Research Topics
| DONALD LEE PATRICKSummaryAffiliation: University of Washington Country: USA Publications
Research Grants
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Detail Information
Publications
The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi studyLidwine B Mokkink
Department of Epidemiology and Biostatistics and the EMGO Institute for Health and Care Research, VU University Medical Center, Van der Boechorststraat 7, 1081 BT, Amsterdam, The Netherlands
Qual Life Res 19:539-49. 2010..We present the COSMIN checklist and the agreement of the panel on the items of the checklist...- Synchrony of change in depressive symptoms, health status, and quality of life in persons with clinical depressionPaula H Diehr
Department of Biostatistics F 670 HSB, Box 357232, University of Washington, Seattle, WA 98195 7232, USA
Health Qual Life Outcomes 4:27. 2006..We followed 982 clinically depressed persons to determine which measures changed and whether the change was synchronous with change in depressive symptoms... - Quality of life at the end of lifePaula Diehr
Department of Biostatistics, University of Washington, Seattle, Washington 98195, USA
Health Qual Life Outcomes 5:51. 2007..Here, we describe QOL in the weeks near death and determine correlates of QOL over time, with emphasis on accounting for death and missing data... - Protocol of the COSMIN study: COnsensus-based Standards for the selection of health Measurement INstrumentsL B Mokkink
Institute for Research in Extramural Medicine, VU University Medical Center, Amsterdam, The Netherlands
BMC Med Res Methodol 6:2. 2006..The COSMIN standards will be made available in the form of an easily applicable checklist... - Inter-rater agreement and reliability of the COSMIN (COnsensus-based Standards for the selection of health status Measurement Instruments) checklistLidwine B Mokkink
Department of Epidemiology and Biostatistics and the EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
BMC Med Res Methodol 10:82. 2010..The aim of this study is to determine the inter-rater agreement and reliability of each item score of the COSMIN checklist (n = 114)... - The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its contentLidwine B Mokkink
Department of Epidemiology and Biostatistics and the EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands
BMC Med Res Methodol 10:22. 2010..In this paper, we explain our choices for the design requirements and preferred statistical methods for which no evidence is available in the literature or on which the Delphi panel members had substantial discussion... - Managed care and patient ratings of the quality of specialty care among patients with pain or depressive symptomsDavid Grembowski
Center for Cost and Outcomes Research, University of Washington, Seattle, WA 98125, USA
BMC Health Serv Res 7:22. 2007.... 
Premature ejaculation: an observational study of men and their partnersDonald L Patrick
Department of Health Services and Epidemiology, University of Washington, Seattle, WA 98195 7660, USA
J Sex Med 2:358-67. 2005..Premature ejaculation (PE) is the most common male sexual dysfunction affecting men and their partners. Lack of community-based data describing this condition limits understanding of PE and its outcomes...
Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: part 2--assessing respondent understandingDonald L Patrick
Department of Health Services, University of Washington, Seattle, WA 98195 9455, USA
Value Health 14:978-88. 2011..They are intended to offer suggestions for good practice in planning, executing, and documenting qualitative studies that are used to support the content validity of PRO instruments to be used in medical product evaluation...- Performance of two self-report measures for evaluating obesity and weight lossDonald L Patrick
Department of Health Services, University of Washington, Seattle, Washington 98195, USA
Obes Res 12:48-57. 2004..To evaluate performance of the Obesity and Weight-Loss Quality-of-Life (OWLQOL) and Weight-Related Symptoms (WRSM) measures... - Validation of a quality-of-life measure for deaf or hard of hearing youthDonald L Patrick
Department of Health Services, School of Public Health, University of Washington, Seattle, Washington, USA
Otolaryngol Head Neck Surg 145:137-45. 2011..This study assesses the cross-sectional validity of the Youth Quality of Life Instrument-Deaf and Hard of Hearing Module (YQOL-DHH). STUDY DESIGN. Instrument development and cross-sectional survey... - Interrelationships among measures of premature ejaculation: the central role of perceived controlDonald L Patrick
University of Washington, Department of Health Services and Epidemiology, Seattle, WA 98195 7660, USA
J Sex Med 4:780-8. 2007..How these measures interrelate is unknown... - Measuring the quality of life of youth with facial differencesDonald L Patrick
Department of Health and Epidemiology, University of Washington, Seattle, Washington 98195 7660, USA
Cleft Palate Craniofac J 44:538-47. 2007..To describe the Facial Differences Module of the Youth Quality of Life Instruments (YQOL-FD) and present results evaluating domain structure, internal consistency, reproducibility, validity, and respondent burden... - Patient-reported outcomes to support medical product labeling claims: FDA perspectiveDonald L Patrick
Food and Drug Administration, University of Washington, Seattle Quality of Life Group, Seattle, WA 98103 8652, USA
Value Health 10:S125-37. 2007.... - The Premature Ejaculation Profile: validation of self-reported outcome measures for research and practiceDonald L Patrick
Department of Health Services and Epidemiology, University of Washington, Seattle, WA 98195 7660, USA
BJU Int 103:358-64. 2009..To evaluate the reliability and validity of the Premature Ejaculation Profile (PEP), a self-reported outcome instrument for evaluating domains of PE and its treatment, comprised of four single-item measures, a profile, and an index score... - Reliability, validity and ability to detect change of the clinician-rated Personal and Social Performance scale in patients with acute symptoms of schizophreniaDonald L Patrick
University of Washington, Seattle, WA 98195 9455, USA
Curr Med Res Opin 25:325-38. 2009..To describe the measurement properties of the Personal and Social Performance scale (PSP), a clinician-reported measure of severity of personal and social dysfunction, in subjects with acute symptoms of schizophrenia... - Measuring social functioning with the personal and social performance scale in patients with acute symptoms of schizophrenia: interpretation of results of a pooled analysis of three Phase III trials of paliperidone extended-release tabletsDonald L Patrick
Department of Health Services and Seattle Quality of Life Group, University of Washington, Seattle, Washington, USA
Clin Ther 32:275-92. 2010..The validity and reliability of the Personal and Social Performance (PSP) scale, both in patients with acute symptoms of schizophrenia and those with stabilized symptoms, have also been reported... - Weight loss and changes in generic and weight-specific quality of life in obese adolescentsD L Patrick
Department of Health Services, School of Public Health, University of Washington, Box 394555, Seattle, WA 98195 9455, USA
Qual Life Res 20:961-8. 2011..To investigate how weight loss correlates with changes in generic and weight-specific quality of life (QoL)... - Measuring satisfaction with migraine treatment: expectations, importance, outcomes, and global ratingsDonald L Patrick
Departent of Health Services, University of Washington, School of Public Health and Community Medicine, Seattle 98195 7660, USA
Clin Ther 25:2920-35. 2003..Prior qualitative work with patients and clinicians supported a 4-part model that incorporates the gap between expectations and outcomes of treatment and accounts for the relative importance of different treatment attributes... - Measuring and improving the quality of dying and deathDonald L Patrick
University of Washington and Harborview Medical Center, Seattle 98195 7660, USA
Ann Intern Med 139:410-5. 2003..Overcoming these challenges is of great importance in the search for the social, organizational, and individual determinants of high-quality dying in the U.S. cultural and health care context... - Assessing the clinical significance of health-related quality of life (HrQOL) improvements in anaemic cancer patients receiving epoetin alfaD L Patrick
University of Washington, Box 357660, Seattle, WA 98195 7660, USA
Eur J Cancer 39:335-45. 2003..These methods provide one means for interpreting the clinical relevance of changes in HrQOL evaluated in clinical trials... - Cultural adaptation of a quality-of-life measure for urinary incontinenceD L Patrick
University of Washington, Seattle, Wash, USA
Eur Urol 36:427-35. 1999..To translate and validate a urinary incontinence-specific measure of quality of life (I-QOL) in French, Spanish, Swedish, and German and provide translations only into seven other languages and variants of these languages... - Functional status and perceived quality of life in adults with and without chronic conditionsD L Patrick
Department of Health Services, University of Washington, 1959 NE Pacific, Box 357660, Seattle, WA 98195 7760, USA
J Clin Epidemiol 53:779-85. 2000..Amelioration of depressive symptoms through environmental modification and individual treatment are potential strategies for improving on this association in adults with chronic conditions... - Adolescent quality of life, part II: initial validation of a new instrumentDonald L Patrick
Department of Health Services, University of Washington, Seattle, WA 98195 7660, USA
J Adolesc 25:287-300. 2002..77-0.96), reproducibility (ICCs=0.74-0.85), expected associations with other constructs, and ability to distinguish between known groups. The YQOL-R showed sufficient validity to encourage further use... - Cost and outcomes of Medicare reimbursement for HMO preventive servicesD L Patrick
Department of Health Services, H689, Box 357660, University of Washington, Seattle, WA 98195 7660, USA
Health Care Financ Rev 20:25-43. 1999..Despite these changes, the intervention did not yield lower cost per quality-adjusted life year in this historically prevention-oriented HMO... - Measurement of health outcomes in treatment effectiveness evaluations: conceptual and methodological challengesD L Patrick
Department of Health Services, University of Washington, Seattle 98195 7600, USA
Med Care 38:II14-25. 2000..The successful translation of research into policy and practice is limited by the extent to which these critical issues are addressed in actual treatment evaluations... - Economic evaluation of aquatic exercise for persons with osteoarthritisD L Patrick
Division of Public Health Sciences, Fred Hutchinson Cancer Research Center, Seattle, Washington, USA
Med Care 39:413-24. 2001..To estimate cost and outcomes of the Arthritis Foundation aquatic exercise classes from the societal perspective... - Barriers and facilitators to end-of-life care communication for patients with COPDElizabeth Knauft
Division of Pulmonary and Critical Care Medicine, Department of Medicine, School of Medicine, University of Washington, Seattle, USA
Chest 127:2188-96. 2005..Barriers and facilitators associated with communication are targets for interventions to improve end-of-life care, but such interventions will likely need to address the specific barriers relevant to individual patient-physician pairs... - Managed care, access to specialists, and outcomes among primary care patients with painDavid E Grembowski
Department of Health Services, School of Public Health and Community Medicine, University of Washington, Seattle 98195-7660, USA
Health Serv Res 38:1-19. 2003.... - Might massage or guided meditation provide "means to a better end"? Primary outcomes from an efficacy trial with patients at the end of lifeLois Downey
Division of Pulmonary and Critical Care Medicine, Department of Medicine, School of Medicine, University of Washington, Seattle, Washington, USA
J Palliat Care 25:100-8. 2009..The authors discuss the implications of their findings for integration of these complementary and alternative medicine therapies into standard hospice care... - Managed care and patient-rated quality of care from primary physiciansDavid E Grembowski
University of Washington, USA
Med Care Res Rev 62:31-55. 2005..Managed care controls targeting physicians were generally not associated with patient ratings... - Community-based aquatic exercise and quality of life in persons with osteoarthritisLisa Cadmus
Department of Health Services, School of Public Health and Community Medicine, University of Washington, Seattle, WA, USA
Med Sci Sports Exerc 42:8-15. 2010..To evaluate the effectiveness of a community-based aquatic exercise program for improved quality of life among persons with osteoarthritis... - A measure of the quality of dying and death. Initial validation using after-death interviews with family membersJ Randall Curtis
Department of Medicine, University of Washington, Seattle, WA 98104, USA
J Pain Symptom Manage 24:17-31. 2002..Future work will assess the potential role of the QODD in improving the quality of the dying experience... - Correspondence between patients' preferences and surrogates' understandings for dying and deathRuth A Engelberg
Department of Medicine, University of Washington, Seattle, Washington 98104, USA
J Pain Symptom Manage 30:498-509. 2005..These discussions may enable surrogates and clinicians to more accurately follow patient preferences... - Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfactionJonathan R McDonagh
Department of Medicine, School of Medicine, University of Washington, Seattle, WA, USA
Crit Care Med 32:1484-8. 2004..Future studies should assess the effect of interventions to increase listening by critical care clinicians on the quality of communication and the family experience... - Longitudinal change in positive affect in community-dwelling older personsBrenda F Kurland
Clinical Research Division, Fred Hutchinson Cancer Research Center, Seattle, Washington 98109, USA
J Am Geriatr Soc 54:1846-53. 2006..To determine whether positive affect, defined as emotional contentment and happiness, remains stable in late life and to identify predictors of longitudinal change in positive affect... - Quality of life of adolescents with perceived disabilitiesTodd C Edwards
University of Washington, Center for Disability Policy and Research, Seattle, Washington 98103 8652, USA
J Pediatr Psychol 28:233-41. 2003..To compare the self-perceived quality of life (QoL) of adolescents with and without disabilities... - A lifestyle-based weight management program delivered to employees: examination of health and economic outcomesM Courtney Hughes
Department of Health Services, University of Washington, Seattle, WA 98195, USA
J Occup Environ Med 49:1212-7. 2007..To examine the health and economic outcomes associated with a comprehensive weight management program delivered to employees... - Primary health care quality in a national sample of children and youth with mental health impairmentJanice F Bell
Department of Health Services, University of Washington, Seattle, WA 98195 4920, USA
J Dev Behav Pediatr 31:694-704. 2010..To examine the general pediatric health care quality experiences of children and youth with mental health impairment... - Adolescent quality of life, part I: conceptual and measurement modelTodd C Edwards
Department of Health Service, University of Washington, Seatle, WA 98195 7660, USA
J Adolesc 25:275-86. 2002..A conceptual model with four domains-Sense of Self, Social Relationships, Environment, and General Quality of Life-is reported... - Shared priorities for the end-of-life periodLois Downey
Department of Health Services, School of Public Health and Community Medicine, University of Washington, Seattle, Washington, USA
J Pain Symptom Manage 37:175-88. 2009..This change would reduce respondent burden in future investigations, simplify analyses aimed at identifying domains underlying the dying-and-death experience, and exclude the top-priority item of fewer than 4% of respondents... - Managed care and the US health care system a social exchange perspectiveDavid E Grembowski
Department of Health Services, University of Washington, Seattle 98195 7660, USA
Soc Sci Med 54:1167-80. 2002..The theoretical and research implications of exchange theory for the comparative study of health care systems are discussed... - Health behaviors of employed and insured adults in the United States, 2004-2005M Courtney Hughes
Department of Health Services, University of Washington School of Public Health and Community Medicine, Seattle, USA
Am J Health Promot 24:315-23. 2010.... - Managed care, access to mental health specialists, and outcomes among primary care patients with depressive symptomsDavid E Grembowski
Center for Cost and Outcomes Research, Department of Health Services, University of Washington, Seattle, Wash 98195 7660, USA
J Gen Intern Med 17:258-69. 2002..To determine whether managed care is associated with reduced access to mental health specialists and worse outcomes among primary care patients with depressive symptoms... - A structured review of randomized controlled trials of weight loss showed little improvement in health-related quality of lifeMatthew L Maciejewski
Northwest Center for Outcomes Research in Older Adults, Veterans Affairs Puget Sound Health Care System, University of Washington, Seattle, USA
J Clin Epidemiol 58:568-78. 2005.... - Studying communication about end-of-life care during the ICU family conference: development of a frameworkJ Randall Curtis
Division of Pulmonary and Critical Care Medicine, Department of Medicine, School of Medicine, University of Washington, Seattle, WA, USA
J Crit Care 17:147-60. 2002..The purpose of this study was to develop an understanding of the way this communication is currently conducted... - Managed care and primary physician satisfactionDavid Grembowski
Center for Cost and Outcomes Research, University of Washington, Seattle 98195, USA
J Am Board Fam Pract 16:383-93. 2003..Our study was guided by a conceptual model of physician satisfaction derived from published evidence... - Accounting for deaths in longitudinal studies using the SF-36: the performance of the Physical Component Scale of the Short Form 36-item health survey and the PCTDPaula Diehr
Department of Biostatistics, University of Washington, Seattle 98195 7232, USA
Med Care 41:1065-73. 2003..Data missing for other reasons than death have not been considered... - Trajectories of health for older adults over time: accounting fully for deathPaula Diehr
Department of Biostatistics, University of Washington, Box 357232, Seattle, WA 98195, USA
Ann Intern Med 139:416-20. 2003..Both approaches are useful and should be used at a minimum for supporting analyses in longitudinal studies in which persons die during observation... - Prevalence of secondary conditions among people with disabilitiesSusan Kinne
Center for Disability Policy and Research, University of Washington, Seattle, USA
Am J Public Health 94:443-5. 2004..The association of disability with substantial disparities in common conditions shows a need for increased access to general and targeted prevention interventions to improve health... - Quality of life of adolescent males with attention-deficit hyperactivity disorderTari D Topolski
University of Washington, Department of Health Services, Seattle 98195 8852, USA
J Atten Disord 7:163-73. 2004..Their scores were similar to those from the group with MI, a group previously shown to have a substandard QoL. Interventions to improve self-esteem and social interactions might use QoL outcomes in evaluating effectiveness... - Toward youth self-report of health and quality of life in population monitoringTari D Topolski
Seattle Quality of Life Group, University of Washington, Seattle, WA 98103, USA
Ambul Pediatr 4:387-94. 2004.... - Approaches to craniofacial-specific quality of life assessment in adolescentsTodd C Edwards
University of Washington, Seattle, Washington, USA
Cleft Palate Craniofac J 42:19-24. 2005..To ascertain the domains that adolescents aged 11 to 18 years with congenital and acquired craniofacial differences (CFDs) consider important to their quality of life (QoL) to create a craniofacial-specific module... - Quality of life: how do adolescents with facial differences compare with other adolescents?Tari D Topolski
Department of Health Services at the University of Washington, WA 91803, USA
Cleft Palate Craniofac J 42:25-32. 2005..e., mobility limitations), an invisible difference (i.e., attention deficit/hyperactivity disorder), or no known difference... - Association of depression and life-sustaining treatment preferences in patients with COPDRenee D Stapleton
Division of Pulmonary and Critical Care Medicine, Department of Medicine, School of Medicine, University of Washington, Seattle, WA, USA
Chest 127:328-34. 2005..No prior studies have examined the effects of depression and quality of life on treatment preferences in this population... - Managed care, physician job satisfaction, and the quality of primary careDavid Grembowski
Center for Cost and Outcomes Research, and Department of Health Services, University of Washington, Seattle, WA 98195 7660, USA
J Gen Intern Med 20:271-7. 2005.... - Methods for incorporating death into health-related variables in longitudinal studiesPaula Diehr
Department of Biostatistics, University of Washington, Seattle, 98195, USA
J Clin Epidemiol 58:1115-24. 2005.... - Validation of electronic data capture of the Irritable Bowel Syndrome--Quality of Life Measure, the Work Productivity and Activity Impairment Questionnaire for Irritable Bowel Syndrome and the EuroQolDonald M Bushnell
Health Research Associates, Inc, Seattle, WA 98043, USA
Value Health 9:98-105. 2006.... - Evaluating CAM treatment at the end of life: a review of clinical trials for massage and meditationWilliam E Lafferty
University of Washington, School of Public Health and Community Medicine, Department of Health Services, Seattle, WA 98195, USA
Complement Ther Med 14:100-12. 2006..There is a pressing need for improved end-of-life care. Use of complementary and alternative medicine (CAM) may improve the quality of care but few controlled trials have evaluated CAM at the end of life... - The Rapid Assessment of Physical Activity (RAPA) among older adultsTari D Topolski
Seattle Quality of Life Group, University of Washington, 146 N Canal St, Suite 313, Seattle, WA 98103, USA
Prev Chronic Dis 3:A118. 2006..The Rapid Assessment of Physical Activity (RAPA) was developed to provide an easily administered and interpreted means of assessing levels of physical activity among adults older than 50 years... - A review of selected patient-generated outcome measures and their application in clinical trialsKavita K Patel
Pharmaceutical Outcomes Research and Policy Program, University of Washington, Seattle, WA 98195-7630, USA
Value Health 6:595-603. 2003..Patient-generated outcome measures appear to be useful primarily in complementing traditional HRQoL measures, guiding individual patient treatment decisions, and assisting the design of new measures... - Does adherence make a difference? Results from a community-based aquatic exercise programBasia Belza
Department of Biobehavioral Nursing and Health Systems, School of Nursing, University of Washington, Seattle 98195 7266, USA
Nurs Res 51:285-91. 2002.... - National Institutes of Health State-of-the-Science Conference Statement: Symptom Management in Cancer: Pain, Depression, and Fatigue, July 15-17, 2002Donald L Patrick
Department of Health Services, University of Washington, Seattle, WA, USA
J Natl Cancer Inst 95:1110-7. 2003..The panel also concluded that the state of the science in cancer symptom management should be reassessed periodically... - The use of patient-reported outcomes instruments in registered clinical trials: evidence from ClinicalTrials.govJohn F Scoggins
Fred Hutchinson Cancer Research Center, 1100 Fairview Ave N, M3 B232, Seattle, WA 98109, United States
Contemp Clin Trials 30:289-92. 2009..This requirement is intended to discourage publication bias, such as the reporting of tests of hypotheses different from those stipulated at the start of the trial and selective reporting of partial results... - Longitudinal analysis of sexual function reported by men in the Prostate Cancer Prevention TrialCarol M Moinpour
Southwest Oncology Group Statistical Center, Fred Hutchinson Cancer Research Center M3 C102, 1100 Fairview Ave North, Box 19024, Seattle, WA 98109 1024, USA
J Natl Cancer Inst 99:1025-35. 2007..The PCPT offered an opportunity to prospectively study the effects of finasteride and other covariates on sexual dysfunction...
Research Grants
- Hearing Loss and Quality of Life of Children and YouthDonald Patrick; Fiscal Year: 2009....
- Quality of Life of Overweight Youth: Multicultural ViewDonald Patrick; Fiscal Year: 2007..Investigators: Multicultural team of experienced outcomes experts, obesity experts, endocrinologists, and community agents will collaborate to recruit, study, publish, and disseminate results. ..
- Biobehavioral Cancer Prevention and Control Training ProgramDonald Patrick; Fiscal Year: 2007..The broad effects of this training grant are felt by the faculty, the trainees, the affiliate fellows, and,indeed, by the departments and schools that house all of us. We seek continuous funding for our next five years. ..
- Quality of Life of Overweight Youth: Multicultural ViewDonald Patrick; Fiscal Year: 2007..Investigators: Multicultural team of experienced outcomes experts, obesity experts, endocrinologists, and community agents will collaborate to recruit, study, publish, and disseminate results. ..
- Hearing Loss and Quality of Life of Children and YouthDonald Patrick; Fiscal Year: 2007....
- Stigma & Quality of Life of Youth w/Facial DifferencesDonald Patrick; Fiscal Year: 2005..Participants for this study will be recruited from sites in Seattle, Chicago, and Chapel Hill, NC. ..
- Quality Life Among Youth with Craniofacial ConditionsDonald Patrick; Fiscal Year: 2004..S., and one in the United Kingdom. Adolescents and their parents will complete questionnaires at baseline, and gain at 1-2 year clinical follow-up. ..
- QUALITY OF LIFE AMONG ADOLESCENTS WITH CRANIOFACIAL CONDDonald Patrick; Fiscal Year: 2001..3. To compare verifiable quality of life reported by adolescents with craniofacial conditions with those of their mother (or primary caretaker). ..