 2006
  44. ncbi Challenging themes in American health information privacy and the public's health: historical and modern assessments
    James G Hodge
    Johns Hopkins Bloomberg School of Public Health, USA
    J Law Med Ethics 32:670-9. 2004
  45. ncbi Medical ethics in surgical wards: knowledge, attitude and practice of surgical team members in Karachi
    B Shiraz
    Department of Surgery, Ziauddin Medical University Hospital, 169 B, Block 3, PECHS, Karachi, Pakistan
    Indian J Med Ethics 2:94-6. 2005
    ..Forty-two respondents gave correct answers on questions of confidentiality and knowledge of law pertaining to trauma victims. Only 11 reported having been taught ethics as students...
  46. ncbi Health-information altruists--a potentially critical resource
    Isaac S Kohane
    Department of Pediatrics, Children's Hospital and Harvard Medical School, Boston, USA
    N Engl J Med 353:2074-7. 2005
  47. ncbi Threats to privacy protection
    Carol Isaacson Barash
    Science 318:913-4. 2007
  48. ncbi Ethics and SARS: lessons from Toronto
    Peter A Singer
    University of Toronto Joint Centre for Bioethics, 88 College St, Toronto, Canada M5G 1L4
    BMJ 327:1342-4. 2003
  49. ncbi Inferential genotyping of Y chromosomes in Latter-Day Saints founders and comparison to Utah samples in the HapMap project
    Jane Gitschier
    Department of Medicine and Pediatrics and Institute for Human Genetics, University of California, San Francisco, CA 94143, USA
    Am J Hum Genet 84:251-8. 2009
    ....
  50. ncbi Health information, the HIPAA privacy rule, and health care: what do physicians think?
    Julia Slutsman
    National Cancer Institute in Bethesda, Maryland, USA
    Health Aff (Millwood) 24:832-42. 2005
    ..The policy implications of the findings are discussed...
  51. ncbi From Hippocrates to HIPAA: privacy and confidentiality in emergency medicine--Part I: conceptual, moral, and legal foundations
    John C Moskop
    Department of Medical Humanities, The Brody School of Medicine at East Carolina University, Bioethics Center, University Health Systems of Eastern Carolina, Greenville, NC 27834, USA
    Ann Emerg Med 45:53-9. 2005
    Respect for patient privacy and confidentiality is an ancient and a contemporary professional responsibility of physicians...
  52. ncbi Research on medical records without informed consent
    Franklin G Miller
    Department of Bioethics, National Institutes of Health, USA
    J Law Med Ethics 36:560-6. 2008
    ..This article analyzes the scope of these norms and provides an ethical justification for research using personally identifiable medical information without consent...
  53. ncbi Developing a standard for de-identifying electronic patient records written in Swedish: precision, recall and F-measure in a manual and computerized annotation trial
    Sumithra Velupillai
    Department of Computer and Systems Sciences, Stockholm University KTH, Kista, Sweden
    Int J Med Inform 78:e19-26. 2009
    ..Therefore, methods for de-identifying EPRs are needed. The work presented here aims to perform a manual and automatic Protected Health Information (PHI)-annotation trial for EPRs written in Swedish...
  54. ncbi Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider
    Amy L McGuire
    From the 1Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA
    Genet Med 10:495-9. 2008
    ..These discussions can help guide policy that will facilitate the biological and clinical resource development to support the introduction of this information into health care...
  55. ncbi A software tool for removing patient identifying information from clinical documents
    F Jeff Friedlin
    Regenstrief Institute, Indianapolis, IN 46202, USA
    J Am Med Inform Assoc 15:601-10. 2008
    ..We conclude that MeDS successfully de-identified a wide range of medical documents from numerous sources and creates scrubbed reports that retain their interpretability, thereby maintaining their usefulness for research...
  56. ncbi Automated de-identification of free-text medical records
    Ishna Neamatullah
    Laboratory for Computational Physiology, Massachusetts Institute of Technology, Cambridge, MA 02139, USA
    BMC Med Inform Decis Mak 8:32. 2008
    Text-based patient medical records are a vital resource in medical research. In order to preserve patient confidentiality, however, the U.S...
  57. ncbi Rapidly retargetable approaches to de-identification in medical records
    Ben Wellner
    The MITRE Corporation, Bedford, MA, USA
    J Am Med Inform Assoc 14:564-73. 2007
    ..This paper describes a successful approach to de-identification that was developed to participate in a recent AMIA-sponsored challenge evaluation...
  58. ncbi Patients' access to their online electronic health records
    Cecilia Pyper
    Bury Knowle Health Centre, Oxford, UK
    J Telemed Telecare 8:103-5. 2002
    ..After the focus groups, 11 patients changed their minds and accessed their records. We believe that patient-accessed EHRs will offer substantial benefits to patients, health professionals and the National Health Service as a whole...
  59. ncbi Evaluating the state-of-the-art in automatic de-identification
    Ozlem Uzuner
    University at Albany, SUNY, Draper 114A, 135 Western Ave, Albany, NY 12222, USA
    J Am Med Inform Assoc 14:550-63. 2007
    ..However, identifying ambiguous PHI proved challenging. The performance of systems on the test data set is encouraging. Future evaluations of these systems will involve larger data sets from more heterogeneous sources...
  60. ncbi Giving patients access to their medical records via the internet: the PCASSO experience
    Daniel Masys
    Biomedical Informatics, School of Medicine, University of California, San Diego, La Jolla, California 92093 0602, USA
    J Am Med Inform Assoc 9:181-91. 2002
    ..The Patient-Centered Access to Secure Systems Online (PCASSO) project is designed to apply state-of-the-art-security to the communication of clinical information over the Internet...
  61. ncbi Forgone health care among U.S. adolescents: associations between risk characteristics and confidentiality concern
    Jocelyn A Lehrer
    Bixby Center for Reproductive Health Research and Policy, University of California, San Francisco, San Francisco, California, USA
    J Adolesc Health 40:218-26. 2007
    To examine risk characteristics associated with citing confidentiality concern as a reason for forgone health care, among a sample of U.S. adolescents who reported having forgone health care they believed was necessary in the past year.
  62. ncbi Availability of adolescent health services and confidentiality in primary care practices
    Lara J Akinbami
    Infant and Child Health Studies Branch, National Center for Health Statistics, Centers for Disease Control and Prevention, Hyattsville, Maryland 20782, USA
    Pediatrics 111:394-401. 2003
    ....
  63. ncbi So much for keeping secrets: the importance of considering patients' perspectives on maintaining confidentiality
    K Whetten-Goldstein
    Sanford Institute for Public Policy and the Center for Health Policy, Law and Management, Duke University, Durham, NC, USA
    AIDS Care 13:457-65. 2001
    Little data are available from patients' perspectives regarding the maintenance of confidentiality by care providers...
  64. ncbi A multidisciplinary approach to honest broker services for tissue banks and clinical data: a pragmatic and practical model
    Rajiv Dhir
    Department of Pathology, University of Pittsburgh, UPMC Shadyside Presbyterian Hospital, Pittsburgh, Pennsylvania 15232, USA
    Cancer 113:1705-15. 2008
    ..This complex process needs resolution of a variety of issues regarding the precise role of the HB and their interaction with data. There also is an obvious need for software solutions to make the task of deidentification easier...
  65. ncbi The personal health record
    Michael J Ackerman
    High Performance Computing and Communications, National Library of Medicine, Building 38A, Room B1 n-30, 8600 Rockville Pike, Bethesda, MD 20894, USA
    J Med Pract Manage 23:84-5. 2007
  66. ncbi The use and misuse of electronic patient data
    Nancy J Brent
    J Infus Nurs 28:251-7. 2005
    ..rights, briefly discusses a few of the many federal, state, and local regulatory laws protecting patient confidentiality and privacy electronically, and briefly reviews several case decisions in this area...
  67. ncbi Amending business associate contracts. Harmonizing privacy and security for protected health information
    Nilay B Patel
    Care1st Health Plan, Los Angeles, CA, USA
    J AHIMA 76:58-9. 2005
  68. ncbi Informed consent to psychotherapy: protecting the dignity and respecting the autonomy of patients
    Celia B Fisher
    Department of Psychology, Fordham University, Bronx, NY 10458, USA
    J Clin Psychol 64:576-88. 2008
    ..discussions of the nature and course of therapy, fees and payment policies, the involvement of third parties, confidentiality policies, and new and untested treatments...
  69. ncbi Multidimensional analysis: a management tool for monitoring HIPAA compliance and departmental performance
    Robert M Coleman
    Maine Medical Center, Portland, ME 04102, USA
    J Digit Imaging 17:196-204. 2004
    ..While additional efforts are required to fully satisfy the demands of the ever-increasing security and confidentiality pressures, multidimensional analysis tools are a practical step toward actually using the information that is ..
  70. ncbi HIPAA--Implications for research
    Judith A Erlen
    Center for Research in Chronic Disorders, School of Nursing, University of Pittsburgh, PA, USA
    Orthop Nurs 24:139-42. 2005
    ....
  71. ncbi Ethics in public health research: privacy and public health at risk: public health confidentiality in the digital age
    Julie Myers
    New York City Department of Health and Mental Hygiene, 125 Worth St, Rm 331, New York, NY 10013, USA
    Am J Public Health 98:793-801. 2008
    ..Tightened physical and electronic controls can prevent misuse of data, minimize the risk of security breaches, and help maintain the reputation and integrity of public health agencies...
  72. ncbi HIPAA--clinical and ethical considerations for nurses
    Judith A Erlen
    Center for Research in Chronic Disorders, School of Nursing, and Center for Bioethics and Health Law, University of Pittsburgh, PA, USA
    Orthop Nurs 23:410-3. 2004
    ....
  73. ncbi Evaluating HIPAA compliance: a guide for researchers, privacy boards, and IRBs
    Kathryn E Artnak
    Angelo State University, Department of Nursing, San Angelo, TX 76909 0902, USA
    Nurs Outlook 53:79-87. 2005
    ....
  74. ncbi The HIPAA prescription for healthcare--why isn't it working?
    D Arcy Guerin Gue
    Phoenix Health Systems Inc, USA
    Health Manag Technol 25:34-7. 2004
  75. ncbi Organizing safety: conditions for successful information assurance programs
    Jeff Collmann
    Telemedicine and Advanced Technology Research Center, USAMRMC, Washington, D C, USA
    Telemed J E Health 10:311-20. 2004
    ..considering computerized health information systems, "safety" includes protecting the integrity, confidentiality, and availability of information assets such as patient information, key components of the technical ..
  76. ncbi Handhelds and HIPAA
    Crissy Knox
    University of Louisville Hospital, Kentucky, USA
    Nurs Manage 38:38-40. 2007
  77. ncbi Legal protections of electronic health records: issues of consent and security
    Nola M Ries
    University of Alberta Health Law Institute, Canada
    Health Law Rev 14:18-25. 2005
  78. ncbi Securing genetic information. A new challenge for HIM professionals
    Amber Trivedi
    Northwestern Ovarian Cancer Early Detection and Prevention Program, Northwestern Memorial Hospital, Chicago, IL, USA
    J AHIMA 77:56-7, 62. 2006
  79. ncbi The use and disclosure of protected health information for research under the HIPAA privacy rule: unrealized patient autonomy and burdensome government regulation
    Stacey A Tovino
    Health Law and Policy Institute, University of Houston Law Center, USA
    S D Law Rev 49:447-502. 2004
  80. ncbi Part III: meeting the challenge when data sharing is required
    Virginia A de Wolf
    IRB 28:10-5. 2006
  81. ncbi Lock it or lose it. Interview by Harris Meyer
    Ken Schwartz
    Hosp Health Netw 82:50-2. 2008
  82. ncbi Privacy and security for electronic health records
    Virginia A Sharpe
    Veterans Health Administrations, National Center for Ethics, USA
    Hastings Cent Rep 35:49. 2005
  83. ncbi Privacy and policy for genetic research
    Judith Wagner DeCew
    Department of Philosophy, Clark University, 950 Main Street, Worcester, MA 01610, USA
    Ethics Inf Technol 6:5-14. 2004
    ....
  84. ncbi Technology. IT gets HIPAA
    Richard Haugh
    Hosp Health Netw 80:14-5. 2006
  85. ncbi Development and evaluation of an open source software tool for deidentification of pathology reports
    Bruce A Beckwith
    Department of Pathology, Beth Israel Deaconess Medical Center, 330 Brookline Ave, Boston, MA, USA
    BMC Med Inform Decis Mak 6:12. 2006
    ..1800 new pathology reports were then processed. Each report was reviewed manually before and after deidentification to catalog all identifiers and note those that were not removed...
  86. ncbi A review of security of electronic health records
    Khin Than Win
    School of Information Technology and Computer Science, University of Wollongong, Wollongong, NSW 2522, Australia
    HIM J 34:13-8. 2005
    ..Further study regarding information security of EHRs is indicated...
  87. ncbi The risks of healthcare IT. Psychiatry an example of why digital records must be pursued cautiously
    Jon Meyer
    American Psychoanalytic Association, New York, USA
    Mod Healthc 35:22. 2005
  88. ncbi Mobile device use, reuse, and disposal
    Laurie Southerton
    J AHIMA 78:68-70. 2007
  89. ncbi Patient privacy: how far is too far?
    Susan M Gallagher
    Ostomy Wound Manage 48:50-1. 2002
    ..The ethical principle of patient confidentiality, including the right to personal privacy, is reviewed along with its relationship to computer-generated wound ..
  90. ncbi A HIPAA strategy for dental schools
    Rosemary Walker
    University of Illinois at Chicago, College of Applied Health Sciences, School of Biomedical and Health Information Sciences, 60612 7249, USA
    J Dent Educ 66:624-33. 2002
    ..The second stage selects the applicable HIPAA requirements, determines the current states of confidentiality and security, manages the electronic transactions standards, and composes a gap analysis...
  91. ncbi The informatics nurse specialist as privacy officer
    Nancy P Malloy
    Washington Adventist Hospital, Takoma Park, Maryland, USA
    J Healthc Inf Manag 17:54-8. 2003
    ....
  92. ncbi EMR confidentiality and information security
    Gary Kurtz
    Geisinger Health System, Danville, PA, USA
    J Healthc Inf Manag 17:41-8. 2003
    ..The onus is on healthcare providers to come up with information security solutions that don't hinder patient care while still providing the confidentiality of patient information.
  93. ncbi Not-so-strange bedfellows. Why HIM, IT are becoming fast friends
    Ruth Carol
    J AHIMA 74:20-3. 2003
  94. ncbi No privacy for all? Serious failings in the HHS medical records regulations
    Richard Sobel
    Program in Psychiatry and the Law, Harvard Medical School, USA
    J Biolaw Bus 5:45-8. 2002
    ..Though these "privacy rules" are supposed to protect patient confidentiality, what has gone unmentioned are the regulations' major lapses that breach informed consent and confidentiality...
  95. ncbi Institutional review boards and the privacy of human research subjects
    Dennis M Maloney
    The Deem Corporation, P.O. Box 44069, Omaha, NE 68144, USA
    Hum Res Rep 17:1-2. 2002
  96. ncbi Beyond HIPAA: the complexities of electronic record management
    Randolph A Kahn
    J AHIMA 74:31-6; quiz 37-8. 2003
    ..Learn how to protect your facility while preserving record integrity...
  97. ncbi Medical privacy and research
    N M Bradburn
    Harris Graduate School of Public Policy Studies, University of Chicago, USA
    J Legal Stud 30:687-701. 2001
    ....
  98. ncbi What should IRBs consider when applying the privacy rule to research?
    Julie Waltz Gerlach
    Medpace, Inc, Cincinnati, OH, USA
    Kennedy Inst Ethics J 12:299-303. 2002
  99. ncbi The emergence of the Healthcare Information Trust
    Paul T Kostyack
    Jones, Day, Reavis and Pogue, Cleveland, OH, USA
    Health Matrix Clevel 12:393-447. 2002
  100. ncbi Health Insurance Portability and Accountability Act (HIPAA). Implications for dental practice
    Satishchandra S Pai
    Columbia University School of Dental and Oral Surgery, New York, NY, USA
    Dent Today 21:106-11; quiz 111, 178. 2002
  101. ncbi HIPAA strengthens business case for electronic report distribution systems
    Mark Moody
    J Healthc Inf Manag 16:47-51. 2002
    ..HIPAA may finally force healthcare organizations to make long-postponed decisions to increase the use of automation and technology for report distribution. For most, the direct benefits will far outweigh the costs...

Research Grants74

  1. STRUCTURE-BASED TUBERCULOSIS DRUG DESIGN TARGETED AT ACYL-COA CARBOXYLASE
    Shiou Chuan Tsai; Fiscal Year: 2010
    ..PERFORMANCE SITE(S) (organization, city, state) University of California, Irvine, CA 92697, USA REVISED ABSTRACT SECTION ..
  2. GRADUATE TRAINING IN GENETICS
    Michael Bender; Fiscal Year: 2006
    ..Kathehne R.' Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD ..
  3. Rural Trial of Clinic Order Entry with Decision Support
    Matthew Samore; Fiscal Year: 2006
    ..will allow common access to records across providers who share patients while maintaining strict levels of confidentiality. The CCOE decision support logic will encompass drug interactions, allergy contraindications, disease ..
  4. Novel Corneal Implant Materials
    Shiao Chang; Fiscal Year: 2006
    ..The name of the principal investigator/program director must be provided at the top of each printed page and each continuation page. RESEARCH GRANT ..
  5. Integrated Samples of Eurasian Censuses
    ROBERT EDWARD MCCAA; Fiscal Year: 2010
    ..This work involved data cleaning, drawing samples, implementing confidentiality protections, creating integrated variables, developing comprehensive metadata, and disseminating the data and ..
  6. TRAINING PROGRAM IN GENETICS AND GENOMICS
    William Gelbart; Fiscal Year: 2006
    ..Type the name of the program director at the top of each printed page and each continuation page. (For type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  7. AIDS Stigma & Gender: Health Consequences in Urban India
    Maria Ekstrand; Fiscal Year: 2006
    ..additional charges for protective equipment such as extra gloves, masks, fumigation of rooms, and lack of confidentiality. The data also suggest that AIDS stigma in urban India is a gendered phenomenon...
  8. Congenital and neonatal malaria in Mali
    Abdoulaye Djimde; Fiscal Year: 2006
    ..research grant ..
  9. ISLET-CELL RESOURCES CTR OF SOUTHERN CALIFORNIA
    ARTHUR RIGGS; Fiscal Year: 2006
    ..4/98) Page 2 BB Number pages consecutively at the bottom throughout the application. Do not use suffixes such as 3a, 3b. ..
  10. The Sexual Abuse of Vulnerable Adults in Institutions
    Pamela Teaster; Fiscal Year: 2006
    ..abstract_text> ..
  11. Internet as Supplier: Preventing Adolescent Use of Non-Medical Addictive Rx
    Amelia Arria; Fiscal Year: 2009
    ..The data collection has been designed to completely protect confidentiality. The study has three primary aims: 1...
  12. RESEARCH TRAINING IN DIGESTIVE DISEASES
    Daniel Podolsky; Fiscal Year: 2006
    ..Type the name of the program director at thd^Hof each printed page and each continuation page.^Hr type specifications, see instructions on page 6.) INSTITUTIONAL NATIONAL RESEARCH SERVICE AWARD (Substitute Page) ..
  13. Nanoscale patterning that promotes cell adhesion
    HEATHER MAYNARD; Fiscal Year: 2006
    ..research grant ..