Research Topics
| E GiarelliSummaryAffiliation: University of Pennsylvania Country: USA Publications
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Detail Information
Publications
Issues related to the use of genetic material and informationE Giarelli
School of Nursing, Center for Serious Illness, University of Pennsylvania, Philadelphia, USA
Oncol Nurs Forum 27:459-67. 2000..To review issues regarding the use of genetic materials and information...
Bringing threat to the fore: participating in lifelong surveillance for genetic risk of cancerEllen Giarelli
School of Nursing at the University of Pennsylvania, Philadelphia, PA, USA
Oncol Nurs Forum 30:945-55. 2003..To explain how patients with multiple endocrine neoplasia type 2a (MEN2a) and family members conceptualize participation in lifelong surveillance in genetic cancer care...
"Not lighting up": a case study of a woman who quit smokingEllen Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, PA, USA
Oncol Nurs Forum 31:E54-63. 2004....
Modifying cancer risk factors: the gene-environment interactionEllen Giarelli
University of Pennsylvania School of Nursing, 420 Guardian Dr, Philadelphia, PA 19104, USA
Semin Oncol Nurs 21:271-7. 2005..To examine the concept of risk modification in the context of cancer prevention...
Smoking cessation for women: evidence of the effectiveness of nursing interventionsEllen Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, USA
Clin J Oncol Nurs 10:667-71. 2006..Smoking causes skin wrinkling and sexual dysfunction, which can be mediated by smoking cessation. Even after a diagnosis of cancer, smoking cessation improves the odds of survival and reduces the risk of developing a second cancer...
Adolescents' transition to self-management of a chronic genetic disorderEllen Giarelli
University of Pennsylvania School of Nursing, Biobehavioral Research Center, Philadelphia, Pennsylvania 19104, USA
Qual Health Res 18:441-57. 2008..Transition to self-management is part of an evolving model of participation in life-long surveillance...
Attitudes antecedent to transition to self-management of a chronic genetic disorderE Giarelli
University of Pennsylvania, School of Nursing, Biobehavioral Research Center, Philadelphia, PA, USA
Clin Genet 74:325-37. 2008..A systematic, institutionalized transition program for adolescents might involve parents and the child soon after diagnosis and incrementally build acknowledgment, understanding, and rapport...
Self-surveillance by adolescents and young adults transitioning to self-management of a chronic genetic disorderEllen Giarelli
University of Pennsylvania, Philadelphia, 19104, USA
Health Educ Behav 37:133-50. 2010..The patient-parent-physician relationship is the context for teaching adolescents and young adults self-surveillance skills. Self-surveillance by patients is first-line symptom assessment and an adjunct to medical monitoring...
Developmental disabilities and behavioral problems among school children in the Western Cape of South AfricaEllen Giarelli
School of Nursing, Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, 418 Curie Blvd, Philadelphia, PA 19104, USA
Res Dev Disabil 30:1297-305. 2009....
Sex differences in the evaluation and diagnosis of autism spectrum disorders among childrenEllen Giarelli
University of Pennsylvania School of Nursing, Philadelphia, 19104, USA
Disabil Health J 3:107-16. 2010....
Traditional healing and HIV-AIDS in KwaZulu-Natal, South AfricaEllen Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, PA, USA
Am J Nurs 103:36-46; quiz 46-7. 2003
Research participation among Asian American women at risk for cervical cancer: exploratory pilot of barriers and enhancersEllen Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, PA 19104 4217, USA
J Immigr Minor Health 13:1055-68. 2011..Asian research participants in our study consistently expressed that a significant motivator was their desire to be of help, in some way, to a family member or to the Asian community in general...
Safeguarding being: a bioethical principle for genetic nursing careEllen Giarelli
Research Projects Director, Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104, USA
Nurs Ethics 10:255-68. 2003..The notion of 'taking care' is related to nursing in genetic health care to form a standard of conduct and a moral imperative to 'safeguard being'...
Intervention pilot for parents of children with autistic spectrum disorderEllen Giarelli
University of Pennsylvania, School of Nursing, Philadelphia, PA, USA
Pediatr Nurs 31:389-99. 2005....
Self-surveillance for genetic predisposition to cancer: behaviors and emotionsEllen Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, USA
Oncol Nurs Forum 33:221-31. 2006....
A model of survivorship in cancer genetic careLinda A Jacobs
Living Well After Cancer Program, Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA 19104-4283, USA
Semin Oncol Nurs 20:196-202. 2004....
Ethical issues in genetic testing. The experiences of one family diagnosed with an inherited cancer syndromeE Giarelli
University of Pennsylvania School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104, USA
J Infus Nurs 24:301-10. 2001..Sometimes, however, issues that are morally problematic cannot be settled by simply referring to standards of practice and bioethical norms. In these cases all stakeholders must struggle together to resolve the conflict...
Racial/ethnic disparities in the identification of children with autism spectrum disordersDavid S Mandell
University of Pennsylvania School of Medicine, Department of Psychiatry, Center for Mental Health Policy and Services Research, 3535 Market Street, Philadelphia, PA 19104, USA
Am J Public Health 99:493-8. 2009..We sought to examine racial and ethnic disparities in the recognition of autism spectrum disorders (ASDs)...
The role of nurses in screening for autistic spectrum disorder in pediatric primary careJennifer A Pinto-Martin
Division of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA
J Pediatr Nurs 20:163-9. 2005..The authors discuss the role of nurses in establishing systems within pediatric primary care to identify and refer children at risk for ASD...
The adolescent research participant: strategies for productive and ethical interviewingRita Mack
University of Pennsylvania, School of Nursing, Philadelphia, PA, USA
J Pediatr Nurs 24:448-57. 2009..Strategies presented are useful to clinicians who wish to establish a therapeutic rapport with young patients...
Screening strategies for autism spectrum disorders in pediatric primary careJennifer A Pinto-Martin
Biobehavioral and Health Sciences Division, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA
J Dev Behav Pediatr 29:345-50. 2008..The relative yield of these two strategies has not been examined...
The epidemiology of autism spectrum disordersCraig J Newschaffer
Department of Epidemiology and Biostatistics, Drexel University School of Public Health, Philadelphia, PA 19102, USA
Annu Rev Public Health 28:235-58. 2007....
Multiple endocrine neoplasia type 2a (MEN2a): a call for psycho-social researchEllen Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, PA 19104, USA
Psychooncology 11:59-73. 2002..Since MEN2a has been labeled a prototype for medical genetics, information on MEN2a patient experiences may be relevant to the care of individuals with other inherited cancer syndromes...
Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United StatesSusan E Levy
The Children s Hospital of Philadelphia, Philadelphia, PA 19104, USA
J Dev Behav Pediatr 31:267-75. 2010..Autism spectrum disorders (ASDs) often co-occur with other developmental, psychiatric, neurologic, or medical diagnoses...
SNAP-shots: scenes from nursing action plans--the cultivation of leadership in oncology nursingE Giarelli
School of Nursing, University of Pennsylvania, Philadelphia, USA
Oncol Nurs Forum 28:883-93. 2001..IMPLICATIONS FOR NURSING PRACTICE: The contributions of nurses may be simple of complex and affect single individuals, groups, or institutions. In all cases, oncology nursing practice and cancer care may be enhanced...
Methodological issues in the use of published cartoons as dataEllen Giarelli
Center for Autism Epidemiology and Research, School of Nursing, University of Pennsylvania, Philadelphia, USA
Qual Health Res 13:945-56. 2003..Analysis of the image and text of cartoons has the potential to yield important understanding of public discourse surrounding issues of the public's health and well-being...
A concept model for individual surveillance in genetic cancer careEllen Giarelli
University of Pennsylvania, School of Nursing, Philadelphia 19104, USA
J Cancer Educ 17:78-82. 2002..MODEL: The model can be used, by a clinician and a patient, to describe and understand the meaning of individual surveillance for participants in a systematic, holistic, and highly personal way...
Relationship of dietary intake to gastrointestinal symptoms in children with autistic spectrum disordersSusan E Levy
Division of Child Development and Rehabilitation, Children s Seashore House of The Children s Hospital of Philadelphia, Philadelphia, Pennsylvania, USA
Biol Psychiatry 61:492-7. 2007..The purpose of this study was to 1) describe dietary intake of a cohort of children with ASD compared with normative data and 2) determine whether GI symptoms and stool consistency are related to dietary intake...
Cancer vaccines: a new frontier in prevention and treatmentEllen Giarelli
University of Pennsylvania School of Nursing, Philadelphia, USA
Oncology (Williston Park) 21:11-7; discussion 18. 2007..Oncology nurses may play a significant role in reducing barriers to uptake of preventive vaccines among the general public and in increasing patients' acceptance of therapeutic cancer vaccines...
Improving the quality of life through education: a pilot program of symptom management classes for oncology patientsSusan Nemetz
Loran Smith Center for Cancer Support, Athens Regional Medical Center, Athens, GA, USA
Am J Nurs 102:40-2; quiz 49-52. 2002
To screen or not to screen: using spiral computerized tomography in the early detection of lung cancerEllen Giarelli
Clin J Oncol Nurs 6:223-4. 2002
Prophylactic gastrectomy for CDH1 mutation carriersEllen Giarelli
Clin J Oncol Nurs 6:161-2. 2002....
Reflections of a health policy advocate: the natural extension of nursing activitiesMelinda Granger Oberleitner
Oncol Nurs Forum 29:1261-3. 2002
