advance directives

Summary

Summary: Declarations by patients, made in advance of a situation in which they may be incompetent to decide about their own care, stating their treatment preferences or authorizing a third party to make decisions for them. (Bioethics Thesaurus)

Top Publications

  1. ncbi Precommitment: a misguided strategy for securing death with dignity
    Rebecca Dresser
    Washington University, St. Louis, MO, USA
    Tex Law Rev 81:1823-47. 2003
  2. ncbi Multi-cultural and multi-ethnic considerations and advanced directives: developing cultural competency
    Joyce Newman Giger
    University of California Los Angeles School of Nursing in Los Angeles, California, USA
    J Cult Divers 13:3-9. 2006
  3. ncbi Advance directives and outcomes of surrogate decision making before death
    Maria J Silveira
    Veterans Affairs Center for Clinical Management Research, and Division of General Medicine, University of Michigan, Ann Arbor, USA
    N Engl J Med 362:1211-8. 2010
  4. ncbi Promoting advance directives among African Americans: a faith-based model
    Karen Bullock
    School of Social Work, University of Connecticut, West Hartford, Connecticut 06117, and The Braceland Center for Mental Health and Aging, Institute of Living, Hartford Hospital, Hartford, Connecticut, USA
    J Palliat Med 9:183-95. 2006
  5. ncbi Chinese seniors' perspectives on end-of-life decisions
    K W Bowman
    Mount Sinai Hospital, Toronto, Ont, Canada
    Soc Sci Med 53:455-64. 2001
  6. ncbi Assessing the effectiveness of interventions to promote advance directives among older adults: a systematic review and multi-level analysis
    Gina Bravo
    Sherbrooke University, Geriatric Institute, Sherbrooke, PQ, Canada
    Soc Sci Med 67:1122-32. 2008
  7. ncbi Design of the Advance Directives Cohort: a study of end-of-life decision-making focusing on Advance Directives
    Matthijs P S van Wijmen
    Department Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, Amsterdam, 1081 BT, The Netherlands
    BMC Public Health 10:166. 2010
  8. ncbi End-of-life care in the 21st century: advance directives in universal rights discourse
    Violeta Besirević
    Union University Law School Belgrade, Belgrade, Goce Delceva 36, Serbia
    Bioethics 24:105-12. 2010
  9. ncbi Competence to complete psychiatric advance directives: effects of facilitated decision making
    Eric B Elbogen
    Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Brightleaf Square Suite 23 A, 905 West Main Street, DUMC Box 3071, Durham, NC 27710, USA
    Law Hum Behav 31:275-89. 2007
  10. ncbi Acculturation of attitudes toward end-of-life care: a cross-cultural survey of Japanese Americans and Japanese
    Shinji Matsumura
    Division of General Internal Medicine and Health Services, University of California-Los Angeles, Los Angeles, Calif 90095-1736, USA
    J Gen Intern Med 17:531-9. 2002

Research Grants

  1. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2009
  2. Center on Advancing Decision Making in Aging (CADMA)
    Alan Garber; Fiscal Year: 2007
  3. The impact of quality end-of-life care in nursing homes
    SARAH ANN FORBES THOMPSON; Fiscal Year: 2010
  4. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2007
  5. Patient-Centered Approach to Advance Care Planning
    KARIN KIRCHHOFF; Fiscal Year: 2006
  6. Converting Treatment Wishes into Orders at End of Life
    Susan Hickman; Fiscal Year: 2007
  7. CARE INTEGRATION TEAM INTERVENTION DURING HOSPICE CARE
    Rebecca Allen; Fiscal Year: 2004
  8. Treatment goals at the end of life
    Terri Fried; Fiscal Year: 2006
  9. African American Families and End of Life Disparities
    Sharon Williams; Fiscal Year: 2007

Detail Information

Publications288 found, 100 shown here

  1. ncbi Precommitment: a misguided strategy for securing death with dignity
    Rebecca Dresser
    Washington University, St. Louis, MO, USA
    Tex Law Rev 81:1823-47. 2003
  2. ncbi Multi-cultural and multi-ethnic considerations and advanced directives: developing cultural competency
    Joyce Newman Giger
    University of California Los Angeles School of Nursing in Los Angeles, California, USA
    J Cult Divers 13:3-9. 2006
    ..The Giger and Davdihizar (2004) Transcultural Assessment Model is used as a way to assess patient and the family in an effort to plan culturally appropriate care that recognizes the uniqueness of each individual at the end of life...
  3. ncbi Advance directives and outcomes of surrogate decision making before death
    Maria J Silveira
    Veterans Affairs Center for Clinical Management Research, and Division of General Medicine, University of Michigan, Ann Arbor, USA
    N Engl J Med 362:1211-8. 2010
    Recent discussions about health care reform have raised questions regarding the value of advance directives.
  4. ncbi Promoting advance directives among African Americans: a faith-based model
    Karen Bullock
    School of Social Work, University of Connecticut, West Hartford, Connecticut 06117, and The Braceland Center for Mental Health and Aging, Institute of Living, Hartford Hospital, Hartford, Connecticut, USA
    J Palliat Med 9:183-95. 2006
    Studies show that African Americans are less likely than other ethnic groups to complete advance directives. However, what influences African Americans' decisions to complete or not complete advance directives is unclear.
  5. ncbi Chinese seniors' perspectives on end-of-life decisions
    K W Bowman
    Mount Sinai Hospital, Toronto, Ont, Canada
    Soc Sci Med 53:455-64. 2001
    ..Respondents rejected advance directives. Respondents' attitudes toward end-of-life decision making can be understood through the lens of values from ..
  6. ncbi Assessing the effectiveness of interventions to promote advance directives among older adults: a systematic review and multi-level analysis
    Gina Bravo
    Sherbrooke University, Geriatric Institute, Sherbrooke, PQ, Canada
    Soc Sci Med 67:1122-32. 2008
    Many studies have investigated the effectiveness of interventions in promoting advance directives (ADs) but there is uncertainty as to what works best, and in whom...
  7. ncbi Design of the Advance Directives Cohort: a study of end-of-life decision-making focusing on Advance Directives
    Matthijs P S van Wijmen
    Department Public and Occupational Health, EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, Amsterdam, 1081 BT, The Netherlands
    BMC Public Health 10:166. 2010
    ..There is still a lot unclear about ADs. We designed a study aimed at investigating the whole process from the formulating of an AD to its actual use at the end of life...
  8. ncbi End-of-life care in the 21st century: advance directives in universal rights discourse
    Violeta Besirević
    Union University Law School Belgrade, Belgrade, Goce Delceva 36, Serbia
    Bioethics 24:105-12. 2010
    ..normative bases that could help to shape a workable legal construct that would facilitate a global use of advance directives. Although I believe that advance directives are of universal character, my primary aim in approaching this ..
  9. ncbi Competence to complete psychiatric advance directives: effects of facilitated decision making
    Eric B Elbogen
    Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Brightleaf Square Suite 23 A, 905 West Main Street, DUMC Box 3071, Durham, NC 27710, USA
    Law Hum Behav 31:275-89. 2007
    Psychiatric advance directives (PADs) statutes presume competence to complete these documents, but the range and dimensions of decisional competence among people who actually complete PADs is unknown...
  10. ncbi Acculturation of attitudes toward end-of-life care: a cross-cultural survey of Japanese Americans and Japanese
    Shinji Matsumura
    Division of General Internal Medicine and Health Services, University of California-Los Angeles, Los Angeles, Calif 90095-1736, USA
    J Gen Intern Med 17:531-9. 2002
    ..Recognition of the variability and acculturation gradient of end-of-life attitudes among Japanese Americans may facilitate decision making and minimize conflicts. Group decision making should be an option for Japanese Americans...
  11. ncbi Approaching the end of life: attitudes, preferences, and behaviors of African-American and white patients and their family caregivers
    Etienne Phipps
    Albert Einstein Healthcare Network, Philadelphia, PA 19144, USA
    J Clin Oncol 21:549-54. 2003
    ..To investigate differences in attitudes, preferences, and behaviors regarding end of life in terminally ill patients and their designated family caregivers...
  12. ncbi A Korean perspective on developing a global policy for advance directives
    Soyoon Kim
    Yonsei University College of Medicine, 250 Seongsanno, Seodaemun gu, Seoul, Republic of Korea
    Bioethics 24:113-7. 2010
    Despite the wide and daunting array of cross-cultural obstacles that the formulation of a global policy on advance directives will clearly pose, the need is equally evident...
  13. ncbi Advance directives and end-of-life decision making: survey of critical care nurses' knowledge, attitude, and experience
    Yvonne Scherer
    School of Nursing, University at Buffalo, The State University of New York, Buffalo, NY 14214-3079, USA
    Crit Care Nurse 26:30-40. 2006
  14. ncbi [On a principal of advance directives]
    Hiroaki Ito
    Dept of Neurology, Niigata National Hospital
    Gan To Kagaku Ryoho 36:66-8. 2009
    We explored a principle of advance directives. Advanced directives are a tool to help execute a broader concept of advance care planning, which is included in advance life planning...
  15. ncbi Medication preferences and adherence among individuals with severe mental illness and psychiatric advance directives
    Christine M Wilder
    Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Box 3071, Durham, NC 27710, USA
    Psychiatr Serv 61:380-5. 2010
    Psychiatric advance directives allow patients with severe mental illness to document their preferences for particular medications...
  16. ncbi Advance directives, future selves and decision-making
    Alasdair R MacLean
    University of Dundee
    Med Law Rev 14:291-320. 2006
  17. ncbi The role of advance directives in end-of-life decisions in Austria: survey of intensive care physicians
    Eva Schaden
    Department of Anaesthesiology, General Intensive Care and Pain Management Medical University of Vienna, Austria
    BMC Med Ethics 11:19. 2010
    ..The aim of this survey was to explore Austrian intensive care physicians' experiences with and their acceptance of the new advance directive legislation two years after enactment (2008)...
  18. ncbi Patients who complete advance directives and what they prefer
    Adam Nishimura
    Division of General Internal Medicine, Mayo Clinic, 200 First St SW, Rochester, MN 55905, USA
    Mayo Clin Proc 82:1480-6. 2007
    To determine health care preferences expressed by patients in advance directives (ADs) and to identify characteristics of patients who completed them.
  19. ncbi Importance of the advance directive and the beginning of the dying process from the point of view of German doctors and judges dealing with guardianship matters: results of an empirical survey
    B van Oorschot
    Klinik für Radiologie, Abt Strahlentherapie, Universitatsklinikum Jena, Jena, Germany
    J Med Ethics 32:623-6. 2006
    ..To analyse and compare the surveys on German doctors and judges on end of life decision making regarding their attitudes on the advance directive and on the dying process...
  20. ncbi The accuracy of surrogate decision makers: a systematic review
    David I Shalowitz
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    Arch Intern Med 166:493-7. 2006
    ..Also, they should assess whether reliance on patient-designated and next-of-kin surrogates offers patients and/or their families benefits that are independent of the accuracy of surrogates' decisions...
  21. ncbi Prehospital advance directives--a better way
    Kenneth V Iserson
    J Emerg Med 23:419-20. 2002
  22. ncbi Law & psychiatry: psychiatric advance directives and the treatment of committed patients
    Paul S Appelbaum
    University of Massachusetts Medical School, 55 Lake Avenue North, Worcester, MA 01655, USA
    Psychiatr Serv 55:751-2, 763. 2004
  23. ncbi Advance directives for patients compulsorily admitted to hospital with serious mental illness. Randomised controlled trial
    Alexia Papageorgiou
    Royal Free and University College Medical School, London, UK
    Br J Psychiatry 181:513-9. 2002
    ..AIMS: To evaluate whether use of advance directives by patients with mental illness leads to lower rates of compulsory readmission to hospital...
  24. ncbi Care for dying patients--German legislation
    Andrej Michalsen
    Department of Anaesthesiology and Intensive Care Medicine, Uberlingen Hospital, 88662, Uberlingen See, Germany
    Intensive Care Med 33:1823-6. 2007
    ..Probably, the authority of advance directives needs further clarification...
  25. ncbi How should advance statements be implemented?
    P Thomas
    Br J Psychiatry 182:548-9; author reply 549. 2003
  26. ncbi A typology of advance statements in mental health care
    Claire Henderson
    Department of Veterans Affairs Medical Center, Mental Illness Research, Education and Clinical Centers, Bronx, NY 10468, USA
    Psychiatr Serv 59:63-71. 2008
    ..joint crisis plans, crisis cards, treatment plans, wellness recovery action plans, and psychiatric advance directives (with and without formal facilitation)...
  27. ncbi Communication on end-of-life decisions with patients wishing to die at home: the making of a guideline for GPs in Flanders, Belgium
    Reginald Deschepper
    End of Life Care Research Group, Dept of Medical Sociology and Health Sciences, Vrije Universiteit Brussel, Laarbeeklaan 103, 1090 Brussels, Belgium
    Br J Gen Pract 56:14-9. 2006
    ..Communication with patients on end-of-life decisions is a delicate topic for which there is little guidance...
  28. ncbi An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses
    Paul N Lanken
    Am J Respir Crit Care Med 177:912-27. 2008
  29. ncbi Facilitated psychiatric advance directives: a randomized trial of an intervention to foster advance treatment planning among persons with severe mental illness
    Jeffrey W Swanson
    Services Effectiveness Research Program, Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Durham, NC 27710, USA
    Am J Psychiatry 163:1943-51. 2006
    Studies show a high potential demand for psychiatric advance directives but low completion rates. The authors conducted a randomized study of a structured, manualized intervention to facilitate completion of psychiatric advance directives.
  30. ncbi An advance directive redesigned to meet the literacy level of most adults: a randomized trial
    Rebecca L Sudore
    Division of Geriatrics, University of California San Francisco and the San Francisco Veterans Affairs Medical Center, CA 94121, USA, United States
    Patient Educ Couns 69:165-95. 2007
    ..To determine whether an advance directive redesigned to meet most adults' literacy needs (fifth grade reading level with graphics) was more useful for advance care planning than a standard form (>12th grade level)...
  31. ncbi Assessing competence to complete psychiatric advance directives with the competence assessment tool for psychiatric advance directives
    Debra Srebnik
    Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, 98105, USA
    Compr Psychiatry 45:239-45. 2004
    The Competence Assessment Tool for Psychiatric Advance Directives (CAT-PAD), a new instrument designed to assess competence to complete a psychiatric advance directive (PAD), is described...
  32. ncbi Adherence to advance directives in critical care decision making: vignette study
    Trevor Thompson
    Division of Primary Health Care, University of Bristol, Bristol BS6 6JL
    BMJ 327:1011. 2003
    ..To explore health professionals' decision making in a critical care scenario when there is an advance directive...
  33. ncbi Interest in psychiatric advance directives among high users of crisis services and hospitalization
    Debra S Srebnik
    Department of Psychiatry and Behavorial Sciences, University of Washington in Seattle, Harborview Medical Center, Box 359911, 325 9th Avenue, Seattle, Washington, 98104, USA
    Psychiatr Serv 54:981-6. 2003
    This study examined rates of interest in creating psychiatric advance directives among individuals at risk of psychiatric crises in which these directives might be used and variables associated with interest in the directives.
  34. ncbi Knowledge, attitudes and practices of nursing personnel regarding advance directives
    Gloria Duke
    The University of Texas at Tyler, College of Nursing and Health Sciences, 3900 University Blvd, Texas, USA
    Int J Palliat Nurs 13:109-15. 2007
    ..the knowledge, attitudes and practices of nursing personnel working in acute care settings regarding advance directives (ADs)...
  35. ncbi Perspectives of elderly people on advance directives in Japan
    Miho Matsui
    Department of Gerontological Nursing, Nagasaki University Graduate School of Biomedical Sciences, Japan
    J Nurs Scholarsh 39:172-6. 2007
    To examine perspectives of Japanese elderly people on advance directives (ADs) and factors related to positive attitudes toward ADs.
  36. ncbi Ethics review: 'Living wills' and intensive care--an overview of the American experience
    Andrew R J Tillyard
    Intensive Care Department, Royal Cornwall Hospital, Truro TR1 5LJ, UK
    Crit Care 11:219. 2007
    ..This has been the case in the USA for many years. The purpose of the present review is to examine the published literature regarding the effect of advance decisions in relation to the provision of adult critical care...
  37. ncbi Differences in presenting advance directives in the chart, in the minimum data set, and through the staff's perceptions
    Jiska Cohen-Mansfield
    Research Institute on Aging, Hebrew Home of Greater Washington, Rockville, MD 20852, USA
    Gerontologist 43:302-8. 2003
    Decisions concerning end-of-life care depend on information contained in advance directives that are documented in residents' charts in the nursing home...
  38. ncbi Thinking ahead: factors associated with executing advance directives
    Christopher B Rosnick
    University of South Florida, USA
    J Aging Health 15:409-29. 2003
    This article examines why older adults do or do not execute advance directives. METHODS...
  39. ncbi Speaking of research advance directives: planning for future research participation
    C B Stocking
    MacLean Center for Clinical Medical Ethics, Department of Medicine, University of Chicago Medical Center, Chicago, IL 60637, USA
    Neurology 66:1361-6. 2006
    ....
  40. ncbi Do-not-resuscitate order after 25 years
    Jeffrey P Burns
    Department of Anesthesia, Harvard Medical School, Boston, MA, USA
    Crit Care Med 31:1543-50. 2003
    ..The DNR order, then, remains an inducement to seek the informed patient's directive...
  41. ncbi Questioning the decision-making capacity of surrogates
    K A Bramstedt
    Department of Bioethics, NA10, Cleveland Clinic Foundation, 9500 Euclid Avenue, Cleveland, OH 44195, USA
    Intern Med J 33:257-9. 2003
    ....
  42. ncbi Psychiatric advance directives among public mental health consumers in five U.S. cities: prevalence, demand, and correlates
    Jeffrey Swanson
    Department of Psychiatry and Behavioral Sciences, Duke University Medical Center, Box 3071, Brightleaf Square Suite 23 A, Durham, NC 27710, USA
    J Am Acad Psychiatry Law 34:43-57. 2006
    Psychiatric advance directives (PADs) are legal instruments that allow competent persons to document their preferences regarding future mental health treatment and to designate a surrogate decisionmaker in the event they lose capacity to ..
  43. ncbi When written advance directives are not enough
    Kristi L Kirschner
    Northwestern University Feinberg School of Medicine, 345 East Superior, Suite 1122, Chicago, IL 60611, USA
    Clin Geriatr Med 21:193-209, x. 2005
    b>Advance directives have been promoted as being the best device for making decisions on behalf of patients who are unable to speak for themselves. It is believed that an advance directive would tell the health care professionals what to do...
  44. ncbi Cultural diversity at the end of life: issues and guidelines for family physicians
    H Russell Searight
    Forest Park Hospital Family Medicine Residency Program, St Louis, Missouri 63139, USA
    Am Fam Physician 71:515-22. 2005
    ..that vary culturally: communication of "bad news"; locus of decision making; and attitudes toward advance directives and end-of-life care...
  45. ncbi Fates worse than death: the role of valued life activities in health-state evaluations
    P H Ditto
    Department of Psychology, Kent State University, Ohio 44242 0001
    Health Psychol 15:332-43. 1996
    ..Implications of these results for end-of-life medical decision making in general and the use of advance medical directives in particular are discussed...
  46. ncbi How do-not-resuscitate orders are utilized in cancer patients: timing relative to death and communication-training implications
    Tomer T Levin
    Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York 10022, USA
    Palliat Support Care 6:341-8. 2008
    ..Despite this, there is little DNR utilization data to guide the design of communication-training programs. The objective of this study was to determine DNR utilization patterns and whether their use is increasing...
  47. ncbi Advance directives for truth disclosure
    Dominic T Keating
    Department of Respiratory Medicine, Unit 4, Merlin Park Regional Hospital, Galway, Ireland
    Chest 128:1037-9. 2005
    ....
  48. ncbi Advance care planning: pitfalls, progress, promise
    T J Prendergast
    Dartmouth Medical School, Pulmonary Section (3D, Lebanon, NH, USA
    Crit Care Med 29:N34-9. 2001
    We now have a decade of experience with advance directives since the Patient Self-Determination Act was signed into law in November 1990. With few exceptions, empirical studies have yielded disappointing results...
  49. ncbi Accuracy of primary care and hospital-based physicians' predictions of elderly outpatients' treatment preferences with and without advance directives
    K M Coppola
    Department of Psychology, Monmouth University, West Long Branch, NJ 07764, USA
    Arch Intern Med 161:431-40. 2001
    ..physicians and family members are often inaccurate when making substituted judgments for patients without advance directives (ADs)...
  50. ncbi Advance directives as acts of communication: a randomized controlled trial
    P H Ditto
    Department of Psychology and Social Behavior, 3340 Social Ecology II, University of California, Irvine, CA 92697 7085, USA
    Arch Intern Med 161:421-30. 2001
    Instructional advance directives are widely advocated as a means of preserving patient self-determination at the end of life based on the assumption that they improve surrogates' understanding of patients' life-sustaining treatment wishes...
  51. ncbi What explains racial differences in the use of advance directives and attitudes toward hospice care?
    Kimberly S Johnson
    Department of Medicine, Duke University, Durham, North Carolina 27710, USA
    J Am Geriatr Soc 56:1953-8. 2008
    ..beliefs and values are thought to account for differences between African Americans and whites in the use of advance directives and beliefs about hospice care, but few data clarify which beliefs and values explain these differences...
  52. ncbi Views of service users and providers on joint crisis plans: single blind randomized controlled trial
    Claire Henderson
    P029, Health Service and Population Research Dept, Institute of Psychiatry, King s College London, De Crespigny Park, London SE5 8AF UK
    Soc Psychiatry Psychiatr Epidemiol 44:369-76. 2009
    ..We report participants' and case managers' use of and views on the value of Joint Crisis Plans (JCPs), shown to reduce compulsory hospitalisation and violence...
  53. ncbi Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: results from a national study
    F P Hopp
    Center for Practice Management and Outcomes Research, VA Ann Arbor Healthcare System, MI 48113 0170, USA
    Gerontologist 40:449-57. 2000
    ..Completion of advance directives such as living wills and durable powers of attorney for health care was more common among White respondents ..
  54. ncbi Advance directives and proxies' predictions about patients' treatment preferences
    Inés María Barrio-Cantalejo
    Granada Primary Healthcare District, Granada, Spain
    Nurs Ethics 16:93-109. 2009
    The accuracy of proxies when they interpret advance directives or apply substituted decision-making criteria has been called into question...
  55. ncbi A multimedia intervention on cardiopulmonary resuscitation and advance directives
    R Yamada
    Department of Internal Medicine, University of Michigan, Ann Arbor, MI, USA
    J Gen Intern Med 14:559-63. 1999
    OBJECTIVE: To assess the effects of a multimedia educational intervention about advance directives (ADs) and cardiopulmonary resuscitation (CPR) on the knowledge, attitude and activity toward ADs and life-sustaining treatments of elderly ..
  56. ncbi [Advance health care directives as seen by surgical patients]
    C Justinger
    Klinik fUr Allgemein, Viszeral, GefaSS und Kinderchirurgie, Universitatsklinikum des Saarlandes, Kirrberger Strasse, 66424, Homburg Saar, Deutschland
    Chirurg 80:455-6, 458-61. 2009
    ..In spite of the present political and public discussions in Germany, advance directives are rarely of much importance in everyday surgical practice...
  57. ncbi Deciding in the dark: advance directives and continuation of treatment in chronic critical illness
    Sharon L Camhi
    Division of Pulmonary and Critical Care Medicine, VA Pittsburgh Health Care System, Pittsburgh, PA, USA
    Crit Care Med 37:919-25. 2009
    ..We studied the availability of advance directives and appropriate surrogates to guide decisions about life-sustaining treatment for the chronically critically ..
  58. ncbi The patient self-determination act and advance directive completion in nursing homes
    E H Bradley
    Department of Epidemiology and Public Health, Yale University School of Medicine, New Haven, Conn, USA
    Arch Fam Med 7:417-23. 1998
    To assess the prevalence of advance directives among nursing home residents before and after passage of the Patient Self-Determination Act (PSDA) and to identify factors associated with advance directive completion.
  59. ncbi The content and clinical utility of psychiatric advance directives
    Debra S Srebnik
    Department of Psychiatry and Behavioral Sciences, University of Washington, 325 Ninth Avenue, Seattle, WA 98104, USA
    Psychiatr Serv 56:592-8. 2005
    This paper provides the first systematic examination of the content and clinical utility of psychiatric advance directives, which are documents that specify treatment preferences in advance of periods of compromised decision making.
  60. ncbi Family decision-making to withdraw life-sustaining treatments from hospitalized patients
    V P Tilden
    School of Nursing, Center for Ethics in Health Care, Oregon Health Sciences University, Portland 97201-3098, USA
    Nurs Res 50:105-15. 2001
    ..Several factors affected stress; most notably, stress was highest in the absence of patient advance directives. In reaching the decision, both families and clinicians prioritized what the patient would want, although ..
  61. ncbi Presumed consent: an international comparison and possibilities for change in the United States
    Kenneth Gundle
    Standford Center for Biomedical Ethics, Stanford University, Palo Alto, CA, USA
    Camb Q Healthc Ethics 14:113-8. 2005
  62. ncbi Patient preferences in instructional advance directives
    Elmer D Abbo
    Section of General Internal Medicine, Department of Medicine, The University of Chicago, Chicago, Illinois 60637, USA
    J Palliat Med 11:555-62. 2008
    Instructional advance directives (ADs) are traditionally written to apply in terminal illness. As such, they do not readily capture patient preferences for care in acute and chronic illness.
  63. ncbi Influence of an advance directive on the initiation of life support technology in critically ill cancer patients
    S Kish Wallace
    Department of Critical Care, The University of Texas M. D. Anderson Cancer Center, Houston, TX, USA
    Crit Care Med 29:2294-8. 2001
    ..PATIENTS: Of 872 patients treated in the ICU from 1994 to 1996, 236 (27%) were identified as having advance directives. One hundred thirty five patients who had advance directives were successfully matched to 135 patients who ..
  64. ncbi Completion of advance directives by older health maintenance organization members: the role of attitudes and beliefs regarding life-sustaining treatment
    Arne Beck
    Clinical Research Unit, Kaiser Permanente, Colorado Region, Denver, USA
    J Am Geriatr Soc 50:300-6. 2002
    This study examined whether older health maintenance organization (HMO) members' attitudes and beliefs regarding life-sustaining treatment were associated with their completion of advance directives (ADs).
  65. ncbi The stability of older adults' judgments of fates better and worse than death
    L K Lockhart
    Texas A and M University, Kingsville, Texas, USA
    Death Stud 25:299-317. 2001
    ..The implications of these findings for the use of instructional advance directives are discussed.
  66. ncbi Advance directives in the Netherlands: an empirical contribution to the exploration of a cross-cultural perspective on advance directives
    Matthijs P S van Wijmen
    EMGO Institute for Health and Care Research, VU University Medical Center Public and Occupational Health, Van der Boechorststraat 7, Amsterdam, Netherlands
    Bioethics 24:118-26. 2010
    ..This study focuses on ADs in the Netherlands and introduces a cross-cultural perspective by comparing it with other countries...
  67. ncbi Health care decision-making capacity: a legal perspective for long-term care providers
    Stuart D Zimring
    Law Offices of Stuart D Zimring, North Hollywood, CA 91607, USA
    J Am Med Dir Assoc 7:322-6. 2006
    ..Sensitivity to multicultural diversity in this context is imperative to maintain individual self-esteem and respect, both for the patient and the patient's family...
  68. ncbi Medical decision-making around the time of death of cognitively impaired nursing home residents: a pilot study
    Jiska Cohen-Mansfield
    Research Institute on Aging, Hebrew Home of Greater Washington, 6121 Montrose Road, Rockville, MD 20852, USA
    Omega (Westport) 48:103-14. 2003
    ..The results represent preliminary data concerning decision-making processes surrounding death of the cognitively-impaired in the nursing home. Additional research is needed to elucidate the trends uncovered in this study...
  69. ncbi End-of-life challenges: honoring autonomy
    Sharon M Valente
    Department of Veterans Affairs and the University of Southern California, Los Angeles, CA, USA
    Cancer Nurs 27:314-9. 2004
    ..considers a hastened death, the nurse needs to examine the patient's mental health, symptom management, advance directives, and decision making...
  70. ncbi [Ethical decision-making at the end of life--knowledge and attitudes of medical students]
    M Weber
    III Medizinische Klinik und Institut für Medizinische Biometrie, Epidemiologie und Informatik, Universitätskliniken Mainz, und Institut für Rechtsmedizin der Johannes Gutenberg Universität Mainz
    Dtsch Med Wochenschr 129:1556-60. 2004
    ....
  71. ncbi Limitation of treatment at the end-of-life: withholding and withdrawal
    Arthur R Derse
    Center for the Study of Bioethics, Medical College of Wisconsin, 8701 Watertown Plank Road, Milwaukee, WI 53226 0509, USA
    Clin Geriatr Med 21:223-38, xi. 2005
    ..The circumstances in which end of life treatment may be ethically and legally limited through withholding or withdrawal are discussed...
  72. ncbi Medical surrogacy mediation: expanding patient, family, and physician rights and reformulating the Virginia Health Care Decisions Act
    Duncan Joseph Moore
    University of Virginia Law School, USA
    Va J Soc Policy Law 10:410-44. 2003
  73. ncbi Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families
    Gary S Winzelberg
    Division of Geriatric Medicine, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
    J Am Geriatr Soc 53:1046-50. 2005
    ..The goal of these priorities is to promote understanding of patients' and families' decision-making preferences and goals and to minimize decision-making burdens on families...
  74. ncbi Law's effect on the quality of end-of-life care: lessons from the Schiavo case
    Robert A Burt
    Yale Law School, New Haven, Connecticut, USA
    Crit Care Med 34:S348-54. 2006
    ....
  75. ncbi [The project of a law concerning patients' rights at the end of life]
    F Lemaire
    Service de Reanimation Medicale, Hôpital Henri Mondor AP HP, Universite Paris XII, 51 Av du Mal de Lattre de Tassigny, 94010 Creteil Cedex
    Presse Med 34:525-8. 2005
    ..Article 7 specifies that adults may draw up advance directives to indicate their wishes for their end of life and their desires regarding the withholding or withdrawal of ..
  76. ncbi Ethical issues and the right to die
    Dominick L Flarey
    Center for Medical-Legal Consulting in Northeast Ohio, OH, USA
    Lippincotts Case Manag 10:228-31. 2005
  77. ncbi Preserving patient dignity when surrogates step in
    Marla Fern Gold
    Provider 30:28-9, 31-2, 35-7 passim. 2004
  78. ncbi Ethical issues in palliative care
    Richard A Demme
    Nephrology Division, The Center for Palliative Care and Clinical Ethics, University of Rochester Medical Center, 601 Elmwood Avenue, Box 675, Rochester, NY 14624, USA
    Anesthesiol Clin 24:129-44. 2006
    ....
  79. ncbi The quest to reform end of life care: rethinking assumptions and setting new directions
    Thomas H Murray
    Hastings Cent Rep . 2005
  80. ncbi The end of autonomy
    Robert A Burt
    Hastings Cent Rep . 2005
  81. ncbi Allow natural death: a more humane approach to discussing end-of-life directives
    Crissy Knox
    Indiana University, Indianapolis, USA
    J Emerg Nurs 31:560-1. 2005
  82. ncbi Managing conflict at the end of life
    M Gregg Bloche
    Georgetown University, Washington, DC, USA
    N Engl J Med 352:2371-3. 2005
  83. ncbi Artificial nutrition and hydration at the end of life: whose decision is it?
    Barbara A Biedrzycki
    School of Medicine, Johns Hopkins University, Baltimore, MD, USA
    ONS News 20:8, 10. 2005
  84. ncbi Unilateral withholding and withdrawal of potentially life-sustaining treatment: a violation of dignity under the law in Canada
    Jocelyn Downie
    Health Law Institute, Faculty of Law, Dalhousie University, Halifax, Nova Scotia, Canada
    J Palliat Care 20:143-9. 2004
    ..I then offer a concrete proposal for institutional policy with respect to unilateral withholding and withdrawal of treatment in light of the law...
  85. ncbi Concordance of preferences for end-of-life care between terminally ill cancer patients and their family caregivers in Taiwan
    Siew Tzuh Tang
    Graduate School of Nursing, Chang Gung University, Taipei, Taiwan, ROC
    J Pain Symptom Manage 30:510-8. 2005
    ..To effect real change and to gain increased agreement on preferences for end-of-life care, an open dialogue between patients and their primary family caregivers should become standard...
  86. ncbi Legal issues in end-of-life care in Oklahoma
    Laura L Cross
    Scoggins and Cross, PLLC, USA
    Oklahoma City Univ Law Rev 27:921-37. 2002
  87. ncbi Caring for a dignified end of life in a Christian health-care institution: the view of Caritas Catholica Vlaanderen
    Chris Gastmans
    Centre for Biomedical Ethics and Law, Faculty of Medicine, K.U. Leuven, Belgium
    Ethical Perspect 9:134-45. 2002
  88. ncbi Dying and decision making--evolution of end-of-life options
    Timothy E Quill
    University of Rochester School of Medicine, Rochester, NY, USA
    N Engl J Med 350:2029-32. 2004
  89. ncbi Discrepancies among patients, family members, and physicians in Korea in terms of values regarding the withholding of treatment from patients with terminal malignancies
    Do-Youn Oh
    Seoul Municipal Boramae Hospital and Department of Internal MEdicine, Seoul National University College of Medicine, Chongno-gu, Seoul, Republic of Korea
    Cancer 100:1961-6. 2004
    ..To resolve controversies regarding the role of the physician in end-of-life decision-making, the values of physicians, patients, and family members should be considered in the final decision-making process...
  90. ncbi Clinical issues on consent: some philosophical concerns
    R Worthington
    J Med Ethics 28:377-80. 2002
    ..Discussion includes references to Scottish law, and the use of advance directives, and it voices concerns about over-reliance on "best interests" determinations...
  91. ncbi Withdrawal of life support: intensive caring at the end of life
    Thomas J Prendergast
    Departments of Medicine and Anesthesiology, Dartmouth Hitchcock Medical Center, Section of Pulmonary and Critical Care Medicine 3D, 1 Medical Center Dr, Lebanon, NH 03756, USA
    JAMA 288:2732-40. 2002
    ..This shift from individual responsibility to patient-focused consensus often permits the family to understand, perhaps reluctantly and with great sadness, that intensive caring may involve letting go of life-sustaining interventions...
  92. ncbi "Choice" in end-of-life decision making: researching fact or fiction?
    Theresa S Drought
    Kaiser Permanente, Oakland, CA 94612, USA
    Gerontologist 42:114-28. 2002
    ..Research on the ethical dimensions of EOL decision making has focused on an idealized discourse of patient "choice" that requires patients to embrace their dying to receive excellent palliative care...
  93. ncbi Physicians attitudes toward DNR of terminally ill cancer patients in Taiwan
    Co Shi Chantal Chao
    Department of Nursing, College of Medicine, National Cheng Kung University
    J Nurs Res 10:161-7. 2002
    ..The DNR order finally gained its legal base for medical practice. The limitation of this study was the low response rate. However, since the subjects, physicians, had a busy work load, this was still an acceptable response rate...
  94. ncbi End-of-life decision-making in the United States
    R D Truog
    Children s Hospital Boston, Division of Critical Care Medicine, Department of Anesthesia, Boston, MA 02115, USA
    Eur J Anaesthesiol Suppl 42:43-50. 2008
    ....
  95. ncbi [Providing or withholding treatment: the role of the patient's wish and priorities in palliative care]
    H T Baberg
    Abteilung fur Kardiologie und Angiologie, Berufsgenossenschaftliche Kliniken Bergmannsheil, Klinikum der Ruhr Universitat, Bochum
    Dtsch Med Wochenschr 127:1690-4. 2002
    ..Discussions with patients may want to inform or influence the patient's wishes. We investigated how far clinical decisions recognize the patient's wishes and how the presumed wishes of the patient is established and respected...
  96. ncbi Bioethical aspects of end-of-life care
    N Zamperetti
    San Bortolo Hospital, Department of Anesthesia and Intensive Care Medicine, Vicenza, Italy
    Eur J Anaesthesiol Suppl 42:51-7. 2008
    ....
  97. ncbi Legal aspects of end-of-life decisions in Italy: the penal relevance of the limitation of treatment in the terminally ill and the problem of causality by omission. The legal puzzle of end-of-life care in Italy: is therapeutic limitation in the terminally
    E P Fabris
    Universita di Padova, Internazionale, Comunitario, Dipartimento di Diritto Pubblico, Padova, Italy
    Eur J Anaesthesiol Suppl 42:58-65. 2008
    ....
  98. ncbi The agony of agonal respiration: is the last gasp necessary?
    R M Perkin
    Department of Pediatrics, The Brody School of Medicine at East Carolina University, Greenville, North Carolina 27858 4354, USA
    J Med Ethics 28:164-9. 2002
    ..We propose that there is an ethical basis, in rare circumstances, for the use of neuromuscular blockade to suppress prolonged episodes of agonal respiration in the well-sedated patient in order to allow a peaceful and comfortable death...
  99. ncbi Position of the American Dietetic Association: ethical and legal issues in nutrition, hydration, and feeding
    Robert L Potter
    School of Health Related Professions, University of Medicine and Dentistry of New Jersey, Newark, USA
    J Am Diet Assoc 102:716-26. 2002
    ....
  100. ncbi End-of-life decision making in intensive care
    Mary Thelen
    Luther Midelfort Mayo Health System, Eau Claire, Wisconsin, USA
    Crit Care Nurse 25:28-37; quiz 38. 2005
  101. ncbi Proxy perspectives regarding end-of-life care for persons with cancer
    Marie Bakitas
    School of Nursing, Yale University, New Haven, Connecticut, USA
    Cancer 112:1854-61. 2008
    ..Family proxies have been proposed as valuable informants regarding the quality of end-of-life care. This article describes family proxy perspectives concerning care at the end of life in patients who died of advanced cancer...

Research Grants69

  1. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2009
    ..by facility process indicators: the number of hospice referrals, feeding tubes, hospitalizations, and advance directives; and resident/family outcomes: resident/family centered care, family satisfaction with care, family ..
  2. Center on Advancing Decision Making in Aging (CADMA)
    Alan Garber; Fiscal Year: 2007
    ..g., health care plan choice) and/or emotionally charged (e.g., advance directives) topics...
  3. The impact of quality end-of-life care in nursing homes
    SARAH ANN FORBES THOMPSON; Fiscal Year: 2010
    ..by facility process indicators: the number of hospice referrals, feeding tubes, hospitalizations, and advance directives;and resident/family outcomes: resident/family centered care, family satisfaction with care, family caregiver ..
  4. The impact of quality end-of-life care in nursing homes
    Sarah Forbes Thompson; Fiscal Year: 2007
    ..by facility process indicators: the number of hospice referrals, feeding tubes, hospitalizations, and advance directives; and resident/family outcomes: resident/family centered care, family satisfaction with care, family ..
  5. Patient-Centered Approach to Advance Care Planning
    KARIN KIRCHHOFF; Fiscal Year: 2006
    ..For a decade, attention has been given to the use of Advance Directives and Advance Care Planning (ACP) as ways to improve end-of-life care...
  6. Converting Treatment Wishes into Orders at End of Life
    Susan Hickman; Fiscal Year: 2007
    Traditional advance directives have been advocated as 1 means to improve end-of-life care for nursing facility residents by providing documentation of treatment preferences to facilitate decision-making...
  7. CARE INTEGRATION TEAM INTERVENTION DURING HOSPICE CARE
    Rebecca Allen; Fiscal Year: 2004
    ..Aim 2 measures the impact of RN-ACP interviewing on personal caregivers knowledge of advance directives and of care recipients medical treatment wishes...
  8. Treatment goals at the end of life
    Terri Fried; Fiscal Year: 2006
    ..It began with projects examining attitudes toward life-sustaining treatment and advance directives, and outcomes of pneumonia in nursing home residents treated with and without hospital transfer...
  9. African American Families and End of Life Disparities
    Sharon Williams; Fiscal Year: 2007
    ..more likely to discuss EOL medical decisions and preferences with family members than to complete formal advance directives. Such EOL communication within the family can lead to improved outcomes, including closer alignment with the ..