Lainie Ross

Summary

Affiliation: University of Chicago
Country: USA

Publications

  1. ncbi Adolescent autonomy in health care?
    Lainie Friedman Ross
    University of Chicago, USA
    APA Newsl Philos Med 2:193-200. 2003
  2. doi Reactions of pediatricians to refusals of medical treatment for minors
    Erin D Talati
    Department of Pediatrics, University of Chicago, Chicago, Illinois 60637, USA
    J Adolesc Health 47:126-32. 2010
  3. doi Technical report: Ethical and policy issues in genetic testing and screening of children
    Laine Friedman Ross
    Department of Pediatrics, University of Chicago, Chicago, Illinois, USA
    Genet Med 15:234-45. 2013
  4. doi Age should not be considered in the allocation of deceased donor kidneys
    Lainie Friedman Ross
    Department of Medicine and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
    Semin Dial 25:675-81. 2012
  5. doi A re-examination of the use of ethnicity in prenatal carrier testing
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, Chicago, Illinois, USA
    Am J Med Genet A 158:19-23. 2012
  6. doi Equal Opportunity Supplemented by Fair Innings: equity and efficiency in allocating deceased donor kidneys
    L F Ross
    Department of Pediatrics, University of Chicago, Chicago, IL, USA
    Am J Transplant 12:2115-24. 2012
  7. doi Attitudes of African-American parents about biobank participation and return of results for themselves and their children
    Colin M E Halverson
    Department of Anthropology, University of Chicago, Chicago, Illinois, USA
    J Med Ethics 38:561-6. 2012
  8. ncbi Different standards are not double standards: all elective surgical patients are not alike
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Clin Ethics 23:118-28. 2012
  9. doi Newborn screening for lysosomal storage diseases: an ethical and policy analysis
    Lainie Friedman Ross
    University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637, USA
    J Inherit Metab Dis 35:627-34. 2012
  10. doi Sickle cell trait screening in athletes: pediatricians' attitudes and concerns
    Joy Koopmans
    Department of Pediatrics, University of Chicago, Chicago, Illinois, USA
    Pediatrics 128:477-83. 2011

Research Grants

  1. NEWBORN GENETIC SCREENING:FOR WHOSE BENEFIT?
    Lainie Ross; Fiscal Year: 2005

Collaborators

Detail Information

Publications92

  1. ncbi Adolescent autonomy in health care?
    Lainie Friedman Ross
    University of Chicago, USA
    APA Newsl Philos Med 2:193-200. 2003
  2. doi Reactions of pediatricians to refusals of medical treatment for minors
    Erin D Talati
    Department of Pediatrics, University of Chicago, Chicago, Illinois 60637, USA
    J Adolesc Health 47:126-32. 2010
    ..General pediatricians and subspecialists were surveyed to understand the factors that influence their responses to refusals including (1) prognosis, (2) concordance of parent-minor decision, and (3) minor autonomy...
  3. doi Technical report: Ethical and policy issues in genetic testing and screening of children
    Laine Friedman Ross
    Department of Pediatrics, University of Chicago, Chicago, Illinois, USA
    Genet Med 15:234-45. 2013
    ..This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings...
  4. doi Age should not be considered in the allocation of deceased donor kidneys
    Lainie Friedman Ross
    Department of Medicine and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
    Semin Dial 25:675-81. 2012
    ..We discuss the various conceptions of equity employed in the various models. We show that only the new proposal, EOFI, can meet the NOTA requirements using a multiprincipled equity approach to kidney allocation...
  5. doi A re-examination of the use of ethnicity in prenatal carrier testing
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, Chicago, Illinois, USA
    Am J Med Genet A 158:19-23. 2012
    ....
  6. doi Equal Opportunity Supplemented by Fair Innings: equity and efficiency in allocating deceased donor kidneys
    L F Ross
    Department of Pediatrics, University of Chicago, Chicago, IL, USA
    Am J Transplant 12:2115-24. 2012
    ....
  7. doi Attitudes of African-American parents about biobank participation and return of results for themselves and their children
    Colin M E Halverson
    Department of Anthropology, University of Chicago, Chicago, Illinois, USA
    J Med Ethics 38:561-6. 2012
    ..Biobank-based research is growing in importance. A major controversy exists about the return of aggregate and individual research results...
  8. ncbi Different standards are not double standards: all elective surgical patients are not alike
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Clin Ethics 23:118-28. 2012
    ..We argue that any change should not be in the direction of becoming less protective of living donors, but more protective of cosmetic plastic surgery candidates...
  9. doi Newborn screening for lysosomal storage diseases: an ethical and policy analysis
    Lainie Friedman Ross
    University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637, USA
    J Inherit Metab Dis 35:627-34. 2012
    ..Rather, screening for these conditions should only be performed in the research context with institutional review board approval and parental permission...
  10. doi Sickle cell trait screening in athletes: pediatricians' attitudes and concerns
    Joy Koopmans
    Department of Pediatrics, University of Chicago, Chicago, Illinois, USA
    Pediatrics 128:477-83. 2011
    ..Pediatricians' attitudes about this policy are unknown...
  11. doi Ethical and policy issues in pediatric genetics
    Lainie Friedman Ross
    Department of Medicine, University of Chicago, Chicago, IL 60637, USA
    Am J Med Genet C Semin Med Genet 148:1-7. 2008
    ..It discusses challenges to current practices and policies with regard to newborn screening, biobanking initiatives, and predictive genetic testing of minors...
  12. ncbi The moral status of the newborn and its implications for medical decision making
    Lainie Friedman Ross
    Departments of Pediatrics and Medicine, Community Health Sciences in the Institute for Molecular Pediatric Sciences, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, USA
    Theor Med Bioeth 28:349-55. 2007
  13. ncbi The participation of children in nontherapeutic diabetes research in the US
    Lainie Friedman Ross
    MacLean Center for Clinical Medical Ethics, University of Chicago, 5841 S Maryland Avenue, MC 6089, Chicago, IL 60637, USA
    Nat Clin Pract Endocrinol Metab 3:378-9. 2007
  14. ncbi Shared decision making in deceased-donor transplantation
    Lainie Friedman Ross
    Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, 5841 S Maryland Avenue, MC 6082, Chicago, IL 60637, USA
    Lancet 368:333-7. 2006
  15. doi Forty years later: the scope of bioethics revisited
    Lainie Friedman Ross
    Departments of Medicine, Pediatrics, and Surgery, The College, and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago IL 60637, USA
    Perspect Biol Med 53:452-7. 2010
    ..It concludes by considering how some progress has been made to find a middle path that interprets bioethics more broadly as "the ethics of the life sciences and health care."..
  16. ncbi Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy
    Lainie Friedman Ross
    Department of Pediatrics, Section of General Pediatrics, University of Chicago, Illinois 60637, USA
    Am J Med Genet A 140:914-22. 2006
    ..A rigorous consent process will be necessary to ensure that the decision whether or not to test is a voluntary and informed choice...
  17. ncbi Children in medical research: balancing protection and access--has the pendulum swung too far?
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, IL 60637, USA
    Perspect Biol Med 47:519-36. 2004
    ..It concludes by suggesting that greater attention must be paid to ensure that increased access is not achieved by undermining the additional protections to children provided by Subpart D...
  18. ncbi Phase I research and the meaning of direct benefit
    Lainie Ross
    Department of Pediatrics and the MacLean Center for Clinical Medical Ethics, University of Chicago, Illinois 60637, USA
    J Pediatr 149:S20-4. 2006
    ..This new category would improve the protections provided to children by incorporating intentions into Subpart D, the absence of which is a serious flaw in our current regulatory schema...
  19. doi Ethics and professionalism in the pediatric curriculum: a survey of pediatric program directors
    Colleen Walsh Lang
    Department of Pediatrics, University of Chicago, Chicago, Illinois 60637, USA
    Pediatrics 124:1143-51. 2009
    ..Pediatric residency program directors were surveyed to ascertain what they know about the content and process of their ethics and professionalism curricula...
  20. ncbi Ethical and policy issues raised by heterozygote carrier identification and predictive genetic testing of adolescents
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, 5841 South Maryland Avenue, MC 6082, Chicago, IL 60637, USA
    Adolesc Med State Art Rev 22:251-64, ix. 2011
    ..To ethically respond to requests for genetic testing of adolescents, pediatricians should evaluate the goals of testing, the familial implications of the results, and whose consent is needed...
  21. doi 360 Degrees of human subjects protections in community-engaged research
    Lainie Friedman Ross
    Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL 60637, USA
    Sci Transl Med 2:45cm23. 2010
    ....
  22. pmc Carrier detection in childhood: a need for policy reform
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637, USA
    Genome Med 2:25. 2010
    ..Here, I consider the issues that need to be addressed in revising current policies about the carrier detection of minors...
  23. pmc Nine key functions for a human subjects protection program for community-engaged research: points to consider
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, IL 60637, USA
    J Empir Res Hum Res Ethics 5:33-47. 2010
    ..The document is structured to provide a "points-to-consider" roadmap for HSP entities to help them adequately address the nine key functions necessary to provide adequate protection of individuals and communities in CEnR...
  24. pmc The challenges of collaboration for academic and community partners in a research partnership: points to consider
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, IL 60637, USA
    J Empir Res Hum Res Ethics 5:19-31. 2010
    ..This document is structured to provide a "points- to-consider" roadmap for academic and community research partners to establish and maintain a research partnership at each stage of the research process...
  25. pmc Human subjects protections in community-engaged research: a research ethics framework
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, IL 60637, USA
    J Empir Res Hum Res Ethics 5:5-17. 2010
    ..This new framework for exploring the risks in community-engaged research can help academic researchers and community partners ensure the mutual respect that community-engaged research requires...
  26. doi What the medical excuse teaches us about the potential living donor as patient
    L F Ross
    Department of Pediatrics and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL, USA
    Am J Transplant 10:731-6. 2010
    ....
  27. doi Good ethics requires good science: why transplant programs should not disclose misattributed parentage
    L F Ross
    Department of Pediatrics and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL, USA
    Am J Transplant 10:742-6. 2010
    ..Genetic inconsistencies in ABO and HLA inheritance should be reported as variations. Families who want further clarification should be referred to a genetic professional...
  28. ncbi Restricting living-donor-cadaver-donor exchanges to ensure that standard blood type O wait-list candidates benefit
    Lainie Friedman Ross
    Department of Pediatrics, Section of General Pediatrics, University of Chicago, Chicago, IL 60637, USA
    Transplantation 78:641-6. 2004
    ..Although these restrictions do not allow for the maximization of the number of organs potentially procured by means of list paired exchanges, they increase the number of kidneys available in an ethically fair manner...
  29. ncbi Media appeals for directed altruistic living liver donations: lessons from Camilo Sandoval Ewen
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, IL 60637, USA
    Perspect Biol Med 45:329-37. 2002
    ....
  30. ncbi Do healthy children deserve greater protection in medical research?
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, Illinois, USA
    J Pediatr 142:108-12. 2003
  31. ncbi Responding to the challenge of the children's health act: an introduction to children in research
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, IL 60637, USA
    Theor Med Bioeth 24:101-6. 2003
    ..quot;..
  32. ncbi Patient autonomy: imperfect, insufficient, but still quite necessary
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Clin Ethics 13:57-62. 2002
  33. ncbi Should all living donors be treated equally?
    Lainie Friedman Ross
    Department of Pediatrics, and MacLean Center for Clinical Medical Ethics, University of Chicago, IL 60637, USA
    Transplantation 74:418-21; discussion 421-2. 2002
    ..We argue that voluntary donations have a degree of moral obligation based on intimacy and that intimacy allows, but does not require, that these donors take on slightly additional risk...
  34. ncbi Minimizing risks: the ethics of predictive diabetes mellitus screening research in newborns
    Lainie Friedman Ross
    Department of Pediatrics and MacLean Center for Clinical Medical Ethics, The University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637, USA
    Arch Pediatr Adolesc Med 157:89-95. 2003
    ....
  35. ncbi The ethics of type 1 diabetes prediction and prevention research
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, IL 60637, USA
    Theor Med Bioeth 24:177-97. 2003
    ..I then offer two policy recommendations to help researchers design studies that conform to these ethical requirements...
  36. ncbi Ethical issues in increasing living kidney donations by expanding kidney paired exchange programs
    L F Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, Illinois 60637, USA
    Transplantation 69:1539-43. 2000
    ..In this article, we explore three variations that have potentially great clinical relevance...
  37. ncbi Do not resuscitate orders and iatrogenic arrest during dialysis: should "No" mean "No"?
    Lainie Friedman Ross
    Department of Pediatrics and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
    Semin Dial 16:395-8. 2003
    ..As such, nephrologists need better communication with their patients regarding advance care planning and better documentation of their communication once it has occurred...
  38. ncbi Why "doctor, if this were your child, what would you do?" deserves an answer
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Clin Ethics 14:59-62. 2003
  39. ncbi The ethical limits in expanding living donor transplantation
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center Clinical Medical Ethics, University of Chicago, IL, USA
    Kennedy Inst Ethics J 16:151-72. 2006
    ..Nondirected donors catalyzing cascade exchanges can be ethically sound provided that individuals with blood types O and B are not made worse off...
  40. ncbi Predictive genetic testing for conditions that present in childhood
    Lainie Friedman Ross
    Departments of Pediatrics and Medicine, University of Chicago, USA
    Kennedy Inst Ethics J 12:225-44. 2002
    ..I conclude in favor of parental discretion for predictive genetic testing, but against state-sponsored predictive screening for conditions that do not fulfill public health screening criteria...
  41. ncbi Parental attitudes regarding newborn screening of PKU and DMD
    Elizabeth Campbell
    Department of Sociology, University of Chicago, Illinois 60637, USA
    Am J Med Genet A 120:209-14. 2003
    ..Professional guidelines that proscribe predictive testing for untreatable childhood onset conditions should be re-examined in light of consumer attitudes...
  42. doi An empirical investigation of physicians' attitudes toward intrasibling kidney donation by minor twins
    Josh W Joseph
    University of Illinois College of Medicine, Chicago, IL, USA
    Transplantation 85:1235-9. 2008
    ..Recent United Network of Organ Sharing data show that minors serve as living donors, albeit infrequently. We examined the attitudes of US physicians toward minors as living donors...
  43. ncbi Pediatricians' attitudes toward expanding newborn screening
    Kruti Acharya
    Comer Children s Hospital, University of Chicago, Chicago, Illinois, USA
    Pediatrics 116:e476-84. 2005
    ..We examine the attitudes of pediatricians and pediatric subspecialists toward screening for cystic fibrosis (CF), Duchenne muscular dystrophy (DMD), fragile X, and type 1 diabetes...
  44. ncbi Professional and personal attitudes about access and confidentiality in the genetic testing of children: a pilot study
    Elizabeth Campbell
    Department of Sociology and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL 60637, USA
    Genet Test 7:123-30. 2003
    ..They are willing to provide greater access and more confidentiality for their patients than within their own families...
  45. ncbi In defense of the Hopkins Lead Abatement Studies
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Law Med Ethics 30:50-7. 2002
  46. ncbi Parental attitudes and beliefs regarding the genetic testing of children
    Elizabeth Campbell
    Department of Sociology, University of Chicago, Ill 60637, USA
    Community Genet 8:94-102. 2005
    ..To explore parental attitudes and beliefs about genetic testing of children for conditions that present throughout the life cycle...
  47. doi Pediatricians' attitudes about screening newborns for infectious diseases
    Hanna Schittek
    Pritzker School of Medicine, University of Chicago, Chicago, IL, USA
    Matern Child Health J 14:174-83. 2010
    ..The majority of respondents support screening newborns for HIV and Toxo. The Advisory Committee ought to solicit a systematic evaluation of these conditions to determine whether they should be included in the uniform panel...
  48. ncbi Convening a 407 panel for research not otherwise approvable: "Precursors to diabetes in Japanese American youth" as a case study
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, IL, USA
    Kennedy Inst Ethics J 14:165-86. 2004
    ..The first, entitled "Precursors to Diabetes in Japanese American Youth," serves here as a case study in human subject protections...
  49. ncbi Should a PVS patient be a live organ donor?
    Lainie Friedman Ross
    MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    Med Ethics (Burlingt Mass) 13:3. 2006
  50. ncbi A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease
    Kruti Acharya
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
    J Natl Med Assoc 101:1163-72. 2009
    ..Although there is a consensus to disclose SCT to parents, there are limited empirical data about whether and how this information is transmitted to the carrier children...
  51. pmc Fragile X screening: attitudes of genetic health professionals
    Kruti Acharya
    Department of Pediatrics, University of Chicago, Chicago, Illinois 60637, USA
    Am J Med Genet A 149:626-32. 2009
    ..The majority also support prenatal screening and NBS. If NBS were to be introduced, GHP prefer screening to identify boys and girls with both pre- and full mutations...
  52. ncbi Solid organ donation between strangers
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Law Med Ethics 30:440-5. 2002
  53. doi Pediatricians' attitudes toward resuscitation in children with chronic illnesses
    K Sarah Hoehn
    Section of Pediatric Critical Care, University of Chicago, Chicago, IL, USA
    Pediatr Crit Care Med 10:369-74. 2009
    ....
  54. ncbi Certificates of confidentiality in research: rationale and usage
    Zachary N Cooper
    The College, University of Chicago, Chicago, IL 60637, USA
    Genet Test 8:214-20. 2004
    ..These findings show that COCs are often congregated within institutions and by particular individuals. This may be because others are unaware of COCs or because others do not believe they are necessary or useful...
  55. ncbi All donations should not be treated equally: a response to Jeffrey Kahn's commentary
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    J Law Med Ethics 30:448-51. 2002
  56. ncbi Incorporating newborn screening into prenatal care
    Elizabeth D Campbell
    Departments of Sociology and Pediatrics, University of Chicago, and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Ill USA
    Am J Obstet Gynecol 190:876-7. 2004
    ..Research with focus groups of parents suggests that information on newborn metabolic screening needs to be integrated into prenatal care. Such a practice change can only occur with the support of the obstetric community...
  57. ncbi Human subject protections in genetic research
    M Justin Coffey
    Pritzker School of Medicine, University of Chicago, Chicago, IL 60637
    Genet Test 8:209-13. 2004
    ..In this era of public scrutiny of medical research, we recommend greater familiarity with and documentation of all human subject protections...
  58. ncbi Are research ethics standards satisfied in pediatric journal publications?
    Eric Weil
    MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA
    Pediatrics 110:364-70. 2002
    ..Although many studies document them poorly, most published research undergoes IRB review and has IC procedures. Less is known about research published in pediatric journals, and how child health research is determined to be exempt...
  59. ncbi A compounding of errors: the case of bone marrow donation between non-intimate siblings
    Lainie Friedman Ross
    Department of Pediatrics, University of Chicago, Illinois, USA
    J Clin Ethics 17:220-6. 2006
  60. ncbi Should children and adolescents undergo genetic testing?
    Lainie Friedman Ross
    University of Chicago Department of Pediatrics, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637, USA
    Pediatr Ann 33:762-9. 2004
    ..Pediatricians need to be knowledgeable about tests that are indicated clinically and their potential psychosocial implications to best serve children, adolescents, and their families...
  61. ncbi Is kidney donation in the donor's best interest?
    Lainie Friedman Ross
    MacLean Center for Clinical Medical Ethics, University of Chicago, Illinois, USA
    Transplantation 76:753-4. 2003
  62. ncbi Heterozygote carrier testing in high schools abroad: what are the lessons for the U.S.?
    Lainie Friedman Ross
    University of Chicago, USA
    J Law Med Ethics 34:753-64. 2006
    ..The mandatory school environment cannot achieve this. Rather, I conclude that screening programs should be designed to attract young adults and not adolescents to participate in a more voluntary venue...
  63. ncbi What is wrong with the Physician Charter on Professionalism
    Lainie Friedman Ross
    MacLean Center for Clinical Medical Ethics, and Institute for Molecular Pediatric Science, University of Chicago, USA
    Hastings Cent Rep 36:17-9. 2006
  64. pmc Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis
    Colleen Walsh Lang
    Department of Pediatrics, University of Chicago, Chicago, Illinois 60637, USA
    Am J Med Genet A 149:2424-9. 2009
    ..There are many missed educational opportunities for educating parents about NBS and specific conditions included in NBS panels in both the obstetric clinics and the nursery...
  65. pmc The participation of minorities in published pediatric research
    Michael L Kelly
    Loyola University, Stritch School of Medicine, Maywood, IL, USA
    J Natl Med Assoc 97:777-83. 2005
    ..There is extensive documentation that minority adults are underrepresented in medical research, but there are scant data regarding minority children and their parents...
  66. ncbi Lessons to be learned from the 407 process
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA
    Health Matrix Clevel 15:401-21. 2005
  67. ncbi Ethical considerations related to pregnancy in transplant recipients
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, USA
    N Engl J Med 354:1313-6. 2006
  68. ncbi We need a registry of living kidney donors
    Lainie Friedman Ross
    University of Chicago, USA
    Hastings Cent Rep 37:1 p following 48. 2007
  69. ncbi Informed consent in pediatric research
    Lainie Friedman Ross
    Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, Illinois, USA
    Camb Q Healthc Ethics 13:346-58. 2004
  70. doi Parental understanding of newborn screening for cystic fibrosis after a negative sweat-test
    Colleen Walsh Lang
    Washington University in St Louis, St Louis, Missouri, USA
    Pediatrics 127:276-83. 2011
    ..Newborn screening for cystic fibrosis (CF) in Illinois uses an immunoreactive trypsinogen/DNA methodology; most false-positive results identify unaffected carriers...
  71. ncbi Lethal language, lethal decisions
    Tracy K Koogler
    Hastings Cent Rep 33:37-41. 2003
  72. ncbi Motivation, risk, and benefit in living organ donation: a reply to Aaron Spital
    Walter Glannon
    W Maurice Young Centre for Applied Ethics, University of British Columbia
    Camb Q Healthc Ethics 14:191-4; discussion 195-8. 2005
  73. ncbi Do genetic relationships create moral obligations in organ transplantation?
    Walter Glannon
    Biomedical Ethics Unit, McGill University, Montreal, Quebec, Canada
    Camb Q Healthc Ethics 11:153-9. 2002
  74. ncbi Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children
    Susan Hiraki
    Alzheimer s Disease Center, Boston University, School of Medicine, Boston, Massachusetts, USA
    Am J Med Genet A 140:2312-9. 2006
    ..Their support for NBS correlates with their interest in testing their own children and not with professional experience...
  75. ncbi Pediatric research and the federal minimal risk standard
    Lainie Friedman Ross
    JAMA 295:759; author reply 759-60. 2006
  76. ncbi (Women and) children first: applicable to lifeboats? Applicable to human experimentation?
    Lainie Friedman Ross
    J Health Care Law Policy 6:14-33. 2002
  77. ncbi Does familiarity breed acceptance? The influence of policy on physicians' attitudes toward newborn screening programs
    Joy Koopmans
    University of Iowa Carver College of Medicine, Iowa City, Iowa, USA
    Pediatrics 117:1477-85. 2006
    ..We examined the effect of state policy and perceived state policy on pediatricians' attitudes toward screening...
  78. ncbi In defense of a single standard of research risk for all children
    Robert M Nelson
    J Pediatr 147:565-6. 2005
  79. ncbi Minority children in pediatric research
    Lainie Friedman Ross
    Am J Law Med 29:319-36. 2003
  80. ncbi Against newborn screening for type 1 diabetes
    Lainie Friedman Ross
    Arch Pediatr Adolesc Med 161:616-7; author reply 617-8. 2007
  81. ncbi Ethics of hematopoietic stem cell transplantation in type 1 diabetes mellitus
    Lainie Friedman Ross
    JAMA 298:285; author reply 285-6. 2007
  82. doi American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 1
    Mark R Mercurio
    Pediatr Rev 29:e1-8. 2008
  83. ncbi Ethical issues in identifying and recruiting participants for familial genetic research
    Laura M Beskow
    Department of Health Policy and Administration, University of North Carolina at Chapel Hill School of Public Health, Chapel Hill, NC 27599 7411, USA
    Am J Med Genet A 130:424-31. 2004
    ..They suggest a framework for considering alternative recruitment strategies and their implications, as well as highlight areas in need of further empirical research...
  84. doi Communicating with children and families: from everyday interactions to skill in conveying distressing information
    Marcia Levetown
    Pediatrics 121:e1441-60. 2008
    ....
  85. doi Minors as living solid-organ donors
    Lainie Friedman Ross
    Pediatrics 122:454-61. 2008
    ..The American Academy of Pediatrics holds that minors can morally serve as living organ donors but only in exceptional circumstances when specific criteria are fulfilled...
  86. ncbi Do peer guidelines or editorial policies affect the reporting and discussion of race and ethnicity in pediatric research?
    Paul D Ackerman
    Princeton University, USA
    Account Res 12:17-31. 2005
    ..We sought to determine if these statements had any impact on the reporting and discussion of R/E and sociodemographic markers [SM]...
  87. ncbi Protecting research subjects
    Lainie Friedman Ross
    N Engl J Med 346:2093-5; author reply 2093-5. 2002
  88. ncbi Ethics of placebos in clinical asthma trials
    M Justin Coffey
    J Allergy Clin Immunol 117:470; author reply 470-1. 2006
  89. ncbi Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: implications for policy
    Joy Koopmans
    Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA
    Am J Med Genet A 140:2305-11. 2006
    ..025). The correlation of professional recommendations with state policies and personal preferences reinforces the need for systematic evidence-based reviews rather than reliance on stakeholder opinions for developing national guidelines...
  90. doi American Academy of Pediatrics policy statements on bioethics: summaries and commentaries: part 2
    Mark R Mercurio
    American Academy of Pediatrics Section on Bioethics
    Pediatr Rev 29:e15-22. 2008
  91. doi Potential inefficiency of a proposed efficiency model for kidney allocation
    Lainie Friedman Ross
    Am J Kidney Dis 51:545-8. 2008
  92. ncbi Practical and ethical challenges to paired exchange programs
    Lainie Friedman Ross
    Am J Transplant 4:1553-4. 2004

Research Grants3

  1. NEWBORN GENETIC SCREENING:FOR WHOSE BENEFIT?
    Lainie Ross; Fiscal Year: 2005
    ..OUTCOMES: The major outcomes will be a series of peer-reviewed articles and a full-length book entitled Newborn Genetic Screening: In whose Interest? For whose Benefit? ..