Caprice A Knapp

Summary

Affiliation: University of Florida
Country: USA

Publications

  1. doi request reprint Partners in care: together for kids: Florida's model of pediatric palliative care
    Caprice A Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32610, USA
    J Palliat Med 11:1212-20. 2008
  2. doi request reprint e-Health in pediatric palliative care
    Caprice Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida, USA
    Am J Hosp Palliat Care 27:66-73. 2010
  3. ncbi request reprint Research in pediatric palliative care: closing the gap between what is and is not known
    Caprice A Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32608, USA
    Am J Hosp Palliat Care 26:392-8. 2009
  4. ncbi request reprint Measuring Quality in Pediatrics: Florida's Early Experiences with the CHIPRA Core Measure Set
    Caprice Knapp
    1329 SW 16th Street, Room 5130, Gainesville, FL, 32610, USA
    Matern Child Health J 18:1300-7. 2014
  5. doi request reprint Assessing the congruence of transition preparedness as reported by parents and their adolescents with special health care needs
    Caprice Knapp
    Department of Health Outcomes and Policy, College of Medicine, University of Florida, 1329 SW 16th Street, Gainesville, FL 32608, USA
    Matern Child Health J 17:352-8. 2013
  6. doi request reprint Factors associated with a medical home among children with Attention-Deficit Hyperactivity Disorder
    Caprice A Knapp
    Department of Health Outcomes and Policy, University of Florida, 1329 SW 16th Street, Room 5130, Gainesville, FL 32610, USA
    Matern Child Health J 16:1771-8. 2012
  7. doi request reprint Factors associated with perceived barriers to pediatric palliative care: a survey of pediatricians in Florida and California
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, Gainesville, FL 32610, USA
    Palliat Med 26:268-74. 2012
  8. doi request reprint Effects of an Integrated Care System on quality of care and satisfaction for children with special health care needs
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, 1329 SW 16th Street, Room 5130, Gainesville, FL 32610, USA
    Matern Child Health J 16:579-86. 2012
  9. doi request reprint Family support in pediatric palliative care: how are families impacted by their children's illnesses?
    Caprice A Knapp
    Department of Epidemiology and Health Policy Research, University of Florida, Gainesville, Florida 32604, USA
    J Palliat Med 13:421-6. 2010
  10. doi request reprint Parents' experiences in choosing a health plan for their children with special health care needs
    Caprice Knapp
    University of Florida, 1329 SW 16th Street, Gainesville, FL 32610, USA
    Matern Child Health J 15:217-24. 2011

Detail Information

Publications37

  1. doi request reprint Partners in care: together for kids: Florida's model of pediatric palliative care
    Caprice A Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32610, USA
    J Palliat Med 11:1212-20. 2008
    ..The program relies on partnerships between state-employed care coordinators who identify the children for possible enrollment and hospice staff who provide home and community-based services...
  2. doi request reprint e-Health in pediatric palliative care
    Caprice Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida, USA
    Am J Hosp Palliat Care 27:66-73. 2010
    ....
  3. ncbi request reprint Research in pediatric palliative care: closing the gap between what is and is not known
    Caprice A Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32608, USA
    Am J Hosp Palliat Care 26:392-8. 2009
    ..Subsequent articles will focus on specific topics such as decision making and support care. The purpose of this series is to inform and promote discussion about research in pediatric palliative care...
  4. ncbi request reprint Measuring Quality in Pediatrics: Florida's Early Experiences with the CHIPRA Core Measure Set
    Caprice Knapp
    1329 SW 16th Street, Room 5130, Gainesville, FL, 32610, USA
    Matern Child Health J 18:1300-7. 2014
    ..Once meaningful comparisons can be made, Florida will be able to better plan for the future of child health and health outcomes. ..
  5. doi request reprint Assessing the congruence of transition preparedness as reported by parents and their adolescents with special health care needs
    Caprice Knapp
    Department of Health Outcomes and Policy, College of Medicine, University of Florida, 1329 SW 16th Street, Gainesville, FL 32608, USA
    Matern Child Health J 17:352-8. 2013
    ..It is important to ensure that adolescents, not just parents, have a thorough understanding of transition since they will ultimately be responsible for their own health care once they reach adulthood...
  6. doi request reprint Factors associated with a medical home among children with Attention-Deficit Hyperactivity Disorder
    Caprice A Knapp
    Department of Health Outcomes and Policy, University of Florida, 1329 SW 16th Street, Room 5130, Gainesville, FL 32610, USA
    Matern Child Health J 16:1771-8. 2012
    ..These complexities should be addressed during practice transformation and setting reimbursement policies...
  7. doi request reprint Factors associated with perceived barriers to pediatric palliative care: a survey of pediatricians in Florida and California
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, Gainesville, FL 32610, USA
    Palliat Med 26:268-74. 2012
    ..Our study has two aims: (1) to describe the barriers to pediatric palliative care as reported by a group of pediatricians practicing in two large States in the US; and (2) to identify factors associated with these perceived barriers...
  8. doi request reprint Effects of an Integrated Care System on quality of care and satisfaction for children with special health care needs
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, 1329 SW 16th Street, Room 5130, Gainesville, FL 32610, USA
    Matern Child Health J 16:579-86. 2012
    ..It is important to present these interim findings so that progress can be monitored and decision-makers can begin to consider if the program should be expanded statewide...
  9. doi request reprint Family support in pediatric palliative care: how are families impacted by their children's illnesses?
    Caprice A Knapp
    Department of Epidemiology and Health Policy Research, University of Florida, Gainesville, Florida 32604, USA
    J Palliat Med 13:421-6. 2010
    ..By understanding how families are impacted, programs can refine their service provision and investigate unmet needs...
  10. doi request reprint Parents' experiences in choosing a health plan for their children with special health care needs
    Caprice Knapp
    University of Florida, 1329 SW 16th Street, Gainesville, FL 32610, USA
    Matern Child Health J 15:217-24. 2011
    ..Race and ethnicity seemed to have the most systematic effect on the parents' experiences in choosing a health plan for their CSHCN, highlighting the need for further research to ensure that information is appropriate across subgroups...
  11. ncbi request reprint Conducting outcomes research in pediatric palliative care
    Caprice Knapp
    University of Florida, College of Medicine, Gainesville, FL, USA
    Am J Hosp Palliat Care 27:277-81. 2010
    ..This article outlines some of the complexities of measuring outcomes in pediatric palliative care. It is recommended that national and international collaborations include representatives of the pediatric palliative care community...
  12. ncbi request reprint Factors affecting decisional conflict for parents with children enrolled in a paediatric palliative care programme
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, USA
    Int J Palliat Nurs 16:542-7. 2010
    ..Palliative care programmes have the potential to affect several health outcomes for children and families, including reducing decisional conflict...
  13. doi request reprint Information seeking behaviors of parents whose children have life-threatening illnesses
    Caprice Knapp
    Department of Epidemiology and Health Policy Research, College of Medicine, University of Florida, Gainesville, Florida, USA
    Pediatr Blood Cancer 56:805-11. 2011
    ..For children with life-threatening illnesses we sought to (1) understand the associations between parental characteristics and preferred health information sources, and (2) assess the e-health literacy of Internet-users...
  14. doi request reprint Spirituality of parents of children in palliative care
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, Gainesville, Florida 32610, USA
    J Palliat Med 14:437-43. 2011
    ..To determine the spirituality of parents whose children have life-limiting illnesses and to determine the factors associated with parents' spirituality...
  15. doi request reprint Pediatric palliative care provision around the world: a systematic review
    Caprice Knapp
    Department of Health Outcomes and Policy, College of Medicine, University of Florida, Gainesville, FL, USA
    Pediatr Blood Cancer 57:361-8. 2011
    ..9% had localized provision, and 5.7% had provision that was reaching mainstream providers. Understanding the geographic distribution in the level of provision is crucial for policy makers and funders...
  16. pmc Posthumous reproduction and palliative care
    Caprice Knapp
    Department of Health Outcomes and Policy, University of Florida, Gainesville, Florida 32610, USA
    J Palliat Med 14:895-8. 2011
    ..Having knowledge of these issues, and a list of available resources, will be useful if hospice and palliative care staff find themselves facing a patient or family that is considering posthumous reproduction...
  17. pmc Internet use and eHealth literacy of low-income parents whose children have special health care needs
    Caprice Knapp
    University of Florida, Department of Health Outcomes and Policy, Gainesville, FL 32610, USA
    J Med Internet Res 13:e75. 2011
    ..This is especially important for parents of children with special health care needs who are forced to make many medical decisions throughout the lives of their children. Yet, no information is available about this vulnerable group...
  18. doi request reprint Assessing non-response bias in pediatric palliative care research
    Caprice A Knapp
    Departments of Epidemiology and Health Policy Research, University of Florida, Gainesville FL, USA
    Palliat Med 24:340-7. 2010
    ..Only 3% of the Black, non-Hispanic parents who did not participate flatly refused. Information from this study can be used to design interventions aimed at increasing minority participation in pediatric palliative care research...
  19. doi request reprint Developing a pediatric palliative care program: addressing the lack of baseline expenditure information
    Caprice A Knapp
    Department of Pediatrics, College of Medicine, University of Florida, 1329 SW 16th Street, Gainesville, FL 32608, USA
    Am J Hosp Palliat Care 26:40-6. 2009
    ..Baseline expenditure information from this study can be used to develop integrated pediatric palliative care models. Our findings also suggest that many more children could potentially benefit by using hospice care at the end of life...
  20. doi request reprint Paediatricians' perceptions on referrals to paediatric palliative care
    C Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32610, USA
    Palliat Med 23:418-24. 2009
    ..Results suggest that health planners who wish to implement or refine integrated paediatric palliative care programs should consider outreach strategies targeted at paediatricians with specific characteristics...
  21. ncbi request reprint Pediatric palliative care: describing hospice users and identifying factors that affect hospice expenditures
    Caprice A Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32604, USA
    J Palliat Med 12:223-9. 2009
    ..However, little information exists to understand pediatric hospice care. This study seeks to describe Medicaid pediatric hospice and nonhospice users and to identify factors that affect hospice expenditures...
  22. pmc An evaluation of two decision-making scales for children with life-limiting illnesses
    C Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32610, USA
    Palliat Med 23:518-25. 2009
    ..This study aims to validate the psychometric properties of the Decisional Conflict Scale (DCS) and the COMRADE instruments for children with life-limiting illnesses...
  23. doi request reprint Factors that affect parent perceptions of provider-family partnership for children with special health care needs
    Caprice A Knapp
    Institute for Child Health Policy, University of Florida, Gainesville, FL, 32610, USA
    Matern Child Health J 14:742-50. 2010
    ..This study suggests that policies aimed at promoting family-provider partnership could increase health outcomes for CSHCN...
  24. doi request reprint Music therapy in an integrated pediatric palliative care program
    Caprice Knapp
    Departments of Epidemiology and Health Policy Research, University of Florida, Gainesville, FL, USA
    Am J Hosp Palliat Care 26:449-55. 2009
    ..05) versus parents whose children did not use music therapy. Pediatric palliative care programs should include music therapy, although recruiting licensed music therapists may be challenging...
  25. doi request reprint Effect of a pediatric palliative care program on nurses' referral preferences
    Caprice A Knapp
    Department of Epidemiology, University of Florida, Gainesville, Florida 32604, USA
    J Palliat Med 12:1131-6. 2009
    ..This study aims to estimate the differtences in referral preferences of nurses who work in Partners in Care: Together for Kids (PIC:TFK) program areas versus nurses who work in non-PIC:TFK areas...
  26. doi request reprint Family support services in pediatric palliative care
    Caprice A Knapp
    Departments of Epidemiology and Health Policy Research, University of Florida, 1329 SW 16th St, Room 5130, Gainesville, FL 32610, USA
    Am J Hosp Palliat Care 26:476-82. 2009
    ..Although these studies are insightful, further information is needed to understand families' needs along the illness trajectory and to determine whether unmet needs exist...
  27. ncbi request reprint Paediatric nurses' knowledge of palliative care in Florida: a quantitative study
    Caprice A Knapp
    Department of Epidemiology, Florida University, USA
    Int J Palliat Nurs 15:432-9. 2009
    ..Paediatric nurses in Florida have a good level of baseline knowledge of palliative care. Nurses' training programs should be used to increase knowledge, which may subsequently lead to more referrals...
  28. doi request reprint Adolescents with life-threatening illnesses
    Caprice Knapp
    University of Florida, Gainesville, USA
    Am J Hosp Palliat Care 27:139-44. 2010
    ..To meet the unique needs of adolescents, specific palliative care programs may need to be developed...
  29. ncbi request reprint Pediatric nurses' attitudes toward hospice and pediatric palliative care
    Caprice A Knapp
    Department of Health Outcomes and Policy, University of Florida, Gainesville, FL, USA
    Pediatr Nurs 37:121-6. 2011
    ....
  30. doi request reprint The linkage between pediatric quality of life and health conditions: establishing clinically meaningful cutoff scores for the PedsQL
    I Chan Huang
    Department of Epidemiology and Health Policy Research, College of Medicine, University of Florida, Gainesville, FL, USA
    Value Health 12:773-81. 2009
    ..To link pediatric health-related quality of life (HRQOL) and health conditions by establishing clinically meaningful cutoff scores for an HRQOL instrument, the Pediatric Quality of Life Inventory (PedsQL)...
  31. pmc Measuring quality of life in pediatric palliative care: challenges and potential solutions
    I Chan Huang
    Department of Epidemiology and Health Policy Research, University of Florida, 1329 SW 16th Street, Room 5277, Gainesville, Florida 32608, USA
    Palliat Med 24:175-82. 2010
    ..We point out future directions to refine or develop HRQOL instruments for this population of vulnerable children...
  32. doi request reprint Caring for children with life-threatening illnesses: impact on White, African American, and Latino families
    Melanie Sberna Hinojosa
    Department of Health Outcomes and Policy, University of Florida, College of Medicine, Gainesville, FL, USA
    J Pediatr Nurs 27:500-7. 2012
    ..Continued study of this group of parents is critical to developing culturally appropriate interventions to reduce strain and burden and improve the quality of life for families...
  33. doi request reprint Pediatricians' management practices for chronic pain
    Lindsay A Thompson
    Department of Pediatrics, University of Florida, Gainesville, Florida 32608, USA
    J Palliat Med 13:171-8. 2010
    ..This study asks pediatricians who they believe should treat pain and how pain should be assessed and managed...
  34. pmc Agreement was not found in adolescents' quality of life rated by parents and adolescents
    I Chan Huang
    Department of Epidemiology and Health Policy Research, College of Medicine, University of Florida, Gainesville, FL 32610 0147, USA
    J Clin Epidemiol 62:337-46. 2009
    ..This study aimed to test whether agreement exists between the dyads using a methodology of measurement invariance...
  35. doi request reprint The impact of insurance on satisfaction and family-centered care for CSHCN
    Lindsay A Thompson
    Department of Pediatrics, University of Florida, College of Medicine, Gainesville, FL 32608, USA
    Pediatrics 124:S420-7. 2009
    ..Although individual characteristics influence satisfaction and family-centered care, additional effects of health insurance and state child health policies are unknown...
  36. doi request reprint Effect of an Integrated Care System on Utilization for CSHCN in Florida
    Mircea I Marcu
    Department of Health Outcomes and Policy, Institute for Child Health Policy, University of Florida, 1329 SW 16th Street, Room 5280 32, Gainesville, FL, 32610, USA
    Matern Child Health J 18:38-44. 2014
    ..The ICS presents a viable model of managed care for CSHCN that could result in cost savings. Results should be interpreted with care because the full effects of the ICS implementation may take more time to materialize. ..
  37. doi request reprint Physicians' undecided attitudes toward posthumous reproduction: fertility preservation in cancer patients with a poor prognosis
    Gwendolyn P Quinn
    Morsani College of Medicine, University of South Florida, Tampa, Florida, USA
    J Support Oncol 10:160-5. 2012
    ..In a national study of US oncologists, we examined attitudes toward the use of fertility preservation among patients with a poor prognosis, focusing on attitudes toward posthumous reproduction...