Research Topics
| James W VarniSummaryAffiliation: Texas A and M University Country: USA Publications
| Collaborators
|
Detail Information
Publications
Health-related quality of life as a predictor of pediatric healthcare costs: a two-year prospective cohort analysisMichael Seid
RAND Health, 1700 Main Street, M 28, Santa Monica, California, 90407, USA
Health Qual Life Outcomes 2:48. 2004..The exploratory hypothesis tested anticipated that a relatively small group of children would account for a disproportionately large percent of healthcare costs...
The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma moduleJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
J Behav Med 27:297-318. 2004..The results demonstrate the reliability, validity, and responsiveness of the PedsQL required for an outcome measure in pediatric asthma clinical trials and research...
The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validityJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
J Rheumatol 31:2494-500. 2004..CONCLUSION: The results confirm the initial reliability and validity of the PedsQL Multidimensional Fatigue Scale in pediatric rheumatology...
The PedsQL Family Impact Module: preliminary reliability and validityJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 2:55. 2004..The PedsQL Family Impact Module measures parent self-reported physical, emotional, social, and cognitive functioning, communication, and worry. The Module also measures parent-reported family daily activities and family relationships...
Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and applicationJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 3:34. 2005....
The PedsQL in pediatric cancer pain: a prospective longitudinal analysis of pain and emotional distressJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
J Dev Behav Pediatr 25:239-46. 2004..These results suggest that both pain and emotional distress should be targeted for treatment interventions concurrently to enhance long-term health-related quality of life of the pediatric patient with cancer...
Evaluation of the built environment at a children's convalescent hospital: development of the Pediatric Quality of Life Inventory parent and staff satisfaction measures for pediatric health care facilitiesJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station 77843 3137, USA
J Dev Behav Pediatr 25:10-20. 2004..53; p <.001; r =.51; p <.01, respectively). The implications of the findings for the architectural design and evaluation of pediatric health care facilities are discussed...
The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validityJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture and the Department of Pediatrics, Texas A and M University, College Station, TX 77843, USA
Ambul Pediatr 3:329-41. 2003....
Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the childrenJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
Dev Med Child Neurol 47:592-7. 2005..1) and hemiplegia (mean 72.4). Parent-child concordance was lowest for emotional functioning. Providers and parents should obtain the children's HRQOL perceptions whenever possible...
The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validityJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
Qual Life Res 15:203-15. 2006....
The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes ModuleJames W Varni
Colleges of Architecture and Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
Diabetes Care 26:631-7. 2003..The PedsQL 3.0 Type 1 Diabetes Module was designed to measure diabetes-specific HRQOL...
Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core ScalesJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 5:43. 2007..Comparisons were also benchmarked with healthy children data...
The PedsQL as a patient-reported outcome in children and adolescents with fibromyalgia: an analysis of OMERACT domainsJames W Varni
Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 5:9. 2007..The focus of these deliberations was exclusively on adult patients, and to our knowledge, these domains have not been previously tested within a multidimensional framework in children and adolescents with fibromyalgia...
Factorial invariance of child self-report across socioeconomic status groups: a multigroup confirmatory factor analysis utilizing the PedsQL 4.0 Generic Core ScalesChristine A Limbers
Department of Psychology, College of Liberal Arts, Texas A and M University, College Station, TX, USA
J Behav Med 31:401-11. 2008..Based on these data, it can be concluded that children across SES groups interpreted items on the PedsQL in a similar manner...
Factorial invariance of child self-report across age subgroups: a confirmatory factor analysis of ages 5 to 16 years utilizing the PedsQL 4.0 Generic Core ScalesChristine A Limbers
Department of Psychology, College of Liberal Arts, Texas A and M University, College Station, TX 77843 3137, USA
Value Health 11:659-68. 2008..This study examined age subgroup factorial invariance of child self-report for ages 5 to 16 years on more than 8,500 children utilizing the PedsQL 4.0 Generic Core Scales...
PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banksJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Qual Life Res 21:1223-40. 2012....
The PedsQL Multidimensional Fatigue Scale in type 1 diabetes: feasibility, reliability, and validityJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
Pediatr Diabetes 10:321-8. 2009..The objective of the present study was to determine the feasibility, reliability, and validity of the PedsQL Multidimensional Fatigue Scale in type 1 diabetes...
The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parentsJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843, USA
Pediatr Clin North Am 56:843-63. 2009....
PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients: feasibility, reliability, and validityJames W Varni
Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Qual Life Res 20:913-21. 2011..The objective of the present study was to determine the feasibility, reliability, and validity of the PedsQL™ Cognitive Functioning Scale in pediatric liver transplant recipients...
Parent proxy-report of their children's health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQL 4.0 Generic Core ScalesJames W Varni
Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 5:2. 2007..Data from the PedsQL DatabaseSM were utilized to test the reliability and validity of parent proxy-report at the individual age subgroup level for ages 2-16 years as recommended by recent FDA guidelines...
Using factor analysis to confirm the validity of children's self-reported health-related quality of life across different modes of administrationJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas 77843 3137, USA
Clin Trials 6:185-95. 2009..That is, they must demonstrate factorial invariance (stable factor structure) across mode of administration...
Longitudinal factorial invariance of the PedsQL 4.0 Generic Core Scales child self-report Version: one year prospective evidence from the California State Children's Health Insurance Program (SCHIP)James W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
Qual Life Res 17:1153-62. 2008....
The PedsQL as a patient-reported outcome in children and adolescents with Attention-Deficit/Hyperactivity Disorder: a population-based studyJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 4:26. 2006....
Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: built using item response theoryEsi Morgan Dewitt
Department of Pediatrics, Duke University Medical Center, Durham, NC, USA
J Clin Epidemiol 64:794-804. 2011..To create self-report physical function (PF) measures for children using modern psychometric methods for item analysis as part of patient-reported outcomes measurement information system (PROMIS)...
The PedsQL™ Infant Scales: feasibility, internal consistency reliability, and validity in healthy and ill infantsJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Qual Life Res 20:45-55. 2011..The objective of this study was to report on the initial feasibility, internal consistency reliability, and validity of the PedsQL™ Infant Scales in healthy, acutely ill, and chronically ill infants...
The PedsQL multidimensional fatigue scale in pediatric obesity: feasibility, reliability and validityJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas, USA
Int J Pediatr Obes 5:34-42. 2010..The objective of the present study was to determine the feasibility, reliability, and validity of the PedsQL Multidimensional Fatigue Scale in pediatric obesity...
PedsQL gastrointestinal symptoms module item development: qualitative methodsJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
J Pediatr Gastroenterol Nutr 54:664-71. 2012....
Cross-sectional analysis of health-related quality of life in pediatric liver transplant recipientsEstella M Alonso
Department of Pediatrics, Children s Memorial Hospital, 2300 Children s Plaza, Box 65, Chicago, IL 60614, USA
J Pediatr 156:270-6.e1. 2010..To investigate the distribution of health-related quality of life in pediatric liver transplant recipients compared with a normative population...
The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core ScalesSarah E Davis
Department of Pediatrics, UT Southwestern Medical Center, Dallas, TX 75390 9063, USA
J Clin Neuromuscul Dis 11:97-109. 2010..0 Neuromuscular Module (NMM) in assessing health-related quality of life in the Duchenne muscular dystrophy (DMD) population for use as a secondary outcome measure in phase III clinical trials...
The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular ModuleSusan T Iannaccone
Department of Pediatrics, UT Southwestern Medical Center, Dallas, TX, USA
Neuromuscul Disord 19:805-12. 2009..For the purposes of a clinical trial, the PedsQL Neuromuscular Module and Generic Core Scales provide an integrated measurement model with the advantages of both generic and condition-specific instruments...
The ePedsQL in type 1 and type 2 diabetes: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Internet administrationJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas, USA
Diabetes Care 31:672-7. 2008..The electronic version of the PedsQL 4.0 (ePedsQL) was designed for Internet administration...
The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy ModuleJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station, 77843 3137, USA
Dev Med Child Neurol 48:442-9. 2006..0 distinguished between healthy children and children with CP. Construct validity of the CP Module was supported. Sensitivity of the PedsQL was demonstrated among children with different diagnostic categories and gross motor function...
How young can children reliably and validly self-report their health-related quality of life?: an analysis of 8,591 children across age subgroups with the PedsQL 4.0 Generic Core ScalesJames W Varni
Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Health Qual Life Outcomes 5:1. 2007..Data from the PedsQL DatabaseSM were utilized to test the hypothesis that children as young as 5 years of age can reliably and validly report their HRQOL...
Health-related quality of life of pediatric patients with moderate to severe plaque psoriasis: comparisons to four common chronic diseasesJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, TX, USA
Eur J Pediatr 171:485-92. 2012..These results demonstrate the significant negative impact of plaque psoriasis on the daily lives of these children from the patients' perspective...
Health-related quality of life in pediatric patients with irritable bowel syndrome: a comparative analysisJames W Varni
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, College Station, Texas 77843 3137, USA
J Dev Behav Pediatr 27:451-8. 2006..These findings suggest the need for targeted interventions to address these dimensions of impaired HRQOL...
The PedsQL Multidimensional Fatigue Scale in young adults: feasibility, reliability and validity in a University student populationJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
Qual Life Res 17:105-14. 2008....
The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student populationJames W Varni
College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137, USA
J Health Psychol 14:611-22. 2009..The results demonstrate the measurement properties of the PedsQL Young Adult Version...
A comparative analysis of health-related quality of life and family impact between children with ADHD treated in a general pediatric clinic and a psychiatric clinic utilizing the PedsQLChristine A Limbers
Texas A and M University, College Station, TX 77843 3137, USA
J Atten Disord 15:392-402. 2011..To evaluate health-related quality of life (HRQOL) from the perspective of children with ADHD and their parents being seen in a Pediatric Clinic in comparison to healthy children and children with ADHD being seen in a Psychiatric Clinic...
PROMIS Pediatric Pain Interference Scale: an item response theory analysis of the pediatric pain item bankJames W Varni
Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
J Pain 11:1109-19. 2010..It is anticipated that this new scale will have application in pediatric chronic and recurrent pain...
Literature review: health-related quality of life measurement in pediatric oncology: hearing the voices of the childrenJames W Varni
College of Architecture, Texas A and M University, 3137 TAMU, College Station, TX 77843 3137 USA
J Pediatr Psychol 32:1151-63. 2007....
Factorial invariance of child self-report across race/ethnicity groups: a multigroup confirmatory factor analysis approach utilizing the PedsQL 4.0 Generic Core ScalesChristine A Limbers
Department of Psychology, College of Liberal Arts, Texas A and M University, College Station, TX 77843 3137, USA
Ann Epidemiol 19:575-81. 2009..This study examined the factorial invariance of child self-reported HRQOL across race/ethnicity groups for ages 5-18 years utilizing the 23-item PedsQL 4.0 Generic Core Scales...
Factorial invariance of child self-report across healthy and chronic health condition groups: a confirmatory factor analysis utilizing the PedsQLTM 4.0 Generic Core ScalesChristine A Limbers
College of Architecture, Texas A and M University, 3137 TAMU, College Station, Texas 77843 3137, USA
J Pediatr Psychol 33:630-9. 2008..The objective of the present study was to examine the factorial invariance of the PedsQL 4.0 Generic Core Scales for child self-report across 11,433 children ages 5-18 with chronic health conditions and healthy children...
Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancerMartha A Askins
Department of Pediatrics, Unit 87, The University of Texas M D Anderson Cancer Center, 1515 Holcombe Blvd, Houston, TX, 77030 4009, USA
J Pediatr Psychol 34:551-63. 2009..To evaluate the feasibility and efficacy of a handheld personal digital assistant (PDA)-based supplement for maternal Problem-Solving Skills Training (PSST) and to explore Spanish-speaking mothers' experiences with it...
Health-related quality of life and cognitive functioning from the perspective of parents of school-aged children with Asperger's Syndrome utilizing the PedsQLChristine A Limbers
Department of Psychology, Texas A and M University, College Station, TX 77843 3137, USA
J Autism Dev Disord 39:1529-41. 2009..The results demonstrate the initial measurement properties of the PedsQL in school-aged children with Asperger's Syndrome...
Fatigue and health-related quality of life in pediatric inflammatory bowel diseaseSeth B Marcus
Department of Pediatrics, Northwestern University, Chicago, Illinois 60614, USA
Clin Gastroenterol Hepatol 7:554-61. 2009..This study examined the degree of fatigue and health-related quality of life (HRQOL) in children with inflammatory bowel disease (IBD)...
Health-related quality of life and cognitive functioning in pediatric short stature: comparison of growth-hormone-naïve, growth-hormone-treated, and healthy samplesMatthew D Stephen
Department of Pediatrics, Division of Endocrinology, The Children s Hospital at Scott and White and The University of Texas Health Science Center Houston, 2401 S 31st St, Temple, TX 76508, USA
Eur J Pediatr 170:351-8. 2011..0 Generic Score Scales and PedsQL™ Cognitive Functioning Scale in routine assessment of children with short stature in order to identify children at increased risk for impaired HRQOL and cognitive functioning...
Beyond Distance: Children's School Travel Mode ChoiceChanam Lee
Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A and M University, 014 Williams Administration Building, College Station, TX, 77843 3137, USA
Ann Behav Med 45:55-67. 2013..Long distance is a leading environmental barrier to walking to school and requires long-term, multilevel interventions. Meanwhile, childhood obesity remains highly prevalent, calling for more immediate solutions...
Health-related quality of life in pediatric patients with long-standing pancreatitisJohn F Pohl
Division of Pediatric Gastroenterology, Primary Children s Medical Center, University of Utah, Salt Lake City, UT 84113 1103, USA
J Pediatr Gastroenterol Nutr 54:657-63. 2012..There are limited data on health-related quality of life (HRQOL) in pediatric patients with long-standing pancreatitis (including acute relapsing and chronic pancreatitis) using age-appropriate measurement instruments...
Context-specific correlates of walking behaviors to and from school: do they vary across neighborhoods and populations?Xuemei Zhu
Dept of Architecture, Texas A and M University, College Station, TX, USA
J Phys Act Health 8:S59-71. 2011..To address this knowledge gap, this study compared 4 elementary school settings (low-income inner-city; mid- to low-income, urban with and without freeway in attendance area; and high-income suburban) in Austin, Texas...
Health-related quality of life and depressive symptoms in children with suspected sleep-disordered breathingValerie McLaughlin Crabtree
Division of Pediatric Sleep Medicine and Kosair Children s Hospital Research Institute, Department of Pediatrics, University of Louisville School of Medicine, KY 40202, USA
Sleep 27:1131-8. 2004..However, the impact of SDB on mood and quality of life and the confounder effect of obesity in this setting are unclear...
Effect of aripiprazole 2 to 15 mg/d on health-related quality of life in the treatment of irritability associated with autistic disorder in children: a post hoc analysis of two controlled trialsJames W Varni
Department of Pediatrics, College of Medicine, Texas A and M University, College Station, Texas
Clin Ther 34:980-92. 2012..There are limited published data on the impact of treatment on the health-related quality of life (HRQOL) in individuals with autistic disorder...
Promoting healthy lifestyles: Behavior modification and motivational interviewing in the treatment of childhood obesityChristine A Limbers
Department of Psychology, College of Liberal Arts, 3137 TAMU, Texas A and M University, College Station, TX, 77843 3137 USA
J Clin Lipidol 2:169-78. 2008..Concerted efforts are clearly needed to elucidate the mechanisms for maintenance of initial treatment gains, as well as the ultimate achievement of more ideal weight once formal treatment ceases...
The pediatric quality of life inventory (PedsQL) family impact module: reliability and validity of the Brazilian versionAna C Scarpelli
Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Federal University of Minas Gerais Av, Antonio Carlos 6627, Belo Horizonte, MG, 31270 901, Brazil
Health Qual Life Outcomes 6:35. 2008..The objective of the present study was to evaluate the psychometric properties of the PedsQL Family Impact Module cross-culturally adapted for use in Brazil...
Quality of life in children with heart disease as perceived by children and parentsKaren Uzark
Department of Pediatric Cardiology, Children s Hospital Medical Center, 3333 Burnet Ave, Cincinnati, OH 45229, USA
Pediatrics 121:e1060-7. 2008....
The stress-reducing effects of art in pediatric health care: art preferences of healthy children and hospitalized childrenSarajane L Eisen
Interior Design, College of Consumer Affairs, Auburn University, Auburn, AL, USA
J Child Health Care 12:173-90. 2008..Findings were evaluated from three phases...
Initial validation of the Argentinean Spanish version of the PedsQL 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settingsMariana Roizen
Committee on Quality of Life, Hospital de Pediatria Prof Dr Juan P Garrahan, Pichincha 1890, Buenos Aires, Argentina
Health Qual Life Outcomes 6:59. 2008..Reliability, and known-groups, and convergent validity were tested...
Parents' perceptions of pediatric primary care quality: effects of race/ethnicity, language, and accessMichael Seid
Center for Child Health Outcomes, San Diego, CA 92123, USA
Health Serv Res 38:1009-31. 2003..CONCLUSIONS: To reduce racial/ethnic disparities in primary care, attention should be paid both to policies aimed at improving potential access and to providing linguistically appropriate services...
The use of focus groups in the development of the PROMIS pediatrics item bankTasanee R Walsh
School of Social Work, University of North Carolina at Chapel Hill, Tate Turner Kuralt Bldg, CB 3550, 325 Pittsboro St, Chapel Hill, NC 27599 3550, USA
Qual Life Res 17:725-35. 2008..We used this information in the development of patient-reported outcome items for the Patient-Reported Outcomes Measurement Information System Pediatrics project...
Item response theory detected differential item functioning between healthy and ill children in quality-of-life measuresMichelle M Langer
Thurstone Psychometric Laboratory, University of North Carolina, Davie Hall, CB 3270, Chapel Hill, NC 27599 3270, USA
J Clin Epidemiol 61:268-76. 2008..To demonstrate the value of item response theory (IRT) and differential item functioning (DIF) methods in examining a health-related quality-of-life measure in children and adolescents...
Profile of daily life in children with brain tumors: an assessment of health-related quality of lifeSundeep R Bhat
Department of Neurology, Stanford University School of Medicine, Palo Alto, CA, USA
J Clin Oncol 23:5493-500. 2005..Children receiving XRT fare worse overall; chemotherapy added to XRT does not seem to worsen HRQOL. Assessment of HRQOL should be included as an outcome in future clinical trials...
Measuring primary care for children of Latino farmworkers: reliability and validity of the parent's perceptions of primary care measure (P3C)Michael Seid
RAND Health, Santa Monica, California 90407, USA
Matern Child Health J 9:49-57. 2005..The P3C can be useful to various stakeholders in measuring primary care for vulnerable populations...
The PedsQL: reliability and validity of the short-form generic core scales and Asthma ModuleKitty S Chan
RAND Corporation, Health Program, Santa Monica, California, USA
Med Care 43:256-65. 2005..0 SF15, a shortened version of the 23-item PedsQL 4.0 Generic Core Scales, which is a pediatric health-related quality of life (HRQoL) instrument, and the PedsQL 3.0 SF22 Asthma Module, a short-form of the PedsQL 3.0 Asthma Module...
Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemiaKathleen Meeske
Childrens Center for Cancer and Blood Diseases, Childrens Hospital Los Angeles, Los Angeles, CA 90027, USA
Cancer 101:2116-25. 2004..Parent proxy assessments of HRQOL allow for greater inclusion of children who are developmentally immature, physically ill, or cognitively impaired...
Parents' reports of barriers to care for children with special health care needs: development and validation of the barriers to care questionnaireMichael Seid
RAND Health, Santa Monica, CA 90407, USA
Ambul Pediatr 4:323-31. 2004..To describe the development and validation of the Barriers to Care Questionnaire (BCQ)...
Crossing the border for health care: access and primary care characteristics for young children of Latino farm workers along the US-Mexico borderMichael Seid
Center for Child Health Outcomes, San Diego, CA 92123, USA
Ambul Pediatr 3:121-30. 2003..To examine prevalence and correlates of cross-border health care for children of Latino farm workers in counties near the US-Mexico border and to compare access and primary care in the United States and Mexico...
The effects of dyadic strength and coping styles on psychological distress in couples faced with prostate cancerRajni Banthia
SDSU/UCSD Joint Doctoral Program in Clinical Psychology, 6363 Alvarado Ct #103, San Diego, California 92120, USA
J Behav Med 26:31-52. 2003..Being part of a strong dyad may serve as a buffering factor, implying the need for psychosocial intervention for couples in maladjusted relationships...
Health-related quality of life of severely obese children and adolescentsJeffrey B Schwimmer
Division of Pediatric Gastroenterology, Hepatology, and Nutrition, School of Medicine, University of California, San Diego 92103, USA
JAMA 289:1813-9. 2003..One in 7 US children and adolescents is obese, yet little is known about their health-related quality of life (QOL)...
Problem-solving skills and emotional distress in spouses of men with prostate cancerVanessa L Malcarne
Department of Psychology, San Diego State University, CA 92120 4913, USA
J Cancer Educ 17:150-4. 2002..Prostate cancer, the most common cancer in American men, may increase the risk of emotional distress in patients and their spouses. Problem-solving skills may be related to the emotional distress of the spouses...
The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-makingJames W Varni
Center for Child Health Outcomes, Children s Hospital and Health Center, Department of Psychiatry, University of California, San Diego, School of Medicine, USA
J Behav Med 25:175-93. 2002..In the pediatric rheumatology clinic setting, the PedsQL demonstrated an impact on clinical decision-making, resulting in subsequent increases in HRQOL...
The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer ModuleJames W Varni
Center for Child Health Outcomes, Children s Hospital and Health Center, 3020 Children s Way, San Diego, CA 92123, USA
Cancer 94:2090-106. 2002..The PedsQL Multidimensional Fatigue Scale was designed to measure fatigue in pediatric patients. The PedsQL 3.0 Cancer Module was designed to measure pediatric cancer specific HRQOL...
The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology ModuleJames W Varni
Center for Children s Health Outcomes, Children s Hospital and Health Center and University of California, San Diego School of Medicine, 92123, USA
Arthritis Rheum 46:714-25. 2002..This study was undertaken to demonstrate the reliability, validity, and responsiveness of the PedsQL 4.0 Generic Core Scales and the PedsQL 3.0 Rheumatology Module in pediatric rheumatology...
The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis--a one year prospective studyMichael G Sawyer
Research and Evaluation Unit, Women s and Children s Hospital, South Australia, Australia
Qual Life Res 14:1585-98. 2005..However, there was little evidence that pain coping strategies mediated the relationship between children's experience of pain and their HRQL...
Problem-solving and distress in prostate cancer patients and their spousal caregiversCeline M Ko
Joint Doctoral Program in Clinical Psychology, San Diego State University University of California, 6363 Alvarado Court, Suite 103, San Diego, CA, 92120 4913, USA
Support Care Cancer 13:367-74. 2005..The following mediational model was tested: Spouses' problem-solving coping will be significantly inversely related to patients' levels of distress, but this relationship will be mediated by spouses' distress levels...
Measuring health-related quality of life in children with ESRD: performance of the generic and ESRD-specific instrument of the Pediatric Quality of Life Inventory (PedsQL)Stuart L Goldstein
Baylor College of Medicine, Houston, TX, USA
Am J Kidney Dis 51:285-97. 2008..Minimal data exist to describe health-related quality of life in children with end-stage renal disease (ESRD)...
Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL) cancer module scaleAna C Scarpelli
Department of Pediatric Dentistry and Orthodontics, Faculty of Dentistry, Federal University of Minas Gerais Av, Antonio Carlos 6627, Belo Horizonte, MG, 31270 901, Brazil
Health Qual Life Outcomes 6:7. 2008..The objective of the current paper was to evaluate the psychometric properties of the PedsQL 3.0 Cancer Module cross-culturally adapted for use in Brazil...
Measuring health-related quality of life in Greek children: psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 Generic Core ScalesKonstantina Gkoltsiou
Center for Health Services Research, Medical School, University of Athens, Alexandroupoleos 25, Athens 11527, Greece
Qual Life Res 17:299-305. 2008..The aim of this study was to investigate the psychometric properties of the Greek version of the Pediatric Quality of Life Inventory(TM) 4.0 (PedsQL(TM) 4.0) as a population health outcome measure...
Reliability and validity of the Pediatric Quality of Life Inventory (PedsQL) Short Form 15 Generic Core Scales in JapanXiaoli Chen
Faculty of Medicine, Division of Biostatistics and Clinical Epidemiology, University of Toyama, Toyama, Japan
Qual Life Res 16:1239-49. 2007..To assess the reliability and validity of the Japanese translation version of the Pediatric Quality of Life Inventory 4.0 Short Form 15 (PedsQL 4.0 SF15)...
Practical issues in the application of item response theory: a demonstration using items from the pediatric quality of life inventory (PedsQL) 4.0 generic core scalesCheryl D Hill
RTI Health Solutions, Research Triangle Park, North Carolina 27709 2194, USA
Med Care 45:S39-47. 2007..This article discusses results obtained using categorical confirmatory factor analysis (CCFA) to check IRT model assumptions and the application of IRT in item analysis and scale evaluation...
Trajectories of adjustment in mothers of children with newly diagnosed cancer: a natural history investigationMichael J Dolgin
Schneider Children s Medical Center, Israel
J Pediatr Psychol 32:771-82. 2007....
Correspondence between daily and weekly fatigue reports in breast cancer survivorsRajni Banthia
SDSU/UCSD Joint Doctoral Program in Clinical Psychology, San Diego, CA 92120-4913, USA
J Behav Med 29:269-79. 2006..Findings suggest that different information is captured by daily versus weekly reports, and that although visual analogue scale ratings can provide a quick assessment of general fatigue, they do not capture other important dimensions...
The impact of realized access to care on health-related quality of life: a two-year prospective cohort study of children in the California State Children's Health Insurance ProgramMichael Seid
RAND Corporation, 1776 Main Street, M4W, Santa Monica, CA 90407, USA
J Pediatr 149:354-61. 2006..To examine the effect of realized access to care (problems getting care, access to needed care) on health-related quality of life (HRQOL) in the California State Children's Health Insurance Program...
The PedsQL Present Functioning Visual Analogue Scales: preliminary reliability and validitySandra A Sherman
SDSU UCSD Joint Doctoral Program in Clinical Psychology, San Diego State, San Diego, CA 92120, USA
Health Qual Life Outcomes 4:75. 2006....
The PedsQL Brain Tumor Module: initial reliability and validityStephanie N Palmer
Childrens Center for Cancer and Blood Diseases, Childrens Hospital Los Angeles, Keck School of Medicine, University of Southern California, Los Angeles, California, USA
Pediatr Blood Cancer 49:287-93. 2007..This investigation examines the internal consistency reliability and construct validity of the Pediatric Quality of Life Inventory (PedsQL) Brain Tumor Module...
The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of lifeRoss M Hays
Pediatric Palliative Care Consultation Program, Children s Hospital and Regional Medical Center Seattle, Seattle, Washington 98180, USA
J Palliat Med 9:716-28. 2006..The program was designed to enhance patient-provider communication using the Decision-making Tool (DMT) and experimented with co-management by clinicians and insurers to support decision making in advanced serious pediatric illness...
Pain, fatigue, and school functioning in children with cerebral palsy: a path-analytic modelSusan J Berrin
San Diego State University, USA
J Pediatr Psychol 32:330-7. 2007..This study tests a model of how pain and fatigue, independently or in combination, relate to school functioning in pediatric cerebral palsy (CP)...
Measuring the quality of children's postoperative pain management: initial validation of the child/parent Total Quality Pain Management (TQPM) instrumentsRoxie L Foster
School of Nursing, University of Colorado Health Sciences Center, Denver, CO 80262, USA
J Pain Symptom Manage 23:201-10. 2002..Construct validity was examined through selected inter-item relationships. Psychometric analyses support the initial measurement properties of the pediatric TQPM instruments...
Problem-solving skills training for mothers of children with newly diagnosed cancer: a randomized trialOlle Jane Z Sahler
Division of Hematology Oncology, Strong Children s Hospital University of Rochester Medical Center, New York 14642, USA
J Dev Behav Pediatr 23:77-86. 2002..The implications of these findings for refinement of the PSST intervention and for extension to other groups of children with serious illnesses are discussed...
Costs of recruiting couples to a clinical trialGeorgia Robins Sadler
UCSD School of Medicine, La Jolla, CA 92093 0658, USA
Contemp Clin Trials 28:423-32. 2007..Having estimates of the actual cost of recruiting dyads to research studies can help investigators prepare realistic study budgets...
Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: report of a multisite randomized trialOlle Jane Z Sahler
Golisano Children s Hospital at Strong, University of Rochester Medical Center, Rochester, NY 14642, USA
J Consult Clin Psychol 73:272-83. 2005..In general, efficacy for Spanish-speaking mothers exceeded that for English-speaking mothers. Findings also suggest young, single mothers profit most from PSST...
Daily hassles and social support as predictors of adjustment in children with pediatric rheumatic diseaseRenee T von Weiss
University of Kansas Medical Center, Kansas City 66160-7330, USA
J Pediatr Psychol 27:155-65. 2002..DISCUSSION: Results are consistent with a main effect rather than buffering model for social support. CONCLUSIONS: Interventions should focus on management of daily hassles and increasing social support for children with PRDs...
Health-related quality of life in pediatric patients with ESRDStuart L Goldstein
Texas Children s Hospital, 6621 Fannin Street, MC 3 2482, Houston, TX 77030, USA
Pediatr Nephrol 21:846-50. 2006..We suggest that the ESRD-specific HRQOL instrument in development is needed to help define condition-specific HRQOL differences between modalities...
