D B Bailey

Summary

Affiliation: University of North Carolina
Country: USA

Publications

  1. ncbi request reprint Early developmental trajectories of males with fragile X syndrome
    D B Bailey
    Frank Porter Graham Child Developmental Center, University of North Carolina at Chapel Hill 27599 8180, USA
    Am J Ment Retard 103:29-39. 1998
  2. ncbi request reprint Thirty-six-month outcomes for families of children who have disabilities and participated in early intervention
    Donald B Bailey
    Frank Porter Graham Child Development Institute, University of North Carolina, Chapel Hill, North Carolina 27599, USA
    Pediatrics 116:1346-52. 2005
  3. pmc Newborn screening for developmental disabilities: reframing presumptive benefit
    Donald B Bailey
    University of North Carolina at Chapel Hill, Chapel Hill, NC 27599 8180, USA
    Am J Public Health 95:1889-93. 2005
  4. ncbi request reprint First experiences with early intervention: a national perspective
    Donald B Bailey
    Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
    Pediatrics 113:887-96. 2004
  5. ncbi request reprint Newborn screening for fragile X syndrome
    Donald B Bailey
    Frank Porter Graham Child Development Institute, CB 8180, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
    Ment Retard Dev Disabil Res Rev 10:3-10. 2004
  6. ncbi request reprint Discovering fragile X syndrome: family experiences and perceptions
    Donald B Bailey
    Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, 27599, USA
    Pediatrics 111:407-16. 2003
  7. ncbi request reprint Variability in FMRP and early development in males with fragile X syndrome
    D B Bailey
    Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill, 27599, USA
    Am J Ment Retard 106:16-27. 2001
  8. ncbi request reprint Autistic behavior, FMR1 protein, and developmental trajectories in young males with fragile X syndrome
    D B Bailey
    Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill, 27599, USA
    J Autism Dev Disord 31:165-74. 2001
  9. ncbi request reprint Screening for Fragile X Syndrome: parent attitudes and perspectives
    Debra Skinner
    FPG Child Development Institute, University of North Carolina at Chapel Hill, 27599 8180, USA
    Genet Med 5:378-84. 2003
  10. ncbi request reprint Behavioral style of young boys with fragile X syndrome
    D D Hatton
    University of North Carolina at Chapel Hill, 27599 8180, USA
    Dev Med Child Neurol 41:625-32. 1999

Research Grants

Detail Information

Publications34

  1. ncbi request reprint Early developmental trajectories of males with fragile X syndrome
    D B Bailey
    Frank Porter Graham Child Developmental Center, University of North Carolina at Chapel Hill 27599 8180, USA
    Am J Ment Retard 103:29-39. 1998
    ..Significant differences were found, however, in mean levels of performance. At every age tested, Motor and Adaptive scores were higher than Communication and Cognitive...
  2. ncbi request reprint Thirty-six-month outcomes for families of children who have disabilities and participated in early intervention
    Donald B Bailey
    Frank Porter Graham Child Development Institute, University of North Carolina, Chapel Hill, North Carolina 27599, USA
    Pediatrics 116:1346-52. 2005
    ..The purpose of this study was to assess family outcomes at the end of early intervention (near the child's third birthday)...
  3. pmc Newborn screening for developmental disabilities: reframing presumptive benefit
    Donald B Bailey
    University of North Carolina at Chapel Hill, Chapel Hill, NC 27599 8180, USA
    Am J Public Health 95:1889-93. 2005
    ..Newborn screening provides other societal benefits that, in the absence of data showing harm and with appropriate attention to ethical and legal issues, warrant consideration of an expansion of targets for newborn screening...
  4. ncbi request reprint First experiences with early intervention: a national perspective
    Donald B Bailey
    Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
    Pediatrics 113:887-96. 2004
    ....
  5. ncbi request reprint Newborn screening for fragile X syndrome
    Donald B Bailey
    Frank Porter Graham Child Development Institute, CB 8180, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
    Ment Retard Dev Disabil Res Rev 10:3-10. 2004
    ..Fragile X syndrome is offered as a prototype for many of the issues that will face society as more genetic disorders are discovered and new technologies for screening are developed...
  6. ncbi request reprint Discovering fragile X syndrome: family experiences and perceptions
    Donald B Bailey
    Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, 27599, USA
    Pediatrics 111:407-16. 2003
    ....
  7. ncbi request reprint Variability in FMRP and early development in males with fragile X syndrome
    D B Bailey
    Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill, 27599, USA
    Am J Ment Retard 106:16-27. 2001
    ..Findings support the hypothesized relationship between FMRP and individual capabilities but suggest that other factors also play a major role...
  8. ncbi request reprint Autistic behavior, FMR1 protein, and developmental trajectories in young males with fragile X syndrome
    D B Bailey
    Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill, 27599, USA
    J Autism Dev Disord 31:165-74. 2001
    ..FMRP expression accounted for less variance in developmental level than did autistic behavior, and was not significantly related to slope (developmental change over time). No autistic behavior x FMRP interaction was found...
  9. ncbi request reprint Screening for Fragile X Syndrome: parent attitudes and perspectives
    Debra Skinner
    FPG Child Development Institute, University of North Carolina at Chapel Hill, 27599 8180, USA
    Genet Med 5:378-84. 2003
    ..This study examined the attitudes and beliefs of 442 parents of children with fragile X syndrome (FXS) regarding different screening options for FXS...
  10. ncbi request reprint Behavioral style of young boys with fragile X syndrome
    D D Hatton
    University of North Carolina at Chapel Hill, 27599 8180, USA
    Dev Med Child Neurol 41:625-32. 1999
    ..The question of whether the behavior problems observed in boys with FXS are innate or whether they result from poorness of fit between child and environment is an important issue that needs further study...
  11. doi request reprint Mood and anxiety disorders in females with the FMR1 premutation
    Jane E Roberts
    FPG Child Development Institute, The University of North Carolina at Chapel Hill, North Carolina, USA
    Am J Med Genet B Neuropsychiatr Genet 150:130-9. 2009
    ....
  12. ncbi request reprint Autistic behavior in children with fragile X syndrome: prevalence, stability, and the impact of FMRP
    Deborah D Hatton
    FPG Child Development Institute, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599, USA
    Am J Med Genet A 140:1804-13. 2006
    ..9% of boys) scored at or above the cutoff for autism. CARS scores increased slowly, yet significantly, over time, and low levels of FMRP were associated with higher mean levels of autistic behavior as measured by the CARS...
  13. doi request reprint Developmental trajectories of young girls with fragile x syndrome
    Deborah D Hatton
    University of North Carolina at Chapel Hill, USA
    Am J Intellect Dev Disabil 114:161-71. 2009
    ..In addition, findings support previous research suggesting that even mild autistic behaviors in girls can be associated with developmental outcomes...
  14. pmc A place for genetic uncertainty: parents valuing an unknown in the meaning of disease
    Ian Whitmarsh
    University of North Carolina, Chapel Hill, NC, USA
    Soc Sci Med 65:1082-93. 2007
    ..These multiple and often conflicting evaluations of the diagnostic label reveal the rich ways families make meaning of the authority attributed to genetic diagnosis...
  15. doi request reprint Memory skills of boys with fragile X syndrome
    Peter A Ornstein
    Department of Psychology, University of North Carolina at Chapel Hill, 27599 3270, USA
    Am J Ment Retard 113:453-65. 2008
    ....
  16. ncbi request reprint Developmental trajectories and correlates of sensory processing in young boys with fragile X syndrome
    Grace T Baranek
    Division of Occupational Science, Department of Allied Health Sciences, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA
    Phys Occup Ther Pediatr 28:79-98. 2008
    ..No longitudinal study on sensory processing in children with fragile X syndrome (FXS) exists. This study examined developmental trajectories and correlates of sensory processing from infancy through preschool years in 13 boys with FXS...
  17. doi request reprint Perceived quality of life in mothers of children with fragile X syndrome
    Anne C Wheeler
    FPG Child Development Institute, University of North Carolina, Chapel Hill, NC 27599 8180, USA
    Am J Ment Retard 113:159-77. 2008
    ..The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive...
  18. ncbi request reprint Problem behavior in boys with fragile X syndrome
    Deborah D Hatton
    Frank Porter Graham Child Development Center, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599 8180, USA
    Am J Med Genet 108:105-16. 2002
    ..Children taking medication differed from boys who were not taking medication on social problems, but not on attention and thought problems. Low adaptability and more autistic characteristics predicted thought problems...
  19. ncbi request reprint Video analysis of sensory-motor features in infants with fragile X syndrome at 9-12 months of age
    Grace T Baranek
    Division of Occupational Science, Department of Allied Health Sciences, University of North Carolina at Chapel Hill, NC 27599 7120, USA
    J Autism Dev Disord 35:645-56. 2005
    ..e., age walking) than later, more broad, developmental outcomes, or FMRP. Implications for early identification and differential diagnosis are discussed...
  20. ncbi request reprint Academic skills of boys with fragile X syndrome: profiles and predictors
    Jane E Roberts
    Frank Porter Graham Child Development Institute, University of North Carolina at Chapel Hill, USA
    Am J Ment Retard 110:107-20. 2005
    ..Nonverbal IQ and FMR protein expression were not associated with the level or rate of change; however, autistic behavior and maternal education were related to academic achievement scores...
  21. ncbi request reprint Adaptive behavior in children with fragile X syndrome
    Deborah D Hatton
    Frank Porter Graham Child Development Institute University of North Carolina at Chapel Hill, 27599, USA
    Am J Ment Retard 108:373-90. 2003
    ..Comparison to Brief IQs indicate that children with fragile X syndrome display nonverbal IQs superior to their adaptive behavior when they are below age 10 but that these skills seem to converge as they get older...
  22. ncbi request reprint Developmental screening and detection of developmental delays in infants and toddlers with fragile X syndrome
    Penny L Mirrett
    FPG Child Development Institute, University of North Carolina at Chapel Hill, 27599 8180, USA
    J Dev Behav Pediatr 25:21-7. 2004
    ..These results indicate that developmental delays could be detected in most children with fragile X syndrome through routine developmental screening by the age of 9 to 12 months...
  23. ncbi request reprint Cardiovascular indices of physiological arousal in boys with fragile X syndrome
    J E Roberts
    Frank Porter Graham, Child Development Center, University of North Carolina, Chapel Hill, NC 27599, USA
    Dev Psychobiol 39:107-23. 2001
    ..Clinical factors may be related to neural regulation of heart activity while molecular factors do not appear to be...
  24. ncbi request reprint Role of religion in the lives of Latino families of young children with developmental delays
    D G Skinner
    University of North Carolina at Chapel Hill, USA
    Am J Ment Retard 106:297-313. 2001
    ..Thematic analysis revealed specific religious beliefs and practices parents viewed as supportive, and content and cultural models analyses indicated the religious frameworks by which parents interpreted their child's disability...
  25. ncbi request reprint Sustained attention and response inhibition in boys with fragile X syndrome: measures of continuous performance
    Kelly Sullivan
    The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina 27599 8040, USA
    Am J Med Genet B Neuropsychiatr Genet 144:517-32. 2007
    ..For both boys with FXS and their MA matches, performance was better on the visual CPT than on the auditory CPT though this effect may be attributable to a number of factors other than the modality...
  26. doi request reprint Co-occurring conditions associated with FMR1 gene variations: findings from a national parent survey
    Donald B Bailey
    RTI International, Research Triangle Park, North Carolina 27709 2194, USA
    Am J Med Genet A 146:2060-9. 2008
    ....
  27. ncbi request reprint Self-injurious behavior in young boys with fragile X syndrome
    Frank J Symons
    Department of Educational Psychology, College of Education and Human Development, University of Minnesota, Minneapolis, Minnesota 55455, USA
    Am J Med Genet A 118:115-21. 2003
    ..Results are discussed in terms of future research designed to further elucidate the behavioral phenotype of fragile X syndrome...
  28. doi request reprint Ethical, legal, and social concerns about expanded newborn screening: fragile X syndrome as a prototype for emerging issues
    Donald B Bailey
    RTI International, 3040 Cornwallis Rd, Research Triangle Park, NC 27709 2194, USA
    Pediatrics 121:e693-704. 2008
    ....
  29. doi request reprint Child and genetic variables associated with maternal adaptation to fragile X syndrome: a multidimensional analysis
    Donald B Bailey
    RTI International, Research Triangle Park, North Carolina 27709 2194, USA
    Am J Med Genet A 146:720-9. 2008
    ..Future research needs to identify family, child, and support factors associated with maternal vulnerability and how adaptation changes over time in response to these factors...
  30. ncbi request reprint Maternal depression and developmental disability: research critique
    Donald B Bailey
    RTI International, Research Triangle Park, NC 27709 2194, USA
    Ment Retard Dev Disabil Res Rev 13:321-9. 2007
    ..Research is also needed to study treatments to reduce the occurrence of both depressive symptoms and clinical depression...
  31. ncbi request reprint Family adaptation to intellectual and developmental disabilities
    Donald B Bailey
    RTI International, 3040 Cornwallis Rd, Research Triangle Park, NC 27709, USA
    Ment Retard Dev Disabil Res Rev 13:291-2. 2007
  32. ncbi request reprint Modeling the impact of formal and informal supports for young children with disabilities and their families
    Donald B Bailey
    RTI International, 3040 Cornwallis Rd, Research Triangle Park, NC 27709 2194, USA
    Pediatrics 120:e992-1001. 2007
    ..The purpose of this work was to examine factors related to perceived impact of early intervention on children with disabilities and their families...
  33. ncbi request reprint Mapping nonverbal IQ in young boys with fragile X syndrome
    Martie Skinner
    Social Development Research Group, University of Washington, Seattle, Washington 98115, USA
    Am J Med Genet A 132:25-32. 2005
    ..These findings suggest that declines in IQ are the result of steady, but suboptimal intellectual growth, rather than a true deterioration in overall intellectual functioning...
  34. ncbi request reprint Changing perspectives on the benefits of newborn screening
    Donald B Bailey
    RTI International, Research Triangle Park, North Carolina 27709 2194, USA
    Ment Retard Dev Disabil Res Rev 12:270-9. 2006
    ..We conclude by suggesting several key research studies needed to further inform public policy...

Research Grants3

  1. Identifying Newborns with Fragile X: Planning Grant
    Donald Bailey; Fiscal Year: 2005
    ..abstract_text> ..
  2. ELSI Scale-Up: Large Sample Gene Discovery & Disclosure
    Donald Bailey; Fiscal Year: 2006
    ..abstract_text> ..