Affiliation: University of Wisconsin
- When the cystic fibrosis label does not fit: a modified uncertainty theoryAudrey Tluczek
University of Wisconsin Madison, Madison, WI 53792, USA
Qual Health Res 20:209-23. 2010..We discuss implications of the model for future research and clinical practice relative to genetic testing...
- CE: Genomic Breakthroughs in the Diagnosis and Treatment of Cystic FibrosisStephanie J Nakano
Stephanie J Nakano is a staff nurse in the Department of Nursing and Patient Services and works in the pediatric ICU of American Family Children s Hospital, Madison, WI Audrey Tluczek is an associate professor at the University of Wisconsin Madison School of Nursing Contact author Audrey Tluczek, The authors and planners have disclosed no potential conflicts of interest, financial or otherwise
Am J Nurs 114:36-43. 2014..This article reviews empirical research on CF, filling a critical gap in the nursing literature regarding recent findings in the study of CF genetics and their implications for patient teaching, diagnosis, and treatment...
- Long-term follow-up of cystic fibrosis newborn screening: psychosocial functioning of adolescents and young adultsAudrey Tluczek
University of Wisconsin, School of Nursing, Madison, WI, United States University of Wisconsin, School of Medicine and Public Health, Department of Pediatrics, Madison, WI, United States Electronic address
J Cyst Fibros 13:227-34. 2014..Long-term psychosocial outcomes of cystic fibrosis (CF) patients diagnosed through newborn screening remain unknown...
- Health-related quality of life in children and adolescents with cystic fibrosis: convergent validity with parent-reports and objective measures of pulmonary healthAudrey Tluczek
University of Wisconsin School of Nursing, Madison, WI, USA
J Dev Behav Pediatr 34:252-61. 2013..This study examined the convergent validity of health-related quality of life (HRQOL) reported by patients with cystic fibrosis compared with their parents' reports and objective pulmonary measures across 3 time points...
- Informing parents about positive newborn screen results: parents' recommendationsNatalie Salm
University of Wisconsin, School of Nursing, Madison, WI 53705, USA
J Child Health Care 16:367-81. 2012..We conclude that provider-patient communication approach and channel can exacerbate or alleviate parents' negative reactions to positive NBS results...
- Relationships among health-related quality of life, pulmonary health, and newborn screening for cystic fibrosisAudrey Tluczek
School of Nursing, University of Wisconsin, Madison, WI 53792, USA
Chest 140:170-7. 2011..The objective of this study was to examine relationships between pulmonary health and health-related quality of life (HRQOL) in patients with cystic fibrosis (CF) evaluated longitudinally in the Wisconsin Newborn Screening Project...
- A tailored approach to family-centered genetic counseling for cystic fibrosis newborn screening: the Wisconsin modelAudrey Tluczek
University of Wisconsin, School of Nursing, 600 Highland Ave K6 346, Madison, WI 53792, USA
J Genet Couns 20:115-28. 2011..This promising new model is the first to establish a theory-driven, evidence-based standard for genetic counseling in the context of NBS for CF. Additional research will evaluate the model's efficacy in clinical practice...
- Psychosocial consequences of false-positive newborn screens for cystic fibrosisAudrey Tluczek
Department of Pediatrics, University of Wisconsin, School of Medicine and Public Health, Madison, Wisconsin, USA
Qual Health Res 21:174-86. 2011....
- Task-oriented and bottle feeding adversely affect the quality of mother-infant interactions after abnormal newborn screensAudrey Tluczek
School of Nursing, University of Wisconsin, Madison, Wisconsin 53792, USA
J Dev Behav Pediatr 31:414-26. 2010..To examine effects of newborn screening and neonatal diagnosis on the quality of mother-infant interactions in the context of feeding...
- Newborn screening: an appeal for improved parent educationAudrey Tluczek
School of Nursing, University of Wisconsin, Madison, WI 53792, USA
J Perinat Neonatal Nurs 23:326-34. 2009....
- Support for the reliability and validity of a six-item state anxiety scale derived from the State-Trait Anxiety InventoryAudrey Tluczek
University of Wisconsin Madison, School of Nursing, Madison, WI 53792, USA
J Nurs Meas 17:19-28. 2009..90. It was concluded that the version containing items 1, 3, 6, 15, 16, and 17 of the State Anxiety scale was a reliable and valid instrument for this study sample...
- Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointmentAudrey Tluczek
Department of Psychiatry, University of Wisconsin, 6001 Research Park Blvd, Madison, WI 53719 1179, USA
Pediatrics 115:1692-703. 2005..The psychosocial effects on parents of infants with abnormal results in cystic fibrosis (CF) newborn screening (NBS) that uses genetic testing remain unclear...
- Newborn screening for cystic fibrosis: parents' preferences regarding counseling at the time of infants' sweat testAudrey Tluczek
School of Nursing, University of Wisconsin Madison, 600 Highland Ave, Madison, Wisconsin 53792, USA
J Genet Couns 15:277-91. 2006..Counseling that matched parents preferences reduced parents' distress while mismatched counseling tended to increase parents' worry about their infant...
- Factors associated with parental perception of child vulnerability 12 months after abnormal newborn screening resultsAudrey Tluczek
School of Nursing, University of Wisconsin Madison, 600 Highland Ave, Madison, WI 53792, USA
Res Nurs Health 34:389-400. 2011..The CH group did not differ significantly from the H group and had no paths to PPCV. Unexpectedly high documented illness frequency among infants who are CF carriers warrants further investigation...
- A qualitative secondary evaluation of statewide follow-up interviews for abnormal newborn screening results for cystic fibrosis and sickle cell hemoglobinopathyAlison La Pean
Center for Patient Care and Outcomes Research, Medical College of Wisconsin, Milwaukee, WI, USA
Genet Med 14:207-14. 2012....
- Associations between academic achievement and psychosocial variables in adolescents with cystic fibrosisAdam J Grieve
School of Medicine and Public Health, University of Wisconsin, Madison, USA
J Sch Health 81:713-20. 2011..This cross-sectional, correlational study examined the potential effects of CF on students' psychosocial and academic development...
- Nutritional status is associated with health-related quality of life in children with cystic fibrosis aged 9-19 yearsSuzanne M Shoff
University of Wisconsin College of Agriculture and Life Sciences, Department of Nutritional Sciences, 1415 Linden Drive, Madison, WI 53706, USA University of Wisconsin School of Nursing, K6 346 Clinical Sciences Center, 600 Highland Ave, Madison, WI 53792, USA University of Wisconsin School of Medicine and Public Health, Department of Pediatrics, K4 922 Clinical Sciences Center, 600 Highland Ave, Madison, WI 53792, USA University of Wisconsin School of Medicine and Public Health, Departments of Pediatrics and Population Health Sciences, WARF Building, Room 756, 610 Walnut St, Madison, WI 53726, USA
J Cyst Fibros 12:746-53. 2013..The impact of improved nutritional status on health-related quality of life (HRQOL) is unknown for children with cystic fibrosis (CF)...
- Psychotherapy for postpartum depression: a preliminary reportRoseanne Clark
University of Wisconsin Medical School, Department of Psychiatry, Madison, WI 53719, USA
Am J Orthopsychiatry 73:441-54. 2003..Clinical implications regarding the importance of early intervention for women experiencing major depression in the postpartum period and their families are discussed...
- Information flow after a positive newborn screening for cystic fibrosisJames Price Dillard
Department of Communication Arts and Science, Pennsylvania State University, University Park, Pennsylvania 16802, USA
J Pediatr 147:S94-7. 2005..To provide a model of the information processes instigated by a positive result on a newborn screening for cystic fibrosis and to analyze their implications for future research...
- The effect of disruptions during counseling on recall of genetic risk information: the case of cystic fibrosisJames Price Dillard
Department of Communication Arts and Sciences, Pennsylvania State University, University Park, PA, USA
J Genet Couns 16:179-90. 2007..Disruptions also produced the anticipated effect on conversation, but counter to expectations, interruptions of conversation flow was positively associated with knowledge at time 2...