J K Williams

Summary

Affiliation: University of Iowa
Country: USA

Publications

  1. pmc Researcher and institutional review board chair perspectives on incidental findings in genomic research
    Janet K Williams
    College of Nursing, The University of Iowa, Iowa City, Iowa 52242, USA
    Genet Test Mol Biomarkers 16:508-13. 2012
  2. ncbi request reprint Adults seeking presymptomatic gene testing for Huntington disease
    J K Williams
    University of Iowa, Iowa City, USA
    Image J Nurs Sch 31:109-14. 1999
  3. ncbi request reprint Ethics, policy, and educational issues in genetic testing
    Janet K Williams
    The University of Iowa, 338 Nursing Building, Iowa City, IA 52242, USA
    J Nurs Scholarsh 38:119-25. 2006
  4. pmc The emotional experiences of family carers in Huntington disease
    Janet K Williams
    College of Nursing, The University of Iowa, USA
    J Adv Nurs 65:789-98. 2009
  5. doi request reprint Caregiving by teens for family members with Huntington disease
    Janet K Williams
    The University of Iowa, Iowa City, IA 52242, USA
    J Fam Nurs 15:273-94. 2009
  6. pmc Development of the Huntington disease family concerns and strategies survey from focus group data
    Janet K Williams
    College of Nursing, University of Iowa, Iowa City, IA 52242, USA
    J Nurs Meas 18:83-99. 2010
  7. ncbi request reprint Advancing genetic nursing knowledge
    Janet K Williams
    College of Nursing, The University of Iowa, Iowa City 52242, USA
    Nurs Outlook 52:73-9. 2004
  8. pmc Family carer personal concerns in Huntington disease
    Janet K Williams
    The University of Iowa, Iowa, USA
    J Adv Nurs 68:137-46. 2012
  9. ncbi request reprint Education for genetics and nursing practice
    Janet K Williams
    University of Iowa, Iowa City, IA 52242, USA
    AACN Clin Issues 13:492-500. 2002
  10. doi request reprint Strategies to prepare faculty to integrate genomics into nursing education programs
    Janet K Williams
    The University of Iowa, Iowa City, IA, USA
    J Nurs Scholarsh 43:231-8. 2011

Research Grants

  1. NURSING CDROM ON ETHICAL ISSUES OF GENETIC TESTING
    Janet Williams; Fiscal Year: 2002
  2. Family Health After Predictive HD Testing
    Janet Williams; Fiscal Year: 2004

Detail Information

Publications30

  1. pmc Researcher and institutional review board chair perspectives on incidental findings in genomic research
    Janet K Williams
    College of Nursing, The University of Iowa, Iowa City, Iowa 52242, USA
    Genet Test Mol Biomarkers 16:508-13. 2012
    ..Genomic research can produce findings unrelated to a study's aims. The purpose of this study was to examine researcher and Institutional Review Board (IRB) chair perspectives on genomic incidental findings (GIFs)...
  2. ncbi request reprint Adults seeking presymptomatic gene testing for Huntington disease
    J K Williams
    University of Iowa, Iowa City, USA
    Image J Nurs Sch 31:109-14. 1999
    ..Understanding expectations allows for more complete assessment and counseling before presymptomatic gene testing for genetic diseases...
  3. ncbi request reprint Ethics, policy, and educational issues in genetic testing
    Janet K Williams
    The University of Iowa, 338 Nursing Building, Iowa City, IA 52242, USA
    J Nurs Scholarsh 38:119-25. 2006
    ..Analyze ethics, public policy, and education issues that arise in the United States (US) and the United Kingdom (UK) when genomic information acquired as a result of genetic testing is introduced into healthcare services...
  4. pmc The emotional experiences of family carers in Huntington disease
    Janet K Williams
    College of Nursing, The University of Iowa, USA
    J Adv Nurs 65:789-98. 2009
    ..This paper is a report of a study conducted to examine the emotional experience of caregiving by family carers of people with Huntington disease and to describe strategies they used to deal with that experience...
  5. doi request reprint Caregiving by teens for family members with Huntington disease
    Janet K Williams
    The University of Iowa, Iowa City, IA 52242, USA
    J Fam Nurs 15:273-94. 2009
    ..Teens recognized the need for decisions but lacked the authority to make these decisions. Findings may be relevant for other teens who strive to meet caregiver and student roles and developmental tasks...
  6. pmc Development of the Huntington disease family concerns and strategies survey from focus group data
    Janet K Williams
    College of Nursing, University of Iowa, Iowa City, IA 52242, USA
    J Nurs Meas 18:83-99. 2010
    ..83 or above. The measure can be used to generate reliable and valid data to identify adult family members' health-related concerns and management strategies for themselves and persons with HD...
  7. ncbi request reprint Advancing genetic nursing knowledge
    Janet K Williams
    College of Nursing, The University of Iowa, Iowa City 52242, USA
    Nurs Outlook 52:73-9. 2004
  8. pmc Family carer personal concerns in Huntington disease
    Janet K Williams
    The University of Iowa, Iowa, USA
    J Adv Nurs 68:137-46. 2012
    ..To examine and compare the personal concerns of family members providing care for people with Huntington disease in the United Kingdom and the United States...
  9. ncbi request reprint Education for genetics and nursing practice
    Janet K Williams
    University of Iowa, Iowa City, IA 52242, USA
    AACN Clin Issues 13:492-500. 2002
    ..Genetic nursing education programs based on guidelines for integration of genetic knowledge into professional nursing practice are needed...
  10. doi request reprint Strategies to prepare faculty to integrate genomics into nursing education programs
    Janet K Williams
    The University of Iowa, Iowa City, IA, USA
    J Nurs Scholarsh 43:231-8. 2011
    ....
  11. ncbi request reprint Genetic counseling outcomes validation by genetics nurses in the UK and US
    J K Williams
    College of Nursing, University of Iowa, Iowa City, IA, USA
    J Nurs Scholarsh 33:369-74. 2001
    ..To validate genetic counseling outcomes with a sample of genetics nurses from the United Kingdom (UK), and to compare elements of genetic counseling outcomes with those from a sample of genetics nurses from the United States (US)...
  12. ncbi request reprint Genetic testing and mental health: the model of Huntington disease
    J K Williams
    The University of Iowa, College of Nursing, Iowa, USA
    Online J Issues Nurs 5:3. 2000
    ..Analysis of the impact of genetic knowledge on persons being tested for HD provides a model for the integration of emerging genetic information into mental health nursing practice for other mental health disorders...
  13. ncbi request reprint Psychosocial impact of predictive testing for Huntington disease on support persons
    J K Williams
    College of Nursing, The University of Iowa, Iowa City 52242 1211, USA
    Am J Med Genet 96:353-9. 2000
    ..Collaboration with health care providers may facilitate symptom management following testing...
  14. ncbi request reprint "No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease
    Janet K Williams
    College of Nursing, University of Iowa, Iowa City, Iowa 52242, USA
    Am J Med Genet B Neuropsychiatr Genet 144:636-41. 2007
    ..Findings further support the need for a more comprehensive assessment and management of early HD symptoms as well as support for family members...
  15. doi request reprint 'Information is information': a public perspective on incidental findings in clinical and research genome-based testing
    S Daack-Hirsch
    College of Nursing, The University of Iowa, Iowa City, IA, USA
    Clin Genet 84:11-8. 2013
    ..Broad public input is needed in order to understand and incorporate the public's perspective on management of incidental findings as disclosure guidelines, and policies are developed in clinical and research settings...
  16. pmc Challenges assessing clinical endpoints in early Huntington disease
    Jane S Paulsen
    Department of Psychiatry, University of Iowa Carver College of Medicine, Iowa City, Iowa 52242 1000, USA
    Mov Disord 25:2595-603. 2010
    ..We conclude that future clinical trials designed for very early disease will require the development of new and more sensitive measures of real-life function...
  17. pmc Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: a pilot study
    Anne L Ersig
    Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health Bethesda, Maryland, USA
    Genet Med 11:728-34. 2009
    ..Little is known about colonoscopy completion in families suspected of having hereditary nonpolyposis colorectal cancer but without identified mutations...
  18. ncbi request reprint Disclosing genetic test results to family members
    Rebekah J Hamilton
    University of Iowa, Iowa City, IA, USA
    J Nurs Scholarsh 37:18-24. 2005
    ..To describe the experiences of disclosing genetic test results to biological family members among people tested for Huntington's disease (HD) or hereditary breast and ovarian cancer (HBOC)...
  19. pmc Pregnancy as foreground in cystic fibrosis carrier testing decisions in primary care
    Kathleen J H Sparbel
    College of Nursing, The University of Iowa, Iowa City, Iowa, USA
    Genet Test Mol Biomarkers 13:133-42. 2009
    ..Further understanding of factors influencing the genetic testing decision-making process is needed. Offering CFCT prior to conception is advocated...
  20. pmc Experiences of teens living in the shadow of Huntington Disease
    Kathleen J H Sparbel
    College of Nursing, The University of Iowa, Iowa City, IA, USA
    J Genet Couns 17:327-35. 2008
    ..Recognizing patterns of teen experiences may help health care providers develop strategies to support coping by teens in HD families...
  21. pmc Couples' attributions for work function changes in prodromal Huntington disease
    Nancy R Downing
    University of Iowa College of Nursing, Iowa City, IA, USA
    J Genet Couns 19:343-52. 2010
    ..In persons with prodromal HD the relationship between attributions and use of coping strategies for symptoms that interfere with job functioning is unknown...
  22. ncbi request reprint From ecology to base pairs: nursing and genetic science
    J K Williams
    Gerontological Nursing Interventions Research Center at the University of Iowa, Iowa City 52242, USA
    Biol Res Nurs 3:4-12. 2001
    ..This article presents an analysis of the evolution of genetic nursing research and challengesfor the future...
  23. pmc Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease
    Elizabeth Penziner
    Department of Psychiatry, University of Iowa, Iowa City, Iowa, USA
    Am J Med Genet B Neuropsychiatr Genet 147:320-5. 2008
    ..Discrimination concerns remain high in this sample and point to the need for more information to determine the extent and scope of the problem...
  24. pmc In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study
    Janet K Williams
    College of Nursing, University of Iowa, Iowa City, IA 52242, USA
    Am J Med Genet B Neuropsychiatr Genet 153:1150-9. 2010
    ..Findings document that reports of genetic discrimination are highly individual, and both policy as well as interpersonal factors contribute to the outcome of potentially discriminating events...
  25. ncbi request reprint Toward a biopsychosocial model for 21st-century genetics
    John S Rolland
    Center for Family Health, University of Chicago Pritzker School of Medicine, USA
    Fam Process 44:3-24. 2005
    ..Its utility is discussed for research, preventive screening, family assessment, treatment planning, and service delivery in a wide range of healthcare settings...
  26. ncbi request reprint Risk reduction and health promotion behaviors following genetic testing for adult-onset disorders
    Theresa A Beery
    Institute for Nursing Research, University of Cincinnati College of Nursing, Cincinnati, Ohio 45221 0038, USA
    Genet Test 11:111-23. 2007
    ..Insights gleaned from this review are discussed as a basis for planning monitoring of health promotion and risk-reduction behaviors for genetic testing for present and future use...
  27. ncbi request reprint Nursing research linking genetics and health
    Janet K Williams
    Res Theory Nurs Pract 17:267-72. 2003
  28. ncbi request reprint Genetic testing and screening
    Dale Halsey Lea
    Southern Maine Genetics Services, Foundation for Blood Research, Scarborough, ME, USA
    Am J Nurs 102:36-43. 2002
  29. ncbi request reprint International collaboration on genomics education for nurses
    Elizabeth L Pestka
    Mayo Clinic College of Medicine, 200 First Street SW, Rochester, MN 55905, USA
    J Contin Educ Nurs 36:180-4. 2005
    ..Genomics education is relevant to nursing practice in all specialty areas and significant to the future of health care...
  30. ncbi request reprint U.S. genetics nurses in advanced practice
    Dale Halsey Lea
    Division of Genetics, Foundation for Blood Research, Scarborough, ME 04070 0190, USA
    J Nurs Scholarsh 38:213-8. 2006
    ..To describe characteristics and professional roles of genetics nurses in advanced practice...

Research Grants5

  1. NURSING CDROM ON ETHICAL ISSUES OF GENETIC TESTING
    Janet Williams; Fiscal Year: 2002
    ..Increased knowledge of ethical aspects of genetic testing will enable professional nurses to incorporate this knowledge into their professional nursing roles. ..
  2. Family Health After Predictive HD Testing
    Janet Williams; Fiscal Year: 2004
    ..This study will document the health care needs of family members of persons who receive a positive result from presymptomatic gene testing for an inherited degenerative neurologic disease. ..