James W Varni

Summary

Affiliation: Texas A and M University
Country: USA

Publications

  1. pmc Measuring health-related quality of life in Hungarian children with heart disease: psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales and the Cardiac Module
    Andrea Berkes
    University of Debrecen Medical and Health Science Center, Department of Pediatrics, Nagyerdei krt, 98, Debrecen 4032, Hungary
    Health Qual Life Outcomes 8:14. 2010
  2. pmc Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study
    Debra E Irwin
    Department of Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    Health Qual Life Outcomes 7:3. 2009
  3. pmc The PedsQL Present Functioning Visual Analogue Scales: preliminary reliability and validity
    Sandra A Sherman
    SDSU UCSD Joint Doctoral Program in Clinical Psychology, San Diego State, San Diego, CA 92120, USA
    Health Qual Life Outcomes 4:75. 2006
  4. pmc The pediatric quality of life inventory (PedsQL) family impact module: reliability and validity of the Brazilian version
    Ana C Scarpelli
    Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Federal University of Minas Gerais Av, Antonio Carlos 6627, Belo Horizonte, MG, 31270 901, Brazil
    Health Qual Life Outcomes 6:35. 2008
  5. pmc Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings
    Mariana Roizen
    Committee on Quality of Life, Hospital de Pediatria Prof Dr Juan P Garrahan, Pichincha 1890, Buenos Aires, Argentina
    Health Qual Life Outcomes 6:59. 2008
  6. pmc Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL) cancer module scale
    Ana C Scarpelli
    Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Federal University of Minas Gerais Av, Antonio Carlos 6627, Belo Horizonte, MG, 31270 901, Brazil
    Health Qual Life Outcomes 6:7. 2008
  7. pmc Development of a validated patient-reported symptom metric for pediatric eosinophilic esophagitis: qualitative methods
    James P Franciosi
    Division of Gastroenterology, Hepatology and Nutrition, Cincinnati Children s Hospital Medical Center, Cincinnati, OH, USA
    BMC Gastroenterol 11:126. 2011
  8. doi request reprint Using factor analysis to confirm the validity of children's self-reported health-related quality of life across different modes of administration
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
    Clin Trials 6:185-95. 2009
  9. doi request reprint The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population
    James W Varni
    College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    J Health Psychol 14:611-22. 2009
  10. ncbi request reprint The PedsQL multidimensional fatigue scale in pediatric obesity: feasibility, reliability and validity
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas, USA
    Int J Pediatr Obes 5:34-42. 2010

Detail Information

Publications104 found, 100 shown here

  1. pmc Measuring health-related quality of life in Hungarian children with heart disease: psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales and the Cardiac Module
    Andrea Berkes
    University of Debrecen Medical and Health Science Center, Department of Pediatrics, Nagyerdei krt, 98, Debrecen 4032, Hungary
    Health Qual Life Outcomes 8:14. 2010
    ..The aim of the study was to investigate the psychometric properties of the Hungarian version of the Pediatric Quality of Life Inventory (PedsQL) Generic Core Scales and Cardiac Module...
  2. pmc Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study
    Debra E Irwin
    Department of Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    Health Qual Life Outcomes 7:3. 2009
    ..The primary objective of this study was to conduct cognitive interviews with children and adolescents to gain feedback on items measuring physical functioning, emotional health, social health, fatigue, pain, and asthma-specific symptoms...
  3. pmc The PedsQL Present Functioning Visual Analogue Scales: preliminary reliability and validity
    Sandra A Sherman
    SDSU UCSD Joint Doctoral Program in Clinical Psychology, San Diego State, San Diego, CA 92120, USA
    Health Qual Life Outcomes 4:75. 2006
    ....
  4. pmc The pediatric quality of life inventory (PedsQL) family impact module: reliability and validity of the Brazilian version
    Ana C Scarpelli
    Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Federal University of Minas Gerais Av, Antonio Carlos 6627, Belo Horizonte, MG, 31270 901, Brazil
    Health Qual Life Outcomes 6:35. 2008
    ..The objective of the present study was to evaluate the psychometric properties of the PedsQL Family Impact Module cross-culturally adapted for use in Brazil...
  5. pmc Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings
    Mariana Roizen
    Committee on Quality of Life, Hospital de Pediatria Prof Dr Juan P Garrahan, Pichincha 1890, Buenos Aires, Argentina
    Health Qual Life Outcomes 6:59. 2008
    ..Reliability, and known-groups, and convergent validity were tested...
  6. pmc Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL) cancer module scale
    Ana C Scarpelli
    Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Federal University of Minas Gerais Av, Antonio Carlos 6627, Belo Horizonte, MG, 31270 901, Brazil
    Health Qual Life Outcomes 6:7. 2008
    ..The objective of the current paper was to evaluate the psychometric properties of the PedsQL 3.0 Cancer Module cross-culturally adapted for use in Brazil...
  7. pmc Development of a validated patient-reported symptom metric for pediatric eosinophilic esophagitis: qualitative methods
    James P Franciosi
    Division of Gastroenterology, Hepatology and Nutrition, Cincinnati Children s Hospital Medical Center, Cincinnati, OH, USA
    BMC Gastroenterol 11:126. 2011
    ..We sought to identify and validate key patient self-reported and parent proxy-reported outcomes (PROs) specific to EoE...
  8. doi request reprint Using factor analysis to confirm the validity of children's self-reported health-related quality of life across different modes of administration
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
    Clin Trials 6:185-95. 2009
    ..That is, they must demonstrate factorial invariance (stable factor structure) across mode of administration...
  9. doi request reprint The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population
    James W Varni
    College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    J Health Psychol 14:611-22. 2009
    ..The results demonstrate the measurement properties of the PedsQL Young Adult Version...
  10. ncbi request reprint The PedsQL multidimensional fatigue scale in pediatric obesity: feasibility, reliability and validity
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas, USA
    Int J Pediatr Obes 5:34-42. 2010
    ..The objective of the present study was to determine the feasibility, reliability, and validity of the PedsQL Multidimensional Fatigue Scale in pediatric obesity...
  11. ncbi request reprint Longitudinal factorial invariance of the PedsQL 4.0 Generic Core Scales child self-report Version: one year prospective evidence from the California State Children's Health Insurance Program (SCHIP)
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
    Qual Life Res 17:1153-62. 2008
    ....
  12. pmc The PedsQL as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder: a population-based study
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 4:26. 2006
    ....
  13. ncbi request reprint The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station, 77843 3137, USA
    Dev Med Child Neurol 48:442-9. 2006
    ..0 distinguished between healthy children and children with CP. Construct validity of the CP Module was supported. Sensitivity of the PedsQL was demonstrated among children with different diagnostic categories and gross motor function...
  14. pmc Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 5:43. 2007
    ..Comparisons were also benchmarked with healthy children data...
  15. doi request reprint The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administration
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas, USA
    Diabetes Care 31:672-7. 2008
    ..The electronic version of the PedsQL 4.0 (ePedsQL) was designed for Internet administration...
  16. ncbi request reprint Health-related quality of life in pediatric patients with irritable bowel syndrome: a comparative analysis
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station, Texas 77843 3137, USA
    J Dev Behav Pediatr 27:451-8. 2006
    ..These findings suggest the need for targeted interventions to address these dimensions of impaired HRQOL...
  17. pmc Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 Generic Core Scales
    James W Varni
    Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 5:2. 2007
    ..Data from the PedsQL DatabaseSM were utilized to test the reliability and validity of parent proxy-report at the individual age subgroup level for ages 2-16 years as recommended by recent FDA guidelines...
  18. ncbi request reprint The PedsQL Multidimensional Fatigue Scale in young adults: feasibility, reliability and validity in a University student population
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Qual Life Res 17:105-14. 2008
    ....
  19. pmc The PedsQL as a patient-reported outcome in children and adolescents with fibromyalgia: an analysis of OMERACT domains
    James W Varni
    Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 5:9. 2007
    ..The focus of these deliberations was exclusively on adult patients, and to our knowledge, these domains have not been previously tested within a multidimensional framework in children and adolescents with fibromyalgia...
  20. ncbi request reprint Literature review: health-related quality of life measurement in pediatric oncology: hearing the voices of the children
    James W Varni
    College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137 USA
    J Pediatr Psychol 32:1151-63. 2007
    ....
  21. doi request reprint The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843, USA
    Pediatr Clin North Am 56:843-63. 2009
    ....
  22. pmc PROMIS Pediatric Pain Interference Scale: an item response theory analysis of the pediatric pain item bank
    James W Varni
    Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
    J Pain 11:1109-19. 2010
    ..A simulated CAT was computed that provides the most information at 5 possible score locations (30, 40, 50, 60, and 70 on the T-score metric)...
  23. pmc How young can children reliably and validly self-report their health-related quality of life?: an analysis of 8,591 children across age subgroups with the PedsQL 4.0 Generic Core Scales
    James W Varni
    Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 5:1. 2007
    ..Data from the PedsQL DatabaseSM were utilized to test the hypothesis that children as young as 5 years of age can reliably and validly report their HRQOL...
  24. doi request reprint The PedsQL™ Infant Scales: feasibility, internal consistency reliability, and validity in healthy and ill infants
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Qual Life Res 20:45-55. 2011
    ..The objective of this study was to report on the initial feasibility, internal consistency reliability, and validity of the PedsQL™ Infant Scales in healthy, acutely ill, and chronically ill infants...
  25. doi request reprint The PedsQL Multidimensional Fatigue Scale in type 1 diabetes: feasibility, reliability, and validity
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
    Pediatr Diabetes 10:321-8. 2009
    ..The objective of the present study was to determine the feasibility, reliability, and validity of the PedsQL Multidimensional Fatigue Scale in type 1 diabetes...
  26. pmc Health-related quality of life in pediatric liver transplant recipients compared with other chronic disease groups
    Christine A Limbers
    Department of Psychology and Neuroscience, Baylor University, Waco, TX, USA
    Pediatr Transplant 15:245-53. 2011
    ....
  27. pmc The PedsQL Family Impact Module: preliminary reliability and validity
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 2:55. 2004
    ..The PedsQL Family Impact Module measures parent self-reported physical, emotional, social, and cognitive functioning, communication, and worry. The Module also measures parent-reported family daily activities and family relationships...
  28. doi request reprint Factorial invariance of child self-report across socioeconomic status groups: a multigroup confirmatory factor analysis utilizing the PedsQL 4.0 Generic Core Scales
    Christine A Limbers
    Department of Psychology, College of Liberal Arts, Texas A and M University, College Station, TX, USA
    J Behav Med 31:401-11. 2008
    ..Based on these data, it can be concluded that children across SES groups interpreted items on the PedsQL in a similar manner...
  29. doi request reprint Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL)
    Stuart L Goldstein
    Baylor College of Medicine, Houston, TX, USA
    Am J Kidney Dis 51:285-97. 2008
    ..Minimal data exist to describe health-related quality of life in children with end-stage renal disease (ESRD)...
  30. doi request reprint Factorial invariance of child self-report across age subgroups: a confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL 4.0 Generic Core Scales
    Christine A Limbers
    Department of Psychology, College of Liberal Arts, Texas A and M University, College Station, TX 77843 3137, USA
    Value Health 11:659-68. 2008
    ..This study examined age subgroup factorial invariance of child self-report for ages 5 to 16 years on more than 8,500 children utilizing the PedsQL 4.0 Generic Core Scales...
  31. pmc PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients: feasibility, reliability, and validity
    James W Varni
    Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Qual Life Res 20:913-21. 2011
    ..The objective of the present study was to determine the feasibility, reliability, and validity of the PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients...
  32. pmc Factors predicting health-related quality of life in pediatric liver transplant recipients in the functional outcomes group
    Estella M Alonso
    Department of Pediatrics, Ann and Robert H Lurie Children s Hospital of Chicago, Chicago, IL, USA
    Pediatr Transplant 17:605-11. 2013
    ..Male gender, single-parent households, higher bilirubin levels at LT, and use of anti-seizure medication predicted lower cognitive function scores. HRQOL following pediatric LT is related to medical and demographic variables. ..
  33. pmc PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Qual Life Res 21:1223-40. 2012
    ....
  34. ncbi request reprint Psychometric properties of the PROMIS ® pediatric scales: precision, stability, and comparison of different scoring and administration options
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
    Qual Life Res 23:1233-43. 2014
    ....
  35. ncbi request reprint Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
    Dev Med Child Neurol 47:592-7. 2005
    ..1) and hemiplegia (mean 72.4). Parent-child concordance was lowest for emotional functioning. Providers and parents should obtain the children's HRQOL perceptions whenever possible...
  36. pmc Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: built using item response theory
    Esi Morgan Dewitt
    Department of Pediatrics, Duke University Medical Center, Durham, NC, USA
    J Clin Epidemiol 64:794-804. 2011
    ..To create self-report physical function (PF) measures for children using modern psychometric methods for item analysis as part of patient-reported outcomes measurement information system (PROMIS)...
  37. ncbi request reprint PedsQL gastrointestinal symptoms module item development: qualitative methods
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
    J Pediatr Gastroenterol Nutr 54:664-71. 2012
    ....
  38. ncbi request reprint The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    J Rheumatol 31:2494-500. 2004
    ..Children with fibromyalgia manifested greater fatigue than children with other rheumatic diseases...
  39. ncbi request reprint Factorial invariance of pediatric patient self-reported fatigue across age and gender: a multigroup confirmatory factor analysis approach utilizing the PedsQL™ Multidimensional Fatigue Scale
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
    Qual Life Res 22:2581-94. 2013
    ..This study examined the factorial invariance of the 18-item PedsQL™ Multidimensional Fatigue Scale items across age and gender and tested a bifactor model...
  40. doi request reprint The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales
    Sarah E Davis
    Department of Pediatrics, UT Southwestern Medical Center, Dallas, TX 75390 9063, USA
    J Clin Neuromuscul Dis 11:97-109. 2010
    ..0 Neuromuscular Module (NMM) in assessing health-related quality of life in the Duchenne muscular dystrophy (DMD) population for use as a secondary outcome measure in phase III clinical trials...
  41. pmc Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipients
    Estella M Alonso
    Department of Pediatrics, Children s Memorial Hospital, 2300 Children s Plaza, Box 65, Chicago, IL 60614, USA
    J Pediatr 156:270-6.e1. 2010
    ..To investigate the distribution of health-related quality of life in pediatric liver transplant recipients compared with a normative population...
  42. pmc PROMIS® Parent Proxy Report Scales for children ages 5-7 years: an item response theory analysis of differential item functioning across age groups
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
    Qual Life Res 23:349-61. 2014
    ....
  43. pmc Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
    Health Qual Life Outcomes 3:34. 2005
    ....
  44. pmc The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module
    Susan T Iannaccone
    Department of Pediatrics, UT Southwestern Medical Center, Dallas, TX, USA
    Neuromuscul Disord 19:805-12. 2009
    ..For the purposes of a clinical trial, the PedsQL Neuromuscular Module and Generic Core Scales provide an integrated measurement model with the advantages of both generic and condition-specific instruments...
  45. ncbi request reprint Content validity of the PedsQL™ 3.2 Diabetes Module in newly diagnosed patients with Type 1 diabetes mellitus ages 8-45
    James W Varni
    Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX, 77843 3137, USA
    Qual Life Res 22:2169-81. 2013
    ..This study aimed to document the content validity of three age-specific versions (8-12 years, 13-18 years, and 18-45 years) of the PedsQL™ Diabetes Module in a population of newly diagnosed patients with Type 1 diabetes...
  46. doi request reprint Beyond distance: children's school travel mode choice
    Chanam Lee
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 014 Williams Administration Building, College Station, TX 77843 3137, USA
    Ann Behav Med 45:S55-67. 2013
    ..Long distance is a leading environmental barrier to walking to school and requires long-term, multilevel interventions. Meanwhile, childhood obesity remains highly prevalent, calling for more immediate solutions...
  47. doi request reprint Health-related quality of life of pediatric patients with moderate to severe plaque psoriasis: comparisons to four common chronic diseases
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
    Eur J Pediatr 171:485-92. 2012
    ..These results demonstrate the significant negative impact of plaque psoriasis on the daily lives of these children from the patients' perspective...
  48. ncbi request reprint The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
    Qual Life Res 15:203-15. 2006
    ....
  49. ncbi request reprint Health-related quality of life and cognitive functioning from the perspective of parents of school-aged children with Asperger's Syndrome utilizing the PedsQL
    Christine A Limbers
    Department of Psychology, Texas A and M University, College Station, TX 77843 3137, USA
    J Autism Dev Disord 39:1529-41. 2009
    ..The results demonstrate the initial measurement properties of the PedsQL in school-aged children with Asperger's Syndrome...
  50. ncbi request reprint Factorial invariance of child self-report across race/ethnicity groups: a multigroup confirmatory factor analysis approach utilizing the PedsQL 4.0 Generic Core Scales
    Christine A Limbers
    Department of Psychology, College of Liberal Arts, Texas A and M University, College Station, TX 77843 3137, USA
    Ann Epidemiol 19:575-81. 2009
    ..This study examined the factorial invariance of child self-reported HRQOL across race/ethnicity groups for ages 5-18 years utilizing the 23-item PedsQL 4.0 Generic Core Scales...
  51. ncbi request reprint The PedsQL in pediatric cancer pain: a prospective longitudinal analysis of pain and emotional distress
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
    J Dev Behav Pediatr 25:239-46. 2004
    ..These results suggest that both pain and emotional distress should be targeted for treatment interventions concurrently to enhance long-term health-related quality of life of the pediatric patient with cancer...
  52. ncbi request reprint The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture and the Department of Pediatrics, Texas A and M University, College Station, TX 77843, USA
    Ambul Pediatr 3:329-41. 2003
    ....
  53. doi request reprint Patient-reported Pediatric Quality of Life Inventory™ 4.0 Generic Core Scales in pediatric patients with attention-deficit/hyperactivity disorder and comorbid psychiatric disorders: feasibility, reliability, and validity
    Christine A Limbers
    Department of Psychology and Neuroscience, Baylor University, Waco, TX, USA
    Value Health 14:521-30. 2011
    ..The secondary objective was to evaluate parent proxy-reported PedsQL in this population...
  54. doi request reprint Factorial invariance of child self-report across healthy and chronic health condition groups: a confirmatory factor analysis utilizing the PedsQLTM 4.0 Generic Core Scales
    Christine A Limbers
    College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
    J Pediatr Psychol 33:630-9. 2008
    ..The objective of the present study was to examine the factorial invariance of the PedsQL 4.0 Generic Core Scales for child self-report across 11,433 children ages 5-18 with chronic health conditions and healthy children...
  55. doi request reprint A comparative analysis of health-related quality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQL
    Christine A Limbers
    Texas A and M University, College Station, TX 77843 3137, USA
    J Atten Disord 15:392-402. 2011
    ..To evaluate health-related quality of life (HRQOL) from the perspective of children with ADHD and their parents being seen in a Pediatric Clinic in comparison to healthy children and children with ADHD being seen in a Psychiatric Clinic...
  56. ncbi request reprint The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module
    James W Varni
    Colleges of Architecture and Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
    Diabetes Care 26:631-7. 2003
    ..The PedsQL 3.0 Type 1 Diabetes Module was designed to measure diabetes-specific HRQOL...
  57. ncbi request reprint Fatigue and health-related quality of life in pediatric inflammatory bowel disease
    Seth B Marcus
    Department of Pediatrics, Northwestern University, Chicago, Illinois 60614, USA
    Clin Gastroenterol Hepatol 7:554-61. 2009
    ..This study examined the degree of fatigue and health-related quality of life (HRQOL) in children with inflammatory bowel disease (IBD)...
  58. ncbi request reprint Evaluation of the built environment at a children's convalescent hospital: development of the Pediatric Quality of Life Inventory parent and staff satisfaction measures for pediatric health care facilities
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station 77843 3137, USA
    J Dev Behav Pediatr 25:10-20. 2004
    ..53; p <.001; r =.51; p <.01, respectively). The implications of the findings for the architectural design and evaluation of pediatric health care facilities are discussed...
  59. ncbi request reprint The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module
    James W Varni
    Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
    J Behav Med 27:297-318. 2004
    ..The results demonstrate the reliability, validity, and responsiveness of the PedsQL required for an outcome measure in pediatric asthma clinical trials and research...
  60. pmc Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer
    Martha A Askins
    Department of Pediatrics, Unit 87, The University of Texas M D Anderson Cancer Center, 1515 Holcombe Blvd, Houston, TX, 77030 4009, USA
    J Pediatr Psychol 34:551-63. 2009
    ..To evaluate the feasibility and efficacy of a handheld personal digital assistant (PDA)-based supplement for maternal Problem-Solving Skills Training (PSST) and to explore Spanish-speaking mothers' experiences with it...
  61. pmc Development of the PedsQL™ Sickle Cell Disease Module items: qualitative methods
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, 8701 Watertown Plank Road, Milwaukee, WI 53226, USA
    Qual Life Res 21:341-57. 2012
    ..The objective of this qualitative study was to develop the items and support the content validity of the PedsQL™ Sickle Cell Disease Module for pediatric patients with sickle cell disease (SCD)...
  62. ncbi request reprint Health-related quality of life and depressive symptoms in children with suspected sleep-disordered breathing
    Valerie McLaughlin Crabtree
    Division of Pediatric Sleep Medicine and Kosair Children s Hospital Research Institute, Department of Pediatrics, University of Louisville School of Medicine, KY 40202, USA
    Sleep 27:1131-8. 2004
    ..However, the impact of SDB on mood and quality of life and the confounder effect of obesity in this setting are unclear...
  63. doi request reprint Health-related quality of life and cognitive functioning in pediatric short stature: comparison of growth-hormone-naïve, growth-hormone-treated, and healthy samples
    Matthew D Stephen
    Department of Pediatrics, Division of Endocrinology, The Children s Hospital at Scott and White and The University of Texas Health Science Center Houston, 2401 S 31st St, Temple, TX 76508, USA
    Eur J Pediatr 170:351-8. 2011
    ..0 Generic Score Scales and PedsQL™ Cognitive Functioning Scale in routine assessment of children with short stature in order to identify children at increased risk for impaired HRQOL and cognitive functioning...
  64. doi request reprint PedsQL™ sickle cell disease module: feasibility, reliability, and validity
    Julie A Panepinto
    Department of Pediatrics, Children s Hospital of Wisconsin of the Children s Research Institute Medical College of Wisconsin, Hematology Oncology Bone Marrow Transplantation, Milwaukee, Wisconsin 53226, USA
    Pediatr Blood Cancer 60:1338-44. 2013
    ..The objective of the study was to report on the initial measurement properties of the new PedsQL™ SCD Module for pediatric patient self-report ages 5-18 years and parent proxy-report for ages 2-18 years...
  65. pmc Development of the adult PedsQL™ neurofibromatosis type 1 module: initial feasibility, reliability and validity
    Kavitha Nutakki
    Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA
    Health Qual Life Outcomes 11:21. 2013
    ..The objective of this study was to develop an NF1 HRQOL instrument as a module of PedsQL™ and to test for its initial feasibility, internal consistency reliability and validity in adults with NF1...
  66. ncbi request reprint Health-related quality of life in pediatric patients with long-standing pancreatitis
    John F Pohl
    Division of Pediatric Gastroenterology, Primary Children s Medical Center, University of Utah, Salt Lake City, UT 84113 1103, USA
    J Pediatr Gastroenterol Nutr 54:657-63. 2012
    ..There are limited data on health-related quality of life (HRQOL) in pediatric patients with long-standing pancreatitis (including acute relapsing and chronic pancreatitis) using age-appropriate measurement instruments...
  67. ncbi request reprint Context-specific correlates of walking behaviors to and from school: do they vary across neighborhoods and populations?
    Xuemei Zhu
    Dept of Architecture, Texas A and M University, College Station, TX, USA
    J Phys Act Health 8:S59-71. 2011
    ..To address this knowledge gap, this study compared 4 elementary school settings (low-income inner-city; mid- to low-income, urban with and without freeway in attendance area; and high-income suburban) in Austin, Texas...
  68. ncbi request reprint Effect of aripiprazole 2 to 15 mg/d on health-related quality of life in the treatment of irritability associated with autistic disorder in children: a post hoc analysis of two controlled trials
    James W Varni
    Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas
    Clin Ther 34:980-92. 2012
    ..There are limited published data on the impact of treatment on the health-related quality of life (HRQOL) in individuals with autistic disorder...
  69. ncbi request reprint Promoting healthy lifestyles: Behavior modification and motivational interviewing in the treatment of childhood obesity
    Christine A Limbers
    Department of Psychology, College of Liberal Arts, 3137 TAMU, Texas A and M University, College Station, TX, 77843 3137 USA
    J Clin Lipidol 2:169-78. 2008
    ..Concerted efforts are clearly needed to elucidate the mechanisms for maintenance of initial treatment gains, as well as the ultimate achievement of more ideal weight once formal treatment ceases...
  70. ncbi request reprint Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core Scales
    Konstantina Gkoltsiou
    Center for Health Services Research, Medical School, University of Athens, Alexandroupoleos 25, Athens 11527, Greece
    Qual Life Res 17:299-305. 2008
    ..The aim of this study was to investigate the psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 (PedsQL(TM) 4.0) as a population health outcome measure...
  71. ncbi request reprint The effects of dyadic strength and coping styles on psychological distress in couples faced with prostate cancer
    Rajni Banthia
    SDSU UCSD Joint Doctoral Program in Clinical Psychology, 6363 Alvarado Ct 103, San Diego, California 92120, USA
    J Behav Med 26:31-52. 2003
    ..Being part of a strong dyad may serve as a buffering factor, implying the need for psychosocial intervention for couples in maladjusted relationships...
  72. ncbi request reprint The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making
    James W Varni
    Center for Child Health Outcomes, Children s Hospital and Health Center, Department of Psychiatry, University of California, San Diego, School of Medicine, USA
    J Behav Med 25:175-93. 2002
    ..In the pediatric rheumatology clinic setting, the PedsQL demonstrated an impact on clinical decision-making, resulting in subsequent increases in HRQOL...
  73. ncbi request reprint Crossing the border for health care: access and primary care characteristics for young children of Latino farm workers along the US-Mexico border
    Michael Seid
    Center for Child Health Outcomes, San Diego, CA 92123, USA
    Ambul Pediatr 3:121-30. 2003
    ..To examine prevalence and correlates of cross-border health care for children of Latino farm workers in counties near the US-Mexico border and to compare access and primary care in the United States and Mexico...
  74. ncbi request reprint The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life
    Ross M Hays
    Pediatric Palliative Care Consultation Program, Children s Hospital and Regional Medical Center Seattle, Seattle, Washington 98180, USA
    J Palliat Med 9:716-28. 2006
    ..The program was designed to enhance patient-provider communication using the Decision-making Tool (DMT) and experimented with co-management by clinicians and insurers to support decision making in advanced serious pediatric illness...
  75. ncbi request reprint Trajectories of adjustment in mothers of children with newly diagnosed cancer: a natural history investigation
    Michael J Dolgin
    Schneider Children s Medical Center, Israel
    J Pediatr Psychol 32:771-82. 2007
    ....
  76. ncbi request reprint Health-related quality of life of severely obese children and adolescents
    Jeffrey B Schwimmer
    Division of Pediatric Gastroenterology, Hepatology, and Nutrition, School of Medicine, University of California, San Diego 92103, USA
    JAMA 289:1813-9. 2003
    ..One in 7 US children and adolescents is obese, yet little is known about their health-related quality of life (QOL)...
  77. ncbi request reprint Reliability and validity of the Pediatric Quality of Life Inventory (PedsQL) Short Form 15 Generic Core Scales in Japan
    Xiaoli Chen
    Faculty of Medicine, Division of Biostatistics and Clinical Epidemiology, University of Toyama, Toyama, Japan
    Qual Life Res 16:1239-49. 2007
    ..To assess the reliability and validity of the Japanese translation version of the Pediatric Quality of Life Inventory 4.0 Short Form 15 (PedsQL 4.0 SF15)...
  78. ncbi request reprint Problem-solving skills and emotional distress in spouses of men with prostate cancer
    Vanessa L Malcarne
    Department of Psychology, San Diego State University, CA 92120 4913, USA
    J Cancer Educ 17:150-4. 2002
    ..Prostate cancer, the most common cancer in American men, may increase the risk of emotional distress in patients and their spouses. Problem-solving skills may be related to the emotional distress of the spouses...
  79. ncbi request reprint Pain, fatigue, and school functioning in children with cerebral palsy: a path-analytic model
    Susan J Berrin
    San Diego State University, USA
    J Pediatr Psychol 32:330-7. 2007
    ..This study tests a model of how pain and fatigue, independently or in combination, relate to school functioning in pediatric cerebral palsy (CP)...
  80. ncbi request reprint The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module
    James W Varni
    Center for Child Health Outcomes, Children s Hospital and Health Center, 3020 Children s Way, San Diego, CA 92123, USA
    Cancer 94:2090-106. 2002
    ..The PedsQL Multidimensional Fatigue Scale was designed to measure fatigue in pediatric patients. The PedsQL 3.0 Cancer Module was designed to measure pediatric cancer specific HRQOL...
  81. ncbi request reprint The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module
    James W Varni
    Center for Children s Health Outcomes, Children s Hospital and Health Center and University of California, San Diego School of Medicine, 92123, USA
    Arthritis Rheum 46:714-25. 2002
    ..This study was undertaken to demonstrate the reliability, validity, and responsiveness of the PedsQL 4.0 Generic Core Scales and the PedsQL 3.0 Rheumatology Module in pediatric rheumatology...
  82. pmc Parents' perceptions of pediatric primary care quality: effects of race/ethnicity, language, and access
    Michael Seid
    Center for Child Health Outcomes, San Diego, CA 92123, USA
    Health Serv Res 38:1009-31. 2003
    ..To examine the effects of race/ethnicity, language, and potential access on parents' reports of pediatric primary care experiences...
  83. ncbi request reprint Measuring primary care for children of Latino farmworkers: reliability and validity of the parent's perceptions of primary care measure (P3C)
    Michael Seid
    RAND Health, Santa Monica, California 90407, USA
    Matern Child Health J 9:49-57. 2005
    ..The P3C can be useful to various stakeholders in measuring primary care for vulnerable populations...
  84. ncbi request reprint The PedsQL Brain Tumor Module: initial reliability and validity
    Stephanie N Palmer
    Childrens Center for Cancer and Blood Diseases, Childrens Hospital Los Angeles, Keck School of Medicine, University of Southern California, Los Angeles, California, USA
    Pediatr Blood Cancer 49:287-93. 2007
    ..This investigation examines the internal consistency reliability and construct validity of the Pediatric Quality of Life Inventory (PedsQL) Brain Tumor Module...
  85. ncbi request reprint Profile of daily life in children with brain tumors: an assessment of health-related quality of life
    Sundeep R Bhat
    Department of Neurology, Stanford University School of Medicine, Palo Alto, CA, USA
    J Clin Oncol 23:5493-500. 2005
    ..We aimed to show that universal assessment of HRQOL could be obtained easily by using the PedsQL 4.0 and to provide a composite profile of their daily lives...
  86. ncbi request reprint The stress-reducing effects of art in pediatric health care: art preferences of healthy children and hospitalized children
    Sarajane L Eisen
    Interior Design, College of Consumer Affairs, Auburn University, Auburn, AL, USA
    J Child Health Care 12:173-90. 2008
    ..Findings were evaluated from three phases...
  87. ncbi request reprint Practical issues in the application of item response theory: a demonstration using items from the pediatric quality of life inventory (PedsQL) 4.0 generic core scales
    Cheryl D Hill
    RTI Health Solutions, Research Triangle Park, North Carolina 27709 2194, USA
    Med Care 45:S39-47. 2007
    ..This article discusses results obtained using categorical confirmatory factor analysis (CCFA) to check IRT model assumptions and the application of IRT in item analysis and scale evaluation...
  88. ncbi request reprint The PedsQL: reliability and validity of the short-form generic core scales and Asthma Module
    Kitty S Chan
    RAND Corporation, Health Program, Santa Monica, California, USA
    Med Care 43:256-65. 2005
    ..0 SF15, a shortened version of the 23-item PedsQL 4.0 Generic Core Scales, which is a pediatric health-related quality of life (HRQoL) instrument, and the PedsQL 3.0 SF22 Asthma Module, a short-form of the PedsQL 3.0 Asthma Module...
  89. ncbi request reprint Quality of life in children with heart disease as perceived by children and parents
    Karen Uzark
    Department of Pediatric Cardiology, Children s Hospital Medical Center, 3333 Burnet Ave, Cincinnati, OH 45229, USA
    Pediatrics 121:e1060-7. 2008
    ....
  90. pmc The use of focus groups in the development of the PROMIS pediatrics item bank
    Tasanee R Walsh
    School of Social Work, University of North Carolina at Chapel Hill, Tate Turner Kuralt Bldg, CB 3550, 325 Pittsboro St, Chapel Hill, NC 27599 3550, USA
    Qual Life Res 17:725-35. 2008
    ..We used this information in the development of patient-reported outcome items for the Patient-Reported Outcomes Measurement Information System Pediatrics project...
  91. pmc Item response theory detected differential item functioning between healthy and ill children in quality-of-life measures
    Michelle M Langer
    Thurstone Psychometric Laboratory, University of North Carolina, Davie Hall, CB 3270, Chapel Hill, NC 27599 3270, USA
    J Clin Epidemiol 61:268-76. 2008
    ..To demonstrate the value of item response theory (IRT) and differential item functioning (DIF) methods in examining a health-related quality-of-life measure in children and adolescents...
  92. ncbi request reprint The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis--a one year prospective study
    Michael G Sawyer
    Research and Evaluation Unit, Women s and Children s Hospital, South Australia, Australia
    Qual Life Res 14:1585-98. 2005
    ..However, there was little evidence that pain coping strategies mediated the relationship between children's experience of pain and their HRQL...
  93. pmc Problem-solving and distress in prostate cancer patients and their spousal caregivers
    Celine M Ko
    Joint Doctoral Program in Clinical Psychology, San Diego State University University of California, 6363 Alvarado Court, Suite 103, San Diego, CA, 92120 4913, USA
    Support Care Cancer 13:367-74. 2005
    ..The following mediational model was tested: Spouses' problem-solving coping will be significantly inversely related to patients' levels of distress, but this relationship will be mediated by spouses' distress levels...
  94. ncbi request reprint Correspondence between daily and weekly fatigue reports in breast cancer survivors
    Rajni Banthia
    SDSU UCSD Joint Doctoral Program in Clinical Psychology, San Diego, CA 92120 4913, USA
    J Behav Med 29:269-79. 2006
    ..Findings suggest that different information is captured by daily versus weekly reports, and that although visual analogue scale ratings can provide a quick assessment of general fatigue, they do not capture other important dimensions...
  95. ncbi request reprint The impact of realized access to care on health-related quality of life: a two-year prospective cohort study of children in the California State Children's Health Insurance Program
    Michael Seid
    RAND Corporation, 1776 Main Street, M4W, Santa Monica, CA 90407, USA
    J Pediatr 149:354-61. 2006
    ..To examine the effect of realized access to care (problems getting care, access to needed care) on health-related quality of life (HRQOL) in the California State Children's Health Insurance Program...
  96. ncbi request reprint Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia
    Kathleen Meeske
    Childrens Center for Cancer and Blood Diseases, Childrens Hospital Los Angeles, Los Angeles, CA 90027, USA
    Cancer 101:2116-25. 2004
    ..Parent proxy assessments of HRQOL allow for greater inclusion of children who are developmentally immature, physically ill, or cognitively impaired...
  97. ncbi request reprint Parents' reports of barriers to care for children with special health care needs: development and validation of the barriers to care questionnaire
    Michael Seid
    RAND Health, Santa Monica, CA 90407, USA
    Ambul Pediatr 4:323-31. 2004
    ..To describe the development and validation of the Barriers to Care Questionnaire (BCQ)...
  98. pmc Health-related quality of life as a predictor of pediatric healthcare costs: a two-year prospective cohort analysis
    Michael Seid
    RAND Health, 1700 Main Street, M 28, Santa Monica, California, 90407, USA
    Health Qual Life Outcomes 2:48. 2004
    ..The exploratory hypothesis tested anticipated that a relatively small group of children would account for a disproportionately large percent of healthcare costs...
  99. ncbi request reprint Measuring the quality of children's postoperative pain management: initial validation of the child/parent Total Quality Pain Management (TQPM) instruments
    Roxie L Foster
    School of Nursing, University of Colorado Health Sciences Center, Denver, CO 80262, USA
    J Pain Symptom Manage 23:201-10. 2002
    ..Construct validity was examined through selected inter-item relationships. Psychometric analyses support the initial measurement properties of the pediatric TQPM instruments...
  100. ncbi request reprint Daily hassles and social support as predictors of adjustment in children with pediatric rheumatic disease
    Renee T von Weiss
    University of Kansas Medical Center, Kansas City 66160 7330, USA
    J Pediatr Psychol 27:155-65. 2002
    ....
  101. ncbi request reprint Problem-solving skills training for mothers of children with newly diagnosed cancer: a randomized trial
    Olle Jane Z Sahler
    Division of Hematology Oncology, Strong Children s Hospital University of Rochester Medical Center, New York 14642, USA
    J Dev Behav Pediatr 23:77-86. 2002
    ..The implications of these findings for refinement of the PSST intervention and for extension to other groups of children with serious illnesses are discussed...