Research Topics
| PAMELA L SANKARSummaryAffiliation: University of Pennsylvania Country: USA Publications
Research Grants
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Detail Information
Publications
Genetics. Toward a new vocabulary of human genetic variationPamela Sankar
Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104-3308, USA
Science 298:1337-8. 2002
How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United StatesPamela Sankar
Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA
Community Genet 9:78-86. 2006..To examine the role of the practitioner, informed consent, and genetic counseling in genetic testing decisions and to assess their relative influence on women's decision to have clinical BRCA1/2 testing...
BiDil: race medicine or race marketing?Pamela Sankar
Department of Medical Ethics, University of Pennsylvania, Philadelphia, USA
Health Aff (Millwood) . 2005..The push to bring these drugs to market as a race-specific treatment was motivated by the culiarities of U.S. patent law and willingness exploit race to gain commercial and regulatory advantage...
Genetic research and health disparitiesPamela Sankar
Center for Bioethics, School of Medicine, University of Pennsylvania, Philadelphia 19104 3308, USA
JAMA 291:2985-9. 2004....
Race and ethnicity in genetic researchPamela Sankar
Department of Medical Ethics Center for Bioethics Leonard Davis Institute for Health Economics, University of Pennsylvania, Philadelphia, PA 19130, USA
Am J Med Genet A 143:961-70. 2007..With limited exceptions, current practice does not reflect repeated recommendations for using race or ethnicity terms in genetic research. This study provides a baseline against which to measure future trends...
Patient perspectives of medical confidentiality: a review of the literaturePamela Sankar
Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104 3308, USA
J Gen Intern Med 18:659-69. 2003..To lay the groundwork for a better understanding of patient views on medical confidentiality...
Genetic privacyPamela Sankar
Center for Bioethics, University of Pennsylvania, 3401 Market Street, Suite 320, Philadelphia, Pennsylvania 19104 3308, USA
Annu Rev Med 54:393-407. 2003..Beliefs in genetic determinacy explain some of the heightened concern about genetic privacy. Discussion of the debate over genetic testing within families illustrates the most recent response to genetic privacy concerns...
To tell or not to tell: primary care patients' disclosure deliberationsPamela Sankar
Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA
Arch Intern Med 165:2378-83. 2005..We investigated the topics and concerns that led less-studied primary care patients to deliberate disclosure to their physician and the range of actions taken following such deliberation...
Genetics, epidemiology, and cancer disparities: is it black and white?Timothy R Rebbeck
Department of Biostatistics and Epidemiology, Center for Clinical Epidemiology and Biostatistics, University of Pennsylvania School of Medicine, Philadelphia, PA 19104 6021, USA
J Clin Oncol 24:2164-9. 2006..Therefore, it is critical to properly consider the meaning, definitions, and use of race, ethnicity, or ancestry in molecular epidemiologic studies...
Differences in the patterns of health care system distrust between blacks and whitesKatrina Armstrong
Department of Medicine, School of Medicine, University of Pennsylvania, Philadelphia, PA 19104, USA
J Gen Intern Med 23:827-33. 2008....
Ethnicity, ancestry, and race in molecular epidemiologic researchTimothy R Rebbeck
Department of Biostatistics and Epidemiology, University of Pennsylvania School of Medicine, 904 Blockley Hall, 423 Guardian Drive, Philadelphia, PA 19104-6021, USA
Cancer Epidemiol Biomarkers Prev 14:2467-71. 2005
"Iceland Inc."?: On the ethics of commercial population genomicsJon F Merz
Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104 3308, USA
Soc Sci Med 58:1201-9. 2004..The Iceland model provides an informative counterexample that holds key ethics lessons for similar ventures...
Older adults' attitudes toward enrollment of non-competent subjects participating in Alzheimer's researchJason Karlawish
Institute on Aging, 3615 Chestnut St, Philadelphia, PA 19104, USA
Am J Psychiatry 166:182-8. 2009..The authors used hypothetical Alzheimer's disease studies that included either a blood draw or a blood draw and lumbar puncture to explore older persons' attitudes on this question...
What is in a cause? Exploring the relationship between genetic cause and felt stigmaPamela Sankar
Center for Bioethics, University of Pennsylvania, 3401 Market Street, Philadelphia, PA 19104, USA
Genet Med 8:33-42. 2006..Instead, stigma emerges from a variety of sources in the context of the lived experience of a particular condition...
Communication and miscommunication in informed consent to researchPamela Sankar
Center for Bioethics, University of Pennsylvania, USA
Med Anthropol Q 18:429-46. 2004..Through analysis of informed consent session transcripts, it demonstrates the importance of taking account of not only what is said, but how and by whom it is said...
Obtaining informed consent for cancer pain research: do patients with advanced cancer and patients with chronic pain have different concerns?David Casarett
Center for Health Equity Research and Promotion, Philadelphia, PA, USA
J Pain Symptom Manage 24:506-16. 2002..Although chronic pain patients' willingness to enroll in research was related to pain severity and a desire for better pain management, cancer patients' willingness to enroll was not...
Research Grants
- EMERGING ISSUES IN CRIMINAL FORENSIC GENETICSPamela Sankar; Fiscal Year: 2009..While potentially useful to law enforcement, this technology could fundamentally alter the role of genetics in law enforcement and negatively influence public trust in genetics generally. ..
- Advancing the Race Dialog: Genes, Forensics & MedicinePamela Sankar; Fiscal Year: 2006..abstract_text> ..
- BEYOND STIGMA--INTERPRETING GENETIC DIFFERENCEPamela Sankar; Fiscal Year: 2003..abstract_text> ..
- EMERGING ISSUES IN CRIMINAL FORENSIC GENETICSPAMELA L SANKAR; Fiscal Year: 2010..While potentially useful to law enforcement, this technology could fundamentally alter the role of genetics in law enforcement and negatively influence public trust in genetics generally. ..
