K E Ormond
Affiliation: Stanford University
- Practical considerations to guide development of access controls and decision support for genetic information in electronic medical recordsDiana C Darcy
South Bay Regional Genetics Center, Santa Clara Valley Medical Center, San Jose, California, USA
BMC Health Serv Res 11:294. 2011....
- Medical and graduate students' attitudes toward personal genomicsKelly E Ormond
Department of Genetics, Stanford Center for Biomedical Ethics, Stanford University, Stanford, California, USA
Genet Med 13:400-8. 2011....
- Assessing the understanding of biobank participantsK E Ormond
Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA
Am J Med Genet A 149:188-98. 2009..These findings are informative to those establishing and implementing biobanks, and to the IRBs reviewing such studies...
- Information preferences of high literacy pregnant women regarding informed consent models for genetic carrier screeningK E Ormond
Department of Medicine, Center for Genetic Medicine, and Medical Humanities and Bioethics, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States
Patient Educ Couns 75:244-50. 2009..With the increasing carrier screening options being offered to pregnant women, it is critical to consider what information women want in an informed consent process, and how they make decisions regarding screening...
- Medical ethics for the genome world: a paper from the 2007 William Beaumont hospital symposium on molecular pathologyKelly E Ormond
Department of Genetics, Stanford University, Stanford, California, USA
J Mol Diagn 10:377-82. 2008..Using a clinical medical ethics approach, several hypothetical case scenarios are presented and discussed to provide examples of the ethical issues that can arise...
- What do patients prefer: informed consent models for genetic carrier testingK E Ormond
Department of Medicine, Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA
J Genet Couns 16:539-50. 2007..It will be useful to develop model consent programs and prospectively assess their impact on informed consent and patient satisfaction, both when positive and negative results are received...
- Clinical assessment incorporating a personal genomeEuan A Ashley
Center for Inherited Cardiovascular Disease, Division of Cardiovascular Medicine, Stanford University School of Medicine, Stanford, CA, USA
Lancet 375:1525-35. 2010..The cost of genomic information has fallen steeply, but the clinical translation of genetic risk estimates remains unclear. We aimed to undertake an integrated analysis of a complete human genome in a clinical context...
- Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testingM A Allyse
Center for Biomedical Ethics, Stanford University, Stanford, CA, USA
Prenat Diagn 33:656-61. 2013..The goal of this study is to provide an ethical framework for clinicians and companies providing noninvasive prenatal testing using cell-free fetal DNA or whole fetal cells...
- Knowledge and attitudes toward a free education and Ashkenazi Jewish carrier testing programG Hegwer
Center for Genetic Medicine and Graduate Program in Genetic Counseling, Feinberg School of Medicine, Northwestern University, Chicago, Illinois 60611, USA
J Genet Couns 15:61-70. 2006..05). In conclusion, this study demonstrated that an educational carrier screening program increased knowledge about the disorders and also produced mild anxiety regarding personal and reproductive risks...
- Attitudes of health care trainees about genetics and disability: issues of access, health care communication, and decision makingKelly E Ormond
Center for Genetic Medicine, Northwestern University, 676 N St Clair 1271, Chicago, Illinois 60611, USA
J Genet Couns 12:333-49. 2003..Therefore, it is critical to document knowledge and attitudes of various health care providers and trainees, including differences between various specialties, to improve educational interventions geared to this area...
- The genetic family history as a risk assessment tool in internal medicineTheresa M Frezzo
Feinberg School of Medicine, Northwestern University, Department of Obstetrics and Gynecology, Section of Reproductive Genetics and Graduate Program in Genetic Counseling, Chicago, Illinois, USA
Genet Med 5:84-91. 2003....
- Disclosing genetic research results: examples from practiceKelly E Ormond
Northwestern University, USA
Am J Bioeth 6:30-2; author reply W10-2. 2006
- Effect of family history on disclosure patterns of cystic fibrosis carrier statusKelly E Ormond
Department of Obstetrics and Gynecology, Section of Reproductive Genetics, Northwestern University, Chicago, Illinois, USA
Am J Med Genet C Semin Med Genet 119:70-7. 2003..Our study documents that the frequency and reasons for disclosing CF carrier status differ between individuals with and without a family history of CF despite the fact that the reproductive risks for their relatives are the same...
- Outcome of chromosomally abnormal pregnancies in Lebanon: obstetricians' roles during and after prenatal diagnosisLama T Eldahdah
Graduate Program in Genetic Counseling, Northwestern University, Chicago IL, USA
Prenat Diagn 27:525-34. 2007..To better understand obstetrician experiences in Lebanon when disclosing abnormal amniocentesis results...
- Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to childrenSusan Hiraki
Alzheimer s Disease Center, Boston University, School of Medicine, Boston, Massachusetts, USA
Am J Med Genet A 140:2312-9. 2006..Their support for NBS correlates with their interest in testing their own children and not with professional experience...
- Genetic risk assessment and BRCA mutation testingKelly E Ormond
Ann Intern Med 144:303-4; discussion 304. 2006
- Association of spinocerebellar ataxia type 3 and spinocerebellar ataxia type 8 microsatellite expansions: genetic counseling implicationsSabrina Paganoni
Mov Disord 23:154-5. 2008
- Outline of a medical genetics curriculum for internal medicine residency training programsDouglas L Riegert-Johnson
McKusick Nathans Institute of Genetic Medicine, Johns Hopkins Hospital, Baltimore, Maryland, USA
Genet Med 6:543-7. 2004..Teaching should be related to clinical experiences whenever possible. The curriculum developed by the committee and presented in this article will assist in teaching residents the attitudes, knowledge, and skills they will require...