Research Topics
| Gail E HendersonSummaryAffiliation: University of North Carolina Country: USA Publications
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Publications
Is informed consent broken?Gail E Henderson
Department of Social Medicine, School of Medicine, University of North Carolina at Chapel Hill, 333 South Columbia Street, Rm 347 MacNider, Chapel Hill, NC 2799 7240, USA
Am J Med Sci 342:267-72. 2011..Because more research is conducted under these new conditions, the very nature of the researcher-subject relationship is shifting and will require new governance mechanisms to promote the original goals of informed consent...- Great expectations: views of genetic research participants regarding current and future genetic studiesGail Henderson
Department of Social Medicine, University of North Carolina School of Medicine, Chapel Hill, North Carolina 27599 7240, USA
Genet Med 10:193-200. 2008..We explored attitudes toward genetic research participation among people in a case-control genetic epidemiology study of colon cancer, the North Carolina Colorectal Cancer Study (NCCCS)... 
Clinical trials and medical care: defining the therapeutic misconceptionGail E Henderson
University of North Carolina at ChapelHill, Chapel Hill, North Carolina, United Statesof America
PLoS Med 4:e324. 2007
Uncertain benefit: investigators' views and communications in early phase gene transfer trialsGail E Henderson
Department of Social Medicine, University of North Carolina School of Medicine, Chapel Hill, NC 27599 7240, USA
Mol Ther 10:225-31. 2004..This dilemma cannot be effectively addressed by individual investigators alone, but must be acknowledged and openly discussed by the scientific community at large...- Therapeutic misconception in early phase gene transfer trialsGail E Henderson
School of Medicine, University of NC at Chapel Hill, CB 7240, Chapel Hill, NC 27599 7240, USA
Soc Sci Med 62:239-53. 2006..We hope that this work will deepen the discussion of how to define and measure TM, and refine the specification of factors that are related to subjects' TM... - Consent forms and the therapeutic misconception: the example of gene transfer researchNancy M P King
University of North Carolina at Chapel Hill, USA
IRB 27:1-8. 2005 - The many meanings of care in clinical researchMichele M Easter
Department of Social Medicine, University of North Carolina at Chapel Hill, NC 27499 7240, USA
Sociol Health Illn 28:695-712. 2006.... - Confidentiality: more than a linkage file and a locked drawerMichele M Easter
Department of Social Medicine, School of Medicine, University of North Carolina at Chapel Hill, USA
IRB 26:13-7. 2004 - Vulnerability to influence: a two-way streetGail E Henderson
University of North Carolina School of Medicine, USA
Am J Bioeth 4:50-2; discussion W32. 2004 - The invisible hand in clinical research: the study coordinator's critical role in human subjects protectionArlene M Davis
University of North Carolina School of Medicine, USA
J Law Med Ethics 30:411-9. 2002 
Parents' online portrayals of pediatric treatment and research optionsRebecca Schaffer
University of North Carolina at Chapel Hill, USA
J Empir Res Hum Res Ethics 4:73-87. 2009..Our discussion of these findings clarifies the potential for parent-authored websites to inform and influence families considering research and treatment options for their seriously ill children...- Conceptualizing race in researchGiselle Corbie-Smith
Department of Social Medicine, School of Medicine, University of North Carolina at Chapel Hill, 27599, USA
J Natl Med Assoc 100:1235-43. 2008..Given this continued controversy, we examined how investigators interpret the concept of "race" and whether their views of race are reflected in their published work... - Studying genetic research participants: lessons from the "Learning About Research in North Carolina" studyGiselle Corbie-Smith
Department of Social Medicine, Cecil G Sheps Center for Health Services Research, University of North Carolina, 725 Martin Luther King Jr Boulevard, Chapel Hill, NC 27599, USA
Cancer Epidemiol Biomarkers Prev 17:2019-24. 2008..In this article, we give an overview of the LeARN study, summarizing the methods we used, challenges we encountered, and lessons learned about recruiting participants who have previously participated in genetic research... - Relationships and communication in minority participation in research: multidimensional and multidirectionalGiselle Corbie-Smith
Department of Social Medicine, School of Medicine, University of North Carolina at Chapel Hill, North Carolina 27599 7240, USA
J Natl Med Assoc 99:489-98. 2007..These relationships can both facilitate the recruitment process as well as aid in the interpretation of research findings... - Public willingness to participate in and public opinions about genetic variation research: a review of the literatureRene Sterling
School of Public Health, University of North Carolina, Chapel Hill, NC 27599-7240, USA
Am J Public Health 96:1971-8. 2006..We review empirical studies of public willingness to participate in and opinions about genetic research with particular attention to differences in consent and opinion by racial/ethnic group membership... - The role of race and trust in tissue/blood donation for genetic researchJada Bussey-Jones
School of Medicine, Emory University, Atlanta, Georgia 30331, USA
Genet Med 12:116-21. 2010.... - Assessing benefits in clinical research: why diversity in benefit assessment can be riskyLarry R Churchill
Vanderbilt University, USA
IRB 25:1-8. 2003