Susan K Parsons

Summary

Affiliation: Tufts-New England Medical Center
Country: USA

Publications

  1. ncbi request reprint Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant
    Susan K Parsons
    Center on Child and Family Outcomes, Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, Massachusetts 02111, USA
    J Pediatr Psychol 31:1100-15. 2006
  2. ncbi request reprint Telling children and adolescents about their cancer diagnosis: Cross-cultural comparisons between pediatric oncologists in the US and Japan
    Susan K Parsons
    Center on Child and Family Outcomes, Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, MA 02111, USA
    Psychooncology 16:60-8. 2007
  3. ncbi request reprint Preliminary psychometric evaluation of the Child Health Ratings Inventory (CHRIs) and Disease-Specific Impairment Inventory-Hematopoietic Stem Cell Transplantation (DSII-HSCT) in parents and children
    S K Parsons
    Center on Child and Family Outcomes, Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, MA 02111, USA
    Qual Life Res 14:1613-25. 2005
  4. ncbi request reprint Health-related quality of life assessment in hematologic disease
    Susan K Parsons
    Center on Child and Family Outcomes, Institute Clinical Care Research and Health Policy Studies, Tufts New England Medical Center, 750 Washington Street, 345, Boston, MA 02111, USA
    Hematol Oncol Clin North Am 18:1235-48, vii-viii. 2004
  5. doi request reprint Neurodevelopmental outcomes of congenital diaphragmatic hernia survivors followed in a multidisciplinary clinic at ages 1 and 3
    Sandra Friedman
    Department of Medicine, Children s Hospital, Boston, MA 02115, USA
    J Pediatr Surg 43:1035-43. 2008
  6. pmc Survey of United States child and adolescent psychiatrists' cardiac screening practices prior to starting patients on stimulants
    Laurel K Leslie
    the Institute of Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, Massachusetts 02111, USA
    J Child Adolesc Psychopharmacol 22:375-84. 2012
  7. ncbi request reprint Impact on family of survivors of congenital diaphragmatic hernia repair: a pilot study
    Catherine Chen
    Department of Surgery, Children s Hospital, Boston, MA 02115, USA
    J Pediatr Surg 42:1845-52. 2007
  8. pmc Costs and benefits of targeted screening for causes of sudden cardiac death in children and adolescents
    Laurel K Leslie
    Institute for Clinical Research and Health Policy Studies at Tufts Medical Center, Boston, MA 02111, USA
    Circulation 125:2621-9. 2012
  9. doi request reprint Screening practices in cancer survivors
    Deborah K Mayer
    Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, 750 Washington Street 345, Boston, MA 02111, USA
    J Cancer Surviv 1:17-26. 2007
  10. ncbi request reprint Health behaviors in cancer survivors
    Deborah K Mayer
    The Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, MA, USA
    Oncol Nurs Forum 34:643-51. 2007

Detail Information

Publications41

  1. ncbi request reprint Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant
    Susan K Parsons
    Center on Child and Family Outcomes, Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, Massachusetts 02111, USA
    J Pediatr Psychol 31:1100-15. 2006
    ..To assess the longitudinal health-related quality of life (HRQL) of children receiving hematopoietic stem cell transplantation (HSCT)...
  2. ncbi request reprint Telling children and adolescents about their cancer diagnosis: Cross-cultural comparisons between pediatric oncologists in the US and Japan
    Susan K Parsons
    Center on Child and Family Outcomes, Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, MA 02111, USA
    Psychooncology 16:60-8. 2007
    ..The purpose of this study is to (1) describe patterns of communication at diagnosis between pediatric oncologists and children with cancer and (2) compare cultural differences in these practices in the US and Japan...
  3. ncbi request reprint Preliminary psychometric evaluation of the Child Health Ratings Inventory (CHRIs) and Disease-Specific Impairment Inventory-Hematopoietic Stem Cell Transplantation (DSII-HSCT) in parents and children
    S K Parsons
    Center on Child and Family Outcomes, Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, MA 02111, USA
    Qual Life Res 14:1613-25. 2005
    ....
  4. ncbi request reprint Health-related quality of life assessment in hematologic disease
    Susan K Parsons
    Center on Child and Family Outcomes, Institute Clinical Care Research and Health Policy Studies, Tufts New England Medical Center, 750 Washington Street, 345, Boston, MA 02111, USA
    Hematol Oncol Clin North Am 18:1235-48, vii-viii. 2004
    ..This article includes a discussion of instrumentation, respondent selection, and study design consideration in the evaluation of HRQL in children who have benign hematologic disorders...
  5. doi request reprint Neurodevelopmental outcomes of congenital diaphragmatic hernia survivors followed in a multidisciplinary clinic at ages 1 and 3
    Sandra Friedman
    Department of Medicine, Children s Hospital, Boston, MA 02115, USA
    J Pediatr Surg 43:1035-43. 2008
    ..We evaluated the relationship between medical and neurodevelopmental outcomes of CDH survivors seen in a multidisciplinary clinic at ages 1 and/or 3...
  6. pmc Survey of United States child and adolescent psychiatrists' cardiac screening practices prior to starting patients on stimulants
    Laurel K Leslie
    the Institute of Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, Massachusetts 02111, USA
    J Child Adolesc Psychopharmacol 22:375-84. 2012
    ..It is not known how psychiatrists have responded...
  7. ncbi request reprint Impact on family of survivors of congenital diaphragmatic hernia repair: a pilot study
    Catherine Chen
    Department of Surgery, Children s Hospital, Boston, MA 02115, USA
    J Pediatr Surg 42:1845-52. 2007
    ..We hypothesized that long-term impact on the family of survivors of congenital diaphragmatic hernia (CDH) would vary based on the child's current clinical problems and clinical severity, family income, insurance, and out-of-pocket expenses...
  8. pmc Costs and benefits of targeted screening for causes of sudden cardiac death in children and adolescents
    Laurel K Leslie
    Institute for Clinical Research and Health Policy Studies at Tufts Medical Center, Boston, MA 02111, USA
    Circulation 125:2621-9. 2012
    ....
  9. doi request reprint Screening practices in cancer survivors
    Deborah K Mayer
    Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, 750 Washington Street 345, Boston, MA 02111, USA
    J Cancer Surviv 1:17-26. 2007
    ..The purpose of this study was to examine the impact of a cancer diagnosis on survivors' screening beliefs and practices compared to those without a cancer history...
  10. ncbi request reprint Health behaviors in cancer survivors
    Deborah K Mayer
    The Institute for Clinical Research and Health Policy Studies, Tufts New England Medical Center, Boston, MA, USA
    Oncol Nurs Forum 34:643-51. 2007
    ..To describe health behaviors of cancer survivors by cancer diagnosis and to compare them to people without a personal or family cancer history...
  11. ncbi request reprint Approaches to neurodevelopmental assessment in congenital diaphragmatic hernia survivors
    Catherine Chen
    Department of Surgery, Children s Hospital, Boston, MA 02115, USA
    J Pediatr Surg 42:1052-6; discussion 1056. 2007
    ....
  12. pmc Parental emotional functioning declines with occurrence of clinical complications in pediatric hematopoietic stem cell transplant
    Norma Terrin
    Institute for Clinical Research and Health Policy Studies at Tufts Medical Center, Boston, MA 02111, USA
    Support Care Cancer 21:687-95. 2013
    ..The purpose of this study was to assess whether clinical complications of HSCT could explain variation in parents' recovery of emotional functioning...
  13. doi request reprint Parental caregiving of children prior to hematopoietic stem cell transplant
    Angie Mae Rodday
    The Health Institute, Tufts Medical Center, Boston, MA, USA
    Res Nurs Health 35:328-39. 2012
    ..Compared to non-parental caregivers, parental caregivers experienced higher esteem and more impact on finances and schedule...
  14. doi request reprint Factors associated with parental activation in pediatric hematopoietic stem cell transplant
    Brian W Pennarola
    Tufts Medical Center, Boston, MA 02111, USA
    Med Care Res Rev 69:194-214. 2012
    ..Our findings characterize a potentially distinct form of activation in a parent-child cohort preparing for a demanding clinical course...
  15. pmc Electrocardiogram screening for disorders that cause sudden cardiac death in asymptomatic children: a meta-analysis
    Angie Mae Rodday
    Tufts Medical Center, Boston, Massachusetts, USA
    Pediatrics 129:e999-1010. 2012
    ..We estimated (1) phenotypic (ECG- or echocardiogram [ECHO]-based) prevalence of selected pediatric disorders associated with SCD, and (2) sensitivity, specificity, and predictive value of ECG, alone or with ECHO...
  16. pmc Health-related quality of life (HRQL) in children with sickle cell disease and thalassemia following hematopoietic stem cell transplant (HSCT)
    Michael J Kelly
    The Health Institute, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, Massachusetts 02111, USA
    Pediatr Blood Cancer 59:725-31. 2012
    ..Little is known regarding the health-related quality of life (HRQL) trajectory of children with sickle cell disease or thalassemia ("hemoglobinopathies") following hematopoietic stem cell transplantation (HSCT)...
  17. pmc Children's psychological distress during pediatric HSCT: parent and child perspectives
    Grace Chang
    Department of Psychiatry, Brigham and Women s Hospital, Boston, MA, USA
    Pediatr Blood Cancer 58:289-96. 2012
    ..We hypothesized that there would be discrepancies between parent and child report of child distress...
  18. ncbi request reprint Long-term functional impact of congenital diaphragmatic hernia repair on children
    Catherine Chen
    Department of Surgery, Children s Hospital, Boston, MA 02115, USA
    J Pediatr Surg 42:657-65. 2007
    ..Congenital diaphragmatic hernia (CDH) is a malformation requiring neonatal surgical repair with in-hospital survival rates above 90%. We examined the long-term functional impact of CDH repair on a cross-sectional cohort of survivors...
  19. pmc Measuring global health-related quality of life in children undergoing hematopoietic stem cell transplant: a longitudinal study
    Angie Mae Rodday
    The Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA
    Health Qual Life Outcomes 11:26. 2013
    ..This paper evaluates the psychometric properties of the global HRQL scale in children undergoing hematopoietic stem cell transplant (HSCT) and describes the trajectory of global HRQL scores over the 12-month course following HSCT...
  20. doi request reprint Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: the value of both raters' perspectives
    Susan K Parsons
    The Health Institute, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, 800 Washington St, Boston, MA 02111, USA
    Qual Life Res 21:915-23. 2012
    ..0 Generic Core Scales, were compared over time, and variation in child/parent agreement by age, treatment intensity, and time on treatment was explored...
  21. pmc Cardiac screening prior to stimulant treatment of ADHD: a survey of US-based pediatricians
    Laurel K Leslie
    Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA
    Pediatrics 129:222-30. 2012
    ..To determine pediatricians' attitudes, barriers, and practices regarding cardiac screening before initiating treatment with stimulants for attention-deficit/hyperactivity disorder...
  22. ncbi request reprint The impact of pediatric tracheotomy on parental caregiver burden and health status
    Christopher J Hartnick
    Departments of Otolaryngology, Massachusetts Eye and Ear Infirmary, Boston, MA 02114, USA
    Arch Otolaryngol Head Neck Surg 129:1065-9. 2003
    ..To explore the effects of the placement of a pediatric tracheotomy tube on the degree of caregiver burden and overall health status of parents using general and disease-specific instruments...
  23. ncbi request reprint Cancer survivors information seeking behaviors: a comparison of survivors who do and do not seek information about cancer
    Deborah K Mayer
    Tufts New England Medical Center, Tufts University School of Medicine, Boston, MA 02111, United States
    Patient Educ Couns 65:342-50. 2007
    ..To examine the cancer information seeking behaviors and preferences of cancer survivors...
  24. doi request reprint The plurality of payers' perspectives on hematopoietic stem cell transplantation
    Susan K Parsons
    Health Institute, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA 02111, USA
    Hematology 17:S202-7. 2012
    ..In addition to referenced peer-reviewed literature, preliminary empirical data are also included with which to understand the cost implications. Areas of future research are identified...
  25. ncbi request reprint School re-entry after a cancer diagnosis: physician attitudes about truth telling and information sharing
    D K Mayer
    Tufts New England Medical Center, Boston, MA 02111, USA
    Child Care Health Dev 31:355-63. 2005
    ..Understanding physicians' attitudes and behaviours regarding school re-entry will provide insight into these practices...
  26. pmc Performance of the parent emotional functioning (PREMO) screener in parents of children undergoing hematopoietic stem cell transplantation
    Angie Mae Rodday
    The Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, 800 Washington St, 345, Boston, MA, 02111, USA
    Qual Life Res 22:1427-33. 2013
    ....
  27. pmc NCI, NHLBI/PBMTC First International Conference on Late Effects after Pediatric Hematopoietic Cell Transplantation: health-related quality of life, functional, and neurocognitive outcomes
    Susan K Parsons
    Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, Massachusetts, USA
    Biol Blood Marrow Transplant 18:162-71. 2012
    ....
  28. ncbi request reprint Factor structure of the brief symptom inventory--18 in adult survivors of childhood cancer: results from the childhood cancer survivor study
    Christopher J Recklitis
    Department of Pediatric Oncology, Perini Family Survivor s Center, The Dana Farber Cancer Institute, Boston, MA 02115 6084, USA
    Psychol Assess 18:22-32. 2006
    ..Together, results support the hypothesized 3-dimensional structure of the BSI-18 and indicate the measure may be useful in assessing psychological distress in this growing population of cancer survivors...
  29. doi request reprint Assessment of health-related quality of life in pediatric hematopoietic stem cell transplant recipients: progress, challenges and future directions
    Susan K Parsons
    The Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA
    Expert Rev Pharmacoecon Outcomes Res 13:217-25. 2013
    ..Future work in pediatric hematopoietic stem cell transplants must seek to capture the experiences and perceptions of all those involved...
  30. ncbi request reprint Oral chronic graft-versus-host disease in pediatric patients after hematopoietic stem cell transplantation
    Nathaniel S Treister
    Department of Oral Medicine, Infection, and Immunity, Harvard School of Dental Medicine, Boston, MA 02115, USA
    Biol Blood Marrow Transplant 11:721-31. 2005
    ..The apparent lack of salivary gland involvement was notable. Developing validated age-appropriate evaluation strategies and identifying effective treatment guidelines will be invaluable in the future management of these patients...
  31. doi request reprint The impact of precancerous cervical lesions on functioning at work and work productivity
    Debra Lerner
    Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA 02111, USA
    J Occup Environ Med 52:926-33. 2010
    ..To assess the work performance and productivity impact of human papillomavirus (HPV)...
  32. ncbi request reprint Evaluation of risk prediction criteria for episodes of febrile neutropenia in children with cancer
    Sarah W Alexander
    Division of Hematology and Oncology, Dana Farber Cancer Institute, Children s Hospital, Boston, Massachusetts, USA
    J Pediatr Hematol Oncol 24:38-42. 2002
    ..To evaluate the feasibility of risk stratification of children with cancer and febrile neutropenia using a simple set of criteria from data available to the clinician at the time of the patient's presentation...
  33. ncbi request reprint Recovery after stem-cell transplantation for hematologic diseases
    S J Lee
    Department of Adult Oncology, Dana Farber Cancer Institute, Boston, MA 02115, USA
    J Clin Oncol 19:242-52. 2001
    ....
  34. ncbi request reprint Current practice patterns in the treatment of perforated appendicitis in children
    Catherine Chen
    Department of Surgery, Children s Hospital, Harvard Medical School, Boston, MA 02115, USA
    J Am Coll Surg 196:212-21. 2003
    ..The aim of this study was to document the degree of consensus in the current management of perforated appendicitis in children...
  35. ncbi request reprint Quality-adjusted survival after treatment for acute myeloid leukemia in childhood: A Q-TWiST analysis of the Pediatric Oncology Group Study 8821
    S K Parsons
    Children s Hospital and Dana Farber Cancer Institute, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02115, USA
    J Clin Oncol 17:2144-52. 1999
    ..To describe quality-of-life considerations in post-remission therapies for children with acute myelogenous leukemia...
  36. ncbi request reprint Impact of pharmacy practices on the cost of colony-stimulating factor use in pediatric stem cell transplantation: an institution-based analysis
    S K Parsons
    Department of Pediatric Oncology, Dana Farber Cancer Institute, Boston, Massachusetts 02115, USA
    J Pediatr Hematol Oncol 23:19-24. 2001
    ..An evaluation of colony-stimulating factor (CSF) use in pediatric stem cell transplantation (SCT) was conducted to identify potential cost-efficiencies while preserving institutional standards of patient care...
  37. ncbi request reprint Changes in mothers' basic beliefs following a child's bone marrow transplantation: the role of prior trauma and negative life events
    Christine Rini
    Ruttenberg Cancer Center, Mount Sinai School of Medicine, New York, New York 10029, USA
    J Trauma Stress 17:325-33. 2004
    ..Findings also demonstrated relations between basic beliefs and physical and mental functioning. However, each basic belief exhibited different relations with study variables, suggesting the need to investigate them separately...
  38. ncbi request reprint Mothers' perceptions of benefit following pediatric stem cell transplantation: a longitudinal investigation of the roles of optimism, medical risk, and sociodemographic resources
    Christine Rini
    Mount Sinai School of Medicine, New York, NY 10029, USA
    Ann Behav Med 28:132-41. 2004
    ..This longitudinal study investigated the course and predictors of benefit finding among 144 mothers of children undergoing hematopoietic stem cell transplantation (HSCT), a severely stressful and life-threatening medical procedure...
  39. ncbi request reprint Final validation of the Pediatric Tracheotomy Health Status Instrument (PTHSI)
    Christopher J Hartnick
    Department of Otolaryngology, Massachusetts Eye and Ear Infirmary, Harvard Medical School, Boston 02114, USA
    Otolaryngol Head Neck Surg 126:228-33. 2002
    ....
  40. ncbi request reprint Quality-of-life assessment in pediatric brain tumor patients and survivors: lessons learned and challenges to face
    May Lin Tao
    J Clin Oncol 23:5424-6. 2005
  41. ncbi request reprint Measuring therapeutic response in chronic graft-versus-host disease: National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease: IV. Response Criteria Working Group report
    Steven Z Pavletic
    National Cancer Institute, National Institutes of Health, Bethesda, Maryland 20892 1203, USA
    Biol Blood Marrow Transplant 12:252-66. 2006
    ..The proposed response criteria are based on current expert consensus opinion and are intended to improve consistency in the conduct and reporting of chronic GVHD trials, but their use remains to be demonstrated in practice...