privacy

Summary

Summary: The state of being free from intrusion or disturbance in one's private life or affairs. (Random House Unabridged Dictionary, 2d ed, 1993)

Top Publications

  1. Nayeri N, Aghajani M. Patients' privacy and satisfaction in the emergency department: a descriptive analytical study. Nurs Ethics. 2010;17:167-77 pubmed publisher
    Respecting privacy and patients' satisfaction are amongst the main indicators of quality of care and one of the basic goals of health services...
  2. Dowling D, Blatz M, Graham G. Mothers' experiences expressing breast milk for their preterm infants: does NICU design make a difference?. Adv Neonatal Care. 2012;12:377-84 pubmed publisher
    ..The majority of the mothers (55%) were most comfortable pumping in their own homes because of the increased privacy. There were no statistically significant differences between the 2 groups regarding the place where they were ..
  3. Van Der Velden M, El Emam K. "Not all my friends need to know": a qualitative study of teenage patients, privacy, and social media. J Am Med Inform Assoc. 2013;20:16-24 pubmed publisher
    The literature describes teenagers as active users of social media, who seem to care about privacy, but who also reveal a considerable amount of personal information...
  4. Kaye J, Curren L, Anderson N, Edwards K, Fullerton S, Kanellopoulou N, et al. From patients to partners: participant-centric initiatives in biomedical research. Nat Rev Genet. 2012;13:371-6 pubmed publisher
    ..These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust...
  5. Mohammed N, Jiang X, Chen R, Fung B, Ohno Machado L. Privacy-preserving heterogeneous health data sharing. J Am Med Inform Assoc. 2013;20:462-9 pubmed publisher
    b>Privacy-preserving data publishing addresses the problem of disclosing sensitive data when mining for useful information...
  6. Miller J. Sharing clinical research data in the United States under the Health Insurance Portability and Accountability Act and the Privacy Rule. Trials. 2010;11:112 pubmed publisher
    ..In the U.S., however, the Privacy Rule adopted under the Health Insurance Portability and Accountability Act impedes the sharing of final research ..
  7. Haas S, Wohlgemuth S, Echizen I, Sonehara N, Müller G. Aspects of privacy for electronic health records. Int J Med Inform. 2011;80:e26-31 pubmed publisher
    ..But they fail in satisfying essential requirements to privacy. We propose a privacy-protecting information system for controlled disclosure of personal data to third parties...
  8. Rothstein M. Is deidentification sufficient to protect health privacy in research?. Am J Bioeth. 2010;10:3-11 pubmed publisher
  9. Lin Y, Lin C. Factors predicting patients' perception of privacy and satisfaction for emergency care. Emerg Med J. 2011;28:604-8 pubmed publisher
    To identify emergency department (ED) predictors of patients' perception of privacy and whether patients' perception of privacy was significantly associated with patient satisfaction, in an urban, university-based hospital ED...

More Information

Publications62

  1. Malin B, Karp D, Scheuermann R. Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research. J Investig Med. 2010;58:11-8 pubmed publisher
    ..The widespread use of such open databases is contingent on the protection of patient privacy. We review privacy-related problems associated with data sharing for clinical research from technical and policy ..
  2. Lewis C, Matheson D, Brimacombe C. Factors influencing patient disclosure to physicians in birth control clinics: an application of the communication privacy management theory. Health Commun. 2011;26:502-11 pubmed publisher
    ..The present study used communication privacy management (CPM) as the theoretical lens through which to view the interaction...
  3. Edwards K, Lemke A, Trinidad S, Lewis S, Starks H, Quinn Griffin M, et al. Attitudes toward genetic research review: results from a survey of human genetics researchers. Public Health Genomics. 2011;14:337-45 pubmed publisher
    ..The results from this study provide important perspectives of researchers regarding genetic research review and show lack of consensus on key research ethics issues in genomic research. ..
  4. Boussi Rahmouni H, Solomonides T, Casassa Mont M, Shiu S, Rahmouni M. A model-driven privacy compliance decision support for medical data sharing in Europe. Methods Inf Med. 2011;50:326-36 pubmed publisher
    ..Clinical practitioners and medical researchers often have to share health data with other colleagues across Europe. Privacy compliance in this context is very important but challenging...
  5. Ruotsalainen P, Blobel B, Nykanen P, Seppälä A, Sorvari H. Framework model and principles for trusted information sharing in pervasive health. Stud Health Technol Inform. 2011;169:497-501 pubmed
    Trustfulness (i.e. health and wellness information is processed ethically, and privacy is guaranteed) is one of the cornerstones for future Personal Health Systems, ubiquitous healthcare and pervasive health...
  6. Bista R, Chang J. Privacy-preserving data aggregation protocols for wireless sensor networks: a survey. Sensors (Basel). 2010;10:4577-601 pubmed publisher
    Many wireless sensor network (WSN) applications require privacy-preserving aggregation of sensor data during transmission from the source nodes to the sink node...
  7. Wartenberg D, Thompson W. Privacy versus public health: the impact of current confidentiality rules. Am J Public Health. 2010;100:407-12 pubmed publisher
    ..However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing researchers from using these ..
  8. MacDonald J, Sohn S, Ellis P. Privacy, professionalism and Facebook: a dilemma for young doctors. Med Educ. 2010;44:805-13 pubmed publisher
    ..and extent of use of the social networking service Facebook by young medical graduates, and their utilisation of privacy options...
  9. Wang S, Jiang X, Wu Y, Cui L, Cheng S, Ohno Machado L. EXpectation Propagation LOgistic REgRession (EXPLORER): distributed privacy-preserving online model learning. J Biomed Inform. 2013;46:480-96 pubmed publisher
    We developed an EXpectation Propagation LOgistic REgRession (EXPLORER) model for distributed privacy-preserving online learning...
  10. de Montjoye Y, Hidalgo C, Verleysen M, Blondel V. Unique in the Crowd: The privacy bounds of human mobility. Sci Rep. 2013;3:1376 pubmed publisher
    ..These findings represent fundamental constraints to an individual's privacy and have important implications for the design of frameworks and institutions dedicated to protect the privacy of ..
  11. Que J, Jiang X, Ohno Machado L. A collaborative framework for Distributed Privacy-Preserving Support Vector Machine learning. AMIA Annu Symp Proc. 2012;2012:1350-9 pubmed
    ..stored in local repositories or institutions where they were collected, and may not be easily shared due to privacy concerns...
  12. Kramer D, Baker M, Ransford B, Molina Markham A, Stewart Q, Fu K, et al. Security and privacy qualities of medical devices: an analysis of FDA postmarket surveillance. PLoS ONE. 2012;7:e40200 pubmed publisher
    ..These computing capabilities introduce security and privacy risks, yet little is known about the prevalence of such risks within the clinical setting...
  13. Wu Y, Jiang X, Ohno Machado L. Preserving Institutional Privacy in Distributed binary Logistic Regression. AMIA Annu Symp Proc. 2012;2012:1450-8 pubmed
    b>Privacy is becoming a major concern when sharing biomedical data across institutions...
  14. Neubauer T, Heurix J. A methodology for the pseudonymization of medical data. Int J Med Inform. 2011;80:190-204 pubmed publisher
    ..The article starts with a detailed exploration of existing privacy protection mechanisms, such as encryption, anonymization and pseudonymization, by comparing and analyzing related ..
  15. Tao S, Kudo M, Nonaka H. Privacy-preserved behavior analysis and fall detection by an infrared ceiling sensor network. Sensors (Basel). 2012;12:16920-36 pubmed publisher
    ..to be able to be regarded as pixel values of a top-view camera, but more advantageous in the sense of preserving privacy. Using the "pixel values" as features, support vector machine classifiers succeeded in recognizing ..
  16. Paasche Orlow M, Jacob D, Powell J. Notices of Privacy Practices: a survey of the Health Insurance Portability and Accountability Act of 1996 documents presented to patients at US hospitals. Med Care. 2005;43:558-64 pubmed
    Federal regulation requires hospitals to present patients with a Notice of Privacy Practices (NPP) that contains all stipulated content items, is readable by patients, and posted on institutional web sites...
  17. Moskop J, Marco C, Larkin G, Geiderman J, Derse A. From Hippocrates to HIPAA: privacy and confidentiality in emergency medicine--Part II: Challenges in the emergency department. Ann Emerg Med. 2005;45:60-7 pubmed
    Part I of this article reviewed the concepts of privacy and confidentiality and described the moral and legal foundations and limits of these values in health care...
  18. Sharpe V. Privacy and security for electronic health records. Hastings Cent Rep. 2005;35:49 pubmed
  19. Alpert S. Brain privacy: how can we protect it?. Am J Bioeth. 2007;7:70-3 pubmed
  20. Churches T. A proposed architecture and method of operation for improving the protection of privacy and confidentiality in disease registers. BMC Med Res Methodol. 2003;3:1 pubmed
    ..However, growing concern over the privacy and confidentiality aspects of disease registers may hinder their future operation...
  21. Leino Kilpi H, Valimaki M, Dassen T, Gasull M, Lemonidou C, Scott A, et al. Privacy: a review of the literature. Int J Nurs Stud. 2001;38:663-71 pubmed
    The concept of privacy is used in many disciplines and is recognised as one of the important concepts also in nursing...
  22. Kulynych J, Korn D. The effect of the new federal medical-privacy rule on research. N Engl J Med. 2002;346:201-4 pubmed
  23. Kulynych J, Korn D. The new federal medical-privacy rule. N Engl J Med. 2002;347:1133-4 pubmed
  24. Vaszar L, Cho M, Raffin T. Privacy issues in personalized medicine. Pharmacogenomics. 2003;4:107-12 pubmed
    ..In a simple conceptualization, these tests challenge privacy as a result of two factors: how comprehensive is the test and how is the access to samples or digital information ..
  25. Curtis A, Mills J, Leitner M. Keeping an eye on privacy issues with geospatial data. Nature. 2006;441:150 pubmed
  26. Ohno Machado L, Silveira P, Vinterbo S. Protecting patient privacy by quantifiable control of disclosures in disseminated databases. Int J Med Inform. 2004;73:599-606 pubmed
    One of the fundamental rights of patients is to have their privacy protected by health care organizations, so that information that can be used to identify a particular individual is not used to reveal sensitive patient data such as ..
  27. Bayer R, Fairchild A. The limits of privacy: surveillance and the control of disease. Health Care Anal. 2002;10:19-35 pubmed
    ..In placing HIV reporting within a larger context, however, we understand the clash between privacy and public health necessity as a complex issue, both in historical and contemporary practice...
  28. Ness R. Influence of the HIPAA Privacy Rule on health research. JAMA. 2007;298:2164-70 pubmed
    Anecdotal reports suggest that the Health Insurance Portability and Accountability Act Privacy Rule (HIPAA Privacy Rule) may be affecting health research in the United States...
  29. Geiderman J, Moskop J, Derse A. Privacy and confidentiality in emergency medicine: obligations and challenges. Emerg Med Clin North Am. 2006;24:633-56 pubmed
    Respect for privacy and confidentiality have been professional responsibilities of physicians throughout recorded history...
  30. Greenberg D. US Senate weighs proposal on medical privacy. Lancet. 2002;359:1585 pubmed
  31. Weisbaum K, Slaughter P, Collins P. A voluntary privacy standard for health services and policy research: legal, ethical and social policy issues in the Canadian context. Health Law Rev. 2005;14:42-6 pubmed
    In this review, the authors describe how one group of Canadian researchers has begun to address current privacy protection challenges with the end goal of developing a Canadian national standard for privacy protection specific to health ..
  32. Buckovich S, Rippen H, Rozen M. Driving toward guiding principles: a goal for privacy, confidentiality, and security of health information. J Am Med Inform Assoc. 1999;6:122-33 pubmed
    ..data collection, providing easier access and dissemination of health information, the development of guiding privacy, confidentiality, and security principles is necessary to help balance the protection of patients' privacy ..
  33. Botkin J. Protecting the privacy of family members in survey and pedigree research. JAMA. 2001;285:207-11 pubmed
  34. Barlas D, Sama A, Ward M, Lesser M. Comparison of the auditory and visual privacy of emergency department treatment areas with curtains versus those with solid walls. Ann Emerg Med. 2001;38:135-9 pubmed
    The design and function of emergency departments may allow breaches of privacy that could adversely affect patient satisfaction and medical care...
  35. Kulynych J. Legal and ethical issues in neuroimaging research: human subjects protection, medical privacy, and the public communication of research results. Brain Cogn. 2002;50:345-57 pubmed
    ..familiar with the requirements of human subjects protection, including evolving standards for the protection of privacy and the disclosure of risk in "non-therapeutic" research...
  36. Chalmers J, Muir R. Patient privacy and confidentiality. BMJ. 2003;326:725-6 pubmed
  37. Piccoli G, Jeantet A, Gai M, Burdese M, Mezza E, Segoloni G, et al. Home dialysis, garbage, and privacy: Nothing is trivial in home hemodialysis. Kidney Int. 2005;67:1190 pubmed
  38. Karro J, Dent A, Farish S. Patient perceptions of privacy infringements in an emergency department. Emerg Med Australas. 2005;17:117-23 pubmed
    To identify the nature, severity, impact, frequency and risk factors for patient perceived privacy infringements in the ED of St Vincent's Health Melbourne with 32,000 emergency attendances per annum...
  39. Boyd A, Hosner C, Hunscher D, Athey B, Clauw D, Green L. An 'Honest Broker' mechanism to maintain privacy for patient care and academic medical research. Int J Med Inform. 2007;76:407-11 pubmed
    ..Oath to the World Medical Association's Declaration of Geneva, physicians have sworn to protect patients' privacy. However, as systems move to more integrated architectures, protecting this medical data becomes more of a ..
  40. Johnson M. Notes on the tension between privacy and surveillance in nursing. Online J Issues Nurs. 2005;10:4 pubmed
    Given their 24 hour responsibility for care in many settings, nurses are the main arbiters of the privacy afforded or denied to patients...
  41. Marshall M, Menikoff J, Paltrow L. Perinatal substance abuse and human subjects research: are privacy protections adequate?. Ment Retard Dev Disabil Res Rev. 2003;9:54-9 pubmed
    b>Privacy incursions in the clinical care of substance abusing pregnant women have gained lay and professional attention recently as the result of a high-profile Supreme Court finding in Ferguson vs City of Charleston et al...
  42. Stolker J, Nijman H, Zwanikken P. Are patients' views on seclusion associated with lack of privacy in the ward?. Arch Psychiatr Nurs. 2006;20:282-7 pubmed
    ..lack of single-bed rooms in psychiatric wards may reduce the possibility of patients getting sufficient rest and privacy and may increase their risk of being overstimulated...
  43. Meingast M, Roosta T, Sastry S. Security and privacy issues with health care information technology. Conf Proc IEEE Eng Med Biol Soc. 2006;1:5453-8 pubmed
    ..While there are benefits to technologies, associated privacy and security issues need to be analyzed to make these systems socially acceptable...
  44. Butler D. Data sharing threatens privacy. Nature. 2007;449:644-5 pubmed
  45. Whitehead J, Wheeler H. Patients' experiences of privacy and dignity. Part 1: a literature review. Br J Nurs. 2008;17:381-5 pubmed
    This article reviews the literature on patients' privacy and dignity and concludes that interest in the topic goes back to psychiatric patients in the 1960s, with the 1990s seeing a shift to all hospitals...
  46. Halamka J, Juels A, Stubblefield A, Westhues J. The security implications of VeriChip cloning. J Am Med Inform Assoc. 2006;13:601-7 pubmed
    ..2 Paradoxically, for bearer safety, a VeriChip should be easy to spoof; an attacker then has less incentive to coerce victims or extract VeriChips from victims' bodies. ..
  47. Opar A. US plan for routine HIV testing alarms privacy advocates. Nat Med. 2006;12:866 pubmed
  48. Armstrong D, Kline Rogers E, Jani S, Goldman E, Fang J, Mukherjee D, et al. Potential impact of the HIPAA privacy rule on data collection in a registry of patients with acute coronary syndrome. Arch Intern Med. 2005;165:1125-9 pubmed
    Implementation of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule has the potential to affect data collection in outcomes research...
  49. Gunn P, Fremont A, Bottrell M, Shugarman L, Galegher J, Bikson T. The Health Insurance Portability and Accountability Act Privacy Rule: a practical guide for researchers. Med Care. 2004;42:321-7 pubmed
    The Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule, intended to address potential threats to patient privacy posed by the computerization and standardization of medical records, provides a new floor level of ..
  50. Neubauer T, Riedl B. Improving patients privacy with Pseudonymization. Stud Health Technol Inform. 2008;136:691-6 pubmed
    ..g., for attackers), there is an increasing social and political pressure to guarantee patients privacy. This paper presents the new system PIPE (Pseudonymization of Information for Privacy in e-Health), that differs ..
  51. Brunton M, Thomas D. Privacy or life: how do women find out about screening mammography services?. N Z Med J. 2002;115:U168 pubmed
    ..between the government policy to provide a population-based screening programme and the operation of the Privacy Act 1993, which prevents use of other sources of information to update addresses for population groups most ..
  52. McGraw D, Dempsey J, Harris L, Goldman J. Privacy as an enabler, not an impediment: building trust into health information exchange. Health Aff (Millwood). 2009;28:416-27 pubmed publisher
    Building privacy and security protections into health information technology systems will bolster trust in such systems and promote their adoption...
  53. MATTHEWS S, Moudon A, Daniel M. Work group II: Using Geographic Information Systems for enhancing research relevant to policy on diet, physical activity, and weight. Am J Prev Med. 2009;36:S171-6 pubmed publisher
    ..and improving empirical representations of place; (3) geospatial data availability, quality, and standards; (4) privacy and confidentiality; and, (5) building capacity in GIS personnel and infrastructure...