J K Williams
Affiliation: University of Iowa
- Researcher and institutional review board chair perspectives on incidental findings in genomic researchJanet K Williams
College of Nursing, The University of Iowa, Iowa City, Iowa 52242, USA
Genet Test Mol Biomarkers 16:508-13. 2012..Genomic research can produce findings unrelated to a study's aims. The purpose of this study was to examine researcher and Institutional Review Board (IRB) chair perspectives on genomic incidental findings (GIFs)...
- Strategies to prepare faculty to integrate genomics into nursing education programsJanet K Williams
The University of Iowa, Iowa City, IA, USA
J Nurs Scholarsh 43:231-8. 2011....
- Family carer personal concerns in Huntington diseaseJanet K Williams
The University of Iowa, Iowa, USA
J Adv Nurs 68:137-46. 2012..To examine and compare the personal concerns of family members providing care for people with Huntington disease in the United Kingdom and the United States...
- Development of the Huntington disease family concerns and strategies survey from focus group dataJanet K Williams
College of Nursing, University of Iowa, Iowa City, IA 52242, USA
J Nurs Meas 18:83-99. 2010..83 or above. The measure can be used to generate reliable and valid data to identify adult family members' health-related concerns and management strategies for themselves and persons with HD...
- Caregiving by teens for family members with Huntington diseaseJanet K Williams
The University of Iowa, Iowa City, IA 52242, USA
J Fam Nurs 15:273-94. 2009..Teens recognized the need for decisions but lacked the authority to make these decisions. Findings may be relevant for other teens who strive to meet caregiver and student roles and developmental tasks...
- The emotional experiences of family carers in Huntington diseaseJanet K Williams
College of Nursing, The University of Iowa, USA
J Adv Nurs 65:789-98. 2009..This paper is a report of a study conducted to examine the emotional experience of caregiving by family carers of people with Huntington disease and to describe strategies they used to deal with that experience...
- "No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington diseaseJanet K Williams
College of Nursing, University of Iowa, Iowa City, Iowa 52242, USA
Am J Med Genet B Neuropsychiatr Genet 144:636-41. 2007..Findings further support the need for a more comprehensive assessment and management of early HD symptoms as well as support for family members...
- Ethics, policy, and educational issues in genetic testingJanet K Williams
The University of Iowa, 338 Nursing Building, Iowa City, IA 52242, USA
J Nurs Scholarsh 38:119-25. 2006..Analyze ethics, public policy, and education issues that arise in the United States (US) and the United Kingdom (UK) when genomic information acquired as a result of genetic testing is introduced into healthcare services...
- Advancing genetic nursing knowledgeJanet K Williams
College of Nursing, The University of Iowa, Iowa City 52242, USA
Nurs Outlook 52:73-9. 2004
- Adults seeking presymptomatic gene testing for Huntington diseaseJ K Williams
University of Iowa, Iowa City, USA
Image J Nurs Sch 31:109-14. 1999..Understanding expectations allows for more complete assessment and counseling before presymptomatic gene testing for genetic diseases...
- Psychosocial impact of predictive testing for Huntington disease on support personsJ K Williams
College of Nursing, The University of Iowa, Iowa City 52242 1211, USA
Am J Med Genet 96:353-9. 2000..Collaboration with health care providers may facilitate symptom management following testing...
- Genetic testing and mental health: the model of Huntington diseaseJ K Williams
The University of Iowa, College of Nursing, Iowa, USA
Online J Issues Nurs 5:3. 2000..Analysis of the impact of genetic knowledge on persons being tested for HD provides a model for the integration of emerging genetic information into mental health nursing practice for other mental health disorders...
- Genetic counseling outcomes validation by genetics nurses in the UK and USJ K Williams
College of Nursing, University of Iowa, Iowa City, IA, USA
J Nurs Scholarsh 33:369-74. 2001..To validate genetic counseling outcomes with a sample of genetics nurses from the United Kingdom (UK), and to compare elements of genetic counseling outcomes with those from a sample of genetics nurses from the United States (US)...
- Education for genetics and nursing practiceJanet K Williams
University of Iowa, Iowa City, IA 52242, USA
AACN Clin Issues 13:492-500. 2002..Genetic nursing education programs based on guidelines for integration of genetic knowledge into professional nursing practice are needed...
- Challenges assessing clinical endpoints in early Huntington diseaseJane S Paulsen
Department of Psychiatry, University of Iowa Carver College of Medicine, Iowa City, Iowa 52242 1000, USA
Mov Disord 25:2595-603. 2010..We conclude that future clinical trials designed for very early disease will require the development of new and more sensitive measures of real-life function...
- Communication, encouragement, and cancer screening in families with and without mutations for hereditary nonpolyposis colorectal cancer: a pilot studyAnne L Ersig
Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health Bethesda, Maryland, USA
Genet Med 11:728-34. 2009..Little is known about colonoscopy completion in families suspected of having hereditary nonpolyposis colorectal cancer but without identified mutations...
- Pregnancy as foreground in cystic fibrosis carrier testing decisions in primary careKathleen J H Sparbel
College of Nursing, The University of Iowa, Iowa City, Iowa, USA
Genet Test Mol Biomarkers 13:133-42. 2009..Further understanding of factors influencing the genetic testing decision-making process is needed. Offering CFCT prior to conception is advocated...
- Experiences of teens living in the shadow of Huntington DiseaseKathleen J H Sparbel
College of Nursing, The University of Iowa, Iowa City, IA, USA
J Genet Couns 17:327-35. 2008..Recognizing patterns of teen experiences may help health care providers develop strategies to support coping by teens in HD families...
- Disclosing genetic test results to family membersRebekah J Hamilton
University of Iowa, Iowa City, IA, USA
J Nurs Scholarsh 37:18-24. 2005..To describe the experiences of disclosing genetic test results to biological family members among people tested for Huntington's disease (HD) or hereditary breast and ovarian cancer (HBOC)...
- Couples' attributions for work function changes in prodromal Huntington diseaseNancy R Downing
University of Iowa College of Nursing, Iowa City, IA, USA
J Genet Couns 19:343-52. 2010..In persons with prodromal HD the relationship between attributions and use of coping strategies for symptoms that interfere with job functioning is unknown...
- From ecology to base pairs: nursing and genetic scienceJ K Williams
Gerontological Nursing Interventions Research Center at the University of Iowa, Iowa City 52242, USA
Biol Res Nurs 3:4-12. 2001..This article presents an analysis of the evolution of genetic nursing research and challengesfor the future...
- In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD studyJanet K Williams
College of Nursing, University of Iowa, Iowa City, IA 52242, USA
Am J Med Genet B Neuropsychiatr Genet 153:1150-9. 2010..Findings document that reports of genetic discrimination are highly individual, and both policy as well as interpersonal factors contribute to the outcome of potentially discriminating events...
- Perceptions of discrimination among persons who have undergone predictive testing for Huntington's diseaseElizabeth Penziner
Department of Psychiatry, University of Iowa, Iowa City, Iowa, USA
Am J Med Genet B Neuropsychiatr Genet 147:320-5. 2008..Discrimination concerns remain high in this sample and point to the need for more information to determine the extent and scope of the problem...
- Toward a biopsychosocial model for 21st-century geneticsJohn S Rolland
Center for Family Health, University of Chicago Pritzker School of Medicine, USA
Fam Process 44:3-24. 2005..Its utility is discussed for research, preventive screening, family assessment, treatment planning, and service delivery in a wide range of healthcare settings...
- Risk reduction and health promotion behaviors following genetic testing for adult-onset disordersTheresa A Beery
Institute for Nursing Research, University of Cincinnati College of Nursing, Cincinnati, Ohio 45221 0038, USA
Genet Test 11:111-23. 2007..Insights gleaned from this review are discussed as a basis for planning monitoring of health promotion and risk-reduction behaviors for genetic testing for present and future use...
- U.S. genetics nurses in advanced practiceDale Halsey Lea
Division of Genetics, Foundation for Blood Research, Scarborough, ME 04070 0190, USA
J Nurs Scholarsh 38:213-8. 2006..To describe characteristics and professional roles of genetics nurses in advanced practice...
- Nursing research linking genetics and healthJanet K Williams
Res Theory Nurs Pract 17:267-72. 2003
- International collaboration on genomics education for nursesElizabeth L Pestka
Mayo Clinic College of Medicine, 200 First Street SW, Rochester, MN 55905, USA
J Contin Educ Nurs 36:180-4. 2005..Genomics education is relevant to nursing practice in all specialty areas and significant to the future of health care...
- Genetic testing and screeningDale Halsey Lea
Southern Maine Genetics Services, Foundation for Blood Research, Scarborough, ME, USA
Am J Nurs 102:36-43. 2002
- NURSING CDROM ON ETHICAL ISSUES OF GENETIC TESTINGJanet Williams; Fiscal Year: 2002..Increased knowledge of ethical aspects of genetic testing will enable professional nurses to incorporate this knowledge into their professional nursing roles. ..
- Family Health After Predictive HD TestingJanet Williams; Fiscal Year: 2004..This study will document the health care needs of family members of persons who receive a positive result from presymptomatic gene testing for an inherited degenerative neurologic disease. ..