Paul Wicks

Summary

Publications

  1. doi Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com)
    Paul Wicks
    Research and Development, PatientsLikeMe Inc, Cambridge, Massachusetts, USA
    Mov Disord 24:1085-8. 2009
  2. pmc 'Trust but verify'--five approaches to ensure safe medical apps
    Paul Wicks
    155 2nd Street, PatientsLikeMe, Cambridge, MA, 02141, USA
    BMC Med 13:205. 2015
  3. pmc Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform
    Viet Thi Tran
    Department of General Medicine, Paris Diderot University, Paris, France
    BMC Med 12:109. 2014
  4. pmc Could digital patient communities be the launch pad for patient-centric trial design?
    Paul Wicks
    PatientsLikeMe, 155 2nd Street, Cambridge, MA 02141, USA
    Trials 15:172. 2014
  5. pmc Quality of life in organ transplant recipients participating in an online transplant community
    Paul Wicks
    PatientsLikeMe, Inc, 155 Second St, Cambridge, MA, 02141, USA
    Patient 7:73-84. 2014
  6. pmc The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community
    Paul Wicks
    PatientsLikeMe Inc, 155 Second Street, Cambridge, MA 02141, USA
    Health Qual Life Outcomes 10:70. 2012
  7. pmc Hypothesis: higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions
    Paul Wicks
    PatientsLikeMe, Research and Development, Cambridge, Massachusetts 02141, USA
    Amyotroph Lateral Scler 13:251-3. 2012
  8. doi Perceived benefits of sharing health data between people with epilepsy on an online platform
    Paul Wicks
    PatientsLikeMe Inc, Cambridge, MA 02141, USA
    Epilepsy Behav 23:16-23. 2012
  9. doi Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm
    Paul Wicks
    Research and Development, PatientsLikeMe Inc, Cambridge, Massachusetts, USA
    Nat Biotechnol 29:411-4. 2011
  10. pmc Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)
    Paul Wicks
    PatientsLikeMe, Research and Development, Cambridge, MA 02141, USA
    J Med Internet Res 13:e12. 2011

Collaborators

Detail Information

Publications17

  1. doi Pathological gambling amongst Parkinson's disease and ALS patients in an online community (PatientsLikeMe.com)
    Paul Wicks
    Research and Development, PatientsLikeMe Inc, Cambridge, Massachusetts, USA
    Mov Disord 24:1085-8. 2009
    ..Thus, the higher prevalence of compulsive behavior in PD may relate to damaged reward pathways or medication rather than to the effects of living with a chronic progressive neurological disorder per se...
  2. pmc 'Trust but verify'--five approaches to ensure safe medical apps
    Paul Wicks
    155 2nd Street, PatientsLikeMe, Cambridge, MA, 02141, USA
    BMC Med 13:205. 2015
    ..Please see related articles: http://dx.doi.org/10.1186/s12916-015-0444-y , http://www.biomedcentral.com/1741-7015/13/106 and http://www.biomedcentral.com/1741-7015/13/58...
  3. pmc Adaptation and validation of the Treatment Burden Questionnaire (TBQ) in English using an internet platform
    Viet Thi Tran
    Department of General Medicine, Paris Diderot University, Paris, France
    BMC Med 12:109. 2014
    ..Here, we aimed to evaluate the validity and reliability of an English version of the TBQ, a scale that was originally developed in French...
  4. pmc Could digital patient communities be the launch pad for patient-centric trial design?
    Paul Wicks
    PatientsLikeMe, 155 2nd Street, Cambridge, MA 02141, USA
    Trials 15:172. 2014
    ..The patient is only a subject. Is it any wonder, then, that some patients have rejected the current medical paradigm and sought to find their own path? ..
  5. pmc Quality of life in organ transplant recipients participating in an online transplant community
    Paul Wicks
    PatientsLikeMe, Inc, 155 Second St, Cambridge, MA, 02141, USA
    Patient 7:73-84. 2014
    ..The PatientsLikeMe Organ Transplants online community allows patients to share detailed health information for research...
  6. pmc The multiple sclerosis rating scale, revised (MSRS-R): development, refinement, and psychometric validation using an online community
    Paul Wicks
    PatientsLikeMe Inc, 155 Second Street, Cambridge, MA 02141, USA
    Health Qual Life Outcomes 10:70. 2012
    ..Existing measures of functional status were inadequate, clinician-reported, focused on walking, and burdensome to complete. In response, we developed the Multiple Sclerosis Rating Scale (MSRS)...
  7. pmc Hypothesis: higher prenatal testosterone predisposes ALS patients to improved athletic performance and manual professions
    Paul Wicks
    PatientsLikeMe, Research and Development, Cambridge, Massachusetts 02141, USA
    Amyotroph Lateral Scler 13:251-3. 2012
    ..This hypothesis may serve as a starting point for debate and discussion over the nature of ALS risk factors, as well as generating a number of specific testable hypotheses that may yield insight into the genesis of the disease...
  8. doi Perceived benefits of sharing health data between people with epilepsy on an online platform
    Paul Wicks
    PatientsLikeMe Inc, Cambridge, MA 02141, USA
    Epilepsy Behav 23:16-23. 2012
    ..Controlled sharing of health data may have the potential to improve disease self-management of people with epilepsy...
  9. doi Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm
    Paul Wicks
    Research and Development, PatientsLikeMe Inc, Cambridge, Massachusetts, USA
    Nat Biotechnol 29:411-4. 2011
    ....
  10. pmc Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)
    Paul Wicks
    PatientsLikeMe, Research and Development, Cambridge, MA 02141, USA
    J Med Internet Res 13:e12. 2011
    ..Patients with multiple sclerosis (MS) may face barriers, such as treatment fatigue, memory problems, or side effects, that may influence their adherence to medication...
  11. pmc Sharing health data for better outcomes on PatientsLikeMe
    Paul Wicks
    PatientsLikeMe Inc, Research and Development, 155 2nd Street, Cambridge, MA 02141, USA
    J Med Internet Res 12:e19. 2010
    ..The goal of the website is to help patients answer the question: "Given my status, what is the best outcome I can hope to achieve, and how do I get there?"..
  12. doi Measuring function in advanced ALS: validation of ALSFRS-EX extension items
    P Wicks
    PatientsLikeMe Inc, Research and Development, Cambridge, MA 02142, USA
    Eur J Neurol 16:353-9. 2009
    ..There is a research need to monitor patient function at the end of life, particularly in the face of severe impairment or 'locked in syndrome'...
  13. pmc The potential research impact of patient reported outcomes on osteogenesis imperfecta
    Catherine A Brownstein
    PatientsLikeMe Research and Development, 155 2nd St, Cambridge, MA 02141, USA
    Clin Orthop Relat Res 468:2581-5. 2010
    ..Because treatment is not standardized and is often experimental, information on the success of different methods is usually not available or well documented...
  14. doi New approach for analyzing self-reporting of insomnia symptoms reveals a high rate of comorbid insomnia across a wide spectrum of chronic diseases
    Bozena Katic
    PatientsLikeMe Inc, Cambridge, MA, USA Electronic address
    Sleep Med 16:1332-41. 2015
    ..Insomnia is increasingly recognized to be comorbid with one or more medical conditions. This study used an online research platform to characterize insomnia across different mental and physical conditions...
  15. pmc How common are ALS plateaus and reversals?
    Richard S Bedlack
    From the Department of Neurology R S B, Duke University and Durham VA Medical Center, Durham, NC PatientsLikeMe T V, P W, J H, Cambridge, MA Massachusetts General Hospital E S, R S, E A M, D S, M C, A s, Boston and Harvard Medical School E A M, Boston, MA
    Neurology 86:808-12. 2016
    ..To determine the frequency of amyotrophic lateral sclerosis (ALS) plateaus and reversals in the Pooled Resource Open-Access ALS Clinical Trials (PRO-ACT) database...
  16. pmc Evaluation of an online platform for multiple sclerosis research: patient description, validation of severity scale, and exploration of BMI effects on disease course
    Riley Bove
    Program in Translational NeuroPsychiatric Genomics, Department of Neurology, Institute for the Neurosciences, Brigham and Women s Hospital, Boston, Massachusetts, United States of America
    PLoS ONE 8:e59707. 2013
    ..com (PLM), for research in multiple sclerosis (MS). An investigation of the role of body mass index (BMI) on MS disease course was conducted to illustrate the utility of the platform...