Benjamin Wilfond

Summary

Affiliation: University of Washington
Country: USA

Publications

  1. doi request reprint Engaging children in genomics research: decoding the meaning of assent in research
    Benjamin S Wilfond
    Treuman Katz Center for Pediatric Bioethics, Seattle Children s Research Institute, Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA
    Genet Med 14:437-43. 2012
  2. doi request reprint From genetics to genomics: ethics, policy, and parental decision-making
    Benjamin Wilfond
    Treuman Katz Center for Pediatric Bioethics, Seattle Children s Hospital, Seattle, WA 98101, USA
    J Pediatr Psychol 34:639-47. 2009
  3. ncbi request reprint Ethical considerations about observational research in children
    Benjamin Wilfond
    Treuman Katz Center for Pediatric Bioethics, Seattle Children s Hospital, Washington, USA
    J Trauma 63:S146-51; discussion S152-4. 2007
  4. doi request reprint Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation
    Maureen Kelley
    University of Washington School of Medicine, Seattle, WA 98101, USA
    Am J Bioeth 8:37-9; discussion W4-6. 2008
  5. ncbi request reprint Genetic and environmental risk assessment for colorectal cancer risk in primary care practice settings: a pilot study
    Ronald E Myers
    Department of Medical Oncology, Jefferson Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania 19107, USA
    Genet Med 9:378-84. 2007
  6. pmc Reporting genetic results in research studies: summary and recommendations of an NHLBI working group
    Ebony B Bookman
    Division of Epidemiology and Clinical Applications, National Heart, Lung, and Blood Institute, Bethesda, Maryland 20892 7934, USA
    Am J Med Genet A 140:1033-40. 2006
  7. ncbi request reprint ATS Consensus Statement: Research opportunities and challenges in pediatric pulmonology
    Larry C Lands
    Am J Respir Crit Care Med 172:776-80. 2005
  8. ncbi request reprint Institutional review board practices regarding assent in pediatric research
    Amy Whittle
    Department of Clinical Bioethics National Institutes of Health, Bethesda, Maryland 20892 1156, USA
    Pediatrics 113:1747-52. 2004
  9. ncbi request reprint How do institutional review boards apply the federal risk and benefit standards for pediatric research?
    Seema Shah
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    JAMA 291:476-82. 2004
  10. ncbi request reprint When do the federal regulations allow placebo-controlled trials in children?
    Franklin G Miller
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, Maryland, USA
    J Pediatr 142:102-7. 2003

Collaborators

Detail Information

Publications12

  1. doi request reprint Engaging children in genomics research: decoding the meaning of assent in research
    Benjamin S Wilfond
    Treuman Katz Center for Pediatric Bioethics, Seattle Children s Research Institute, Department of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA
    Genet Med 14:437-43. 2012
    ....
  2. doi request reprint From genetics to genomics: ethics, policy, and parental decision-making
    Benjamin Wilfond
    Treuman Katz Center for Pediatric Bioethics, Seattle Children s Hospital, Seattle, WA 98101, USA
    J Pediatr Psychol 34:639-47. 2009
    ..We argue that respect for parental decision-making should play a larger role in shaping pediatric genetic testing practices, and play a similar role regarding decisions to use emerging genomic technologies...
  3. ncbi request reprint Ethical considerations about observational research in children
    Benjamin Wilfond
    Treuman Katz Center for Pediatric Bioethics, Seattle Children s Hospital, Washington, USA
    J Trauma 63:S146-51; discussion S152-4. 2007
    ..However, if such adults can not be located, when the research has sufficient social value, continual use of the data for ongoing analysis is appropriate...
  4. doi request reprint Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation
    Maureen Kelley
    University of Washington School of Medicine, Seattle, WA 98101, USA
    Am J Bioeth 8:37-9; discussion W4-6. 2008
  5. ncbi request reprint Genetic and environmental risk assessment for colorectal cancer risk in primary care practice settings: a pilot study
    Ronald E Myers
    Department of Medical Oncology, Jefferson Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania 19107, USA
    Genet Med 9:378-84. 2007
    ..A pilot study was conducted to assess the uptake of, and response to, testing for colorectal cancer risk among average risk patients in primary care practice settings...
  6. pmc Reporting genetic results in research studies: summary and recommendations of an NHLBI working group
    Ebony B Bookman
    Division of Epidemiology and Clinical Applications, National Heart, Lung, and Blood Institute, Bethesda, Maryland 20892 7934, USA
    Am J Med Genet A 140:1033-40. 2006
    ..Finally, the Working Group recommended procedures for reporting genetic research results and encouraged increased efforts to create uniform guidelines for this activity...
  7. ncbi request reprint ATS Consensus Statement: Research opportunities and challenges in pediatric pulmonology
    Larry C Lands
    Am J Respir Crit Care Med 172:776-80. 2005
  8. ncbi request reprint Institutional review board practices regarding assent in pediatric research
    Amy Whittle
    Department of Clinical Bioethics National Institutes of Health, Bethesda, Maryland 20892 1156, USA
    Pediatrics 113:1747-52. 2004
    ..To assess how Institutional Review Boards (IRBs) implement the assent requirement for research with children...
  9. ncbi request reprint How do institutional review boards apply the federal risk and benefit standards for pediatric research?
    Seema Shah
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, MD 20892, USA
    JAMA 291:476-82. 2004
    ..Despite this reliance on IRBs, no data exist on how IRBs apply the risk and benefit categories for pediatric research...
  10. ncbi request reprint When do the federal regulations allow placebo-controlled trials in children?
    Franklin G Miller
    Department of Clinical Bioethics, National Institutes of Health, Bethesda, Maryland, USA
    J Pediatr 142:102-7. 2003
  11. ncbi request reprint Descriptions of benefits and risks in consent forms for phase 1 oncology trials
    Sam Horng
    Department of Clinical Bioethics, Warren G Magnuson Clinical Center, National Institutes of Health, Bethesda, MD 20892 1156, USA
    N Engl J Med 347:2134-40. 2002
    ..Ethicists have suggested that written consent forms encourage participants in phase 1 cancer trials to expect benefit from the experimental agent and to overlook serious risks...
  12. ncbi request reprint Does the current consent process minimize the risks of genetics research?
    Dave Wendler
    Department of Clinical Bioethics, Warren G Magnuson Clinical Center, National Institutes of Health, Bethesda, MD 20892 1156, USA
    Am J Med Genet 113:258-62. 2002
    ....