PARTICIPATION OF CHILDREN WITH PHYSICAL DISABILITIES

Summary

Principal Investigator: Mary C Law
Affiliation: McMaster University
Country: Canada
Abstract: DESCRIPTION (adapted from investigator's abstract): Childhood physical disability refers to intrinsic biological or acquired conditions (e.g., cerebral palsy, spina bifida, traumatic brain injury, spinal cord injury, amputation) that cause impairments which result in disability and limited participation in day-to-day activities. As children grow and develop, there are many factors within the child, his or her family and the environment that have the potential to influence participation in the everyday activities of childhood. It is difficult to plan interventions to enhance participation without knowledge about which factors are the most important in what is, undoubtedly, a complex set of relationships. The proposed project, from the Neurodevelopmental Clinical Research Unit (NCRU) at McMaster University, is a longitudinal study of children with physical disabilities aged 5- 13 years to determine the child, family and environmental factors that enhance participation in the formal and informal activities of childhood. Innovative methodologies (structural equation modeling and a cross-sequential design) will be used to evaluate the relative contribution of child, family and environmental factors in determining participation of children with long-term, non-progressive physical conditions associated with physical functional limitations in day-to-day activities.
Funding Period: 2000-06-01 - 2004-05-31
more information: NIH RePORT

Top Publications

  1. ncbi Psychosocial determinants of out of school activity participation for children with and without physical disabilities
    Gillian King
    1Bloorview Research Institute, Toronto, Ontario, Canada
    Phys Occup Ther Pediatr 33:384-404. 2013
  2. pmc Health-related quality of life of children with physical disabilities: a longitudinal study
    Mary Law
    School of Rehabilitation Science, McMaster University, Hamilton, Canada
    BMC Pediatr 14:26. 2014
  3. doi Out-of-school time activity participation profiles of children with physical disabilities: a cluster analysis
    G King
    Bloorview Research Institute, Toronto, Canada
    Child Care Health Dev 36:726-41. 2010
  4. ncbi Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PAC
    G A King
    Thames Valley Children s Centre, London, ON, Canada
    Child Care Health Dev 33:28-39. 2007
  5. ncbi Perceived environmental barriers to recreational, community, and school participation for children and youth with physical disabilities
    Mary Law
    CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada
    Arch Phys Med Rehabil 88:1636-42. 2007

Scientific Experts

Detail Information

Publications6

  1. ncbi Psychosocial determinants of out of school activity participation for children with and without physical disabilities
    Gillian King
    1Bloorview Research Institute, Toronto, Ontario, Canada
    Phys Occup Ther Pediatr 33:384-404. 2013
    ..It was concluded that psychosocial variables play an important role in children's enjoyment and intensity of participation in leisure activities...
  2. pmc Health-related quality of life of children with physical disabilities: a longitudinal study
    Mary Law
    School of Rehabilitation Science, McMaster University, Hamilton, Canada
    BMC Pediatr 14:26. 2014
    ..The purpose of this research was to 1) describe overall patterns of HRQoL, 2) examine changes in parent's perceptions of child's HRQoL across 18 months and 3) explore factors that predict these changes...
  3. doi Out-of-school time activity participation profiles of children with physical disabilities: a cluster analysis
    G King
    Bloorview Research Institute, Toronto, Canada
    Child Care Health Dev 36:726-41. 2010
    ..To determine out-of-school activity participation profiles of school-aged children with physical disabilities...
  4. ncbi Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PAC
    G A King
    Thames Valley Children s Centre, London, ON, Canada
    Child Care Health Dev 33:28-39. 2007
    ..girls, and children in various age groups. The information substantiates the construct validity of the measures. The clinical and research utility of the measures are discussed...
  5. ncbi Perceived environmental barriers to recreational, community, and school participation for children and youth with physical disabilities
    Mary Law
    CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada
    Arch Phys Med Rehabil 88:1636-42. 2007
    ..To comprehensively describe parent perceptions of environmental barriers to recreational, community, and school participation for children with physical disabilities...