L M Beskow
Affiliation: University of North Carolina
- Informed consent for population-based research involving geneticsL M Beskow
Office of Genetics and Disease Prevention, Centers for Disease Control and Prevention, 4770 Buford Hwy NE, MS K 28, Atlanta, GA 30341 3724, USA
JAMA 286:2315-21. 2001....
- Research recruitment through US central cancer registries: balancing privacy and scientific issuesLaura M Beskow
Department of Health Policy and Administration, University of North Carolina School of Public Health, Chapel Hill 27599 7411, USA
Am J Public Health 96:1920-6. 2006..Further discussion about balanced recruitment approaches that protect patient privacy and encourage beneficial research is needed...
- The effect of physician permission versus notification on research recruitment through cancer registries (United States)Laura M Beskow
Department of Health Policy and Administration, School of Public Health, University of North Carolina, Chapel Hill, USA
Cancer Causes Control 17:315-23. 2006..To determine how physicians responded when investigators inquired about contacting patients identified through a central cancer registry, and to examine participation rates under physician permission versus notification approaches...
- Patient perspectives on research recruitment through cancer registriesLaura M Beskow
Department of Health Policy and Administration, School of Public Health, University of North Carolina, CB 7411, McGavran Greenberg Hall, Chapel Hill, NC 27599 7411, USA
Cancer Causes Control 16:1171-5. 2005..To gain preliminary insight into patients' levels of awareness and preferences about research recruitment through cancer registries...
- Ethical issues in identifying and recruiting participants for familial genetic researchLaura M Beskow
Department of Health Policy and Administration, University of North Carolina at Chapel Hill School of Public Health, Chapel Hill, NC 27599 7411, USA
Am J Med Genet A 130:424-31. 2004..They suggest a framework for considering alternative recruitment strategies and their implications, as well as highlight areas in need of further empirical research...
- Population-based analysis of lymphatic mapping and sentinel lymphadenectomy utilization for intermediate thickness melanomaKaryn B Stitzenberg
Department of Surgery, University of North Carolina, Chapel Hill, North Carolina 2755 7590, USA
J Surg Oncol 93:100-7; discussion 107-8. 2006..We hypothesize that a significant portion of these patients are not undergoing LM/SL. We explore factors that influence use of LM/SL...
- Towards a more comprehensive understanding of cancer burden in North Carolina: priorities for interventionWilliam R Carpenter
Department of Health Policy and Management, School of Public Health, University of North Carolina at Chapel Hill, USA
N C Med J 69:275-82. 2008..To apply 4 measures of population burden in examining cancer burden in North Carolina and to identify priorities for intervention...
- Changing perspectives on the benefits of newborn screeningDonald B Bailey
RTI International, Research Triangle Park, North Carolina 27709 2194, USA
Ment Retard Dev Disabil Res Rev 12:270-9. 2006..We conclude by suggesting several key research studies needed to further inform public policy...
- Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical researchSeth W Glickman
Division of Emergency Medicine, Department of Surgery, Duke Clinical Research Institute, Duke University Medical Center, Durham, NC, USA
Ann Emerg Med 51:775-780.e3. 2008..The objective of this study is to assess how emergency clinical care and research processes, informed consent, and patient demographic factors (age, sex, and ethnicity/race) affect enrollment and consent in clinical research in the ED...
- Informed consent for biorepositories: assessing prospective participants' understanding and opinionsLaura M Beskow
Duke Institute for Genome Sciences and Policy, 240 North Building, Box 90141, Durham, NC 27708, USA
Cancer Epidemiol Biomarkers Prev 17:1440-51. 2008..We gathered input on a consent template developed for the Duke Biorepository from individuals representative of those who might one day consider contributing specimens...