Summary: Facilities or services which are especially devoted to providing palliative and supportive care to the patient with a terminal illness and to the patient's family.
- Kim D, Kim J, Choi Y, Kim S, Lee J, Kim Y. Heart rate variability and length of survival in hospice cancer patients. J Korean Med Sci. 2010;25:1140-5 pubmed publisher..For the first time, we report that SDNN is a prognostic factor in terminal cancer patients. ..
- Aldridge Carlson M, Barry C, Cherlin E, McCorkle R, Bradley E. Hospices' enrollment policies may contribute to underuse of hospice care in the United States. Health Aff (Millwood). 2012;31:2690-8 pubmed publisher..This article reports the results of the first national survey of the enrollment policies of 591 US hospices. The survey revealed that 78 percent of hospices had at least one enrollment policy that may restrict access to ..
- Harrington S, Smith T. The role of chemotherapy at the end of life: "when is enough, enough?". JAMA. 2008;299:2667-78 pubmed publisher..Approaches to communication about prognosis and treatment options and questions that patients may want to ask are discussed. ..
- Gomes B, Calanzani N, Higginson I. Reversal of the British trends in place of death: time series analysis 2004-2010. Palliat Med. 2012;26:102-7 pubmed publisher..Home deaths increased for the first time since 1974 amongst people aged 85 years and over. There is an urgent need across nations for comparative evidence on the outcomes and the costs of dying at home. ..
- Centeno C, Clark D, Lynch T, Racafort J, Praill D, De Lima L, et al. Facts and indicators on palliative care development in 52 countries of the WHO European region: results of an EAPC Task Force. Palliat Med. 2007;21:463-71 pubmed..The Task Force is a collaboration between EAPC, the International Observatory on End of Life Care, Help the Hospices and the International Association for Hospice and Palliative Care...
- Chen L, Hwang S, Chen T, Tsai S, Chen T. In-hospital death of cancer patients in a medical centre in Taiwan: comparison between hospice and acute wards. Palliat Med. 2004;18:577-8 pubmed
- Virnig B, Moscovice I, Durham S, Casey M. Do rural elders have limited access to Medicare hospice services?. J Am Geriatr Soc. 2004;52:731-5 pubmed..Inpatient hospitals and hospices. Persons aged 65 and older in the Medicare program who died in 1999...
- Virnig B, Marshall McBean A, Kind S, Dholakia R. Hospice use before death: variability across cancer diagnoses. Med Care. 2002;40:73-8 pubmed..Across all cancers, blacks received approximately 82% of the hospice use as nonblacks. Men entered hospices at almost the same rate as women (overall male-to-female ratio = 0.97)...
- Greiner K, Perera S, Ahluwalia J. Hospice usage by minorities in the last year of life: results from the National Mortality Followback Survey. J Am Geriatr Soc. 2003;51:970-8 pubmed
- Iwashyna T, Chang V, Zhang J, Christakis N. The lack of effect of market structure on hospice use. Health Serv Res. 2002;37:1531-51 pubmed..important local factors may be local preferences, differences in the particular mix of services provided by local hospices, or differences in community leadership on end of life-issues; many of these differences may be amenable to ..
- Casarett D, Karlawish J, Hirschman K. Are hospices ready to participate in palliative care research? Results of a national survey. J Palliat Med. 2002;5:397-406 pubmed..However, it is not known whether hospices are prepared to participate in research, nor is it known what barriers may prevent hospices from becoming ..
- Foliart D, Clausen M, Siljestrom C. Bereavement practices among California hospices: results of a statewide survey. Death Stud. 2001;25:461-7 pubmedDuring 1999-2000, the California Hospice and Palliative Care Association (CHAPCA) surveyed its 160 member hospices regarding bereavement support services...
- Reid D, Field D, Payne S, Relf M. Adult bereavement in five English hospices: types of support. Int J Palliat Nurs. 2006;12:430-7 pubmedIn-depth organisational case studies of five English hospices. Thematic analysis of qualitative interviews and focus groups and scrutiny of documentary material provided by the hospice bereavement services...
- Demmer C. A survey of complementary therapy services provided by hospices. J Palliat Med. 2004;7:510-6 pubmedA questionnaire was mailed to 300 randomly selected hospices in the United States, to gather preliminary data on the nature of complementary therapy services provided by hospices...
- Tang S, McCorkle R. Determinants of congruence between the preferred and actual place of death for terminally ill cancer patients. J Palliat Care. 2003;19:230-7 pubmed..Clinical interventions and health policies need to be developed to assist terminally ill cancer patients who may not be able to achieve their preference for place of end-of-life care and death. ..
- Miller S, Weitzen S, Kinzbrunner B. Factors associated with the high prevalence of short hospice stays. J Palliat Med. 2003;6:725-36 pubmed..for 46655 nursing home and 80507 non-nursing home patients admitted between October 1994 and September 1999 to 21 hospices across 7 states, and owned by 1 provider...
- Speer N, Dioso J, Casner P. Costs and implications of discarded medication in hospice. J Palliat Med. 2013;16:975-8 pubmed publisher..Hospice organizations should investigate creative ways to reduce the amount of discarded medications. ..
- Planalp S, Trost M. Reasons for starting and continuing to volunteer for hospice. Am J Hosp Palliat Care. 2009;26:288-94 pubmed publisher..Demographic influences were noted but were generally small. ..
- Yancu C, Farmer D, Leahman D. Barriers to hospice use and palliative care services use by African American adults. Am J Hosp Palliat Care. 2010;27:248-53 pubmed publisher..However, many were more likely to use hospice if the care team were diverse suggesting the importance of culture. ..
- Powers B, Watson N. Meaning and practice of palliative care for nursing home residents with dementia at end of life. Am J Alzheimers Dis Other Demen. 2008;23:319-25 pubmed publisher..As they are in a residential setting, decisions need to be made about how residents live, as well as how they die, thus balancing quality of living/comfort with disease management. ..
- Booth S, Galbraith S, Ryan R, Parker R, Johnson M. The importance of the feasibility study: Lessons from a study of the hand-held fan used to relieve dyspnea in people who are breathless at rest. Palliat Med. 2016;30:504-9 pubmed publisher..Feasibility work is essential, even for simple widely employed interventions. ..
- Weschules D, Maxwell T, Shega J. Acetylcholinesterase inhibitor and N-methyl-D-aspartic acid receptor antagonist use among hospice enrollees with a primary diagnosis of dementia. J Palliat Med. 2008;11:738-45 pubmed publisher..A total of 10,065 persons with end-stage dementia admitted to one of 441 U.S. hospices in 2004...
- Unroe K, Greiner M, Johnson K, Curtis L, Setoguchi S. Racial differences in hospice use and patterns of care after enrollment in hospice among Medicare beneficiaries with heart failure. Am Heart J. 2012;163:987-993.e3 pubmed publisher..Nonwhite patients were less likely than white patients to enroll in hospice and had higher resource use after electing hospice care, regardless of disenrollment status. ..
- Stiel S, Pollok A, Elsner F, Lindena G, Ostgathe C, Nauck F, et al. Validation of the Symptom and Problem Checklist of the German Hospice and Palliative Care Evaluation (HOPE). J Pain Symptom Manage. 2012;43:593-605 pubmed publisher..Analyses of reliability and validity of the HOPE-SP-CL showed satisfactory to good psychometric properties; therefore, the HOPE-SP-CL can be recommended for standard implementation in German hospice and palliative care institutions. ..
- Ishøy T, Steptoe P. A multicentre survey of falls among Danish hospice patients. Int J Palliat Nurs. 2011;17:75-9 pubmed..neither a systematic fall assessment nor an evaluation of general fall prevention has been carried out at Danish hospices. This descriptive study investigated the frequency and circumstances of falls in 10 hospices comprising 110 beds ..
- Gillon S, Noble S, Ward J, Lodge K, Nunn A, Koon S, et al. Primary thromboprophylaxis for hospice inpatients: who needs it?. Palliat Med. 2011;25:701-5 pubmed publisher..In the light of continued variation and uncertainty in UK hospice practice, we assessed PTP prescribing in three hospices. Case notes were reviewed from consecutive patients admitted before (300 patients) and after (350 patients) ..
- Weeks L, MacQuarrie C, Bryanton O. Hospice palliative care volunteers: a Unique Care Link. J Palliat Care. 2008;24:85-93 pubmed..This knowledge can be incorporated into the further development of training and support programs for HPC volunteers, and to increase the quality of volunteer HPC services provided to family members. ..
- Unroe K, Cagle J, Lane K, Callahan C, Miller S. Nursing Home Staff Palliative Care Knowledge and Practices: Results of a Large Survey of Frontline Workers. J Pain Symptom Manage. 2015;50:622-9 pubmed publisher..Low end-of-life knowledge scores represent an important target for quality improvement. ..
- Yang C, Chiu Y, Huang C, Haung Y, Chuang H. A comprehensive approach in hospice shared care in Taiwan: nonelderly patients have more physical, psychosocial and spiritual suffering. Kaohsiung J Med Sci. 2013;29:444-50 pubmed publisher..Patients aged under 60 years have more physical, psychosocial and spiritual suffering. This study suggested that professional practitioners should provide intensive care for vulnerable terminally ill cancer patients. ..
- Bain K, Maxwell T, Strassels S, Whellan D. Hospice use among patients with heart failure. Am Heart J. 2009;158:118-25 pubmed publisherb>Hospices provide end-of-life care for heart failure (HF) patients, but hospice is underused for these patients, and its use has not been well described. We examined hospice use among 11,754 HF and 31,228 cancer patients...
- Ando M, Morita T, Ahn S, Marquez Wong F, Ide S. International comparison study on the primary concerns of terminally ill cancer patients in short-term life review interviews among Japanese, Koreans, and Americans. Palliat Support Care. 2009;7:349-55 pubmed publisher..We clarify the differences among the primary concerns from the Short-Term Life Reviews, arguing that we can improve the spiritual well-being of terminally ill cancer patients by focusing on the primary concerns within each country. ..
- Champagne M, Mongeau S. Effects of respite care services in a children's hospice: the parents' point of view. J Palliat Care. 2012;28:245-51 pubmed..Two characteristics of the respite program contribute to the positive effects of respite on families--the high quality of the care offered by a qualified staff, and the adequate length of respite stays. ..
- Morris J, Stewart A, Richardson J. Developing evidence-informed decision making in a hospice: an evaluation of organisational readiness. Int J Palliat Nurs. 2013;19:296-300 pubmed..The process used in this evaluation may be applicable to other areas of health care when assessing an organisation's readiness to incorporate evidence-informed decision making into policy and procedure. ..
- Johnson K, Elbert Avila K, Kuchibhatla M, Tulsky J. Characteristics and outcomes of hospice enrollees with dementia discharged alive. J Am Geriatr Soc. 2012;60:1638-44 pubmed publisher..Future research should examine other factors that may predict which hospice enrollees with dementia are likely to be discharged alive and their subsequent trajectory, such as functional status, comorbidities, and preferences for care. ..
- Rigby J, O Connor M. Retaining older staff members in care homes and hospices in England and Australia: the impact of environment. Int J Palliat Nurs. 2012;18:235-9 pubmed..During visits to sixteen care homes and inpatient hospices-seven in England and nine in Australia-informal discussions were held with staff in which they described the ..
- Chilvers R, Ramsey S. Implementing a clinical supervision programme for nurses in a hospice setting. Int J Palliat Nurs. 2009;15:615-9 pubmed..Ten years ago clinical supervision only existed for the community nurse specialists within a group of hospices in the south east of England managed under one clinical governance framework...
- Boyd D, Merkh K, Rutledge D, Randall V. Nurses' perceptions and experiences with end-of-life communication and care. Oncol Nurs Forum. 2011;38:E229-39 pubmed publisher..Strategies to enable nurses to have a stronger voice during this critical time for their patients are needed and, when developed, supported in practice to ensure that they are used. ..
- Empeño J, Raming N, Irwin S, Nelesen R, Lloyd L. The hospice caregiver support project: providing support to reduce caregiver stress. J Palliat Med. 2011;14:593-7 pubmed publisher..0043). The project results show that offering such services relieved caregiver stress, reduced use of respite, and reduced the number of respite days used. ..
- Guenther M. Healing: the power of presence. A reflection. J Pain Symptom Manage. 2011;41:650-4 pubmed publisher..This article is a reflection, based on my decades of experience, as contrasted with an academic exploration of the history, various traditions, or the methodology of healing. ..
- Gibbins J, McCoubrie R, Maher J, Wee B, Forbes K. Recognizing that it is part and parcel of what they do: teaching palliative care to medical students in the UK. Palliat Med. 2010;24:299-305 pubmed publisher..are aiming to help medical students overcome the same fears held by the lay public about death, dying and hospices, to convey that the palliative care approach is applicable to many patients and is part of every doctors' role, ..
- Demiris G, Parker Oliver D, Wittenberg Lyles E, Washington K, Doorenbos A, Rue T, et al. A noninferiority trial of a problem-solving intervention for hospice caregivers: in person versus videophone. J Palliat Med. 2012;15:653-60 pubmed publisher..Audiovisual feedback captured by technology may be sufficient, providing a solution to the geographic barriers that often inhibit the delivery of these types of interventions to older adults in hospice. ..
- Demiris G, Washington K, Oliver D, Wittenberg Lyles E. A study of information flow in hospice interdisciplinary team meetings. J Interprof Care. 2008;22:621-9 pubmed publisher..In 8.6% of all discussions the same facts were repeated three times or more. Based on the findings we propose guidelines that can address potential informational gaps and enhance team communication in hospice. ..
- Fan S, Lin W, Lin I. Psychosocial care and the role of clinical psychologists in palliative care. Am J Hosp Palliat Care. 2015;32:861-8 pubmed publisher..Clinical psychologists have beneficial contributions but have to modify psychosocial care based on the patients' needs and clinical situations. ..
- Chung K, Richards N, Burke S. Hospice agencies' hospital contract status and differing levels of hospice care. Am J Hosp Palliat Care. 2015;32:341-9 pubmed publisherIn response to a 2011 finding that approximately 27% of Medicare-certified hospices do not provide a single day of general inpatient care (GIP), the authors explored the extent to which hospices have contracts with hospitals for GIP...
- Allen S, Chapman Y, O Connor M, Francis K. The evolution of palliative care and the relevance to residential aged care: understanding the past to inform the future. Collegian. 2008;15:165-71 pubmed..This paper acknowledges dying and death as occurring in residential aged care facilities, illuminating the advantages of adopting a palliative approach and offers recommendations. ..
- Grabowski D, Huskamp H, Stevenson D, Keating N. Ownership status and home health care performance. J Aging Soc Policy. 2009;21:130-43 pubmed publisher..These results highlight the importance of organizational and payment factors in the delivery of home health care services. ..
- Suh S, Choi Y, Yeom C, Kwak S, Yoon H, Kim D, et al. Interleukin-6 but not tumour necrosis factor-alpha predicts survival in patients with advanced cancer. Support Care Cancer. 2013;21:3071-7 pubmed publisher..IL-6 level can be a useful indicator of survival time of patients with advanced cancer at the very end of life. In contrast, the prognostic role of TNF-? requires further study. ..
- Unroe K, Greiner M, Hernandez A, Whellan D, Kaul P, Schulman K, et al. Resource use in the last 6 months of life among medicare beneficiaries with heart failure, 2000-2007. Arch Intern Med. 2011;171:196-203 pubmed publisher..However, the use of hospice services also increased markedly, representing a shift in patterns of care at the end of life. ..
- Jenkins T, Chapman K, Ritchie C, Arnett D, McGwin G, Cofield S, et al. Hospice use in Alabama, 2002-2005. J Pain Symptom Manage. 2011;41:374-82 pubmed publisher..linked death certificates to the hospice administering care using state-mandated listings of deaths reported by hospices. Additionally, each decedent's residence at death was geocoded and area-level socioeconomic status (SES) measures ..
- Lin R, Levine R, Scanlan B, Scanlon B. Evolution of end-of-life care at United States hospitals in the new millennium. J Palliat Med. 2012;15:592-601 pubmed publisher..A growing trend toward offering and adopting hospice care upon discharge from US hospitals will likely impact health care finance and quality of care measures. ..
- Taylor J, Brown A, Prescott L, Sun C, Ramondetta L, Bodurka D. Dying well: How equal is end of life care among gynecologic oncology patients?. Gynecol Oncol. 2016;140:295-300 pubmed publisher..009) even if enrolled in hospice (12% v. 31%, p=0.007). Significant racial disparities in hospice enrollment and PoA/LW documentation were seen in GO patients. This warrants further study to identify barriers to use of EoL resources. ..