advance directives

Summary

Summary: Declarations by patients, made in advance of a situation in which they may be incompetent to decide about their own care, stating their treatment preferences or authorizing a third party to make decisions for them. (Bioethics Thesaurus)

Top Publications

  1. ncbi The accuracy of surrogate decision makers: a systematic review
    David I Shalowitz
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    Arch Intern Med 166:493-7. 2006
  2. pmc Regional variation in the association between advance directives and end-of-life Medicare expenditures
    Lauren Hersch Nicholas
    Institute for Social Research, University of Michigan, Ann Arbor, MI 48104, USA
    JAMA 306:1447-53. 2011
  3. ncbi Systematic implementation of an advance directive program in nursing homes: a randomized controlled trial
    D W Molloy
    Department of Medicine, McMaster University, Ontario, Canada
    JAMA 283:1437-44. 2000
  4. pmc Medication preferences and adherence among individuals with severe mental illness and psychiatric advance directives
    Christine M Wilder
    Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Box 3071, Durham, NC 27710, USA
    Psychiatr Serv 61:380-5. 2010
  5. ncbi Approaching the end of life: attitudes, preferences, and behaviors of African-American and white patients and their family caregivers
    Etienne Phipps
    Albert Einstein Healthcare Network, Philadelphia, PA 19144, USA
    J Clin Oncol 21:549-54. 2003
  6. pmc Acculturation of attitudes toward end-of-life care: a cross-cultural survey of Japanese Americans and Japanese
    Shinji Matsumura
    Division of General Internal Medicine and Health Services, University of California Los Angeles, Los Angeles, Calif 90095 1736, USA
    J Gen Intern Med 17:531-9. 2002
  7. pmc Understanding advance care planning as a process of health behavior change
    Terri R Fried
    Department of Medicine, School of Medicine, Yale University, New Haven, Connecticut, USA
    J Am Geriatr Soc 57:1547-55. 2009
  8. ncbi Views of potential subjects toward proposed regulations for clinical research with adults unable to consent
    Dave Wendler
    Department of Clinical Bioethics, Warren G Magnuson Clinical Center, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Am J Psychiatry 159:585-91. 2002
  9. doi Engagement in multiple steps of the advance care planning process: a descriptive study of diverse older adults
    Rebecca L Sudore
    Division of Geriatrics, University of California at San Franciso, and San Francisco Veterans Affairs Medical Center, San Francisco, California 94121, USA
    J Am Geriatr Soc 56:1006-13. 2008
  10. doi A new law on advance directives in Germany
    U Wiesing
    Institut für Ethik und Geschichte der Medizin, Universitat Tubingen, Gartenstr 47, D 72076 Tubingen, Germany
    J Med Ethics 36:779-83. 2010

Research Grants

  1. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2009
  2. Center on Advancing Decision Making in Aging (CADMA)
    Alan Garber; Fiscal Year: 2007
  3. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2007
  4. The impact of quality end-of-life care in nursing homes
    SARAH ANN FORBES THOMPSON; Fiscal Year: 2010
  5. Patient-Centered Approach to Advance Care Planning
    KARIN KIRCHHOFF; Fiscal Year: 2006
  6. Converting Treatment Wishes into Orders at End of Life
    Susan Hickman; Fiscal Year: 2007
  7. CARE INTEGRATION TEAM INTERVENTION DURING HOSPICE CARE
    Rebecca Allen; Fiscal Year: 2004
  8. Treatment goals at the end of life
    Terri Fried; Fiscal Year: 2006
  9. African American Families and End of Life Disparities
    Sharon Williams; Fiscal Year: 2007

Detail Information

Publications331 found, 100 shown here

  1. ncbi The accuracy of surrogate decision makers: a systematic review
    David I Shalowitz
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    Arch Intern Med 166:493-7. 2006
    ..However, commentators have questioned the accuracy with which surrogates predict patients' treatment preferences...
  2. pmc Regional variation in the association between advance directives and end-of-life Medicare expenditures
    Lauren Hersch Nicholas
    Institute for Social Research, University of Michigan, Ann Arbor, MI 48104, USA
    JAMA 306:1447-53. 2011
    It is unclear if advance directives (living wills) are associated with end-of-life expenditures and treatments.
  3. ncbi Systematic implementation of an advance directive program in nursing homes: a randomized controlled trial
    D W Molloy
    Department of Medicine, McMaster University, Ontario, Canada
    JAMA 283:1437-44. 2000
    Although advance directives are commonly used in the community, little is known about the effects of their systematic implementation.
  4. pmc Medication preferences and adherence among individuals with severe mental illness and psychiatric advance directives
    Christine M Wilder
    Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Box 3071, Durham, NC 27710, USA
    Psychiatr Serv 61:380-5. 2010
    Psychiatric advance directives allow patients with severe mental illness to document their preferences for particular medications...
  5. ncbi Approaching the end of life: attitudes, preferences, and behaviors of African-American and white patients and their family caregivers
    Etienne Phipps
    Albert Einstein Healthcare Network, Philadelphia, PA 19144, USA
    J Clin Oncol 21:549-54. 2003
    ..To investigate differences in attitudes, preferences, and behaviors regarding end of life in terminally ill patients and their designated family caregivers...
  6. pmc Acculturation of attitudes toward end-of-life care: a cross-cultural survey of Japanese Americans and Japanese
    Shinji Matsumura
    Division of General Internal Medicine and Health Services, University of California Los Angeles, Los Angeles, Calif 90095 1736, USA
    J Gen Intern Med 17:531-9. 2002
    ..However, little is known about how and to what extent acculturation changes attitudes toward end-of-life care and advance care planning. We compared attitudes toward end-of-life care among Japanese Americans and Japanese in Japan...
  7. pmc Understanding advance care planning as a process of health behavior change
    Terri R Fried
    Department of Medicine, School of Medicine, Yale University, New Haven, Connecticut, USA
    J Am Geriatr Soc 57:1547-55. 2009
    ..To explore whether models of health behavior change can help to inform interventions for advance care planning (ACP)...
  8. ncbi Views of potential subjects toward proposed regulations for clinical research with adults unable to consent
    Dave Wendler
    Department of Clinical Bioethics, Warren G Magnuson Clinical Center, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Am J Psychiatry 159:585-91. 2002
    ..The authors' goal was to assess healthy individuals' attitudes toward five of the most prominent proposed safeguards regarding the consent process for research with adults unable to consent...
  9. doi Engagement in multiple steps of the advance care planning process: a descriptive study of diverse older adults
    Rebecca L Sudore
    Division of Geriatrics, University of California at San Franciso, and San Francisco Veterans Affairs Medical Center, San Francisco, California 94121, USA
    J Am Geriatr Soc 56:1006-13. 2008
    ..To assess engagement in multiple steps of the advance care planning (ACP) process 6 months after exposure to an advance directive. In this study, ACP is conceptualized similarly to the behavior change model...
  10. doi A new law on advance directives in Germany
    U Wiesing
    Institut für Ethik und Geschichte der Medizin, Universitat Tubingen, Gartenstr 47, D 72076 Tubingen, Germany
    J Med Ethics 36:779-83. 2010
    This article presents the new German law on advance directives from 1 September 2009...
  11. doi Advance directives in Spain. Perspectives from a medical bioethicist approach
    Pablo Simon-Lorda
    University of Santiago de Compostela, Spain
    Bioethics 22:346-54. 2008
    ..Article 11 of Law 41/2002, concerning Patient Autonomy, regulates 'advance directives' and has prompted various Autonomous Regions to develop legislation in this area...
  12. ncbi Controlling death: the false promise of advance directives
    Henry S Perkins
    Ecumenical Center for Religion and Health and Division of General Medicine, Department of Medicine, The University of Texas Health Science Center at San Antonio, San Antonio, Texas 78229 3900, USA
    Ann Intern Med 147:51-7. 2007
    b>Advance directives promise patients a say in their future care but actually have had little effect. Many experts blame problems with completion and implementation, but the advance directive concept itself may be fundamentally flawed...
  13. ncbi Reconceptualizing advance care planning from the patient's perspective
    P A Singer
    University of Toronto Joint Centre for Bioethics, Department of Medicine, University of Toronto and Toronto Hospital, Ontario, Canada
    Arch Intern Med 158:879-84. 1998
    ..These assumptions about ACP have never been empirically validated...
  14. doi Impact of an inpatient palliative care team: a randomized control trial
    Glenn Gade
    Department of Internal Medicine, Denver, Colorado, USA
    J Palliat Med 11:180-90. 2008
    ..There have been no multicenter randomized trials examining impact on patient satisfaction, clinical outcomes, and subsequent health care costs...
  15. pmc Surrogate consent for dementia research: a national survey of older Americans
    S Y H Kim
    Bioethics Program, University of Michigan, Ann Arbor, MI 48109, USA
    Neurology 72:149-55. 2009
    ..Because AD impairs decisional capacity, informed consent often must come from surrogates, usually close family members. But policies for surrogate consent for research remain unsettled after decades of debate...
  16. ncbi Advance directives for health care and research: prevalence and correlates
    Gina Bravo
    Department of Community Health Sciences, Faculty of Medicine, University of Sherbrooke, Sherbrooke, Quebec J1H 4C4, Canada
    Alzheimer Dis Assoc Disord 17:215-22. 2003
    ..b>Advance directives have been widely promoted as a means to maintain some control over one's life in the event of decisional ..
  17. doi How do-not-resuscitate orders are utilized in cancer patients: timing relative to death and communication-training implications
    Tomer T Levin
    Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York 10022, USA
    Palliat Support Care 6:341-8. 2008
    ..Despite this, there is little DNR utilization data to guide the design of communication-training programs. The objective of this study was to determine DNR utilization patterns and whether their use is increasing...
  18. ncbi Advance care planning: pitfalls, progress, promise
    T J Prendergast
    Dartmouth Medical School, Pulmonary Section (3D, Lebanon, NH, USA
    Crit Care Med 29:N34-9. 2001
    We now have a decade of experience with advance directives since the Patient Self-Determination Act was signed into law in November 1990. With few exceptions, empirical studies have yielded disappointing results...
  19. pmc Deciding in the dark: advance directives and continuation of treatment in chronic critical illness
    Sharon L Camhi
    Division of Pulmonary and Critical Care Medicine, VA Pittsburgh Health Care System, Pittsburgh, PA, USA
    Crit Care Med 37:919-25. 2009
    ..We studied the availability of advance directives and appropriate surrogates to guide decisions about life-sustaining treatment for the chronically critically ..
  20. ncbi Promoting advance directives among African Americans: a faith-based model
    Karen Bullock
    School of Social Work, University of Connecticut, West Hartford, Connecticut 06117, and The Braceland Center for Mental Health and Aging, Institute of Living, Hartford Hospital, Hartford, Connecticut, USA
    J Palliat Med 9:183-95. 2006
    Studies show that African Americans are less likely than other ethnic groups to complete advance directives. However, what influences African Americans' decisions to complete or not complete advance directives is unclear.
  21. ncbi Advance directives
    S Walton
    Anaesthesia 62:412-3; author reply 413. 2007
  22. ncbi Using a hypothetical scenario to inform psychiatric advance directives
    Aricca D Van Citters
    Dartmouth Psychiatric Research Center, Dartmouth Medical School, Lebanon, NH, USA
    Psychiatr Serv 58:1467-71. 2007
    ..The study addressed whether a hypothetical psychiatric scenario is a feasible approach for eliciting psychiatric treatment preferences and identified consumer preferences regarding involuntary care...
  23. ncbi Advance health care directives: towards a coordinated European policy?
    Roberto Andorno
    Institute of Biomedical Ethics, University of Zurich, Zurich, Switzerland
    Eur J Health Law 16:207-27. 2009
    ..Second, it offers a comparative analysis of the legal status of advance directives in a number of European countries...
  24. ncbi Psychiatric advance directives: qualitative study of informed deliberations by mental health service users
    Michaela Amering
    Departmernt of Psychiatry, University of Vienna, Vienna, Austria
    Br J Psychiatry 186:247-52. 2005
    Established legal mandates and high expectations for psychiatric advance directives are not matched by empirical evidence documenting their actual implementation.
  25. doi A critical review of advance directives in Germany: attitudes, use and healthcare professionals' compliance
    Natalie Evans
    Barcelona Centre for International Health Research CRESIB, Hospital Clínic Universitat de Barcelona, Barcelona, Spain
    Patient Educ Couns 87:277-88. 2012
    Recent legal changes in Germany make non-compliance with advance directives (ADs) a criminal offence. This article assesses the evidence on attitudes towards, use of, and physician compliance with ADs in Germany.
  26. ncbi Physician orders to supplement advance directives: rescuing patient autonomy
    Ronald B Miller
    Department of Medicine, School of Medicine, College of Health Sciences, University of California, Irvine, USA
    J Clin Ethics 20:212-9. 2009
    ..but physicians' orders about life-sustaining treatments are a very important supplement to advance directives, especially for patients who are extremely or terminally ill, and most particularly for patients who require ..
  27. doi Advance directives for euthanasia in dementia: do law-based opportunities lead to more euthanasia?
    Marike E De Boer
    Department of Nursing Home Medicine, EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands
    Health Policy 98:256-62. 2010
    To obtain insight into current practices regarding compliance with advance directives for euthanasia (ADEs) in cases of incompetent patients with dementia in Dutch nursing homes, in light of the legal possibility offered by the new ..
  28. ncbi Empirical assessment of a research advance directive for persons with dementia and their proxies
    Carol B Stocking
    Section of Geriatrics, Department of Medicine, University of Chicago, Chicago, Illinois 60637, USA
    J Am Geriatr Soc 55:1609-12. 2007
    ..To evaluate a research advance directive for persons with established dementia diagnoses and their family caregivers or proxies...
  29. ncbi Implementation of advance directives among community-dwelling veterans
    D W Molloy
    Geriatric Research Group, Hamilton Health Sciences Corporation, Ontario, Canada
    Gerontologist 40:213-7. 2000
    ..This response pattern was consistent among those who completed and those who did not complete directives...
  30. ncbi Patients' attitudes toward advance directives
    Rebecca Douglas
    Brooke Army Medical Center, San Antonio, TX, USA
    J Nurs Scholarsh 34:61-5. 2002
    To explore hospitalized patients' attitudes toward advance directives, their reasons for completing or not completing advance directive forms, and demographic differences between patients who did and did not complete advance directive ..
  31. ncbi Advance directives: older adults with dementia
    M D Mezey
    The Hartford Institute for Geriatric Nursing, Division of Nursing, New York University, New York, New York 10012 1165, USA
    Clin Geriatr Med 16:255-68. 2000
    The benefits and risks for older adults with dementia executing advance directives are discussed...
  32. ncbi Advance directives: legal remedies and psychosocial interventions
    V Lens
    Wurzweiler School of Social Work, Yeshiva University, New York, USA
    Death Stud 24:377-99. 2000
    ..Implications for practice are discussed, including practical suggestions for increasing the likelihood that a patient's wishes will be respected by medical providers...
  33. doi Interventions to promote the use of advance directives: an overview of systematic reviews
    Maria Isabel Tamayo-Velázquez
    Andalusian School of Public Health, Granada, Spain
    Patient Educ Couns 80:10-20. 2010
    ..To identify, appraise and synthesise the results of systematic reviews of the literature (SRLs) that examines the effectiveness of interventions to increase advance directive (AD) completion rate...
  34. ncbi Communication between older people and their health care agents: results of an intervention
    Irene A Gutheil
    Ravazzin Center for Social Work Research in Aging, Graduate School of Social Service, Fordham University, Tarrytown, NY 10591, USA
    Health Soc Work 30:107-16. 2005
    ..The findings demonstrate that it is possible to affect advance communication about wishes at the end of life through a group intervention...
  35. ncbi Measuring patient treatment preferences in end-of-life care research: applications for advance care planning interventions and response shift research
    Carolyn E Schwartz
    QualityMetric Incorporated, Lincoln, Rhode Island, USA
    J Palliat Med 7:233-45. 2004
    ..Clinical applications of the tool are discussed...
  36. doi Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives
    Marike E De Boer
    Department of Nursing Home Medicine, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
    J Am Geriatr Soc 59:989-96. 2011
    To gain insight into how advance directives for euthanasia affect resident care in Dutch nursing homes.
  37. pmc Attitudes towards and barriers to writing advance directives amongst cancer patients, healthy controls, and medical staff
    S Sahm
    Department of Gastroenterology Oncology, German Clinic of Diagnosis, Aukammallee 33, 65191 Wiesbaden, Germany
    J Med Ethics 31:437-40. 2005
    ..We investigated knowledge about and willingness to accept such a directive in cancer patients, healthy controls, physicians, and nursing staff in Germany...
  38. doi Advance directives in dementia: issues of validity and effectiveness
    Marike E De Boer
    Department of Nursing Home Medicine, EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
    Int Psychogeriatr 22:201-8. 2010
    Although advance directives may seem useful instruments in decision-making regarding incompetent patients, their validity in cases of dementia has been a much debated subject and little is known about their effectiveness in practice...
  39. doi A changing landscape for advance directives in dementia research
    Robin Pierce
    University of Oxford, Ethics Wellcome Trust Centre for Neuroethics, 16 17 St Ebbe s Street, Oxford, England
    Soc Sci Med 70:623-30. 2010
    ....
  40. doi Ethical issues of cardiopulmonary resuscitation: comparison of emergency physician practices from 1995 to 2007
    Catherine A Marco
    University of Toledo College of Medicine, Toledo, OH, USA
    Acad Emerg Med 16:270-3. 2009
    ....
  41. ncbi Kokua Mau: a statewide effort to improve end-of-life care
    Kathryn L Braun
    Center on Aging, University of Hawaii, 1960 East West Road, Biomed C 106, Honolulu, HI 96922, USA
    J Palliat Med 8:313-23. 2005
    Many Americans die in pain, without hospice, and without regard to advance directives, suggesting a need to improve end-of-life (EOL) awareness and services.
  42. ncbi Research advance directives: protection or obstacle?
    Palaniappan Muthappan
    Department of Clinical Bioethics, NIH, Bldg 10, Rm 1C118, Bethesda, MD 20892, USA
    Am J Psychiatry 162:2389-91. 2005
    ..This study assessed how many adults completed a research advance directive and the preferences indicated on the completed forms...
  43. ncbi Advance directives and living wills
    Laura Palazzani
    Libera Università Maria SS Assunta LUMSA, Rome, Italy
    NeuroRehabilitation 19:305-13. 2004
    The article focuses on the philosophical, ethical and juridical problems concerning Advance directives and Living Wills (underlining analogies and differences)...
  44. pmc The cultural context of patient's autonomy and doctor's duty: passive euthanasia and advance directives in Germany and Israel
    Silke Schicktanz
    Department of Medical Ethics and History of Medicine, University Medical Center Gottingen, Gottingen, Germany
    Med Health Care Philos 13:363-9. 2010
    ..the cultural reasons for this difference and its expression in various dissenting views on passive euthanasia and advance directives, and conclude with a comment on the difficulty in classifying either stance as more or less restrictive.
  45. ncbi Advance directives in dementia care: from instructions to instruments
    G A Widdershoven
    Department of Health Ethics and Philosophy, University of Maastricht, P O Box 616, 6200 AT, Maastricht, The Netherlands
    Patient Educ Couns 44:179-86. 2001
    b>Advance directives are often regarded as instructions to the doctor about future care...
  46. ncbi Difficult end-of-life treatment decisions: do other factors trump advance directives?
    Steven B Hardin
    Jerry L Pettis Memorial Veterans Affairs Medical Center and the Department of Internal Medicine, Loma Linda University School of Medicine, CA 92357, USA
    Arch Intern Med 164:1531-3. 2004
    b>Advance directives are widely promoted as a means to plan for patients' decisional incapacity, yet there is little evidence of their effectiveness...
  47. ncbi Managing aggression and violence using rapid tranquillisation
    Tommy Dickinson
    School of Nursing and Caring Sciences, Mental Health Division, University of Central Lancashire, Preston
    Nurs Stand 24:40-49; quiz 50, 52. 2009
    ..The procedure is outlined and the importance of patient monitoring to observe for possible adverse effects is discussed. The legal and ethical issues are examined, along with guidance on the use of advance directives.
  48. pmc Inapplicability of advance directives in a paternalistic setting: the case of a post-communist health system
    Gentian Vyshka
    Biomedical and Experimental Department, Faculty of Medicine, Tirana, Albania
    BMC Med Ethics 12:12. 2011
    ..Because of this history, advance directives concerning treatment refusal and do-not-resuscitate decisions are still extremely uncommon in Albania...
  49. ncbi Patients' understanding of advance directives and cardiopulmonary resuscitation
    Natalya Thorevska
    Pulmonary and Critical Care, Bridgeport Hospital and Yale University School of Medicine, Bridgeport, CT 06610, USA
    J Crit Care 20:26-34. 2005
    To describe understanding of end-of-life issues and compare characteristics of patients with and without advance directives.
  50. pmc Incidence and predictors of advance care planning among persons with cognitive impairment
    Linda Garand
    Department of Health and Community Systems, University of Pittsburgh, PA 15261, USA
    Am J Geriatr Psychiatry 19:712-20. 2011
    ..We sought to characterize advance care planning (ACP) rates over time in individuals who had no advance directives (living will or durable power of attorney) in place when they initially presented for a cognitive evaluation.
  51. ncbi When family members disagree
    Edmund G Howe
    Uniformed Services University of the Health Sciences, Bethesda, Maryland, USA
    J Clin Ethics 18:331-9. 2007
  52. doi Use of advance directives for high-risk operations: a national survey of surgeons
    Andrew J Redmann
    University of Wisconsin School of Medicine and Public Health, Madison, WI, USA
    Ann Surg 255:418-23. 2012
    ..To characterize surgeons' beliefs and approach to the use of an advance directive in the decision to perform high-risk operations...
  53. doi End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal
    Arantza Meñaca
    Barcelona Centre for International Health Research CRESIB Hospital Clínic Universitat de Barcelona, Rosselló 132, S A 1, Barcelona 08036, Spain
    Crit Rev Oncol Hematol 82:387-401. 2012
    ..at home than actually died at home, a persistent trend for partial disclosure in Italy and Spain, low use of advance directives, and low incidence of all medical EoL decisions (with the exception of terminal sedation) compared to ..
  54. pmc Stages of change for the component behaviors of advance care planning
    Terri R Fried
    Department of Medicine, School of Medicine, Yale University, New Haven, Connecticut, USA
    J Am Geriatr Soc 58:2329-36. 2010
    ....
  55. ncbi Are Canadians providing advance directives about health care and research participation in the event of decisional incapacity?
    Gina Bravo
    Department of Community Health Sciences, University of Sherbrooke, Sherbrooke, Quebec
    Can J Psychiatry 56:209-18. 2011
    ..We conducted a postal survey to estimate the frequency with which Canadians communicate their preferences about health care and research should they become incapacitated...
  56. ncbi Exploratory study on end-of-life issues: barriers to palliative care and advance directives
    Veronica D Feeg
    College of Nursing and Health Science, George Mason University, Fairfax, Virginia, USA
    Am J Hosp Palliat Care 22:119-24. 2005
    ..Professionals who serve dying patients need to recognize the importance of advance directives as part of a patient's decision to forgo curative treatment for palliative care.
  57. ncbi Withdrawal of life support: intensive caring at the end of life
    Thomas J Prendergast
    Departments of Medicine and Anesthesiology, Dartmouth Hitchcock Medical Center, Section of Pulmonary and Critical Care Medicine 3D, 1 Medical Center Dr, Lebanon, NH 03756, USA
    JAMA 288:2732-40. 2002
    ..This shift from individual responsibility to patient-focused consensus often permits the family to understand, perhaps reluctantly and with great sadness, that intensive caring may involve letting go of life-sustaining interventions...
  58. doi Assessing the effectiveness of interventions to promote advance directives among older adults: a systematic review and multi-level analysis
    Gina Bravo
    Sherbrooke University, Geriatric Institute, Sherbrooke, PQ, Canada
    Soc Sci Med 67:1122-32. 2008
    Many studies have investigated the effectiveness of interventions in promoting advance directives (ADs) but there is uncertainty as to what works best, and in whom...
  59. ncbi Chinese seniors' perspectives on end-of-life decisions
    K W Bowman
    Mount Sinai Hospital, Toronto, Ont, Canada
    Soc Sci Med 53:455-64. 2001
    ..Respondents rejected advance directives. Respondents' attitudes toward end-of-life decision making can be understood through the lens of values from ..
  60. pmc Design of the Advance Directives Cohort: a study of end-of-life decision-making focusing on Advance Directives
    Matthijs P S van Wijmen
    Department Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, Amsterdam, 1081 BT, The Netherlands
    BMC Public Health 10:166. 2010
    ..There is still a lot unclear about ADs. We designed a study aimed at investigating the whole process from the formulating of an AD to its actual use at the end of life...
  61. pmc The role of advance directives in end-of-life decisions in Austria: survey of intensive care physicians
    Eva Schaden
    Department of Anaesthesiology, General Intensive Care and Pain Management Medical University of Vienna, Austria
    BMC Med Ethics 11:19. 2010
    ..The aim of this survey was to explore Austrian intensive care physicians' experiences with and their acceptance of the new advance directive legislation two years after enactment (2008)...
  62. doi A Korean perspective on developing a global policy for advance directives
    Soyoon Kim
    Yonsei University College of Medicine, 250 Seongsanno, Seodaemun gu, Seoul, Republic of Korea
    Bioethics 24:113-7. 2010
    Despite the wide and daunting array of cross-cultural obstacles that the formulation of a global policy on advance directives will clearly pose, the need is equally evident...
  63. ncbi [On a principal of advance directives]
    Hiroaki Ito
    Dept of Neurology, Niigata National Hospital
    Gan To Kagaku Ryoho 36:66-8. 2009
    We explored a principle of advance directives. Advanced directives are a tool to help execute a broader concept of advance care planning, which is included in advance life planning...
  64. pmc Competence to complete psychiatric advance directives: effects of facilitated decision making
    Eric B Elbogen
    Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Brightleaf Square Suite 23 A, 905 West Main Street, DUMC Box 3071, Durham, NC 27710, USA
    Law Hum Behav 31:275-89. 2007
    Psychiatric advance directives (PADs) statutes presume competence to complete these documents, but the range and dimensions of decisional competence among people who actually complete PADs is unknown...
  65. ncbi Advance directives, future selves and decision-making
    Alasdair R MacLean
    University of Dundee
    Med Law Rev 14:291-320. 2006
  66. ncbi Advance directives and end-of-life decision making: survey of critical care nurses' knowledge, attitude, and experience
    Yvonne Scherer
    School of Nursing, University at Buffalo, The State University of New York, Buffalo, NY 14214 3079, USA
    Crit Care Nurse 26:30-40. 2006
  67. doi End-of-life care in the 21st century: advance directives in universal rights discourse
    Violeta Besirević
    Union University Law School Belgrade, Belgrade, Goce Delceva 36, Serbia
    Bioethics 24:105-12. 2010
    ..normative bases that could help to shape a workable legal construct that would facilitate a global use of advance directives. Although I believe that advance directives are of universal character, my primary aim in approaching this ..
  68. pmc Advance directives and outcomes of surrogate decision making before death
    Maria J Silveira
    Veterans Affairs Center for Clinical Management Research, and Division of General Medicine, University of Michigan, Ann Arbor, USA
    N Engl J Med 362:1211-8. 2010
    Recent discussions about health care reform have raised questions regarding the value of advance directives.
  69. doi Epidemiology of and factors associated with end-of-life decisions in a surgical intensive care unit
    Anne Meissner
    Department of Anesthesiology and Intensive Care, Friedrich Schiller University Hospital, Jena, Germany
    Crit Care Med 38:1060-8. 2010
    ..To investigate the epidemiology of and possible factors associated with end-of-life decisions in a surgical intensive care unit...
  70. doi Views of service users and providers on joint crisis plans: single blind randomized controlled trial
    Claire Henderson
    P029, Health Service and Population Research Dept, Institute of Psychiatry, King s College London, De Crespigny Park, London SE5 8AF UK
    Soc Psychiatry Psychiatr Epidemiol 44:369-76. 2009
    ..We report participants' and case managers' use of and views on the value of Joint Crisis Plans (JCPs), shown to reduce compulsory hospitalisation and violence...
  71. ncbi Patients who complete advance directives and what they prefer
    Adam Nishimura
    Division of General Internal Medicine, Mayo Clinic, 200 First St SW, Rochester, MN 55905, USA
    Mayo Clin Proc 82:1480-6. 2007
    To determine health care preferences expressed by patients in advance directives (ADs) and to identify characteristics of patients who completed them.
  72. ncbi Knowledge, attitudes and practices of nursing personnel regarding advance directives
    Gloria Duke
    The University of Texas at Tyler, College of Nursing and Health Sciences, 3900 University Blvd, Texas, USA
    Int J Palliat Nurs 13:109-15. 2007
    ..the knowledge, attitudes and practices of nursing personnel working in acute care settings regarding advance directives (ADs)...
  73. ncbi Perspectives of elderly people on advance directives in Japan
    Miho Matsui
    Department of Gerontological Nursing, Nagasaki University Graduate School of Biomedical Sciences, Japan
    J Nurs Scholarsh 39:172-6. 2007
    To examine perspectives of Japanese elderly people on advance directives (ADs) and factors related to positive attitudes toward ADs.
  74. doi Patient preferences in instructional advance directives
    Elmer D Abbo
    Section of General Internal Medicine, Department of Medicine, The University of Chicago, Chicago, Illinois 60637, USA
    J Palliat Med 11:555-62. 2008
    Instructional advance directives (ADs) are traditionally written to apply in terminal illness. As such, they do not readily capture patient preferences for care in acute and chronic illness.
  75. ncbi Care for dying patients--German legislation
    Andrej Michalsen
    Department of Anaesthesiology and Intensive Care Medicine, Uberlingen Hospital, 88662, Uberlingen See, Germany
    Intensive Care Med 33:1823-6. 2007
    ..Probably, the authority of advance directives needs further clarification...
  76. doi An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses
    Paul N Lanken
    Am J Respir Crit Care Med 177:912-27. 2008
  77. doi A typology of advance statements in mental health care
    Claire Henderson
    Department of Veterans Affairs Medical Center, Mental Illness Research, Education and Clinical Centers, Bronx, NY 10468, USA
    Psychiatr Serv 59:63-71. 2008
    ..joint crisis plans, crisis cards, treatment plans, wellness recovery action plans, and psychiatric advance directives (with and without formal facilitation)...
  78. pmc What explains racial differences in the use of advance directives and attitudes toward hospice care?
    Kimberly S Johnson
    Department of Medicine, Duke University, Durham, North Carolina 27710, USA
    J Am Geriatr Soc 56:1953-8. 2008
    ..beliefs and values are thought to account for differences between African Americans and whites in the use of advance directives and beliefs about hospice care, but few data clarify which beliefs and values explain these differences...
  79. ncbi Law & psychiatry: psychiatric advance directives and the treatment of committed patients
    Paul S Appelbaum
    University of Massachusetts Medical School, 55 Lake Avenue North, Worcester, MA 01655, USA
    Psychiatr Serv 55:751-2, 763. 2004
  80. pmc An advance directive redesigned to meet the literacy level of most adults: a randomized trial
    Rebecca L Sudore
    Division of Geriatrics, University of California San Francisco and the San Francisco Veterans Affairs Medical Center, CA 94121, USA, United States
    Patient Educ Couns 69:165-95. 2007
    ..To determine whether an advance directive redesigned to meet most adults' literacy needs (fifth grade reading level with graphics) was more useful for advance care planning than a standard form (>12th grade level)...
  81. ncbi Assessing competence to complete psychiatric advance directives with the competence assessment tool for psychiatric advance directives
    Debra Srebnik
    Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, 98105, USA
    Compr Psychiatry 45:239-45. 2004
    The Competence Assessment Tool for Psychiatric Advance Directives (CAT-PAD), a new instrument designed to assess competence to complete a psychiatric advance directive (PAD), is described...
  82. doi Advance directives in the Netherlands: an empirical contribution to the exploration of a cross-cultural perspective on advance directives
    Matthijs P S van Wijmen
    EMGO Institute for Health and Care Research, VU University Medical Center Public and Occupational Health, Van der Boechorststraat 7, Amsterdam, Netherlands
    Bioethics 24:118-26. 2010
    ..This study focuses on ADs in the Netherlands and introduces a cross-cultural perspective by comparing it with other countries...
  83. doi Advance directives and proxies' predictions about patients' treatment preferences
    Inés María Barrio-Cantalejo
    Granada Primary Healthcare District, Granada, Spain
    Nurs Ethics 16:93-109. 2009
    The accuracy of proxies when they interpret advance directives or apply substituted decision-making criteria has been called into question...
  84. pmc Communication on end-of-life decisions with patients wishing to die at home: the making of a guideline for GPs in Flanders, Belgium
    Reginald Deschepper
    End of Life Care Research Group, Dept of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, Laarbeeklaan 103, 1090 Brussels, Belgium
    Br J Gen Pract 56:14-9. 2006
    ..Communication with patients on end-of-life decisions is a delicate topic for which there is little guidance...
  85. ncbi Psychiatric advance directives among public mental health consumers in five U.S. cities: prevalence, demand, and correlates
    Jeffrey Swanson
    Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Box 3071, Brightleaf Square Suite 23 A, Durham, NC 27710, USA
    J Am Acad Psychiatry Law 34:43-57. 2006
    Psychiatric advance directives (PADs) are legal instruments that allow competent persons to document their preferences regarding future mental health treatment and to designate a surrogate decisionmaker in the event they lose capacity to ..
  86. ncbi The content and clinical utility of psychiatric advance directives
    Debra S Srebnik
    Department of Psychiatry and Behavioral Sciences, University of Washington, 325 Ninth Avenue, Seattle, WA 98104, USA
    Psychiatr Serv 56:592-8. 2005
    This paper provides the first systematic examination of the content and clinical utility of psychiatric advance directives, which are documents that specify treatment preferences in advance of periods of compromised decision making.
  87. ncbi Speaking of research advance directives: planning for future research participation
    C B Stocking
    MacLean Center for Clinical Medical Ethics, Department of Medicine, University of Chicago Medical Center, Chicago, IL 60637, USA
    Neurology 66:1361-6. 2006
    ....
  88. doi [Advance health care directives as seen by surgical patients]
    C Justinger
    Klinik fUr Allgemein, Viszeral, GefaSS und Kinderchirurgie, Universitatsklinikum des Saarlandes, Kirrberger Strasse, 66424, Homburg Saar, Deutschland
    Chirurg 80:455-6, 458-61. 2009
    ..In spite of the present political and public discussions in Germany, advance directives are rarely of much importance in everyday surgical practice...
  89. ncbi Presumed consent: an international comparison and possibilities for change in the United States
    Kenneth Gundle
    Standford Center for Biomedical Ethics, Stanford University, Palo Alto, CA, USA
    Camb Q Healthc Ethics 14:113-8. 2005
  90. pmc Importance of the advance directive and the beginning of the dying process from the point of view of German doctors and judges dealing with guardianship matters: results of an empirical survey
    B van Oorschot
    Klinik für Radiologie, Abt Strahlentherapie, Universitatsklinikum Jena, Jena, Germany
    J Med Ethics 32:623-6. 2006
    ..To analyse and compare the surveys on German doctors and judges on end of life decision making regarding their attitudes on the advance directive and on the dying process...
  91. ncbi Cultural diversity at the end of life: issues and guidelines for family physicians
    H Russell Searight
    Forest Park Hospital Family Medicine Residency Program, St Louis, Missouri 63139, USA
    Am Fam Physician 71:515-22. 2005
    ..treatment that vary culturally: communication of "bad news"; locus of decision making; and attitudes toward advance directives and end-of-life care...
  92. pmc Ethics review: 'Living wills' and intensive care--an overview of the American experience
    Andrew R J Tillyard
    Intensive Care Department, Royal Cornwall Hospital, Truro TR1 5LJ, UK
    Crit Care 11:219. 2007
    ..This has been the case in the USA for many years. The purpose of the present review is to examine the published literature regarding the effect of advance decisions in relation to the provision of adult critical care...
  93. pmc Facilitated psychiatric advance directives: a randomized trial of an intervention to foster advance treatment planning among persons with severe mental illness
    Jeffrey W Swanson
    Services Effectiveness Research Program, Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC 27710, USA
    Am J Psychiatry 163:1943-51. 2006
    Studies show a high potential demand for psychiatric advance directives but low completion rates. The authors conducted a randomized study of a structured, manualized intervention to facilitate completion of psychiatric advance directives.
  94. ncbi When written advance directives are not enough
    Kristi L Kirschner
    Northwestern University Feinberg School of Medicine, 345 East Superior, Suite 1122, Chicago, IL 60611, USA
    Clin Geriatr Med 21:193-209, x. 2005
    b>Advance directives have been promoted as being the best device for making decisions on behalf of patients who are unable to speak for themselves. It is believed that an advance directive would tell the health care professionals what to do...
  95. ncbi Advance directives for truth disclosure
    Dominic T Keating
    Department of Respiratory Medicine, Unit 4, Merlin Park Regional Hospital, Galway, Ireland
    Chest 128:1037-9. 2005
    ..We examined the value of asking patients about their disclosure preferences at the outset of hospitalization...
  96. ncbi Fates worse than death: the role of valued life activities in health-state evaluations
    P H Ditto
    Department of Psychology, Kent State University, Ohio 44242 0001
    Health Psychol 15:332-43. 1996
    ..Implications of these results for end-of-life medical decision making in general and the use of advance medical directives in particular are discussed...
  97. ncbi Questioning the decision-making capacity of surrogates
    K A Bramstedt
    Department of Bioethics, NA10, Cleveland Clinic Foundation, 9500 Euclid Avenue, Cleveland, OH 44195, USA
    Intern Med J 33:257-9. 2003
    ....
  98. ncbi Prehospital advance directives--a better way
    Kenneth V Iserson
    J Emerg Med 23:419-20. 2002
  99. pmc Adherence to advance directives in critical care decision making: vignette study
    Trevor Thompson
    Division of Primary Health Care, University of Bristol, Bristol BS6 6JL
    BMJ 327:1011. 2003
    ..To explore health professionals' decision making in a critical care scenario when there is an advance directive...
  100. ncbi Influence of an advance directive on the initiation of life support technology in critically ill cancer patients
    S Kish Wallace
    Department of Critical Care, The University of Texas M. D. Anderson Cancer Center, Houston, TX, USA
    Crit Care Med 29:2294-8. 2001
    ..PATIENTS: Of 872 patients treated in the ICU from 1994 to 1996, 236 (27%) were identified as having advance directives. One hundred thirty five patients who had advance directives were successfully matched to 135 patients who ..
  101. ncbi Do-not-resuscitate order after 25 years
    Jeffrey P Burns
    Department of Anesthesia, Harvard Medical School, Boston, MA, USA
    Crit Care Med 31:1543-50. 2003
    ..Since that time, the concept has continued to evolve and evoke much debate. Indeed, few initials in medicine today evoke as much symbolism or controversy as the Do-Not-Resuscitate (DNR) order...

Research Grants71

  1. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2009
    ..by facility process indicators: the number of hospice referrals, feeding tubes, hospitalizations, and advance directives; and resident/family outcomes: resident/family centered care, family satisfaction with care, family ..
  2. Center on Advancing Decision Making in Aging (CADMA)
    Alan Garber; Fiscal Year: 2007
    ..g., health care plan choice) and/or emotionally charged (e.g., advance directives) topics...
  3. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2007
    ..by facility process indicators: the number of hospice referrals, feeding tubes, hospitalizations, and advance directives; and resident/family outcomes: resident/family centered care, family satisfaction with care, family ..
  4. The impact of quality end-of-life care in nursing homes
    SARAH ANN FORBES THOMPSON; Fiscal Year: 2010
    ..by facility process indicators: the number of hospice referrals, feeding tubes, hospitalizations, and advance directives;and resident/family outcomes: resident/family centered care, family satisfaction with care, family caregiver ..
  5. Patient-Centered Approach to Advance Care Planning
    KARIN KIRCHHOFF; Fiscal Year: 2006
    ..For a decade, attention has been given to the use of Advance Directives and Advance Care Planning (ACP) as ways to improve end-of-life care...
  6. Converting Treatment Wishes into Orders at End of Life
    Susan Hickman; Fiscal Year: 2007
    Traditional advance directives have been advocated as 1 means to improve end-of-life care for nursing facility residents by providing documentation of treatment preferences to facilitate decision-making...
  7. CARE INTEGRATION TEAM INTERVENTION DURING HOSPICE CARE
    Rebecca Allen; Fiscal Year: 2004
    ..Aim 2 measures the impact of RN-ACP interviewing on personal caregivers knowledge of advance directives and of care recipients medical treatment wishes...
  8. Treatment goals at the end of life
    Terri Fried; Fiscal Year: 2006
    ..It began with projects examining attitudes toward life-sustaining treatment and advance directives, and outcomes of pneumonia in nursing home residents treated with and without hospital transfer...
  9. African American Families and End of Life Disparities
    Sharon Williams; Fiscal Year: 2007
    ..more likely to discuss EOL medical decisions and preferences with family members than to complete formal advance directives. Such EOL communication within the family can lead to improved outcomes, including closer alignment with the ..