- Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banksSan D Keller
Department of Health Policy and Research, Quality and Performance Measurement Program, American Institutes for Research, 100 Europa Drive, Suite 315, Chapel Hill 27517 2357, NC, USA
Health Qual Life Outcomes 12:125. 2014..Here we describe methods and results of the psychometric evaluation of ASCQ-Me item banks (IBs)...
- Population estimates of sickle cell disease in the U.SKathryn L Hassell
Colorado Sickle Cell Treatment and Research Center, University of Colorado Denver Health Sciences Center, Aurora, CO 80045, USA
Am J Prev Med 38:S512-21. 2010..The number of individuals with sickle cell disease (SCD) in the U.S. is unknown. Determination of burden of disease, healthcare issues, and policies is best served by representative estimations of the SCD population...