E Giarelli

Summary

Affiliation: University of Pennsylvania
Country: USA

Publications

  1. ncbi Issues related to the use of genetic material and information
    E Giarelli
    School of Nursing, Center for Serious Illness, University of Pennsylvania, Philadelphia, USA
    Oncol Nurs Forum 27:459-67. 2000
  2. ncbi Bringing threat to the fore: participating in lifelong surveillance for genetic risk of cancer
    Ellen Giarelli
    School of Nursing at the University of Pennsylvania, Philadelphia, PA, USA
    Oncol Nurs Forum 30:945-55. 2003
  3. ncbi "Not lighting up": a case study of a woman who quit smoking
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, PA, USA
    Oncol Nurs Forum 31:E54-63. 2004
  4. ncbi Modifying cancer risk factors: the gene-environment interaction
    Ellen Giarelli
    University of Pennsylvania School of Nursing, 420 Guardian Dr, Philadelphia, PA 19104, USA
    Semin Oncol Nurs 21:271-7. 2005
  5. ncbi Smoking cessation for women: evidence of the effectiveness of nursing interventions
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, USA
    Clin J Oncol Nurs 10:667-71. 2006
  6. doi Adolescents' transition to self-management of a chronic genetic disorder
    Ellen Giarelli
    University of Pennsylvania School of Nursing, Biobehavioral Research Center, Philadelphia, Pennsylvania 19104, USA
    Qual Health Res 18:441-57. 2008
  7. doi Attitudes antecedent to transition to self-management of a chronic genetic disorder
    E Giarelli
    University of Pennsylvania, School of Nursing, Biobehavioral Research Center, Philadelphia, PA, USA
    Clin Genet 74:325-37. 2008
  8. doi Self-surveillance by adolescents and young adults transitioning to self-management of a chronic genetic disorder
    Ellen Giarelli
    University of Pennsylvania, Philadelphia, 19104, USA
    Health Educ Behav 37:133-50. 2010
  9. doi Developmental disabilities and behavioral problems among school children in the Western Cape of South Africa
    Ellen Giarelli
    School of Nursing, Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, 418 Curie Blvd, Philadelphia, PA 19104, USA
    Res Dev Disabil 30:1297-305. 2009
  10. doi Sex differences in the evaluation and diagnosis of autism spectrum disorders among children
    Ellen Giarelli
    University of Pennsylvania School of Nursing, Philadelphia, 19104, USA
    Disabil Health J 3:107-16. 2010

Detail Information

Publications33

  1. ncbi Issues related to the use of genetic material and information
    E Giarelli
    School of Nursing, Center for Serious Illness, University of Pennsylvania, Philadelphia, USA
    Oncol Nurs Forum 27:459-67. 2000
    ..To review issues regarding the use of genetic materials and information...
  2. ncbi Bringing threat to the fore: participating in lifelong surveillance for genetic risk of cancer
    Ellen Giarelli
    School of Nursing at the University of Pennsylvania, Philadelphia, PA, USA
    Oncol Nurs Forum 30:945-55. 2003
    ..To explain how patients with multiple endocrine neoplasia type 2a (MEN2a) and family members conceptualize participation in lifelong surveillance in genetic cancer care...
  3. ncbi "Not lighting up": a case study of a woman who quit smoking
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, PA, USA
    Oncol Nurs Forum 31:E54-63. 2004
    ....
  4. ncbi Modifying cancer risk factors: the gene-environment interaction
    Ellen Giarelli
    University of Pennsylvania School of Nursing, 420 Guardian Dr, Philadelphia, PA 19104, USA
    Semin Oncol Nurs 21:271-7. 2005
    ..To examine the concept of risk modification in the context of cancer prevention...
  5. ncbi Smoking cessation for women: evidence of the effectiveness of nursing interventions
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, USA
    Clin J Oncol Nurs 10:667-71. 2006
    ..Smoking causes skin wrinkling and sexual dysfunction, which can be mediated by smoking cessation. Even after a diagnosis of cancer, smoking cessation improves the odds of survival and reduces the risk of developing a second cancer...
  6. doi Adolescents' transition to self-management of a chronic genetic disorder
    Ellen Giarelli
    University of Pennsylvania School of Nursing, Biobehavioral Research Center, Philadelphia, Pennsylvania 19104, USA
    Qual Health Res 18:441-57. 2008
    ..Transition to self-management is part of an evolving model of participation in life-long surveillance...
  7. doi Attitudes antecedent to transition to self-management of a chronic genetic disorder
    E Giarelli
    University of Pennsylvania, School of Nursing, Biobehavioral Research Center, Philadelphia, PA, USA
    Clin Genet 74:325-37. 2008
    ..A systematic, institutionalized transition program for adolescents might involve parents and the child soon after diagnosis and incrementally build acknowledgment, understanding, and rapport...
  8. doi Self-surveillance by adolescents and young adults transitioning to self-management of a chronic genetic disorder
    Ellen Giarelli
    University of Pennsylvania, Philadelphia, 19104, USA
    Health Educ Behav 37:133-50. 2010
    ..The patient-parent-physician relationship is the context for teaching adolescents and young adults self-surveillance skills. Self-surveillance by patients is first-line symptom assessment and an adjunct to medical monitoring...
  9. doi Developmental disabilities and behavioral problems among school children in the Western Cape of South Africa
    Ellen Giarelli
    School of Nursing, Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, 418 Curie Blvd, Philadelphia, PA 19104, USA
    Res Dev Disabil 30:1297-305. 2009
    ....
  10. doi Sex differences in the evaluation and diagnosis of autism spectrum disorders among children
    Ellen Giarelli
    University of Pennsylvania School of Nursing, Philadelphia, 19104, USA
    Disabil Health J 3:107-16. 2010
    ....
  11. ncbi Traditional healing and HIV-AIDS in KwaZulu-Natal, South Africa
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, PA, USA
    Am J Nurs 103:36-46; quiz 46-7. 2003
  12. doi Research participation among Asian American women at risk for cervical cancer: exploratory pilot of barriers and enhancers
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, PA 19104 4217, USA
    J Immigr Minor Health 13:1055-68. 2011
    ..Asian research participants in our study consistently expressed that a significant motivator was their desire to be of help, in some way, to a family member or to the Asian community in general...
  13. ncbi Safeguarding being: a bioethical principle for genetic nursing care
    Ellen Giarelli
    Research Projects Director, Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104, USA
    Nurs Ethics 10:255-68. 2003
    ..The notion of 'taking care' is related to nursing in genetic health care to form a standard of conduct and a moral imperative to 'safeguard being'...
  14. ncbi Intervention pilot for parents of children with autistic spectrum disorder
    Ellen Giarelli
    University of Pennsylvania, School of Nursing, Philadelphia, PA, USA
    Pediatr Nurs 31:389-99. 2005
    ....
  15. ncbi Self-surveillance for genetic predisposition to cancer: behaviors and emotions
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, USA
    Oncol Nurs Forum 33:221-31. 2006
    ....
  16. ncbi A model of survivorship in cancer genetic care
    Linda A Jacobs
    Living Well After Cancer Program, Abramson Cancer Center, University of Pennsylvania, Philadelphia, PA 19104 4283, USA
    Semin Oncol Nurs 20:196-202. 2004
    ..To propose a shift in the paradigm of survivorship in genetic cancer care...
  17. ncbi Ethical issues in genetic testing. The experiences of one family diagnosed with an inherited cancer syndrome
    E Giarelli
    University of Pennsylvania School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104, USA
    J Infus Nurs 24:301-10. 2001
    ..Sometimes, however, issues that are morally problematic cannot be settled by simply referring to standards of practice and bioethical norms. In these cases all stakeholders must struggle together to resolve the conflict...
  18. pmc Racial/ethnic disparities in the identification of children with autism spectrum disorders
    David S Mandell
    University of Pennsylvania School of Medicine, Department of Psychiatry, Center for Mental Health Policy and Services Research, 3535 Market Street, Philadelphia, PA 19104, USA
    Am J Public Health 99:493-8. 2009
    ..We sought to examine racial and ethnic disparities in the recognition of autism spectrum disorders (ASDs)...
  19. ncbi The role of nurses in screening for autistic spectrum disorder in pediatric primary care
    Jennifer A Pinto-Martin
    Division of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA
    J Pediatr Nurs 20:163-9. 2005
    ..The authors discuss the role of nurses in establishing systems within pediatric primary care to identify and refer children at risk for ASD...
  20. doi The adolescent research participant: strategies for productive and ethical interviewing
    Rita Mack
    University of Pennsylvania, School of Nursing, Philadelphia, PA, USA
    J Pediatr Nurs 24:448-57. 2009
    ..Strategies presented are useful to clinicians who wish to establish a therapeutic rapport with young patients...
  21. doi Screening strategies for autism spectrum disorders in pediatric primary care
    Jennifer A Pinto-Martin
    Biobehavioral and Health Sciences Division, University of Pennsylvania School of Nursing, Philadelphia, PA 19104, USA
    J Dev Behav Pediatr 29:345-50. 2008
    ..The relative yield of these two strategies has not been examined...
  22. ncbi The epidemiology of autism spectrum disorders
    Craig J Newschaffer
    Department of Epidemiology and Biostatistics, Drexel University School of Public Health, Philadelphia, PA 19102, USA
    Annu Rev Public Health 28:235-58. 2007
    ....
  23. ncbi Multiple endocrine neoplasia type 2a (MEN2a): a call for psycho-social research
    Ellen Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, PA 19104, USA
    Psychooncology 11:59-73. 2002
    ..Since MEN2a has been labeled a prototype for medical genetics, information on MEN2a patient experiences may be relevant to the care of individuals with other inherited cancer syndromes...
  24. doi Autism spectrum disorder and co-occurring developmental, psychiatric, and medical conditions among children in multiple populations of the United States
    Susan E Levy
    The Children s Hospital of Philadelphia, Philadelphia, PA 19104, USA
    J Dev Behav Pediatr 31:267-75. 2010
    ..Autism spectrum disorders (ASDs) often co-occur with other developmental, psychiatric, neurologic, or medical diagnoses...
  25. ncbi SNAP-shots: scenes from nursing action plans--the cultivation of leadership in oncology nursing
    E Giarelli
    School of Nursing, University of Pennsylvania, Philadelphia, USA
    Oncol Nurs Forum 28:883-93. 2001
    ..IMPLICATIONS FOR NURSING PRACTICE: The contributions of nurses may be simple of complex and affect single individuals, groups, or institutions. In all cases, oncology nursing practice and cancer care may be enhanced...
  26. ncbi Methodological issues in the use of published cartoons as data
    Ellen Giarelli
    Center for Autism Epidemiology and Research, School of Nursing, University of Pennsylvania, Philadelphia, USA
    Qual Health Res 13:945-56. 2003
    ..Analysis of the image and text of cartoons has the potential to yield important understanding of public discourse surrounding issues of the public's health and well-being...
  27. ncbi A concept model for individual surveillance in genetic cancer care
    Ellen Giarelli
    University of Pennsylvania, School of Nursing, Philadelphia 19104, USA
    J Cancer Educ 17:78-82. 2002
    ..MODEL: The model can be used, by a clinician and a patient, to describe and understand the meaning of individual surveillance for participants in a systematic, holistic, and highly personal way...
  28. ncbi Relationship of dietary intake to gastrointestinal symptoms in children with autistic spectrum disorders
    Susan E Levy
    Division of Child Development and Rehabilitation, Children s Seashore House of The Children s Hospital of Philadelphia, Philadelphia, Pennsylvania, USA
    Biol Psychiatry 61:492-7. 2007
    ..The purpose of this study was to 1) describe dietary intake of a cohort of children with ASD compared with normative data and 2) determine whether GI symptoms and stool consistency are related to dietary intake...
  29. ncbi Cancer vaccines: a new frontier in prevention and treatment
    Ellen Giarelli
    University of Pennsylvania School of Nursing, Philadelphia, USA
    Oncology (Williston Park) 21:11-7; discussion 18. 2007
    ..Oncology nurses may play a significant role in reducing barriers to uptake of preventive vaccines among the general public and in increasing patients' acceptance of therapeutic cancer vaccines...
  30. ncbi Improving the quality of life through education: a pilot program of symptom management classes for oncology patients
    Susan Nemetz
    Loran Smith Center for Cancer Support, Athens Regional Medical Center, Athens, GA, USA
    Am J Nurs 102:40-2; quiz 49-52. 2002
  31. ncbi To screen or not to screen: using spiral computerized tomography in the early detection of lung cancer
    Ellen Giarelli
    Clin J Oncol Nurs 6:223-4. 2002
  32. ncbi Prophylactic gastrectomy for CDH1 mutation carriers
    Ellen Giarelli
    Clin J Oncol Nurs 6:161-2. 2002
    ....
  33. ncbi Reflections of a health policy advocate: the natural extension of nursing activities
    Melinda Granger Oberleitner
    Oncol Nurs Forum 29:1261-3. 2002