Pamela Hinds

Summary

Affiliation: St. Jude Children's Research Hospital
Country: USA

Publications

  1. ncbi Patient-reported outcomes: a desirable specialty standard for oncology or an incomplete measurement approach?
    Pamela S Hinds
    Cancer Nurs 31:259-60. 2008
  2. ncbi Key factors affecting dying children and their families
    Pamela S Hinds
    Division of Nursing Research and the St Jude Palliative and End of Life Care Task Force, St Jude Children s Research Hospital, and Department of Clinical Psychology, University of Memphis, Tennessee 38105, USA
    J Palliat Med 8:S70-8. 2005
  3. ncbi Patient-reported outcomes in end-of-life research in pediatric oncology
    Pamela S Hinds
    St Jude Children s Research Hospital, Memphis, TN 38105 2719, USA
    J Pediatr Psychol 32:1079-88. 2007
  4. ncbi Quality of life as conveyed by pediatric patients with cancer
    P S Hinds
    Patient Care Services, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Qual Life Res 13:761-72. 2004
  5. doi Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    Eur J Oncol Nurs 13:156-63. 2009
  6. ncbi The hopes and wishes of adolescents with cancer and the nursing care that helps
    Pamela S Hinds
    St Jude Childrens Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 31:927-34. 2004
  7. ncbi End-of-life care preferences of pediatric patients with cancer
    Pamela S Hinds
    Division of Nursing Research and Patient Care Services, Department of Hematology Oncology, Palliative and End of Life Care Task Force, and Ethics Committee, St Jude Children s Research Hospital, Memphis, TN, USA
    J Clin Oncol 23:9146-54. 2005
  8. ncbi End-of-life care for children and adolescents
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    Semin Oncol Nurs 21:53-62. 2005
  9. ncbi Dexamethasone alters sleep and fatigue in pediatric patients with acute lymphoblastic leukemia
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Cancer 110:2321-30. 2007
  10. ncbi Clinical field testing of an enhanced-activity intervention in hospitalized children with cancer
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee 38105, USA
    J Pain Symptom Manage 33:686-97. 2007

Detail Information

Publications75

  1. ncbi Patient-reported outcomes: a desirable specialty standard for oncology or an incomplete measurement approach?
    Pamela S Hinds
    Cancer Nurs 31:259-60. 2008
  2. ncbi Key factors affecting dying children and their families
    Pamela S Hinds
    Division of Nursing Research and the St Jude Palliative and End of Life Care Task Force, St Jude Children s Research Hospital, and Department of Clinical Psychology, University of Memphis, Tennessee 38105, USA
    J Palliat Med 8:S70-8. 2005
    ....
  3. ncbi Patient-reported outcomes in end-of-life research in pediatric oncology
    Pamela S Hinds
    St Jude Children s Research Hospital, Memphis, TN 38105 2719, USA
    J Pediatr Psychol 32:1079-88. 2007
    ....
  4. ncbi Quality of life as conveyed by pediatric patients with cancer
    P S Hinds
    Patient Care Services, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Qual Life Res 13:761-72. 2004
    ..Here we present a new definition of the quality of life of pediatric oncology patients that is based on six domains; this definition may ensure the completeness and sensitivity of these important instruments...
  5. doi Health-related quality of life in adolescents at the time of diagnosis with osteosarcoma or acute myeloid leukemia
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    Eur J Oncol Nurs 13:156-63. 2009
    ..Our findings demonstrates the feasibility of measuring HRQoL in adolescents with OS or AML (and their parents) at the time of diagnosis, and thus their HRQoL ratings can be used to inform their cancer care from diagnosis forward...
  6. ncbi The hopes and wishes of adolescents with cancer and the nursing care that helps
    Pamela S Hinds
    St Jude Childrens Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 31:927-34. 2004
  7. ncbi End-of-life care preferences of pediatric patients with cancer
    Pamela S Hinds
    Division of Nursing Research and Patient Care Services, Department of Hematology Oncology, Palliative and End of Life Care Task Force, and Ethics Committee, St Jude Children s Research Hospital, Memphis, TN, USA
    J Clin Oncol 23:9146-54. 2005
    ..We identified the preferences of children and adolescents with advanced cancer about their end-of-life care and the factors that influenced their decisions...
  8. ncbi End-of-life care for children and adolescents
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    Semin Oncol Nurs 21:53-62. 2005
    ..To describe the complexities in end-of-life care of children and adolescents dying cancer-related deaths...
  9. ncbi Dexamethasone alters sleep and fatigue in pediatric patients with acute lymphoblastic leukemia
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Cancer 110:2321-30. 2007
    ..The objective of the current study was to determine the effect of dexamethasone exposure on sleep and fatigue in pediatric patients with ALL...
  10. ncbi Clinical field testing of an enhanced-activity intervention in hospitalized children with cancer
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee 38105, USA
    J Pain Symptom Manage 33:686-97. 2007
    ..Our findings identify design and statistical considerations for a future effectiveness study of the EPA intervention in hospitalized pediatric oncology patients...
  11. pmc Validity and reliability of a new instrument to measure cancer-related fatigue in adolescents
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee 38105, USA
    J Pain Symptom Manage 34:607-18. 2007
    ..Findings further indicate that the FS-A can be used to measure change over time (t=2.55, P<0.01). In summary, the FS-A has moderate to strong reliability and impressive validity coefficients for a new research instrument...
  12. ncbi Nocturnal awakenings, sleep environment interruptions, and fatigue in hospitalized children with cancer
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 34:393-402. 2007
    ....
  13. ncbi Conducting end-of-life studies in pediatric oncology
    Pamela S Hinds
    St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    West J Nurs Res 29:448-65. 2007
    ..It is hoped that the solutions described here will benefit others in their efforts to implement pediatric end-of-life studies so that clinically useful findings will result and will improve the care of dying children and adolescents...
  14. ncbi Advances in defining, conceptualizing, and measuring quality of life in pediatric patients with cancer
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital in Memphis, TN, USA
    Oncol Nurs Forum 33:23-9. 2006
    ..To describe the notable advances in defining, conceptualizing, and measuring quality of life (QOL) in pediatric patients with cancer since the 1995 Oncology Nursing Society's State-of-the-Knowledge Conference on QOL...
  15. ncbi The Health Utilities Index 3 invalidated when completed by nurses for pediatric oncology patients
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    Cancer Nurs 30:169-77. 2007
    ..Because of this, use of the HUI3 by nurse proxies for patients with pediatric acute lymphoblastic leukemia is not recommended...
  16. ncbi Shifting perspectives: adolescent-focused oncology nursing research
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 31:281-7. 2004
    ....
  17. ncbi Online exclusive: functional integration of nursing research into a pediatric oncology cooperative group: finding common ground
    Pamela S Hinds
    St Jude Children s Hospital, Memphis, TN, USA
    Oncol Nurs Forum 30:E121-6. 2003
    ....
  18. ncbi An international feasibility study of parental decision making in pediatric oncology
    P S Hinds
    Divison of Patient Care Services, St Jude Children s Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 27:1233-43. 2000
    ..To describe parental decision making about treatment options for children with cancer and determine the feasibility of a similar but larger international study...
  19. ncbi Developing a research program on fatigue in children and adolescents diagnosed with cancer
    P S Hinds
    St Jude Children s Research Hospital, 332 N Lauderdale, Memphis, TN 38105, USA
    J Pediatr Oncol Nurs 18:3-12. 2001
    ..The link between these definitions and planned future fatigue intervention research is also described...
  20. ncbi The nurse as witness in the research consent/assent process: an inherently problematic role, or an ethical obligation?
    Pamela S Hinds
    Division of Patient Care Services, St Jude Children s Research Hospital, Memphis, TN, USA
    J Pediatr Oncol Nurs 19:35-40. 2002
  21. ncbi Translating psychosocial research findings into practice guidelines
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN 38105 2794, USA
    J Nurs Adm 33:397-403. 2003
    ..From these guidelines, 4 clinical care projects were developed and are described in this article...
  22. ncbi End-of-life research as a priority for pediatric oncology
    Pamela S Hinds
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, TN, USA
    J Pediatr Oncol Nurs 21:175-9. 2004
    ..Such interventions could also contribute to the highest quality and cost-effective care being provided to the bereaved survivors...
  23. ncbi Comparing the results of coagulation tests on blood drawn by venipuncture and through heparinized tunneled venous access devices in pediatric patients with cancer
    Pamela S Hinds
    Division of Patient Care Services, St Jude Children s Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 29:E26-34. 2002
    ....
  24. ncbi Monitoring child and parent refusals to enrol in clinical research protocols
    Jami Gattuso
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee, USA
    J Adv Nurs 53:319-26. 2006
    ..The aim of this paper is to report the rates and reasons for refusal given by 817 eligible participants from 10 completed and ongoing nursing and behavioural medicine studies in paediatric oncology from 1994 to 2004...
  25. pmc Availability of palliative care services for children with cancer in economically diverse regions of the world
    Eduardo Delgado
    Department of Oncology, St Jude Children s Research Hospital, Memphis, TN, USA
    Eur J Cancer 46:2260-6. 2010
    ..We assessed the availability and quality of palliative care for children with cancer according to national income per capita...
  26. ncbi Therapy preference and decision-making among patients with severe sickle cell anemia and their families
    Jane Hankins
    Department of Hematology Oncology, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Pediatr Blood Cancer 48:705-10. 2007
    ..We explored factors that influenced making decisions regarding interventions and examined the relations between treatment preference and health-related quality of life (HRQOL)...
  27. pmc Factors that distinguish symptoms of most concern to parents from other symptoms of dying children
    Michele Pritchard
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee, USA
    J Pain Symptom Manage 39:627-36. 2010
    ....
  28. ncbi Guidelines for the recurrence of pediatric cancer
    Pamela S Hinds
    Department of Nursing Research, St Jude Children s Hospital, Memphis, TN, USA
    Semin Oncol Nurs 18:50-9. 2002
    ..To provide practice guidelines to assist patients and parents in coping with a return of disease...
  29. ncbi Osteosarcoma nursing care guidelines: a tool to enhance the nursing care of children and adolescents enrolled on a medical research protocol
    Elizabeth A Gilger
    Division of Neuro Oncology, St Jude Children s Research Hospital, 332 N Lauderdale, Memphis, TN 38105 2794, USA
    J Pediatr Oncol Nurs 19:172-81. 2002
    ..The purpose of this article is to describe the process used to create and evaluate nursing care guidelines...
  30. ncbi Testing the revised stress-response sequence model in pediatric oncology nurses
    Pamela S Hinds
    Division of Patient Care Services, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    J Pediatr Oncol Nurs 20:213-32. 2003
    ..These outcomes suggest that the revised SRS model does not adequately predict role consequences in pediatric oncology nurses. A new model is proposed...
  31. ncbi Double-blind, placebo-controlled study of quality of life, hematologic end points, and safety of weekly epoetin alfa in children with cancer receiving myelosuppressive chemotherapy
    Bassem I Razzouk
    St Jude Children s Research Hospital, Memphis, TN, USA
    J Clin Oncol 24:3583-9. 2006
    ..To evaluate the effects of once-weekly epoetin alfa (EPO) on health-related quality of life (HRQOL), hemoglobin (Hb), transfusions, and tolerability in children with cancer...
  32. ncbi Creating the basis for a breast health program for female survivors of Hodgkin disease using a participatory research approach
    Deborah B Crom
    Department of Hematology Oncology, St Jude Children s Research Hospital, Memphis, TN, USA
    Oncol Nurs Forum 32:1131-41. 2005
    ....
  33. pmc Changes in medical care at a pediatric oncology referral center after placement of a do-not-resuscitate order
    Justin N Baker
    Department of Pediatric Medicine, Division of Palliative and End of Life Care, St Jude Children s Research Hospital, Memphis, Tennessee, USA
    J Palliat Med 13:1349-52. 2010
    ..We therefore assessed medical care that was continued, added, and discontinued after a DNR order was placed in the medical record...
  34. ncbi Cancer-related deaths in children and adolescents
    Glenna Bradshaw
    Baptist Memorial Hospital East, Memphis, Tennessee, USA
    J Palliat Med 8:86-95. 2005
    ..To add to the data regarding the quality of care given to dying children and their families...
  35. pmc Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
    Justin N Baker
    Department of Oncology, St Jude Children s Research Hospital, Memphis, Tennessee, USA
    J Palliat Med 12:71-6. 2009
    ..We assessed whether race (white, black) was associated with the frequency of do-not-resuscitate (DNR) orders, the number and timing of EOLC discussions, or the timing of EOLC decisions among patients treated at our institution who died...
  36. pmc Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate/terminal care option
    Scott H Maurer
    Department of Oncology, St Jude Children s Research Hospital, Memphis, TN 38105, USA
    J Clin Oncol 28:3292-8. 2010
    ....
  37. ncbi Development and testing of the Role-related Meaning Scale for Staff in Pediatric Oncology
    Brenda Steen
    Division of Nursing Research, Department of Biostatistics, St Jude Children s Research Hospital, 332 N Lauderdale, Memphis, TN 38105, USA
    Cancer Nurs 26:187-94. 2003
    ..Future studies will examine whether the RRMS adequately measures the change in meaning brought about by interventions designed to increase role-related meaning among nurses...
  38. ncbi A comparison of calorie and protein intake in hospitalized pediatric oncology patients dining with a caregiver versus patients dining alone: a randomized, prospective clinical trial
    Ruth Williams
    Clinical Nutrition Services, St Jude Children s Research Hospital, Memphis, TN, USA
    J Pediatr Oncol Nurs 21:223-32. 2004
    ..By using analysis of variance, the authors found that ideal body weight and years of sickness were significantly associated with calorie and protein intake...
  39. ncbi Creating a palliative and end-of-life program in a cure-oriented pediatric setting: the zig-zag method
    JoAnn Harper
    Department of Oncology, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    J Pediatr Oncol Nurs 24:246-54. 2007
    ..They conclude that establishing a state-of-the-art palliative and EoL program in a cure-oriented pediatric setting is achievable via consensus building and recruitment of diverse institutional resources...
  40. ncbi When recruiting advance practice nurses is costly, develop your staff nurses
    Belinda N Mandrell
    Pediatric Oncology Practitioner Program, Patient Care Services, St Jude Children s Research Hospital, Memphis, TN 38105 2794, USA
    J Nurs Adm 34:543-5. 2004
  41. ncbi Transforming a hospital nursing research fellowship into an evidence-based practice fellowship
    Jami S Gattuso
    Division of Nursing Research and Patient Care Services, St Jude Children s Research Hospital, 332 N Lauderdale Street, Memphis, TN 38105, USA
    J Nurs Adm 37:539-45. 2007
    ..The transformation of the fellowship and the short-term outcomes are described...
  42. ncbi Palliative care and pediatrics
    Doralina L Anghelescu
    Pain Management Service, Division of Anesthesia, St Jude Children s Research Hospital, 332 North Lauderdale, Memphis, TN 38105 2794, USA
    Anesthesiol Clin 24:145-61, ix. 2006
    ..The emphasis of the ultimate aims of pediatric palliative care is to care for the body, mind, and spirit, to enhance quality of life, and to minimize suffering...
  43. ncbi Gender differences in sleep, fatigue, and daytime activity in a pediatric oncology sample receiving dexamethasone
    Stacy D Sanford
    St Jude Children s Research Hospital, Memphis, TN 38105, USA
    J Pediatr Psychol 33:298-306. 2008
    ..To examine gender differences in sleep, fatigue, and daytime activity in a sample of children with acute lymphoblastic leukemia (ALL)...
  44. ncbi Pharmacokinetics and pharmacodynamics of intravenous epoetin alfa in children with cancer
    Burgess B Freeman
    Department of Pharmaceutical Sciences, St Jude Children s Research Hospital, Memphis, Tennessee 38105, USA
    Pediatr Blood Cancer 47:572-9. 2006
    ..Epoetin alfa (EPO, PROCRIT) pharmacokinetics and pharmacodynamics were evaluated in children with malignant solid tumors receiving chemotherapy...
  45. pmc Bereaved parents' perceptions about when their child's cancer-related death would occur
    Michele Pritchard
    Division of Nursing Research, St Jude Children s Research Hospital, Memphis, Tennessee, USA
    J Pain Symptom Manage 38:561-7. 2009
    ..Clinicians can use these descriptions and the associated symptom patterns to help families prepare for their child's last week and last day...
  46. ncbi Pediatric oncology nursing research in the Children's Oncology Group: the second generation
    Pamela S Hinds
    St Jude Children s Research Hospital, Memphis, TN, USA
    Semin Oncol Nurs 21:77-8. 2005
  47. pmc Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination
    Justin N Baker
    Department of Oncology, St Jude Children s Research Hospital, Memphis, TN 38105 2794, USA
    Pediatr Clin North Am 55:223-50, xii. 2008
    ..Clinicians' strong desire to provide compassionate, competent, and sensitive care to the seriously ill child and the child's family can be effectively translated into clinical practice through these processes...
  48. doi Cancer-related symptoms most concerning to parents during the last week and last day of their child's life
    Michele Pritchard
    Department of Oncology, St Jude Children s Research Hospital, 332 N Lauderdale, Memphis, TN 38105 2794, USA
    Pediatrics 121:e1301-9. 2008
    ..The purpose of this study was to identify the cancer-related symptoms that most concerned parents during the last days of their child's life and the strategies parents identified as helpful with their child's care...
  49. ncbi Assessing functional mobility in survivors of lower-extremity sarcoma: reliability and validity of a new assessment tool
    Victoria G Marchese
    Department of Epidemiology and Cancer Control, St Jude Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Pediatr Blood Cancer 49:183-9. 2007
    ..FMA requires the patients to physically perform the functional mobility measures, unlike patient self-report or clinician administered measures...
  50. ncbi Pleurodesis for effusions in pediatric oncology patients at end of life
    Fredric A Hoffer
    Department of Radiological Sciences, St Jude Children s Research Hospital, Memphis, TN, USA
    Pediatr Radiol 37:269-73. 2007
    ..Pleurodesis for end-of-life care has been used in adults for decades, but little is known about the usefulness of this technique in improving the quality of care for pediatric patients...
  51. ncbi A process to facilitate decision making in pediatric stem cell transplantation: the individualized care planning and coordination model
    Justin N Baker
    Department of Oncology, St Jude Children s Research Hospital, Memphis, Tennessee 38105, USA
    Biol Blood Marrow Transplant 13:245-54. 2007
    ....
  52. ncbi Octreotide therapy of pediatric hypothalamic obesity: a double-blind, placebo-controlled trial
    Robert H Lustig
    Department of Endocrinology, St Jude Children s Research Hospital, Memphis, Tennessee 38105, USA
    J Clin Endocrinol Metab 88:2586-92. 2003
    ..Octreotide suppressed insulin, and stabilized weight and BMI. Improved quality of life correlated with the degree of insulin suppression. Octreotide was safe and well tolerated...
  53. pmc Attentional and executive dysfunction as predictors of smoking within the Childhood Cancer Survivor Study cohort
    Lisa S Kahalley
    Department of Behavioral Medicine, St Jude Children s Research Hospital, Memphis, TN, USA
    Nicotine Tob Res 12:344-54. 2010
    ..The present study explores whether the attentional and executive functioning (EF) deficits associated with cancer and treatment place survivors of childhood cancer at increased risk for smoking...
  54. ncbi Relationships among range of motion, functional mobility, and quality of life in children and adolescents after limb-sparing surgery for lower-extremity sarcoma
    Victoria G Marchese
    Department of Epidemiology and Cancer Control, St Jude s Children s Research Hospital, Memphis, Tennessee 38105 2794, USA
    Pediatr Phys Ther 18:238-44. 2006
    ..The study was designed to examine relationships between range of motion (ROM), functional mobility, and quality of life (QL) in patients with lower-extremity sarcoma (LES) after limb-sparing surgery..
  55. doi Reliability and validity of the Chinese version of the Fatigue Scale-Adolescent
    Yi Chien Chiang
    Department of Nursing, Chang Gung Institute of Technology, Taoyuan, Taiwan
    Cancer Nurs 31:E1-8. 2008
    ..Its use in measuring the intensity of fatigue in adolescents is likely to yield accurate assessments of their fatigue that could prompt clinical efforts to relieve their fatigue-related distress...
  56. doi Attending to patients' cancer-related symptoms requires committed relationships
    Pamela S Hinds
    Cancer Nurs 31:87. 2008
  57. ncbi Three instruments to assess fatigue in children with cancer: the child, parent and staff perspectives
    Marilyn J Hockenberry
    Cancer Center, Texas Children s Hospital, Baylor College of Medicine, 6621 Fannin Street, Houston, TX 77060, USA
    J Pain Symptom Manage 25:319-28. 2003
    ..The instruments demonstrated strong initial validity and reliability estimates. This study is the first to provide valid and reliable instruments to measure fatigue in children with cancer...
  58. ncbi Moving the research agenda forward for children and adolescents with cancer
    Martha L Hare
    J Pediatr Oncol Nurs 21:121-2. 2004
  59. ncbi Collaborative clinical research on end-of-life care in pediatric oncology
    Suzanne L Nuss
    Nebraska Medical Center, Omaha, NE 68198 7625, USA
    Semin Oncol Nurs 21:125-34; discussion 134-44. 2005
    ..To present an overview of research into end-of-life (EoL) care for pediatric patients with cancer and to describe research completed by a newly formed collaboration of researchers...
  60. ncbi The care of my child with cancer: parents' perceptions of caregiving demands
    Kelly James
    Sutter Medical Center, Memorial Campus, 5275 F Street, Sacramento, CA 95819, USA
    J Pediatr Oncol Nurs 19:218-28. 2002
    ..These study findings provide the basis for future interventions that may diminish the effect that caregiving demands place on parents of children with cancer...
  61. ncbi Is clinical relevance sometimes lost in summative scores?
    Pamela S Hinds
    St Jude Children s Research Hospital
    West J Nurs Res 24:345-53. 2002
    ....
  62. ncbi Incidence of anemia in children with solid tumors or Hodgkin disease
    Marilyn J Hockenberry
    Texas Children s Cancer Center, Texas Children s Hospital, Houston 77030, USA
    J Pediatr Hematol Oncol 24:35-7. 2002
    ..The long-term complications of anemia in children with cancer are unknown. Further investigation of the clinical significance of anemia, including its impact on quality of life, is warranted...
  63. ncbi Moving the research agenda forward for children and adolescents with cancer
    Martha L Hare
    National Institute of Nursing Research, NIH, 6701 Democracy Boulevard, One Democracy Plaza Room 710, Bethesda, MD 20892 4870, USA
    J Pediatr Oncol Nurs 21:186-8. 2004
  64. doi Development and psychometric testing of a Chinese version of the Fatigue Scale-Children in Taiwan
    Yi Chien Chiang
    Department of Nursing, Chang Gung Institute of Technology, Tao Yuen, Taiwan
    J Clin Nurs 17:1201-10. 2008
    ..The aim of this study was to develop and evaluate the psychometric properties of a Chinese version of the Fatigue Scale-Children (FS-C-C)...
  65. ncbi Preparing mothers and fathers for death of their child
    Pamela S Hinds
    Lancet Oncol 8:666-7. 2007
  66. ncbi Parental decision making in pediatric cancer end-of-life care: using focus group methodology as a prephase to seek participant design input
    Deborah Tomlinson
    Population Health Sciences, Hospital for Sick Children, 123 Edward Street, Toronto, Ont, Canada M5G 1E2
    Eur J Oncol Nurs 10:198-206. 2006
    ..We found it was extremely beneficial to include a focus group pre-phase in a study that will interview parents in a high sensitivity area...
  67. ncbi Hemoglobin response and improvements in quality of life in anemic children with cancer receiving myelosuppressive chemotherapy
    Pamela S Hinds
    J Support Oncol 3:10-1. 2005
  68. ncbi Sleep wake disturbances in people with cancer and their caregivers: state of the science
    Ann M Berger
    College of Nursing, University of Nebraska Medical Center, Omaha, NE, USA
    Oncol Nurs Forum 32:E98-126. 2005
    ..To review the state of the science on sleep/wake disturbances in people with cancer and their caregivers...
  69. ncbi What makes dying children different?
    Pamela S Hinds
    Int J Palliat Nurs 11:264. 2005
  70. ncbi Creating a novel structure for nursing research in a cooperative clinical trials group: the Children's Oncology Group experience
    Kathleen S Ruccione
    Division of Hematology Oncology, Department of Pediatrics, USC School of Medicine and Children Hospital Los Angeles, Los Angeles, CA 90027, USA
    Semin Oncol Nurs 21:79-88. 2005
    ..To describe a novel structure designed to integrate nursing research into the Children's Oncology Group (COG)...
  71. ncbi Could quality of life be the universal language for nursing?
    Pamela S Hinds
    Cancer Nurs 31:1. 2008
  72. ncbi Issues and challenges with integrating patient-reported outcomes in clinical trials supported by the National Cancer Institute-sponsored clinical trials networks
    Deborah Watkins Bruner
    Radiation Therapy Oncology Group, University of Pennsylvania, School of Nursing American College of Radiology Imaging Network, Philadelphia, PA 19104 6096, USA upenn edu
    J Clin Oncol 25:5051-7. 2007
    ..The objective of this report is to provide a historical overview of and the issues and challenges inherent in the incorporation of patient-reported outcomes (PROs) into multinational cancer clinical trials in the cancer cooperative groups...
  73. ncbi Quality of life among children with sickle cell disease receiving chronic transfusion therapy
    Kristin A Stegenga
    Children s Mercy Hospital, Hematology Oncology Clinic, 2401 Gillham Road, Kansas City, MO 64108, USA
    J Pediatr Oncol Nurs 21:207-13. 2004
    ..Data from this study reveal that CTT does have an impact on QoL. This information is important to share with those making CTT treatment decisions...
  74. ncbi A comparative analysis of functional outcomes in adolescents and young adults with lower-extremity bone sarcoma
    Jill P Ginsberg
    Division of Oncology, The Children s Hospital of Philadelphia, Philadelphia, Pennsylvania 19104, USA
    Pediatr Blood Cancer 49:964-9. 2007
    ..2)...
  75. doi The ethical justification for minor sibling bone marrow donation: a case study
    Rebecca D Pentz
    Winship Cancer Institute, Emory University, Atlanta, Georgia 30322, USA
    Oncologist 13:148-51. 2008
    ..The basis of familial duties is complex, including such factors as the nature, intimacy, and history of the relationship and the specific risks and benefits to all involved. We examine each of these factors for our case study...

Research Grants6

  1. SLEEP, FATIGUE, AND DEXAMETHOSONE IN CHILDHOOD CANCER
    Pamela Hinds; Fiscal Year: 2003
    ..Our study findings will explicate the relationship between sleep efficiency and fatigue, and between sleep, fatigue, and systemic exposure to dexamethasone. ..
  2. Voices of children and adolescents with incurable cancer on Phase I or II Trials
    Pamela S Hinds; Fiscal Year: 2010
    ..This study will allow us to measure direct symptom and quality of life reports of children and adolescents with incurable cancer who are receiving experimental drugs. ..